HUGE MEDICAL UNBOXING (FEEDING TUBE, PORT, INFUSION)

We received a bunch of boxes of medical supplies. Wanna see what's inside? Are you a medical nerd? Let me know in the comments. When
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[@thefreylife]

I know a ton of you guys have told me in the past that you are medical nerds- so I hope you enjoy this medical haul 🙂

[@sxcredjones4034]

❤️🖤 no lie but I’m always called a medical nerd too lol

[@saraschutz812]

You can make your own saline! My pharmacist told us to use distilled water and a nasal rinse packet. Mix well! I have gone through plenty with wound care.

[@tamberjune]

You were like what is this? And I was like it's your new pump! Good job unboxing four boxes (five boxes!). I know it's tiring. I do IVIg Thursday and Saturday. We're almost on the same schedule again! Wooo! Glad they send you the pills and you don't have to worry about not having enough. I hope the nurse is supportive and helpful today! I pray it's not too painful. You have both got this! 🙏🌟🎉

[@eej1983able]

I am a medical nerd lol. That was so much stuff man

[@stjernoga]

The Frey Life Yey 💕and also Harrys new style riding along is so cute 😊

[@thechronicillnessdiaries2773]

My insulin pump had 6mm and 9mm sub q needles. Most kids and really thin people use a 6mm to get to the subq and average size use the longer 9mm. I hope things are getting all worked out for you today! I swear my house looks like a pharmacy lol. Thanks for taking us along!!!

[@b.wooten4505]

I agree with Peter , the iv setup makes me nervous! Mary and Peter you are so strong and brave!! Hugs!

[@pimpchimpin3472]

Hi marry and peter. My name is alivia And i am eight years old . My mom watches you every day and loves you guys. I watch you guys too.:) She has a Auto Immune illness and has a port too and takes ivig. Her port got infected and she was in hospital for 9 days because it went into her blood system. She came home last night with a new port. She loves you guys and would like to buy a Frey life sweat shirt and T shirt and maybe few other things. Can you give us your signature? Thank you Mary and Peter. Love Alivia. and i love cat harry he's adorable.

[@henrietterowland7280]

I love how you were carrying Harry around like a little baby, sooo cute 😻😻❤️🇦🇺

[@lizzycat1979]

I use a bi-pap (not cf related) I enjoy when I get new tubing, masks and filter 😊 I recently got a newer machine with a built in battery. It was like Christmas morning

[@phury1188]

I too find myself asking “what is this? 🤔” when I get my deliveries! lol In the beginning it was a bit overwhelming, now it’s just “man, now we have to carry all this in” 🤣

[@dothatch5147]

Mary. If you were my own grandaughter i could not love you more I love your attitude about everything. My favorite thing is when you have Harry in your arms walking.

[@susanharris1285]

Mary you have so many things to keep you healthy thank God!! Love and Prayers always

[@janineschindler2966]

Wow allot of supplies today. Very interesting. Can't wait to see how it all works. I really love being in here I learn so much. I am a CNA. I have done home health over 12 years then and some hospice. Then my boys died then I couldn't handle any of it for a while. But anyway I'm back in a home with a lady that has dementia. But I learn allot. Thanks.

[@meesa8468]

My condolences to you Janine, on the loss of your boys. Nurses are such a special breed of human, and hospice nurses are truly a gift that none of us ever want to need but are blessed with when we do. I hope that your life is rich with blessings from here on out Janine. You sound like a remarkable woman!

[@user-vm5ud4xw6n]

I’m kind of surprised that with all the stuff you get that needs refrigeration you haven’t purchased a small refrigerator just for that purpose. Like maybe a 1.6 cf that you can just sit on a counter. Maybe you don’t have as much as it seems and don’t really need it. But it would keep you from putting stuff in your regular refrigerator. Interesting video. I guess being a nurse I could be considered a medical nerd. Although you aren’t a school trained nurse you are doing so many medical tasks and as the visiting nurse said “you are excellent at this” so I would like to wish you a Happy (honorary) Nurses Week. Nurses care for their patients, keep track of what’s going on with them, educate others, work closely with other members of the medical community, trouble shoot any difficulties their patients have and a whole host of other tasks until they fall into bed at ghe end of the day absolutely exhausted. I would say you can easily tick off every one of those boxes and more. So I’m impressed with the new method of care you’re diving into & I congratulate you. (Although I did cringe at the Neupogen injection but you got it.)

[@albertglass2594]

Peter and Mary I never knew you could do so much from home. You are teaching me so much. My mother and I am so glad to be a part of the Frey life.

[@luannsmith5309]

I too am a nerd..love to hear all about you and learn about CF as well..love your easy sharing and you have inspired me to make SOUP!!! lol

[@030397mcp]

I use Cuvitru! I use 8grams 2 needles. I don’t use the lidocaine cream. I don’t feel like waiting on it to numb, it’s just another step in the process. Plus, the little 2 pokes I do don’t typically hurt bad enough to use it.

[@FiMilton]

I love organizing my IV and SubQ supplies! I would make packets for each infusion that had all the supplies to make it easier.

[@FiMilton]

Oh wow your needle sets are only 2 needles? Mine was a 6 needle set and I hated it!

[@thelittlesucculent8335]

I had a horrible day I had to go to the ER it was not fun especially amidst the Coronavirus. I spent a all-nighter there yesterday/today. Thankfully I am home now.

[@rmjames83]

Just a quick tip-my hospital told me not to store refrigerated meds in the door of the fridge, because the temp fluctuates more opening & closing the fridge😉

[@JavaFirst]

Wish you had shown your organization updated system. The medical unboxing was very interesting.

[@PinkHawk191]

I have had a rough couple of days. One of chronic illnesses called IBS is flaring up. It’s been a pretty severe flare up. I am hoping tomorrow will be a better day and that I will start feeling better tomorrow.

[@jewelhaines8842]

I hope you feel better soon. ❤

[@PinkHawk191]

Jewel Haines Thank you!

[@Chelsbus2car]

Thank you so much for this medical haul kinda a fun video for those of us that have medical adventures in life. To get rid of the styrofoam containers you can see if you have a local recycling center. Where I am from our local recycling center takes them for free. Thanks so much for all your videos I send people to watch your videos when I meet people with CF, Mary having low blood sugars makes me relate to you guys since I have Type 1 Diabetes and I know how much of a pain low blood sugars can be!

[@Dreamer5211]

I missed it !! , that will teach me of missing a video , anyway , better late than never. Thanks and take care , Gary 

[@jmbtrain1]

Thank God for good insurance.

[@amberskater]

It was wonderful listening to the birds in your yard for a few seconds- reminds me of hiking and camping (and the glories of creation). So excited when I can do both of those things again!

[@guardiansanimalrescuestate7289]

Hi u all. I just wanted to thank all of u for your kind messages and prayers while I’ve been in the hospital. This was not the best time, obviously, to be in the hospital. Even though they kept the covid patients in an isolated area called “the bubble”, I was still very nervous about getting back t from even a nurse or doctor who was exposed. (I did find out that the staff who are working in the bubble, stay there. They do not float all over the hospital) But what about the kitchen staff, or the operating room or any surface. Honestly, my doctors have all said that it would be a death sentence for me if I got covid. Your kind words, cards, and prayers got me thru things. When I was being taken upstairs to my room (I had a direct admission), the lady told me Jake my service dog and my daughter were not allowed upstairs. I had already called about it when I heard that no visitors were allowed. I spoke to the charge nurse who told me it would be fine, and of course my daughter is important to take Jake out to potty or to care for him if I had an emergency or procedure. So when I got up to the floor, I told my nurse what happened and she said did your daughter leave yet, and I said no she’s waiting in the car to hear from me because we were already told yes. So she said hang on, and came back and said tell your daughter to come on in and I personally will meet her and walk her up. And she did. My daughter stayed with me as much as she could. When she had to go to work, she took Jake out and fed him and tucked him back into bed with me before she left. And then my other daughter was there about 10-11am before either Jake or I woke up. But my point is that the lady who said he wasn’t allowed asked me for his papers(which I provided along with his vaccination records.) I had also thoroughly bathed him before we left. (Just like we do every time we go to Vanderbilt to visit patients to help cheer their day) This shouldn’t have ever happened. I am so so sick, and I absolutely did not have the energy or patience for all that. Not to mention she broke the law. I’m so glad that I knew the laws and that I had called ahead. I was discharged early because our entire county has had 4 times the amount of covid cases, and patients were lined up in the emergency room waiting for beds. (Obviously they took the covid cases up to the bubble, but everyone else was left without a bed.) I wanted to give my bed up so someone could have it. It meant that I had to go home with a NG tube in and I didn’t get my G J button, but I can do that surgery on an outpatient basis at the same time they put my central line in. Okay I know this is super long. I just wanted to thank everyone for everything. I’m really really struggling and extremely depressed. And your thoughtfulness, kindness, notes, calls and prayers made it possible for me to get thru it. Thank u all.

[@thenightmarebeforegaming2592]

I hope you start feeling better! Im so sorry they treated you like that had to be depressing. At least the nurse helped you!

[@I_am_Knowledge]

I'll pray and send you all my love! Take care❤️

[@LifesGood22]

Bless your hearts for being able to see those tiny beauties.

[@lizdowning6134]

If you apply the lidocaine 30-60 minutes prior to injections and cover with press and seal wrap, it makes it easier.

[@kareninva7097]

You to are amazing in all you do

[@starlamiller7703]

I’m a medical nerd wanna be!! 🤪😂

[@robinblack7501]

love medical supply unboxing videos & hauls, organizing the supplies , it so helps with ideas of how to store the many boxes that come in, this week i had 25 boxes come in just medical , 2 cooler boxes for his emend shipments that come overnight shipped with those ice packs which i have so many of them and the little white coolers, what can i do with those i have gave them away to people that fish and i hate throwing them away but no one wants anymore lol

[@stephaniearends1309]

Looks like CVS Coram Supplies. I have gotten my supplies from them for 3 years. I love them. They are very easy to work with and depending on where you live, can do same day delivery on occasion for unexpected situations

[@Stacey67643]

Nothing better than grilling out!!!! My favorite thing to do in the spring/summer!! Looked yummy

[@Hallz18]

All this medical supplies! Very overwhelming! So much information! Lol

[@brendaschattschneider8205]

So love hearing the birds

[@ariyotheapbtservicedog]

awww the cat is a new li'l friend, huh? cool :)

[@penelopepolinsneemeyer4757]

I hope the Sub QIG has gone well today xxxxxxxxxxxxxx

[@jen21021]

Please wipe everything down!!! Love you guys!!!

[@susanmargaretwills6432]

Hi there, Your subtitles in Italian r hilarious ~ the Epi-Pen is a "Pen For Pee" & then apparently on opening up the sharps box Mary exclaims "Oh but we have plenty of sharks & alligators"... 🐊Now THAT i can understand coz those dudes do have a pretty mean dentation🤣

[@TraumaSurvivorCynthia]

Thumbs up #819!!🥳 Mary, you need to get a snugly baby carrier to be hands free with Harry💙🐾walking around the house.😁#davesandersstepdaughter 🙏

[@eveenz7165]

Wow my brother has the same bbq here in New Zealand love you all 😘

[@karendeakin9628]

Hope everything goes ok tomorrow thinking of you xxx

[@Joyce-dd3fm]

The shrimp looks delicious!

[@monamorgan8614]

I bought some binoculars so I can enjoy the backyard birds and deer at a distance, our backyard is 1/4 acre and backs up to some woods next to a lake so there are several types of birds from Chickadees, to geese, white pelicans, eagles, hawks etc. 🥰

[@elliebee08]

I just got a gj tube placed last week and still recovering...

[@jewelhaines8842]

I hope you feel better soon!! 💝

[@cassidihoner7656]

Harry is the cutest hairless cat I’ve ever seen. I have a cat named Ralphie and he loves snuggles just like Harry! I’m getting my service dog this weekend. Do you have any tips for really getting to know her and helping us work well together as a new team? Sending love to all 4 of you!

[@bhappy6088]

I know it's sort of late to suggest this and I imagine you guys are grass people. However, one suggestion maybe to consider a ground cover instead of grass. You most likely would weed less and there are several choices that would allow to walk outside bare feet and you wouldn't need to mow. The nice thing about it with less overall yard work you could spend more time in the garden or doing other things especially when your human needs out weigh your home's needs. It's just food for thought. The yard looks amazing! I can't see the rich greenness that's soon to come.

[@jewelhaines8842]

Wow! That's a lot of medical supplies!! The yard is coming along really well!! Cute Harry and Ollie!! God bless you all! 🥰 P.S. the weather here in Virginia Beach, Va. is overcast and actually kind of chilly!! 🥶 It is going to warm up to the 80's Friday!!

[@ashleynault4968]

The lidocaine now comes standard when they get the order from the doctor for either IV infusions as well as subcutaneous. I know when I recently had a home infusion for IV I G they sent a small tube of lidocaine to use specifically on my arms if I felt like I needed it for IV placement. It was really odd don’t know why and I specifically asked why I got a tube of lidocaine and that was their answer. However I was told that the subcutaneous you should use the lidocaine as it tends to be a little bit more painful than a regular port stick or IV stick just the placement and area is more uncomfortable than your arms. But I also find it really funny that they sent me a bottle of Tylenol and bottle of Benadryl pills as well as my IV form of Benadryl as that’s what I have to take for IV I G but I guess it comes down to like a legality.

[@diannaedgerton636]

Making me seasick!

[@tarah8919]

I have to use lidocaine for anything needle related.

[@gabigayko1863]

It always interesting to learn new things!

[@annmariecobb9570]

Seeing you Mary wearing the Frey Life sweat suit, got me thinking about an Idea for another Frey Life shirt. And that Idea is putting Ollie and Harry together on a Shirt. What do you think? Could that happen.?

[@sharoninky]

My little boy does albuteral TPA and Flovent and 7% saline with the air vest system and can you believe TPA is 40,000 dollars a month

[@stephaniehowells2567]

Now i want shrimp. That looked so good!

[@smashley7999]

Do you ever get a pimple mary? Lol your skin os absolutely gorgeous ❤

[@beccaa-p5745]

Wow! I am wondering if Mary you are using your feeding tube as much since you started Trikafta?

[@madison8568]

I hate putting up my TPN (IV nutrition) supplies each week. It is such a pain

[@mercyspain]

My infusion company does not use heparin anymore. So my next infusion I will have no heparin lock. Super nervous 😬

[@benjaminfreyman4273]

I see the cat over your shoulder and think you got a pug.😆. Then you say elusive mockingbird and I'm like , don't say that in Florida. Lol mocking bird or cat bird they have too many.

[@rosespiker4087]

You should see if Harry likes watermelon. My cat just loves it.

[@rebeccaingram980]

I hate medical supply delivery days!

[@monikabredesen4273]

Can you give the sharpscontainers away to places that may need one?

[@eafj90]

Monika Bredesen not sure what it’s like in the US, but here in Australia we have a lot of wildlife shelters who are super appreciative for any unwanted or expired medical supplies, particularly after the bushfires. Hopefully there’s something similar there!

[@eej1983able]

Today is laundry day lol. I have one bin almost empty. Been resting a lot and reading

[@bionicprincess8008]

That is a big medical haul. I am guessing by now you have had your first sub q injection. I hope it goes well. I thought it would be just a syringe shot. I have RA and gave myself sub q shots before. Some of the meds really stung. Praying it went very smoothly with your nurse. Take care and be safe!

[@dinahakim7114]

It’s so darn hot in the Los Angeles California here area I should say tomorrow we’re supposed to be 100 and something I don’t like this weather I envy your people LOL

[@mikegainer8288]

It looks so expensive...

[@coolcatali1294]

omg you have a sphynx what do they feel like? I've always wanted one

[@MissaLVT]

The feel like peach fuzzy 😊

[@AnimaConfusa]

why is everything in so much plastic? I mean I know about sterile stuff but so much is double packed there...

[@XK_tyX]

Unfortunately medical supplies are all very wasteful. We are unfortunately all aware of this, and already feel guilty enough about the waste. Most of us recycle and reuse everything we can.

[@AnimaConfusa]

@@XK_tyX I know, but when we got supplies for my sister or my mum we never had so much. like, pills are in blisters, and in a paper box. they never have plastic around them. tape comes in a paper box. I wasn't accusing sick people here, more like the people responsible for this plastic madness

[@jademccardle9074]

Hope ur good day x

[@3catmom844]

what ? no old bay on the shrimp?!!!!!

[@sharoninky]

When do u use ur gtube u eat really good.

[@MandieZangora]

Lmao that’s so funny I keep asking my company for a new sharps container and they haven’t sent me one in months so it seems like we need to trade places for a few weeks 😂 I also peeped the emesis bags on the counter and I relate so hard lol I have them in all my bags, my car, my moms car, bonnies car, bathroom, bedroom and more and they have definitely come in handy more than once and not just for me 🤢

[@stephaniehowells2567]

How do you keep all that straight? I would be so confused. Lol.

[@jaytee2642]

Me too, but when you deal with it on a regular basis, it pretty much becomes second nature, I think. Look back on a new job you may have had in the past ( depending on how old you are of course...you might be a kid for all I know 😉), remember how you thought you'd never remember all the steps and procedures etc? But after awhile, you got the hang of it. Or learning how to drive....wait, I have to steer, remember which pedal is which AND watch the road? 😵 Now you do those things without even thinking about it. But yeah, Mary's medical closet makes my head spin!!

[@shannaraa7453]

Love watching you guys! Stay safe during this time! From kelowna bc.

[@jesscaron8470]

I do saline flush I have not Hurd that

[@tristanbarnes7318]

Wait.. sterile saline is recalled?! I just used it in my dressing change yesterday. I hope I didn't infect my line....

[@suzykauffman1831]

Do you get your shrimp at Aldi's? Raw or precooked? It looked so good.

[@smilepower1306]

The medical thing you didn't what it was, was a pump. I have one for my subq. I can answer questions if you have any.

[@Ladypuppy510]

The pan you brought the shrimp into the house wasn’t the same one the raw shrimp were in, right?

[@gowanderlustwithme]

What does Peter do for a living? Are you able to sustain on your You Tube?

[@ItsAMbutyoutubechangedmyname]

Have you thought about looking in to if your insurance cover auviq instead of EpiPen that you got . They are easier and hurt so much less .

[@rickypatton2986]

bara moln and they talk to you too. I find it helps for people who might not know what to do.

[@cira_cystic_fibrosis_life5122]

Do u have people that ask u if they need to stay away because I do how are u happy I am never happy because I hate cystic fibrosis I take 15 or more pills a day a people say I need to stop taking pills and say why are u in school if u have cystic fibrosis why do I get so much hate I did not choose to have cystic fibrosis

[@rheagalarneau1366]

That’s a lot of boxes.

[@green_willowtree]

Peter! How do you keep your grill so clean?

[@elainehardy3502]

My husband has a lung disease that's called ... bronchiectasis it's a condition that he can blow out but not breathe back in. 25 years of white dust and denied masks and venilators to use in high levels of dust. With all meds for that and his diabetic meds is a lot.

[@derenkralp4485]

u should do more medical unboxing this video was lit😊😊

[@gwinnjohnson7936]

where did Peter learn to cook and grill?

[@sophieslater9269]

What’s the benefit of doing subq ig versus ivig?

[@elizabethann5308]

For Mary the benefit is being able to be at home and independent with it. Her hospital system does not allow patients to be independent with ivig.

[@sxcredjones4034]

This is nothing new for us cfers we all have to unboxs Meds etc 😂😂😂🖤❤️

[@thefreylife]

sxcred Jones yep! It all came at the same time and I ended up with a ton of boxes at the same time. Usually mine come staggered throughout the weeks. Do yours all come at one time?

[@sxcredjones4034]

The Frey Life yup 👍🏽

[@nathantatosian280]

Hi Mary and Peter how day today

[@BlackDahlia-zz1qr]

Anything you guys do is interesting..lol

[@triplej2496]

How you doing with medical masks and medical gloves?!?!

[@lauraswanson1134]

why are you doing subqig? hope i am spelling it right

[@jaytee2642]

She said the nurse is coming tomorrow to show them how.

[@jaytee2642]

Sorry, I thought you said WHEN, not how. Nevermind. 😉 And why....her new team requires IVIG to be done in the hospital, so they're trying SubQ, so they can avoid a hospital stay.

[@zambitiber1394]

Haven't you done this video a dozen times already?

[@jomickelsen5141]

Ok im new. So why the feeding tube and port? I know you have CF but just need more info.

[@windylee2988]

Shrimp on the barbie 😋

[@leahgriffiths1694]

As an Aussie though, just want to let you all know we don't actually say that. We call them prawns too. 😂

[@maddieadams75]

Mary has very limited subcutaneous tissue 😆

[@ashack09]

Am I the only person with a cronic illness that loves sweats and leggings !

[@PinkHawk191]

ashack09 I have tons of leggings. I love them! With my chronic illnesses and chronic pain leggings are so easy for me to get on. Since I am not at my day program due to Covid-19. My outfits are a shirt and leggings. Easy and comfortable clothing. I am not going to impress anyone right now.

[@arianechapman1057]

Has Peter's accent changed ? 😂 He sounds kinda southern/Texan now. I'm not from America so I don't know if that's the correct area ? But he sounds different hahaha. Like the people who say Y'all now.

[@thelittlesucculent8335]

He sounds the same to me.

[@kaylabarnes]

G'night to....." And nothing.

[@eej1983able]

Lolol oops

[@kaylabarnes]

@@eej1983able I wonder if Harry sat on the keyboard again.

[@pimpchimpin3472]

Uuuuh