i finally met someone else with cystic fibrosis ft.

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Stephi Lee

Stephi Lee

Күн бұрын

Пікірлер: 525
@MorganSolo
@MorganSolo 4 жыл бұрын
Oh, hey. It’s me! Hi new best friend. ❤️ We also filmed another round of questions on my channel. So, if ya wanna check both parts, just clickity click this : kzbin.info/www/bejne/bGa0oZ-gmJ10Ztk
@amelad.6956
@amelad.6956 4 жыл бұрын
You both are amazing. I feel like there could be a huge bond between you both. Greetings from Bosnia.
@edsteele1134
@edsteele1134 4 жыл бұрын
Completely agree
@joe47771
@joe47771 4 жыл бұрын
subbed you up bro
@taterkaze9428
@taterkaze9428 4 жыл бұрын
"I was raised Pentecostal" - and broke free. Grats.
@blackmonday738
@blackmonday738 4 жыл бұрын
💋
@sonnylecrone7883
@sonnylecrone7883 4 жыл бұрын
She is so chill ... She just rolls...I'm happy she is making a difference in people's lives...a beautiful soul.
@lisaakinlabi
@lisaakinlabi 4 жыл бұрын
Trikafka is being approved in Canada soon - I pray it is because it has proven to be such a blessing in a CF life! Love you two together 😃
@StephiLee
@StephiLee 4 жыл бұрын
so excited for canada!!!
@shannonbannanie4370
@shannonbannanie4370 4 жыл бұрын
I believe it was just approved?
@shannonbannanie4370
@shannonbannanie4370 4 жыл бұрын
Nope I'm wrong. I saw a video somewhere saying it was approved. Anyways seeing how amazing this drug has been I hope it's very soon
@sometimessUEaNN
@sometimessUEaNN 3 жыл бұрын
@@shannonbannanie4370 While I'm sure you've been keeping up on it, its finally been approved for Canada! woo!!!
@thisoneisonly4uuu
@thisoneisonly4uuu 4 жыл бұрын
Not trying to be dramatic, but Stephi is literally the most gorgeous person inside and out.
@MisterSisterFister666
@MisterSisterFister666 4 жыл бұрын
Not dramatic, just accurate
@stopthephilosophicalzombie9017
@stopthephilosophicalzombie9017 4 жыл бұрын
I agree. In my life whenever I've met someone with chronic health problems they are almost always very sweet and forgiving people. It focuses the spirit when you really don't know how long you've got. I wish we all had such acute awareness of what is important in life. The world would be a better place.
@cynthiapintia8622
@cynthiapintia8622 4 жыл бұрын
Stop being dramatic
@sharoncooper5110
@sharoncooper5110 4 жыл бұрын
God bless you both so happy for you you have medication to help
@philogre5771
@philogre5771 4 жыл бұрын
🙏 agree
@gio_isabella
@gio_isabella 4 жыл бұрын
He seems so sweet and for real his eyes are like wholesome af.
@captaindj9790
@captaindj9790 4 жыл бұрын
My wife had CF. Made it to 47. My friend Leland is now the longest living CF double long transplant recipient from For/from Duke Hospital in NC. I took care of my wife for 25 years. She gave birth to my two children in Miami and back them it was a HUGE deal. Everything you two talked about I understand. My wife and I helped get an adult CF clinic going in Chattanooga Tn. They’d never seen an adult with CF. That was over 25 years ago. Enjoy your travels
@Strawberry95shortie
@Strawberry95shortie 4 жыл бұрын
You are very sweet for loving your wife unconditionally and taking care of her. I only hope my future husband has the same outlook as you. 🙏
@captaindj9790
@captaindj9790 4 жыл бұрын
@@Strawberry95shortie Oh! Thank you so much. And I will say a prayer that will land you an understanding person, and if he does not understand it all I will pray he will treat you with love no matter the lack of understanding. You sound very sweet. Stay strong 💪🏼 ❤️
@judyblueyes1275
@judyblueyes1275 4 жыл бұрын
I like how this guy's energy and Stephie's chillness just seen to vibe into a nice chemistry!!✌️💜☮️💜
@disambiguity
@disambiguity 4 жыл бұрын
I see a spark! And I'm a non-spark-seeing cynic.
@lindatannock
@lindatannock 4 жыл бұрын
Agreed! 😁👏🏻
@51-FS
@51-FS 3 жыл бұрын
It won't last
@mcmelre
@mcmelre 4 жыл бұрын
As a mama of a young child with CF, I understand what he means about people getting mad when they see CFers hanging out. It's been drilled into us from day 1! And right now, my son is too young to make any decisions like that, so I am 100% responsible for keeping him healthy. This made me see a different side of things, and I appreciate that. Someday he will be grown and I won't be responsible for his health anymore. That is super scary to me, but I'm excited for the future he can have. He is currently on orkambi and will switch to trikafta next year when it is approved for his age group!!
@PinkGranades
@PinkGranades 4 жыл бұрын
"but now it's weird because were not dying" why was that my favorite line?
@TheMrWoodsman
@TheMrWoodsman 4 жыл бұрын
So happy life is better for you both, stay strong.
@amanda1838
@amanda1838 4 жыл бұрын
The way he looks at her when she’s talking omg snatch that man UP
@laurinasoles3259
@laurinasoles3259 4 жыл бұрын
💯💯
@alanandjanetpohl4043
@alanandjanetpohl4043 4 жыл бұрын
I so agree. I am so happy for Stephi. He's a sweetie.
@51-FS
@51-FS 3 жыл бұрын
But where is he now?
@MichiaMakes
@MichiaMakes 3 жыл бұрын
Could they be more readable adorable 🥰?
@bluebell6684
@bluebell6684 3 жыл бұрын
@@51-FS celebrating her major milestone birthday together!
@mariaasmrr
@mariaasmrr 4 жыл бұрын
i didn’t know people with CF could give each other infections, that’s so interesting. also it’s so refreshing to watch you (and him now!) because of how fearless you guys are, i have high anxiety constantly think i’m dying and have a lot of paranoia. I wish i could be as relaxed as you guys, you don’t know how lucky you are in that sense ❤️
@dreamercraftcorner
@dreamercraftcorner 4 жыл бұрын
Why would u think people with this condition cannot show affection or love that stupid
@mariaasmrr
@mariaasmrr 4 жыл бұрын
@@dreamercraftcorner you read my comment wrong 😂
@Cactus_Reef
@Cactus_Reef 4 жыл бұрын
@@dreamercraftcorner don’t go calling nice people stupid when you don’t know the difference between INFECTION and AFFECTION 🤷‍♀️
@davevandevenne1330
@davevandevenne1330 4 жыл бұрын
youtubes hot new power couple ...
@mariaasmrr
@mariaasmrr 4 жыл бұрын
@@bexleybeyond7524 thank you so much 🥺💖 hopefully i’ll overcome it one day!
@PeaceAndLoveWins
@PeaceAndLoveWins 4 жыл бұрын
You two vibe really well together and set a great example of how to be grateful for the time we have on earth! 🙏🏼
@sukijohnson5398
@sukijohnson5398 4 жыл бұрын
You two are so sweet and compliment each other so well! I wish you did all your videos together, I hope we can look forward to more! I bet you two would make great travel buddies!
@katb6112
@katb6112 3 жыл бұрын
I don’t have CF but I found my community within my own health/“disabilities” and that made the biggest difference. I’m so glad I found your channel again after some past events in my own life because watching you always helps me understand and process my own stuff. It’s beautiful to watch two souls connect and I’m so excited to re-binge your videos 💕
@endlessawareness
@endlessawareness 4 жыл бұрын
"Not sure where you are going with this Karl...?" Hilarious!
@Kriszee4
@Kriszee4 4 жыл бұрын
So happy Trikafta came out...what a blessing. You both have so much to teach us all about living life to it's fullest vs accepting impending death...we are all going to die so might as well live. Sounds logical but it's such a hard concept to grasp. I can't put what I'm trying to express into words very well or maybe it's too much to express all I feel but the gist of it is that you're both super inspiring and I'm super grateful. Thank you for teaching me so much about appreciating life ❤❤❤
@robertcurrie1160
@robertcurrie1160 4 жыл бұрын
Stephi looking Tanned & healthy,that new CF drug is a real life changer,TC 🙏✌️
@ButterflyElsy
@ButterflyElsy 2 жыл бұрын
I totally just binge watched some of your vids yesterday because I thought you were so cute and interesting. Something in this video you said really stuck to me and I felt compelled to say something like 24 hours later. While mentioning you know some "thing" out there you said you didn't want to label it..... Could you imagine having someone whom you love dearly who claims they loved you but they never wanted to say your name or outwardly express it to others? I pray that you find His name, babe! And I hope you learn to call Him by it! You have a form of Godliness- do not deny it's power. Much love!!
@stevescott2936
@stevescott2936 4 жыл бұрын
He seems way better then that oneeyevee guy. He was bad news.
@staggerindan16
@staggerindan16 4 жыл бұрын
ew i was hoping not to ever see that username again. yay for growth
@jmbtrain1
@jmbtrain1 4 жыл бұрын
I'm a 56 year old CF'ER and I have a couple of close friends with CF that I get together with and always have. I totally relate to the Laughing. One time I started laughing and coughing so hard I passed out.
@jmbtrain1
@jmbtrain1 4 жыл бұрын
@Belief is not a work Romans 4:5 Yes been on Trikafta for about 11 months. Took my PFT from 44% to 66% in about 4 months. Philippians 4:13 is my verse.
@taterkaze9428
@taterkaze9428 4 жыл бұрын
56!? OMG, you were born before advances in CF treatment tech (eg chest thumpers) and beat the laws of probability (ie infections) for more than 50 years, which is miraculous. Not doubting you, just wondering if you found a secret or two.
@jmbtrain1
@jmbtrain1 4 жыл бұрын
@@taterkaze9428 I got my first professor when I was about five years old in 1969, from my doctor for CF at UCLA. It was a converted variable speed jigsaw with a special cup-shaped rubber attachment for automatic postal drainage so my parents no longer had to do that twice a day. But there are arms got almost is sore holding the device as doing the postural drainage by hand.
@petersutherland3739
@petersutherland3739 4 жыл бұрын
It’s been a breath of fresh air to see you taking life on after Trikafta. My daughter has been on Trikafta for 11 months. You talked about the difficulty in stifling your cough during social situations. My daughter always tried to stifle her cough. That’s one great thing post Trikafta to watch her laugh without coughing so much. The other surreal thing has been the complete absence of cough every morning. She is 29 yrs old and now breaths so much easier. You always come across as lackadaisical with things. Was it always like that before Trikafta or did you have days where you were cynical and on the bottom of moods. I don’t know any other experience with only having our daughter sick. One thing you probably know is the complete loss of control over this disease you have. As a parent I could never show my true fears to my daughter. She had enough on her plate as it was. So just in case your parents didn’t say this I bet they felt helpless watching their child or children suffering so much. Anyway I’m glad you guys are living and not dying,... just as my daughter is now. All the best and keep on enjoying life.
@picklesgherkin
@picklesgherkin 4 жыл бұрын
This may sound a little bias but I think this girl is one of the most attractive on KZbin and I wish nothing but the best for her
@michelesaudi8030
@michelesaudi8030 4 жыл бұрын
pickles I totally agree with u..stephi is a doll.. beautiful in n out..I njoy watching her travel n living n loving her life..I wish her all da best.
@DIYToPen
@DIYToPen 4 жыл бұрын
Found the simp
@cestlaguy
@cestlaguy 4 жыл бұрын
What’s the bias?
@perfectlyhonest4139
@perfectlyhonest4139 4 жыл бұрын
She’s cute but looks like she needs a shower
@dalensiech1701
@dalensiech1701 4 жыл бұрын
@@michelesaudi8030 agreed a fucking doll😍🤤
@LeeAchim84
@LeeAchim84 3 жыл бұрын
Hello there from a dad of a one year old boy with CF. Thank you for your videos and the perspective you are giving. I wish you two all the best ❤️
@Mariaversaci197
@Mariaversaci197 4 жыл бұрын
I like you guys are very honest in saying "I don't know" when it comes to religion. So many people feel they either need to push their religion or their disbelief in religions. I agree with what you guys said about being a good person and not pushing others and liked your point of view on it.
@pjotrh
@pjotrh 4 жыл бұрын
I hope that both of you find what u didn’t know u were looking for.
@Jusmeh
@Jusmeh 4 жыл бұрын
That's how, "IT HAPPENS!!!!" 💘💘💘
@charleytumblety7315
@charleytumblety7315 4 жыл бұрын
Trikafta saved my life, I was at 19% and on the lung transplant list 6 month. I get everything ur both saying and agree on it all. I can pick up my puppy now I can bath my self now, I can move out and have my own home now!. Life is about living and I’d rather be unwell and dying then on my own with no family , 💘💘
@epipd5712
@epipd5712 4 жыл бұрын
You two are so 'CUTE" and really cool people. I hope you both get laugh forever.. much love to you both. Stephi, i love your channel..love, love, love!!!
@darkmaidenhorrorstories8464
@darkmaidenhorrorstories8464 4 жыл бұрын
Wishing you both a lot of and happy life. Thank God for the science that has saved your lives. I am an atheist and let's give credit where credit is due. Thanks for the people that raised money for research and the scientific breakthrough with this drug. Very happy for you.
@clevelandtaco1007
@clevelandtaco1007 4 жыл бұрын
Very interested in how you thank god for science. But then you say you are an atheist.
@gillian.grace6
@gillian.grace6 4 жыл бұрын
Love this comment!!! 👏🏼❤️
@mars7612
@mars7612 4 жыл бұрын
A bit less than a year ago, I finally met someone else who has tourettes. I know tourettes isn't as rare as CF but, I had never ever met someone else who had it. Now he's my best friend and it really is so cool to know someone who's had the same kind of life experience as you! Btw, loved this video ❤
@robinrapport8728
@robinrapport8728 4 жыл бұрын
It’s wonderful that both of you are doing well. I had a cousin with cf back in the 60’s and early 70’s the treatments were awful for him. At the time is was the oldest living with cf, passed at 17. He was full of life.
@nicholaskarako5701
@nicholaskarako5701 4 жыл бұрын
Y'all are awesome and Stepi's laugh is transcendent.
@HeatherLeslielovesheathbars
@HeatherLeslielovesheathbars 4 жыл бұрын
That was ME!! I'm the screaming Heather from FB! Love you guys!!❤😭
@StephiLee
@StephiLee 4 жыл бұрын
ahhh i love u!
@HeatherLeslielovesheathbars
@HeatherLeslielovesheathbars 4 жыл бұрын
💕💕
@elizabethbentley94
@elizabethbentley94 4 жыл бұрын
What i learned from this video- if CF doesn't kill you Stephi's driving will.
@StephiLee
@StephiLee 4 жыл бұрын
😂😂😂
@TheLawCoyoteTLC
@TheLawCoyoteTLC 4 жыл бұрын
@@StephiLee Stephi, Stay happy!
@PleaseForgiveYourself
@PleaseForgiveYourself 4 жыл бұрын
LMFAO HAHAHA CHILL
@ReginaTrans_
@ReginaTrans_ 4 жыл бұрын
I hope you’re dating him Steph ☺️☺️ he’s FINE
@lifewgabbyofficial
@lifewgabbyofficial 4 жыл бұрын
I 2nd this!! They're super fukin cute together!😍
@uyagraph
@uyagraph 4 жыл бұрын
Wait, aren't she dating someone?
@amysteele6540
@amysteele6540 4 жыл бұрын
Lonesome Kiddo no
@lenaguillen3820
@lenaguillen3820 4 жыл бұрын
The lil conversation about cows aka: Field Puppies 💕, had me laughing nd more happy than I can explain
@Jusmeh
@Jusmeh 4 жыл бұрын
I am so happy for the CF COMMUNITY. I am thrilled for the both of you. I have been a Steph fan for a while, but never saw anything on CF. I have Lupus & Avascular Necrosis (degenerative painful bone disease) Lupus (SLE & DLE). I found so much comfort in watching this vlog. I pray for some kind of cure, Rx that really helps. Prednisone is not an option to control pain & inflammation. It has eaten my bones! #SafeTeavels to you!
@chitternebacon6007
@chitternebacon6007 4 жыл бұрын
hmm I feel chemistry ;)
@_gatsby
@_gatsby 4 жыл бұрын
their body language is cute, they are both fighting it :)
@bmoneybby
@bmoneybby 4 жыл бұрын
Shipped
@brandonlarmon9692
@brandonlarmon9692 4 жыл бұрын
Righhhhttttt
@catloverKD
@catloverKD 4 жыл бұрын
I'm new to Stephi, I've followed Morgan for awhile now. You guys are great together and I seriously don't remember the last time I laughed this hard!
@TheChristopherBlake1
@TheChristopherBlake1 4 жыл бұрын
Wow ! Thanks guys. I have Rheumatoid Arthritis & have days that I can't walk or use my hands . I'm like y'all, I strive to appreciate & live in gratitude. Y'all grapped my HEART & touched my deeply! May U both have lives living the way u want Filled with lots & lots of Yoga, Lettuce, Laughs & most of all Love !!!!! Huge Hugs 🤗 Blake P.s. Y'all r not fat, just beautiful !
@taterkaze9428
@taterkaze9428 4 жыл бұрын
Stephi & Cystik1 - it's common for asthma patients to find that their lungs work better in dry desert air. Do CF patients experience this as well? Also, with your improved lung function, are you more able to handle high altitude breathing? You're both an inspiration to all people affected by chronic lung disease. Stay well.
@KateCarew
@KateCarew 4 жыл бұрын
I’ve wondered many times about the impact of Trikafta on not just the physical body but the emotional/physiological dynamic. I have left a couple comments alluding to such...and I’m glad to hear Stephi being able to articulate how absolutely bizarre it is to have to shift your entire perspective because you get to live a more “normal” life now...the days of not having to plan or think ahead are gone and people were so celebratory in the beginning all I could think was...how terrifying!! Yes, it’s good, it’s great and I know you’re GRATEFUL but it’s still so much to come to terms with. Stephi, be well, you know that so many of us respect and support your decisions because you’re nothing but kind and thoughtful. Be safe, be well and keep us posted 🙏🏻❤️🙏🏻
@peterhansen2347
@peterhansen2347 4 жыл бұрын
Well done guys! Thank you for the CF understanding, and your approach to life and dare I say, death. Definitely don't appreciate the things I have enough.
@cannabis1490
@cannabis1490 3 жыл бұрын
The wise one says : "I don't know anything." ( The more you know is the more you know you don't know anything). I love you both... thanks for sharing your lives with the Universe... we need you..One love from Jamaica.
@75sadiegirl
@75sadiegirl 3 жыл бұрын
I am so happy that you both are able to take Trikafta. My best friend growing up had CF and when I was 18 I started volunteering at a CF camp that she use to go to. Ya know back when CF camps were allowed. Now Camp Pelican is mainly a Pulmonary Disease Camp. Mostly trachs, vents, asthma, PH, etc, and maybe one CFer or sibling Cfers. Over the years I have lost numerous friends with CF. At times I just wish they could have lived long enough to experience drugs like Trikafta, Symdeko, and Orkambi. I kinda understand where you two are coming from with the "getting used to your friends dying". I know it sounds morbid, but after you have lost 30 plus friends to this disease it kinda becomes the norm. My therapist is still trying to wrap her head around the way I think about this. She thinks I am not processing grief, but in reality, I have just accepted death. Anywho, look forward to catching up on your videos! Love ya long time!
@msmith5015
@msmith5015 4 жыл бұрын
Stephi, so happy you found Morgan. Big hug to you,both!❤👍
@CottonCandySkie
@CottonCandySkie 4 жыл бұрын
100% screaming out loud love between you both! Wow! I feel the connection between you two! ❤️
@Celeste.Martel
@Celeste.Martel 4 жыл бұрын
I was smiling the whole time, this is great to see your vibes connect just so much. ^^
@GoblinPrincessKyo
@GoblinPrincessKyo 4 жыл бұрын
I ship it.
@catlady8069
@catlady8069 4 жыл бұрын
I have been a subscriber for a looong time and I’ve seen a lot of your ups and downs or at least what you’ve shown on your KZbin channel and to see and hear your progress with trikafta is so amazing it makes me cry 😭❤️❤️❤️ I’m so so so happy for you and I hope you enjoy your adventures and bring us lots of dope footage
@KensieP
@KensieP 4 жыл бұрын
OMG I loveeee watching you two interact. I just recently had my 28th bday and it was this huge weird thing because I didnt expect to live past 18 and now i've gone a whole decade past that. Like such a weird monumental life thing? I cant explain it, but I feel like you two would understand it. You guys are awesome, keep it up! Thank you for the laughs :)
@marareadsnchannels6885
@marareadsnchannels6885 4 жыл бұрын
Stephi you give me strength 💪 ❤ u have gotten me thru a rough dark transformational period a year or two ago. This year was dark for me but the fact that u thrive helps me thrive. I hope one day I hjave something for u to watch
@StephiLee
@StephiLee 4 жыл бұрын
you are amazing❤️
@marareadsnchannels6885
@marareadsnchannels6885 4 жыл бұрын
I love you
@shadowfigure3749
@shadowfigure3749 4 жыл бұрын
19:36 PTSD.. when I have my good days I'm still dealing with the trauma of all the bad ones. I can definitely empathize with y'all on that. What surprised me when I found out I had a cousin with CF, and I started following Claire, Stephi, The Frey Life, and Cystik to find out more about the lives of CF patients, how many similar symptoms we deal with even though our illness are vastly different.
@olfamilardew1056
@olfamilardew1056 4 жыл бұрын
BIG PIECE OF ADVICE, I drive these high roof vans for amazon all day and I’ve crashed it twice both on the high roof, you really can’t be too careful about that high roof, like for real, that’s like 90% of the accident with all the vans like for real, that van cannot go through any drive throughs.
@judyblueyes1275
@judyblueyes1275 4 жыл бұрын
Your comment reminded me of the King of Queens episode where Doug gets stuck through a drive through in his work truck....😂It would be embarrassing for real though 😖
@olfamilardew1056
@olfamilardew1056 4 жыл бұрын
@@judyblueyes1275 that actually happened to me and it was embarrassing af but it was in a fedex parking lot lol
@billpeck9489
@billpeck9489 4 жыл бұрын
@@judyblueyes1275 the key is to drive faster on approach
@christyhammer218
@christyhammer218 4 жыл бұрын
It’s amazing how I can hear your friend breath to where I feel like I would be struggling but it’s an everyday normal thing for him. I’m happy for you both and I hope you still live life to the fullest. 🖤
@pavelsmom1089
@pavelsmom1089 4 жыл бұрын
I would LOVE to see the medical team who produced TRIKAFTA awarded the (Medical) Nobel Peace Prize for helping awesome people like these two (and others) a better quality life! It is wonderful to see them all thrive instead of struggle!!
@Onyxnad
@Onyxnad 2 жыл бұрын
Watching this now after the break up :/ sending healing ❤️‍🩹
@youfinallyfoundwaldo1364
@youfinallyfoundwaldo1364 3 жыл бұрын
Having Lyme and many coinfections, it’s refreshing to hear other sickies talk about the issues they go through including dealing with “normies”, life restrictions, not getting enough medical help, finding some medical help that totally changed life’s outcome, the emotional tolls, getting better and new friends not understanding what’s happened and might/will again, acceptance and seriously just seeing people be honest about what’s going on. Thanks for being open and teaching us about it. (Do you guys laugh inside when someone says “I hope you’re alright/I hope you get better/How are you doing?” I never really know how to answer that.)
@97mrking
@97mrking 4 жыл бұрын
Subbed recently! Hearing both of you guys is nice, you both sound like good people! Thanks for the van life inspiration and for letting us in on these important talks! Cant wait to see what’s next from you guys!
@errorASMR
@errorASMR 4 жыл бұрын
this is stephies future husband, fyi
@MyName-bi4pt
@MyName-bi4pt 4 жыл бұрын
Ermergherd! They are so perfect together. But they wouldn’t be able to kiss and cuddle would they? They would accidentally kill one another?!🤷‍♀️🙄
@stopthephilosophicalzombie9017
@stopthephilosophicalzombie9017 4 жыл бұрын
@@MyName-bi4pt That's nonsense.
@stopthephilosophicalzombie9017
@stopthephilosophicalzombie9017 4 жыл бұрын
@@MissMarvel_ Generally speaking no. 😉 Jk, sadly when the woman is as attractive as Stephi, the dude is pining for her. It’s just the way men are made.
@nikola3884
@nikola3884 4 жыл бұрын
@@stopthephilosophicalzombie9017 not gay men unwysuf4r
@stopthephilosophicalzombie9017
@stopthephilosophicalzombie9017 4 жыл бұрын
@@nikola3884 Well yeah.. But I'm not thinking that's what that girl meant.
@soapandbutter
@soapandbutter 4 жыл бұрын
Every Stephi video makes me happy for some reason.
@jtsmith4434
@jtsmith4434 3 жыл бұрын
i love that all the people on here that are ok with death, some way or another. love your energy.
@vinnyfred4020
@vinnyfred4020 4 жыл бұрын
Love is a beautiful thing, glad you guys found each other❤️
@kdog9104
@kdog9104 4 жыл бұрын
she is such a libra i love her
@Kriszee4
@Kriszee4 4 жыл бұрын
I'm so happy you guys met! I've been subbed to you both for awhile and it's so cool to see you guys collab. ✌❤✌❤
@joannewilson6847
@joannewilson6847 4 жыл бұрын
Such a fun couple. Happy travels you two. You kind of seem perfect together. Good find Steph. Have fun and go explore this country.
@joeybtheman1906
@joeybtheman1906 4 жыл бұрын
"i don't know anything" is a good way of viewing life
@Nikki-sf6bs
@Nikki-sf6bs 4 жыл бұрын
I have followed you both for quite some time. The miracle you both are makes me cry with happiness. There was a time I feared you both would die! THIS MAKES ME SO HAPPY!
@Strawberry95shortie
@Strawberry95shortie 4 жыл бұрын
You both have very sweet energies. I hope you have a great time traveling together. 🙏❤️
@summerangelmartinez5344
@summerangelmartinez5344 4 жыл бұрын
I said this before I think but damn her laugh is so infectious I love it. Every time she left I freaking start laughing. I think both of them have a sense of humor that's wonderful.
@supergran62
@supergran62 4 жыл бұрын
I’m a CF Nana of a 13 YO on Orkambi. . I love that you two are able to get together, totally able to understand each other.
@kathydebby606
@kathydebby606 4 жыл бұрын
So popular opinion ( I’m sure) CF aside I think y’all should date. You guys are so well matched!! Quiet, talkative. Both sweet and cute. CF common ground just enhances . GIVE US WHAT WE NEED ❤️ - love, a longtime follower
@weirdmanu
@weirdmanu 4 жыл бұрын
He's cute!
@redrickgrass
@redrickgrass 4 жыл бұрын
What a great video. you 2 are showing the world how you can live with CF. Much Love to the both of you. Happy Thanksgiving to all 🦃🦃🦃😍
@CloudSpirals
@CloudSpirals 3 жыл бұрын
One of my best friends EVER died from cf. We were hospital buddies from childhood then into adulthood. I'm 42 now and still surviving, miss him so much. He was stronger than I ever was. He made me a stronger person, should of been me that went first..
@bigyoda7050
@bigyoda7050 4 жыл бұрын
I love the positivety from the both of you, i wish more people were that positiv. Lots of love from Holland for the both of you
@jefflawrence67
@jefflawrence67 4 жыл бұрын
You're both amazingly beautiful souls!! Love the interaction and such dynamics! New subber to both of ya! Much 💘
@sherryraisbeck9547
@sherryraisbeck9547 4 жыл бұрын
Wishing you both continued success and good health!!!!...love you, Stephi 💛
@donnahanfordnichols6573
@donnahanfordnichols6573 2 жыл бұрын
I have my (common law) husband’s & my initials connected by an infinity symbol on my non- covered in bracelets wrist. I described what I wanted to the artist & he did it perfectly, free handed. My hunky (& I mean HUNKY) body builder, gym EVERY day hubby has the word KAT in enormous letters on his arm. I secretly had “final destination” in tiny cursive lettering on my ankle. He wept. We met in rehab & have been living our sober lives to the fullest. God saved the best for last. I’m 13 yrs his senior, but we act like 19 yo smitten kittens. When you know, you know. Prevenient grace, intellectual conversations & also a hunky “you know what.” I am truly blessed & delighted that you found each other & are sounding wonderful. I actually love your raspy voice. I’m glad you’re alive & unhindered by your disease. One word: inspirational ❣️
@anthonypadgett2939
@anthonypadgett2939 4 жыл бұрын
Stephi you are such a beautiful person, your new found smiles are so infectious. Such an inspiration!!!
@SeekerKC
@SeekerKC 4 жыл бұрын
I'm just so thrilled for you both! And it IS wonderful to hear you really laugh!
@krislarsen7587
@krislarsen7587 4 жыл бұрын
You two are adorable! Such great news to hear what tricafta has done for the both of you. I love to hear what a new lease on life for the both of you
@bethcameron5863
@bethcameron5863 4 жыл бұрын
It’s great to see you both together, you seem to get along really well, it’s nice to see.
@michetrue-aspoonielife4me389
@michetrue-aspoonielife4me389 4 жыл бұрын
What a great chat & Q&A session with you guys. 💜 how open you both are. I don't have CF, I have COPD so I get the breathing thing, laughing & coughing attacks, trying to get mucus up blah blah blah. So I understand some things CFers go through. I'm on meds that puff me up like a stay puff marshmallow. You guy's are very cool & yes, the Collab that I didn't know I needed & apparently I do. Thank you both 💓 cheers 🍻 I've followed Morgan for a longtime & now I'm following you #StephiLee your adventure are rad girl! 🌻☮ 🤟
@whiskythrottle8421
@whiskythrottle8421 4 жыл бұрын
Hope y'all can turn this into a life long friendship! It's very rare to meet someone that you can relate to in a way that not many would understand. And if you get along that's just a cherry on top! It's funny how he mentioned MRSA, I got that at 14 from a ingrown toenail that traveled into my bloodstream by going to a theme park while on a family vacation. I didn't want to ruin everyone's day by going to the doctor when it was just what I thought was a badly infected ingrown toenail when we all had that trip planned and I guess by going on all the Rides it was in my blood stream by that same night. Since I was in Pennsylvania we didn't know of any good hospital's so my mom took me to the closest one and I sat in there for 3 days with a 105 temp with my hip killing me and they didn't do anything. They didn't draw blood or nothing. So finally after 3 days a nurse told my mom to transfer me to Pittsburgh children's hospital. I don't remember any of this I was hallucinating so bad. But I guess they figured out what was wrong right away and got me into surgery on my hip but by that time it did so much damage I was eventually going to need a hip replacement but they were able to get it to last until I was 33 is when I finally got it. But from having the MRSA running through my body for those 3 days in the hospital it gave me long term Heath issues ever since. My immune system is super weak I'm constantly getting sick. That's the frustrating part because alot of my friends don't really understand what's wrong half the time. So that's my little story on MRSA lol. I'm really glad y'all we're able to meet in person and I hope you're enjoying your travels Stephi! You seem like such a free spirited person with a kind soul, if you get a chance to make it to the Daytona Beach area in Florida and need a place to plug in to recharge up you're more than welcome. It's right next to the river so there's alot of fresh air 😎🌊🌴🧘🏼‍♂️☮️
@jeremyanthony9300
@jeremyanthony9300 4 жыл бұрын
Stephi. It's people like you who make a difference in life.
@susie9010
@susie9010 4 жыл бұрын
I have been following you for a while now Stephi.... and I am so, so happy for you and your friend! I admire you so much because you are not afraid to live life to the fullest. I wish I was as brave as you, when I was your age! Wishing you both so much happiness! P.S. you look gorgeous too..... 🙏🏻💞
@rrovin85
@rrovin85 4 жыл бұрын
Great to listen to you both, I love your attitude/s and philosophy ... My difficulty is different to what you two have had to deal with, I find it kinda motivating to listen to you both, thanks heaps
@teresastephens
@teresastephens 4 жыл бұрын
Oh Steph, You have always been beautiful, But look at you now! Your skin is glowing! You look amazing!
@sxcredjones4034
@sxcredjones4034 4 жыл бұрын
This was amazing I’m glad you and Morgan did this video
@sgrafx
@sgrafx 4 жыл бұрын
Awww you love him. 😁
@noelshriver7261
@noelshriver7261 4 жыл бұрын
You can tell He's Smitten.. That's probably why he talks so much because he's nervous. Steph just laughs. Sooo Cute.. 💞✌🏻
@dalensiech1701
@dalensiech1701 4 жыл бұрын
Haven’t even watched the video yet and it’s obvious they’re meant to be together😂
@michaelaridge4462
@michaelaridge4462 4 жыл бұрын
This makes me so freaking happy! 🥰
@MyHeartStrings55
@MyHeartStrings55 4 жыл бұрын
I watch both of you separately and i think this is great!!
@TW22563
@TW22563 4 жыл бұрын
You can tell they like each other, it is so cute.
@lynettez72
@lynettez72 4 жыл бұрын
So happy for you both! Enjoy your new healthy life. Much love!
@Mr.GatoMuinato
@Mr.GatoMuinato 4 жыл бұрын
Being able to laugh is probably one of the best things to come from Tricafta for me, besides the whole being able to breathe and live longer thing lol. It was always so embarrassing to be with friends and if I was brave enough to laugh, start dying after. I had held back from laughing because of the coughing fits because I didn’t want to tell anyone I had CF. I never wanted to be looked at differently as I’m sure you have both experienced. When I was 12 I was told I wasn’t going to make it past 20 years old. I’ll be 28 November 29th so suck it Docs lol
@Ishdue
@Ishdue 4 жыл бұрын
..when you’re living in a van down by the river ✨❤️ missing Chris Farley
@ufodude1000
@ufodude1000 4 жыл бұрын
i think i have this i always have that build up in my lungs and always clearing my lungs. well maybe not but this clearing my lungs all day is driving me nutts so tired of a liftime clearing and coughing.. Very happy for you both!!
my journey to fitness with cystic fibrosis 💪🏼
12:27
Stephi Lee
Рет қаралды 50 М.
saying goodbye...
11:33
Stephi Lee
Рет қаралды 128 М.
Quando eu quero Sushi (sem desperdiçar) 🍣
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Los Wagners
Рет қаралды 15 МЛН
小丑教训坏蛋 #小丑 #天使 #shorts
00:49
好人小丑
Рет қаралды 54 МЛН
i'm not traveling alone anymore
8:46
Stephi Lee
Рет қаралды 111 М.
my first days of van life 🚐
11:21
Stephi Lee
Рет қаралды 167 М.
i got really sick in asia
7:59
Stephi Lee
Рет қаралды 172 М.
we broke up & i'm moving back in the van full-time
11:40
Stephi Lee
Рет қаралды 219 М.
Why I quit YouTube to become a tattoo artist
6:02
Stephi Lee
Рет қаралды 63 М.
an update on my lung function
6:24
Stephi Lee
Рет қаралды 162 М.
first scary moment in the van (and why i left LA)
10:30
Stephi Lee
Рет қаралды 92 М.
the van build is complete and i'm moving in 😍
10:57
Stephi Lee
Рет қаралды 382 М.
having an existential crisis after my life expectancy changed
9:13
my life expectancy has changed and i'm freaking out
6:12
Stephi Lee
Рет қаралды 413 М.