Annie's Chronic Fatigue Syndrome (M.E.) Story!

[@evelinel.9827]

I wish everyone knew that the main issue in CFS, Fibro, IBS, and other conditions (that causes all the symptoms and things like vitamin deficiencies) is the maladaptive stress response/stress response on overdrive/impairment in the limbic system in the brain. Even the World Health Organization calls ME/CFS a neurological illness. That is why there is so many different and varied (and crazy) symptoms--the brain/nervous system effects the whole body. I eat a generally healthy diet, slowly built up my exercise (from couchbound started at 3 minutes and slowly built it up to 1-2 miles daily), but the main things that have got me to 90% recovered is working on the stress response--everyday and in a lot of ways,--mediation, mindfulness, breathwork, emotional work on repressed emotions, etc. For me it has taken a little over a year, but those who are just lightly affected can often get out of these neuropathways of stress in just a few weeks or months with the right understanding of the illness and mindbody work. (I spent the first two years on strict Paleo, took tons of supplements, detoxing etc. and actually got worse (due to the stress of the illness/worry about symptoms/ fear about what was happening to me and thinking my life was over)). Check out the recovery stories for The Lightning Process, DNRS, Gupta Programme, Dr. John Sarno's work and more. One of the most important things/the main thing is stop thinking and worrying about symptoms and stop the fear of symptoms--this is the main driver of the condition as it feeds directly into the stress response. Not thinking/worrying about symptoms is really hard, especially when they are bad, but, like anything, this can be worked on and gets easier and easier with time once you understand that this is one of the biggest drivers of the illness. The two modalities that have really helped me unravel this illness, stop fearing symptoms and stop thinking about symptoms and do certain types of mindbody work that was really helpful was the Dr. Sarno/TMS work, see tmswiki.org, SIRPA UK, and The Curable App (there is a ME/CFS recovery story (Fiona) in one of Curablehealth's podcast episode www.curablehealth.com/podcast/fiona-recovery-story-chronic-fatigue-syndrome). The Three Principles' understanding is what helped me get out of all my illness and symptom thinking see John El Mokadem who recovered from 7 years of CFS and coaches other to health with CFS with the Three Principles' understanding of the mind breakthroughthat.com/cfs-audio/

[@RaelanAgle]

Thank you so much Evaline for sharing all of this and I am so happy to hear about the progress that you've made!

[@family-peace-love]

Good info, I agree, I have her gupta program, I've struggled to keep at it but you have given me the motivation to look at it again. Thanks

[@evelinel.9827]

@@family-peace-love Gupta is mostly lots of meditation and then an NLP process when symptom thoughts come up. That personally would not have been enough for me and I know so many people who did it for months and months with more progress. In my eyes DNRS and The Lightening Process are much better, but I really needed the daily emotional work and spending time with the Three Principles understanding to quiet my mind and get out of all the stressful thinking. Check out the resources I mentioned above, lots of free material.

[@6473n64m19]

This.... and not being afraid of the symptoms, it’s so hard to do but I live a fairly normal life right now but with symptoms thanks to sarno. I will get all the way there

[@6473n64m19]

Oh you said that lol sorry

[@boxerdogmum583]

Thank you for telling your story. My 16 year old son has long covid / ME / CFS. We are also working on diet, gut health, meditation, hypnotherapy, gratitude journal, anti-inflammatory meds, antihistamines, rest, small amounts of socialising for mental health, using a shower chair. It’s really sad when this happens to teenagers, but we’ll get there in the end.

[@chantellegus2069]

As someone who became unwell with CFS at 19 and now working towards recovery at 25, I can really resonate with your story Annie. I think being younger I feel like I’m growing and stepping into my authentic self at lightening speed which may have taken decades if not for this illness. I can see how much wisdom you’ve gained simply by already beginning to care less about others opinions and that your health is your number one priority, I wish you continued health in your recovery journey! X

[@RaelanAgle]

Thanks so much, Chantelle, for sharing this. Annie is amazing, isn't she? I'm so sorry to hear that you too were hit with this at such a young age, but it's inspiring to hear about the progress that you're making and all that you're taking away from this. Wishing you all the best Chantelle with the remainder of your recovery journey 🌷

[@purely_annie]

I so agree! It is a crazy thing to go through at such a young age. Wishing you all the luck with your recovery journey!

[@meganmacphie7315]

I just got diagnosed today after years of not knowing what was wrong! I really appreciate your videos you make me feel like there is hope! Thanks for all you do ❤️

[@RaelanAgle]

I'm sorry you're facing this Megan, but excited you are finally getting some clarity. You've got this! I'm definitely over here cheering you on ❤️

[@titusgreen7320]

Thank for another great video Raelan! It's always so so surprising how us CFS sufferers are all so similar and have such similar experiences. Have had almost identical experiences with struggling with people opinions, getting told useless advice from doctors, having to accept that I had to give up a 'normal' teenage life, ending up being more knowledgeable about health and well being than anyone I know. Dealing with other people and the ignorant comments they can tend to make often feels like the hardest part of living with this illness. Every time the name of the illness comes up I can't help but agree. Food, Rest, Sleep, and Relaxation/ Mindfulness, real medication that doctors and the people we turn to just don;t understand in the modern world. Hope everyone's doing well, hang in there because you really can improve with the right mindset and lifestyle! Looking forward to the next video!

[@purely_annie]

It seems we all go through similar journeys... Wishing you all the best! ❤️

[@RaelanAgle]

Hey Titus, I'm so sorry to hear about all that you've had to face. I love your insights though and your attitude - very inspiring! Thanks for sharing a bit of your experience here and I hope that whatever you're facing you are managing ok 💫

[@hilarysidwell8302]

Thank you for sharing your story. Great to hear how someone is currently dealing with living with this illness. Hope you find a way to full recovery.

[@taiwothere1424]

Thank you so much for making these videos! They’re an anchor/guide for so many people and something I look forward to. This video hit home in so many ways and I too LOVE and appreciate your book ❤️ Wishing u the best Annie!!! You just gained a new follower :)

[@RaelanAgle]

Thank you for this wonderful message here, Taiwo! I'm really so glad to hear that you're enjoying the videos and it's comments like these that fuel my commitment to keep making them. And I'm so glad you enjoyed my book! Wishing YOU all the best, Taiwo! 💗💫

[@purely_annie]

I'm so glad you enjoyed Taiwo! Isn't her book just awesome?! Wishing you all the best ❤️

[@janielightly1644]

Thanks for this Raelan and Annie interesting to see a younger persons perspective of ME/CFS and so great to see how well you are doing now Annie, wishing you love and best wishes for a speedy recovery ☺️💜

[@RaelanAgle]

Glad you enjoyed it, Janie! Annie is just wonderful, isn't she? 💗💫

[@janielightly1644]

Raelan Agle she really is 😊😘

[@katieemmaw2001]

Thank you so much to Annie for sharing and to Raelan for making this video. I can relate so much- I had a viral infection with poor liver function age 17 and never feel as though I’ve recovered. I’m now 20 and have self-diagnosed mild/moderate CFS since I have every symptom. All blood tests say I’m “fine”. I have never been formally diagnosed just told “some illnesses take a long time to recover from”😅🤦‍♀️The mental aspect is certainly tough, thank you so much for the hope and inspiration🤗💕wishing everyone here the very best

[@RaelanAgle]

Hey Katie, I am so sorry to hear that you've been facing this. It can be a hellish experience and I hope you are managing ok. Personally I don't think the diagnosis or the label matters all that much. Yes we need to do the tests and find out as much as we can, but when it comes to chronic illness there seem to be more questions than answers out there, and much overlap with various conditions. I'm so glad to hear you are feeling hopeful and inspired, wishing you all the best with your own recovery journey💛

[@katieemmaw2001]

@@RaelanAgle thank you so much for your kind words and for all you share💕

[@user-wk8cs2uy1d]

Thank you so much for providing these videos Raelan. I am so, so grateful to have found you, and you give me so much hope for a fully healthy future ❤️❤️❤️

[@RaelanAgle]

Thank you so much, L ❤️

[@inmalikp]

It’s true, she sounds so wise and humble, especially for someone so young

[@purely_annie]

Thank you Inma! ❤️

[@RaelanAgle]

Inma, I completely agree!

[@kashaniernszt3007]

Thanks for sharing its good to see other young people too, i've been struggling since 9 and i got diagnosed after my 13th birthday i'll be 19 this year and i also have fibromyalgia i love watching your videos to see what worked for you and others i am trying to recover but i know it will be a long road

[@purely_annie]

It is good to realize other young people are going though similar things, isn't it? (Not that I would wish it on anyone...) Good luck with your recovery journey!

[@RaelanAgle]

Hi Kashani! Thanks so much for sharing a bit of your story. I'm so sorry to hear that you've been facing this for so long. I hope you find what you need to get past this soon 💛

[@kathystoner5239]

Great interview! Even though I'm older, I can relate to some of the things she talked about!

[@RaelanAgle]

I felt the same, Kathy! Maybe we don't change as much as we think we do as we get older 😌

[@purely_annie]

It seems like most people go though a lot of the same things no matter what age... so glad you enjoyed, Kathy!

[@spiritualitywithzoe]

A brilliant interview! I can totally relate to Annie

[@RaelanAgle]

So glad you enjoyed it, Zoe 💛

[@kissessanne]

I totally forgot about the "how my life would have been without me/cfs" I did struggle alot with this while I was younger. Have been ill from age 15 and will turn 30 in December.

[@RaelanAgle]

I'm so sorry to hear that you've been facing this so long. What a journey. Sending love to you for your own healing and I hope you find what you need to get past this soon 🌷

[@jennamartin-payne1653]

Hello :) I am nowhere near recovered but I also had a mouth full of sores which doesn't seem to be something many with ME talk about. I have managed to control them with zinc, folate and B12. It seems that if I am low in any of them then they come back. So I definitely agree with it being a combination of things with our issues! X

[@RaelanAgle]

Thanks so much for sharing this, Jenna. It's nice to find others with similar experiences isn't it and to see different patterns emerging. I think it helps us slowly understand all this more!

[@purely_annie]

I haven't heard of many people with this symptom, but it was a main one for me! I'm glad you have figured out how to manage them. :)

[@santella.story.healing]

Rule out pernicious anemia

[@santella.story.healing]

Annie Phillips rule our pernicious anemia

[@geoffreyhussey]

great video. Interesting conversation

[@RaelanAgle]

Glad you liked it! 😀

[@davidhodge8509]

Great interview! Is she able to share what doctor in CA she saw who specializes in CFS?

[@RaelanAgle]

Glad you enjoyed it, David! And great question - I will ask her and let you know.

[@purely_annie]

Hi David! The doctor I have been working with is Dr. Jon Kaiser. :)

[@RaelanAgle]

@@purely_annie thanks fo sharing that Annie!

[@davidhodge8509]

@@purely_annie Thank you! :)

[@EvolverWellness]

Sounds like she got an involuntary transfer: from College, to School of Hard Knocks. College doesn't make deep people. The second one sure does.

[@RaelanAgle]

Well put, Donovan! :)

[@markkent1891]

very well done stories of m.e ./fibromagyia. ,do you do a blog.newsletter. I HAVE BOTH M.E.AND FIBROMAGYIA .People never see the every day effects.MARK

[@RaelanAgle]

Hi Mark, I'm sorry to hear that you are facing this. I do a weekly newsletter - there is a link to sign up in the video description :)

[@ezza1236]

Why do so many people hate on anti depressants, they can be very helpful for people, this is a nervous system illness, I don’t understand why they are saying food will fix it ?

[@lucianal.martins5900]

I wish your family doctor watches your channel nowadays, she might learn something. And so many doctors that doubted us.

[@RaelanAgle]

❤️❤️❤️