What are the signs and symptoms of Marfan syndrome?

[@salehakhanabbasi8849]

I have marfans and all I hear is mostly depressing stuff how you can have heart issues how life can become difficult and how many things you have to avoid as precautions.. But when he said life is getting better every day it really rose my hopes

[@technicianajaynagar996]

Me to ..I have marfon syndrome disease

[@elky1883]

Im 66 my eyesjust gone crazy never evergo docs ..was researching what coulda happened my sight and stumbled across marfans ....wowwow wow..tick tick tick tick tick every sympton i have ,thinking back hiw my twentys to forties suffered so much back pain just did nothing ..then joints kneesi suffered ..body shamed all my life ...ive exercised so many yearsand my arms havent a muscle in them ..sunken chest pot belly flat feet really high palate never drove because i couldnt see across road but perfect sight close up never wore glasses..always been anazed my hand span ut 10 arf inches across worked as a welder all my life been to docs prob five times my life . ..nowjust retired and clocked this disease answers so many questions....just wrote this let peoplewithitknow i gotto 66 and never new but havent died ...also got two sisters pretty sure one has same use sometimes useher old glasses she same stuck thin as me and had back pain all her life other much smaller and akways been jealous yus cos we never put weight on lol ....wow these kast two daysveen an eye opener ...just posted this let you all know you can get old

[@facelesspsycho8252]

I have it to but I have lived a good life so far . Started out a tall thin kid with a hunch back that got made fun of . Started weight training became a personal trainer fought mma do tree work and am a certified arborist and small business owner. I'm not 100% normal looking but I have built my body into being stronger and somewhat normal looking with my shirt on . And the working out also helped with some of the depression. Hope this comment will help someone keep from giving up stay in the fight and remember to be grateful for what you do have for me my body isn't like most but it mostly works so I am thankful for that.

[@accurateplaysrobloxandmore9118]

This video is a suprisingly resourceful video for researching on Marfan Syndrome for school

[@harrybaraik4587]

what is the age of your cousin ??

[@hermesgestistruism]

Thank you for covering and having a benefit for this serious disorder that very few people are aware of. ✌️❤️🔮

[@braidencoryelll]

I have, long arms, long legs, bad eyesight, flat feet, sunken chest, crowded mouth, bad stamina.... it's safe to say I have it 😭

[@DVD927]

My cousin died early due to heart problems caused by Marfan. I saw a geneticist & I am somewhat “on the spectrum” of it. I have knee dislocations & had retinal detachment, tons of arthritis (an assortment). The fun part is that every day is different lol

[@احمدالل-خ6خ]

كم جلس حي ؟ لاني اعاني كذالك من مارفان

[@Truerealism747]

So how do we no if we have this or hypomobility

[@rhysdavis6447]

@@Truerealism747 Main signs seem to be long legs, long arms, inverted chests, flat feet and heart/lung problems

[@Truerealism747]

@@rhysdavis6447 pritty sure mines eds hypomobility pain no long arms or fingers chest not inverted flat feet yes

[@coco4144]

I have marfanes and god I hope I don’t die from the heart problems Ik at some point I’ll have to get surgery but like still also I have arthritis too in my hips legs and some parts of my back I had to use a cane at one point just to get up from my chair

[@AR-cw4he]

Our son passed away from this illness disorder 🙏🏼

[@raj-i9n6s]

How

[@MH-hw4uh]

Sorry 😢

[@lisasteger4048]

I have had 5 brothers and also my mother at her age of 41 died from this 🥲

[@MH-hw4uh]

I have Marfan. Was ‘clinically’ diagnosed 2004 and now Genetically. There’s a general looks as is described by the video, but this condition is tricky, because it varies in so many ways, some aren’t, tall or have long fingers. Some don’t have a heart condition either, as it’s said, about 10% don’t have heart problems. In such cases, most can’t be diagnosed clinically only genetically. I fall in the tall typical looks, but I have relatives who have Marfan as well and are not. They say, though having at least one of the major Marfan problems and some of the minor problems, it’s easier to diagnose clinically. I have family members who have no major or minor problems, so to speak. Yet her children have Marfan and knowing it doesn’t skip generations, we know that she has it, even without obvious signs. Meaning, it can’t skip from grandmother to granddaughter. The mother has to have. But you can have this condition, mild moderate to severe. I fall the moderate but severe overall skeletal problems Pain is our daily problem. Very common among us.

[@braidencoryelll]

I have, long arms, long legs, bad eyesight, flat feet, sunken chest, crowded mouth, bad stamina.... it's safe to say I have it 😭

[@MH-hw4uh]

@@braidencoryelll not sure. But it's pos.

[@braidencoryelll]

@@MH-hw4uh hopefully not 😭 Maybe just a coincidence? It doesn’t help that I’m 7’0 tall and skinny

[@MH-hw4uh]

@@braidencoryelll Wow, you are tall. Do you have any heart problems? Can you describe your sunken chest, as there are various different ones. The most common is almost like a hole in the chest.

[@braidencoryelll]

@@MH-hw4uh I have pectus excavatum , it’s like my whole rib cage is shifted a teensy bit. I don’t think I have heart problems. I just don’t have the most stamina when running or doing endurance activities. I have very healthy limbs for a 7 footer. I can land a front flip on a trampoline, and I’m pretty fast. I’m light on my feet, and have never broken or fractured a bone in my life. One side of the chest goes in, and one side is normal. I have overpronated ankles as well (flat feet)

[@Creoles.nature]

How to get a diagnosis

[@q3r3v3]

@Creoles.nature depending on where you live, you need to go to a specialist (orthopedic, cardiac, etc.) and tell them that you suspect you might have Marfan syndrome because you have multiple symptoms of this disorder. Eventually, the doc might send you to a special clinic that analyzes your blood to see whether you have it or not

[@Weeklong_Seagull]

Just found out I got it

[@MH-hw4uh]

Sorry😢

[@angiep10]

Get checked for tethered cord on mri

[@RaffaelloLorenzusSayde]

I just have long arms and large hands. It could be a syndrome or just genetics. I can't really tell. No heart issues and no signs of slenderness. It it part of the family doctors job to monitor these things in one's yearly health checkups?

[@subhampanda8167]

Me same problem 😢

[@technicianajaynagar996]

Me to

[@subhampanda8167]

@@technicianajaynagar996what is your age and height and weight?.

[@subhampanda8167]

@@technicianajaynagar996 your age and height

[@subhampanda8167]

My height is 6.5 feet in age of 19 and waight only 58 kg🥹

[@MH-hw4uh]

You are welcome 🎉❤

[@Shinigamigaz]

No-one with Marfan Syndrome should get married, it is a death sentence. Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them. I know you, I know your suffering and I know why. Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it. I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same. Increase your energy, be fearless, be strong. You are loved more than you know. Whatever happens you are protected and you will learn in time how powerful you really are. Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world. Be the change you want to see. Be the miracle❤

[@MH-hw4uh]

Nonsense ‼️

[@Shinigamigaz]

@@MH-hw4uh says u lol

[@chimrichalds81]

Have kids

[@annieefissh]

Huh

[@Relatablecontentdaily761]

Iam 5ft9 but my arm span middle finger to middle finger also with chest is 6ft3

[@braidencoryelll]

I have, long arms, long legs, bad eyesight, flat feet, sunken chest, crowded mouth, bad stamina.... it's safe to say I have it 😭

[@Relatablecontentdaily761]

@@braidencoryelll bro ur 6-7feet u live life easier its blessing be happy

[@ilakaizen4926]

All models

[@b3127R]

I have this and I'm a little nervous rn

[@raefarnsworth4278]

Take a step back. Freaking out is not going to help. Educate yourself. Know the signs and symptoms of the complications of Marfans and seek help if you feel something different. It will be OK.

[@b3127R]

@@raefarnsworth4278 Well I'm not like you know having a panic attack or anything over it but it is something that I think about and sometimes it scares me a bit 😅

[@DVD927]

Get an ultrasound of your aorta & learn all you can. Educate your family, including cousins, so they can be aware to look for it in their children for early intervention.Hugs

[@rhysdavis6447]

I am very much like you right now I’m 110% certain I have this I’m 32 and have never brought it up at the doctors, I’ve been worrying that I have flat feet lately and I out of knowhere came across ‘Marfan syndrome’ earlier on a reel and i pretty much tick every other box I have a very noticeable chest that intrudes in and long arms, long legs and flat feet and low stamina when it comes to sports although I was very athletic but very limited with my breathing capability from young i had no idea all these things were linked although I didn’tlinked before 😯 shocked tonight after my findings, can anyone offer me some quick advise please 🙏

[@nickrutherford50]

@Rhys Davis go see a doctor asap. Tell them to order a echo of your heart. I am 36 and suspected I had Marfans a couple years ago. I just had an echo done last week and they are sending me for surgery on my aorta within the next couple weeks. I have 2 aneurysms of my aortic root and ascending aorta. I feel fine, except my heart beats fast. 80-90 bpm.