A Teenager with Childhood Alzheimer's

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Special Books by Special Kids

Special Books by Special Kids

Күн бұрын

Пікірлер: 292
@SpecialBooksbySpecialKids
@SpecialBooksbySpecialKids 11 сағат бұрын
Anybody who would like to contribute to research aimed at curing Sanfilippo syndrome can visit curesanfilippofoundation.org/ It was great to meet you, Connor!
@KaylinKatastrophic
@KaylinKatastrophic 10 сағат бұрын
I love how loving Keenan is to Connor. What a great sibling relationship ❤
@HildaOwen-e4f
@HildaOwen-e4f 9 сағат бұрын
To Mom Just in case you ever see this, you are an amazing mom. It shows greatly through both of your boys! God bless
@beckee6282
@beckee6282 10 сағат бұрын
What a beautiful family. His brother is so well educated and understanding, his maturity isn’t common in boys that young. You can tell his mother taught them both well. What a beautiful bond they have. I wish them all the best and for Connor to be as healthy as possible for as long as possible
@chuckthebrindlepittie6820
@chuckthebrindlepittie6820 8 сағат бұрын
Wonder where the father is?
@jackson2009ify
@jackson2009ify 4 сағат бұрын
@@chuckthebrindlepittie6820not your business and please respect family
@sunnystormy4973
@sunnystormy4973 4 сағат бұрын
some ppl dont like showing themselves ... ?
@anabella4166
@anabella4166 6 сағат бұрын
I know ur job as an interviewer is to just ask questions…. but I just wish you could let his brother know what an amazing job he’s doing…, because that affirmation means A lot…. Because he’s seriously is AMAZING with his brother.., SO understanding and gentle… omg… he’s gonna grow up to be such an incredible young man!🥺
@zonkedmusician1502
@zonkedmusician1502 9 сағат бұрын
He is so lucky to have such a wonderful mother. She is a hero. His brother is also such a good soul
@malloryconnors
@malloryconnors 10 сағат бұрын
Keenan is so mature and well spoken. I love how he doesn’t talk to him like a little kid. He takes him seriously and talks to him like another teenager, just normal. I loved how he describes including Conner and how if someone was rude to him there’d be a problem but he said it just like well that’s a fact. I can tell how much love and giggles there are between these two. How lucky are that kids friends to see so early a model of how to interact the right way with people with disabilities. Truly this whole family is beautiful. The mom is stunning in her love and inclusion of both boys. She has done a phenomenal job raising them and has such beautiful green eyes! What a beautiful family inside and out. Thank you for sharing your love with us, this truly made my day I was laughing and crying with you. Such grace and optimism in the face of something heart wrenching. They’re all so honest which I love. Hugs to you and especially to Conner since he is such a hugger!!!
@cindys.9688
@cindys.9688 8 сағат бұрын
Beautifully written...🥰
@positivelastaction3957
@positivelastaction3957 10 сағат бұрын
Alzheimer's robs tremendously, but love endures, it cannot be stolen.
@jmk1962
@jmk1962 10 сағат бұрын
That's beautiful.❤
@Loveorganizing
@Loveorganizing 7 сағат бұрын
Beautifully said❤
@Christian_Girl120
@Christian_Girl120 7 сағат бұрын
Amen to that!
@TheyLuv_Asiyah
@TheyLuv_Asiyah 11 сағат бұрын
I love when the family members explain their love and affection for them
@balaam_7087
@balaam_7087 11 сағат бұрын
Hi Connor! Man, you’re so lucky to have a brother like Keenan, and a mom who loves to play all sorts of fun games. I always wished I had a brother, I’m really jealous haha. I bet it’s a blast with everyone on game night!
@anabella4166
@anabella4166 6 сағат бұрын
Omg Connor’s mom is amazing she’s so awesome!!!! I hope she reads all these amazing comments!!!🥰🥰🥰
@anabella4166
@anabella4166 6 сағат бұрын
OMFG🥺🥺🥺 the love between Connor and his Brother was the sweetest thing ever omg my heart🥺😭😭🥰🥰🥰
@MissionMuscleUp
@MissionMuscleUp 11 сағат бұрын
Connor is a sweet heart. Great family, too!
@deborahcates
@deborahcates 3 сағат бұрын
Such a sweet family. Mom is so strong and down to earth, brother is soo good with Connor.
@mason74551
@mason74551 8 сағат бұрын
This might be my favorite interview on this channel. I love the energy and banter between this family. They seem like pretty down-to-earth and fun people. Conner seems like a great person and i love how much he wants to give hugs.
@poppy8810
@poppy8810 4 сағат бұрын
To the mom that raised these amazing boys , you have all my respect, the little brother is a real star , what patience and empathy he has for his older brother , it’s beautiful to watch
@kelleyjackson5005
@kelleyjackson5005 5 сағат бұрын
The vacuum cleaner analogy really helps me to understand San Fillipo syndrome. Thank you.
@dragonfly1745
@dragonfly1745 9 сағат бұрын
I have seen a few videos on this channel of San Filippo syndrome with other children and also seen it on other channels. I have never seen it with a person Connor's age, as all the other children were quite young. It is truly amazing to see how advanced he is, despite his disability and how hard he tries to communicate. He clearly understands most of what is being said and I credit his mother and brother for that. I love how Keenan is so aware of Connor's needs and how he can interpret what he's saying and is also very loving and inclusive, adapting his lifestyle to include Connor, even when he's hanging out with his own friends. Mom - you are doing an amazing job with these boys and I hope you realize that. They are both handsome and have such kind and caring hearts - that had to come by your example! I would LOVE to connect with Connor and Keenan's mom even just to chat and have some laughs. I am a "meme queen" on facebook, so I can definitely provide her with some giggles and girl talk! LMK if she's interested and we can make it happen! Keep reaching for the stars Connor, you're an amazing young man!
@cindys.9688
@cindys.9688 8 сағат бұрын
You wrote this so beautifully!💜 I hope somehow you can connect with their mom - to share memes and be in touch. She'd probably really appreciate it. 😊
@coco_b
@coco_b 9 сағат бұрын
💔My niece, Julia, has type A. She was supposed to only live to 15. She just turned 27. She cannot speak at all, she cannot walk or feed herself. She needs constant care in every daily living activity. This is such a rare, heartbreaking thing to witness. Sending love to this family💙
@zonkedmusician1502
@zonkedmusician1502 8 сағат бұрын
@@coco_b Sending love to you and your family, too. I can't even begin to imagine what you have gone through. Peace and love to you all.
@cindys.9688
@cindys.9688 8 сағат бұрын
Blessings to you and your family, and especially Julia.💜 It's encouraging that she's lived past the estimation of her life expectancy. Your family is strong, focussed, and loving. You work together really well for her well-being. Thank you for sharing about Julia!💜
@rosejr2614
@rosejr2614 8 сағат бұрын
Just she talk or do anything?
@Kibaheart
@Kibaheart 5 сағат бұрын
sending love to you and Julia❤❤ keeping you in my thoughts
@Weatheredstorms1
@Weatheredstorms1 Сағат бұрын
I took care of a lady in her 40s with SS. Her mom wanted to out live her because she was afraid there wouldn’t have been someone to care for her. Which wasn’t the case. She did outlive her daughter by 2 yrs.
@Ava.trullinger5
@Ava.trullinger5 9 сағат бұрын
As a 16 year old girl I love to see how supportive his brother is! We need more teenagers to support and be kind to people who may be different.
@TalonHauser-i4g
@TalonHauser-i4g 5 сағат бұрын
I love his brother he is very nice to him
@jenniferedson5402
@jenniferedson5402 9 сағат бұрын
Connor seems to have a great sense of humor. I love how he keeps mentioning Jason and then giggles about it. What a great kid and family.
@lisalarouge6309
@lisalarouge6309 5 сағат бұрын
Sure would be cool if the mystery of Jason could be solved.🔍😮
@Ya_boi_jasper
@Ya_boi_jasper Сағат бұрын
I know right. I wanna know who Jason is 😂
@Xpian
@Xpian 8 сағат бұрын
Keenan has an innate maturity-beyond his years-and a patient gentle nature, from forbearing correction to being completely at ease, not only with Conner but also with himself… and wonderfully inclusive. A remarkably loving family! Blessed with Conner! (I daresay blessed with Keenan too!) You managed to capture Conner & his family's story in a unique way, both honest, and yet uplifting! (Left me smiling!)
@amie1803
@amie1803 10 сағат бұрын
He's adorable. He has so much to say, and is so sweet!
@jeremiahallyn4603
@jeremiahallyn4603 10 сағат бұрын
Aww, he's such a sweet young man. He loves his brother and Mom so much. You can just see it in his face. I really do wish the best for Connor and his family. Hi Connor 👋 🩷
@susimwolfe589
@susimwolfe589 Сағат бұрын
What a beautiful boy! His brother is the greatest. Connor is lucky to have this brother. You all have done a great job with this loving boy.
@amyhyde70
@amyhyde70 4 сағат бұрын
❤ This is an amazing family. Those three are the epitome of LOVE. 😇😇😇
@theshinylunatone3966
@theshinylunatone3966 10 сағат бұрын
It was so lovely to meet you Connor! Thank you for chatting and letting us into your world a bit! You are so loving to your mom and brother, I hope you have many more fun days at school and playing basketball with your brother
@MarilynB-y2q
@MarilynB-y2q 10 сағат бұрын
Love your programs. You help bring disabilities to the front where people can begin to understand.
@shadipahlavi
@shadipahlavi 4 сағат бұрын
This youtuber deserves an award and world recognition 4what he does -_these ppl r literally the most over looked and voiceless ppl on the planet -i am so touched by his work ;giving these ppl a voice and a chance 4 their stories&struggles 2 b heard and recognized--i cry each time i watch these videos -i am myself a childhood TBI survivor - 😢😢❤
@AutismJourney_BeKind
@AutismJourney_BeKind 10 сағат бұрын
Thank you Conner and family for sharing your journey with us! You guys are amazing!!🤩
@An__-
@An__- 5 сағат бұрын
I pressed pause to go and get something and it paused right when Connor was talking about Jason and it made Kenan laugh. It was an amazing screenshot of the eye contact between the two boys and both of them laughing. I hope the mom noticed that moment and was able to pause and grab a screenshot. A beautiful moment.
@amberfrazier3956
@amberfrazier3956 5 сағат бұрын
Keenan is so mature. What a sweet little brother. You can just feel this family`s love for one another. You are all doing a wonderful job!
@btsm.4668
@btsm.4668 7 сағат бұрын
This lady deserves the Mother of The Year Award.. I can watch and listen to her enthusiasm for her children all day… there is hope in this world. Wow what great boys! She should be so darn proud of her boys and I know she over the moon for them..
@rooneypartridge6186
@rooneypartridge6186 6 сағат бұрын
Such a gorgeous family! You can just feel the love♥ Good job Mom on raising these amazing, intelligent, and kind boys.
@CatholicSister
@CatholicSister 10 сағат бұрын
Beautiful family! Mom, you are such a blessing. High five to Jason....🙃
@GoosePlaysGuitar
@GoosePlaysGuitar 9 сағат бұрын
Wonderful family.:^) His brother is amazing. Real credit to his mom.
@nicolenottingham1640
@nicolenottingham1640 10 сағат бұрын
What a joyful young man. He made me smile. ❤
@theshinylunatone3966
@theshinylunatone3966 10 сағат бұрын
Such a lovely brother. ❤❤ I want to know more about this Jason
@Jb-tb8mn
@Jb-tb8mn 10 сағат бұрын
Same lol. I heard him say at one point that Jason has a beard lol
@cindys.9688
@cindys.9688 8 сағат бұрын
​​​@@Jb-tb8mn ~ Same here!😂 I have a guess (just a guess) that Jason is their school custodian or a classroom aide. Custodians are generally very kind to students, and like to greet and chat with them. They can be especially so towards students with handicaps. They have big hearts towards these kids. An aide is also a guess since they're actively involved inside and outside the classroom. If Connor needs bathroom assistance Jason might be the one who accompanies him. Either way, Jason must be pretty cool since Connor gets a big smile when he mentions him.😎
@sisyphus.333
@sisyphus.333 10 сағат бұрын
What a great family. It must be so hard but they surround him with love and you can tell how important they are to him. He's so funny this interview made me smile so much.
@coco_b
@coco_b 9 сағат бұрын
13:15 This made me laugh so hard😂 Connor is such a prankster!! “Jason’s school!” (“Who is Jason?😂😂😂) 22:53 🤣💙💙💙
@narelleravesi4993
@narelleravesi4993 3 сағат бұрын
Such an extraordinary brother,mature and understanding at such a tender young age,🙏🧡
@donnaa9581
@donnaa9581 5 сағат бұрын
Kennan, Connor, and mom - if only every family could have so much love. Beautiful, sweet family.
@ChubbyWubbi
@ChubbyWubbi 6 сағат бұрын
LOL@17:18 "Conner, I have a question for you.." "FOR JASON?!😁" "Conner listen!" ...👀...😅 You silly boy! Don't worry, I laughed buddy! You are precious and so is your family! I miss my baby brother so much. He had autism and passed away a year ago tomorrow. I hope you and your brother will always have this beautiful bond and make the absolute most of the time that y'all have. I love this channel so much for giving a voice to all these beautiful people.
@1LovedbyHim
@1LovedbyHim 4 сағат бұрын
I know, the whole “Jason” thing cracked me up! 😂 I love Connor’s smile!!😊
@MiaMizuno
@MiaMizuno Сағат бұрын
​​@@1LovedbyHim I Figured, Jason is an invented character he makes his family laugh. He wants to Do comedy 😂
@75Bigsistr
@75Bigsistr 4 сағат бұрын
What a great story! Such handsome and loving young men. I love how silly Connor gets when he is talking about Jason! Something tells me there's never a dull moment in that house! Lots of love to you all! ❤
@Thestephouse1
@Thestephouse1 10 сағат бұрын
A big hello to Connor and his lovely family💕🙏🇬🇧
@tawandaburuvuru442
@tawandaburuvuru442 8 сағат бұрын
Connor's brother is such a lovely sibling... God bless you boy
@penelope9133
@penelope9133 10 сағат бұрын
You two brothers are so funny together. I love it!
@Amber-sc9jp
@Amber-sc9jp 10 сағат бұрын
His relationship with Keenan is so funny, I love their bond
@Charlotte-wx4jz
@Charlotte-wx4jz 10 сағат бұрын
I don’t think that at all. I feel that while he loves his brother, Keenan is very overwhelmed! Yes they do have a good bond but yea I mainly saw a very overwhelmed boy!
@silviazanicotti5054
@silviazanicotti5054 9 сағат бұрын
Keenan is a great kid...he's only 14 and already a man...I dare not to imagine the wonderful adult he will be. Definitely a beautiful family...the kind everyone should have. A big hug to Connor...
@G37813
@G37813 10 сағат бұрын
Keenan and Connor are really cool ... Those that have power should watch their relationship to learn what love is ... Keenan you truly are a fine person, and not only for the way you relate to Connor ... you are fine by yourself. Connor your ways encourage others to go to what is essential ... and find happiness: wise guy! Mom and dad thanks for who you are, and for educating so well your sons. I am moved and Connor you filled my heart with hope ... Thank you all! A big hug from Italy! 😊
@audreybumblebee
@audreybumblebee 9 сағат бұрын
What a beautiful, kind-hearted family!
@chipkid
@chipkid 11 сағат бұрын
this is terrifying to think like. Alzheimer’s can happen to teens. Alzheimer’s in itself can be terrifying, with you forgetting everything you know and slowly dying, but it happening to a teenager? That’s even worse.
@Zella_boo
@Zella_boo 10 сағат бұрын
It happens to children a lot younger than teens as well..
@chipkid
@chipkid 10 сағат бұрын
@ oh god.
@brittv420
@brittv420 10 сағат бұрын
it will unfortunately only become more common, given the ways repeat covid infections cause brain damage :(
@chipkid
@chipkid 10 сағат бұрын
@ …I might have BRAIN DAMAGE????
@brittv420
@brittv420 10 сағат бұрын
@@chipkid yeahhh. if you lost your sense of taste/smell, that’s lowkey a sign of brain damage… because signals aren’t communicating properly up to your brain, ya know? covid can do damage pretty much all over the body, so it really sucks we were all told it’s mild. my gf hasn’t gotten her energy back to 100% ever since she had it in 2020
@craigkelly4278
@craigkelly4278 8 сағат бұрын
This young man is amazing, and his family is just beautiful. Thank you for bringing this to light. Please, SBSK, keep up the good work. Giving this young man a high five over the Internet.
@bri_dfwm_
@bri_dfwm_ 5 сағат бұрын
What an amazing and beautiful family. I love the relationship that Connor and Kennan have.. it's very heartwarming.. Connor was born into the best family there is for him!! Excellent job Mom!! ♥♥
@rionhoel8740
@rionhoel8740 10 сағат бұрын
You seem like a charming and smart man Conner! I’m so happy Chris interviewed you! ❤
@R.V.C.1
@R.V.C.1 3 сағат бұрын
Awww, what a wonderful family! You absolutely can see and feel the love which is so beautiful and such a joy to see; God Bless them!☺️
@perspgold8945
@perspgold8945 10 сағат бұрын
I love this family so much.
@zakbrand7354
@zakbrand7354 3 сағат бұрын
Hey Connor and family, for sharing your journey. Love Connor 's personality
@sdd123
@sdd123 6 сағат бұрын
My lord how sad. God bless them all.wonderful and loving brother and mother. Must be so difficult to watch the decline. Too sad. Thank you for being respectful and treating with dignity.🙏🙏🏾
@lindamcmunn1783
@lindamcmunn1783 3 сағат бұрын
What a wonderful caring family❤️
@MissionMuscleUp
@MissionMuscleUp 11 сағат бұрын
Let's goooo!! Loving the uploads
@Loveorganizing
@Loveorganizing 7 сағат бұрын
The hugs and bond these brothers share really is the most pure and beautiful thing... even the disorder cannot take this away. Bless them. Good job, parents, for your amazing upbringing. God bless ❤
@jwthrussell8786
@jwthrussell8786 8 сағат бұрын
Thank you for all the awareness this channel brings us all. You deserve an award of some kind!! Someone out there!
@lovingmayberry307
@lovingmayberry307 4 сағат бұрын
I love these two boys! It's so funny that Connor talks about a "Jason" that doesn't exist. Mom is pretty awesome as well. Great family! ❤
@spiltteatarotbyelt1303
@spiltteatarotbyelt1303 4 сағат бұрын
Keenan is the very best big brother ❤. What an amazing and compassionate young man. Great job Mom ❤.
@MarilynB-y2q
@MarilynB-y2q 10 сағат бұрын
Connor is one lucky guy and his family is lucky too.
@BNHAalltheway
@BNHAalltheway 9 сағат бұрын
Connor has a great family his brother is awesome
@sharastewart2732
@sharastewart2732 4 сағат бұрын
Thank you for blessing us with this beautiful interview. ❤
@soulstorm8806
@soulstorm8806 4 сағат бұрын
These people are so blessed to be beacons of hope and light! In a world that is dark and very hopeless in many ways: therefore these children are imperative. They help in ways others who don’t know them cannot imagine. And I know they are very blessed. I also know they will be free of their various problems one day in heaven. I know it. It’s why they have such beautiful souls.
@lindasmolsson
@lindasmolsson 9 сағат бұрын
I like this sweet family...and Jason. Big hugs to Connor 🤗❤️
@cindys.9688
@cindys.9688 8 сағат бұрын
Yes! Whoever Jason is...😂
@annealbert9490
@annealbert9490 3 сағат бұрын
Your sons are both amazing humans and so is Mom
@emmaharding7572
@emmaharding7572 10 сағат бұрын
Conor you are so beautiful inside and out. I think you are a very sweet young man and also very caring and loving you're awesome. His cuddles look adorable 😍
@thatgirlember5446
@thatgirlember5446 4 сағат бұрын
Conner is a comedian😂. He seems to know exactly how to get people to laugh! God bless him and his amazingly strong family. Conner, say hi to Jason for me😉.
@Mallowolf
@Mallowolf 9 сағат бұрын
Jason School 😂😂 That’s a funny joke. You can see he wanted to get his bro, hahaha
@martybob55
@martybob55 2 сағат бұрын
Great mom and brother.. thank you for sharing Connors story. He’s an amazing young man. He appears to be surrounded by love..
@Sabrina79
@Sabrina79 4 сағат бұрын
Connor has the same birthday as my mom!👍 What an awesome young man he is.
@NicolasSchaII
@NicolasSchaII 10 сағат бұрын
We must protect this kind soul at any costs!
@MissBdmay
@MissBdmay 7 сағат бұрын
I don't know how these mamas do it. You have got to find strength in the deepest part of your being to survive this, I imagine. My heart goes out to this family. Connor is such a beautiful child and she freaking sweet.
@justinaveronica
@justinaveronica 4 сағат бұрын
Beautiful family ❤
@stephanieoregan
@stephanieoregan 10 сағат бұрын
Every sibling says the same things about their person: they love them and wouldn't change them ❤
@hannahmuller6694
@hannahmuller6694 9 сағат бұрын
Keenan is so patient with Cornnor❤
@karenjarvis7759
@karenjarvis7759 2 сағат бұрын
Saying a big hi from the UK to Connors mum x
@kellymadison3351
@kellymadison3351 4 сағат бұрын
This family is amazing! So loving! Mom and Keenan are remarkable and Connor is so sweet! Wishing them so many happy years together! Thanks for introducing them to us, Chris!
@martybob55
@martybob55 2 сағат бұрын
Mom you are soooooo awesome! Brother you are patient and kind…
@kaylapugh9622
@kaylapugh9622 10 сағат бұрын
Keenan and Connor Yall are Amazing And Have a Amazing Wonderful Mom
@marniecummings2511
@marniecummings2511 4 сағат бұрын
Impressive, patient, loving family. Stunning ❤️
@yesterdaydream
@yesterdaydream 10 сағат бұрын
What a great sibling bond they have! Say hi to Jason for me!😉
@generationknallert
@generationknallert 11 сағат бұрын
i love this
@tonilubich6398
@tonilubich6398 5 сағат бұрын
Great mother and brother!
@anggieb.2936
@anggieb.2936 Сағат бұрын
Omg, Conner is so funny! Love the interaction between him and his family and just the very positive supportive energy!
@ellenkovar1080
@ellenkovar1080 7 сағат бұрын
Keenan is awesome! What a great brother!
@RealityTrailers
@RealityTrailers 10 сағат бұрын
Great family, wonderful guy Conner is.
@barbarahansbury2291
@barbarahansbury2291 5 сағат бұрын
His brother is amazing ! Mature well spoken. Great family ! Strong and loving Connor is a terrific kid because of the love especially from his brother !! Prayers to all
@amandahankins2731
@amandahankins2731 5 сағат бұрын
Hey Connor! I understand almost everything you say. I've been researching and following others with your condition.
@Babs-ud1dt
@Babs-ud1dt 4 сағат бұрын
Keenan...you're an amazing brother to Connor!!!!! You'll never forget the memories you're making w him!!!!
@1LovedbyHim
@1LovedbyHim 4 сағат бұрын
Mom, Connor and Keenan, you all are soooo awesome!!
@countrygirl366
@countrygirl366 10 сағат бұрын
Awwwe i love this. 💙❤️ what a sweetie loving young man
@SuperMissblueeyes
@SuperMissblueeyes 6 сағат бұрын
Connor, you're awesome! Thank you for sharing your story.
@Kamilu15
@Kamilu15 6 сағат бұрын
Thank you for this wonderful video 🙏🏻
@Freddy_82
@Freddy_82 8 сағат бұрын
They seem like such a lovely family. I would love to meet them and give them all hugs
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