My Endometriosis Story - Endometriosis Symptoms, Pain, Exercise and More

[@tiffanylayton]

Man it’s very encouraging hearing someone who has experienced so much of what I have!!

[@Bellasluckyslots]

I’m currently laying in the bed in excruciating pain because of this. Every time I go to the hospital and the doctor they say it is just a cyst or a ruptured cyst. This pain never goes away. It is worse during my period but it’s always there. I’m sorry to every woman going through this💕

[@esterr105]

Hang in there buddy 🥺 you are not alone

[@Bellasluckyslots]

Thank you!

[@shreyawalia5376]

I am going through... I am Fed up with this

[@nimesworld1610]

Same here sister doctr said me the same but no improvement it almost 12yrs I m still in endometriosis the pain I feel in period can’t able to define it I m tired of medication

[@Bellasluckyslots]

I’ve been diagnosed with adenomyosis and the dr’s are saying the only cure is to have a hysterectomy but my fiancé and I want to have children so I have to just live like this until I have a baby. It’s crazy. The only thing that works for pain is norco and 2 Ibuprofen. I hate norco! It makes me sick to my stomach and I just want to sleep. I pray they figure something out for us ladies.

[@syedaelia5336]

Thank you for sharing. No one could ever imagine how much pain a woman goes through during this condition.. I wish, God bless you and all the sufferers 🕯️

[@n0elle0n]

Thank you so much for sharing this 🤍 I was diagnosed with stage 4 endometriosis a few months before my 30th birthday. I was misdiagnosed with dysmenorrhea when I was 16 (even though my doctor knew that my mother has it and it’s on the other side of my family as well). It has now been found on and penetrating my bowels. Still in excruciating pain but like you I’m trying to not to let this take over my life. And I want to have kids so I will do whatever it takes. Sending you and everyone here with endo much love and many prayers. 🙏🏽🤍

[@MarieHenderson-bs4of]

Thank you for sharing, very empowering hearing from others. I was diagnosed with stage 4 after 18 months of extreme pain and being told it’s just a ovarian cyst. I push a surgeon for surgery and discovered my diagnosis. I never thought I would ever have endometriosis. My periods were always regular, and I didn’t have the signs that other women had. However, I did get my period adjust 12 years old and I have suffered with sciatica back pain for the last 10 years. I’m now due for my second surgery in just a few weeks. My ovaries are stuck together. They found a nodule in my bowel, and most of the endometriosis has come back from the previous surgery and that surgeon didn’t remove all of it at that time either. I’ve come to terms with the fact that this is the Way life, maybe for quite some time not what I envisioned at 41 in 4 weeks, no children, no partner because sex can be painful. Having somebody like yourself, Jessica is honestly godsend. Thank you so much❤😊

[@queeniequeen949]

As a fellow endo sufferer myself I’m sending all of my love and healing prayers to you.

[@ChetJennings]

Whelp, this is 100 percent my identical journey. I got pregnant naturally and have three healthy kiddos, so don't lose faith and hope, friends! Yoga, a D&C, and acupuncture along with a healthy diet helped my fertility immensely. Weight training just caused a major flare, and I'm so sad. I was good for years and years. I need to tone it down. Thank you for sharing all your insight and your experience. ❤

[@olenalukiyanchuk914]

Thank you so much for this video! I am suffering from the endometriosis and it took so long to be diagnosed. And even now when I know what I have, no actual treatment is offered. I am so glad to have found your channel

[@Jessicasvalant]

Thanks for being here!

[@SongsbyCharleneApril]

This confirms what I have. At age 35, I had a constant low back ache. A dull painful backache, it rarely if ever subsided. Then a couple years after that, it spread to lower right side pain (still had the low back pain), the right side pain flares up at times, affecting my bowels, and at times, the painful waves send me to my knees. Periods are fairly normal for me, some cramping, no pain with sex. Had a baby at 37. I am now 48, and am always told it’s an ovarian cyst/cysts causing the pain. The right side pain (when bad), had me convinced maybe I am passing kidney stones. Scans have never shown anything wrong accept cysts. Accept recently a scan showed ovarian cyst and cystic endometrium of my uterus. Seeing my obgyn today. I did have a few years of relief being on a low estrogen birth control pill and taking it continuously. Meaning, I was able to skip my periods. If you start a new bc pack at the time when the pacebo pills start, you can skip your period all together. This was amazing for me, then my insurance stopped covering it. Diet and exercise does affect symptoms, but the only cure for me was the low estrogen bc pills taking them in such a way (as I explained), to avoid getting a period. All signs are pointing to endometriosis, plus my half Sister also has endometriosis. I am hoping to be diagnosed properly. Skeptical about surgery, if surgery is recommended. Hoping once I go through menopause my symptoms will be much improved or gone, since I will naturally stop getting my period. Anyone reading this… hope sharing my experience is helpful.

[@Hertz2laugh]

If you go on a Ketogenic diet (less than 20 total grams of carbs per day), you’ll clear up endo in six to nine months. I am happy to answer any questions you might have.

[@erinaaron9166]

Thank you for sharing 😢

[@millyseaber-shinn6109]

Ask for a pelvic scan and look for Adenomayosis. Mine was diagnosed by this scan and was clear to see to me . A private scan is around £100, worth every penny! My endo was discovered by MRI. Good luck x

[@millyseaber-shinn6109]

The merina coil massively helped my pain but gave me side effects like acne and migraine. .. it’s a hard toss up! 🫣

[@shrutivijay7888]

Lying on the bed with excruciating never ending pain..Came across your video while looking for a remedy.Looking at the comments I’m glad to know I’m not alone. I was diagnosed 12 years ago. Have had surgeries and still comes back. Making major lifestyle changes has definitely helped. More power to all of you going through this.

[@mandaivy1760]

I was diagnosed with endometriosis 3 years ago. However, I had no signs nor symptoms from it. So there was no reason to treat me. Thank God for that, cuz it could’ve been worse. Plus, I’ve been eating healthy all my life. And walk once or twice daily. Thanks for this inspiring video. I will watch it again

[@RQuintelaRealty]

I’m searching solutions for my wife, very good approach you have on how to deal with the problem! Thank you for sharing

[@vutomi9874]

Omega 3 supplements, intermittent fasting, no sugar! Only healthy food!

[@aligreig8567]

Whats super interesting is i only follow your pilates workouts. They always make me feel good, now I know why. I also have endometriosis. Thank you for sharing this ❤

[@solangelalebron1348]

Working out in the gym is like radiation for ailments. I carried over 100 pound bag the other day more than 10 blocks, and my back didn't hurt, my shoulders, arms, legs, feet nor knees hurt at all, BUT....my uterus did hurt. Lol. So those fibroid/ PCOS people are only making their ailment worse by doing exercise.

[@Alkaouthar1]

Thank you so much for sharing your story. I've been diagnosed recently and can relate to your symptoms and how you get mad at your body sometimes.. seeing what you've accomplished despite the disease gives me hope as I had to give up on my career because of the heavy symptoms. Your words are so helpful and encouraging ❤

[@courge37]

Wow. I feel thankful that it didn't take ten years. That's crazy. I have been diagnosed with this year and it only took a year and that was long enough. The bleeding and pain was pretty tolerable except for one day where I was bleeding huge clots and bent over in pain. I'm sorry for all the women who got it worse and went through this for years... Thank you for sharing your story!

[@Jessicasvalant]

Best wishes to you!

[@karenbrooks8840]

Thank you Jessica for sharing your journey. Brings back lots of memories. 20 years of pain and flare ups and 9 surgeries. Now trying a different angle to ease symptoms and prevent re growth. I love what you said about not letting it define you. I’ve fallen into that trap and after listening to you am going to adapt this philosophy going forward.

[@Nafers]

Thank you for your generosity and a big yes to being an "active participant in my own health " and staying informed, optimistic and self-advocacy. 🙏

[@SpicyPumpkin001]

Thanks for sharing your story. Endometriosis sucks but it's so important to keep a positive mindset and also to accept what you can't change and focus on things you can do. Your words are encouraging, thank you and all the best for you! 💛

[@JGarriso]

We have to be our own advocates constantly

[@vilma9774]

I live in Finland. Many years ago gynecologist said i have superficial endometriosis and said i should take pills for it. She said then endometriosis wont become advanced and period pain gets less. I used them many years until i got bad side effects. I had to stop them. I have had stomach problems since i was teen. Diarrhea and blood coming from wrong places. I started to have horrible pain in sides and stomach when i was still using pills. Also constant urinating problems and constant diarrhea. Doctor said everything is okay. About two years after that doctor i went to gynecologist who said i have adhensions and probably area around uterus is full of them and uterus is sticked to bowel. My endometriosis could develop even though medication and here in Finland you cant get any help unless you go to private gynegologist and pay a lot. It was unbelievable hard to get the diagnosis and my endometriosis is not superficial like my first gynecologist said. Doctors dont even know the symptoms because men doesnt have this!

[@1petgor]

Thank you for this video and your exercises. I likely had endometriosis in my adolescence and didn’t know. The way I learned about it was going to an infertility clinic. I had the surgery and years later it has returned I had symptoms over the years and didn’t know they were actually symptoms of endo. I thought it was normal to have lower back pain, pelvic pain, and cramps in my leg This time around with endo has been worse. I experienced flares for the first time that I learned later was do to me doing HITT exercises I move my body every day and I do change how I eat. More focus On whole foods versus processed and fried It’s a journey. I refuse to let it take over. Mindset is huge as it can cause sadness and anxiety. It’s encouraging to see other women sharing about this. I feel less alone Your videos are awesome!

[@esmeraldagutierrez398]

I am 22 yrs old and I was diagnosed with stage 4 endometriosis, I was in constant pain for months in and out of the hospital. Even went to different hospitals and I was told that I had fibroids as well,so I was put on surgery and now I’m in birth control they removed my left ovary and tube and it’s going to be so hard for me to have kids. My gynecologist told me that my ovaries and everything was really damaged (whatever that means) but they didn’t want to remove my whole the whole thing cuz it would be really bad for my body to get premature menopause. Plus I am anemic and couldn’t eat at all from all the pain and throwing up everything I ate. I actually want to go to a specialist because I think I developed an eating disorder. I am so scared to eat because of 4 months of constantly throwing up, it was unbearable. 😢

[@wanderlust_101]

Gosh! this is where I am at the moment! Doctor said everything is fine but I felt weak, gut upset, legs shooting pain, back pain and pelvics in pain even without my period..

[@Kayla.MASS22]

Thank you for sharing your story with us

[@franceslouise758]

I can’t believe i found this video I feel so blessed. I have been in pain for almost 3 years , many untrasounds, CT and trips to A&E. ending up on morphine for this invisible pain. I have been diagnosed with pelvic inflamitary disease, UTIs , colistis. Still nothing shows up on any tests, waiting for an MRI now as I have a mass in the ‘pouch of Douglass’ bad backaches constantly. Feeling very lost and just want a diagnosis as my mental health is fried ! Thank you so much for sharing your story x

[@Furqan1837]

Hey your mri has done?

[@PebbleBeachLife]

Goodness Jess, you have gone through everything! I was also diagnosed with the most severe form of it, went for the laproscopy now to get everything oblated.

[@RethabileTsiame]

Thank you for sharing

[@skysummer6429]

Thank you, i needed this ❤❤

[@allisonb3162]

It’s crazy how I immediately related to you story same thing happened to me. Luckily I got a diagnosis early. And about to get surgery.

[@lalngaihtluangi1222]

Hi Jessica, could you pls share about your diet, i am going through endometriosis really painful, pls share your diet 🙏

[@zhuldyztursynbek1891]

I want to be a mom so much, but now it’s not the right time for me to have kids. I’m single, I’m 35, I have PTSD & clinical depression. My periods are heavy first 2 days. Besides that I have no symptoms of it. It’s in testicle 5cm large. Doctors say the same that I might not have kids. But I don’t wanna admit it. In post soviet country that live in doctors recommend to get pregnant to stop it grow. So I’m trapped. It’s affecting my mental health very badly. I’m currently getting all the tests, decided to freeze my eggs that left & getting ready for it. Thank you for sharing your story, now I know that I’m not alone.

[@tabsonthecomputer8480]

Your experience is so similar to whats happening to me, im going to take your advice to heart. Im trying to remain positive and thankful, my laparoscopy is soon but im trying to be brave 🤟

[@angelagrassadonia1585]

Thank you for sharing something that ruined my life luckily the only positive thing that happened was I managed to have a child. But my life has been ruined

[@Jessicasvalant]

Best wishes to you ❤️

[@angelagrassadonia1585]

Thank you!

[@NanditaVaidyanathan]

U are so brave n strong ! So inspiring

[@justablackgirll]

This video is amazing. I also hope to make a video soon as I know just how helpful and encouraging they are but wow. Everything so well said and inspiring. God Bless.

[@xxpositivexxful]

Thank you so much for sharing this ❤ does anyone have bloating & constipation?

[@Jessicasvalant]

Bloating and constipation and other digestive issues are very common with endometriosis!

[@Dreamcatcher108]

The stools start thinning as I approach the period. Thin pencil like, flattish. Eventually feeling constipated. During period I feel lot of pressure on the rectum and and urge to use the restroom but don't pass stool.

[@lucyscott2154]

@@Dreamcatcher108I have the same

[@makeupbylaurievlogs]

​@@Dreamcatcher108sameeee

[@artisthusnatalal3099]

Do you guys experience heart palpitations from anxiety? 😫

[@badwitch5]

Thank you so much, this was so helpful!

[@monicatorres4965]

thanks for sharing this!

[@ReganO.]

I cut gluten and nightshades (tomatoes, peppers, eggplant and potatoes) out of my diet a few years ago for an autoimmune condition. I have had horrible menstrual cramps but even though it was a possibility, i didn't believe i had endo because the pain didn't occur outside my period. Well, a few months ago, I incorporated those foods back into my diet and, oh. My. Word. The Bloating and back pain and belly pain was crippling. I couldn't sleep or move normally. So...I will be bringing endometriosis up at my next physical. I am thinking that the low-inflammation diet I kept too for unrelated health reasons was also keeping possible endometriosis manageable. 😐

[@momzkyperez2834]

Thank you for sharing this

[@SarahNelsonMakeup]

you're an inspiration! thank you!

[@Virgo_blue]

Wow I can relate to your story so much. 7 dpo radical hysterectomy and I’m really pleased to have found you 😇

[@kaitlanneburke3001]

Wow! My story is just like this!

[@rachelfrght3841]

Listening to you story is like reliving mine. I spent 4 years in pain before I was diagnosed and two more years after that until I had a hysterectomy which didn’t do anything. A year after the hysterectomy I was about to give up. I was depressed, couldn’t see the point to continue living in pain but I picked myself up and decided to find a way to manage my symptoms without pain killers. That’s when I started to watch my diet what made it better and what made it worse. Also started walking, a few steps a day and slowly increasing to 4 miles today. I tries different supplements, infusions, teas you name it I tried it. Now I’ve been pain free for 5 years and haven’t been back to the doctor since I got discharged from the hospital with my hysterectomy. That one I regret immensely. I should have done the research I did before having the surgery and not after.

[@pattie254]

me here with hysterectomy 1 year after and pain all over again

[@kritikaaggarwal6112]

Hi, curious how you’ve been pain free and what steps i could do too? Is there a way i can connect with you virtually n hear out from you directly?

[@karenbrooks8840]

I went through the same. Full Hysterectomy at 35 after 6 surgeries before then and I’m now 4 surgeries on and it’s still not gone away. Now trying a change in diet and walking more when the flare up allows. Found Jessica’s Pilates designed to help flare ups as in a fair amount of pain I’m back in for surgery early next year this time to clear away adhesions all over the band from rectum to vagina. In so much pain and discomfort and utterly exhausted. Absolutely fed up now. Any recommendations would be highly recommended. Got diagnosed at 21 just before I got married and now I’m 20+ years later and still struggling.

[@stephyscolaro]

Thanks so much for sharing ❤

[@choguadon5323]

Thank you for sharing . Now , i feel im not alone.

[@sahananayaka5279]

I am 27 years old, last year I got diagnosed with endo.. and undergone laproscopy they said my left tube is also blocked. Dr told me to get conceive in next 3months asap. But it didn't happen soon after the tube which was blocked turned into hydrosalpinx with cyst come back again. Doctor has told me to go for IVF - firstly they retrieved my egg then had laproscopy again with left tube removal. Then transfer me the 2 embryo out of 8 unfortunately the implantation failed. Now am fed up with all the medicines just stopped visiting hosp and practicing yoga and healthy diet and hopping to conceive naturally 🙁 Right now I had one 4-5cm cyst again

[@Hertz2laugh]

Ketogenic diet - less than 20 grams of carbs per day. Six to nine months and endo will be gone.

[@sahananayaka5279]

@@Hertz2laugh really?

[@Vicks234]

@@Hertz2laughdoes this help and especially with pain?

[@Hertz2laugh]

@@Vicks234 Yes, this will eliminate the pain over time. Be aware that the first two weeks can be uncomfortable - you might experience headache, low energy, intense cravings, diarrhea, etc. This is common when you make a big change to your diet. It is only temporary. ✅ *Eat these foods - no limit* ✅ • Meat (unprocessed) 🍖🍗🥩🥓 • Sea food (unprocessed) 🐟🦀🦞🦐 • Eggs 🥚🍳 • Butter/Ghee 🧈 • Salt 🧂 • Water 💧 ⚠️ *Eat only very, very small portions of these foods:* ⚠️ • Dark green vegetables 🥦🥬🥒🧄 • Milk, cream, yogurt 🥛 ❌ *Do not eat these foods:* ❌ • Bread, rice, grains, noodles 🍞🥖🍚🍜 • Candies, sweets, sugary drinks, alcohol 🍭🧃🍺 • Sweet vegetables 🥕🥔🌽🫑 • Fruits, fruit juice, honey 🍇🍌🍓🍯 • Seeds, nuts, beans 🫒🥜 ⭐ Be sure to add salt to every meal to prevent muscle cramps and low energy ⭐ Be sure to eat animal fat to maintain your energy ⭐ Remember, keeping your total carbohydrates below 20g/day is critical.

[@Vicks234]

@@Hertz2laugh what do you do if you don’t eat fish and meat a vegetarian but can eat eggs

[@ladydesigns]

Thankyou jessica.

[@michaelenemirandagonzaga1771]

Thank you so much for making this video. I may have missed it, but I am curious why you haven’t sought out an expert endometriosis excision surgeon to have the disease removed at the root . I know you said you had two abdominal surgeries one was a hysterectomy but i’m not sure if that was recommended for the endometriosis or if you also have adenomyosis. I really appreciate you sharing your story .

[@makeupbylaurievlogs]

This is also what is happening to me right now, everything is pain😢😢😢 my back, pelvic, stomack, whole body 😢

[@Kayla.MASS22]

honey use a heating pad. if you don’t have one an at home diy rice sock will do the trick. I also suggest icy hot or tiger balm for back pain. Or even use TWO heating pads. trust me… game changer! I hope you feel better soon I’ve been dealing with endo since age 13 and I’m 21 now. also check your vitamin d. having a low vitamin d will make your endo feel even worse.

[@Kayla.MASS22]

oh and fiber! that’s important too it helps with constipation which happens a lot with endo :/ . I hope any of these help

[@makeupbylaurievlogs]

@@Kayla.MASS22 vitamin d? Thanksss so much

[@Kayla.MASS22]

@@makeupbylaurievlogs yes vitamin d. when your vitamin d is low your muscles feel weak and sore. also prone to muscle cramps… which when dealing with endo on top of all that will feel like pure hell. and ur welcome 😉

[@makeupbylaurievlogs]

@@Kayla.MASS22 sometimes i got thin stools now 😭 im so stress!

[@showstopperdesigns9190]

What doctor did you go to for your abdominal surgeries?

[@JGarriso]

I had the same thing happens but I was told a cyst rupture can cause endo and adhesions I was diagnosed with endo had a hysterectomy and still having back leg pain and painful sex and now bowel issues going to Mayo Clinic to see endo specialist soon as they can’t find where the endo is at none of my scans show anything and lap surgery had adhesions on my bowel in October this year and doctor who did lap said that bowel adhesions wouldn’t cause my pain!!! I was so mad!

[@letsgobuddies]

I was diagnosed theyve seen it in my mri

[@PriyaVas123]

Such an encoraging video.. i am not alone. My doubt is how come you get your cylce after hystectomy? Pls explain. I am having severe endo issue wihiut kids. My docs always ask me to do hystectomy which i am not willing to. Praying and having faith in Christ to give me atleast one kid. We r in our 40s.

[@lifewithlexy7081]

I have BAD pain dor 2 days of my period. Leaves me needing to be in bed. But have constant bloating and constipation for the rest of the month. Constipation becomes worse leading up to and during period. Then gets better but is always there and im always bloated. Could this be endo ?

[@lovesaffron]

Me i have Ovarian Cyst at the right. Some of my support group says that PILATES can help our Ovarian cyst. I hope so.

[@StarryBlessings]

Yes I hear you sounds like me too.

[@EnochnKale]

Wait-what!?!? I just had a hysterectomy 2 days ago for my heavy painful periods and fibroids. And surprise! Dr found endometriosis on my uterus. She says I no longer have it. But you’re saying I still may get it elsewhere in my body???😢 ugh. Women suffer a lot :-/

[@Jessicasvalant]

There is a lot you can do to help! I have more info on my podcast. But you are right - it's not "curable" from a hysterectomy.

[@EnochnKale]

@@Jessicasvalant I will definitely be listening to your podcast while I’m in the healing process in bed these days. I don’t see a link to the podcast?

[@hanepato5954]

Wow! powerful experience. Mine is 10yrs, The doctor advised me to go for an operation but I prayed to God in that moment and I said I will not go for an operation. A disease that does not has cure belongs to God, take a tablet of faith everyday. I burned all my painkillers, change my diet and has even bought baby clothes knowing that God at his timing will reward me. Never lose hope.

[@the.sapling]

I disagree with your methods but I wish you good luck.

[@chrisc2238]

Hi Jessica, I was wondering if you had your hysterectomy with an excision specialist? If it’s not removed properly and on all the organs endometriosis has infiltrated you will still have pain.

[@Basicallyprimrose]

❤ Ty for this

[@zainabb2880]

hi Thank You so much for this video, I have a lot of symptoms of endometriosis too and I have told a few doctors that I have gone to and they told me that's normal, and i am also 20 right now, but I believe I have endometriosis my gut feeling says it. I have had digestion issues and have chronic constipation since I was young, could this be I have endometriois?

[@smitashinde8116]

Hey. I'm 25 and have been diagnosed with endo 1 yr ago and my cyst have grown from 3 to 7cm now although with medicine my pain has reduced and i have gained weight which I'm trying to lose. Can you tell me if i can do abs workout and HIIT with these 6-7 cm cyst on both my ovaries?

[@showstopperdesigns9190]

Omg! This is what I have! Why didn’t my obgyn say anything!

[@artisthusnatalal3099]

They don't talk so that our conditions get worse🤨 and we keep going to them

[@oluwabusolamielizabethakin8399]

Removing the womb after giving birth, does it solve it? Cos I can't deal with the trauma I'm presently experiencing through

[@kristymeyers8415]

No

[@JGarriso]

Oh and my name is also Jessica ❤

[@rekhamammotivation]

Mam I am from India . Make video on Diet plan , sitting and sleeping position for scoliosis pecients

[@stephyscolaro]

Did your endometriosis symptoms get better after having kids? Xx

[@ja71989]

Guys, does your endo back pain hurts more when ur laying in bed? Cos i do..its even difficult to move in bed cos it's painful 😢

[@Jennifer-adkins84]

I am 40 n havinf my first surgery n so scared cause most women are in their 20s having it

[@jombob27]

you're amazing

[@solangelalebron1348]

Exercising is making cancer patients WORSE. Trust me. Because the body can't focus on healing, now it has to focus about repairing damage muscles that Exercising causes. Smh.

[@margaritagorelaya8285]

❤

[@Dr.Jas-AyurvedaExpert-se9mi]

Such journeys are both very inspiring. Planet Ayurveda's formulation of Female Health Support, Pradarantak Choorna, Boswellia Curcumin help in reducing pain and other symptoms.

[@justablackgirll]

Did you have any experience with birth control?

[@zhuldyztursynbek1891]

I want to be a mom so much, but now it’s not the right time for me to have kids. I’m single, I’m 35, I have PTSD & clinical depression. My periods are heavy first 2 days. Besides that I have no symptoms of it. It’s in testicle 5cm large. Doctors say the same that I might not have kids. But I don’t wanna admit it. In post soviet country that live in doctors recommend to get pregnant to stop it grow. So I’m trapped. It’s affecting my mental health very badly. I’m currently getting all the tests, decided to freeze my eggs that left & getting ready for it. Thank you for sharing your story, now I know that I’m not alone.