Dementia Care 5: When It's Time for Hospice

When a person with dementia reaches the end stages of the disease, the Hospice of the Valley team supports family caregivers and the patient. To learn more about the dementia program, visit: www.hov.org/dementia-program

[@KraigDelaney]

I lost my mother 2 weeks ago. Not until the last days did we find out that hospice care can start up to 6 months before the end. I'm heartbroken to know that she could have been receiving that type of care for months before we lost her. This info NEEDS to be spread.

[@onlyonezenn6037]

My grandma is near the end. My dad can’t express how much he appreciates hospice nurses. Thank you all 💜

[@jojostwin2492]

I’m so sorry for your loss. She’s resting easy now. If you ever need to talk about your feelings there are people in your life willing to listen to you and help you out. If you ever need to talk I’m here to talk.

[@nope24601]

It takes exceptionally beautiful people to do this work. Thank God for hospice care nurses and workers.

[@sallyclay1974]

My sister had Lewy Body dementia. She had round the clock caregivers at her house in Ridgefield, CT. Her last 3 were at the Residence, an assisted living facility, in Darien, CT. She passed away peacefully, on Jan 27, 2021. I salute the medical staff, including caregivers, and hospice, for taking such great care of my sister. Blessings and prayers to your families. God bless u all!

[@josiahculley7686]

your not taught this in america or most places or on tv but almost all health issues are casued by nutrition deficiencies and are easy to fix within a week. Nutrition ivs and nutrition injections supper effective in healing reversing health issues. you heal reverse dementia/altimers by myers cocktail iv and b12 injections. you get dementia/altimers because of b12 deficiencies. for example japan has the lowest rate of dementia/altimers because they health care system make sure there citizens get enough b12. You check your nutrition levels with thourough nutrition blood tests only functional medicine mds will do that and they know optimal levels not reg providers. anybody with health issues the root main cause is nutrition deficiencies. mental health issues, headache issues sleep issues balance issues the list goes on and on and its becasues of nutriton deficeinces. myers cocktail iv, vitamin d injection b12 injection, gludathione iv coq10 injections will heal and keep you at optimal health year round thats what pro althetes and rich people do year round. just type in google nutrition iv therapy near me. go get them done and start healing quick nutrition ivs and injections have been around since 1950's its a hidden secret casue there super effective and cure. anybody with altimer/dementia should do myers cocktail iv and b12 injections watch how fast they improvemm

[@Purppusay]

Going through this right now my grandmother she will pass at anytime. I miss her already. I love you so much grandma. So much❤️❤️❤️❤️❤️

[@charleslangley2685]

My mom has early symptoms at 66 😢

[@Purppusay]

@@charleslangley2685 we just have to hold on to the memories keep pictures and stay engaged with her hold her hand play music for her and love love love on her ❤️❤️❤️ my grandmother is still here holding on. We have her at home where she will pass away.

[@charleslangley2685]

@@Purppusay 🤦🏽‍♂️ I’ve already excepted that fact that she’s gonna pass here with me my dad and two daughters, I’m in good spirits I love her and I’m staying strong for her. I have her taking CBD, and lion mane mushrooms, got her a heating pad in her bed, epsom salt for baths, and melatonin for sleep….. I feel good about this on my end, everybody doing their part.

[@Purppusay]

@@charleslangley2685 isn’t that a blessing. For our elders to be able to stay at home and pass around family. I’m sending you and your family hugs from afar. ❤️❤️❤️❤️❤️

[@bamamam]

Iiiiiiiibiibbi

[@revelationthe7sealsarecrac981]

My mother is in stage 7 I'm sure. She has not forgotten who we are but is experiencing hallucinations. She eats very little and tries to hit staff and pull on their cloths. She has no control of bladder and wears diapers. I am consumed with feelings of wishing that she will pass away, then guilt for feeling that way. God help me

[@katherinewillis195]

My mother is also in stage 7 but she is very functional, she is up all night, Opening and shutting doors very loudly walking up and down the hallway doesn’t sleep until four or five in the morning for two hours then he’s up doing the whole thing all over again. But I often wish that she would just pass quietly, I don’t feel guilty about thinking this way though, what an awful existence for her.

[@rexbexibex1177]

@dontclick caught in 8k?

[@moocrazytn]

@Dontclick You a jerk?

[@Keithmurray23]

Agrace helped us in our time of need with my father. I’ll always be grateful for them. They’re angels on Earth ♥️

[@Nate-dn1gx]

These clips are very helpful those going through this or their family members. As a society we need to support death-with-dignity so people don't reach this stage.

[@RabbidTribble]

Are you talking about euthanizing the elderly rather than taking care of them?

[@mcsuckalives2302]

I agree, we should have more options s and choices to help loved ones pass that have always expressed they don't want to live with dementia but aren't deemed the right to euthanasia under currents regulations. My mom always said, promise me you won't let me live like that(watching doc on dementia) and I said yes. Now I cannot fulfill that promise to my mother without being deemed a murderer in the laws eyes. I think any choice regarding life, regardless of reason, should be respected and supported by government

[@scetch2006]

My mom is almost 91 yrs old and in the last stages of dementia and life. I remember my first true warning sign with mom was many years ago. My mom always loved playing the game Yahtzee. She played it for years. One day we asked her if she'd like to play. She replied, Yahtzee? What's that? How do you play? Mom has forgotten us all and is pretty much non verbal at this point. She always loved to sing. She had such a beautiful voice. When the talking became less and less mom would just hum and sing. That has now gone away as well. She's been in a memory care facility for a while now. Most of the time we just sit with her. Play music in the background. Hold her hand. Kiss her on the forehead...She was and still is an amazing woman. I will miss her greatly.

[@user-eg5qt3rq1k]

My spouse was incontinent initially. It was when he couldn't remember his log-on for his computer that l recognized that he was altered. 😢

[@sammie20]

Dear God, give me strength once my Darling husband get to this stage...I pray, he doesn't go through this at all...He is in the severe stage now...this is so painful but it seems I have been grieving the loss of my husband for over a decade now...His Alzheimer has been around even before he was diagnosed...now I realize what he was going through :(😭😭😭

[@teresajeffries3934]

My mil has dementia and I dread this. My father in law had cancer, and the Dr called in hospice. They came out the day he was signed up, then 3 weeks later when he died. We never saw anyone in between. When we called them that his breathing had changed, the nurse came in, laughing, and said...oh he can go weeks or months like that. Don't worry about it, then left. He died 30 minutes later. When we called her back she came on, again laughing, and said,well I goofed that one, didn't I? Hahaha. She kept cracking jokes and laughing so that I had to ask her to stop. It was so inappropriate. I really dread calling in hospice for her if this is what we will get. We struggled for 3 weeks taking care of dad and were exhausted from it with absolutely no help from . Hospice.

[@petecernan2568]

What a nightmare for you, fancy cracking jokes my god I think some people are in the wrong job,I was traumatised following my fathers death from cancer in 2016,it took me 3 years to get back to some form of normality,I then supported my dear mother who was also devastated,she had a stroke 2 years ago followed by dementia diagnosis, my mother has deteriorated severely over the last 6 weeks and is now in hospital,I know the end is near I’m there every day,I don’t want her to go,my parents were simply everything you could wish for good luck to you

[@teresajeffries3934]

@@petecernan2568 and to you. My thoughts and prayers are with you.

[@alfredolopez4092]

My stepmother is 62 and has dementia, very important to take care of your body to prevent illness, some Dementia patients are worse than others.vitamins play a important role

[@Mcgrandma]

I know this may sound pretentious and naive, but try coconut oil especially MCT. It’s been known to reverse insulin resistance and might help you reverse dementia. It’s worth a try. I’m 73 and take MCT daily because my dad had dementia, my an uncle and grandpa so I take it for prevention, and it gives me a clear mind and more energy. (Start with only a teaspoon twice a day. It’s tasteless so I just drink it in water.) kzbin.info/www/bejne/n3atooWOmtZ3Y8U

[@sammysboy]

Troybhk. I have been through this with my husband.he went in care in November even carers couldn't manage him.so heartbreaking.he is not aggressive now that has stopped he is so docile but doesn't recognize me.he was a lovely gentle man.i am sure there will never be a cure it is the brain cells dying.what a waste of good man when so many are horrible.

[@irealghost3248]

Same happening to my dad

[@myrtleesther8855]

Thank you God for the people who have the qualities to offer care and support to people who are so vulnerable and in need of care, please provide for them in Jesus name I ask Amen

[@Woaddy..432Hz]

Yep, call Hospice they took great care of pop! Diagnosed with Mesothelioma, called Hospice for home care, 3 days later got him home and he died in my arms 4 days later. Hospice gave him extremely formidable amounts of more Pheeen every time he woke up. He even begged to stop giving it to him. I quote"Bubby, I cant take this medicine son, its so strong and its an evil drug. Please don't give me any more" I wasn't going to take part in something he didn't want so I didn't give it to him once. A sibling, and husband did, every 2 to 3 hours. He was out after a few seconds. Pop was real sick. 4 days though, he was coherent when he woke up from the last dose and his pain was little. Hospice told me "Patients say things like that because their body id dying and they don't realize it" listen to the Federally paid Medicare Professionals though right? How much is a 84 year old person worth in healthcare terms? There definitely is an amount, no secret about that. The cancer was going to kill my popsm, no doubt that was unstoppable. They had to open him up to find it. We know what that means too right? My question I asked was "Did the Mesothelioma take my pops, or did the meds?" The answer I received was "Cancer" I said "Thank you for the help and when would the toxicity/Autopsy be available to read?" The coroner who is the room too said"Ah, No autopsy will be performed because he died of Mesothelioma." I was told by family to let it go so I asked them since they gave him the mystery med, in which they had no clue about, "So what killed my dad?" They said "Cancer" and thats it. So we know for sure, positively that people think they know what killed my pops, wheres the proof? The real proof? In the autopsy. Pops was at a rapid decline. He died in March of 23 and since April 20, 2023, my moms is now bed bound, bed ridden with Stage 5 Alzheimer's. A UTI and 2 nights in the hospital got her bedridden. She was walking really well before and hospice is saying she's on decline and she's prob gonna stay in bed. I'm 52 and been taking 24/7 continuous every second with zero distraction care of both of my parents since Aug of 2017. I know when my mom is strictly bedridden or she can be taken outside or excercise her legs and help her stand which I already started. Gotta cut the time though. It really wore her out and mostly I held her weight and transfered her to a rolling chair. I can't tell u how many times I taught her how to stand and walk again. Several times a day for sure for last 2 years. Incontinence started in 2019 with bed wetting. Now, she thinks it's normal. She doesn't know me and to her I'm a strange man she never met who violates her. She's even kicked me with some pretty nice chest shots. She pretty strong still. Strong enough to get out of bed thats for sure. And who she thinks I am? My momma ain't gonna be wet, or laying in her own fecal matter for no longer than a hour or two. I check her every 2 hours any longer she'll get painful diaper rash. My momma ain't got no rash. So I take anger by telling her I love her, Im Bubby your son and I would never hurt her in any way. Then I go outside in my 10x12 metal box and listen to music and let all my anger and her anger out. She don't need to see me angry. It's selfish because she has no clue she's like she is but she always has guilt, shame, and fear of the unknown. So no matter what I try in her diet, she's still on the down hill of a rollercoaster. Since My pops entered the hospital in Feb, her mind deteriorated 4 times. In 2017 once, since 2020 there's been a rapid decline and most of it was after a very traumatical event like changing living environments and death. Her older brother died 2 days after my pops and an uncle died 3 days before. All of my mom's indenuous family are leaving us now. They had so much knowledge of living off of the lands and swamps of Southern Louisiana and taught me so much Ill never forget them. I'll start living again when she rests completely. I hope it's the next 30 years because when it comes to that woman Enough is Never Enough and I don't quit. Hospice is a ??- in my opinion and just the easy observation I witnessed. They don't give my mom meds, I do and it's the same she always been taking. And maybe I didn't realize how serious pops cancer was getting worse. I couldn't stay with him for the month in the hospital because my mom would've been alone so a sibling and other relatives took turns. They'd visit her a few times but don't stay long and I get it. No resentment s, no blame game. Just don't know what killed pops for sure and that never leaves my mind. Ever!! Thanks for listening. I Don't get much human contact

[@joannamarquis2705]

God loves you.

[@SirMrShanks]

Renee is such a beautiful big lady. I wonder how life today is for her 🍀

[@Seimonster27]

Infections are common because dementia also wears down the body's natural immune system. Be very vigilant of signs/symptoms for infection-especially UTIs, as they may no longer be able to communicate the discomfort or may also have an asymptomatic UTI, which can be harder to detect until it reaches symptoms moving towards SEPSIS. Be sure to keep them as upright as possible to facilitate better swallowing as they start losing this ability. Sleeping elevated (30°+) will help prevent pneumonia and/or aspiration by allowing gravity to work in favor of the throat versus inhalation.

[@ralex3697]

Angels do exist

[@lilianokeke2727]

Waooo you all are specialist in this Care, more strength. I have been following your youtube and am from Nigeria would love to work with you and is there any vacancy and how can I apply ?.

[@shereensalah5523]

Can I find a similar thing in Turkey?

[@ericaquick7157]

My mom has dementia and is at the point where she has had a tracheotomy so we can’t hear her sweet voice. She no longer walks or eats and has now been moved to hospice. I am terrified of losing my mom, I’ve never been without her we are so close but I guess this disease has been taking bits and pieces of my Mom as it has progressed. I am so sad she is going thru this and there is nothing I can do to help her 😢

[@joans5619]

I am so sorry. My best friend, my mom, died in 2014. I miss her every day still. Because of how bad she was with no quality of life at all, and knowing she wouldn’t want to survive on an iv for fluids or a tracheotomy, we did not do anything like that. We let her die the way she wanted, in peace. And it was peaceful. Sometimes holding on for our own reasons seems like we must at the time. But I asked myself what I would want if I were unable to swallow or talk and my answer was immediately that I would want to go in peace. She was a person of complete and total faith in Jesus and her job here on earth was so well done. It was time for the next stage. My dad and brother predeceased her and we’re waiting for her as were her parents and sisters. When she first found out she had Alzheimer’s she told me when she died she would send me butterflies. Well let me tell you they were everywhere. On the cards I received to a pineapple cut like a butterfly in a fruit basket, to driving down the road from the church to the cemetery and turning down butterfly street. Amazing. She sends me signs to this day. I wish peace for you and hope your mom passes peacefully in her sleep. God bless you.

[@ericaquick7157]

@@joans5619 I am so sorry to hear about your mom. I know exactly how you feel, it’s so hard to see them suffer and you don’t want that for them but the selfish side wants to still be able to see them. It’s tough. My mom was the sharpest woman I know and to see her like this is devastating. I think her illness got worse after my sister died of cancer. I will keep you in my prayers♥️ may god give you strength and healing friend.

[@biglow7027]

i think CAREGIVER JOB AGE requirement should be age from 24-50 OF AGE. how old do you have to be to be old enough to be taken care of?

[@doloressandovalmartinez9642]

Don't you have up to date information (?) Things have changed (?)

[@davidspedding8349]

is cash involved??

[@HospiceofValleyAZ]

Hi David, If you or someone you know is currently caring for a loved one living with dementia, Hospice of the Valley's in-home support program is now FREE. Call if you need help: [phone]. Details: bit.ly/2FvK9aP. Thank you.

[@ilovenoodles7483]

@@HospiceofValleyAZ Wow. Thanks

[@schoomzer]

Of course, it's a paycheck for most of them.

[@reniferZiolo]

i dont see why people think its humane to let people get to this stage

[@bettyboop3353]

You might want to write a book instead of ranting on this page.