I’m a 63 y.o. female,it took me 3 mo. to get in to see a Pulmonologist. He diagnosed me with Non-Specific Interstitial Lung Disease after he saw my CT’s (Pending more testing). He said I had scarring on both lungs, worse on the right one & a spot on my right lung, that has gotten predominantly larger, from 2019 to 2023 on CT. He’s not sure what it is for sure yet. He said it could be from an Auto Immune Disease, infection or inflammation, but he doesn’t think it’s cancer, although there’s always that chance. So he ordered a high resolution, CT and a lung biopsy. (robotic bronchoscopy-under general anesthesia). I agreed, because I have an older sister, who is 74, & scared to death of Drs and has only been to the Dr once in her entire life!! That is the honest truth. She has even worse symptoms than I have, the severe shortness of breath, the coughing, wheezing and I’m sure she has lung disease. But of course she’s too afraid of going to the doctor. I’m afraid for her and sometimes I’m angry with her, because I just can’t understand what she believes so horrible ,will happen, if she goes to see a Dr? This is way beyond white coat syndrome, or even a phobia. Our mother had severe pulmonary fibrosis and pulmonary hypertension. She lost a lot of weight and was about 85 pounds, when she died. She had lost most of her muscle mass and was just wasting away. We suspected that she had lung cancer at the end. She did live to be 78 y.o. She had 3 brothers & 6 sisters and all of them died from different types of cancer. One of her brothers died from lung cancer. So, if she had lung cancer or any other cancer, she didn’t want to know, she refused anymore tests, afraid of what they would show. All we knew is that she did have pulmonary fibrosis and pulmonary hypertension, she saw a pulmonologist and she had heart disease and saw a cardiologist. I’m working hard to get her medical records, because my Dr wants to know her exact diagnosis and what her pulmonologist was saying about her lungs and what was going on, so he can know more what to look for in mine. I’m so sorry this is so long, but I believe it contains a very important message for people to know. I know it’s very scary when you’re sick and you don’t know exactly what’s wrong with you. I’ve been there, more than once. I believe it’s very important to go through the tests and to be diagnosed, first of all so you can, received the appropriate treatment and hopefully begin to get better. Just as importantly, so that your children and family, will know exactly what you are diagnosed with, so that they can be checked for the same disease and be vigilant in the future, to know what to look for in themselves and even their children. Because some things do run in families. I just feel like it’s selfish to not find out what is medically wrong with you, so that your children and your family will know, in order to help them avoid the same pain and suffering, that you went through. I don’t blame my mother, because I don’t think she ever thought of it this way. I think she was just so full of fear over the word Cancer did it just completely consumed her. So I understand and I don’t blame her. It’s been 18 years since she died, and her medical records are probably nonexistent by now, but I’m still searching and hopefully I will find something. I truly hope this helps somebody out there & that you don’t have to go through what my family is experiencing, all due to FEAR of the MEDICALLY UNKNOWN. Whatever the test shows, you can face it head on, along with your God, your Family, your Kids & your Friends🩵🩷 And let’s not forget, the support from your doctors & Nurses. God Bless & Well Wishes to All 🙏✝️

Thank you so much for your advice🙂

Best regards to you drosuma I'm permanently cured from pulmonary fibrosis all thanks to your herbs ..!!

Best regards to you drosuma I'm permanently cured from pulmonary fibrosis all thanks to your herbs ..

❤

I have been diagnosed with mild fibrosis in the lower lobe of the lung. I do not know what that means. Does this mean that it is ocular fibrosis? I have not received any treatment from doctors. I do not know why I am afraid, but the doctor does not pay any attention to that?

Gret video, very instructive thanks Doc 😀

Great video thank you😀

❤❤❤blessings thank you so much

Ideas on HBOT for cystic fibrosis? Tsting for Alpha-1 antitrypsin deficiency? Is there a very portable O2 unit that can be used for sports, like basketball? (I'm thinking a SCUBA bailout bottle size???) A comparison of different O2 units as to delivery, size, portability, etc. would be very helpful, especially in younger patients with post-viral syndrome. Very nice talk.

Father just diagnosed. Did untreated pneumonia cause it???

I’m happy for trusting herbs&diet protocols ,it really worked in curing me of this disease called fibrosis ..Thank you Dr osuma !

I’m happy for trusting herbs&diet protocols ,it really worked in curing me of this disease called fibrosis ..Thank you Dr osuma !

I’m happy for trusting herbs&diet protocols ,it really worked in curing me of this disease called fibrosis ..Thank you Dr osuma !

Muchas gracias por sus valiosos consejos, yo fui diagnosticada con fibrosis pulmonar. Mi inglés es muy básico.Lo sigo con el traductor automático.

Thank you for your help! 💗

Interesting and learning medical stuff I'm pretty sure I don't have it but yeah I'm going to watch it later

In my case i have history of ptb treated since 2022, then i got sputum with blood since Wednesday my feeling when im sleeping it's just like boiled in my chest and i wake up in midnight and im starting spit it with blood. And by tomorrow i going to clinic to check up and get xray referral and i get the result today its say fribotic residual both upper lobs. So i do search first to know what is the meaing of the result. In the internet the pulmonary fibrosis is the headline and when i read the condition of it i feel so nervous because it's say theres no cure and eventually leading to death. So i find other topic to this condition i found this video and make me relief and i came back to my doctor to read the result of the xray.

Thank you.

Currently on my 9th episode (1st this year) since first falling ill in spring 2022. Joined the dots last year and my trigger is...mould spores. Eliminated the cause (or so I thought), got a dehumidifier and had been fine until I got a top out of cupboard, sniffed it because it smelled funky and washed it. Went down like a bullet a few hours later. Haven't had any virus in years and years, suspect MCTD (or some weird overlap disorder) but no diagnosis. Now kicking myself that for years I had completely discounted things like weak wasting muscles, fatigue, heartbeat like a samba band having an epileptic fit in my chest and a steady, almost un-noticeable until you look back reduction in breath volume, and a 'throat clearing' cough. Cannot walk and talk anymore, or even walk particularly fast. I'm 58 and in good shape, except, it seems, my lungs. Doctor today (online, obvs) prescribed antihistamines but wants a face to face follow-up. Tempted to take a lungful from the cupboard before I see him, otherwise I'll be walking in there absolutely fine.

is there a quantitative way to measure percentage of tissue scar through any tests or xray or HRCT?

What a joke...My Dad has Severe Progressive Lung fibrosis and he cannot be around People cuz if he get sick it wil kill him most likely. So the Pulmonary clinic is a joke....and getting to and from his appointments at the Veterans Hospital that's 22 miles away from his house is a joke. The Veterans Transportation Shuttle that care was several other SICK People that will expose my Dad to germs is what they want offer to him after they tell him he can't get sick. You need to realize it's not the best thing to be around alot of people. Your are ignorant to the truth. They cannot afford to get SICK!!!! BUT YOU WANT THEM AROUND A BUNCH OF PEOPLE AT THE PULMONARY CLINIC WHERE THERE ARE SICK PEOPLE!!!! WHAT IS WRONG WITH YOU? What good d does the Pulmonary Clinic do? Diagnosis further to figure out how much oxygen the Person needs. Ok...Maybe for that it's ok. But where I s common sense at? Where? Do you realize these People who have lung scarring they cannot get sick? It's devastating. MY DAD HAS BEEN TO THE PULMONARY CLINIC BEFORE. HE HATED IT SO MUCH AND HE HATES WHAT THEY MAKE HIM DO WITH THE STUPID BREATHING TESTS...THE TESTS ARE STUPID. THEY ARE......IF MY DADS OXYGEN DROPS TO 79 WHEN HES WALKING OBVIOUSLY HE NEEDS OXYGEN...DUH!!!!! TESTS THESE PEOPLE WHEN THEY ARE WALKING AND DOING REAL LIFE ACTIVITIES!!!? I GUESS I UNDERSTAND WHY THEY DO THE LING CAPACITY TESTS.....I JUST DONT LIKE HOW ITS ALL DONE...MY DAD HATES IT ALL ..HE HATES IT.....My Dad was diagnosed at the age the age of 58 years old. Not old at all. Still young. He's 77 now and it's really bad.

Thank you very informative

Can you please talk about successful treatment for Antisynthetase syndrome with ILD and prognosis. Is life expectancy worse or better than idiopathic pulmonary fibrosis?

If you truly wanna get rid of your bad breath and herpes virus I recommend HERBALIST DOCTOR EMOVON as the best doctor for you to reach out to in order to get the total cure for your BAD BREATH AND HERPES VIRUS. Herbalist Doctor Emovon is so popular on KZbin via his channel named (THE SEVEN DAYS FAST CURE FOR HERPES 1&2) A channel where Bad Breath, herpes virus and many other diseases can be cured. Herbalist Doctor Emovon got me cured from my long term acid reflux within just 7-days, that I was so surprised about my quick healing…🪴🪴🪴

After trying Planet Ayurveda for sarcoidosis, I can confidently say their treatment is the best.

How about enzymes? Do they work on PF? I have a very wet nasal drip cough first thing in the morning. Almost feel like I'm downing! It last about ten min or so.

Thank you so much, your advice and talks are always so helpful and encouraging. Your understanding and care mean so much!

Please could you tell me if green mucus is bad for pnenmonitis

Please could you tell me if green mucus is bad for pnenmonitis

Please could you tell me if green mucus is bad for me with pneumonitis

Thank you so much for the helpful information. I appreciate you and your knowledge. Thank you for sharing your knowledge with us. God Bless you

My Dad has Severe Progressive Lung Fibrosis caused from when he was in the Military and he worked Around Nuclear Bombs that he had to move on and off his B-52's he was working on. He was an Aviation Mechanic In. The Military. Then when when he got out of the Military he became an Auto Mechanic and he did alot of Aspestos Brake Jobs....For 25 years.

Really interesting, thank you.

Am suffering from RA.. How can I prevent myself from RA _ILD? Is RA ILD preventable?

I have rotten moldy hay next to me 22 ft of my house blowing towards me lung problems because this morning I can't get it away from me and no one wants to believe that's what's causing all of it I said it happened in America I might be able to sue a farmer I don't want to have to sue a farmer I just wanted to go away and get it away from me I want with the cow poop

Many thanks from India...sir is it necessary to give methotrexate in R.A..i mean to say that if methotrexate can be a potential cause of ILD.. Can't we switch to some other drugs to control or treat RA.. Methotrexate is so much frequently prescribed drig in RA that it is very much possibility of developing ILD in some cases..its need to be stopped

My friend likely has drug induced ILD, starting with an ICI drug used in her case to treat NSCLC. The drug was ineffective against the NSCLC so she was given several kinds of chemo subsequently, all of which are associated with drug induced ILD but at a lower frequency than the ICI. We suspect that the subsequent chemos made the ILD worse as though the first ILD sensitized the lungs to the further insults. This drug induction seems to take place over a long time since the use of the drug. Is there a way to detoxify the lungs against further insult (maybe on a drug by drug basis) so that treatment may be more effective? Are any treatments especially effective against drug induced ILD? If long term high dose (tapered) steroids have been ineffective might short term super high dose steroids work? Are there any steroid saving drugs that are effective against drug induced ILD?

Thank you. May I send you a sound recording? It is less than one minute long.

Thanks for the insightful information Dr. Stefan Stanel. Do you know if there is any empirical evidence that the Covid mRNA vaccines cause Idiopathic Pulmonary Fibrosis via autoimmune attacks from the body's own antibodies?

Are you saying metformin can cause pulmonary fibrosis???? at the end of your talk.

I shared your information and one video on interstitial lung disease group on facebook.😊

Thank you.

From them symptoms I seem to get this seasonally every late April/May. Not sure on the trigger, but also seems to cause the odd small glassy blisters / hives mainly on my hands. Feels like I am at altitude can breath in and out ok but oxygen uptake seems effective and my lungs feel itchy.

Hello doc just want to ask a friend of mine was done her treatment from ptb and been cured and the result was she had a residual fibrosis and she was worried that on her next medical it will be shown on her xray as she's applying for uk as a skilled worker, is it necessary to undergo sputum cultured test even the hospital where she was treated and the pulmologist give her a certificate of completion of treatment and totally cured. Thanks doc I'll wait for ur reply

Is a person with residual fibrosis from ptb, cured and healed still positive in ptb when undergo sputum cultured test, please need ur answer doc and thanks for this video

Good, It is better to include some slides

I have ppf. I am 57. I have not begun oxygen support, but I think its months away. I would like to read up about when, what and how to tell the broader community about my condition. Family and friends are supportive and prepared for my condition moving from invisible to visible, but what about young teenagers who I engage with as tutor and part time teacher. As a teacher, I see opportunity to educate and empower people around me, but what about respecting the wishes of others...my engagement with young people brings me happiness and fulfilment, but I do not want to impose my lived reality on them. I really do feel stuck. Do I remove myself from the community or do I normalise my oxygen support as an extension of me?

I’m so happy I’m cured from fibrosis with natural remedies and supplements from Dr osuma

I’m glad I was able to get rid of the deadly disease called fibrosis all thanks to Dr osuma on KZbin