"I Was In Bed For 14 months Straight With This Disease" | Listen Up | ABC Science

[@Joe-sw9nk]

Poor guys going through this. As a nurse, I've taken care of these patients post op. Best wishes and thanks guys.

[@saltiestsiren]

girls and women get it too

[@Diazidocarbamoylazidotetrazole]

I've got my 4th surgery and I don't know if there can be anything more painful than this.

[@eeccee11]

NOTJUSTMEN

[@jean-pierremestanza8186]

I'm recovering from my 2nd surgery right now, and it's been a massive drag. They've pulled out enough hair to make a Furby, from inside my body. Ut was rubbing up against my spinal disc. Going to get laser hair removal from the area after this, but I was embarrassed to talk about this for years. Wishing everyone who has this a ton of luck and know you are not alone

[@StrawberryNinjaNibbles]

How could you not feel it prior to forming a cyst, like when cleaning yourself etc? Don’t you see or feel a pimple or in-grown hairs first?

[@spacepirate9882]

@@StrawberryNinjaNibbles He said "but I was embarrassed to talk about this for years", it's like having one of your balls getting bigger or hemorrhoids, many people have problems to talk about those problems to a doctor because of where the problem is.

[@lindaarmstrongjackman9788]

@@StrawberryNinjaNibblesNo, it happens under the skin.

[@StrawberryNinjaNibbles]

@@lindaarmstrongjackman9788 ingrown hairs technically happen “under the skin” as well, but you can still feel them and from what I’ve read this starts in a similar fashion

[@StrawberryNinjaNibbles]

@@spacepirate9882 that makes more sense

[@ashrithmunikuntla9686]

I'm in tears after watching this, I have this disease from 18 and now I'm 24. I had underwent couple of surgeries and multiple treatments to solve this, but it never goes away! I was a confident, good looking, great dancer back then. I've started to lose hope slowly. My body is not the same, my immune system isn't great, I had to put a surgical pad always near my lower back due to infection, bleeding, it smells badly, it hurts, It eventually will break you mentally and physically . But, I'm not giving up on this. My distraction is business. I have a knack of startups and I find myself happier only there. Good to see there are people who have understood themselves, didn't give up, motivated others and had set an example on this. I'm happy to have come across this. Lots of love to dylan and many out there who are suffering with this! stay healthy, never lose hope

[@dylanconway5839]

Keep up the great work my friend you’ve got this ❤

[@DMac-gh7cy]

I have this, too. I had what they called "Z-plasti" in 98, which is what I believe the guy in the video had, and got a massive infection. Then 11 more procedures until I found a surgeon who's friend, Dr Bascom, had perfected some new technique and had witnessed him doing it, so he tried it on me and it worked. I never had another one. I bet you could find information about it and a surgeon who could perform it with a Google search now. I'm really sorry you're having to deal with this.

[@RubMySweatyThighs]

Keep up you head I honestly had no idea this was a thing

[@DMac-gh7cy]

I have this too. I had 12 or 13 procedures before I found someone who knew how to perform the "Bascom cleft lift". I never had another one. Please look into this. There was no "ultrasound guided simple technique" when I had it. I believe I was the first person to have this procedure performed by anyone other than Dr Bascom or his son. My surgeon was friends with him and had been in the OR and witnessed him performing it. I'm so lucky to have found him when I did. My recovery time was nothing. He also fixed some of the butchery the others left me with. I hope this helps you, man.

[@Asc-yc5me]

What kind of start up??!

[@RainbowBabyMumma]

My daughter has suffered 4 or 5 surgeries starting around 17. Shes now 20. Her mental health suffered from the deformities of the surgery thinking no one will want her. Breaks my heart! ❤ i spent 2 years constantly packing her wound daily and seeing her pain. She has been free from it for 6mths now. I pray it never comes back. It stole 2 years of her youth at a very impressionable age. Thankyou for putting this story out there.

[@SevenDyone]

Hi, im 14 years old, what did your daughter do to cope with the pilonidal cyst mine is severlu infected this is my 3rd time having it and its so painful

[@RainbowBabyMumma]

@SevenDyone I'm so sorry you are going through this. Have you been to the dr yet? Where are you from? My daughter requires surgery every time it gets to this point. But every case is different.

[@SevenDyone]

@@RainbowBabyMumma im from texas, im currently going to a doctor to get it removed i would do anything to get rid of the pain its horrible

[@RainbowBabyMumma]

@SevenDyone by the sounds of it you definitely need it drained and most likely surgery will be needed.. If its severely infected I hope they have you on strong antibotics and good pain relief. The pain won't go until the infection is cleaned out. However it's a long recover as it will need to heal from the inside out depending on how they want to deal with it. Let me know how you go

[@SevenDyone]

@@RainbowBabyMumma i have surgery tommorow and i am really scared. I feel like the surgery will hurt more than the cyst itself i feel like my toosh is going to look wierd 😕

[@Momcat_maggiefelinefan]

My son has the same condition. He’s had two surgeries and is now considered cured. I pray others with this syndrome achieve similar success. 🇨🇦🖖🏻🇨🇦

[@thuggoe]

why does this happen

[@Momcat_maggiefelinefan]

@@thuggoe From what I’ve learned throughout my nursing career, Pilonidal cysts, as they’re known, form due to a “pocket” of loose skin at the lowest part of the spine, right above the cleft in your butt cheeks. Frequently there’s a hair in this pocket. Irritation within the malformation can results in a puss filled cyst. Best way to treat the condition is surgery. Draining the cyst seldom works. Excising it surgically works best, as the whole pocket formation and cyst, once gone, stays gone. Draining the pocket only helps temporarily. If you’ve got a persistent lesion, see your doc and get it removed. There’s a lining, the capsule, which must be removed or the whole thing recurs. That’s why my son needed two surgeries. Once the capsule was gone, his problems were over. Hope this is the info you need. 🇨🇦🖖🏻🇨🇦

[@digby_dooright]

Thank you for explaining the condition. From watching the video I thought his hair was growing inside his body and I was kind of horrified. Now it makes sense. @@Momcat_maggiefelinefan

[@meth9654]

​@@Momcat_maggiefelinefanim a 19yars guy from France and i think i got that thing now, it is small and dont hurt that much but has the same reactions as people share over there.... How to say it i need my backs since i work with car and stay sat is a thing i do a loot, but im shy to tell people even though i now how i will end up if not treated right...

[@TravellerDoctor123]

​@@ankitchoudary7722ankit kon kon se surgery krwa chuke ho aap ? Kahan se ho ? Meri bhi surgery hui aur dobara hogya

[@butterflyprincess4602]

I don´t have this disease but, just one ingrown hair on my calf led to skin cancer. The ingrown hair became a scab that kept falling off and bleeding and never formed a scar. After a few years of observing this, I finally went to a skin specialist, who cut it out, sent it for a biopsy, and told me later after getting the result that it showed I had skin cancer, and that it was all removed now. My calf finally formed a scar from this procedure , and now it´s all good.

[@goshdarnit]

Get yourself organic rosehip seed oil and it will diminish the scar, harm free. Rosehip seed oil is nourishing source of vitamin c and shown to reduce burns and scar tissue.

[@dlinsk401]

Make sure you keep going back to Dermatologist for skin checks

[@Roddy556]

Was the bleeding part important? I have a small patch of skin that grows on my lip that keeps reappearing.

[@butterflyprincess4602]

@@Roddy556 I think so. The abnormal cancerous cells were not allowing the skin to heal naturally. For your own piece of mind, get it checked by a skin specialist.

[@Ava-cq1zi]

@@Roddy556 Patches of skin which bleed and do not heal, can be a sign of skin cancer. Go get checked up!

[@lauren6509]

I love the men in this comment section sharing their stories and having unity. Being vulnerable can be scary, but sharing these stories help others not feel so alone. Very inspirational and I wish y'all all the best 💖

[@jenniferaddison3829]

High five my fellow KZbin friend! Hopefully it helps someone who is ashamed to drop their pants and ask their doctor, “ why does my crack hurt, bleed or ooze into my boxers doc?”

[@nicolad8822]

Not just men that get it though.

[@lamppuu1]

Im a woman and i've had this disease since i was 17... 😢 I've had 3 surgeries, multiple multiple lance and drain operations.. it just keeps coming back and im so done with surgery, it has like a 6 month healing process and the wound care hurts SO MUCH..

[@amycarter8497]

@@lamppuu1I’m so sorry for this loss in your life. Wishing you peace, safety and love.❤

[@ayushsaraf1605]

@@lamppuu1 I just had this surgery 2 weeks ago. I cannot stop screaming when the medic does the dressing on the wound. It is the worst pain I have ever experienced in my life. I am sorry to hear that you had to go through 3 such surgeries. I cannot even in my wildest dream think about getting this done to me ever again. I hope they find a better cure for this disease.

[@jenniferaddison3829]

I used to perform this surgery while underway in the Navy and doing the dressing changes every day, re-packing the wound, to allow the wound to heal from within and I’d cringe each time because I knew how painful the dressing change was. I hope you heal well and you’re so strong to be facing this with such a positive attitude!

[@MrsBrit1]

I had surgery, left open to heal, almost 20 years ago (not caused by a hair....I be!ieve a call I had a few years earlier May have caused mine). My husband was shown how to pack and dress it. It didn't hurt at all. Minor discomfort. The tape caused me more pain by causing a reaction on my sensitive skin. That part felt like burns. Tried sensitive paper tape, but it didn't help, so no decided to just do no tape. It took 14 months to heal over.

[@MrsBrit1]

Fall....a fall I had.

[@AdamosDad]

Back in the sixties there was a guy in my bootcamp company (we were all medical holds, me for glasses) there was a great bid guy that had thins problem, he would get puss and blood, on his skivvies, that caused us problems during inspection. I now have a better picture of what he was going trough.

[@Lily_of_the_Forest]

I’m sorry for everyone dealing with this.

[@nicolad8822]

Were they expected to work? Don’t see the point of taking sailors with this to sea.

[@ahill4642]

Dylan, I can feel it that you are helping so many people by being this open about something no one wants to talk about. That is such important work, it can save a person’s sanity knowing they are not alone. Bravo! And the book project could be saving sanity/lives, too. I admire how you’ve made the absolute best of a massive challenge in your life by educating and helping others. 👏🏽 ❤️

[@fishepa]

For anyone reading these comments that has pilonidal sinus disease, look up the cleft lift procedure. It is a different kind of surgery for this disease that is much more effective than leaving an open wound to heal. It has about a 98% success rate.

[@RACHELLEflo]

My son is the 2 percent... He needs a second surgery. It's been 9 weeks and I'm still packing his wound every day. It's been horrible!

[@AnnaStefaniPh]

Got this done my third and last time and it worked! Nothing since 2008 now! So good

[@Drobium77]

That's the surgery I had around 5 years ago now, they took a chunk around 5" by 3" and at least an inch deep, but closed the wound with a drain tube and it healed really quickly. I've not had a relapse, but do suffer with lower back problems and slight numbness, but not enough to incapacitate me (finger crossed it never comes back!!)

[@stevenbarker82]

I've owned this for a decade now. In just the last 18 months, I've undergone 8 surgeries. This recent series of procedures has taken a significant toll on me, both mentally and physically. I was bedridden until May. Even though I still require daily dressings, I'm finally able to get out and socialize again. Feel for anyone going through the same - people not understanding why you have daily nurse visits and an open wound for months. Still find this one of the hardest things to explain.

[@lamppuu1]

To me it seems like surgery is not the best treatment option.. I've had 3 surgeries and it just keeps coming back.. I've had this problem for over a decade too. Im SURE there's other options than surgery, but no one seems to be looking into it. I have to work a desk job while having the infection because i am so tired of surgeries and the healing process. I have buttpain literally 24/7

[@rumblefish9]

If its hair, would IPL treatment help prevent it? IPL after numerous treatments can kill hair roots. That would prevent any hair from digging into the skin.

[@stevenbarker82]

@@rumblefish9 yes if you did this as soon as hair started to show, you might stop it from starting! The issue is once it’s started, there seems to be no end to the operations to try and resolve it. I’m taking time off operations for now my body needs a break. I still have an open wound from my last operation in January. That’s the hardest part to explain, why they can just stitch it shut.

[@ParisfromTexas]

Hi Steven, happy new year. How are you doing now? Hope all is well.

[@Pegasus11.11]

I wonder if laser hair removal would help?

[@NS-xt5wv]

I’m a woman, and I had Pilonidal cyst removed when I was only 17 (it was a very rapid onset inflammation, I had high fever and couldn’t walk, they operated on me 2 hours after diagnosis). My surgeon did and excellent job by removing the cyst and closing the tunnel, I healed very nicely and haven’t had a reoccurring surgery anymore, it’s been 20 years. The only problem is that because of the scar my bum is a bit uneven where the cheeks end 😅 but I’m not flashing it so it’s no biggie. I feel like this guy has an extreme case, I feel so bad for him. He should consider lasering hair off this area, it helps to put hair follicles to rest.

[@bamagirl952]

Also female, I had one removed when I was 12.

[@Sariss1984]

Same (also female), I had this when I was 16; took 2 operations to completely remove it. So horrible and painful. My sister then also had one at the age of 18. Was told by the doctors it affects people under 30 the most. After over 20 years, the scar from the operations I had has shrunk a lot and barely noticeable.

[@jacqsprat4645]

I’m a female and had one at 16 that I ignored weeping and pain for about 2 years until it fissured through into my rectum. I had one surgery and I’m now 40 and it hasn’t come back.

[@JSishereeeeeeeee]

Same here. I had mine removed back in 2017. Hopefully never again!

[@NS-xt5wv]

@@jacqsprat4645 omg how painful

[@mj19911]

Thank you for sharing, Dylan! I have been dealing with this now for over a year. This helps me not feel ashamed of what it is, not feeling alone either.

[@dannywildsmith6459]

look up "de-roofing", worked for me, read my post above good luck.

[@Ashley_Lauren]

Love this dude! Because most guys wouldn’t do this! He truly IS EVERY SENSE OF THE WORD HERO! Not just for his service! But for what he is doing now! He coulda gave up! He shoulda gave up! But he didn’t! He turned victim into victor!! And I’m so proud of him! Hope he has many blessings in this life! Such an admirable soul! ❤

[@rodsawhite]

I had two surgeries for this in my late teens and the shame I felt around where the scarring was and how it affected my fitness was crushing. It took me over a decade to finally accept and talk about it without feeling the need to lie about where it was or what happened. I feel for anyone undergoing or having undergone the same procedures. Similarly it was self help and Buddhism that pulled me out of the dark hole this left me in.

[@BisAndTrisBrah]

The problem is that too many surgeons are still performing outdated procedures for this disease (i.e. closed and open midline excisions). In the case of closed excisions, the wound often falls apart due to shearing forces, and the deadspace underneath can lead to reinfection. In the case of open excisions, the wounds often fail to heal - or heal very slowly - because a deep, moist, underated, bacteria-ridden cleft is not a conducive environment to wound healing. The main cause of pilonidal disease is a deep natal cleft - that's why the procedures that change the contour of the natal cleft to make it more shallow and move the incision away from the midline (i.e. the Bascom cleft lift and Karydakis flap) have vastly superior outcomes. A Cochrane analysis (systematic review) found that closed excisions had a 60-70% failure/recurrence rate over 10-20 years, and open excisions had a 30-40% failure rate. In contrast, the Bascom cleft lift and Karydakis flap had a 2-3% recurrence rate. The problem, though, is that you have to find a surgeon that's experienced with the procedure, so it may require travelling. But honestly - try to avoid midline excisions if you can. If you don't have access to a surgeon that does the cleft lift, look into minimally invasive procedures like pit picking, GIPS, or EPSIT.

[@eduardocod8924]

I had the open one nd it took 1 whole year for it to close, it was annoying but not painful. Hopefully it spent come back. You know why it happens ? Sitting for to long

[@NS-xt5wv]

I had an open excision. I’m 20 years post-op without recurrence. Feeling really lucky to have healed so well, but where I am from you’re hospitalized up until the moment you are completely healed, so I was having daily professional wound treatments with cleaning and ointments by a nurse for 2-3 weeks which I guess helped a lot. I left hospital with a very superficial wound (maybe a couple of mm deep). Not sure how US HCS works but probably they don’t keep you in for weeks to treat you until you’re healed for free.

[@gwills24]

I had cleft lift surgery 10 years ago, just got lucky while researching and found a doctor that performed this technique only an hour drive. One week recovery and no recurrences.

[@glolikejaaay]

@@gwills24is the scar visible???

[@tayplaysgaymes]

Thank you for sharing this

[@Irishcoleen948]

My daughter had her first bout at 14 yrs old.She was such a great patient even though she was in agony. Over the years it kept coming back and overall she’s had 9 surgeries. Did you know it’s called Jeep drivers bottom, when in the wartimes the friction of the jeep going over rocky terrain. It’s prevalent in redheads and people with very strong curly hair. My daughter hasn’t had surgery in over ten years but she gets bouts, especially at stressful times. The smell is very strong and so embarrassing for the patient. Two of my sisters also had it, but after surgery it never came back for them. It’s a curse. I remember changing her dressing’s and I was crying for her, it was like a hatchet cut. Poor doll, she never complained, just got on with it. She’s a warrior.

[@daniellamcgee4251]

Holding it all in is bad for physical and mental health. There have been studies on the immune system, other body systems, as well as mental health about this. ' It's better out than in.' Also, if not complaining, other issues can be missed. My child is 'warrior' too. It has lead to late diagnosis of a degenerative disease. There is no cure. Slowing the progression is much more difficult now, and damage has been done. I wish my child had complained like typical children. Your daughter probably needs to know you can cope if she vocalises what she really feels. It is not fair on her to always be worrying about you, and strong for you, and everyone else, when she is the one enduring the surgeries, etc. Also, if she is shut down from expressing her pain, discomfort and concerns, she may be depressed. It takes courage to live through emotions. Your daughter probably needs to feel safe and free to go through her process to help her best heal, and preferably with your support, rather than all she goes through alone not to upset you, and to make you proud of her. 😢

[@CarolynMcPherson-r3z]

You are so brave! Congratulations on not letting this thing get the better of you.

[@tayriobravo6204]

I’m so sorry for everyone having to deal with this disease. Not only is it probably very difficult to talk about , but also to live day to day with. Thank you for sharing your experiences.

[@__Koala__]

My son has the same issue and I treated his wounds for weeks and weeks. So severe and it is chronic. Having back lashes all the time. Feel sorry for that situation wish you all the best.

[@bilal_de_mirza323]

Going through this right now man! I hope I get cured… Thanks for making this video…

[@yassinegm3797]

Hope get well brother

[@MarieSino]

My Husband had this cyst but not reoccurring.

[@guymummery6996]

Do you get pains in your legs??

[@ayarioussama3396]

I Hope you get better ❤,🙏

[@palace927]

Get laser hair removal. It worked for my son and he never got another infection.

[@billyenyart6146]

I went thru this in last year of High School, it was the most painful thing I had ever gone through. And the embarrassment was real, I didn't talk to friends about it, and it has had a lasting effect on my life. Mine has never come back, and hope it never does, but good on you for posting this. Thanks,,,

[@orellagillette2484]

He’s so kind for sharing his story.

[@marybell7253]

It took me 7 surgeries and a 13 inch scar to get healed. I wouldn't wish it on anyone. Thanks for sharing your story. Hang in there!

[@jwelchnz87]

Hey all. I lived with this disease for 10+ years. 1st surgery was an absolute disaster. They performed a Karidakis Flap. Worst procedure ever, never allow this. After that within a year, recurrence. I refused to have it fixed, lived on antibiotics for years. I was then seen by public health and offered a technique called Z-plasty. Reluctantly I agreed, healing time, 3 weeks. Life was normal after 10+ plus years. 6 years on, no recurrence - it’s like it never existed. Feel what you’re all going through.

[@ijustateyourrdog]

This is why you go for the Bascom Cleft lift.

[@dannywildsmith6459]

@@ijustateyourrdog no need, its just a small sinus to clean out in idia its a day procedure awake - just need to get the hair and debris out, not a cleft lift of any flap for that matter.

[@user-qx8ec7bl2g]

Was this zplasty surgery done in the UK?

[@kateweedman6267]

I have a great nephew with the same disease, and he has had laser hair removal around the entire area. That seem to have helped him a lot. I wish you the best of luck in the future with this horrible disease and admire how you’ve come thru it.

[@roseharvey2664]

I have never heard of that before. Only seen ingrown hairs being removed that are near the surface. This sounds dreadful.

[@glolikejaaay]

Omg did the laser removal work for him? I have this sadly but I manage to get rid of it before it become a cyst , so I basically get flare ups every now (like a pimple) but I kinda wanna go to the doctors to get it removed permanently , idk what surgery is more better and for it not to look ugly back there lol

[@koolaidcrusade7776]

@@glolikejaaay Which country do you live in?

[@janwarriner6554]

I have so much admiration for you. You turned a nightmare into something good for others. I don’t have what you have but I’m disabled. I needed to find a purpose. I had always done volunteer work when I was working in my career. So now I do volunteer work online mentoring others that are overwhelmed and newly diagnosed with what I have. I am housebound. It makes one feel good to help others. And what you’re doing is fabulous. Best wishes to you. Stay healthy if you can (!) and thank you for helping our vets. ~an Army mom

[@Ambitiousmusicofficial]

I have the same thing 30 year old it’s absolutely ruined me I suffer already with bad mental health and this has just made it worse for the last 4 months I’ve been back and fourth from hospital , antibiotic courses will clear the infection then a month later it’s back again finally got my pre op on 3rd February and my operation on the 26th February I’m from 🇬🇧 and just hope they stitch it up ngl I am absolutely bricking it as never had surgery before in my life

[@Robsav-yx6vi]

Omg . So sorry. Thank you for sharing your story and helping So many people through this difficult journey. Your a strong special Man , sharing your story. Very impressed in how much you’ve made Such a positive impact on so many.

[@nicknewman7848]

Dylan, you are a class act and an example to others on how to cope with adversity. Big up!

[@dotunderscore]

“Nobody wants to talk about butts…” I’ve also had numerous rectal surgeries, and he’s SO right lol :) Glad to see he’s doing well

[@lilitheden748]

Such courage. This disease is truly crippling. I hope he doesn’t have to suffer anymore.

[@carolmacpherson9428]

You are a handsome young man who has been through a lot but look at what you’ve accomplished. I am an elderly woman now but ten years ago I had back surgery and got a severe infection. They had to dig quite deep and it left a hole and awful scars. I don’t mind and am a happy person who appreciates life. You will come out on top of this situation God bless you and the work you do to make life more bearable for others😊

[@JM-ym8mm]

I've been dealing with this for years but luckily I never needed to go in to have it looked at. It is one of the most embarrassing things to ever go to a clinic for.

[@palace927]

My son had this when he was 19. We brain stormed with some medical personnel and we all agree he should get a laser hair removal in that area. It worked. He never had another infection.

[@juliej5917]

I saw images on Google, and this condition seems so incredibly painful. I have a friend who had colon-rectal cancer. She lost her rectum, colon, and all her reproductive organs including vagina. They were able to save her bladder. She has a stoma bag, and an incredible loving attitude. Much love to anyone that has survived a life changing surgery.

[@cellphoneyay]

I have it and it is the absolute worst

[@VintageVegans]

What does her surgery have to do with this man’s condition?

[@mr.puddles5246]

@@cellphoneyay I'm genetically predisposed to get it. How are you holding up?

[@queenofstitcheswarrior2668]

@@VintageVeganseverything it’s about getting back up and deal with your illness. The psychosocial part of it as he explained this is exactly what he needed to address. By reading about other peoples experiences and coping skills . You can’t change your health, heal your chronic illness but you can learn new coping skills that make it more bearable so you still experience positive feelings etc. Your comment is very rude, no empathy whatsoever

[@rabblerousin8981]

@@VintageVeganswhy bother commenting? Booooo

[@R.Oates7902]

You are brave for coming forward with your condition. I've never heard of this disease before! Wow!

[@laurayoung5006]

Hi Dylan. Thank you for sharing your story. My son is 17 and has been going through this for 4 years. He has just has his 3rd surgery. He has missed most school and college but still remains to be the most resilient, strongest person I have ever known. Your story is very encouraging and helps put the information out there for others to learn from. Laura

[@ptb7782]

Ive had this for years, where it would come and go away (with oral and ointment antibiotics). A year ago, during exams (and excessive sitting) it got so bad, i couldnt sit or stand straight. Ive never been in so much pain. My surgeon ended up telling me to get it drained, let it get as small as possible over a couple of months and then get surgery (to minimize the amount of tissue being removed during surgery). I healed completely 6 weeks after surgery by getting the open wound cleaned and packed by a nurse everyday. I got lucky tho, the nurses were telling me some patients with the same surgery had been coming for 9 months and no where near being healed. This disease is no joke. It was the absolute worst thing ever when it flared up.

[@windermere2330]

That sounds like hell! I hope you’re doing better!

[@kimberlyminton9458]

Dylan, thank you for sharing your journey, my dad had this and it was very painful for him to speak about. I am glad you are healing and that you have created something positive from your experience.

[@Blufftonbeatch4602]

Every healthcare working has a short list of diagnoses that they consider the “worst” and would hate to experience. Pilonidal sinus disease is at the top of mine, after caring for a patient with it years ago as a CNA. Painful, takes forever to heal, life-altering, and tends to recur. Prayers for all who suffer from this!!

[@spedupaudios8189]

Thank you for sharing your story. I’m going to have this surgery in 2 days after been dealing with that for about 15 years I finally got approval from insurance. I have high hopes that my life will improve ❤

[@lindaford6169]

Thank you for putting yourself out there It shows that you are a confident person who just wants to help people. This is a very serious disease. I know a guy who's had it (to a lesser degree than yours) and you could always tell when it was swelling back up and was filling up with hairs. I looked up the disease on line and could not believe how much hair can be taken out and the amount of infection/pus that can be building up inside. Can you tell us where we can donate to your charity? If you were my son I would be SO PROUD OF YOU!!!

[@ABCScience]

You can find out more about Dylan's work with Brothers N Books here: brothersnbooks.com/

[@spedupaudios8189]

I’ve been suffering with this disease for 15 years and every time that I had a flair it gets more painful. I’ve tried schedule surgery a few times and it looks like it isn’t covered by insurance and to be honest my impression was that doctors hate dealing with this disease. The 5:38 doctors that I’be been told me I have to exercise, I have to loose weight and so on…… except that they would do something to assist with the excruciating pain. As of right now I have it super infected and can’t wait for it to pop. I’m in bed for 3 days. Sorry for the lengthy complain. Your story is very inspiring. I’m very proud of you young gentleman. Thank you ❤

[@Grandmasfavhustler]

@@spedupaudios8189 just got my 3rd flare up drained today. The last two times I had it drained I had relief. Today no relief at all still hurts. Now the doctor says it’s a cyst and will require surgery. Everytime it seems to get more worse.

[@gistfilm]

Please do your own research before listening to your local doctor! Alternative surgeries/procedures: Bascom cleft lift, Karydakis flap, pit picking, GIPS, EPSIT. The usual surgery (open or closed excision) has a 50% recurrence rate. Unacceptable! Alternatives (Bascom cleft lift, Karydakis flap) have a 2% recurrence rate.

[@amaddurm5656]

@@Grandmasfavhustlerdid you try laser hair removal ?

[@mountainmama7672]

I believe my husband had this. 2019, he had 3 surgeries to remove a fistula that was caused by an ingrown hair, it kept coming back until he had a major surgery, I had to wet-dry pack the wound for 6 months.

[@exosluckyone]

im a 23 yr old woman. i had my first cyst flair up at 19 and i had about 4 or 5 since. i cant describe how excruciating the pain was. yesterday i finally got the surgery to get the area removed, it was so embarrassing to get butt surgery but i just hope i never have to have that pain again.

[@TheybyBaby]

I hope your recovery went well and you're doing ok!

[@liamc16]

I recently had my second abcess removed and now I have an appointment for surgery to remove the whole area same as you have had by the sounds of it, is that operation much different to removing the abcess/cyst?

[@mqtaidmqtaid]

Where I’m from, a lot of people suffer from that. My sister had 2 surgeries, thank good she’s okay after that second one. And thanks also to the fact that we have specialists in that condition here.

[@TheLizzieMDavis]

I have an emergency surgery in about five hours from now. I also have pilonidal cyst disease and this is my first time. It’s the most excruciating thing I’ve ever dealt with. I’m being put under anesthesia because my doctor couldn’t contemplate trying to drain my cysts or remove the infection with me awake. And then several months hopefully I’ll be going in for the final surgery to have the tunnels removed. My heart goes out to everybody who hast to deal with this because you wake up one day and you’re healthy and the next day you’re an excruciating pain, unable to walk, unable to sit, unable to drive unable to do daily activities.

[@applepie9576]

I hope your surgery was successful and your recovery is going well. ❤ I have never heard of this before. YT is a gold mine of information.

[@palace927]

Get laser hair removal. My son had it done and he never had another infection.

[@glolikejaaay]

@@palace927laser hair removal or the laser surgery to get rid of it ?

[@lindaorozco4595]

What a strong young man! Such an inspiration he is

[@Randomobserverhere]

It is nice to see this video. Going through life threatening illnesses really destroys your confidence and it takes a while and a lot of work to get it back. Some people may never get their confidence back. I am still working on mine. Thank you for sharing.

[@remiFrank]

This was so inspiring. I love how he put together a library of books to help other people facing adversity. I would have loved to lean on a similar library while living through my own health problems. What a brilliant way to show others they are not alone.

[@wendyannh]

You are indeed very brave, but what I love the most is the charity you set up, and what it's doing. I think that's an absolutely fantastic idea - for all genders.

[@Craftylisa69]

You have produced such a great education and awareness on this awful disease . I’m so glad you found a distraction to help you through. I have chronic pain and my distraction is my art and textiles . It keeps me from going crazy . X

[@Jim1971a]

I had this for 5 years. Abscess after abscess. I got the cleft lift surgery and it was cured for good.

[@mmd4089]

I had this in high school and ended up really sick - docs told me that previous injury to the tailbone can increase your risk, since it can create a small cavity that encourages debris buildup and infection. I've been blessed that I've only had the one major infection and my mom's quick work when everything sideways kept it from becoming sepsis but it lurks in the back of my mind that it will likely happen again.

[@sonnenblume4]

we definitely don't talk about this enough. After 3 surgeries, i hope this time it heals properly. Good luck to anyone with this awful disease.

[@averilwalker8131]

I feel your pain Dylan. I have suffered with this hideous condition since I was in my teens...and I'm now 63. I've had so many surgeries, and none have resolved the issue, so I'm extremely reluctant to have any more. The agony, the stench of the pus, and the vile mess it makes can't be understood by people who haven't experienced the problem. I'm sending you as much positivity as I can for a complete recovery

[@thecurioustempest6178]

Pineal sinus is hereditary and is a sinus tract, like a large pore that fills with hair and skin cells and can cause infection. It’s dangerous because the sinus tract is so close to the spine, and the sinus tract can extend up and end up with a massive neurological infection. Embedded hair is an oversimplification. You have to have to pineal sinus tract to get it, but it’s common that military rucksacks exacerbate the issue.

[@ThecoolguyIsaballer]

So we have to cut our hair in our but to not get it?

[@saltiestsiren]

@@ThecoolguyIsaballer Can't cut a hair that's already growing into your body

[@ThecoolguyIsaballer]

@@saltiestsiren so what do you even do then to not get piliondal cyst

[@ThecoolguyIsaballer]

@@saltiestsiren what happen if you cut it

[@psychshell4644]

I was a nurse. Its a very painful disease. Thank you for being open about your journey and for doing something positive that will benefit other people in similar situations.

[@aimee226]

I am impressed with your positive attitude and thoughtfulness of others experiencing hardships in life. Great job!

[@chalkiememe4183]

I have been a nurse for 35 years and I’ve never heard of this disease so I’m sure most people have never heard of it. I’m so grateful for you telling your story so others who have this disease can get support .

[@lindamcdaniel696]

Hooray for you young man! You are courageous, brave, and strong mentally and physically and an inspiration for all you have done to help others. There should be more people like you in this world to show you are more than just your “butt” or whatever your scars are.Keep up the good work 😊

[@easys5921]

Hey folks, this currently happening to my father. It has been 7 months, 2 surgery’s later and his still not well, we are going back to the doctors tomorrow to see them again😢 hopefully we will get positive news.

[@ilovechocolate81]

I've had 2 surgeries I also suffer from hydtagenitis surpitiva. I have heard these are related. Blessings to you brother and anyone who suffers from this.

[@neldormiveglia1312]

I have a close friend who had to have this surgery too. Luckily for her, one single simple intervention was enough to stop it... But it's genuinely horrible cause it's so painful. I feel like laser is the best option to prevent it from happening again, especially if you have dark hair cause it'll target it better.

[@butterfly3676]

I love this so much. I’m a woman, I also have had a medical condition after having my first baby. I share that embarrassing story with new moms so they know what to expect or watch out for.

[@donttalktomebye]

this sounds absolutely horrible. ive never heard of this til now, but im so sorry for anyone who experiences this. i experience body dysmorphia and dysphoria and its so hard, and to think of a situation like this would probably cause it is rough. im glad hes able to live his life though.

[@danielt6856]

Admirable story man, good job finding a new focus.

[@alanadanylchuk5601]

Im 19 surgeries in, without it reoccurring for 6 years now. So wonderful to hear your successes!!

[@rsolsjo]

Wasn't even aware this existed, and I have no doubt this helps people with the disease by making it less stigmatized.

[@Hongaars1969]

You have my full empathy as I have a close friend who went through the same experience. I hope that you have been able to gain some degree of psychological and emotional recovery from your nightmare. You did well sharing your experiences on this forum.

[@Idontknowho.]

Im a female. I have had this issue when I was young and it usually went away with antibiotics. Unfortunately when i was 29 the pain came back and antibiotics would not help. I had to go in for surgery. It was the worst pain i had been through my whole life! I could not walk properly for 2 months. Four months later it came back and i had another surgery. I had to go through the whole process again. Painkillers, dressing and packing. Three months later it came back! But this time i had the section of my butt crack removed that kept getting infected. So far it has not returned. I had small holes in my butt crack where the hair would keep getting trapped and infected. If you have holes in your butt crack please keep monitoring it. Please don't be embarrassed about this issue. You are not alone. 💜

[@someonespecia1]

U said monitor the holes, but then what?

[@Idontknowho.]

@@someonespecia1 monitoring them as if you start feeling any tenderness in that area, difficulty sitting down or walking or if that area is getting warm. This means an abscess is starting to develop. If that is the case go to the doctors as soon as possible and get antibiotics.

[@electroskates2434]

@@Idontknowho. As a young female suffering from this first time Thank you so much for sharing your story😥 It's only the 2nd day for me and I have already been seen by a doctor and prescribed antibiotics but I'm hoping that alone will relieve the pain

[@Idontknowho.]

@@electroskates2434 no worries 🙂I'm glad I helped in some way. I do hope you get better soon. 💜

[@someonespecia1]

@@Idontknowho. I got a notification from u that starts out " idk who replied" I don't where it's at, I'm lost

[@sosyska1]

I had multiples of these over the years, had two surgeries. One right by the rectum and right at the tip of the tailbone, the rectum one healed nicely and never came back, the tailbone took 10 months to close up and 3 weekly visits to the district nurse for packing, i was lucky that i was receiving furlough while it was covid as i could not work at all. Recently it started coming back and popping every few weeks. All I can do is have multiple showers a day, minimize sweating and keeping clean. I was told by doctors that it's just perennial abcess but after seeing this video I will keep coming to gp and look for a long term solution as the quality of my life and especially my mental health are in shambles. Physical work and outdoor activities are my life. I work as a laborer team leader and have no skills to work a physically passive job. I go to gym 5 times a week and count every single calorie to try and stay as healthy as I can but have to constantly avoid exercises that would require me to sit. I can't even sit in a car for more than 30 minutes without discomfort, I always sit sideways and that destroys my back. I am a mountain bike enthusiast as well and go to local trail centres whenever I have a chance fully knowing that riding will 100% make things worse and I constantly have accesses all around - big and small. If I had to stop all my hobbies and physical work which I love I would most likely fall into deep depression as I have had severe depression with life ending thoughts when I had both of my operations. Also I'm sure it damaged my nervous system in my lower back as I can't produce powerful forces with my legs or high jump as I can't bring my knees high, no matter how much I train for these things. I'm 30 now and I have been battling these problems since I was 19.

[@NinoNiemanThe1st]

Good on Dylan for putting himself out there! Brave man who made the best of a tough situation! He then contributed back with the Bros and Books. It is not a disease to be ashamed of, just happens (in general, there are some co risk factors that can be managed, like hygiene, hairiness and getting medical attention early... see the endless KZbin videos from India on this)..but there also some genetic components to the way the hair follicles operates that cannot be helped .. just get medical help early if you are worried about this, do not wait! Dylan is a champ!

[@anngray398]

Good for you soldiering on❤🏴󠁧󠁢󠁳󠁣󠁴󠁿🇨🇦

[@kathrynreyna3181]

I watched this and then started bawling. My son had his first pilonidal cyst when he was 14 and I remember being horrified/shocked at how huge the open surgical wound was. You could have laid a banana entirely inside the wound! We had NOT been warned that it would look like that. The next three years was a blur/nightmare of constant cleaning/packing of wounds, *shaving his butt cheeks,* surgeries and pain. We literally lost track of how many surgeries he had - it was either four or five. He ended up having a Limburg flap surgery which finally solved the problem but has left his poor bum looking misshapen and weird. His beautiful wife doesn't seem to mind! His whole high school period was ruined by this disease. He missed SO much school and often, when I'd finally make him go back, he'd call me in a panic from the office because his butt was bleeding and needed to come home. His surgeon was nice to our faces but he NEVER explained that these cysts will often recur through no fault of our own. My boy joined the Army and he had to submit all his medical records from his procedures in order to get a medical waiver to join, and we read the notes the surgeon wrote. He was so AWFUL to us - implied that my boy had disgusting hygiene and that I was a bad mother. I was so enraged and humiliated! Again, blaming me/us for a CHRONIC, RECURRING DISEASE. And I wonder if HE had ever tried keeping a hairy teenage boy's butt crack area surgically pristine for months on end. I'm so glad I saw this video and these comments. I really had no idea that it often IS a chronic disease and the fact that it came back so many times does NOT mean I'm a bad mother or my son is somehow dirty or gross. Hugs to all of you!

[@amycarter8497]

What a nightmare! Shame on your “doctor.” What a blessing you have been through your sons illness. ❤

[@dylanconway5839]

❤ blessings to you and your family my friend I am glad the video bought you solace

[@thearmchairjournalist566]

You have nothing to be ashamed of, this is a debilitating disease that is common among some people and in most cases there’s nothing you can do without surgery and invasive procedures! Usually it is normal hair falling out and working it’s way into a open pore, which also happens to hairdressers and others who work with hair! It can damage a hairdresser’s hands so much they will never be able to work again 😢 Having had recent surgery I can tell you that surgeons are in a league of their own in regards of their ego and entitlement! They think everyone else is stupid and they know everything, and when they don’t know what they are talking about they will just wing it because ‘we can’t think they’re stupid’ 😂😂😂 Congratulations on doing the hard work on healing your son and proving them all wrong 🫶

[@madeleinerose7090]

@@thearmchairjournalist566NO! Where on earth are you people getting this absurd, nonsensical misinformation?! Random hairs FALLING on skin … and ‘working its way in’?!! Are you an adult? (It would be best here for you to say you are an uneducated child to save yourself embarrassment.) Pilonidal Sinus Disease that a very small percentage of the population (mostly males, by a factor of 4 x) is predisposed to. A flare occurs when a hair follicle in the cleft of the buttocks traps a hair, which continues growing and forming inflamed tracks under the skin. It is a SKIN disease that primarily plagues young males with quite a bit of body hair and a particularly deep buttocks cleft. It can be exacerbated by constant pressure (such as long-distance driving, horseback riding, bicycling, motorcycle riding [in WWI it was referred to as ‘Jeep Seat’]). Enough with the misinformation. Basic biology is your friend.

[@xFF7xGIRLx]

My son has this. Wish he had a friend that knew what it feels like.

[@lynncameron9885]

I had a cyst removed in 1974. The doctor said it probably started from a fall that happened when I was 8 years old!

[@myraadams282]

i had this problem! i had the pain while sitting down. it was horrible! it was a pain i don’t wish on anyone. lucky i haven’t since!

[@Countduk005]

I was a listed AFL hopeful back in 99 ,whom after enduring a season of injury& health related issues, was struck down with this disorder with 4 games to go, Docs weren't sure how bad it was and gave me antibiotics to try and settle it down... Needless to say it didn't go away and the pain and anxiety it caused over the remainder of season was overwhelming!..... I saw an independent Doc whom advised surgery Wich I went through ASAP, without the club ever knowing (to my knowledge)! I remember being called into my season exit meeting with the coach & management, 2 days after surgery. I was unfortunately delisted , but at the time it was the furthest thing from my mind! I was 20 yrs old an my mother had to dress this festering open wound at the top of my ass-crack for the next 6 weeks!! And apart from her and the doc , nobody ever new about it.......But I will never forget!! Thankfully mine wasn't as bad as this example! Thanks for sharing brother 🙏🏽!

[@SkyForceOne2]

did you shave before? shaving usually makes it worse, since it leaves sharp edges

[@margaretgarana911]

Props to mom

[@timothyhosek3551]

My heart breaks for anyone with this horrible disease. I've seen alot of this and did research (online) and watched several videos of surgery. My prayers to everyone who suffer from this. Thank you for filming this and EDUCATING people on this. Thank you ALL for your courage.

[@bigreddallas2742]

Dylan, you are a gift to so many people with this and others suffering from other challenges. I agree that reading is a huge help, especially when one becomes passionate about a particular subject or two. I also spend many hours listening to and playing music. I will keep you in my prayers. Hang in there and seize life with both hands.

[@bbbeezy]

Whenever I hear about stories like this it just confirms for me that life truly is chaos. You think you have control over your mind, body, health-but really you don’t. It’s honestly scary but also freeing at the same time. Healthy people die young. Unhealthy people live until they’re 90 years old. It doesn’t really matter what you do. Waking up everyday is a miracle.

[@mapleext]

Wow, thanks for this video- I’m sure you are helping a lot of people. I love your idea about reading about people who have suffered one thing or another. It’s SO HARD to be alone with stuff like this!!!

[@solid9999fine]

Bless you, man! Praying for your best life ahead. Never surrender.

[@shantishanti1949]

Dylan I googled images of this and wow it looks so painful. I hope you find a full recovery for this condition and that the rest of your life is blessed. 🙏

[@Zola_6]

A pilonidal cyst is a fluid-filled sac under the skin in the lower back, near the crease of the buttocks. Some aren't visible, while others can look like a small pit or dimple in the skin. They don't usually cause problems or need treatment unless they get infected.

[@laer.393]

it kinda sounds like he’s saying his got infected most likely bc he’s hairy and gets a lot of friction(?) which caused an ingrown hair which got infected…. but it’s possible to prevent ingrowns like that on your body so it’s unfortunate he didn’t know before then

[@Zola_6]

@@laer.393 apparently it’s more common in men for some of the reasons you stated

[@bardatwork69]

I had 7 surgeries over 3 years and I was finally free. 20yrs later and it opened up with pain and drainage. It’s back and I dont want to go through this again. It sucks.

[@someonespecia1]

Wow, sorry

[@scottgoodpaster3100]

I had a pilonidal cyst removed when I was in college. It's not fun and the recovery is long and painful even for a relatively small one like mine. Every day my poor mom had to unpack, clean, and pack new guaze in the cavity. I can't imagine having to go through this 9 separate times. This guy is so strong and resilient to deal with this and come out the other side with a positive outlook.

[@MattMunro74]

I had that when I was 18, was open for 9 months. I'm 48 now, and it still gives me strife

[@thelostcosmonaut5555]

I got the surgery for mine last year. I thought I had a wild case of hemorrhoids but a CT scan told me I had Pilonidal Cysts. Also called Jeep Seat due to their prevalence amongst troops in the Pacific theater.

[@Stacey-xf6nk]

I had same it is a tract they look for.for the re occurance.

[@stevie-ray2020]

Occasionally I have ingrown hairs (especially whiskers a few days after shaving) where I've had mild scar-tissue from past acne, but I'm so sensitive to the pain when they start to become infected that I'm quick to treat the problem. However, for Dylan to have endured such a painful ordeal so early into adulthood is extremely rough!

[@Crocs4cats]

I don’t think you can compare the two🤷🏻‍♀️

[@stevie-ray2020]

@@Crocs4cats I wasn't comparing. Just saying I understand how it can happen due to my own experience, but I imagine that being in the military leaves personnel in situations in the field where it's difficult to maintain one's usual high standards in personal-hygiene.

[@Crocs4cats]

@@stevie-ray2020 Ah, ok but Its not caused by bad hygiene for most people. Just sitting for a few hours more than usual makes mine flare up🤷🏻‍♀️ and I shower every day and squirt my butt crack with the bidet😅 It still comes back.

[@spaceo8568]

This is so awful. I had to have this surgery, fortunately only once about 12 years ago while I was 6 months pregnant. The pain before the surgery is absolutely exquisite, childbirth doesn't compare. And the healing process after is quite humiliating. I wouldn't wish this on anyone. I can't imagine having to go through it over and over and over again. My God that sucks.

[@fearlessfrigate909]

I’ve had this surgery twice and I’m kinda upset as off this moment cause it’s come back. The first time (2018)was the worst I couldnt find any comfort trying to sleep, wasn’t able to go to work, couldn’t walk, when I did walk I was walking around with immense lower back pain and I was just very upset with my situation in life. I had the surgery done and got it removed. Second time (2020) wasn’t as bad but surgery left bigger scars. But now recently felt pain in my lower back at work a few nights ago and I knew instantly it was back. I had a look in the mirror and saw a small cyst had formed on my on tailbone so yeah I’m pretty bummed out but already been through the surgeries and I know what’s coming. Your right about this being a little embarrassing topic to bring up but brings me a little joy that I’m not alone. And to anyone else suffering from this dumbass disease just stay positive 😂🫡 Thank you for sharing though bro wishing you all the best in life.🤝🏽

[@coolvinnyb]

I had this, mine developed in a similar way, at the top of my buttock in 2015,. Had my first surgery in 2016, my last in 2022, five in total. I tracked and spread, and eventually turned in a Pilonidal Sinus, which tracked through my body rupturing my bowel. I couldn't work for 4 years and was pretty much bedridden with daily visits to the hospital. I went from a vibrant out going social person to a shut in, a lot of therapy has been require for PTSD. I now live with the after effects of loosing so much flesh, and long term pain, so I am sympathizing with you and support your ability to speak out, well done mate

[@Ord_Wingate]

Well done for bringing this little known illness to the fore...all the best to all who suffer

[@oliverleibbrandt8067]

I have this , got a laser surgery and was only out for a week and all I have to do is wax the area to keep hair out of it and I’m all good

[@davikins]

My heart goes out to you. I completely understand how you feel. I had one when I was 22 in the early 80s. Suffered silently with it for a year. It was so painful but I was too embarrassed to tell anyone. The only reason I went to a doctor and subsequently got surgery is due to my grandmother seeing my underpants in the laundry bin. She dragged me to a doctor and paid for everything as I had no insurance, bless her. I’m 62 now and it never reoccurred. I did have a scare a few years back but luckily it turned out to be nothing.

[@Nat524Ricci]

I can relate to him so much. I went from a young beautiful vivacious girl to a shrek looking beast w Cushings Disease. Basically my tumor was causing my adrenal glands to mass-produce cortisol. Took years to diagnose properly because it is “rare.” But I don’t think it’s so rare! Almost all of us with Cushings are first misdiagnosed with PCOS, just a heads up! I feel that every woman with a PCOS diagnosis should have initial Cushings Disease testing (cortisol, ACTH, etc) just to rule it out. Would save many lives!!!!!

[@smoll8746]

Apparently you have always had a heroes heart since you were little. And like a true hero, you have risen to the challenge! Well done young man. Well done!

[@nathanpeterson9976]

I had this for 3 years now, I’ve had about 8 drainages and what they call a kardcus flap where they cut your skin out but make it some what more flat and off centre, nothing has worked and I continue to suffer from this and it’s draining a lot of myself, knowing I’m not the only one puts ease to my mind and I wish anyone who has it too can recover, right at this moment I must take a salt bath every day, get a community nurse to change dressings, and I’m meant to get laser treatment but physically can’t with this problem let alone pain where you can’t can’t sit normally, you can’t go places and do much bevause the pain is the worst part of it all, I’ve lost a lot of friends bevause I can’t go and hang out with them, trying to explain to a work place and they don’t understand, I hope people who don’t have this never gets it because it’s the worst feeling pain wise and mentally that you can get

[@samanthadagnan3914]

What has worked best for me on if it flares up or begin to flare up. Oils!!!! First tea tree oil apply on affected area Then use grape seed oil And oregano oil. Works AMAZING For me. I have had countless “draining” from doctors and hospitals and about 1-2 surgeries… it can get expensive and healing can be so brutal. But ever since I’ve been using these oils. My flare up are not as common any more like before and if I feel like it’s gonna flare I’ll just grab my oils and do that for couple of days. And also wouldn’t hurt to do this even in days you don’t flare up…it does have like a fresh minty cooling feeling. Which is oregano oil. But don’t forget to put grape seed oil on BEFORE oregano or it’ll burrrnn. I hope this helps and I hope you get to healing and recovering as so many years in pain! Best of luck!

[@palace927]

Have you looked into laser hair removal? My son got it done and he never got another infection. You may not be able to get it done now because of all of the scare tissue.