BEHIND THE BAG: FRIENDSHIPS GONE WRONG / EPISODE 2

Hey ya'll! Episode 2 of, "Behind the Bag" is about friendships that have gone wrong. I was mistreated pretty badly by some people I truly cared about in regards to my health. I have learned how to stand up for myself, and not let others rob me of my inner peace and joy. Leave a comment below if you have ever felt this way. I hope this encourages you!
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*The owner of Ostomy Diaries does not claim to be a physician or healthcare provider. All opinions expressed on this channel, or web page are solely the opinion of an ostomy patient. If you are experiencing a medical emergency or have other health concerns please contact a medical doctor.
#ostomy #ibd #chronicillness

[@patriciaconstantino4669]

Your videos have helped me tremendously since my colon surgeries .. I’ve had 4 since 2018… on March 4th, 2020 I had my fourth and hopefully last surgery… I now have an ileostomy and because of videos from people like yourself I have adjusted very well. When you get criticized by anyone for what you do please remember all the people you have helped so very much.. sending you love and prayers and wishing you love, peace, health and happiness in 2022.. 💕☮️💗🙏

[@judygroves4277]

I love your honesty and encouragement. I’m a bladder cancer survivor with a urostomy bag for 10 years now. It’s a very different life with its own challenges and blessings too. I’m glad to find you. Preach on❤❤❤

[@asmith6006]

One of the reasons we need communities like this is to cope. We can talk to people who just know, who get it. Sharing like this is like a ministry - and I'm an atheist. Giving of yourself to help others is a universally good thing.

[@helenbrown6612]

What you've done with your channel is made lemonade out of the lemons that you were given. You also helped us to realise we can make lemonade from our lemons too! Be blessed sister ❤

[@sarahwegner9288]

Thank you for making this video. I honestly dread telling people I am sick or tired so I usually just do not make plans in the first place. I feel no one understands me. I am glad I found your videos and a few other people on KZbin because I now don’t feel alone. I need to find my tribe and protect my peace just like you said. May God send you and your family many blessings in 2022 Amber. Thank you for making this series behind the bag.

[@susanh1537]

I realize this video is a year old, but I’m just now watching it the first time. I’m relaxing with my ostomy and my glass of wine, watching your videos the New Years Day. Thanks for making this video. They’re all good, but I needed to hear this one. Thank you, Amber. 🙂

[@kevinthomas4171]

When I had my bladder removed, I got about 45 minutes of instruction and some Q&A to deal with what amounts to a life changing new addition. It really wasn’t enough, and for the last two years I’ve mostly learned by doing. Finding your videos have been a tremendous help, and you’ve answered far more questions than my “medical professionals.” Keep at it, stay positive, and know that you’re very much appreciated by many of us in the same situation.

[@retiredmona2181]

I have an ostomy bag due to cancer. I had a friend of over 30 years who I had to cut my ties because she was so not understanding what I was going through. In her defense her husband was ill and passed away. She was angry and I understand but she called me every day and shared her negative energy and I dreaded her calls and finally said that it was time to go our separate way. I also had to tell my hairdresser to not share any of my situation to her. My hairdresser is a friend of 40 years. thank you for putting this video up, I sure know what you have gone through. BIG HUG!!!

[@mercadocandles]

I have been watching your videos for 3 years. I now have a Colostomy and I continue to watch your videos. You are so young and such a beautiful person. It hurts for I had a friend who said she was tired of my post on FB when I’m getting Chemo. She mentioned the word attention so I don’t post as much anymore. I was diagnosed when I was 64 years old. I worked, and did a lot of outdoor activities. Because of Covid and everything else I’ve kind of became an introvert. I have three tumors that can’t be removed and I’m in pain a lot. Bernardo (Stoma)gives me no trouble but the pain is what’s keeping me isolated. Stay strong my dear and continue with your mission on spreading good vibes. It’s ok to distance yourself from toxic people. If you’re unable to post due to you not feeling well, we certainly understand. Thank you Amber❤️

[@OstomyDiaries]

Sending prayers up for you. I’m so sorry you are in pain. Hang in there! 💜

[@tonyaturner2762]

I've only been watching your videos for about a month. You're truly inspiring, lovely loving heart and soul. Such a beautiful lady! I'm so thankful to find your videos and every video is so helpful. I'm having colostomy surgery Feb 13th. After becoming paralyzed Jan 13th 1996, I lost pretty much all of my friends and still don't have much (maybe a few but nobody I spend time with or really get to talk to them). People can be horrible with their words. Double edged sword as Bible says. Watching your videos have relieve some anxiety, spoke of things I've needed to know and I love how you talk of God. God is using you to help so many people with ostomy, with life and with faith and God. 🙏🙏🙏

[@stacymccoy9705]

Thank you so much for making these videos. Your honesty and raw feelings on these topics help so many new Ostomates, that literally have no idea how they will get through. I honestly don’t know how I would have gotten through without your channel. This video for me was a timely one as I lost so many friendships in 2021 that I once cherished. I too found it so disheartening. Especially when you have a friend that clearly knows you and has seen you struggle. Like somehow we can help it. Or that we are not doing enough to fix ourselves. In addition to close friendships that have ended, I was also surprised and hurt at how some health care workers responded to my Ostomy. My surgeon’s nurse looked disgusted at assisting with my bag replacement after a post surgery check up. This same nurse also made several inappropriate comments to my fiancé (now husband) in front of me about how lucky I was to have such a good person who was willing to marry me and take “this” on. Like I had a defect or something?! I was also taken aback by the anger of strangers towards me using a temporary handicap pass. After my Ostomy, I had a hard time gaining weight and absorbing nutrients. I looked like a skeleton and had very little energy. My doctor gave me a temporary handicap pass so I could attempt to go back to work on light duty. I had a stranger call the police on me for parking in a handicap spot at a client office for “not looking handicap enough.” Also a person left a note on my clearly marked handicap car, “Die you piece of sh@!” After that, I stopped using my handicap pass forever. Now that I have had my Ostomy reversed I struggle again with constant diarrhea, so much that I often can’t make it from the car inside the business establishment. I have found carrying a small porta potty with me everywhere with a little cat liter in it has soothed my anxiety about being on the road for my job. While the above have all been very painful things that happen to me, it helped me realize that people (friends, family, or others) can not truly be empathetic to what they can not understand. Even when they are present for it, they just can not fully understand all of the steps. It reminded me of all of the division in our world right now. And how we have a hard time seeing and/or understanding another persons point of view. I know I have felt a lot of indifference towards others during Covid. So in 2022, I am trying to remember though we can not always understand or empathize what another person is going through, it is important to always be kind to others. One word can change everything!

[@TheLendyTexasGirl]

I have had my ileostomy for 5 months. I have learned God and prayers are very important.

[@aleciaking1688]

Thank you for sharing this story. My surgery was a few years ago and I just found your channel! 😉

[@cockeyedoptimista]

I appreciate your comment. It was very good. It is hard for people to empathize and understand things that they haven't experienced. It's good to recognize it in our self as well as others. But I really feel for you. These people who write or say stupid things- one can't take these things personally. It can hurt but we have to try not to take such ignorant comments personally. The people are making assumptions and have their own issues and they don't know who you are. It is hard, but we just have to dismiss this nonsense. I'm sorry you had to experience that awful nurse. That nurse was just mentally ill. Most medical personnel that I've met have been really nice; I was apologizing to people in the hospital who had to help me and they all were just like no no it's fine. Anyhow they get paid for this. But I'm sure there's some who are idiots like this nurse you described. Well, I'm just blabbering about nothing here. But your comment really struck me. What you said about divisions was quite important. I hope you're happy and coping well with life's difficulties.

[@jodiv2928]

thank you so much for your channel.. im a new subscriber that has colitis and I just got my surgery to remove my colon on dec.29th. this video hit me hard because since 2020 i was so sick that i could not do anything hardly and i had to quit my CNA home care job that i loved so much.. I feel guilty not being wife mother daughter friend that I always was.. its a new life i have that I know God will give me the strength and grace I need to keep pushing forward. but the guilt ive carried these last few years has been so hard. God bless you with this ministery you have here on youtube. you are making a difference for His kingdom.. thank you

[@nessad7361]

Oh gosh, same here, I despise my bag, never asked for it, never wanted it! It’s messed up every aspect of my life. I literally hate life now.

[@TheLendyTexasGirl]

Yep, I feel like that so much.

[@robinann7766]

People keep asking me. " Have you accepted the bag yet?" Sorry, but I will NEVER accept this crap bag on my belly-I look forward to going "Home" to Jesus...

[@Lekter]

You all should be grateful that you have an option. Other people with life ending illnesses don't have that luxury.

[@nessad7361]

@@Lekter Grateful? Quite frankly a lot of Crohn’s disease patients actually live on the same line as a terminally I’ll patient. STFU

[@MSchipper]

@@Lekter lol, that's exactly the kind of comment this video is about. Who are you to tell people they should be gratefull for anything? Are you in their shoes?

[@MrDp2u]

Pray and forgive this person as you know already. This person is a toxic person and best for you to part. They have no idea what you're going through mentally, physically and spiritually but most of your followers do! You're here for us! We are grateful for you and we thank you!

[@tiffanysmith6892]

I really appreciate you for making this video! I have had UC for over 25 years. I had my illeostomy surgery 4 years ago. My only regret is not getting it done years sooner! I have never had much of a support system. My friends and family didn’t believe I was really sick until after my surgery! My husband and my kids are the only ones that I have as support. It’s really hard to go through this alone. What you are doing with this channel is so great. I want you to know your videos helped me tremendously even when I was researching the surgery. Thank you!

[@tavant4491]

Your heart and love is so big. I appreciate you sharing your experience and learning for those of us who have had this surgery and who are trying to learn as much as possible to help the person who had the surgery. My poor brother can’t seem to get a break from illnesses. As soon as he sees a light at the end of the tunnel, something else darkens his way out. He, like you - he had to distance himself from many. I’ll do all I can to be his BFF. I heard and use a saying “because you can’t see blood coming from my body doesn’t mean I’m not in pain, hurting or I’ll.” Even I have to remember to watch my word’s, because I’m not seeing or feeling his pain. So thank you for speaking out. Bless you for being you 💕

[@Michael-MYR]

This video resonated with me so much as I suffered with UC for 15 years before cancer showed up and I had to get an emergency Illeostomy, then the same people said “Oh I had no idea it was so bad”. I thank you so much for sharing, I cried after watching, but feel empowered even more. Keep smiling you have made me feel like I am not alone. Thank you.

[@Lekter]

Guys hang in there. The first year is a year of adjustment. As time passes by you get used to your new life to the point you're going to be looking back and compare it to the life you had before before surgery and you'll realize you made the right decision when you decided to have this life saving option.

[@enistinemacrae4841]

Thanks I often feel tired

[@stephanieshainesseacoast]

Thank you for being such a bright light!! I have been home for 1 month from the hospital and my emergency ileostomy. I had not prior condition, diganosis or treatment, a few food intolerances that I managed for years until my body decided to show me otherwise. I am dialing in the people who are true friends and supporters. My favorite line of late is "its a process". 😇

[@erinsansom9259]

Oh my goodness sweetie, You have ministered to me so much as I prepare to get my ostomy soon. Hearing you share your experience and faith and being vulnerable about this journey has given me hope for my future. Having had Crohn's for 27 years and the last 3 years being stuck at home because of the constant pain and diarrhea and incontinence; failing treatment after treatment. Ostomy diaries has provided community for me. You are strong and inspiring, I am sorry that you have been hurt by a close friend. Thank you for your ministry ❤

[@eggbun1856]

I hope your surgery went as well as possible, that you're thriving with your ostomy and your new life, feeling much better, and now able to get out of the house and do the things you love 🤍🕊️

[@bonniecorsalini6793]

Don’t you ever let anyone tell what you such believe in I’m with you 100%. Thank you you make me feel better.

[@tonyaturner2762]

Omgoodness I love Ecclesiastes 3! I read that to my when she was 9 and she remembered that from that day (almost 22). Sometimes I start tearing up because your videos are so amazing! I'm so happy to find your videos. I've been thru alot since paralyzed at 16 1/2 years old. You hit so many points of things I've dealt with in the past 27 years.

[@ruthfunk7829]

I am 67 and have had Crohn's since I was 13. I am planning an elective ostomy. Thank you for your encouragement. I have had someone tell me that it's always my health. Yes, I've been in pain in the bathroom most of my life, it is about my health because so often I'm barely hanging on. They just don't realize how difficult it is.

[@NathalieCwiekSwiercz]

(English is not my first language) As someone who's been homeless (first time as a child), and in extrem need, I would NEVER want anyone to put themselves in harm's way or feel bad for not being able to help me, first of all, you should never expect anything of anyone and I mean it in a good way, (you should always help and be kind to other no matter what, just be happy if you get help back) and ESPECIALLY when you has done so much for others, I'm so happy you have got to the point you are today. Bless you!

[@lauramwalker86]

I want you to know that you've helped me overcome the Challenges of having a ostomy. I even caught my husband watching you on how to change my ostomy. I truly appreciate you and your channel.

[@myheartbelongs2mills310]

I have struggled with Crohn's and Colitis for 30+ years, and in 2020 I had major surgery, a total colectomy, total proctectomy and end ileostomy AND while in the hospital, I started bleeding internally, almost died, was in ICU for 3 days, finally went home, got an infection from the hospital, another trip to ICU with kidney failure, and now, a year later, I still deal with friends & family not understanding what we go thru. Thank you for your videos, they personally helped me get thru some rough patches, still do. Bless you and don't ever stop doing what you're doing!

[@davidchadaway6280]

Thank you for sharing such a personal story Amber. God bless and I look forward to your videos in 2022.

[@Nelldivine]

You are a warrior. Stay strong and avoid these toxic people. You share what is going on with your life,. I had a urostomy due to bladder cancer/ radical cystectomy. I am grateful to be alive but it is not easy . You have An especially difficult situation. I have had.cancer for 25 years and we have to stop apologizing for our health problems. The urostomy was the ultimate treatment of my bladder cancer it stinks. Take care of yourself and ignore the toxic people!

[@loretta_3843]

I've always said, "you can only live your own life". I probably haven't put it well, but what I mean is you can only really know life from your perspective. You can't judge everyone because of what you want or believe they should do. A friend isn't someone who is there to make you feel bad about yourself when they know full well that you're going through it yourself! Maybe she was resenting your illness (in a "sick" kind of way) and getting fed up with the "attention" you had. I don't know, never met her, but people do take others for granted and sometimes have the most petty reasons! (Oh, this was related to the first experience you shared)

[@squiresfamily1086]

Amber, please know how much your videos have helped me during these first 4 weeks of living with my ileostomy. Your generosity of spirit and energy is so inspiring. I am a 60 year old woman who has dealt with fibromyalgia/chronic fatigue and ibs for 27+ years. Covid triggered an inflamation of my diverticulitis that ended up with me needing bowel resectioing surgery. Other people's ignorance and selfishness has been a constant in my health journey (it's much better than it was in the past- when I was first diagnosed, most people still treated fibro/cfs like self indulgent hypochondria. So I am grateful for the huge strides made in public understanding, but it still comes up from time to time.) I really can't thank you enough for sharing your experience, your warm humor and the caring that you show us in making your videos. Please take care of yourself, and know that you are helping so many of us.

[@carolynbracy7877]

I have colorectal cancer and getting surgery on the 20th. I am nervous, but your videos have helped. I already had several chronic illnesses before the cancer. I know how you feel about people putting you down. I have found my people and try to stay away from the negative.

[@stevemeiners2226]

Thank you for this video. May 2020 God gave me a 3mm kidney stone which in turn revealed stage 3 bladder cancer. I'm not bagged but have an inner pouch which I drain by a timer. I however, have a bit to the different issue. I don't have an inner circle of support outside my wife and 2 adult kids. I returned to church after a many year absence but haven't connected to anyone beyond the superficial greetings. Currently I'm battling a feeling of indifference to life. If a train hit me tomorrow I wouldn't care. I hope this doesn't last forever and I can find a purpose for my life beyond watching the clock. Anyway, I'm glad I found your channel today and look forward to watching more. God bless.

[@carolinasosacs]

Your dairy helps me so much. I learned how to use some items through you. Thank you! Please don't stop making videos. Many people learn/get courage from you. You bring positivities to people like us.

[@aprylroach2818]

Thank you for sharing. My faith means everything to me.

[@vitatotty1148]

I am so glad you share. I have an ostomy and you’re right, I don’t want this for my life. This is everything you said, I feel your words 110%. Not what anyone our ages should have to go through. I have learned a lot from your videos. Thank you so much. Please keep sharing.

[@deanahoward4652]

Good topic, I know how difficult this was for you to share. At 22, when I had my surgery after only one year of disease, I wanted to die. Thankfully God had reminded me that I had a miracle baby who just turned one, that I needed to live for. Now, at 54, she is a true blessing serving the Lord with her family. Unfortunately, even today, many people don’t understand or even want to learn, about my autoimmune diseases. Even some church friends have not included me because I “may be sick”. I don’t complain about my pain (I also have had RA for 31 years) fatigue or symptoms. When I do say something, then I get the reactions of “well are you really sick” or “see a doctor and just get it fixed”! It’s a fine line not being a “complainer” and still get the point across to people that I’m truly struggling at times. Ultimately, God has brought true friends into my life for every 10 rude ones. Less is more in my situation. For that I’m grateful. Keep up your ministry, I know it’s helping many, I sure wish I had this forum 32 years ago! 🙏🏼❤️

[@bereal6590]

Oh yes, I'm about to get a loop ostomy to see if it makes my life easier as I sicker than ever with lots of illnesses .... The lack of emotional support is astounding and hurtful when it's incredibly difficult to deal with. The you should you ought and do this do that. The worst comment I got was you're just weaker. I doubt this very much, the strength it's taken to just get here without support has been massive. People like yourself bring hope helpfulness and empathy and care. Totally love you Amber, one of the truly lovely people in the world ✌

[@Chloe.zyxwvu]

Your channel has been so helpful and positive and strengthening for our family. Many don't have the opportunity to connect with or communicate with someone who shares the daily grind and mindset of having a bag life. These virtual vibes are all we get. Having a stoma/ostomy bag is life changing, disheartening, and discouraging. It is also just a thing, not defining of whom we are, although if you dwell in the comparisons of your past life, to other people who don't have the same deal, it changes the way you look at yourself, if you can look at yourself, which many can't immediately after surgery. So for those who take their total health for granted, who can't understand why the relationships we manage to maintain do have to factor the physical and emotional waves that come with the bag, please take a minute and remember that your inability to understand or relate is your fortune. Because you don't have to understand. But you can make others feel lucky too by asking them to share more about their journey, instead of casting judgement against the struggles you cannot see..

[@cocotiger12360989]

I'm sorry that or so called friends are a rude not understanding people, in hard times you find out who is really there for you. I had a ostomy 6 weeks ago & it's been very rough, my job let me go so wrong!! Thank you for the videos they have helped me a lot to get through this 💜

[@vickyhendricks5357]

Thank you for the encouragement. I needed it! I wish you all happiness! I'm just in this since October and still having frustrated leaks, but I physically feel better but still hopeful a reversal is possible but not if I'm going to be in pain all the time. And, Merry Christmas.

[@aprylroach2818]

Oh my goodness I really needed to hear this. Keep doing what you are doing. I am having a hard time but thank God I'm here

[@RobinMHeitt]

If it wasn't for the positive encouragement I would be lost. I'm not that great on line but when I can connect I am so grateful to know others experience the same hurdles and problems and know I not stupid or slow this is a challenge I never wanted either but it's here and thank you for all you do.

[@marianb5103]

You are so right! This is such good advice for everyone, not just those with medical issues. Life is way too short to be anxious over toxic people. Nine times out of ten those toxic people have their own issues and somehow feel better when they try to make others feel bad. Keep up the great videos, and many blessings to you and yours in the new year.

[@barbarawolcott6999]

I totally understand what you have been going through! I had anal cancer and nearly died. Had an illeostomy for three months. It was reversed but the radiation colitis is ongoing! I think many times about going back to an ostomy. You are a super strong girl! I am so thankful for all your information!

[@snivly2066]

Thank you so much for making this video! I had an ostomy bag from a botched hysterectomy which is how I found your channel but I suffered years and years of chronic pain from endometriosis and I felt terrible almost all the time. Literally no one understood why I didn’t want to go out and do things and I always pushed myself because no one understood why I always complained about being tired and not feeling good. It honestly wasn’t until I had the hysterectomy before 40 that people started to understand or at least ask about my illness.

[@Piltdownpaul]

You did the right thing, your health comes first girl. You made me cry listeniing to that story. Some folk are so heartl;ess but yes , you rose above it. Good for you. Occasonally i feel like a second class person where i work because of my ileostomy. I cant do some of the work requested of me that i used to be able to do......i feel awful every day when i leave work , i feel inadequate. Love your vid girl.

[@lynetteveches4745]

Thank you for making this video I actually started crying when I watched it with you because I get kind of the same comments from people that are family and friends and it really does hurt and it does make you feel guilty inside and like your using excuses with the disease but they just don’t understand and then the depression and anxiety that comes with all of that is just overwhelming. I’ve been watching your channel for a couple days now and you have given me so much hope about clothing and living with Ostomy and I’ve had mine for three years almost already but I thought I had to wear big clothes and not go anywhere and limit my stuff because of what could happen but you just give so many helpful hints and encouragement and I am also a Christian so all the things that you do say and how positive you are even though I’m sure you don’t feel that way every day,I really appreciate it.

[@lesliestegen1757]

Thank for making this video. It’s a great encouragement to me to hear someone else whose has had to let people go because they take away joy by things they say. God blessing you.

[@florcastillo1957]

Thank you for being real because this thoughts are everything I have been thinking for months, I also made a plan to end my life and that of my sons because I was so horrified about the surgery and the ostomy. But God send many wonderful people to support me and strengthen my faith.

[@Top-g919]

Thank you so much for your honesty. I had to stop mentioning to a family member that I was tired sometimes because I was getting so much sarcasm.

[@OstomyDiaries]

I’m so sorry. It’s not right, but know that there are other people who get you. Praying in time your family understands 💚💜

[@lindapratt7657]

That ‘ friend’ is no friend.. my sister is having this surgery next week and she’s terrified and I’ve been sending your videos to her

[@bhartronft]

I am so thankful that you learned not to let people bring you down and to drop toxic relationships at your age! It took me much longer to learn this. God bless you for your honesty and bravery, and most of all for sharing your faith! God bless you and all your loved ones!

[@majorwhite51]

God bless you beeeeeeeeeeautiful girl, I am a big lump of a man and very able to to tell people where to get off, I really only have had things said to me by friends etc who don't realise what they've actually said, things like "so your pissing in a bag now" but I still have to "bite" my lip, you stay positive, like me you are so thankful to have no more pain etc 😊

[@Nelldivine]

You are a doll! You are strong and brave and I want you to take care of yourself. I have a urostomy and It is hard enough. Not as difficult as you and your situation. You just be your strong self and speak up for yourself! That friend is not a friend! Good riddance to a garbage friend!

[@sharongarner3652]

God is why I'm still here too! Thank you for sharing your life and story so openly. I have had this ostomy for 2 years and not because of any disease. It's just happened unexpectedly January of 2021. A lot of inflammation in my sigmoid. Part of my sigmoid was removed and to help my colon to rest, I was given an ileostomy. I had complications with my reversal failing so had some other surgeries because of sepsis etc. I have an external fistula now for 1.5 years that needs to heal before any reversal can be done and I must be nutritional up to par says my surgeon. Thus, I've been on TPN only for 1.5 years in order for this fistula to seal shut. It's been a crazy journey. My doctors say it's a miracle I'm still here because of infections and complications. TPN has saved my life as well.

[@Crishyde1022]

I have lost but two friends. I not only have a ileostomy but I have hemiplegic migraines and they make me go paralyzed. I can no longer drive. So now I can’t go anywhere. People have to come to me or reach out to me. The loneliness is real. Without God like you I am nothing!!!! Through my illnesses I realize I am a prayer warrior for others. I lay in the hospital, was just in over Thanksgiving, and you hear what the other drs say to people. And instead of laying there feeling sorry for myself I pray for others. You help me a lot!!! I am greatfull you are back to making videos because I don’t feel alone in this journey!!!!

[@conniecraddock8481]

Thank You for sharing! I have watched several videos , not for myself but for my husband and I believe you are fantastic and your “teachings” have helped me understand more. My mother had one four four months . This is a possibility fir me as my aunt also had a bag years ago before all this new advanced supply’s. You make it seem manageable

[@almapasos5803]

You’re an incredible inspiration! Many can’t understand what this life changing event entails. Choose Life!! I love that you said that!! Keep going girl!! You’re a blessing!! Thank you!! ❤️🙏🏼

[@OstomyDiaries]

Blessings to you friend! 💚💜

[@lindseycurtis2568]

Thank you so much for sharing! I have Crohn's and an ostomy. I could really relate to all you said. I'm a Christian and I would not still be here without God! ❤️

[@christineirwin3031]

I think your faith in God and your videos are absolutely wonderful. Thank you so much for sharing. God bless you 😍😍❤️❤️

[@ifxman]

Thanks Amber, you're amazing. It's almost a year this Oct and I'm completely alone going thru this. Family and most friends are all dead and gone and I've been watching and thumbing up your videos but didn't really want to subscribe, only because I thought you were talking mostly to other women but this video must have been hard to make, you earned my respect and subscription. Thanks and keep 'em coming! 🙏✝️✌️❤️

[@AdventuresByKayla]

Love ya girl! I hear you and am here for you!

[@debbiesage8208]

Sweet girl, you are precious! I've learned a lot from your videos. Keep doing what you do.

[@elizabethgregory9549]

Folks who behave that way to you are selfish and not true friends. You should never feel like you have to apologize for putting yourself first ❤

[@lisarodriguez5916]

Thank you so much for sharing this. I total get it , since having a permanent ostomy as well and feeling those feelings of not wanting this. I love God too and I'm so glad to hear you do too. Thank you for sharing all this! It's amazing that you have chose too😊....

[@SonjaMercedes]

You are so sweet! Thank you for sharing on your channel ❤

[@annebebee6764]

Thanks for your honesty. My ostomy is 6 weeks old and I have learned so much from you!

[@ashleyi7911]

I haven’t dealt with the level of things that you have but some of the things. I can definitely relate to most all of this. I can say that I am immensely grateful for the people who surround me with love and encouragement through this extremely difficult life transition. I too deal with a great deal of anxiety but a lot of it is self inflicted. I worry worry worry and dork wanna go do things then if I finally do it, I usually end up glad I did. One of my biggest struggles was family gatherings. Those were always SUCH a source of anxiety, stress, and guilt for me. Basically my entire family would always be like “just eat” or “why do you not eat this?” Or “what CAN you eat? I’d starve!” Or “why’d you bring your own food, is this not good enough?” …. I mean I wanted to be around my family but I didn’t. Until I got my ostomy, people I guess didn’t realize JUST how sick I was and how hard I was fighting every day. They still have comments but it’s let up thankfully. Glad to see someone else being real, vulnerable, and open about legit things that people like us deal with. Sometimes you feel so alone with these struggles. Thank you for sharing.

[@meghanrobbinsbrooks8671]

Thank you for this.

[@sharonwilliams5701]

Do not feel guilty about “friends”… I’m 69 years old and I’m done with friends. Some of my old friends left even after a 40 year friendship, I’m lucky to still have my hubby of 50 years. People today don’t understand friendships, it’s only for themselves,some aren’t even friendly with me. I can’t see one thing why the lord would put us in this kind of pain, what could be this reason. I hate the saying “ well at least you’re still alive: Spend a day with me and show how a day as osti person, changes you. I miss my friends so much I cry a lot. I hope you meet a great friend, you know God is going to send you one Good luck in your life, from one Christian to another❤️🌹✝️

[@yomama8873]

Great uplifting thank you ❤❤❤❤❤

[@roberttripp9653]

Thank You so much, God Bless

[@hollyyoung649]

I'm sitting here with my mouth hanging open that ANYONE would say ANYTHING like this to another human being! I have cancer, and will be getting a transverse colostomy next month and I have been very lucky so far that my family and friends have been so supportive,,,,,,but one person did say I was doing "it" for attention,,,,,,,doing WHAT? CANCER? seriously??? Have you lost your MIND? And it hurt, it hurt BADLY,,,,,so girl, SING IT,,,,we do not need to feel guilty and those types of people deserve to be dumped from our lives!

[@cherylabardaville9715]

That was awesome. Your strength comes from the Lord. You rely on Him and that is how you make it through it all. Stay focused on Him. ❤

[@OstomyDiaries]

God keeps me going! 💜

[@cindygray1770]

What an awesome video. Thank you!

[@banjopickerinadoublewide7613]

Thank you ma’am! I am one of the people you have helped greatly! When I meet somebody new to this life I recommend you. I write it down on a piece of paper and make sure they heard me right lol! It’s a big help that you are absolutely gorgeous. I’m a woman too… (my youtube handle doesn’t help much) have a good looking husband and a job that appears to make you happy. Your not only helping with problems that come up with having a bag, your empowering women every where. Fight the good fight and may many more find help from you!

[@constancelupo4752]

Thanks for doing what you do 😊

[@MrBillybonsai]

thank you for this video. keep you spirit up Iv got a ostomy bag its new to me.

[@chrislegner4816]

You would think this would be uncommon but it isn't. Even those close to you can occasionally be cruel.

[@florcastillo1957]

This is exactly what I am going through right now. It has been 6weeks since my surgery, 6 months after quemo and radiation but my friends and sister make me feel like I should already be fine. Like I am being too dramatic and not trying hard enough to get better.

[@davecomeau5805]

Thank you this video helped me more than my therapist crohns/ostomy is a silent disease we deal with everyday 🙏

[@cathymalcolm9307]

You are wonderful.im so happy to hear your behind the bag video wow you where saying things I'm feeling I went to a cottage and the person who took me said all you did was sleep I had a cold, anemia , colostomy that hurt. I just found you tonight keep on helping your great 👍🙌 xxoo

[@tlr71]

Thank you so much for posting this video. And most of all, being so honest and open about your journey. I, too, have Crohns. I was diagnosed in 2000. I had my surgery in August of 2021. I didn’t want mine either. I’m still adjusting to it. There are some good days and some bad days. Some days I feel like I’m living in a nightmare. I had a lot of problems after surgery and still some now with high output. I can totally relate to you about the part in your story where you thought about committing suicide if you had to live with the bag. I did the same thing. Along with all the ways I would do it. At one point, I had to have a NG tube put in and it hurt so bad and was the worst thing I went thru for 3 or 4 days. I can’t remember just how long it was. I was miserable. During that time, I thought of ways to get “even” with the doctors for ordering one. It sounds silly writing it down. Of course, I never would’ve done anything to the drs. But I would have rewritten my will, giving them everything I own to them if they would have taken it out sooner than they did. I do have to say I have a good support system in place. Thank God for them. Just like you, my faith is the most important thing to me. And I thank God every day I am still here on His green earth. My faith and belief in God got me through a lot of dark days and nights. I enjoy your videos and Thank you again for sharing them.

[@michellelanigan2561]

Thank you so much for validation of my feelings. I didn’t want to live my life as a sickly person and get attention for it. I would much rather be doing sports,babysitting my grandchildren, shopping, driving…everything I used to do. When I got rectal cancer in 07, there was one particular friend I NEVER heard from again. She called me her best friend and she didn’t check on me once! No cards, letters, flowers, texts, phone calls…etc. Then he sin committed suicide! I didn’t do anything either. I couldn’t make myself forgive her yet. I saw her once since then and I acted like I didn’t know her, because I don’t.

[@terrihubbard1943]

I enjoy watching you so happy to understand where you are coming from keep up the awesome videos a friend with Crohn’s disease also and has a permanent colostomy

[@loverofvegas6851]

I love the videos!! Going to be having My surgery for rectal cancer soon, I haven't gone through all your videos yet? Just wondering if you happen to have lists?, of foods you can have, maybe have, don't have, absolutely don't have?! Thx in advance

[@patsygreen6857]

My name is Patsy. I just had a colostomy Feb 1, 2022 I am 69 years old You are such a inspiration to me. I am a Christian. It has been since last year I was unable to go to Church,go with family because I didn’t want an ostomy. It has been hard getting over surgery thank you for the encouragement

[@mariemccomb9123]

Fair play to you for your video I couldn't do what you do wish I could but I'm still struggling

[@gingerlong4157]

Thank you for your honesty and for your testimony. God is using you to love on people and let them know they are not alone. I believe he is using you to give me and others messages that only He knows we desperately need to hear. The lord brings people in and out of our lives for a season and a reason. So if someone has made it clear it’s time for them to go then known it was always a part of His plan.

[@OstomyDiaries]

Thank you so much! Jesus is the reason I’m here so I just want to share his love! Blessings to you friend. 💜

[@michelebreen1705]

You are ministering. I am a Christian you have helped me so much

[@jajacobs100]

I have a urostomy pouch due to bladder cancer. At almost 71, I didn't want it either but I'm alive!!

[@suemcguire9256]

❤thank you, my husband has stage 4 rectal melanoma so to help his colon he has an ileostomy. He's doing well however hard emotionally. What do you suggest?

[@LorenzoJ0]

Just got my bag this past week. Not sure about it yet. First bag change by myself didn't workout. As I type this I'm wording if my second attempt will work. I had to get it since I had a fistula which was getting worse. It's a change.

[@michelebreen1705]

Wow. They were people to get rid of

[@870annie]

I didnt want a bag either!! 4 month ago had an ileo.. my brother have chron and had a surgery years ago and i was crying cause he might have a bag he didnt.. but i have a really rare desease ganglioneuromatosis and i would never go back to no bag.. i was so sick 70 pounds

[@nolabeveridge2651]

Us women are good at taking on guilt. Don't allow anyone to judge you, don't even judge yourself, there is only one who has the right to judge - I believe the apostle Paul said this. Jesus said "Let your Yes be Yes and let your No be No". Real friends will support you in the good and bad times. Bless them, forgive them and move on.

[@user-yp4ed2jw5h]

Thank you for this video, my ex wife told me the same about my issues.

[@janicejones2032]

Great program. Thank you for what you do. Jim Jones caretaker of Janice

[@OstomyDiaries]

You are so welcome!

[@Knighttus]

Do you still take any medicine?