Being ‘the disabled one’ in university [CC]

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Jessica Kellgren-Fozard

Jessica Kellgren-Fozard

Күн бұрын

Пікірлер: 1 300
@lisanewcar9855
@lisanewcar9855 5 жыл бұрын
“It only hurts when I talk about it” if that isn’t the most relatable statement I’ve ever heard I don’t know what it is.
@danyapilchowski2959
@danyapilchowski2959 5 жыл бұрын
Lisa Newcar yup
@juanax5473
@juanax5473 5 жыл бұрын
Yes
@judepauls4604
@judepauls4604 5 жыл бұрын
It's up there with 'oh no, I'm fine!'
@IrisGlowingBlue
@IrisGlowingBlue 5 жыл бұрын
I feel it
@kimberlyfox8164
@kimberlyfox8164 4 жыл бұрын
I felt that statement on so many levels.
@lexin8139
@lexin8139 5 жыл бұрын
A person: *needs financial help because they're disabled* *can't be a full time student because they're disabled* The government: Okay we'll give you money and resources to help with your disability but only if you're a full time student.
@nat2002
@nat2002 4 жыл бұрын
Yup!!!! Currently experiencing this now hahahaaaaaaaa
@lexin8139
@lexin8139 4 жыл бұрын
@@nat2002 Best of luck! I'm so sorry this is the way things are for you
@nat2002
@nat2002 4 жыл бұрын
@@lexin8139 thank you appreciate that 😊
@chanelcreadora6570
@chanelcreadora6570 4 жыл бұрын
I relate to this so much. The school accommodated me in so many ways for my disability. But couldn’t lessen my course load because it was required for me to be full time in order to get aid. And full time for my major was TEN CLASSES!!!!!! I was in school from 7am until about 8pm with a 2 hr break from 4-6 mon-fri. And then from 8am -12pm on Saturday. Btw, I went to school for music education as a violinist and vocalist. So this didn’t include rehearsal time or practicing or completing homework.
@abandonedchanneld8031
@abandonedchanneld8031 4 жыл бұрын
Ahaa this is why I'm glad I can take my degree online ;u; I feel this.
@jessicaoutofthecloset
@jessicaoutofthecloset 5 жыл бұрын
Thank you so much for watching. I've been really nervous to make this video and now nervous to put it out so... thank you xxx
@alantbaird
@alantbaird 5 жыл бұрын
Thank you for making it.
@richardvelez3151
@richardvelez3151 5 жыл бұрын
I admire your strength and courage. Don't worry, you have Claudia ... and your community here to help comfort you if need be 👍🤟💝
@4b2dca
@4b2dca 5 жыл бұрын
thank you so much. I would be in yr10 right now but I've been ill since last Feb and don't go out of the house unless i have to go to the hospital because i can't. I've been diagnosed with CFS/ME. and yes the system is broken and it's about of work. it's just so difficult doing anything.i used to do over 12 hours a week of martial arts and excersise but now i can't do any. I'm spending most of my life in bed now and i really struggle with telling people what i need and/or how they can help. so thank you. your so helpful please keep making your great content ♥️♥️
@nicoleheger2121
@nicoleheger2121 5 жыл бұрын
I can't form words right now but I really needed this video today to not feel so alone. Thank you, Jessica.
@cherrysweetvenum
@cherrysweetvenum 5 жыл бұрын
Thank you for making this video. My uni experience being chronically ill was ........ did every year twice did final year 3 times till I just went it's not worth my health because I was in the hospital 3 days a week the entire year.......... yeah........the final attempt I don't remember much of because of how much pain I was in and how much morphine was being pumped into me to stop said pain........
@margaretharris6069
@margaretharris6069 5 жыл бұрын
Hi Jessica. I was in a few of your classes at uni, and was amazed when I stumbled across your youtube channel a few years ago. I have nothing against Brighton university, it's a fantastic place. But I also felt way too uncool for Brighton and for somewhere that claims to be so inclusive, I definitely felt very isolated at times. I didn't get much from the experience, other than some great friends, and my job now is totally unrelated to my degree that I paid so much money for 🤦🏼‍♀️. I'm so sorry you were struggling so much back then. It probably won't make you feel any better about your experience but whenever you were in the room, I remember you were always smiling, and people were drawn to your loveliness. X
@richardvelez3151
@richardvelez3151 5 жыл бұрын
JESSICA: " If there's one thing you need to know, it's don't be me." ME: Ok. So I won't encourage anyone to be a resilient, strong, independent, fun loving, determined, inspirational, caring, loving humanitarian who advocates for their communities and is a voice for the voiceless ... 🙄... 🤨 Thank you for sharing your journey, Jessica. The strength you have shown is to be admired. Bless you. Take care! 👍🤟💝
@vanillawaterfae
@vanillawaterfae 5 жыл бұрын
Richard Velez - I couldn’t have said it better!!! I wanna be Jessica when I grow up ❤️👑💯😀
@jessicaoutofthecloset
@jessicaoutofthecloset 5 жыл бұрын
You're so sweet, thank you so much for your kindness ❤️
@cheryllee7335
@cheryllee7335 5 жыл бұрын
You are 👧🌈♥️. Your story is so raw and honest you will help so many people. As a caregiver, you are helping me to deal with my loved one in decline and my own anticipatory grief. Keep up the good work and I can't wait for your first book!
@richardvelez3151
@richardvelez3151 5 жыл бұрын
@@cheryllee7335 Prayers, strength, and love to you 🙏❤
@TheSuzberry
@TheSuzberry 5 жыл бұрын
Jessica, you are a person who sets the standard for surviving chronic issues. I just love spending time with you and your wife. Thank you for making our lives brighter.
@KarynPeterson
@KarynPeterson 5 жыл бұрын
memory loss is so horrible, especially when the only parts it lets you hold on to are trauma.
@caitlinquinn79
@caitlinquinn79 5 жыл бұрын
Yo-yoing between "I can finish this degree, just have to get to the end" and "this is hell, I can't do it, everything is twice as hard because I'm ill, why am I doing this?"
@BenTheSkipper
@BenTheSkipper 5 жыл бұрын
I can relate
@cherrysweetvenum
@cherrysweetvenum 5 жыл бұрын
I did this and then said to hell with this. Good bye!
@BenTheSkipper
@BenTheSkipper 5 жыл бұрын
@@cherrysweetvenum #brave!
@dragana
@dragana 5 жыл бұрын
I pushed through and finished... ended up having to take 2 years off after for physio, 101 medical tests and this and that... and I'm still not fully recovered, maybe to never be able to work full time (and therefore use the damn degree) anyway sooooooo maybe, take a break/drop it... just don't be me. :'D
@ChibiYotsuba
@ChibiYotsuba 5 жыл бұрын
I did the same thing. I have a diploma as an assistent baker now, while being too disabled to hold a regular job, making my diploma useless. I'm not sure why I kept pushing on when I can't use it anyway. I do know some other disabled people have the opposite experience where they found a way to hold a regular job later, and then had no diploma or degree to fall back on, making it really hard. So I think the most important things to think about are 'is this going to make me burnout and/or make my disability worse up to the point where I can't yse this degree anyway?' And 'Am I already too disabled to hold a regular job, and if yes, will it be very likely to improve? If no, is this worth it to me?'
@Waterflame
@Waterflame 5 жыл бұрын
I always jokingly say "I'm not crying, you're just blurry" but this video literally made me cry. I just want to give young Jessica a hug, and promise that everything will turn out alright. And then I think about young me, and how much she could've used a hug and to be told that everything was going to turn out alright... People who don't have chronic pain don't get that I'm in pain, all the time, even when I'm happy and smiling. I know that you understand that, because you're also in pain all the time. It might not be the same pain, but it's enough to know that you understand. Thank you so much for your videos, as they help me feel less alone. Thank you for sharing your story with us. Thank you for being an amazing force for good. Thank you for being. Thank you.
@MarieObscured
@MarieObscured 5 жыл бұрын
That line is absolutely brilliant! It'll be my go to next time someone points out I'm crying. *Hugs*
@hannahtudor9468
@hannahtudor9468 5 жыл бұрын
I'm going deaf, have joint pain, and fatigue and I am so scared... I don't want to get lost in a system that doesn't care... Thank you for this video, its reminded me I'm not alone
@GwenC13
@GwenC13 5 жыл бұрын
Stay strong! Get the help you need :) It's not easy for sure... I hope you'll find your way ! You get my support !
@KevinBeaudoin
@KevinBeaudoin 5 жыл бұрын
Hannah, please remember you "Are Not Alone." I can not tell you how many times that statement I am "Not Alone" has helped me get through a bad day! P.S. and By the Way, you are Amazing!
@gremlin4304
@gremlin4304 5 жыл бұрын
The most important thing that you can do is actively seek out good people to surround yourself with. It's hard seeking those connections and maintaining them, but they are what will make life worth living in the end. At least, that has been my experience.
@Eloise_Please
@Eloise_Please 5 жыл бұрын
Never feel bad about asking for help - it's not a weakness to do so, it's a strength. Uni is scary and it's extra hard with disability, but the rules also aren't as set in stone as we're lead to believe, and there are people who want to help. I'm doing my 2nd year from home, after a two year break, and my own (less physically demanding) version of the course to suit my disability needs. It can be done and we have just as much right to an education as anyone else.💙🥄
@taylorbritt499
@taylorbritt499 4 жыл бұрын
Please, if you plan on going to college/uni, make sure you know your rights and know what services are available to you! Do your research not only into the aid that you can get but also the specific forms of aid the university provides, and their requirements as far as doctor's notes, forms to fill out, etc etc. Make sure you know all of these things inside and out before applying. Not to mention thinking about what you personally need regarding being close to home, having a carer, so on and so forth. It is a lot to think about and I empathize with you and all other students who are disabled and trying to get their degree, but I also have a lot of faith in every single student that they can achieve their dreams if they put in the work! Don't be afraid to ask questions, ask for help, and make sure you have a solid support network
@skazinbud3756
@skazinbud3756 4 жыл бұрын
Hi Jessica, I don’t usually comment on videos but wanted to a huge thank you. I watched this before an open day at Falmouth University for their Animation course and was super nervous about potentially studying there as it was local to me and I didn’t want to be seen as ‘weak’ for studying locally. I didn’t want my disability and health to hinder me.The course lecturer who interviewed me was amazing and I felt so supported on the interview and I had you in the back of my mind the whole time. It turned out to be amazing and I got offered an unconditional and was so happy to accept it. I wouldn’t have if it wasn’t for you - so thank you!
@typewriters4handz
@typewriters4handz 5 жыл бұрын
I recently shared that I finally finished school, but I didn't talk about how it took me a total of 8yrs to complete 2yrs of college because my disability and yet the school still holds it against me. I have medical documents that says what happened to me but they don't care, they just put that I dropped out the first time I left school and so when I came back they made sure they were gonna make things ten times harder for me. Just going back about it makes me want to cry, I really don't have people to talk to about it, not that people care to be honest but I thought I would put my two cents in ❤💔
@letterborneVods
@letterborneVods 5 жыл бұрын
Jazzilyn CreepShow Congratulations on finishing school despite all the difficulties! I‘m sorry they made it so hard for you.
@typewriters4handz
@typewriters4handz 5 жыл бұрын
@@letterborneVods thank you, I appreciate that, really ❤
@TheAnon26
@TheAnon26 5 жыл бұрын
It sucks that things were made so much more difficult for you than they had to be. Congrats that you made it anyway!
@richardvelez3151
@richardvelez3151 5 жыл бұрын
@Jazzilyn Creepshow I am sorry for what the school put you through, and I feel heartbroken for reading that it makes you cry thinking & reliving it. But you know what, share your story. Shout from the mountains that in spite of how the people at that college treated you ( not despite your disability ) you were able to accomplish what few people in this world can do. Be proud of who you are, what you have achieved, and the mark you will make on this planet. CONGRATULATIONS!!!
@typewriters4handz
@typewriters4handz 5 жыл бұрын
@@TheAnon26 thank you, I appreciate that 🙂
@deidraburgess4866
@deidraburgess4866 5 жыл бұрын
Hey gorgeous lady. I have an idea. Maybe have trusted people write down their most favorite major events they remember about you and give you dates or a timeline. Then you could put them in order. It could make a little book about you and that way you can jog your memory or even if it doesn't jog your memory then its still a wonderful keepsake. Fans could mail you letters about meet and greets with you. Those letters could go in the book too or in a separate book. Just thoughts from my sofa while I sip my tea and watch your videos for the 2nd and 3rd time.... 😉 💛💛💛
@crimeny
@crimeny 5 жыл бұрын
+
@caitlinquinn79
@caitlinquinn79 5 жыл бұрын
+
@athenaaphrodite6492
@athenaaphrodite6492 5 жыл бұрын
++++++
@xoSiNgInGiNtHeRaInox
@xoSiNgInGiNtHeRaInox 5 жыл бұрын
++
@kieleyevatt2232
@kieleyevatt2232 5 жыл бұрын
+
@liznotslow
@liznotslow 5 жыл бұрын
Says "I'm probably going to cry a lot" with a big grin. Me. I feel so seen.
@TheProductofyourmind
@TheProductofyourmind 5 жыл бұрын
I just graduated a few months ago with a Master's degree. When I started my Bachelor's degree, I didn't even know I was disabled. I just thought I was lazy. And everyone else thought so, too. I'm autistic and I have a host of chronic pain and body malfunctioning issues (all of which are still being investigated for what the hell is causing them) and even just knowing about the autism and having an official diagnosis changed SO MUCH for me when I started my master's. I knew not to take as many courses, I knew to plan for breaks, and I *told* people that I'm autistic so they wouldn't think I'm weird and they'd be more patient with me, lecturers would let me leave the classroom if things got too much, I was allowed to wear headphones in class and I never got in trouble for missing a ton of classes (which cost me grades in my bachelor's because just being too tired to move apparently doesn't count as being sick).
@jillianfry1235
@jillianfry1235 5 жыл бұрын
I was diagnosed and treated for spinal cancer during my elementary years. I missed months of school and failed many of the standardized tests because I was in pain or hadn’t slept because of pain. I was placed in lower level classes because of my test grades, and I was miserable in those classes because they were too easy for me. I was separated from my friends because of those scores, and those scores were due to my illness. I thankfully had parents that fought for me to be reassigned to the other classes, which eventually happened. For months I was alone, in a class not meant for me surrounded by students who didn’t know me. Schools have no idea what to do with sick kids, they just shove them to the side. I’m so grateful that I’m healthy and alive today, but those years at school were miserable.
@vanillawaterfae
@vanillawaterfae 5 жыл бұрын
Jillian Fry - You are SO incredibly brave! Sending much peace and love to you ❤️❤️❤️❤️
@jillianfry1235
@jillianfry1235 5 жыл бұрын
-Lori- Aphantasia Gematria thank you so much ❤️ sending it to you as well!
@richardvelez3151
@richardvelez3151 5 жыл бұрын
Yours is a story of determination, hard work, and a will to fight for family. No doubt what your parents did for you is a true sign of love. Because of that, you are here today, healthy, strong, and showing the world who you are as an inspiring human being.
@jillianfry1235
@jillianfry1235 5 жыл бұрын
Richard Velez thank you 💖
@RoflsaurousRex09
@RoflsaurousRex09 5 жыл бұрын
They have no clue what to do with kids who aren't good test takers either. I got bored in school because I'm not good at taking tests therefore I was put in lower classes as well. The school system is broken.
@pmmmAMV
@pmmmAMV 5 жыл бұрын
It took me being academically expelled to admit to myself that yes, I was living with a disability, and to file the paper with my school's disability services. My transcript was a trip to look at- it was almost exclusively As and Fs and dropped courses (which don't impact GPA but do impact academic standing, as I found out) because I would be so paralyzed by anxiety and then depression that I just wouldn't go to class. I just pretended it didn't exist because I didn't know any other ways to cope- I didn't have the trust in my support system that I do now, or even just the support system that I do now. While I loved the actual content of what I was doing, I now know that another degree would have been infinitely better for me (long term assignments are absolutely devastating to my mental health, and I was in a course where nearly all my degree specific courses consisted solely of projects that the perfectionist gremlin in my brain didn't know how to "just finish". It took me six years to get a two year degree. I still struggle with that, and feel like I failed even though I literally have the paper that says 'hey you did the thing'. Part of me wants to continue education even knowing how stressful it is for me, but I'm at least taking a break.
@jayk6447
@jayk6447 4 жыл бұрын
pmmmAMV I know this is a month late and I don’t exactly know what to say but I relate very much to your comment. Getting through any school with anxiety and depression is a nightmare even if you really like your study subject. It is good that you are giving yourself a breather from it. I hope you find the way that is best for you.
@pmmmAMV
@pmmmAMV 4 жыл бұрын
@@jayk6447 Thanks, I appreciate it Sometimes it helps just to know someone else just...gets it I don't think there's anything I like more than learning new things- and in most cases it doesn't even matter what I'm learning, just that I am- but the structure of everything in school somehow just shuts me down in the end. Maybe I'll develop some better skills or something sudden the line but for now yeah it's time to regroup
@pearls-for-cats2709
@pearls-for-cats2709 2 жыл бұрын
Its amazing but everything you have said... its like your story is the EXACT same as mine, its been so hard to come to terms with feeling like a failure for how things turned out but each year it improves. We all deserve a chance to succeed and sadly maybe when we took our go at studying things weren't in place to offer the right support.
@gracelarmee
@gracelarmee Жыл бұрын
this is three years later but I completely understand what you're going through. I've been academically suspended from university after failing several courses because of my paralyzing anxiety and depression (not to mention my undiagnosed ADHD running rampant). Even while trying again and again to do better in school, I still kept failing courses and felt like a failure as a person in response. I'm still actively working towards completing my degree but I want to say that if anyone relates to this: you're not alone, you are smarter and more capable than you think, and we got this
@linneaskoglund8171
@linneaskoglund8171 5 жыл бұрын
Gosh, I’m so grateful for Jessica. She’s just so unapologetic and awesome and so freaking stylish. I’ve recently had to start using some mobility aids, and Jessica’s vids finding a scooter/wheelchair was so helpful to watch. Her thought really mirrored my own. Finally someone who understands how horrid and medical most aids look! Grey and plastic and just awful! I’m so happy people like Jess is raising their voices and daring to be themselves.
@Eloise_Please
@Eloise_Please 5 жыл бұрын
Same! So helpful to see videos like hers and stop feeling so weird and alienated! Also, she has so many good tips!
@shayelea
@shayelea 5 жыл бұрын
The inability of the system to deal with even the most minor and reasonable accommodations is frankly breathtaking. I went to art school, and those years were actually some of my healthiest. I studied interior design (so far from my actual job now it’s laughable) and in our (ONE) class on accessible design they brought in a wheelchair and had each student take ten or so minutes to move around campus so we could “see what it was like.” One person did the kind of overly-solicitous hold-the-door thing and I felt like such a fraud because I wasn’t “really disabled.” Little did I know that 20 years later I’d be dropping a couple grand on a mobility scooter. I was ill then, just much less ill than I am now, and I didn’t yet understand that “disabled” doesn’t have to have a rigid definition, culturally. Side note, the fairy light drama happening in the background was weirdly kind of what this video needed. 💛
@fashioneyesta
@fashioneyesta 5 жыл бұрын
Speaking as a disabled person myself, what Jessica said really rings true. When I was deciding to go to university I had some pretty big decisions to make. I was severely sight impaired, I had just been qualified with my guide dog and I had a very unstable chronic illness. There were days that I couldn’t get out of bed because of my illness and other days where I would be fine. In the end I decided to stay in London and study at university very close to my home. It meant that I could stay at home whilst studying and receive the care I needed from my parents whilst studying for my degree and then later my Masters degree. It didn’t stop me making friends or having a social life, in fact I met a truly wonderful bunch of people who I’m still friends with now. Jessica is absolutely right, when you have a disability and you want to study at university you have to consider what is best for you and your well-being. Look at all the different options and really think about your worst day and what you would need to have in place to get through it. I absolutely loved university it was some of the best years of my life. But I don’t think I would have loved it nearly as much if I hadn’t made the decisions I did and really thought about what was best for me. I went with my gut instinct and chose the university that I felt most at home at and my intuition was right. Go with what feels right to you. Loved this video Jessica! You are amazing ❤️
@overgrownkudzu
@overgrownkudzu 5 жыл бұрын
also i feel like it's very important to recognise that if it doesn't work, it's not you who's failing at doing what everyone else is, it's that you have to do much more/invest more energy into doing it than they have to. So taking longer or not moving out or needing assistance are all absolutely not personal failings.
@meagnelhug9976
@meagnelhug9976 5 жыл бұрын
I'm currently the disabled one at uni, and it's hard to feel like no-one is listening.
@laranorris7252
@laranorris7252 4 жыл бұрын
That must be awful. I really hope you get the support you deserve. Shout if you need to, you have every right to what you need. 🤗
@chaoswitheris463
@chaoswitheris463 5 жыл бұрын
The way you described the "I had fun, o dotn remember it but I know I had fun" made me really feel that it is okay to just live in the moment because I know I'm not going to remember it, and it felt like it was okay to forget because the feeling is still there ❤️
@sekhmetsaes
@sekhmetsaes 4 жыл бұрын
"Snapshots from a frayed timeline." That sentence made me cry. You are one of the only people I have ever heard describe it that way, so exactly perfect. I usually say "Those years are a junk drawer. There's stuff in there, but good luck finding anything useful."
@maddy78912
@maddy78912 5 жыл бұрын
I'm at uni at the moment at Warwick, I think the main thing I've found challenging personally is that most people at uni have bodies that they can thoroughly trash (staying out late and drinking etc.), whilst still being able to do their work. But for me, that's just not the case and I often feel like people think I'm anti-social or weird when actually I would love to socialise with friends, but it would mean then being ill the next day and not being able to do the work i need to do. I'm also just not that big on drinking (partly again because it messes up my body more than the usual), but it seems to be all that people do at Warwick.
@Crowcifixx
@Crowcifixx 5 жыл бұрын
I really hate the partying culture. I never understood how people could do so much and not be horribly unwell. Now I realise my body is just not made to be tested. And that's okay. You're doing great in a difficult environment
@kirithornalley6123
@kirithornalley6123 5 жыл бұрын
Solidarity Maddy. I've just finished a 1-week crash course in statistics as part of my PhD. I'd suggested on Monday that we meet up on Saturday to celebrate getting through the statistics course - literally just going to a friends for pizza. Turns out 4 days of 9-5 statistics and a very late night last night to get the giant pile of assessed homework questions completed, means I now probably cannot make it. Fatigue has decided to manifest itself as horrific nausea and pain, so i'll probably spend this weekend in bed, in pain, feeling too sick to eat anything.
@Rinas_diary623
@Rinas_diary623 5 жыл бұрын
It was like this at UCL too omg... Everyone socialises like that and I found I had limited friends because I'm always super fatigued and alcohol and non-routine sets of my endo pain.
@marinagatto6619
@marinagatto6619 5 жыл бұрын
You and I could be friends. I'm physically fine, but I still can't party because of my anxiety and because i tend to get migraine. Plus, I don't like drinking anything that has alcohol in it.
@artesiandifferent
@artesiandifferent 5 жыл бұрын
The concept of having a very real and necessary bedtime is an alien concept to most college students, I've found. Makes life pretty lonely when all the club events you'd like to attend are after your bedtime.
@maysamarres4763
@maysamarres4763 5 жыл бұрын
This video made me bawl my eyes out because I felt so seen. My first year of university was actual hell, after a tough year I miraculously graduated high school and just made a run for it. I moved across the country to study something I was quite interested in but in a city I'd never even visited before. I was incredibly lonely, found it super hard to make friends and there were no resources to be found about clubs, student associations etc ... I was depressed as all hell and cried by way through the year. I couldn't even get a job ! After spending a weekend in Switzerland for one of my cousins birthday (she lives there) I started thinking about leaving but where to ? It took a while but at the end of August I moved to Amsterdam, still felt like hell, got a job, got another job, had a burnout, went traveling, went back to one of my jobs, thought about what the hell I wanted to do, had another depressive episode, and finally applied to a course in Amsterdam. I found some friends, finally got a stable housing situation, joined a student association, lost my dad, came out and got diagnosed with ASD ... Turns out a lot can happen in just under two and a half years. I like the course I'm currently doing, I still struggle with depression and anxiety, I am still often lonely but I am working towards a goal and it feels bloody great to be able to say I've passed my first semester of uni with really good grades. So this one is for tiny 18 year old me, the world won't end if you quit university. You have a lot of growing to do and it's perfectly fine if you're not ready for it. Take your time, you'll get there ! x
@jolawton9626
@jolawton9626 5 жыл бұрын
Gosh I can relate to the lost and fragmented memories. Most of my childhood is lost or jumbled because of trauma and abuse.
@Crowcifixx
@Crowcifixx 5 жыл бұрын
Gosh me too but more because of memory problem like Jessica. It's really tough. I had a dream actually last night that I was having vivid childhood memories and I was trying desperately to hold on to each one so I wouldnt forget it again... I woke up quite upset :(
@harmonymoxham1719
@harmonymoxham1719 5 жыл бұрын
I feel the same
@RL-os9xl
@RL-os9xl 5 жыл бұрын
I’m very sad to read this. Fragmented memories are associated with dissociative issues because of abuse in childhood. Please do get all the help you need. God bless💐
@Crowcifixx
@Crowcifixx 5 жыл бұрын
@@RL-os9xl bless you 🌻 I am certain I did not sustain any childhood abuse at least not from my parents for definite. But I did have undiagnosed autism and bad ADHD with the emotional deregulation it causes. I suffered a traumatic fall age 23 and my memory has been affected by that.
@katherinebuchanan8770
@katherinebuchanan8770 4 жыл бұрын
Jo Lawton it’s like all your memories and thoughts are stored in invisible cases that aren’t labeled. And suddenly some random thought or memory pops out of nowhere.
@agjul
@agjul 4 жыл бұрын
"It is the system that has problems and needs to become more flexible." I wish this was something that I realised sooner, back when I was in university. I have spent years blaming myself for things that happened during that time.
@finchhawthorne1302
@finchhawthorne1302 5 жыл бұрын
I recently was “asked to take some time off” from my university because of my disability and specifically because I chose to go through with a surgery that might help my long term health.
@esmoid2321
@esmoid2321 5 жыл бұрын
Good luck on your surgery!!
@calandramoore31
@calandramoore31 5 жыл бұрын
Amature at Everything I recently was to, even though I repeatedly informed the university that this would just make me homeless
@vanillawaterfae
@vanillawaterfae 5 жыл бұрын
You should be able to get accommodations at your university!! That is awful! Much love to you. ❤️
@quirkyblackenby
@quirkyblackenby 5 жыл бұрын
Calandra Moore they can’t make you take a break from school
@calandramoore31
@calandramoore31 5 жыл бұрын
@@quirkyblackenby nope, but they can heavily suggest it repeatedly even though you've explained why it's a bad idea
@marymiller752
@marymiller752 5 жыл бұрын
I'm currently in my third year of university while trying to do deal with ADHD and horrible dyslexia. On paper, my school has a decent disability program but in reality, it is useless for people like me. My university requires a diagnosis no older then 2 years for things like ADHD or a work order, IEP, whatever you want to call from no more then 2 years before. Well, for me, my diagnosis was done when I was in grade 2, or about 11 years ago, and my last "work order" was issued at the beginning of high school. So my school has now been refusing to give me the help I so desperately need (this fact has taken me over a year to finally admit to myself because in high school I was that straight A, teachers pet student, and now while still keeping an A- average, am struggling so hard to even just get things done on time) for 3 years, and its awful.
@anna_in_aotearoa3166
@anna_in_aotearoa3166 3 жыл бұрын
That's so bizarre. Do they think ADHD is likely to just disappear?? 🤔
@dragonflies6793
@dragonflies6793 2 жыл бұрын
I relate so hard to being the neurodivergent student who keeps straight As and struggles to get things done on time. It's so frustrating because I will stress myself out to the point of multiple breakdowns just to finish something, but once it's finished I get an A and nobody else knows that I struggled at all. And it's this horrible feeling of duality, where on one hand I love learning and I am capable of learning and capable of doing each of the assignments on my own time, but I'm not capable of following the timeline and the standards and the formats and everything set by the educational system, at least not healthily. It's terrifying.
@Crowcifixx
@Crowcifixx 5 жыл бұрын
I'm crying along with you Jessica. Both my attempts at uni "failed" for the most part. I didnt fail, the system failed me. Just imagining how you must have felt in those times breaks my heart. I wish I'd have known you at university. I just want to help young Jessica and feed her soup and talk to her about how hard we both had it 😭❤ Also for once I got notified on time!
@TheAsakiti
@TheAsakiti 5 жыл бұрын
Fen Ratdad same 💖 my attempt failed due to something Jessica said here. “The system is more help to people who are skiving than people who are genuinely unwell”
@kaseydexter9736
@kaseydexter9736 4 жыл бұрын
University was awful for me too. My depression decided to wait to surface until I was thousands of miles away from my family and everyone I knew. There are many things about that time that my brain has blocked the memory of because it's too painful. I view my degrees as a testament to what I can accomplish, not because of the coursework, but because I made it out alive. I'm glad you got to the other side too. ❤
@Whimsy_and_Dreams
@Whimsy_and_Dreams 5 жыл бұрын
It breaks my heart to hear how rough it was for you. My first year was absolutely terrible. I went to a school based on its prestige to please my parents. I knew something was wrong, but because I didn't have a diagnosis going in no one could help me - not that I knew how to advocate for myself anyways. I just slept in my dorm or napped on the lgbt student center and women's center couches. I cry when I talk about that time, too. Left school and work entirely for one year, got intensive therapy and my diagnosis. Started going back to a different school with 1 class and 10 hours of working which was almost too much. Stuck with it and now I'm finally graduating with my bachelors. I'm taking full time courses now, and working very part time hours in a preschool that already has 1 other disabled teacher, so they are knowledgeable. It's been hard and I still get sick easily, especially when I experience even the slightest stress. My parents berated me for it, but I got help in other more supportive places and I did it.
@Susan0StoHelit
@Susan0StoHelit 5 жыл бұрын
I’m 27, 28 very soon. I have been one semester away from graduation for about... 4 years now. I went to college in one place, got a medical withdrawal at the end of my first year. Took a year off tried again closer to home and got so close. So damn close. But I couldn’t cross the finish line. I suffer from depression and anxiety and agoraphobia and probably some undiagnosed stuff too. And I had to leave. But I’m hopeful I will get a degree one day.
@skiblybombombom
@skiblybombombom 5 жыл бұрын
Hey Jessica, random question: do you like to hug? If so: * sending you the energy of a hug *
@etanesnil7072
@etanesnil7072 5 жыл бұрын
Amber Monein ❤️❤️❤️❤️❤️
@RoflsaurousRex09
@RoflsaurousRex09 5 жыл бұрын
She is a hugger.
@fionafiona1146
@fionafiona1146 4 жыл бұрын
I am so glad she has Claudia and hope to learn more about their supportive environment.
@wanderingthetardis6179
@wanderingthetardis6179 2 жыл бұрын
Recently graduated college after growing up in a cult and developing a disability in highschool. 19:50-20:22 was my experience in a nutshell (except everyone made it clear that I was the weird kid and not welcome). So awesome, I'm crying. I always feel so seen from Jessica's videos.
@ellielamport
@ellielamport 5 жыл бұрын
The lights falling instantly accurately represents my will to live after going back to college.. P.S.I love your hair today Jessica!
@kirithornalley6123
@kirithornalley6123 5 жыл бұрын
Very accurate representation as to how I felt on returning to uni after a leave of absence. Department made it so, so obvious they actually didn't want me back. I'd got as far as the Thursday of Fresher's week and I was on the verge of packing everything up, and ringing mum and dad to come and get me because of how awful the disability person in the department had been. That was 4 and a half years ago, and the memory of this *still* makes me cry. How on earth I made it through my final year and came out with 58.5% overall in my degree, I have no idea.
@Persepholeigh
@Persepholeigh 5 жыл бұрын
When you spoke of your foot feeling like it's not attached, it reminds me of depersonalization, a mental illness, or aspect of other mental illnesses, that's commonly referred to as "the Alice in Wonderland disease". I get it sometimes, due to my CPTSD. I often feel like my hands have detached from my arms, most often while I'm driving, which is terrifying, or I feel like my neck is stretching. Goddess, I super relate to that issue with your friends. When you talked about your loneliness in another video I cried thinking back to my own experiences. I'm bipolar, which makes me difficult to be around. Nearly everyone in my life has just up and left me at one point or another, most often without any warning. I've spent years of my life in near total isolation, including the last three since I moved away from the only good friends I've ever known. The only time I talk to people using my voice are at work and at Starbucks where I write. I have breakdowns at least every few days, sometimes every day. Uuugh! I'm typing this as I'm watching, so each comment is separate. Talking about trying to be included in drama club sounds like literally my entire life. I was extremely emotionally unstable [bipolar child, abusive step-dad, just fucking crazy and often dangerous bio-dad], so from literally kindergarten to college I had no social skills. Everyone would flip flop on whether they wanted me around or not and get mad and yell at me if I didn't know which one it was that day. In middle school new kids were told that if they talked to me they would be outcasted. A kid who was nice to me was teased for me liking him [I did not], and he started to avoid me like the plague, something that still has me fucked up, actually, I've trained myself to stop liking someone as soon as it starts for fear of insulting them and grossing them out. I'm twenty-fucking-eight. I've even had teachers gang up on me through university, let alone ignore bullying that happened feet from them. I've actually started telling people I'm bipolar right away to avoid these reactions whenever possible. This was hard to watch. I'm so glad you found Claudia and Clara.
@rbvp45
@rbvp45 4 жыл бұрын
This sounds like a lot. Have you tried trauma therapy? A somatic trauma therapy like EMDR or Somatic Experiencing? I also highly recommend checking out Irene Lyon here on KZbin. It is totally possible to heal from a lot of this by releasing dysregulation from your nervous system. It’s a tough job, but it’s totally possible. Hope things get better
@maggieholland8202
@maggieholland8202 4 жыл бұрын
WAIT IT HAS A NAME? OTHER PEOPLE HAVS THE THING WHERE THEY ARE DRIVING AND SUDDENLY THEIR HAND ARE THE WRONG SIZE AND THEY DON'T BELONG TO THEM AND IT HAS A NAME? I FEEL SEEN AND I MAY CRY
@snakebitepellehue
@snakebitepellehue 5 жыл бұрын
I'm disabled and a third year university student. Accessibility is virtually nonexistent on my campus, so I can't wait until it's over.
@samtweedie4658
@samtweedie4658 5 жыл бұрын
The lift at my university constantly broke down. I wasn't allowed a pass to the service lift to get to my class on the fifth floor
@BenTheSkipper
@BenTheSkipper 5 жыл бұрын
All the best Gaby!
@BenTheSkipper
@BenTheSkipper 5 жыл бұрын
@@samtweedie4658 thats sad
@NormanAndTheCarpets
@NormanAndTheCarpets 5 жыл бұрын
My uni go on about being great for disability but are still missing so many vital things
@emmybuns6964
@emmybuns6964 Жыл бұрын
I’ve become newly disabled this year from cancer treatment in my first year of veterinary school, and I’m thanking my lucky stars that I’ve been following you long enough to have access to this video. Thank you for being amazing!
@AC-gb7do
@AC-gb7do 5 жыл бұрын
I had to deal with disability, depression and chronic illnesses (still do sadly) in elementary school, middle school/high school and college myself, so I can definitely empathize with the broad strokes of what you spoke about.
@sonicsakura8368
@sonicsakura8368 5 жыл бұрын
This echoes a lot of my experience with university. Just thank you. 5 years later and I still haven't finished my degree. It's so hard to explain this to my family.
@oriontheconstellation
@oriontheconstellation 5 жыл бұрын
Left foot drop solidarity! I mean, it's definitely not great, but holy cow you're the first person I've ever even heard of having the same issue as I. I've been watching your videos for years, and I can't express the difference you've made in my life by making me feel less alone. Thank you.
@secretaltruism4174
@secretaltruism4174 5 жыл бұрын
I've put off watching this video for a few days because I knew it would be hard for me to watch. And it was, but it was also a little bit calming to my soul.
@diaz9rox
@diaz9rox 5 жыл бұрын
Thank you for posting. This sounds like a traumatic experience that you did not deserve in any way, and you were let down by so many systems. It is incredible that you are able to be so vulnerable with us and provide such a raw experience that can build empathy and lead to growth. ugh you are such a bright light - thank you!!
@June_isYourFriend
@June_isYourFriend 10 ай бұрын
This is so relatable! At least, in the memory loss department, i have short term memory loss, and it is, truly scary, not remembering what i said earlier, or what happened last week, but luckily, my memory loss only applies to recent memories, so, the memories that havent been trauma blocked, i still have, but thats when i can tell if its not a dream i had.
@Harrison_J_T
@Harrison_J_T 5 жыл бұрын
I have periods of time where my memories are patchy due to trauma. Some things I know happened but I don't really remember them happening or the memories are more like memories of a film I watched than something that actually happened. It's frustrating because obviously my brain is just trying to protect itself but having portions of my life that are mostly missing and the memories I do have having that disconnected quality is really upsetting. I was very ill with whooping cough as a child and the one memory of that time I had that I felt almost present in was having gone back to bed after being sick and waking up and realising I had fallen asleep with the light on something I couldn't normally do. I intentionally inhabited that memory because I remembered how weak and ill and small I felt in that moment and then my brain decided that was too much and took that memory from me as well. All this messy ramble is to say memories are weird and it's stressful when they don't just work normally.
@hannahfox5422
@hannahfox5422 5 жыл бұрын
I seriously thought I was the only one who had this!
@chillmister7328
@chillmister7328 5 жыл бұрын
I get this totally! Massive swaths of memories, mostly from my childhood, are completely missing. It's hard not being able to remember so much but sometimes trying to dig too deep and you can retraumatize yourself pretty easily which sucks.
@forced2makethisbloodyaccou355
@forced2makethisbloodyaccou355 5 жыл бұрын
I'm not having flashbacks. I'm not crying. The feeling of isolation and fear didn't just come flooding back. The difficulties of dealing with missing time and memory loss isn't making me emotional. 😥😓 I think it's just being a human that is hard.
@erikalygren77
@erikalygren77 5 жыл бұрын
This is all the sadness that positive Jessica pushes through most days. Honestly, kudos for that.
@alionahamilton3427
@alionahamilton3427 2 жыл бұрын
Currently a university student who has recently become/ progressed into being quite ill just sobbing along with this video, 💜 much love.
@madsthomas7013
@madsthomas7013 5 жыл бұрын
This breaks my heart because I was isolated fully alone at home for the first semester of CIT with multiple anxiety disorders and ptsd. I ended up having to leave cause I couldn’t physically attend the classes or do the work however I had the privilege of having access to a doctor that listened to me once I was able to get to one and get onto anti anxiety medication and regular therapy but it doesn’t stop it from causing me to fear this years course that I am redoing but a positive from all this is I know now who to go to within the school for help and my family is aware of my mental health and regularly keep and eye and ear out for me.
@victoriareuben502
@victoriareuben502 4 жыл бұрын
That was a hard watch seeing her so distressed remembering the fear and pain. I wish I had known her then because I would have sat with her and made sure she ate. I’m a massive make food and drinks for someone to make sure they are ok. 💗
@kylereese5841
@kylereese5841 5 жыл бұрын
The lights falling immediately, lol.
@EducatingCole
@EducatingCole 5 жыл бұрын
I was diagnosed with dyspraxia whilst at University. I was really struggling to keep up with everyone else and I couldn't understand why everything took me so much longer and I couldn't pick up the appropiate social cues that everyone else did so flawlessly. It was actually my lecturer who thought... "Hey, I see that you're struggling with taking notes during class and recalling information... maybe you should turn to the student services and ask for advice" from that one lecturer, I was fortunately diagnosed with a learning difference and it completely turned my experience around. I was helped my DSA with software, recording equiptment and a learning difference specialist who helped me plan and write my essays. I thank my lucky stars every day that my lecturer saw that I was struggling, because without it, I would have failed. Thank you for bringing DSA to light Jessica
@bonniebatton2355
@bonniebatton2355 5 жыл бұрын
Hearing this story, and how hard it was, makes the bright, optimistic, passionate person you have grown to be even more incredible. Knowing that you went though what you went through, and that you come out the other side and worked to create the wonderful life you have now, helps me to believe that I will get through the struggles I am currently facing in life and become the person I hope to one day be. Thank you 💗
@worldsslowest
@worldsslowest 4 жыл бұрын
i know this is an older video but this hit so close to home (TW for the rest of this comment) i'm in my last week - my LAST WEEK - of university. my 5 years of school have included multiple traumatic events, a suicide attempt, dropping out, moving and transferring, being suspended for academic failure, having to recover my GPA, getting surgery, being diagnosed with 2 chronic physical conditions (and one more diagnosis currently pending) and 5 (FIVE) mental disorders, dealing with the pandemic and this past semester my health declining into the worst it's ever been. it's been truly terrible, especially just these last few months. hearing your story was so validating to me. i feel terrible for not being more excited to be graduating, for not feeling this overwhelming sense of achievement i was supposed to feel, but instead just being rundown and exhausted and angry that i've had to go through all of this and still have the same academic standards as my able-bodied neurotypical classmates. the university experience just isn't all it's built up to be when you're disabled, and i'm so glad to hear you speaking on it so honestly and putting yourself in this vulnerable position. thank you from the bottom of my heart for all you do. as a graduation present, i'm treating myself to FINALLY joining the kellgren-fozard club next week!!! i know your content (and maybe finding some actual competent medical care) is going to get me through my masters and doctorate degrees, and i just wish i'd found you sooner than the last three weeks of my bachelor's. all my love❤️
@amariafrost
@amariafrost 5 жыл бұрын
While I don't have any disabilities, my Mom does. This was back in the 1960's, but she tried to go to a University and only made it through about one semester because she had zero support and ended up failing out. While the supports in place aren't great now, at least they do exist somewhat. I think if my Mom had been given a little support from both the school and her family (who would actively discourage her from having "high expectations"), then maybe her life could have been better than it was.
@anim5572
@anim5572 5 жыл бұрын
I swear the things you talk about resonate now with me. I have social anxiety and depression and I'm now an almost hermit crab! It's easier to hide than deal with people. Thank you for giving me things to think about even though our stories are totally different! I was too scared to go to college/university as I was badly bullied and it scared/scarred me for life! Now to go spend some hours binge watching all your videos especially the ones with Claudia as you 2 are so cute it makes me happy lol x
@1a2b3c4d_
@1a2b3c4d_ 3 жыл бұрын
I can’t really help you at all but here is an internet hug
@jupitermelichios392
@jupitermelichios392 4 жыл бұрын
I think I did all the crying Jessica managed to hold off while watching this, boy was that horribly relatable. CFS, untreated depression, caring for someone, and a brain that's best described as a bag full of cats made university A Time for me, and the fact that I didn't get to have anything like a normal student experience, or even make any lasting friends, is something I profoundly regret, even though I had very little control over it
@JuMixBoox
@JuMixBoox 3 жыл бұрын
Wow, I am still baffled that you actually graduated with a university degree after going through all of that. That you saw what was going wrong and realised how to make it work for you and what you needed. I desperately want to hug young Jessica and tell her she is going to make it. I need that hug, too. Too bad it's COVID. But this video definitely works as well. It makes me believe in myself and also inspires me to do my best to be there for others in such situations.
@madelinespringer1346
@madelinespringer1346 4 жыл бұрын
University was the most difficult thing I have ever done! I became so ill during my second year that i had to withdraw, I lost my scholarship and 2.5 years worth of memory during that time. I had to move home and it was terrible and humiliating and so so painful. However, I have since graduates and moved in with my partner. I am working on being ok with the fact that my body will never be 'normal' and I am so so so glad to hear that I am not the only one with a horrible university experience! Thank you for being vulnerable enough to share this!!!
@PhoenixInLove
@PhoenixInLove 5 жыл бұрын
I know this video is so important but I also felt such pain watching this as well. I'm so glad you got through this all.
@darthblob6888
@darthblob6888 5 жыл бұрын
This struck a very painful chord in me. I am in terrible pain for 6 months already and I am still undiagnosed. Got a scan scheduled in 2 months and I am terribly afraid I'll be beyond repair once doctors figure out what's wrong. I go to uni full time and I have a part time job. I have to pay rent on my own and all of my family and friends live in another country. My room is a terrible mess, I starve for days because I can't get up to do grocery shopping or cook. I've been to ER so many times but they just give me painkillers and send me home. Following disabled people on social media has been keeping me sane. Thank you for sharing your experiences, Jessica, even if they're painful to talk about.
@DarnieWarnie
@DarnieWarnie 5 жыл бұрын
I'm excited to start watching this but ready for an emotional rollercoaster. Enjoy your trip in Rome & happy 5th engagement anniversary & birthday to you when it comes!
@emmalinalion4776
@emmalinalion4776 5 жыл бұрын
full time uni at sussex was so extremely difficult and soul destroying not only because of my depression and anxiety but because of the abusive relationship I was stuck in while I was there. After 3 years of constant breakdowns, mental health crises and resits I had to drop out to escape my abuser. This video means so much to me as somoene who also only really rememvers painful bits and pieces of university and feels guilty for admitting this to those friends and people who enjoyed spending time with me then xxx
@leylaleyla1169
@leylaleyla1169 5 жыл бұрын
just wanted to say you're such an idol to me I'm really into the 50s and 60s and basically everything that's vintage so i get inspired by you
@faas0mmer
@faas0mmer 5 жыл бұрын
This advice is also great for life with chronic illness. Finding community and support is so important. So is knowing, respecting and standing up for who you are and who you want to be.
@RoflsaurousRex09
@RoflsaurousRex09 5 жыл бұрын
The statement that hurt me the most in this whole video was "then I'd have to call my mom to come take care of me, which I knew she didn't like doing". That just broke my heart.
@fionafiona1146
@fionafiona1146 4 жыл бұрын
I think the driving was a big part of that, if later Videos are anything to go by... Not that "making a day trip" to see your child miserable (by their own choice?) sounds fun.
@emilydana5021
@emilydana5021 5 жыл бұрын
I'm a graduate student and am crying as I relate to your story of forgetting things and then being a state of panic because you know that there are things out there which you are forgetting but I never know which ones and I'm also constantly putting things down and then forgetting where they are.
@FlocaBerryPudding
@FlocaBerryPudding 5 жыл бұрын
This is just... my entire school experience so far. Thank you for posting Jessica, I needed to know I wasn't alone.
@karenwyzwmnbrown5853
@karenwyzwmnbrown5853 4 жыл бұрын
I hear you...I live with a Brain Injury...people seem to spend more time talking about what I can't do as opposed to what I can do...I love your sense of humour and the fact that you don't seem to give up....I'm happy I found your channel! 🇨🇦
@hannahregan4348
@hannahregan4348 4 жыл бұрын
Shoutout to you for always making me (and I’m sure so many others) feel so valid in my own body. Much love
@ella1856
@ella1856 Жыл бұрын
watching this in my summer before going to uni whilst worrying about how i'm going to cope due to my parents concerns about how me being autistic has been effecting me recently is really helpful and reassuring, thank you.
@look_its_jess
@look_its_jess 5 жыл бұрын
You don't know me and we will probably never meet, but I love you. Your story is heartbreaking and I am so glad you are in a much healthier place now (if not physically, you seem mentally healthier). I love watching your normal sassy, sarcastic videos, but I'm glad you opened up about this too. I love you and I want you to know that you have friends from all over the world who you just haven't met yet
@michellewilliams3908
@michellewilliams3908 3 жыл бұрын
I just wanted to hug you at around 15 minutes in as I found university life hard enough as just an anxious and depressed person, never mind a disability on top of that. The system is incredibly messed up and I’m so sorry you had to go through that.
@Benni777
@Benni777 5 жыл бұрын
Being the disabled one that has something that no one else has was really hard in high school;and the STARES were like daggers to my heart and brain!! I became so paranoid that everyone was watching me which became so bad that I needed to go into therapy bc I did became delusional! Being in drama club also helped me become more social and I also became the girl that talked to everyone so I wouldn’t have to deal my emotions.
@CoLD.SToRAGE
@CoLD.SToRAGE 3 жыл бұрын
I find that many people who face the toughest lives have the kindest souls, and I feel confident that you add to this body of evidence. I have experienced some difficulty and ridicule in my life, as I too have an “invisible” hereditary illness (E.P.P.) so I can relate to some of your experiences. Watching you get upset, I feel both empathy & sympathy... but much more than this, I feel admiration in the way you are handling your daily life and achieving your goals.
5 жыл бұрын
Thanks, dear Jessica for this video!
@CrispyInsomniac
@CrispyInsomniac 5 жыл бұрын
I went to university with an undiagnosed acquired brain injury, and I just didn't understand why studying had become so hard. I kept falling asleep during lectures, I couldn't remember anything, things kept hurting all the time. it took 12 years for me to get diagnosed! from 18 to 30 I was a complete mess. I'm still a mess, but now I have more facts. know myself a bit better. it feels good to know there are other people out there with similar experiences. this video is so important. lots of love to you and your lovely wife and doggos
@kimkaye2219
@kimkaye2219 5 жыл бұрын
Girl. I just want to hug you.
@SwashBuckTief
@SwashBuckTief 5 жыл бұрын
Dear Jessica, I have been trying to finish uni since before I even wanted to. And here I am, years since I graduated high school in 2009, trying to make a name for myself... And I still want to look fabulous... You give me hope. Thank you.
@t7channel33
@t7channel33 5 жыл бұрын
Currently in university and so far it's just emotionally overwhelming but other that that pretty bearable. Like everything is for me. I learned that things are more likely to take an emotional tall on me than physical.
@melody10234
@melody10234 4 жыл бұрын
This hit me incredibly hard. I’m currently in college, dealing with being undiagnosed and in the worst chronic pain ever. I am a part time student, because I have to be, and even then I’m scraping by. The memory loss is so hard. Days will go by and I won’t realize it. I look back at previous quarters and can only remember very few things. Thank you for sharing this, it makes me feel so much less alone. I was crying right along with you, as I live through something so similar. Feeling seen and understood is something seriously lacking in my life currently. While I have a good support system, they are all abled and that is absolutely helpful, but also I can’t get the same level of understanding from them as I can get from others with disabilities. Thank you. Thank you, thank you, thank you.
@angeleyddemoness
@angeleyddemoness 5 жыл бұрын
I teared up throughout this video and constantly though.."I wish I could've known you during this time so i could've been there to help you." You amaze me in every way when i watch your videos.💜
@colettelee1162
@colettelee1162 5 жыл бұрын
You are gonna help sooo many people with this video! I empathize, because I can't remember being age 16-20. I started college at 16, and had to drop out of it and high school a year later because of the trauma I was living through. I never got to go back to college, and it makes me so sad. It feels like there's a break in my life, and I was a different person before. I was such a smart, creative kid, and I had such big plans for myself! Although I can't compare our medical struggles, my brain just doesn't work the same now. It's a cocktail of anxiety, depression, and memories stored in weird places. I've also recently discovered I'm living with a chronic illness that gives me brain fog (fingers crossed I get a diagnosis this year). I wouldn't have been able to adjust to my new physical limitations so well if I hadn't discovered your videos right before I got really sick. This video made me feel SO much less weird, and less alone. THANK YOU, Jessica. 💕
@MarieAxelsson
@MarieAxelsson 5 жыл бұрын
I made it through university while I was the most sick I've been in my entire life. I had 3-5 (depending on how you see it) undiagnosed issues, that I was just coping my way through. The last term, when we were supposed to write our paper (I was studying a Bachelor's in English, chose Literature for the paper), I finally ended up on sick-leave. During the year I was sick I lost a lot of my memories, and the ability to speak and think and write for a few months, a lot of the memories are still gone. It eventually trickled back, and a year after I got sick-leave I went back to finish the last term and the BA Paper, because the university had been helping me by saving me a spot, but only for the next year's run. So I felt like I couldn't miss that opportunity. I was enrolled for fulltime studies, but in practice I barely got up to 50%, and I had made that agreement with my teachers/professors on my own, because the healthcare and health insurance services in Sweden doesn't actually help students rehabilitate back into studies. I made it through, and that term was fantastic in so many ways, even though I was still very sick. I wasn't even sure I was going to finish the paper until the very morning but somehow I did. Then it took me 2 years until I actually started to get diagnosed and found out I had been going around with Hypothyroidism for 6-7 years (from my own calculations), I had hEDS, most likely POTS, fibromyalgia and psoriatic artritis. I've been in so much pain for so many years, and I just felt invisible, and had given up on health care entirely, until my mom wanted to help me by buying me compression clothes to help deal with my fatigue from walking to the store. We invested that money into seeing a private doctor instead, and this is the best choice I ever made. And now I'm crying too. Thank you for sharing your story, and I've found your channel has really helped me accept who I am and what I am capable of, especially your vlogmas, and sharing how your bad days can be, made me feel a lot less alone. Thank you.
@imissutz
@imissutz 5 жыл бұрын
Not physically disabled in the sense of needing interpreters, or accessibility aids etc, but more than 15 years of crippling anxiety and depression meant that I’m currently on my third attempt at university... but luckily this time I got brave enough to ask for help, applied to the university for relevant accomodations, and, with 6 years of intensive, INTENSIVE therapy from my wonderful psychiatrist, I am now on the cusp of my final undergraduate year! (Then only another 3 years of postgraduate studies to become fully qualified! 🙄🙂) I still have bad days and weeks of panic and fatigue and mental paralysis, but what you say about support systems is so true. Unlike my previous two attempts, this time I have the structures and people in place around me to get me through the tough times. Hi from Australia. And thanks for your honesty. ❤️
@GeorginasJourney
@GeorginasJourney 5 жыл бұрын
Loved this so much! I have POTS & EDS, use a wheelchair & am currently at uni (also after 2 years being bed bound) & am now making vlogs & tips videos about it if anyone wants to see how to make it all a bit easier if you’re considering it or are there already 😊
@GeorginasJourney
@GeorginasJourney 5 жыл бұрын
My friend’s vlogs were what made me realise it was possible for me & I’m now having an amazing time despite my illnesses, so I hope anyone who’s having concerns and feeling like past Jessica can see this!
@gaildahlas
@gaildahlas 11 ай бұрын
I know I'm finding this video a long time after it was posted, but I want to say I'm really thankful for the note at the end. I'm on my second attempt at a bachelor's degree (the first was dreadful and I dropped out to preserve what little health I had) and the access to support is markedly better this time around. A few of the disability support people have mentioned that I might be eligible for the DSA, and I'd completely forgotten about it up until now! Going to write a note on my hand so I absolutely don't forget to apply this time.
@LittleSelfia
@LittleSelfia 5 жыл бұрын
Thank you so much for being so open and vulnerable in this video. I hope you see yourself now as the person you needed when you were younger because you are that for SO MANY people right now
@laurenlarocque8767
@laurenlarocque8767 5 жыл бұрын
Man, this hit really hard... I graduated from American college last February and also had a pretty negative experience with my school’s disability accommodations. I never had any physical disabilities, but I struggled with mental health and was hospitalized for it at one point. I struggled with really bad anxiety and depression and basically couldn’t even walk into a lecture hall without getting a full blown panic attack. And though I was seeking professional help and talking to my professors/disability office, I was basically told I wasn’t trying hard enough or that I was asking stupid questions a lot of the time. It hit so hard to watch you get so teary about how dark things got for you (I just wanted to give you a hug ❤️) I got to a pretty dark place while I was in school, and I can’t imagine how hard it was for you to share this with so many people. I found your channel not to long ago, but I’m so glad I did. Your cheeriness (and the feminism! Yes to ALL the feminism!!) always makes me so happy. Plus you’re always so engaging! I can never get enough! I hope that even though this was a hard video to make, you’re still happy today and know that I’m sending positive thoughts and a hug from the US!
@FatiguedButFabulous
@FatiguedButFabulous 5 жыл бұрын
Thanks for making this video, Jessica. I started to struggle in the final two years of my degree, and universities are often not equipped to offer practical help to students. I hope it gets better.
@oinak_
@oinak_ 4 жыл бұрын
I went to college, maybe for the wrong reasons, and failed, because I could not adapt to the way things worked there. Even with my struggling not being disability originated, I can relate a lot about how little the system adapts to different needs. In my case, I quit after 6 years, went to vocational school for the closest thing (computer engineering BS to app development technical degree) and found a way forward in life. As the now father of a child with disability, I watched your story with horror and awe. I really hope my daughter will some day be a happy adult, either autonomous or surrounded by whichever super system she needs. Thank you for sharing something that was so hard for you. You make the world better with your optimism and humour.
@Fish_plz
@Fish_plz 5 жыл бұрын
Ahhhhh so excited for this in high school and am terrified for University but im glad you got through it
@theonecalledstein
@theonecalledstein 4 жыл бұрын
So much of you Uni experience matches my own. I only paralyzed one arm, but that was when we found out something was wrong with my nerves. it was more than 20 years ago and I still struggle. Thank you for the warm smile and love that brightens our days.
@friendlysharkce1831
@friendlysharkce1831 5 жыл бұрын
I.. thank you for talking about this. I tried university, I somehow managed school, but had already raked up so many issues. And in uni I was there for under half a year. This was before I was diagnosed with anything, so I just felt like a failure, because everyone else could do it. This was when I was 20, I got my first diagnosis though no help, Autism. I'm 23, 24 this year and I just got my chronic pain diagnosis. I've been struggling for so long and I appreciate it so much that you share what you can remember. Because you're saying that it WAS hard and even though I'm still somewhere on benefits fighting to be treated right, I feel less alone. Thank you.
@alshirley3444
@alshirley3444 4 жыл бұрын
Knowing that you survived and now are living your best life, my heart broke for you. Everyone, disabled or not should follow your guide lines/rules.
@ellev6195
@ellev6195 5 жыл бұрын
Oh Jessica. Seeing you cry and so upset is absolutely heartbreaking. Thank you for being so vulnerable with us. You're a ray of light ♡ and I look forward to your videos, your humour, knowledge and honesty. I would have been your friend and would have been more than happy to help you out. ♡ big hugs
@lassam333
@lassam333 5 жыл бұрын
Thanks for making this video. For a non disabled person like me it's almost impossible to realise how difficult life could be, especially with your disabilities. At parts it was heartbreaking to watch how you had to cope with the education system on top of all the other problems you already have. The problems with the lights in the background made it a little more bearable to watch. You can be so proud of yourself that you pushed through and graduated. You're a light of hope for everybody who is struggling with health problems and show that it's still possible to reach your goals. At the end of the day your mother was absolutely right that you'll find yourself a girlfriend, even if it took you until the day before you graduated. You found yourself in Claudia one of the most amazing people there are, who loves you just the way you are and never judges you. I'm so happy that you found, by going to the Brighton University, the love of your life.
@sersastark
@sersastark 5 жыл бұрын
I just want to hug you so much!!!! 😭😭😭 Oh Jessie, you made it out!!! You did it!!! I'm in tears.
@lucylulusuperguru3487
@lucylulusuperguru3487 5 жыл бұрын
You almost described my entire experience at uni. I also was very unwell just prior, and while at uni and away from home a good distance for the first time. I LOVED the learning aspect, but the setup and lack of informed direction from advisors left me muddling through. I eventually had to come home. I did not graduate, but I also don't see that time as a particular true failure of mine...I learned A LOT about the core of who I am during that time...the good the bad and the ugly.
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