Hospice nurses PENNY AND JULIE Q&A

[@Lorene-Register]

My husband passed away 1/22 under Hospice care. I am now a Hospice volunteer and find such comfort from doing what I do there. Hospice staff are angels on Earth, thank you for what you do!

[@katymcginn4644]

❤ GOD BLESS YOU LORENE ❤

[@carolegeddes998]

Dear gentle, practical ladies, thank you for all you do. ❤️⚘️ Yes, please, let's normalize the death and dying process.

[@Kelsi_92]

My dad was in decline for 2 years and I quit my career 2 years ago to be his caregiver. He suffered in emense pain. It was very sad. He passed away this past Saturday March 4th. He was on hospice the last 2 n a half months. His hospice diagnosis was parkinsons. There were so many things along with the disease other then the rigidity and shaking. His voice was very low and at the end couldn't speak. Also issues swallowing and developed aspirating pmuemonia we had to use the thickener in his drinks because every time he swallowed it went into his lungs. His last month he had no appetite and the last week no eating or drinking and then the last couple days he was almost in a coma like state. Being there for him was the best thing I feel like I accomplished in my life and the most rewarding. I've watched you for awhile now and wondered how he would be at the end and many of the things you talk about occurred in his last week of life. It surprised me watching your videos and watching him go thru it. Thank you for your education and trying to spread awareness.

[@coachwoods]

This very same thing happened to my Mom. She had sooo many things going on just like your dad. I’m so glad I found these ladies during Mom’s decline.

[@Kelsi_92]

@@coachwoods same i always wanted to know everything that was going on with him and what ti expect so I could take the best care of him possibly..its so hard to lose a loved one especially a parent..I was just saying the other day even tho I had 30 years with my dad it still doesn't feel like enough wish I could of had alot more

[@crystalinabacteria3430]

I'm going through exactly same with my dad. He's still alive but he's started to go off his food now. I want to know what to expect ❤glad you were there for your dad I bet he was so proud of you❤

[@Kelsi_92]

@@crystalinabacteria3430 my dad was my best friend my whole life we were always super close..its still hard to believe he's gone..cherish the time yu have left with your dad..I know what your going thru its not easy to see someone decline like that

[@Andijt]

It's refreshing to hear two people NOT constantly interrupting each other.

[@hospicenursejulie]

Hahahahha… thank you!!! @hospicenursepenny

[@karenallan6461]

My partner passed in hospice, ge was on peritoneal dialysis , then diagnosed with pancreatic cancer that had moved to his liver, also diabetic. He made the choice to go off dialysis 3 days before we went to hospice, here in 🇨🇦. It was the most peaceful passing ever. I've worked in palliative and hospice my whole career. I was able to stay in his room for the whole week before he passed, we were holding hands, he never let go till the moment he passed

[@katymcginn4644]

❤ GOD BLESS YOU KAREN FOR TAKING CARE OF YOUR BELOVED PARTNER ❤ ALSO FOR BEING A DEVOTED HOSPICE PROVIDER. YOU ARE AN "EARTH ANGEL" THANK YOU FOR HELPING ALL THE OTHER BEAUTIFUL SOULS YOU ALSO HELPED IN THEIR TIME 🙏 🙏❤ SENDING YOU LOVE & HUGS XOXO ❤

[@philtoro9199]

Sending you love and prayers for comfort. 💖

[@GetzenLover]

I was told by my Grandfather to always remember you are born to die. He told my sister and me from about age 3 for me and 5 for my sister. We still talk about it and neither of us are afraid of death. I thought it was a horrid thing when I was a kid but years later we finally understood. I love your new space!

[@zoiefinnian3540]

Interesting Susan! My grandpa was very much the same with me as a child. He was always very honest and Frank about death and would tell me the older ways of preparing a body in the home, and how someone would sit up with the body at night. I was really super curious about everything about it!!

[@GetzenLover]

@@zoiefinnian3540 I remember those conversations as well. Especially over night in case the body sat up.

[@zoiefinnian3540]

@@GetzenLover yes!! I was so intrigued. My grandpa told me they were strapped down:/ I know that much of it was pulling my leg. Then I can’t tell you how many funerals they must’ve dragged me to.. every relative, friend, cousin, or so-n-so from church in South Georgia who decided their time was done. I thought all would be fine, as long as my grandparents never died. Guess what? They did, in ‘93 and ‘94. To my surprise, I didn’t die like I thought I would.

[@kikiann2268]

You don’t have to be afraid of death if you accept Jesus as your Lord and Savior. Your last breath here will be your first breath in Heaven. He is the resurrection and the life.

[@tieiatalks]

Love that you two are doing these videos together!

[@earthgirl3434]

"Normalize death." I'm with you. Thanks for being here. 💙

[@tammywinters4822]

A million thumbs up for you ladies!

[@deedeemooreco.2304]

My dad’s always said “nobody gets out of here alive”. Trick is don’t say it at a gathering too loud lol. Now he’s in his 90’s and my mom died 2 years ago. We thought he’d die of a broken heart as they were married almost 70 years, but he’s hanging in there. No matter how you prepare, no matter how you think you’ll handle it, losing a loved one always floors you. We learned a lot from the hospice nurse that came for my sister before she passed in 1999.

[@julesv22]

I think it’s really important to let people know hospice will not be by your side 24/7 if you choose to do it at home for your loved one. I don’t think that is often approved. I could not have kept up with turning my mom every two hours to prevent bedsores, and the constant secretions that needed to be suctioned from her trach. She chose inpatient hospice and I’m so glad she did. I know she did that for my sisters and me. That way we could focus on just spending time with her and a nurse was always there when we needed one.

[@adoxartist1258]

Thank you for saying this. I was unclear about how much or how little a hospice nurse would be there in a person's home. Another question I have: can a patient-approved family member/rotating shift of family members stay with the hospice patient in a facility 24 hours a day? I'm sorry for your loss but very glad your mom was well cared for. Thank you for sharing this information.

[@julesv22]

@@adoxartist1258 you are welcome! My mother was inpatient hospice with Vitas Hospice at Baylor hospital in Fort Worth and we were allowed two people at any given time and you could stay all night. It will depend on the facility and their rules. I was very happy with Vitas and the grief support groups they offered as well. I found it very helpful, especially the first year after her death on her birthday and on Christmas.

[@adoxartist1258]

@@julesv22 Wonderful! Thank you! I'm glad they were so helpful for you and your family long term. 💛

[@whitneysmith6752]

I totally agree that hospice is the answer - the only problem is whether in a care facility or at home Medicare only pays for 2 weeks. So if you don’t have the money to carry additional private insurance hospice (24/7) starts at 400 PER DAY. I don’t know what those add policies cost per month in insurance but now that I realize this cost as my father was about to go on hospice with medical and it’s like well you better die in 2 weeks. Or good luck coming up with the money.

[@msmoe8687]

😯😯 my fav hospice ladies together?!?! How did I not see this until now?

[@mamalovesthebeach437]

I'm in Northern CA. My mom had dementia and a very harsh open wound from squamous cell carcinoma. Hospice angels came in to help us care for mom in the last couple of months of her life (12/2020). I cannot express my love and gratitude enough in how loving, supportive and caring they were with my mom, stepdad and my sister and me. The truly were a God-send. Thank you both for all you do for patients and their families. Your NC retreat sounds wonderful!

[@lorettagarcia212]

I care for 98 yo parents, both with vascular dementia. The conversations on dying are no longer possible, but we had many conversations when a friend was dying. She waa a real diva who loved planning her funeral, and it opened up the conversation with my parents in a natural and even fun way.

[@katymcginn4644]

❤😊❤

[@jeanniewilson2201]

I'm 73. my 48 yr.old daughter died inpatient hospice in April. She was end stage liver disease.shecalso had kidney disease, type2 diabetes, congestive heart disease, sleep apnea and pneumonia. She knew she was dying, we planned her funeral together and she died that same week in her sleep, a quiet peaceful death. I had closedy eyes for about 5 minutes and opened them to check on her, she was not breathing so I called the nurse in, she couldn't find a heart beat. She was gone. I could tell her spirit had left her body. I felt peace and numbness. You have helped me so much. Previous to Covid I was a hospice volunteer for 3 yrs. so I knew what was happening. I felt that I was on holy ground in her room. My faith walked me through 2 and a half yrs. of this disease that she suffered through.. I was with her til the end.

[@aprilholton1150]

I experienced Hospice nurses when my dad was dying of cancer many years ago. They were wonderful with us and very knowledgeable! We saw a gruff amazing man become a shell of his previous self. It has been over ten years now and the end is still so vivid. I remember the whole family there, we took turns going into the family room to say good-bye. Then when my younger brother did this we were in the other room grieving for their relationship which was incredibly close. I remember my mother standing by the couch telling Dad he can go now, it is okay to leave us now................oh, the tears!! He did go right after that. The next day we all had swollen eyes from crying so much, I went to the store to get those soothing patches to help everyone. I have never seen a funeral so full of hundreds of people paying respect to him! He may have been gruff at times but wow was he loved!! Will always miss him. God bless anyone going through that now

[@JohnGalt1960]

I love Hospice. Ill be using them myself when the time comes. My Dad had Hospice back in 1993. Love them!

[@marissashelley2362]

The moment we take our first breath, we start our journey of taking our last. ❤

[@trilabradorable]

My husband passed from a glioblastoma. I wouldn’t have made it through if it wasn’t for hospice nurses. I’m the end my husband was very agitated, especially with me. A dear hospice nurse explained to me that they’re always the worst with the one they love the most. ❤

[@katymcginn4644]

❤ DIANE, I'M SO SORRY FOR YOUR LOSS 😢

[@cindyhalpern3187]

We are Jewish. The Hospice Chaplain was very familiar with Hebrew and Judaism. He was a Pastor, but he did prayers of healing with us. And he worked with our Rabbi to meet Mom's spiritual needs. He was a good part of the team!

[@tammyhilton1897]

Hospice nurses are angels sent to us from God. Love you girls. 😇❣️😇

[@Jomama02]

Thank you so much for answering my question in this live. It was something that I would have never thought about happening. It did put my mind at ease....

[@HEART2HEART-3]

Lost my mum, my brother to alcohol dependency. Lost my first husband to alcohol and drug dependency. Lost my friend to Heroin overdose. In the Bible, (I'm not religious but it tells us in different ways), that we basically bow down to little god's. These would be dependencies. We give our Divinity to what controls us. So I see drugs and alcohol, along with other addictions that do harm, as spiritual sickness. We can have outward symptoms as humans. Things that we can see. The things we can't see, the ones that control us, are no different to having physical illness. Just it's spiritual illness. This helped me to understand mum's battle spiritually with the illness she had. My mum WASN'T that ILLNESS. It changes how we see. Not everything is physical. It's seeing with our spiritual eyes. Hope that's a help to someone. Love and light to all ✨💛✨🤗

[@carolkingsafer9728]

We are spiritual beings having a Human experience going back to spiritual beings 🙏🙏🙏💖 You ladies ROCK bringing Knowledge to humanity and relieving fear 🙏🙏🙏🙏 Blessings for your dedication 🙏💖

[@barbaraannbreenmodsquad1874]

JULIE, THANKYOU FOR HOSPICE NURCE PENNY AND YOUR LIVESTREAM! I MISSED THE LIVESTREAM BUT JUST WATCHED IT AND ONCE AGAIN I LEARNED SO MUCH MUCH FROM YOU! MY PARENTS ARE 88 & 91. ONE HAS DEMENTIA AND ONE HAS ALZIEMERS. SAYING THAT IT IS TOUGH IS AN UNDERSTATEMENT! AS A CAREGIVER YOU NEED TO BE "MADE OF PURE PATIENCE", AND REALIZE THAT THEY HAVE NO CLUE WHAT IS GOING ON! BUT WHAT I LEARNED TONIGHT WAS BOTH GOOD AND NOT SO GOOD. BUT I LOVE YOUR TRANSPARENCY BECAUSE THAT'S VERY IMPORTANT! IT'S NOT A ONE PERSON DISEASE BUT A FAMILY DISEASE. 100% TRUTH! MANY BLESSINGS 🙌

[@marlenemcmillan8891]

The dying part is fine but us that are left behind miss them soo much we actually feel like dying...Our hearts are so.broken.

[@ИгорьИжщенков]

You’re 100% correct. My 89 year old father died on June 5th after struggling with Parkinson’s and dementia and I feel like I’m immersed in a nightmare that began as his decline became worse leading to his slow drawn out death up to now, two months after his death. Every time I go to bed I sincerely wish I wouldn’t wake up the next day.

[@Peter-jo6yu]

@@ИгорьИжщенков Maybe he is not completely gone. I recommend believing in afterlife, if only for your peace of mind

[@amyfultz8919]

Love you two! LPN from Pennsylvania

[@lynntravels]

My grandmother is in her late 80s, I feel that her time is nearing, I'm not sure when that will be. She was in a care home for recovery of a mild stroke. She kept talking about Pop (her husband and my grandfather who passed away in 2017) and said that he was with her in the room. She insisted that I was in highschool ( I'm 41) and I agreed with her but at the same time we were talking about my kids. I'm mentally preparing myself because I feel that the process of dying maybe starting whether it is a week or months away I do not know.

[@katymcginn4644]

❤ GOD BLESS YOUR GRANDMA. SHE IS NOT ALONE SWEETIE. ISN'T THAT A BEAUTIFUL THOUGHT ❤ PLEASE TAKE CARE & STAY BLESSED 🙏❤

[@leti-o]

Hey guys I'm so glad you guys are doing this together I'm so excited 😊

[@teresaboerger3091]

I wish I would have found you before my parents died, I would have said souch more to them. My mom when so fast We didn't have much time. My Dad lasted 3 days and I was able to say everything I needed to. Thank you so much for your service to the living and the dying

[@kennethdingler9026]

I would love to be a thorn between those two roses !!!❣️💕😍😍😍

[@TallulahBelle3276]

Thank you, Julie & Penny! 🙏🏽💝✨🌍✨💝🙏🏽

[@CherylMcClain-x3z]

I really want to be a Hospice nurse, I’m in a VERY rural area, I’m afraid of the driving I’d end up doing. Thanks for sharing your videos!

[@evelyn7881]

How cool!! My two favorite Hospice nurses together in one place! Awesome. 🏥

[@LauraMarieLive]

I emailed you both separately. Thanks for another great live.

[@lisastarling6944]

Loved this live. I appreciate all you do in educating people. I've been through hospice with both my parents and now on the journey with my mother in law (who has dementia).

[@pwhorselover]

Thank you guys for addressing questions.

[@EricBailey-h6h]

I was diagnosed with dementia about one year ago. Was in a bad car accident in 1994. Ejected from my truck. In a coma close to four months. God willing I made a remarkable recovery. This dementia has got me scared, only 49 years old and have no idea what to expect from it.

[@freddygray8058]

Hi ladies. You are both angels.

[@janestuart4404]

Hi Julie and Penny, glad I found you, you’ve answered so many of my questions. I am coming to the last part of my journey. I am signed up for the MAID program in Canada. My decision is now to die at home or in the Hospice facility. I’m really at the mindset to die without my family at the hospice. Any answers ??

[@EyesOnIlia]

You're an amazing person; as a current hospice patient/medically retiring engineer, you've helped me a lot to accept it...I finally signed up for it because of you and Nurse Penny, I follow both of you!! You both have great hair, souls and faces of angels, by the way! It would be super cool if you got a color stripe in your hair too, haha, or perhaps a purple or blue clip in color hair swatch when you and Penny do collaborations!! I may have an MS in Engineering, but I clip in magenta hair stripes every once in a while... so fun! #41ButIStillGoToClaires

[@NormanChester882]

God bless you both for your work to comfort people

[@dawnmontoya4444]

Since I started watching your videos, I have talked to my family all the time about my wishes. So randomly, I just blurted out about what I want them to do if I get dementia. If I think I was a Rockett, I want them to go with it. If I think I'm married to a movie star, go with it. I don't have any desire to know my hubby or parents have passed. What are your thoughts?

[@idahopreps4242]

Everyone needs the friend who will pluck their chin hairs :)

[@mariaalexander9235]

I love you guys you're really letting people know what death is like which they need to know because so many people are scared of it and you explain it so beautifully and it's part of life we are all going to die and I just love hearing you and listening to you don't ever stop

[@adrianaduran7577]

Love y'all. Thank you

[@krisrobinson5919]

I love You ladies...💛💛

[@annieb4728]

My MIL is in hospice with Alzheimer’s and has a brain aneurysm. She recently broke a molar due to her teeth being in awful condition. She didn’t take care of them for years. What do I do? The NP in the memory care center ordered a dental evaluation. I asked how am supposed to take care of this? I told them to contact hospice concerning this. She is in pain. Advice?

[@catie5939]

Commenting to bump this for the algorithm. So sorry about your MIL, my mom was a hospice nurse and it's such important work. 💜

[@naomiemoore5725]

If in pain your hospice team ought to give her something to tide her over and make arrangements for her to be seen by someone. I went through this too and the hospice team made arrangements for transportation and everything. I met them at the the location (which was local so not a big deal), took care of her and then took her back home. I was really grateful. We had many discussions before our parents were old and infirm and both sets of parents had their wills and trusts in place with specific instructions to follow when the time came. It was relatively easy as it was all taken care of and allowed us to enjoy, if one wants to use this term, till the very end and when they did pass there was no guessing, we carried out their wishes. On my side, my brother still has possession of our parents cremated remains. They are to be scattered at sea but he can't do it yet. Our parents have been gone for several decades so I don't know what he is waiting for. But, I don't push. The time will come.

[@dawnmontoya4444]

Either of you have the answer?

[@annieb4728]

I found out her hospice nurse left the company yesterday. My MIL has broken many bones through the years and has terrible osteoporosis . Her pain has been managed quite well until this new issue. She has been stable for the last two months after her awful dip in her disease where we thought she was going to die. Now her teeth are the new issue. Do you treat the tooth and swollen area or let them rot and and give pain meds to manage.

[@monicaperez2843]

Volunteered at Hospice and I had a patient with this exact same problem. The patient was suffering despite pain meds. Asked the nurse and she said they wanted to send a dentist to the bedside but the family did not want to pay for it. The upshot? The bad teeth should be pulled if they are causing the patient pain.

[@HEART2HEART-3]

The body can only dies when it lets go of its spirit. The Spirit,(who we truly are), leaves and then the body will die fully. We can experience dieing, but at the point of death, the spirit is out of body. It is my belief that an eternal being can not actually know death, except seeing it through others. This I've come to understand having had an NDE in my shower, almost dieing experience and from listening to hundreds of NDEs since it happened in 2017. Hope that's a comfort. Peace to all ✨💛✨🤗

[@kikiann2268]

Yes we are body, soul and spirit. For a born again Christian our last breath here is our first breath in Heaven. My son passed from brain cancer and experienced the very peacefully death he experienced. I felt the presence of God in my home. I have no fear of death. I can’t wait to be with Jesus.

[@monicaperez2843]

I agree 100 percent!

[@jogirl837]

Yes! The lack of treatment options to get on hospice is a HUGE reason we waited so long to get on hospice. My mother in law has multi-focal glioblastoma & was on Optune until an emergency visit to the hospital. We thought she was going to die in the hospital, but improved enough to come home on hospice. Then she started to improve enough that her husband thought about getting her back on treatments & off of hospice until she had multiple seizures & declined again. 😢

[@pleun315]

Instant happy energy 😍😍😍 mwaaaah 💋

[@dar7230]

you are wonderful caregivers

[@tammyaylward4013]

I love listening to you both ♥️ I’m a Geriatric Nurse for the last 30 yrs. Now I’m looking into the end of life Doula. Any thoughts?

[@deborahdavis6998]

10:15 My husband had Alzheimer's and died of MDS BUT sometime before that he got cancer just before retirement and got in remission. The point here is financial: we put on our "$ needs to retire" list - all the after-death expenses met and pre-pay stuff. We missed a big one: assisted living care ... I have a long-term care policy but he could not. So, in the end, all the 401k went for his care. He only qualified for Hospice the week he was dying and he was accepted on the day he died in the hospital. Mom was in hospice, great care. I worked as volunteer -recall covering desk during evening shift change - after he died. I am interested that I saw reference to anticipatory grief. I first tried hospice for that - nothing. So I just went to private counselor.

[@karenlee8688]

Will the future retreat be available via social media? I'm homebound and oxygen dependent and can't travel but would love to participate. You two are awesome!💛

[@elizabethsmith5615]

My mom already has plans in place. I talked with her and told her how sorry I am for the things I've said and done. I told her I don't want her to not be here. She jokes and said every morning she said well I didn't die today. I have anxiety everyday hoping she hasn't died. I can't help but dwell on it. I know we all die.

[@lynnhalderson7384]

I saw someone ask if you've ever worked with Death Doula's and what do the Doula's do? How does this work with what the hospice nurses do?

[@macibowlin1008]

I wish my dad's hospice nurses would of been as kind as both of you!! They were absolutely hateful!!

[@5410082]

At around minute 18:18 what were you saying that some people with dementia write in their advance directives should they get pneumonia or a uti at end of life? You both talked at the same time so I can’t figure it out. My mom is 93 and has been on hospice since June 2022 for Cerebral arteriosclerosis which I guess is Alzheimer’s since a neurologist had diagnosed her in 2017 with it. She is now bed bound with a foley and gets uti infections frequently

[@shaynej704]

I pray that you will find a nice boyfriend from these videos. You are such a nice girl, hard working, and pretty. I wish you the best. Thank you for comforting me since both parents have died many years ago.

[@familylifewiththegreens]

My dad passed away Saturday and I’m still struggling with it. 😓

[@Shenanigans_Afoot]

It’s ok to struggle with it. My heart goes out to you. May your healing be a good journey for you. ❤

[@doyourbestletgoddotherest444]

🙏🤍💗

[@zoiefinnian3540]

Honey you will struggle for a while. It’s because you love him, and you still need him. If you didn’t care, this would be easy. You wouldn’t feel lost, you would be fine. Everyone goes through losing parents. No one is ever ready or really prepared. I’m coming up on 2 years since I could hug my mama or talk to her. She died unexpectedly in March ‘21. I don’t think I’ll ever be alright. I hope you will be. Let yourself grieve. Its healing. You’ll get sick if you hold in your feelings. Remember that your dads blood is coursing through your body. You are from him, he’s part of you. Our lives are Very short. Live to make your dad happy for you and proud of you. Love🦋

[@familylifewiththegreens]

@@Shenanigans_Afoot thank you so much I appreciate it. 🙏

[@familylifewiththegreens]

@@zoiefinnian3540 that was beautiful thank you so much I appreciate it. 🙏

[@leasullivan788]

love you guys

[@margiebrown9179]

I just had my latest hospise die yesterday we have never seen a. Non traumatic death but he was bleeding form his mouth and nose we are a ARC for the severely disabled can you help us understand this is my 23 pt

[@donnaberkowitz5710]

I lived in Boone for 10 years. It is home. I want top go back and live my retirement years.

[@freddygray8058]

I have systemic lupus and expect hospice care in my future. Meanwhile, I'm now 75 and still kicking.

[@JamesrDebbie]

My husband had 3 massive bleeds from throat cancer.He died April 22nd

[@nubyrivera97]

Julie, I have to thank you for these type of videos. It is such a good material very educational to help people to understand what palliative hospice means and what is all about for families Cna‘s nurses to understand the whole protocol embark this organization they have held me as a CNA to see the beginning of the process of death to understand that is their illness who in their life and it’s not the morphine all the other meds. It’s a morphine doesn’t do the trick to help decompress the pain and for them to pass in peace, every single thing that you have mentioned in this videos is very interesting one night I was overwhelmed by the fact that I wanted to have the words for the daughter of this lady beetle I didn’t I didn’t have it and I know her days I guess that days hours seconds I don’t know this lady is taking the long road because she’s very stubborn as you explain in one video Their personality really good person in these last days or hours or minutes I don’t know I always say to people that conversation is in between the patient and God God and the patient I believe in God and angels in my sayings they may come for my guy my strength I guess for some people that doesn’t believe in God or in whatever they believe it gets a little bit more difficult but humans have not got all Angels of scenes or whatever people believe freight just playing that in a bit KZbin so I think faith that he’ll do with translation in peace a date again let’s go back to the lady, the lady that is covered her favorite work always been sick is no that’s her favorite word no I’m cranky. It explodes in society am oh my God. Everything is just like a little fireable. Sometimes she doesn’t want to take to make even though it releases the pain she did have a stroke at one point in her life at Andy’s also is been pressing it was the fact that sometimes she doesn’t want close on heart oh shit, so anything and it’s just a roller coaster so we have done everything That we been able to do and Hospice has been the nurses. I’ve been very nice guiding us through the process on things. I called him to come over to help us with understanding but I have to say every single video that I have seen from you is being a big help And her husband passed last year 2022 April 14. He had his April 8 and she still surprising us she’s little bit and she can be very lucid and then she can you know taking a little little road. I’m trying to get up from the bed when she haven’t done it in a year it’s gonna be a year, oh my head on choice hair care. It’s been well that you did refuse PT and your name and they have done everything possible but I have to say that videos like this should be more made and people Hass to understand that this is very interesting I have and having a very good experience and I feel much much better And I hope people understand what palliative hospice means. And yes we know where we born but we don’t know where we die. What time do you know kinda engine to sleep? I do not eels you know you have a good health and you pass because God say so because he need you because whatever you believe but you know just add bodies are mean to die like trees and animals and yes I have seen my doggies and do you know him yeah, we have to put two to go bye-bye because they was attached to me and I was attached him to them and my son says no they don’t have quality life anymore we have to do what is right for them You have no idea and this is just now read petting the same thing but I really really really appreciate these type of videos because when you are in the medical field whether you are a CNA or any kind a nurse and you having him being part being part of Hospice hi, Jason, nurses are part of death in the hospitals, but just had a little bit and someways a little bit faster you know you have to hold in there and everybody’s there and it’s a different scenario but this is death and when everybody is ready to go it’s gonna shut down just like that so thank you again so much. God bless you and Penny very educational your help. You are my my strength right now. Thank you from Delaware.

[@nubyrivera97]

Julie, I’m trying to express the best way. I know rank and I can at this moment to send a message to everybody that is seeing these videos about my experience with this lady that I have that is taking her long way. It’s not clear the first message, but to let everybody know that a favor had a favor. Word is no, and just you refuse, sometimes to take the med and, she have half the best healthcare day we have in this country however, she is very stubborn and Pajor videos are helping me a lot because I did have a Lotta questions. This is my first experience from the beginning do I hope I see the end and your privacy and a for this family and him of course they think I have so much experience because I have I’ve been doing Cna for a long time now, but I never being a Hospice Cna, well your videos have helped me a lot every single thing that you have mentioned is happening at for these I think you for helping me personally to understand palliative care, hospice meds process everything thank you so much I’m very exhausted probably the computer is not graphing, my accent and Betty Spanish but thank you so much and God bless and I hope one day I need you because I’m learning a lot with you and Penny. God bless thank you so

[@kadu3502]

lovely pyjamas party🥰

[@bldeem]

Please, could you do a video about Congestive Heart Failure?

[@janethagen3385]

My friend (in hospital now) has been told numerous times by medical professionals that he is now in the dying phase of stage 4 prostate cancer. He keeps refusing Hospice! He keeps thinking that there must be other treatment options available. He’s been on a bypap and a Hospice nurse talk him out of entering hospice! He couldn’t talk and she said, well, it seems like you’d like to stay on the bypap? Geez Louise!! He needs hospice!

[@yolandahargraves-vq4xf]

Thank you

[@yolandahargraves-vq4xf]

Husband had Alzheimers. I always met him where he was. ☺️.

[@garseetr]

Penny, I turned 60 in October. We are about the same age. Graduated HS in 1981.

[@gvet47]

I have a palliative nurse to help me with my pain and other meds. I have a weekly nurse that checks my vitals and just howvI have been doing. Both are telling me I need to be on hospice care. I am 76 and live alone. I just got a medical alert system. Is there a legal way they can force me to go on hospice? I would have to pay for help to continue in my home or in a care facility. Medicare does not pay for any actual care.

[@Diane-xh7vl]

Have you had a patient that was dying from gastric cancer? And if so how bad is it? Would like to know for personal reasons .

[@relaxandunwind1496]

But wouldn't dying from a UTI be really painful? Referring to what Julie said about a dementia patient choosing to not be medicated for a UTI and just letting it kill you. (I totally get that becausewho wants to suffer years from dementia) but would not treating a UTI be really really painful?

[@melodymcminn4107]

Please don't stop You tube....I don't have good access for the others.. I am also dying and I want to know when to put myself in hospice and all I have is You tube. :)

[@judisiver3988]

When are you going to be in Boone?

[@lylameri9082]

My Mom is the best! She’s dying of Alzheimer’s. I know if I let those facial hairs go, she’d kill me!

[@mpmunger1225]

I’m all alone and can no longer get out of bed what should I do my nurse only comes once a week

[@taraready657]

😂 the bear

[@andsoitgoes1142]

Somebody better make sure my chin hairs are plucked when I’m dying.

[@joanpillay314]

Yes my. Mom had all of that

[@agnesrodriguez256]

So my grandma had a surge but nobody realized it was a surge because she had it after a hip replacement She was discharged and died on the way home

[@kathyrupert1425]

When you have a retreat, do you have a hospice nurse to fill in for you?

[@elainebraindrain3174]

I was hijacked most my life in a cult teaching never dying. It's not true. Thank you for open dialogue here.

[@monicaperez2843]

I had 2 catastrophic bleeds, both from bleeding ulcers. They both died within 5 minutes.

[@joanpillay314]

My mom had Alzheimers for 16yrs. She just stopped eating, was ver quiet

[@juliewhipple6033]

My husband was put on Fentanol patches, it was awful.

[@lylameri9082]

Can I pay for a consultation with you about my loved one?

[@65andSpry]

If patent is in late stage COPD can they still get breathing treatment medications for managing symptoms?

[@summeryoung1026]

Wait you guys are two different people????

[@jhildebrand7447]

What?! Hahah!

[@hospicenursejulie]

Hahaha… yes!

[@tinajackson5450]

Do you consider sickle cell disease as terminal?

[@karendragovich4163]

You two are GREAT----Penny please sit still---sorry you are making me dizzy

[@battybethc8061]

Lol! 😂

[@L.J.H.-sg6eb]

My Mom has alzheimers dementia and will at a half cup of yogurt and a forth of a sandwich and say she doesn't want any more.

[@barbslack4302]

Boone is a cool place!!

[@queencorf]

I'm curious. At 93. Already on home hospice. I'm the live in caregiver, and grand-daughter. I'm purely interested to know if there is any identification to a death rattle? I've been hearing it.

[@hospicenursejulie]

I have a great video on Terminal Secretions, the Death Rattle on the channel with some examples!

[@kimtaylor6818]

I wanted my roots dyed!

[@barbaraemerson3386]

what is called for to start hospice You have to be on deaths door before you start

[@shannondewaynewanstreet]

Hey Julie I could really use a private talk maybe Ive been neglecting my own chronic illness treatment but it's personal not to be discussed over via internet

[@lizadivine3785]

I wish I had hair

[@boutiquebabe]

I get what you're saying a little distracting