Epilepsy Warrior | Adele Hauwai | TEDxRuakura

[@kathrynerling9304]

From one epileptic to another THANK YOU FOR YOUR BRAVERY!! ❤

[@Theboy1798]

I absolutely love your story Adele!! I started having seizures in 2018 and I felt like my life was over. But today with support of my friends and family, and medication, I am seizure free. Next step is to get my drivers license.

[@lestertaulbee9266]

Your speech made me cry like a baby. I've been battling this demon for over 20 years. I've had 2 right temporal lobectomy surgeries, I have a VNS implant, take 3 different meds every day and still have seizures, just not as often as I was at one time. I would have up to 11 per day at 1 point. It's been a battle but they're more controlled now. Thank you for your great testimony. God bless you.

[@chanabayla1823]

As an epileptic myself and a volunteer for the epilepsy foundation..thank you..

[@tonydelariva7163]

Thank you so much for your inspiring video. You have truly given me hope. I'm 63 and I've had uncontrolled seizures off and on, mostly uncontrolled, all my life. On 8/31 I meet with a specialist to discuss another surgery, this time Deep Brain stimulation. I hope and pray my outcome is as successful as yours. And may you continue to have a seizure-free life.

[@epilepsyqueensland5097]

Well done Adele. Thank you for your bravery in sharing your story. It's so important to raise awareness of epilepsy.

[@treytwey5366]

Thanks so much for this video. Glad I found it when I did. 3:20 definitely understood where those emotions about stress and just about how being on stage being is very stressful. I'm a software developer and it's definitely frustrating when you have those days where you can't finish work. You can't focus on anything, cause you're having those Auras. They can really take it out of you. Cried like a baby cause we're just trying to make cool work, but I have to take a step back and realize even though I want to push myself, I still have limitations. Work has always been understanding when I can't continue work, but doesn't mean I don't want to push myself to make cool things

[@tonydelariva7163]

I'm 63 now, and retired. But I can truly relate to your story. All my working life, my seizures have interfered with work; having seizures at work, losing good jobs because of szs., having bosses follow me into the restroom in case I had a sz., etc. What I could have accomplished were it not for constantly battling the seizures.

[@kathrynerling9304]

I needed to hear this story as someone who is trying to get pregnant on epilepsy meds. Everything you said was SPOT ON about the pure teeror and fear we do feel bringing a child into this world.

[@dfpkeogh]

I think that all of us who have epilepsy very much appreciate her speech. I'm 56 and and first had surgery in 1981. It returned : ( and could not be controlled with meds so back to the surgery table in 2007. Seizure free. I do think that one element of the condition that is not addressed is the psychological and emotional impact. In particular the impact on younger people and what happens emotionally on being diagnosed. I was 15. A very difficult time.

[@angelineo7424]

Well done! Indeed, let us walk by faith and not by sight.

[@haydoslifeadventures8583]

Excellent speech Adele. Thank you for epilepsy out there into the community and sharing your story, Kapai !!

[@littlesarahautism9787]

My little is 5 years old she is has autism and is nonverbal She had her first Seizure :( :( thank God it happened at home. As a Mom you beat yourself up like crazy trying to figure out what did you do wrong and what can you do right to fix it when in reality you're not in control but you really wish you were so you can make your child better. This video made me cry Thank you for sharing I learn so much and have a much better understanding ..

[@brianschroeter2105]

I've been hospitalized so much that A/E staff knows me so good they say you again Brian

[@stephenyuresti1405]

Thank you for sharing your Story. your, my hero and warrior

[@mikebasil4832]

Thank you, Adele, for opening our minds and our hearts to so much importance about epilepsy.

[@juliana290877]

Wonderful speech!

[@washingtonsmythe2]

Excellent speech.

[@nickycotton6137]

This was so well done/explained. Thanks... My own have been 99.9% Nocturnal or Absent! That wandering about @ night is so disturbing after the Nocturnal ones.

[@the1andonlykk320]

I have temporal lobe epilepsy, went undiagnosed for 27 years and my profession is welding which I had to step away from because I was sick on a Daily basis

[@CreatorChetana]

From the age of 10 till now 23 age i am fighting with epilepsy .. 😢

[@lindaibarra384]

MY SON DIED IN THE SHOWER 🚿 HE HAD A SEIZURE 😢😢HE HAD EPILEPSY 😢😢 I SAW HIS FACE WITH EVERY SINGLE INJURIES AFTER FALLING ANYWHERE . HE HAD GRAND MAL SEIZURES I MISS HIM EVERY DAY HIS BIRTHDAY IS ON 4 6 2023 THURSDAY ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

[@robzee5038]

Amen ! Thank you for sharing ❤️

[@brianschroeter2105]

I see why people believe one is taken over by spirit because one has no control of what is happening and one has to be mentally strong

[@neilbeni7744]

❤❤❤❤❤❤❤

[@davidgallegos6925]

High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. Ever since I've kept track of humidity and atmospheric pressure my amount of seizures has decreased. Get a dehumidifier and try it out. Sensitivity towards high humidity and low atmospheric pressure cause it. Thats why countries with high humidity such as UK and Pakistan have the highest amount of Epilepsy.

[@brianschroeter2105]

Not being able to get up one can just look,i have watched my foot shake and move to My hand and then to my head is not easy to experience and you can only watch it

[@brianschroeter2105]

Can epilepsy cause one to hallucinate during sleep.?I just woke you a few minutes ago shouting for help from my brother, we have no current in the house and in my room is very hot but I have to cover up in my sheet because of mosquitoes in my room.i want to know if it is seizures related

[@brianschroeter2105]

On the 17th of las t month I had seizures in my room I was found under my sheet choking and gurgling in my sleep underneath the sheet and sweating

[@jedheart8059]

❤

[@brianschroeter2105]

I've had most of my seizures in my sleep i wonder why

[@brianschroeter2105]

Living with epilepsy is very hard

[@brianschroeter2105]

Can going to sleep late affect my sleep?

[@moanahapeta3656]

Mean korero cousin!

[@anamikapandey6151]

Can anyone write her speech because of her accent I am able to understand

[@divyanshuji6879]

Use subtitles

[@brianschroeter2105]

Does marijuana negatively effect my seizures

[@universerebel3638]

Obesity doesn't help

[@bobbiecaress4736]

None can dial 911.. dancing mind readers tortures