Getting Diagnosed with ADHD as an ADULT.

This came out of nowhere but helps me understand myself. It helps my family understand some of my habits. I feel like I didn't do a great job explaining how this has affected me. I mostly rambled on, but maybe this video will help someone not feel alone.
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[@Aimee_Esther]

Forgot to mention... I was diagnosed with the combined type of ADHD. Add.org says "Combined type ADHD is a neurobehavioral condition that affects your brain and, in turn, your behavior. Combined type ADHD presents with both hyperactive-impulsive and inattentive symptoms."

[@Darkbillhook]

There seems to be a big overlap between chronic illnesses & neurodiversity. I'm diagnosed with fibromyalgia, pots, hypermobility spectrum disorder & ME/CFS, alongside diagnoses of Autism/Asperger's, ADHD combined type, OCD & GAD. I'm in support groups for fibromyalgia & ME, plus an adults autism group & the more people I meet with these conditions, the more crossover I see. Anyway, I'm glad you have these answers :)

[@abstuli]

When I look at all your diseases, they all fit with Mast cell activation syndrome (MCAS). Fibromyalgia • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom www.ncbi.nlm.nih.gov/pmc/articles/PMC6687840/ Pots and Hypermobility spectrum disorder •The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome pubmed.ncbi.nlm.nih.gov/33980338/ •The Relationship Between Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) pubmed.ncbi.nlm.nih.gov/31267471/ ME/CFS - As far as I know, there is no research yet on ME/CFS and MCAS • Does Mast Cell Activation Explain IBS (and Fibromyalgia and ME/CFS)? www.healthrising.org/blog/2021/11/13/mast-cell-activation-ibs-fibromyaglia-chronic-fatigue-syndrome/ • Mast Cell Activation May Underlie 'Chronic Fatigue Syndrome' www.medscape.com/viewarticle/893858 •Immunological dysfunction and mast cell activation syndrome in long COVID www.ncbi.nlm.nih.gov/pmc/articles/PMC10166245/ •Mast cell activation symptoms are prevalent in Long-COVID www.ncbi.nlm.nih.gov/pmc/articles/PMC8459548/ Autism/Asperger's • Mast Cells, Stress, Fear and Autism Spectrum Disorder www.ncbi.nlm.nih.gov/pmc/articles/PMC6696098/ ADHD • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) www.ncbi.nlm.nih.gov/pmc/articles/PMC7388140/ OCD & GAD • MCAS Can Cause Anxiety, Depression & OCD www.revivewithheather.com/blog/mcas-can-cause-anxiety-depression-amp-ocd • Improvement in Neuropsychiatric Symptoms With the Addition of Nortriptyline in the Context of Mast Cell Activation Syndrome ajp.psychiatryonline.org/doi/10.1176/appi.ajp-rj.2022.180206 MCAS can have all the symptoms and triggers known from ME/CFS including PEM. MCAS is a very common recently discovered mast cell disease where dysfunctional and overactive mast cells release too many chemical mediators. Mast cells are a white blood cell that is an important part of the immune system that can release more than 1000 different types of chemical mediators. Symptoms depend on which of the over 1,000 mediators are released, how much of each mediator, which combination of mediators and where they are released in the body. The symptoms MCAS can cause are more than incredible. Many of these mediators are inflammatory, others control bodily functions. Mast cells are found in all tissues of the body, including the brain. The cause of MCAS is probably a mutation in the KIT gene as in other Mast cell diseases such as the rare Systemic Mastocytosis. Those with MCAS may have had the disease all their lives without feeling ill before a trigger such as viruses, bacteria, mould, physical or mental stress, poisons/toxins and heavy metals triggers the disease. There are many different medications that can make most people with MCAS better.

[@maluruus]

The ending is an actual mood.

[@Catlily5]

I have ADHD + autism but I did well in school until college. I totally failed at adulting though!

[@victoriahouse9969]

Hopefully now things will make sense. "Don't worry be happy", as the song says.

[@the_5th_night]

Oh man, first it’s Jessica Kellgren Fozard then you! I feel seen and heard! I was diagnosed at 18, but at that point I’d pretty much been self-diagnosed for a decade. It took my parents a while longer to understand it though, because why would they believe their child who barely understands the disorder anyway. But enough about me, I’m really happy you have a diagnosis, because now you’ve got another piece of the pussle of understanding yourself!

[@Aimee_Esther]

I've already found that people don't really understand. I have had people say "oh that's just normal" But these people don't see how much it affects me. My husband can see so clearly how much these symptoms are not "normal".

[@ronnie-lynn]

I also was diagnosed with ADHD & OCD last year at age 36. They were both exacerbated by my brain injury. I have combined leaning more to hyper active tendencies. Hyper in my brain mostly and talking. This diagnosis has been life changing for me. Things that I’ve thought were my personality quirks and finding out that it is ADHD. For the first time in my life my brain is at peace and has moments of quiet. It seems there is a huge amount of adult woman being diagnosed now. And I’m here for it! I was diagnosed with anxiety at 9 and depression at 12 and medicated. Misdiagnosed. Also I HATE grocery stores same so overwhelming. The lights and sounds and so many options. It’s just a journey. I’m still finding out so many things about myself that are not quirks they are my ADHD! ❤

[@shoshanaeri8035]

I also recently came to the conclusion that I probably have ADHD, based on a lifetime thinking the symptoms you mentioned in the video were 'normal'. As another commenter said, I think it overlaps a lot with chronic illness, affecting each other a lot. There is a subreddit for chronic fatigue and ADHD, which was really interesting..for me I think the ADHD partly caused the body's collapse, at one point I was working multiple jobs, excersizing regularly, attending classes, dating, volunteering in multiple positions- which was great and I enjoyed my busy life, but at some point I think it was too much. That is when I started experiencing the chronic conditions I now deal with. It also makes it really hard to rest 'properly' although I know it would be good for me. I just find it so boring and there are so many things I want to do!!

[@Catlily5]

I mix up my left and my right alot. You are too sensitive. I heard that so much.

[@triloksinghvlogs]

After ADHD diagnosis, your brain fog went away? Please tell

[@YasuTaniina]

My husband and I both have ADHD. To be fair though, while I've had ADHD since childhood, all those symptoms got worse as my POTS got worse, so I think they might feed into one another. I recommend the KZbinr "How to ADHD" Confusing the cardinal directions snd confusing right and left I think is more dyslexia then ADHD, which people commonly have together, but they're still different. Also, I'm quite dyslexic. My 6 and 4 year olds are becoming better at right/left then me.

[@GoADHDGo]

Hello, Brain!

[@Dulcimerist]

Have they tried you on the non-stimulant ADHD medication Guanfacine to treat both your ADHD and POTS? If it feels like your ADHD and POTS are feeding into each other, Guanfacine is definitely worth a shot in order to stop that. Guanfacine is an alternative to using a beta blocker for POTS, and doesn't have the potential side effects associated with beta blockers (e.g. hair loss, sleep issues, cold extremities, weight gain, etc.).

[@Aimee_Esther]

My therapist talked to me a lot about childhood and early adulthood, before my chronic illnesses started, and before I became a mother. Because of course a lot of the symptoms I have now could be pots, could be just being a mom, etc. But as we looked at my whole life, that's where we were able to see that this was true ADHD. Another thing is that caffeine affects me differently. It doesn't give me energy, but it does help me think more clearly. So that was another sign that it was true ADHD and not just this stage of life. Honestly when I watch this video this morning I realized that I didn't explain things very well. I have a hard time getting my thoughts together... Surprise lol

[@Aimee_Esther]

Yes I did find that KZbin channel! I have been loving it and learning so much! ❤️❤️

[@ST-xx9rt]

What percentage of your symptoms do you think are anchored by short term memory issues/lose? They put me on Vyvanse which helps me for 6 hours then I crash mentally and physically. So 1/2 a fix. How many lists and post-it notes can a person keep track of😂 another similarity, I read so slowly so I can absorb otherwise retention is zero. Sometimes I feel sorry for those that I interact with. I know it must be difficult. I end up apologizing often. I didn't have this AD stuff until my illness destroyed my nerves system. Hard to remember what healthy was like. Best wishes to you managing your health and life.

[@Dulcimerist]

I can relate to the Vyvanse crashes. I experienced similar stimulant crashes with Dexedrine CR. My daughter's friend had crashes with the ADHD medication Stattera which resembled narcolepsy. She and I both responded better to the non-stimulant ADHD medication Guanfacine (Intuniv), which doesn't have those crashes.

[@GoADHDGo]

I was on Vyvanse for a long long time and "fixed" the crash issues by splitting my Vyvanse and taking half in the morning and half in the afternoon. Worked really well for me. Last month, I switched to Mydayis and I am really happy with the results. It kinda works "in the background" and is released in 3 phases throughout the day. I feel more like myself and more even-keeled.

[@Aimee_Esther]

My memory is crap. 😂 Ask anyone who knows me, I have the worst memory! I can't remember things that you told me 5 seconds ago. I'm sure that has gotten 10x worse with adding POTS to the mix. But the rest of the symptoms have been around my whole life. I haven't heard of Vyvanse But I am a little nervous for medication, just because when you live chronically ill I feel like you fix one thing and something else breaks 😂

[@ST-xx9rt]

@@Aimee_Esther yes like playing ping pong with 10 balls coming from different directions. In my case Lyme. Pots. Nerve damage. With all their symptoms to treat. Then each treatment has its side effects to manage. All with brain fog and short-term memory loss. A cruel game that's hard to win even for a few hours. Best of luck to you Aimee

[@amandaclark3883]

It made sense I've had ADHD my whole life I was diagnosed in the second grade and I have found I put my keys on a lanyard had my phone on a lanyard around my neck eating protein and there's other things that help I just think them now. I live chronic illness an ADHD some interesting facts about 80% of women with ADHD develop chronic pain and because of our ADHD we are more prone to have PTSD

[@karrion93306]

I think you are me, but just a younger version of me.

[@abstuli]

I see you also list Mast cell activation syndrome (MCAS) as one of your very many medical conditions. I think the cause of all your illnesses could be Mast cell activation syndrome (MCAS). When a person has many diseases, there will be a common cause for all these diseases rather than developing all these diseases independently of each other. Many diseases today are also based on symptoms without a known cause of the disease like Long Covid, ME/CFS, Post-Lyme syndrome, Post-traumatic stress disorder (PTSD), Gulf War Illness (GWI), Fibromyalgia syndrome (FMS) and Multiple chemical sensitivity syndrome (MCSS). Therefore, it is important to look for what is probably the one disease that can be behind all these diseases. Most people with ME/CFS probably have Mast cell activation syndrome (MCAS) as an underlying disease for their ME/CFS symptoms. MCAS can have all the symptoms and triggers known from ME/CFS including PEM. MCAS is a very common recently discovered mast cell disease where dysfunctional and overactive mast cells release too many chemical mediators. Mast cells are a white blood cell that is an important part of the immune system that can release more than 1000 different types of chemical mediators. Symptoms depend on which of the over 1,000 mediators are released, how much of each mediator, which combination of mediators and where they are released in the body. The symptoms MCAS can cause are more than incredible. Many of these mediators are inflammatory, others control bodily functions. Mast cells are found in all tissues of the body, including the brain. The cause of MCAS is probably a mutation in the KIT gene as in other Mast cell diseases such as the rare Systemic Mastocytosis. Those with MCAS may have had the disease all their lives without feeling ill before a trigger such as viruses, bacteria, mould, physical or mental stress, poisons/toxins and heavy metals triggers the disease. There are many different medications that can make most people with MCAS better. Some diseases that are often associated with MCAS. • Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) • Post-Lyme syndrome • Long Covid • Post-traumatic stress disorder (PTSD) • Gulf War Illness (GWI) • Irritable bowel syndrome (IBS) • Fibromyalgia syndrome (FMS) • Postural orthostatic tachycardia syndrome (POTS) • Hypermobil Ehlers-Danlos Syndrome (hEDS) • Multiple chemical sensitivity syndrome (MCSS) • Chronic inflammatory response syndrome (CIRS) • Interstitial cystitis/bladder pain syndrome (IC/BPS) • Attention-Deficit / Hyperactivity Disorder (ADHD) • Autism spectrum disorder (ASD) Scientific articles NCBI • Mast cell activation symptoms are prevalent in Long-COVID • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast Cells and Irritable Bowel Syndrome (IBS) • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • Mast Cells, Stress, Fear and Autism Spectrum Disorder • The role of mast cells in migraine pathophysiology - PubMed • Recent advances in our understanding of mast cell activation - or should it be mast cell mediator disorders? • Estrogen mediates inflammatory role of mast cells in endometriosis pathophysiology • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Does Mast Cell Activation Explain IBS (and Fibromyalgia and ME/CFS)? • Small Intestinal Bacterial Overgrowth Is Common in Mast cell activation syndrome • Mast Cells and PCOS - A Little Known Connection

[@Catlily5]

Except Ehlers Danlos causes MCAS not the other way around.

[@abstuli]

Only hEDS is linked to MCAS and there are many with MCAS who do not have hEDS. There are 13 types of EDS, with hEDS being the most common variant and the only one with an unknown genetic cause. MCAS may be a cause of hEDS as many mast cell mediators are involved in guiding growth and development in all tissues in the body.

[@Catlily5]

@@abstuli Interesting, I heard that there are more mast cells in tissues that have connective problems.

[@m.a.9337]

Research has shown that ADHD is pretty much linked with fibromyalgia

[@Dimich1993]

That may also be neuroinflammation, like CIRS. I have to-do lists and other lists for every day. And track my whole day to figure out where it's all gone. :)

[@GoADHDGo]

How did you get into my little KZbin studio?

[@StinkinGoodAle3241]

Telling you that you ramble and talking too much? First of all, you don't. Second, how bloody rude!