Young Onset Parkinson’s Disease: The emotional, physical, and financial hardships it can create

[@bozerbrett7867]

I was diagnosed last summer with PD and I think I was a little bit in denial thinking I can beat it with exercise or at least keep it at bay. I just recently started experiencing some balance issues and it was like a slap in the face that it's coming no matter what. When I turn my head quickly, I get dizzy for a brief moment. Good luck to you sir you're doing a great service to people dealing with this disease.

[@LifewithParkinsons]

Hi Brett, sorry to say but welcome to the club. Glad you found this channel. Yes, the symptoms do come, and you will learn in your own way to deal with them. Do you have a prescription for medication?

[@bozerbrett7867]

No prescriptions for medication yet, I see my MDS in March and I will discuss meds with him.

[@4merLawman]

Keep the faith David/. Stay strong and never give up the fight

[@LifewithParkinsons]

Thanks, Bobby, will do!😀😊😁

[@DavidChacon-mm3id]

Hi david..looks like what your medicine is working you look good and not moving a lot.. be praying for you .. always nice to see you

[@LifewithParkinsons]

Thanks Mark! This kind of feedback is valuable. There may be some evidence in targeting specific activities, rather than just exercise in general.😀😁😊

[@LifewithParkinsons]

Thank you David. Prayers always appreciated. I recorded this video in a time slot that I am usually OFF in. I couldn't believe it, neither could my wife. There may be something in targeting specific activities, rather than just exercise in general.😀😁😊

[@Daissweetest]

@@LifewithParkinsons😊

[@redwar7253]

God bless you. My father is 71 and he has been diagnosed 3 years ago. He is in the state where walking is almost impossible without help. He has less energy day after day. Thank you for your advices.

[@LifewithParkinsons]

Hi Red, thank you for your kind words and blessing. Hope you find the content helpful and that you can give your father the best care possible.😀😁😊

[@redwar7253]

@@LifewithParkinsons Hi and thank you. I've been watching your content for a while as it is important for me to understand his feelings and what is he going through, and for that your talks are imo very helpful. I hope your new activities help you preserve your energy and stay active.

[@LifewithParkinsons]

@@redwar7253 Thank you Red for saying hi today and letting me know the talks are helpful. The boxing is helping a lot.😀😀😁😁😊😊

[@SDWP]

Lots of good info here! I'm glad to see you expanding your horizons on exercise related things to do. I've been in a slump on being active, but I'm turning things around now. I'm looking forward to warmer weather so I can get back out of the house and do things outdoors. Best wishes!

[@LifewithParkinsons]

Hi Michele. Definitely getting out of the house would help. At our strata complex yesterday afternoon there was a social that I went to for the first time. Took 10-15 mins for the anxiety to go away, but it was fun anyhow. Is there a winter shoot you can do?

[@GoProGoalieUzi]

Great insight my friend ❤ I will be going over my story in the few days. Keep it up ❤️👍🏼

[@LifewithParkinsons]

Nice! Looking forward to your story!😊😁😀

[@leonardgebhart2064]

Lots of good information David. Thanks 🙏

[@LifewithParkinsons]

Thanks Dad glad you enjoyed it 😃😊😃

[@masterchief4868]

Thank you for talking about this!

[@LifewithParkinsons]

No problem. Hope you found it helpful.😀😁😊

[@sharoncribbs7516]

Another very good video. Thank you for sharing.

[@LifewithParkinsons]

Hi Sharon. Thank you!😀😁😊

[@brandonlefler5226]

I see my primary care person in April I'm sure she will give me a referral for the specialist... Thank you for all your videos 😊 if they diagnose me with what I think it is going to be I will walk around with a football helmet on my head...lol.. God bless you I will continue to watch your stuff... Keep punching ✌️💪👍

[@LifewithParkinsons]

@@brandonlefler5226 Hi Brandon, thank you for your kind words and heart warming comment. Please let me know how your appts go. I love the football helmet comment. Bless you as well and I will keep punching.

[@rosered9029]

Medical coverage is about to end for us, leaving a bill of around a thousand to pay every 3 months on levodopa alone...

[@LifewithParkinsons]

Hi Rose. I understand we had to buy a private medical plan just to keep up 😄😊😃 What country are you in? If you are in Canada look up www.gms.ca they have the best plans for the cost that we could find

[@DavidChacon-mm3id]

Thanks!

[@LifewithParkinsons]

Thank you David, for supporting this channel!💗😀😁😊

[@JeremyMcdonald]

Great points!

[@LifewithParkinsons]

Thank you Jeremy. You are one of my favorite PWP's.😊😁😀

[@lynnpoag8173]

At what point did you have to give up driving? My husband was diagnosed less than a year ago. He’s 52. He still works full time (behind a computer screen) and drives himself around. He currently drives a manual and I can tell it’s getting a bit more uncomfortable for him. I’m handicapped and I don’t work, but I can go back to work in an office style sit down job, which I will be looking into soon. I haven’t worked in almost 20 years only because we agreed that I would be a stay at home mom and homemaker. Life is throwing us is hard ball lately.

[@LifewithParkinsons]

Hi Lynn. Basically I gave up driving when I knew I was becoming a danger to others and to myself. My take on it is that we are responsible for our decisions. It could be compared to drinking and driving in a way. When you pick up keys you are responsible for what happens next. I can see that driving a manual would become extremely difficult over time, as I used to drive some from time to time at my last job. I understand the what you mean about the hard balls life is throwing at you. I do. Thanks for your questions. If you have anymore let me know. Here is my video about giving up driving.😀😁😊 kzbin.info/www/bejne/iJOloomAlJp0gMU

[@Anthony99355]

Hi David, you mentioned it took a couple of years for your symptoms to get progressively worse. Have your symptoms halted? Did you have FOG right away? Thanks,

[@LifewithParkinsons]

Hi Anthony. I think I'm at the point now where the advance has slowed a bit, just because of all the things I have piled on against it. But to realize how far the symptoms have advanced, I will give you an example. About a month or two ago, I forgot to take my 1pm dose, which turned out to be a bad situation. I went from my 10am dose to my 4pm dose. By the time I realized what had happened, it was too late. I could barely move and I did not know where I was. It took 1-2 hrs to come out of it. I am no doctor, but I don't think the disease stops progressing, I think we just have to find things to stay head.(my own opinion). The off time FOG started a couple years ago to get bad. I was diagnosed 2017 so it took a bit. Thanks for the questions. 😀😁😊

[@Anthony99355]

Thanks for the information. What is your schedule like for taking meds? I know you have had PD a lot longer than me. Currently I am taking 4 Rytary every 5 hours and 3 pramipexole every 5 hours. Was your beginning cycle similar?

[@LifewithParkinsons]

@@Anthony99355 Here is my medication list and times, minus the movapo which was discontinued. Will update in the near future as there are some small changes. I started on just levodopa/carbidopa kzbin.info/www/bejne/mp7XkICZrMSWprs

[@RoryVanucchi]

👍

[@LifewithParkinsons]

Thank you, Rory!😀😁😊

[@RoryVanucchi]

👍

[@LifewithParkinsons]

Thanks Rory😊😁😀