Doctors, What Self Diagnosis Was Surprisingly Right?

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[@aickavon]

The EMT saying ‘no crap’ to the leg broken is how I know the story is 110% true. EMS lack bedside manners when their main focus is keeping you alive.

[@LoneTiger]

Patient: _"Doctor, I think I have XYZ. Can you test for that?"_ Doctor: _"Yes, we can test for that but, nah, I think you are just seeking drugs."_ Patient: _"Doctor, ask yourself, what is cheaper? A test for XYZ as part of this examination, or a lawsuit for malpractice?"_ This above should help with any doctors refusing to test for something.

[@DaZebraffe]

Another good response is "Okay, but in that case, I want to watch you write in my patient file-and sign it-that you refused to do the test." Any doctor with the tiniest bit of sense will nope out of that and run the test, because putting it in writing that they're refusing, makes the malpractice case against them later, a slam dunk.

[@numeristatech]

Thanks for that titbit. Saving for later :)

[@tommie6186]

Always tell them that you want it notated in detail and that they refused to run tests stated in your chart and a copy of it. One, might spook them of future malpractice lawsuit and I hear they're more likely to run more tests. Two, evidence for potential future lawsuits. Three, will help you explain to potential 2nd opinion doctors, making it go a bit faster hopefully.

[@escaramujo]

@@DaZebraffe We use that whenever our daughters get sick and they refuse to test them properly. It works charms every time. One time got my eldest to be diagnosed with Epilepsy, the middle one had an osteocondroma discovered in her arm, and the smallest had something pillotrixoma something that needed surgery fast because it was numbing her arm and hand. They aren't that serious, I know, but children deserve being diagnosed properly and fast, because their growth can worsen everything faster.

[@richardmyhan3369]

I've had kidney stones three times. Can verify that there's nothing like it. First two times I thought I was dying. Third time I threw up twice and passed a kidney about half the size of a pea.

[@Florahitman]

Same. Had badly sprain ankles and broken bones. That pain didn’t compare. Only a rootinfection came even. Have the wrenching pain. Been to the hospital a couple off times. All pointed at kidney stones. But no stones were found

[@gamongames]

I was once at an ER in the middle of the night with one. I knew what it was from having had it before. even tho the ER was mostly empty I was still treated like I was faking it because I couldnt really hide how much pain I was in. I waited for almost an hour before a nurse, begrudgingly, handed me a cup to pee into. when I handled it back one of them asked around if there as a mistake because he asked for an urine exam not a blood test. I still remember the look on their faces when they realized that I had indeed peed that mostly-blood-cup. their attitude changed immediately and then they decided to rush me around to treat the damn thing. like, how hard is it to just hand someone a fucking cup without being a smartass? if I was faking it that wouldve exposed me right then and there in a matter of minutes. I had to go through surgery to remove the stone at that point and everyone was rushing me around worried. dumbasses.

[@cassiethewolf1570]

@@gamongames I fucking hate when people are treated like this in a hospital. I had a bad experience with my time at the hospital recently, but your experience was even worse by the fact that these people intentionally didn’t help you because they assumed that you were faking it. For context, my bad experience was that I had abdominal pain and I had to spend 10 hours in the hospital just to get two tests done, having to be on an empty stomach all day in the case of surgery. But they didn’t treat me like I was faking it, it was just a matter of that it took way too long and I felt like shit the entire time, without pain since they used a pain killer on me. Thought it sucked to have to deal with that, but I don’t feel so upset about my visit seeing stories like these where people had to deal with doctors who decided to believe that they must be faking it even though their not.

[@jumpyhawk90210]

Same thing, the doctor couldn't tell if it was shingles or a kidney stone (both out of place since I was like 19 at the time) then they discovered I'd never be able to pass any stones because my bldder tube (connecting the kidney to my bladder) was too small for anything. Had 4 more stine since and they still hurt like a mf

[@richardmyhan3369]

@@jumpyhawk90210 Jesus!! And I thought mine were bad. You have my respect. Hang in there mate!!

[@inthesun3884]

Our disabled daughter was sick and I insisted she had strep throat. Several trips to the Dr, throat swabs, negative for strep. Frustrating because she was crying and wanting to stay in bed (non-verbal). Finally after 3 weeks of their chronic dismissal, her joints started to swell. Trip to the ER confirmed Rheumatic Fever. They finally gave her antibiotics. Thankfully it didn't destroy her heart.

[@Freezinggreece2]

When i was a kid i caught strep, got put on treatment for it, and almost immediately developed scarlet fever 😅 it was stupid fast. 4 days strep, 1 day fever, next day scarlet bumps all on my torso

[@VikingsRazor]

I correctly diagnosed my husband with a rare type of epilepsy that presents as bipolar or schizophrenia and even alzheimers. He was able to see a neurologist who was then able to do the correct tests. He's now on medication that helps him. He's been fine ever since. It was a bear to get the doctors to listen to me. I recorded him and took extensive notes. Were it not for me being proactive and advocating for him in his treatment, he would have been on the wrong medication that made things worse.

[@madisonlilly2859]

What is that type of epilepsy called? I’m just curious to learn more about it.

[@escaramujo]

Which are the symptoms? Loss of memory, temprorarily changed tastes and behaviours and even different ways of speaking? If so, I would like to know how you presented it to the neurologist, because I know someone like that.

[@MrsShocoTaco]

My husband's grandma had swelling in both legs from the knee down. Her Dr kept telling her it was due to arthritis in her left knee. I told her that isn't possible and tried to get her to get a second opinion but she refused stating that he had been her Dr for 15 yrs and she trusted him. I looked up her symptoms and all pointed to congestive heart failure. She still wouldn't listen. She passed away a year after her arthritis diagnosis from congestive heart failure. Somehow he still has his license.

[@riakun]

I correctly diagnosed myself as autistic after over 2 years of research. My family was unsure if I did or not, but most were supportive about it. Some told me that I was doing it for attention and I was a functioning adult, so get over it. Went to a therapist who diagnosed specifically autism in all genders and all ages, including adults. He literally checked me off for almost everything under the more “feminine” symptoms. Got the correct diagnosis. ✌️

[@yeetusfeetus7877]

Same. I did misdiagnose with Social Anxiety Disorder first, but my doctor did too. If I hadn’t self-diagnosed with Autism, I probably would have ended up being diagnosed with SAD.

[@luca5cuyi]

@@yeetusfeetus7877 I can't read "diagnosed with SAD' and not think of 'diagnosed with not happy'

[@zerotodona1495]

You are a functioning adult so get over it.

[@amandalicorne7769]

There was a therapist that chimed in on a FB discussion about self diagnosis and she said there was not one time when she has a patient tell her that they were autistic in which they were wrong! They were right every time!

[@ettinakitten5047]

I also correctly diagnosed myself as autistic. It's a lot more common than a lot of people realize. I see fearmongering all the time about "self-diagnosed autistics who aren't really autistic and give people misconceptions about what autism is like" but the vast majority of self-diagnoses of autism are accurate.

[@TarotMom86]

I think my best story for this was from 2012 back when I was breastfeeding my 2nd kid. He was about 6 months old and teething. bit me hard one day and broke the skin. not even a couple days later (despite my efforts to clean the area,) I developed a very high fever and a rash all over my chest. literally felt like I had boulders attached to me, and was in severe pain. I *knew* it was Mastitis. Stupidly, I followed advice from other moms to treat it at home because my insurance was recently dropped (thanks American Healthcare!) so I didn't want to spend money on a Dr. visit. After a weekend of self-treatment (and having blackouts from the fevers) I "recovered", but only to relapse and get it all over again a couple weeks later. I bit the bullet and went to urgent care. Keep in mind, that if you have never had mastitis, it is incredibly painful, and displays a very characteristic rash on the skin along with other flu-like symptoms. Also PAIN. I knew all I needed was an antibiotic and I would be fine. (note: this particular urgent care had some meds in-house so no need for a script. mildly important for later). So, Dr. walks in. I am wearing a very loose t-shirt and no bra (because PAIN). I say I had mastitis, described my symptoms, and said I just needed an antibiotic. He gave me a look like I was a lunatic, and immediately began to suggest other tests that he wanted to run and charge me for because *we had to rule everything else out*. After being as sick and in pain as I was, I had zero fucks to give. I was like "Seriously, if you don't believe me then LOOK FOR YOURSELF." I yoinked my shirt up, and flashed the guy. He just laser focused on my chest covered in rashes, went silent for what felt like forever and just quietly said "'l'll be back in a moment with your antibiotic..." and Noped TF out of the room. Didn't even apologize or anything. just quietly handed me the antibiotics, and said "feel better....." and darted off to another room. Totally not sorry for what I did, and still surprised that I took it that far tbh, but at least I got my point across lol. I was fully recovered in a few days.

[@TheHerpling]

Ma’am you have balls of steel. Glad you were able to get what you needed, but I’m sorry it had to be taken that far

[@escaramujo]

What surprises me is it wasn't his first impulse to check upon your breast himself. It never happened to me to tell a doctor it hurts 'here' and the doctor not asking to check upon 'here' right away...

[@Jenna2k]

Good for you. If that's what it takes then do it.

[@darkkitty2830]

Mine was my appendix burst, and the doctors acted like I was drug seeking, when the morphine didn't work.(but the antibiotics help the pain more then anything and I was finally able to sleep after 3days of no sleep) Turns out that after 24 hours of being "on observation" after a week of refusing to go to our ER because of stuff like that leads to my organs fusing into an inflamed mass of tissue that was apparently a nightmare to get rid of. Sometimes doctors just suck. We had to threaten the hospital with negligence before they ran tests and found out my appendix was preforming acts of warfare on my body. :/

[@pggarcia6703]

Damn, I’m sorry. Some doctors and nurses do really think that they know better about what’s wrong with someone than the actual person asking for help.

[@pggarcia6703]

Damn, I’m sorry. Some doctors and nurses do really think that they know better about what’s wrong with someone than the actual person asking for help.

[@miapelletrino2960]

i had appendicitis but didnt know, i went to the hospital the first time i had an episode and they just gave me tylenol and sent me home. i ended up having 3 more episodes within 9 months, the last time it started up was while i was in highschool and i went to the nurse. thankfully my sister just happened to be at the nurses office that day because she needed to check in with them before going home to get her allergy meds so she ended up saying she'd drive me home. but before we even got home i was on the verge of passing out so she just brought me to our doctor instead. he ended up calling an ambulance for me and when i got to the hospital they did a few tests and i ended up needing emergency surgery, they thought it was starting to burst but thankfully it was just fluid around my appendix. regardless, i got it out and obviously havent had a problem since. and when i say "episode" i mean 12 hours of constant throwing up, not being able to move or eat, crying because of the pain, etc. It's crazy that they didnt think to do even one test and made me just think it was normal for that to happen once every 2/3 months

[@silverfox1492]

Type 1 diabetes, my younger sister had all the warning symptoms and we have an aggressive family history of it(every generation has at least one diabetic and the rest of us are prone to low blood glucose) they kept telling my mom she needed parenting classes, took blood and urine samples but never actually tested them(were living outside US at the time) we flew back to US my parents rushed my sister to ER where she was diagnosed with type 1 diabetes and was told that had my sis fallen asleep she wouldn't have woken back up because of how dangerously high her blood glucose. She was hospitalized for weeks and is a brittle diabetic because of the damage caused by the medical neglect

[@sierratree93]

I got attacked by a dog and had emergency reconstructive surgery on my face and flat lined for a second during the surgery. When I woke up I told my partner "I died." and he told me I was fine and everything was going to be okay. Found out later from the surgeon my heart did stop for a moment and they had to bring me back.

[@stalkercabbit5710]

About 14y ago I was taking myself to the ER alot because. I saw alot of weird things, walking up in weird areas, and harsh headaches. Don't hangout with alot of people so didn't at first know why. Docs there did basic test and thought I just wanted drugs. I told them it has to be something in my brain. Finally after a few times in a week doc say if he gives me a chance. Saying if he gives me a CAT scan of my brain and all is good, then I could only come back if I was in a real emergency. I agree whole heartedly and get the CAT scan and was found to have a tumor the size of a golf ball behind my left eye. Before then everyone in my life said I was faking for sympathy or drugs. I said F words to everyone and started getting my health right.

[@manifestedmemory2448]

I was certain that I had a stroke but the ER, waited 5 hours for what they said I have must have slept awkwardly due to a few alcoholic beverages, had another stroke a few months later and went to another hospital. the second hospital found scaring of the 1st stroke and was annoyed that the 1st hospital did not do any testing for it. I am lucky to survive 2 strokes with minimal issues

[@JadeAislin]

You were very lucky. Years ago, my mom had been having shaking fits on and off. One night they wouldn't stop, so my dad took her to the hospital. I think when my dad and I helped her to the car it was the last time she was able to walk. A few years later her doctor was treating her for other problems, he noticed she had scarring that showed she had a mini stroke at some point. My family believes it happened the night she couldn't stop shaking.

[@naturally_rob]

Did drugs for three years. Went to a rehab and have been clean for two years now. But everytime I go to a doctor and they ask the usual questions about my past, when I tell them what I did they begin relating everything to that. Saying it's my issues are from it. I've finally found a doctor, thank God, who actually treats me like a human being who's doing his damn best. Still on the search for a non-asshole psychiatrist

[@janet91973gm]

I had been in pain for many years. Shortly after Fibromyalgia became accepted, I read all of the symptoms, did up a computer image of a person to point out all the areas I hurt, wrote a description of everything . Took it all to my doctor, said l knew what was wrong with me. He said don't tell him & took all my paperwork. Came back shortly and said that I had Fibromyalgia. I said yep, that's what I thought.

[@Emobunneh]

One night my Mum drove herself to the hospital with severe abdominal pain and told them she thought it was her appendix and that it might be close to bursting. The doctor that saw her ended up dismissing her without running tests, insinuating that she was drug seeking because she told them she was in so much pain. She was somehow able to drive herself home, and actually passed out for a bit before she woke up and the pain had become completely unbearable. She called a taxi (she was afraid her insurance wouldn't fully cover an ambulance >.> I didn't even know my town had taxis until then lol) and got back to the hospital. She got a new doctor, and the first thing he did was apply pressure to a certain part of her abdomen. Her scream could be heard all the way out to the emergency room. He did a quick scan and blood work and she was scheduled for emergency surgery. She got lucky enough to hear the second doctor yell at the first doctor that she never should have been sent home and that the first doctor is lucky she came back when she did because if she'd waited another 20 minutes or so she wouldn't have even been able to get to the phone to call 911. Her appendix had become gangrenous and she had to spend some time in the hospital after the emergency surgery, and she promised me if anything like that ever happened again she'd call an ambulance and not a taxi. Unfortunately in incidents that have happened after this she still doesn't want to call ambulances and avoids going to the hospital. >.>

[@lorrainesanchez328]

I have a family history of psoriasis and diagnosed when I was 2. 20+ yrs later, Went to a new dermatologist and they refused me medication for psoriasis until they did a biopsy. I told them I don't want to do a biopsy because I have already been tested, it was positive and wherever they cut I will get more psoriasis there. They still refused, so I gave in. Came back 3 weeks later positive, no surprise there, and then as expected my psoriasis spread, where they cut. Obviously, changed doctors and learned not to give in.

[@smolsand]

This is why I always get my medical records and go over results myself. I was passing out regularly over the course of a few years that slowly worsened to the point that It was a daily occurrence. I told my doc I thought it was POTS. My doc sent me for a TTT and to the cardiologist. The cardiologist told me my test was normal and that it was anxiety. Went to med records and got my result. Turns out the lab tech didn't read the results correctly. I went back to my PCP showed her the testing. She sent me to an autonomic specialty clinic for diagnosis and treatment. They re-did testing at the clinic to confirm. I walked away that afternoon with a diagnosis of POTS and medication to treat it. I have only passed out 2 times in over 4 years now as a result and I can go on 15min-30min walks now whereas before, I could only walk for abut 5mins before needing to lay down.

[@LividityInk]

Started getting a sore throat around flu season, when it got worse I asked my mother if she thinks it could be tonsillitis but was dismissed. Only a day or two later I was struggling to eat and talk and asked to get an appointment with the GP. Was diagnosed so quickly and had the antibiotics from the pharmacy in less than ten minutes.

[@vociferonheraldofthewinter2284]

My daughter diagnosed herself with Addison's Disease. That was confirmed. She went back and explained that she thought it was secondary Addison's because primary Addison's didn't fit all of her symptoms. She was right. Pituitary insufficiency. Her and I share the same doc. Three months later he called me out of the blue and told me that he'd been thinking about my chronic issues and my daughter's diagnosis and said I probably had the same thing. He was right. We don't know what this is exactly, but so far four other people in my family have been diagnosed with secondary Addison's since my daughter puzzled it out two years ago.

[@drowningincats3921]

Growing up very poor my mother would often patrol a neighborhood that housed a lot of doctors. When they moved, retired, or simply when a text was out of date they would throw away medical books. Everything from medical encyclopedias, to books on specific conditions, basic anatomy, etc. So we had a ton of medical books and mom would put some in the bathroom as reading material too lol I was 14 and my bff’s dad got very sick and was taken to the hospital. Several days go by and they’re still running tests. Bff calls me for comfort and we talk about dads symptoms. Symptoms sound really, really familiar. Go double check current bathroom med book. Ask friend to ask doc if dad had been tested for Glomerulonephritis. Doc said not yet and wanted to know where bff heard the word. He’s tested for it. It was Glomerulonephritis.

[@VSE4me1]

I hurt my knee. Doc kept insisting it was a sprain. After a few follow ups with me arguing it wasn’t a sprain I finally followed the doc out of the exam room and yelled at him in the hall that I didn’t have a sprain. He pulled the “in my 25 years experience…” but reluctantly authorized an MRI. Turns out I had a complete ACL tear. My NEW doc said my ACL didn’t so much tear as “exploded”.

[@datdabdoe1417]

Walking on a Completely Torn ACL for weeks at a time, Yeah, That'll blow it up

[@Jenna2k]

I hope you sued.

[@denisecrazycatlady7234]

15:35 ‘Dagnosis Murder’ did save my life, magnesium sulfate needs a dedicated introvenus line, otherwise it crystallises in your blood causing death. I had to forcefully stop a ‘nurse’ putting something else in my dedicated line after a c section, ‘ so now I’m learning from patients!,’ as she huffs out of the room. I would love to thank the writers, and mr Van Dyke, but I don’t know how to contact them .

[@wildangel0229]

I had whooping cough as a senior in high school. I coughed for 9 months and finally my mom told the Dr I had whooping cough. When he treated me for whooping cough I got well. My senior year was spent coughing so hard I broke ribs and would cough until I’d vomit. Horrible!

[@DrTurtleBee]

My mom told her GP doctor for years that her weight gain wasn't just from weight and she had other symptoms. She barely ate and still gained weight, was tired all the time and lots of GI issues. Like, this woman ate a two pieces of toast and a small dinner everyday and her doc said just cut out food and exercise more. Turns out she had a rare cancer that fills her abdomen with a jelly like substance until your organs become strangled and you die. Been growing for 20 years. Only found it when she went to the ER for a hernia and the ER doctors did a biopsy and were completely confused when they pulled out jelly. F* that GP doctor.

[@cassiethewolf1570]

You can’t just leave us hanging here without telling us if your mom is ok! Please give us context on the aftermath of the discovery!

[@DrTurtleBee]

@@cassiethewolf1570 After they found the cancer, which I kid you not is called vernacularly jelly belly cancer, we found out the we live relatively close to the cancer doctor who works with this all the time. Like people fly from around the world to meet this guy. And since it was the start of COVID, mom got to see him due to peeps putting off their surgeries to avoid hospitals. They opened her up, washed out all the jelly with chemo, took out her reproductive parts, parts of her colon, and the little bit of appendix left that the military docs had left inside her after she got her appendix out decades ago. Probably caused the cancer in the first place. Washed her out again with more chemo. Stitched her back up. Now she has no belly button. A year and a half of rehab and all of us afraid to breathe around her and she's doing alright. Cancer free, but still a bit delicate. Sleeps a lot still but not nearly as much and has frequent GI issue still, but she is missing bits of her colon now. Few other symptoms. Lost 15-20 pounds after the surgery. Many with this cancer aren't so lucky.

[@cassiethewolf1570]

@@DrTurtleBee it’s a major relief to know that she’s doing alright. Also, fuck the doctor who refused to believe that it was a medical problem causing her weight!

[@DrTurtleBee]

Unfortunately, it's very likely to come back. The surgery may have given her another 10-12 years, but more than half of the people who get it, get less than 5 years. And it's not like they caught it early or anything to improve her chances.

[@skylerchan7746]

My doctor refuses to give me an MRI, I might have a tumor according to other doctors and have every symptom of a pituitary tumor including going from 20 20 vision to legally blind, and having one breast lactating for years no pregnancy I'm 18

[@GaiasDotter]

Called my GP trying to book an appointment because I had pneumonia. Was completely invalidated and dismissed because pneumonia isn’t contagious, I am too young to have it and besides it would require close contact to contract it. I’m 10 months younger than my then fiancé that was currently having pneumonia. He wasn’t sick at all before, this wasn’t some respiratory disease that turned into pneumonia, he was fine and then just randomly got pneumonia. I developed the exact same symptoms around two weeks after him. We were livening together. It took 5 weeks before they agreed to give me an appointment and then only because I was telling them I was coughing up blood. I knew my throat had cracked because of all the coughing but I sure as shit didn’t tell them that just so that they could refuse me again. I was coughing so much and so frequently I had barely slept for those five weeks and I was going insane from the sleep deprivation. Receptionist made it clear while booking the appointment for me that it was a waste of time, there was nothing wrong with me and I was taking it away from someone that was actually sick and needed that appointment. When I arrived my fiancé basically had to drag me in there because I was so weak I couldn’t stand in my own and I looked like was dead, and probably had been for at least a little while. Snow white, neon purple bags under my eyes and I was wheezing so bad I and so out of breath I could only get out a word or two at a time before I had to stop and breath heavily for 2 minutes. They all had this horrified look of “oh shit we messed up” and looked like they were about to piss themselves in fear. Guess who had a really really bad case of bacterial pneumonia and was immediately given antibiotics and sent for x rays of my lungs. Fucking shitshow! Oh and they gave me the same antibiotics that my husband had been given at first that didn’t work despite us explaining this. Shockingly they didn’t work and I had to return and still couldn’t get the kind he got that worked. Second antibiotics didn’t work either. Fucking insane shit! Should have reported them but was to sick and weak and busy with the almost dying and such.

[@builtontherockhomestead9390]

I saw an episode of Mystery Diagnosis about a woman with a PFO (specific hole in the heart). Woman had migraines, I was having migraines. Other symptoms too. Went to a cardiologist who didn't think I had a PFO and never heard of a link to migraines. But cardiologist ran a couple tests, proved I had a PFO. I had to direct hi. To WebMD for info on the link. Cardiologist sent me to a heart surgeon, who was well aware of the link and research on the topic. Ran tests that showed a strong link between my PFO and my migraines and other problems I was having. He Fina agreed to fix my PFO.

[@emilydobosz7076]

I kept on having the feelings of going to puke, heartburn, the runs, constapation, and incontinence. I kept on trying to get someone to get me check out, but for a few months no one listened. The problems started to effect how often I could work, so I went to the doctor. After taking some nasty *butt* prep. Meds, I had a colonoscopy. They removed large bumps from my insides. Turns out they were cancer. Well, I did tell them I need to have it done. I even found that all my problems are symptoms of colon cancer before hand, I just didn't have the courage to state what I believed it to be. I mean, who wants to admit they have cancer? I had even woke up from a dream where the only thing I remembered was a voice saying cancer. Yeah. To be honest alot of strange things like that occur to me, so I wasn't surprised at the diagnosis. The doctor who told me they found cancer seemed a bit shocked at how I responded to what he said, though he recovered a bit once I explained my point of view. Nothing I can do, so why bother getting upset? No point in that, just a waste of energy.

[@chrystpick7741]

I often walk in to my gp (general practice doctor.) And tell them what's wrong and what I need.... They never listen to me. They ALWAYS prescribe something that won't treats what's up with me. Normally I need antibiotics for a illness I've have since birth, so I still end up ringing my specialist team and asking them for a prescription, which they issuse without seeing me. So now I skip the middle doc and go straight to the specialist team....

[@Amm1ttai]

I correctly diagnosed my fiancé with retinitis pigmentosa. To be fair though, I was a medical transcriptionist at the time and had seen the file of someone who had it. My fiancé matched all the symptoms. We went to a specialist and he was immediately diagnosed.

[@KHTimeProtecter]

My mother was in and out of the ER for years because of extreme pain and nausea that nobody could diagnose. I told this to my great-aunt who said that that runs in the family as gallstones. It took the doctors another few years before they actually listened and checked her gallbladder. Yup. Stones. One surgery later and she didn’t have that problem anymore. We were so close to suing them for malpractice.

[@honeybunn4268]

This is exactly what happened to me. Two years of them telling me it was just heartburn and giving me different kinds of acid reducers and telling me to change my diet. Near the end of it, literally all I could keep down or eat without feeling miserable was oatmeal and this peas and rice concoction I’d make. One day while visiting my dad, i described my symptoms to him and he said I should get my gallbladder checked. So next time I had a flare up, I immediately went to the ER and suggested it was my gallbladder. Sure enough, filled with gallstones. Unfortunately, they said I couldn’t get surgery for it that day since I needed a referral from my insurance for it to be approved?? Well two months later I went back in for the same problem and got the same tests ran. This time they approved the surgery because my white blood cell count was a little off. Turns out my gallbladder developed an infection and it had spread to my appendix as well. So got both of those removed. In those two months of waiting, I was eating barely ANYTHING. Lost 50 pounds and was losing my hair so that was fun.

[@KHTimeProtecter]

@@honeybunn4268 You have my sympathy. That sounds like you went through a horrible time and the doctors didn’t validate you at all. It also sounds like they were toeing the line of malpractice. If I ever get this and it comes down to it, I’m going to scream at them until they actually listen and do what needs to be done.

[@Jenna2k]

I wish you did. Then they'd actually care.

[@caittizz]

I broke my orbital bone (eye socket) in 5 places. In the ambulance and ER after I had passed out and fell on my face, I insisted I broke my face and repeatedly got laughed at and was told there was no way… hour later after my CT scan 8 doctors run in the room saying I was actually right and saying I could finally get some morphine

[@brookiebakerie]

Not cool! My husband had a ZMC fracture a couple years ago from slipping on ice and landing on his face. I said he broke his face and people thought I was exaggerating until I showed them pictures of the type of fracture it was. He literally broke his upper cheekbone off the rest of his skull, as well as fractures around his orbital bone. Truly. He broke his face.

[@Jenna2k]

Should have documented and sued. Make them actually be sorry and not just fake empathy so you don't sue.

[@elisabethgrencavage8714]

I went to an urgent care a couple weeks ago.I walked in said I thought I was having a heart attack.They were quick to get me back and doing tests.Then I was life flighted to the hospital where they put a stint in the right coronary artery.I was told I had a massive heart attack and was lucky I came in when I did. I got my hospital notes to do aflac claims and they said I was very pleasant and appreciative.to every dept I was in.I thanked them for saving my life. Oh they had given me morphine for the pain and the helicopter ride was so pretty at night. Just thought a good doctor experience was due here.

[@veralozada5210]

BPD I always thought there was something wrong with me (mentally). I did countless tests and read lots of articles online for years and I strongly believed I had Borderline Personality Disorder. I asked my psychologist at the time if he thought that could be possible. He laughed and said "just because your friend X has it, doesn't mean you have it too". I was 18. I was soon diagnosed with Major Depression and put on antidepressants. After years of taking pills I finally dared to ask, this time to my psychiatrist, about the possibility of me having BPD. he said yup. That's exactly what it is. That's what it's always been. Screw you, Martin. I was right.

[@carmeltabby]

When I was in college, I noticed that I was having pain while swallowing for a couple days. I was learning about lymph nodes in one of my courses and mine felt very swollen. Did some googling and shone a light in the back of my throat, saw some white lumps. All signs pointed to strep throat. The college was conveniently located right beside the hospital so I walked over and told the nurse at triage that I had checked online and I might have strep throat. This was a full decade ago so I don't remember if she actually rolled her eyes or her face just made it look like she was going to but she did not believe me at first. Turns out I had strep throat so they "quarantined" me away from the other patients in the waiting room by sitting me in a hallway where lots of people walked past my contagious ass. Hope no one else caught it.

[@phoebusapollo8365]

I think that when someone claims to have a super rare disease, doctors should be skeptical (as they should since there are like 50 diseases that share the same symptoms and websites give you answers ranging from ‘common cold’ to ‘cancer’), but should still take it seriously because that super unlikely chance is still a chance. It can prevent a lot of life-threatening diseases from propagating and making people’s lives a living hell. It shouldn’t be immediately dismissed.

[@mechadrake]

that cold allergy is rough. My wife loves the sea, but she had to take meds to get into cold water. Meds not always worked properly. but she got better, now she almost never gets reaction to cold.

[@Flutistno3]

Not the doctor, but the patient. I don't know how, but for some reason when I was very young, I thought I was anemic. This was early 90s, so the internet was still a small thing, so I don't know if I googled symptoms or what. I told my mother and she took me to the doctor, but the doctor didn't believe me and refused to test me. YEARS later, I'm 18, and I decide to join the military. In bootcamp, I was almost medically discharged for.... guess what? Anemia.

[@XFizzlepop-Berrytwist]

I get that doctors are overworked, understaffed, and they likely dont want to deal with seekers. But is there some reason they cant test/look for something suggested by a patient? Like there is no harm in testing, even if they are a seeker, if it comes back negative, you know. Even seekers can get sick as well.

[@Jordan-dy2dj]

The "am I going to die".....knowing if they closed there eyes they genuinely would not wake up again...

[@EthanDiiulio]

It blows my mind and is scary that there are doctors that completely disregard what the patient is saying. I’ve had 2 organ transplants and every thing I said was taken seriously. Feel horrible for everyone posting in this video

[@blueinsunlight]

I actually had one of those in reverse. Since I was like 11 years old, I’ve been experiencing horrible ear pressure and blockage along with vertigo, insomnia and migranes. After years of seeing doctors and being told nothing was wrong* I eventually stumbled across some post about Meinere’s Disease. I did some more research and sure enough, almost all of my symptoms matched up. So I went to yet another specialist and asked them about the specific condition. Understandably they were doubtful; how often do you think 15 year olds walk in there and claim they have some ultra rare disease because they looked it up on webMD? But I persisted and sure enough, that’s what it was. The diagnosis really doesn’t change much because there’s not a whole lot in the way of treatment, and there’s even less that we can afford, but it’s nice to at least have an answer. *why do doctors say that? like i get that they might not be able to FIND anything wrong but i’ve been in my body my whole entire life! this pain is not normal, ergo something is wrong. that’s not your call to make! argh.

[@beartrapcat]

I took my son to 4 different doctors begging them to do imaging. He had been having mild headaches and noticed his behavior and coordination was off. They kept saying it's bc he's a teenager or i was an over concerned mom... I pushed my doctor to do a mri. Turned out he has a brain and spinal cord malformation.

[@Fantasygod930]

Honestly the doctors and nurses on this video that deny and refuse to help their patients should never have that job and probably never have a job and if they did they should have a really shit one

[@datdabdoe1417]

So many doctors Think they're highly compassionate people with no prejudices, but the truth is they only give High-quality care to people they like looking at. Fat? Old? Under 18? Ugly? A Race they don't like? Prepare to get Lower quality care, Sometimes even Malpractice.

[@alexlibby5087]

I have Chiari’s malformation - when op talked about the type of headaches and how neck position relieved the pain i knew immediately. My twin has IIH and when they noticed i had the same symptoms after her diagnosis i got testing (12 yrs old) and that’s when they discovered it. Its so painful and causes a wide variety of symptoms

[@carmeltabby]

"Why am I in constant pain if I haven't eaten in 3 days and you say this is indigestion?" "How dare you ask me a valid question!?! We're not helping you." Excuse me!?!?! How does that make any sense!?!?!!?

[@car17yn71]

#1 - I was misdiagnosed at 18 months old by my doctor's partner. Told my mom I had a "summer cold" and to go home and do a steam bath. That didn't help. I got worse. Dad got home from work and Mom told him I needed to go back to the doctor. MY doctor was just closing up the office. Saw my parents bringing me, so he unlocked the door and ushered us into the first exam room. He put the stethoscope on my chest for less than 10 seconds. Took me off the exam table and literally RAN with me across the way to the ER. He told the nurse The first time he left the hospital after that (3 days later) the first thing he did was talk to his partner ... and told him to get out because he almost killed me. #2 - As a teenager and adult, I have gotten good at diagnosing "allergic" bronchitis. I technically have chronic bronchitis, but it is not bacterial or viral. I know the symptoms that I have with it. My current family doctor is now willing to do video visits for it. #3 - For the last 3 years, I can self-diagnose a small bowel obstruction (I have an ostomy and for a while, I was having obstructions every 3 months). When it happens, I am allowed to treat it at home unless I am vomiting x2. Then, I go to the ER and tell them I need a CT scan to confirm SBO so they can transfer me to the large university medical center. Usually, the person I am talking to is cool with me telling them what's going on and what I need. ONE TIME, the witch I was talking to got snotty and told me that the DOCTOR would decide what I needed. I told her that I am aware of that ... but ... the doctor is going to order a CT scan to confirm an SBO ... and the doctor will transfer me to the big hospital.

[@divinespark236]

I imagine it happens like all the time because people know what they themselves are going through better than anyone but most doctors probably try to work against whatever the person said even if they're right and despite proof just because they somehow think that if the patient said they think it's one thing, it must be SOMETHING TOTALLY DIFFERENT or else I'm not doing my job correctly am I? So many times have I seen people go to the doctor and simply list their symptoms to a weirdly smug doctor who proceeds to contradict the person and disbelieve or change the symptoms they described. It's like, "nope, no working with the patient. If I don't know better than them on every detail than how am I even the doctor?" It's nonsense that's probably lead to so many deaths. Sometimes it seems like once a doctor gets it in their head by mere whim that the person is wrong, they'll put all their energy into disproving that there's even anything wrong with them. Not to mention so many that think that there are no more medical ailments in 2022 and everyone MUST be coming to them just for drugs.

[@ashleyiskindacringe9604]

Had all the classic symptoms of borderline personality disorder since I was ?15? Went to my psychiatrist and said no teenager can have personality disorders (fair enough but if your symptoms are severe enough you can). Went to a different psychiatrist and got diagnosed at 17. -_-

[@APXWOX]

This is a funny one, so after I had gotten done eating a bowl of old pasta, a few hours after I began feeling symptoms in my lower stomach, where my appendix was I begged my parents to take me to the hospital but they said "You're just over exaggerating" a few hours of pain later they took me it turns out I had an inflammed appendix and if they didnt believe me I would've died

[@Jenna2k]

I hope you remind them daily.

[@panagea2007]

I told my doctor I thought I had an ulcer. He scoffed and said, "What makes you think it's an ulcer? I think it's your gall bladder." So he sent me for an ultrasound which turned out fine. When I told him he said, "Well, maybe you have an ulcer."

[@roowyrm9576]

I have made 2 self diagnoses which surprised my GP. 1. Fibromyalgia, thanks to a friend who was a nurse, who suggested it as a possibility, and pointed me towards online information - I followed up on all of this, gathered the information, and presented this to the doctor. I was sent straight to a specialist, who confirmed the diagnosis. 2. I had a major issue with continuous facial pain, which no painkillers coped with. I did some research, and visited my GP, I suggested that I had Trigeminal Neuralgia. He was rather sceptical, but after going through all symptoms etc, he agreed. I now get medication for this, without argument, each time it returns.

[@katie85705]

Here's something I try telling everybody. You know your body best, if you feel something is wrong and your Dr is dismissive find another Dr and keep looking till you have actual proof of a diagnosis that explains your symptoms. It is more common for women, minorities, elderly and LGBTQA+ to be dismissed, misdiagnosed and untreated. It is your right to change Dr's no matter the reason. Your relationship with your Dr should be one of trust and open communication because they literally hold your life in their hands. This goes for any medical professional both physical and mental. We all deserve to be treated humanely and to be given the best medical care available. Also look up how symptoms present in your demigraphic. For instance a heart attack presents differently in women than it does in men and so does a lot of mental disorders. A lot of tests, diagnosis' and medications were made with white cis/het men in mind. Thankfully that is starting to change but the medical community still has a lot of catching up to do. Just be your own and your children's best advocate, it could ultimately save your life or the lives of your children

[@arthurmartin4616]

Imagine writing a show, only to find out one of your episodes saved someone's life.

[@FuzzyLittlePanfurrs]

I’ve surprised my doctors by being able to diagnose myself correctly more than once. To which I was asked why I wasn’t a doctor…in truth I don’t like blood.

[@jamesrau100]

The "syrupy urine" is a sign of diabetes. You can actually taste the sugar in your urine (you're actually 'spilling sugar').

[@komos63]

Why would you taste it

[@jamesrau100]

@@komos63 I know it sounds distasteful, but this is how ancient doctors diagnosed diabetes; they would taste the patient's urine. If it was sweet/syrupy, then they knew what they were dealing with. Even today diabetics will taste (a drop on the tongue, that's all; they're not drinking it by the glassful) their urine as a quick and dirty test for sugar in the urine.

[@katieholt4356]

I have one. Last year I noticed a numbness in my left shoulder and it would move down my arm where it shifted to arm dropping pain. Several months later I noticed I had low energy, breathless, and it took all my energy to focus. I knew something was wrong with my blood just not what. More time went by and I was doing some work on my chicken coop and I couldn’t be in a six foot ladder without feeling faint. My mom took me to urgent care and got me an appointment with my primary doctor. For the rest of the day it felt like my heart was being squeezed. Legit thought I was going to die any moment. I told my relatives if they didn’t see my by 8 the next morning I died in my sleep. Anyways, the appointment rolls around and a blood panel was done it was discovered I was very low in iron. I still take iron from time to time, but the low-iron symptoms are gone.

[@JadeAislin]

My mother was positive I had diabetes when I wound up in the hospital at age six. Her mother had diabetes so she knew the signs. Hospital did a urine test that came back negative. She insisted they test again. This time they did a blood test. She was right.

[@BatteredRose]

I was denied a medical study because they were using an advanced mri and my brother accidentally shot me in the neck with a bb gun when I was like 5 or 6. When I got into a car accident at around 19 they took x-rays and was asking me what was in my neck. The doctor who checked my neck out when I was a kid said it hadn't gone into my neck and told my mom to give me junior strength Tylenol. The bb had gone into my neck and today it rests right beside my spine. I literally only got Tylenol for a gunshot wound. Lol. I remember when it happened, my head just fell over and I couldn't get it to lift back up, so I ran to my mom all floppy headed and screaming.

[@kees2906]

My wife used to work as a secretary in ER. A man handed her his ID, and answered "I think I'm having a heart attack" to the question "why are you here". He fell to the ground as she was pushing the emergency button : the one that tells the doctor to drop everything else and come to the front. The guy never woke up and she still mentions it sometimes, as it was the craziest thing that ever happened to her in 17y of ER, and her first encounter with death.

[@jtmarshall]

Basically how my uncle died at 45.. had his heart attack right in the lobby of the ER and passed away

[@quintecence]

I've done the walk into A&E with a wad of papers and tell them what tests to run.. I'm a Chemist and was exposed to a mercury (i) salt (chloride I think) and handed the MSDS sheet to the trainee doctor who just got her supervisor to deal with me..

[@datdabdoe1417]

Ah yes, The "Oopsie, workplace hazards" walk of shame.

[@charlesgene813]

I had a nurse at Barnes Jewish Hospital in STL try to tell me “you don’t have kidney stones” prolly bc I’m trans and was homeless at the time I was over it because I’ll never forget the time my mom tried to tell me it was constipation And going to the hospital in Florida when I used to live there a nurse came in and told me “don’t ever let someone tell you you don’t know your own body” bc I had them then and knew I had them now Anyway I snapped on the nurse because she was “teaching” medical students and being snarky I told her “I want a scan now and if I don’t get one and I’m right I’ll be suing this hospital” I was 20 at the time and alone About 40 minutes later I’m getting a scan sure as shit Bilateral kidney stones I asked her “how many?” She said “just a few nothing to be concerned about” with an attitude I then asked her “how big?” She said “no bigger than a pin head” like bitch Tell me my fucking diagnosis I asked her again “what are the sizes since you don’t know how many” she said “about 2mm” and I told her “you do realize that the ureter is only 2mm wide right and that a 3mm had me vomiting and doubled over in pain I would like ketoralac and flomax” Like fucking bitch probably thought I wanted narcotics when they don’t fuckin work for me and make me vomit And here I am now 24 with chronic kidney stones because they’re genetic as well and my father had them Had one that was 4mm and blocking my ureter and almost lost my right kidney and had to get a stent placed because when you’re poor and getting your life together they don’t want to do lithotripsy :)

[@tingzing5668]

Just... I want to send good vibes to you. I'm so sorry. Large kidney stones is the single most horrible pain I've ever felt. (Blows labor and abscess teeth out of the water) the experience truly changed my world view and made the world and existence in general a darker, scarier place. For a good year and a half afterwards, I genuinely felt that I would end things before I went through that again. (No longer feel that way) But the thought of having chronic kidney stones is unbearable. Idk- my heart goes out to you. The fear of that ever happening again will still wake me at night with a panic attack from time to time and it's been 6 years. I quit drinking soda completely, and drink alot of water because that just can't happen again. I sincerily hope you don't have to deal with that often-and may that shitty nurse get kidney stones once a year and require second opinions for the needed treatment every single time. ✌

[@livelongandprospermary8796]

I had a similar experience with a kidney infection (pain meds also don’t work on me and just make me nauseous if I’m lucky, usually vomit). I had been self medicating with urinary pain meds for a uti for like a month. That apparently wasn’t enough of a clue. They refused to run ANY tests saying it was IBS or constipation (at the time I usually only had a BM once a week. Fiber stops me up as soon as it hits my intestines. Low fiber and a lot of fruit and I’ll have “normal” BM patterns). Eventually they ran a blood test and I had 3 out of 4 markers for a severe kidney infection. The nurse was shaking while hooking up IV pain meds (which put me to sleep but did cause nausea) and IV antibiotics. The hard part is that this hospital owns like all of the hospitals in a 100 mile radius around my home town including the two closest to me (1 hr away for 1 of them and 30 min for the other)

[@Jenna2k]

Amazing how they care when money is involved.

[@gracev5288]

I tried to tell the doctor I had a sinus infection and likely an ear infection I was wrong. Both ears were infected and I had a sinus infection as well. That was not fun.

[@MrsShocoTaco]

"My doctor looked at me funny, then ran the test" ThAt's a doctor you want to keep

[@Alex-f7v8z]

Like five of these I knew within the first few sentences what it was. Then again I used to be a biomed student, but I was in genetics, not general medicine

[@Just_a_Goth]

Props to that husband who almost literally dragged his wife back to the hospital.

[@WiseWordsbyWiki]

"Life Style Choices" so op was fat and told to lose weight instead of the doctor taking op's concerns seriously. Yeah, there has actually been studies suggesting the reason some overweight people live shorter lives is not actually because of any weight issues, but because they are more likely to be dismissed by doctors and told to just lose weight. I think House even had an episode with the premise, with an extremely overweight man coming in comatose and them assuming it was due to his weight. Despite all his blood tests showing he is in fact healthy, just very fat. They also struggle to run any tests due to the machines not being able to deal with his size (in reality very few people would have to worry about a 450 pound weight limit, but medical devices assuming a certain shape can cause actually issues such as reporting high blood pressure when there isn't) The patient when awake refuses to do any tests for weight related issues becuase he has been fat for his entire life and it's never been an issue so check something else out fist. It was late-stage lung cancer, that was discovered by his clubbed fingers that had been dismissed as looking like they did due to his weight.

[@datdabdoe1417]

Yep. A Lot of Doctors do that all the time. Have crippling Nerve pain that Needs to be solved with Spinal Surgery? Pump the brakes there, We need to get you a Gastric Bypass that you'll likely never recover from first. That way None of your core will function! They don't like working with patients that arent in Peak Physical Condition.

[@kithralia7172]

I have a similar experience, I knew something was wrong with me health wise, I was told it was psychological. I got an MRi and that showed the previous brain damage from my birth which I was told was normal. Then blood tests lead to my doctor joking that it said I was dead, that'd he'd never seen blood like that in a living person. I stopped getting tests and never found out what was wrong, but I do have organ failure now. I can't walk anymore. I hope some doctors or future doctors see this and take people more seriously than what they have been taught. My friends son also died of cancer after a doctor told him me just had a headache. Doctors are not infallible nor are they people who care about anyone, or what's wrong with them. A doctor cares more about getting promotions by send people away quickly than actually finding the problem. What should you do in this situation? Demand tests. Research tests related to your symptoms and demand them. If I'd have got tests earlier I would have had many more treatment options.

[@9foxgrl15]

10:50 Took a guy to the hospital , since the facilty nurse didn't believe that it was HFM and misdiagnosed him with somekind of STD. Nope, It was HFM. Hah.

[@pullybungieharder]

Ow. Ow ow ow ow. I remember my motorcycle accident: Took three steps, realized "my leg does not bend that way!", look down, and yeah, my ankle was bent at an unfortunate ankle. Told the ambulance my vitals as they pulled up, rattled off the "oriented in 5 spheres" quesitions, and had choice words for the splint they wanted to use.

[@tyrellburt1967]

Imagine being allergic to the cold and living in Canada talk about bad luck 😂

[@squiggle.64]

i correctly self diagnosed myself with EDS, POTs, celiac disease, MCAS, autism, arfid and adhd after years of doctors telling me that i was faking all my symptoms and that i was lying about the awful pain i was in on a daily basis. after doing years of research my family and i (im a minor) had to use all of our money on private healthcare with specialists in those conditions who told me that i was correct and i very obviously had those conditions. i know more about my physical conditions than most doctors and i often have to explain what they are, having chronic illnesses that are not well known is extremely hard and the years of not being believed had given me some massive mental health issues, i want to make it my life mission that no one has to go through what i did

[@herpdyderpp]

After years of being brushed off as a persistent UTI, my best friend self diagnosed herself with IC and is now receiving treatments

[@twobats]

I was diagnosed with afib at 18. My dad, who had passed around 8 years prior, died due to a slew of heart-related conditions (mitral valve prolapse, afib, and the one that finished him off, hypertrophic cardiomyopathy.) Because of the long list of heart conditions and disease that runs in both sides of my family, but especially what killed my dad, she had me start seeing a cardiologist when I was 12. I've always had an irregular heartbeat -- it was just kinda something we dealt with, and something that didn't cause me much discomfort until I was in my early teens. I've had countless heart monitors, a few echos, and a stress test done over the course of 6 years, and I was _finally_ diagnosed with afib when I hit college. I immediately cut out caffeine from my diet almost entirely (I had been drinking 1 or 2 Triple Shot Starbucks energy drinks every other day, and had a few cups of coffee a day on top of that) and now, because of all of the abuse I put my heart through, I can't have a regular large iced coffee from Dunkin without having chest pains. Really wish I'd stopped sooner. Additionally, I've suspected that I have ADHD for a few years now. I'm seeking a diagnosis currently. I initially suspected I was on the Autism spectrum, but after looking into ADHD diagnostic criteria and approaching my mom with it, she eventually conceded that she suspected my father also had ADHD, and that she likely has ADHD, so I would have a very high chance of also having ADHD. I eventually circled back around to looking at the diagnostic criteria and lived experiences of Autistic people, and, as it turns out, ADHD and ASD have between a 50% and 70% comorbidity rate, so my initial theory of being Autistic might hold more water than I expected. Fingers crossed I find a therapist who takes me seriously.

[@danielsavage6494]

Well I told my er docs that I had a gal stone about the size of a golf ball, and was dealing with an attack for three days, they told me that it was nothing more than ulcers. I denied that, told them it's a gal stone. They sent me for an ultrasound and found I was correct. Down to the t. Didn't believe it, but still kind of put me on the or waiting list. After my surgery I was told it was the size of a golf ball and my gall bladder was twice the regular size.....

[@sweetstarrider3214]

I was getting an itchy red rash on my stomach and my HS nurse told me it was scabies. My mom took me the dr and I told them a nurse said I had scabies, so they gave me the lotion. It didn’t work. I was still getting the rash every year around winter time. About 10 yrs later I was on Web MD and I saw my winter symptoms were hives and then I figured out it was the cold that caused the hives. So I self diagnosed Cold Induced Urticaria. I started taking Zyrtec and avoiding going outside during the winter, as well as bundling up more when I had to go outside. Finally I ended up moving to Texas and my symptoms have almost completely disappeared. We have had a few really bad cold spells in the 19 years I’ve lived here and I’ve gotten the hives again. Confirms my diagnosis.

[@dalob112]

I know these Videos are frowned upon a lot by the Reddit community at large but I'd suggest linking the original Thread in the description, as a sign of Respect if you will, so people can give Upvotes or interact with the community there.

[@heartroll8719]

My dad before was mowing the backyard here. So, he got off the mower and pissed in a field and got a tick down there XD got it taken care of luckily

[@Melapoo]

Not a self diagnose, but my friend figured out what was wrong with me way before any doctor. I kept having chest pain and my arm would go numb. My doc did a heart monitor test that came back fine. She said it was just anxiety attacks. So the next few years I suffer through these anxiety attacks and talked about it with a friend who said it sounded like a galbladder attack. I have an attack that was so bad I went to urgent care. They did some blood work and sent me straight to the ER. Had emergency surgery to remove my galbladder. Doc said it was the most stones he had ever seen in a galbladder and I was very lucky my galbladder hadn't burst. No "panic attacks" since it was removed, so my friend was right!

[@jessicajayes8326]

I correctly diagnosed myself with a pinched nerve because my left arm kept falling asleep. I'm female so it wouldn't be a heart attack, but went to the doctor just in case. It was a pinched nerve. My nephew once had a bad stomachache on his side and my niece suspected appendicitis. Took him to hospital and big sister was right.

[@bigawesomewatermelon9511]

I had HFMD. I was twenty. Thankfully I went into an urgent care and said "I have hand foot and mouth, I work in a daycare." And the NP looked at my blisters and said "yup."

[@awdrifter3394]

24:43 I bet she's good at debugging software. That's some common symptoms and for a non-medical person to get it right is impressive.

[@SwiftKey_253]

2:55 i absolutely know that feeling, i ran down a road once and my shoe lace suddenly decided to get stuck on the other shoe. i fell and hit my head on the ground, i could not stand up, but wasnt in pain

[@emeraldcola9552]

Not to long ago, I started having a throbbing pain in my ear. When I was younger I would have chronic ear infections back to back to back, and this pain felt very familiar. I told my mom that I think I have an ear infection, she agreed and the next day when the pain got me crying and sobbing and rocking back and forth in my bed, we went to urgent care. at this point I had some some research and thought it was swimmers ear, but my mom, 2 urgent care docs, and one ER doc, all agreed it was NOT swimmers ear bc I hadn't been swimming in at least a month. Swimmers ear can make a lot of waxy fluid fill you ear which made a lot of the pressure a whole lot worse on top of the canal being swollen, but two of the docs prescribed me these expensive ear drops and told me to wait it out, and the third doc put a wick in. When ,in fact, the pain got worse with all three, we went to an ENT to see if there was anything else we could do. The ENT took one look at my ear, said I had swimmers ear, sucked out some of the liquid build up (which felt HEAVENLY) and put and anti swelling powder in there that would also keep my ear mostly dry. fast forward to the very next day (Today) and I have slept for the first time in half a week, and have not sobbed at all for now over 24 hours :)

[@ntellaS2]

most of my diseases were correctly self diagnosed before I got to the doctors because I wanted so badly to know what was wrong with me, except for ADHD I guess, I did consider it but my family convinced me I didn't have it, they thought I was autistic.

[@crazymetalheadgirl3685]

I actually have both.

[@user-ml3hl6vr4t]

The one about appendicitis, I worked nights, got off, made a breakfast about 3:30 am. Woke up nauseous and chucking 8:30, thought it to be too much snitched caramel roll. Three more hours of chucking, ONE tiny flicker of pain there. ER tell them I have acute appendicitis, and if I try to stand up straight I black out (made X-rays fun). The doctor runs tests and despite I can’t stand up and a normal breath makes me chuck to dry heaves, he said my white cell count was 11k. He didn’t think so but was going to send me to surgery. The very tip was red, surgeon estimated I had another 24-36 hours before it would have been “serious.” I had walked in and basically refused to leave was a major reason they didn’t send me home…

[@panic_to_not_try5884]

I have a story. When I was about 10 I came across this KZbinr with EDS and POTS (Ehlers Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome), and everyone of her symptoms matched mine. I did a bunch of research on it and went and told my mom. She did her own research and agreed. We went to a doctor who said she was a specialist, which looking back now she DEFINITELY was NOT. I only had 1 missing symptom from the WHOLE diagnostic paper, but she decided, EVEN THOUGH I meet the criteria for being diagnosed, she decided I was too young to have it (which is bs because you are born with it). 8 years later, after pursuing this diagnosis since that doctor, I meet an ACTUAL specialist, who basically said well no crap Sherlock, how the hell did she say you didn't have this? I finally got diagnosed after my problems got way worse that included many hospital trips. My problems were ignored for too long so unfortunately I have way more problems that could've been prevented if she would've listened.

[@nolongeramused8135]

Kidney stones are sort of unmistakable, particularly if you've had one previously.

[@fleurpouvior2967]

Am I the only one who only gets web MD results like 'common cold' and 'stress'?

[@anna-maymoon1001]

Story about a good doctor: Kept on getting dizzy when I stood up too quickly, often felt sick, changes in heat messed me up, all sorts of weird things. I thought it was probably something to do with ears. Referred to ENT and this gentleman had me do all sorts of exercises, including trying to tap his finger every time he moved it in the air. I was giggling to much to keep it up. Me: sorry this doesn't seem very scientific Him: its to test your depth perception and for me, its a test of character. I can tell you're a very determined girl. Now, my colleagues are going to show you the exercises to fix this... He also referred me to an MRI scan and said "it could still be a migraine, they do all sorts of weird and wonderful things." It came back clean and then covid hit, and with the wait time of NHS I don't really want to take that appointment away from someone else. It seems to have gone away so I think it's probably stress and low air-pressure related. (Turns out thunderstorms really mess with the human body)

[@escaramujo]

Another one, my husband was hiking (at work) and they drank of a stream (that was for drinking). A week later everybody that hiked that day was sick. My husband lost 7kg in 10 days. One evening he was unresponsive so I called an ambulance and they told me I had to hydrate him, but the ambulance was out of town so it was coming the next day. (😫) The next morning the ambulance still wasn't coming due to it being stuck out of town (still) so I called everyone I knew to help me bring him to the hospital. Finally, upon arriving, they put liquids in him. The doctor said it was gastro flu. He was hospitalized for 48h (because of the fluids) and went home. Three days later, and five more kg, he was again dehydrated (and very pissed). So upon arriving at ER, they put him into liquids again, and while we wait for a doctor to come check up on him, he googles his symptoms. The doctor arrives, says it has to be a bacterial infection and to make some poo analysis. My husband said: it is not bacterial, the symptoms don't match. They match with a giardia infestation. To which it led to a heavy discussion with the doctor, to which led to my husband being dispatched voluntarily, and us getting to the regular doctor of his. He told him: I have this symptoms, I drank from a stream X day in the mountain, and I think is giardia. The Dr: That would be an extremely rare thing. It has to be bacterial. My husband: I have all this coworkers with the same symptoms, hut those who didn't drank from the stream are ok. The timing also matches with giardia, and the inability to eat anything but still pooping. Dr said: Yeah... well, we don't loose anything for treating you for that. If your coworkers are being treated for bacterial, we'll see which treatment works better. Afterwards we learnt many of his coworkers were already being treated by that same doctor for baterial infection, and then got the giardia treatment after my husband was recovering very fast.

[@Killermouse29]

I got HFM when I was 14. Was literally crying hysterically because my hands and feet felt like they were on fire

[@Peril_Eyes]

Hand foot and mouth disease almost k!lled my daughter at around 8 months old. Spent a whole week carrying her siezing body into the 5 different emergency room's and 2 different doctor's offices on a maximum of what equates to 30 minutes of sleep each day crying thinking holding her alive for the last time before the 4th hospital recognized it was beyond their scope of familiarity and treatments and sent them to Baltimore-Washington Medical Center in Baltimore to save her. Poor thing was throwing up like she had a lifs threatening threatening concussion and was so dehydrated they couldn't find a freaking vein and they had to drill into her leg into the bone marrow to get her stable. I almost collapsed listening to the drill start as she lays helpless and screaming on the table. If not for the 1 time her dad did the right thing and caught me before I hit the floor and restrained me from attacking them i might not have her. Children's Hospital in Washington DC failed us the worst I had spent that whole week curating my daughter's medical records of how everything played out between the ER visits doctors and the house which was probably the most lifesaving account because nobody else took ran tests all they did was take the pictures I had and other meticulously detailed records that I had documented instead we set in the emergency room in a treatment room as I replayed the account of everything that happened that we can show them all the paperwork I had and listening to doctors and nurses tell me that I've never seen a case of severe in their careers. Mercy General in Baltimore was the hospital that realized it was out of their hands and they immediately set her by ambulance to Baltimore Washington Medical Center where they fought to keep her alive until July 4th when we released and she was happy and healthy. I have inexplicably severe PTSD from that week and I'm crying as I type this because I would never wish that on any parents. It started off as a little red dot that looked like a spider bite and escalated to a rush taking up 2/3 of her body. She has two Moon shaped circles on her legs the inner thigh where they had to drill twice and I have two tattoos on my legs and similar spots looking like that simply to remind myself never to trust anyone when it comes to my child and keeping her alive. That was the worst week of my life.

[@elisabethgrencavage8714]

I went to the ER after a weekend of vomitting fever severe pain lower right abdomen and having a bloody stool.Told them I think it's appendicitis .I was asked where I went to medical school and I probably just pregnant in front of my vasectomed husband.Said that over and over in front of him.The finally put me in a bed way in the back and left me for 8 hrs.Then they decided to give an internal exam and my appendix burst.The test came back appendicitis. Im glad and lucky my husband is the man he is or they would have been stitching up a lot more.

[@blackarosskir]

i'm in my mid 20' and i've already had 8 severe cases of pneumonia throughout my life and a few mild ones and after 4th case i could diagnose myself because it always felt the same so i went to my doc and was like "hey, i think i have pneumonia again" and she was like "you can't know that, we need an xray"...turns out i was right and every time after that too also another story i have is that i was always a bigger child and could never lose weight but when i was in highschool i gained like 20kg (44pounds) in less than 5 weeks despite having no changes in life and majority of women in my family (both sides) have hypothyroidism so i went to a specialist and wanted to be tested but since i was a teenager and overweight they dismissed me saying "you should just eat less" not knowing that i was actually eating healthy and in normal portions so i went to two more endocrinologists and they had the same reaction...five years later i was having problems with digesting (sometimes it causes me severe stomach ache or i feel like throwing up), i was always feeling exhausted and my hair was falling out and leaving almost bald spots so i managed to persuade one endoc. to finally run the tests and not only i do have hypothyroidism but they also find out i have insuline resistence and the high insuline doses in my blood caused the problems, plus the stomach pain was not from digestion per se but from pancreas "working overtime"...i literally had to go around annoying doctors for 5 years to finally get diagnosis (plus a bonus one)

[@ryandavis5475]

I did the same for myself. I was putting a new roof on my house and wearing these cheap knee pads that use elastic straps behind the legs. When I bent my knee the straps slid behind the knee joint. After doing this for several hours I stood up and my feet were unable to control my body. The legs worked fine, but it was like I was tripping uncontrollably over nothing (thankfully not near the edge. Went to work later with a cane and light shoes. I couldn't control how my toes came down after each step; the just dropped. After some googling I found that I had developed Coming Perineal Nerve Dysfunction. The straps of my knee pads had pinched the Coming Perineal Nerve that runs behind the joint. Took 3-4 weeks to heal up. Later I went to the doctor for something unrelated and brought it up. To make sure I had it right he asked, "was it like walking around in clown shoes?" I just smiled and said, "Yup."

[@eelboy]

i had a little collision with another kid on the playground and we were in a rush to go to new york by bus. so i stood up, nothing hurt or anything, but the thing is, i was absolutely sobbing, i think i was in shock. but when i stood up something else was wrong, i couldn’t bend my leg or straighten it. it was just stuck and it felt like something was sort of keeping it from moving. so i spent a couple hours in a bus, the person next to me actually had an ice pack (no idea why) so that was nice. we get there, nothing changed with my knee. we spend two days in new york, nothing changes with my knee. i was just limping around new york for my sisters birthday. we get back, nothing changes. we go to the doctors, get a couple X-rays, oh no! they said my kneecap broke :,). they come back, say oopsies, nvm u just have a super rly bad sprain 🙂. i get a brace, crutches for a couple weeks, brace for a couple more, and now im all good :) both my knees still suck tho

[@impishrebel5969]

The VERY first one with the CSF leak is very common. "Didn't see anything wrong/no trauma so sent them home." Except you have to do something specific in order to see if there's any leakage on those scans. And people with Ehlers-Danlos Syndrome can spontaneously develop them because of the tissue disorder. If she had tested the fluid on some white toilet paper, there's a very telling pattern as the fluid separates that you don't get with mucus. I wonder if she had EDS but hadn't been diagnosed (also very common.) My dad died of CSF leaks.

[@andymirror6080]

Just found out I have a deviated septum from this video lol always wondered why I had migraines and couldn’t smell in one nostril

[@transsnack]

I'm pretty sure I have benign paroxysmal positional vertigo. It isn't a persistent condition, so it's really hard to get diagnosed with, and I can't afford to go to the doctor to check. I have the hallmark symptoms of dizziness when I tilt my head back, when I sit or stand up too fast, and when I look from one side to another quickly. It's going good right now, but it will flare back up again eventually.

[@brookiebakerie]

Holy crap. Do you get dizzy when you look behind you to back up your car??? I'm looking up whatever you wrote above.