Born With Klinefelter Syndrome

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Living with XXY

Living with XXY

Күн бұрын

Пікірлер: 3 200
@botero29love
@botero29love Жыл бұрын
You look normal.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
I am normal. What does normal even mean? Are you thinking that because I have a genetic condition ill look like some kind of freak? Just curious.
@AlvyK01
@AlvyK01 Жыл бұрын
@@LivingwithXXY generally person with klinefelter syndrome have boobs like structure on chest
@infoatniro9055
@infoatniro9055 Жыл бұрын
@@LivingwithXXY normal means, most of the people. the stock very much natural way.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
@@AlvyK01 This is not true, this is only what the internet tells you to see.
@rockletast
@rockletast Жыл бұрын
​​​​@@LivingwithXXY I think what he meant is that You look as a regular male, not like a intersexual male, cause syndromes related to sexual chromosomes are a kind of intersexuality condition. You don't look with female features or characteristics that would make think to someone that watch you that You are intersexual (part male and part female). You look like an authentic male.
@debradollisson9551
@debradollisson9551 28 күн бұрын
Hi Ryan, I live in Australia and have a hubby who has Klinefelter's.He is probably on the higher end of the spectrum with more obvious physical symptoms also he wasn't diagnosed till in his late twenties. After one missed diagnosis he was eventually diagnosed in his early thirties. We have been happily married for 50 years and have 2 sons( with a little medical assistance) and now 3 grand babies. My husband has had some hard times in life, mainly because he wasn't diagnosed young enough. But when you love someone you learn to roll with the punches. So glad there is someone talking about this.❤
@Siriuslyyy
@Siriuslyyy 22 күн бұрын
This is very kind of you to share ❤
@awfulvoice8533
@awfulvoice8533 6 жыл бұрын
I’m 38 from Michigan, I found out I had klinefelters at 8yrs old they told me back then you probably won’t ever accomplish anything. Crazy! I use androgel it’s expensive for sure. I’ve taken testosterone my whole life. They (drs) told me I’d probably not even pass high school back then (80’s). I graduated from a college prep school and now I do laser surgeries across the USA. Never let anyone tell you you can’t do something because of any conditions you may have. Fight to get what you want in life..
@UkallDay90
@UkallDay90 5 жыл бұрын
I couldnt keep up with the gel I use nebido injections mad respect for keeping up with that
@thomasnguyen6144
@thomasnguyen6144 3 жыл бұрын
The able bodied frequently underestimate us. People with XXY or Kleinfelter’s Syndrome can do normal things.
@jclaudio806
@jclaudio806 2 жыл бұрын
I found this desgrace whit 32 22 years after puberty
@jclaudio806
@jclaudio806 2 жыл бұрын
@DlRlS você tem muita sorte de ter essa doença e ser bonito a maioria é feio desformico com ancas enormes
@silva7493
@silva7493 2 жыл бұрын
Good for you!!! Success is a helluva revenge.
@jacccaro
@jacccaro Жыл бұрын
Late last year, I lost a grandson at 20 weeks gestation because of the genetic testing results my son and his wife received. Their son was going to have Kleinfelter’s Syndrome. The mother opted for a midterm abortion. And I am still grieving the loss of this precious life that I couldn’t save. Thank you for validating my beliefs, that this child should have had the chance to have a life. That he wouldn’t have been be a lifelong “burden” to his older brother. You’re to be commended for sharing your life story with others, and I thank you.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
This is exactly what I’m working on to try to change. Termination for XXY shouldn’t even be recommended. We live happy and healthy lives. Breaks my heart to hear this, thank you for sharing.
@ro1649
@ro1649 Жыл бұрын
jesus. that's awful. usually i'm in favor of terminating pregnancies for health reasons, but that's completely tragic. he could have lived normally. i'm sorry for your loss.
@2023Naturegirl
@2023Naturegirl Жыл бұрын
I am sad to hear of your loss.. it is wonderful that this man was willing to open up and attempt to educate people. So sad that the Doctors did not more fully educate your son and his wife in regards to this genetic issue. Blessings
@ro1649
@ro1649 Жыл бұрын
@@leo1933 i'm sorry. you deserved better than that. i'm glad you're here today, though-- even if we're small parts of the world around us, it wouldn't be the same without common folk like you and i around
@vickigourley412
@vickigourley412 19 күн бұрын
You are doing a great service in educating people! Keep going forward...
@soilmanted
@soilmanted 16 күн бұрын
Nice work Ryan. Educating us, the public, including me.. I like learning. Getting the facts. I appreciate your efforts to get the facts to us.
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
I appreciate that!
@gailvictor-gordon1257
@gailvictor-gordon1257 19 күн бұрын
Thanks Ryan, I have a daughter with Down's syndrome, Chromosome 21. She wasn't supposed to live BUT did and has an amazing personality, loved by her 3 brothers especially, even today (at 42 years old). You are so brave and gorgeous, I hope many learn that our chromosomes don't defne us, but our personality and spirit does. May God bless you.
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
Thanks for sharing!
@tayevanmerlin5881
@tayevanmerlin5881 20 күн бұрын
I hate ignorance as it blinds so many to the truth. Thank you for sharing your story.
@tay7366
@tay7366 20 күн бұрын
You look great very healthy . I never heard of this thank you for posting. ❤
@MarieC-q6e
@MarieC-q6e 17 күн бұрын
My husband has it. He was diagnosed when he was about 60 years old. He was a school teacher all his life. He never had children, but he happily became a "dad" when we got married. I have 2 grown children from a previous marriage.
@shirleyscott8879
@shirleyscott8879 20 күн бұрын
My daughter has XXX. I was offered a termination. She is now a beautiful, married 27 year old. The only real problems she had were muscular skeletal. She was born with bilateral club foot and had low muscle tone. She has had some anxiety but so do most young people these days.
@susanhenry4073
@susanhenry4073 19 күн бұрын
Thanks for that info. I've never heard of XXX, although I am aware of Turner's syndrome ( just one X). Glad to know everything worked out well 🙂
@ElLuis1122
@ElLuis1122 29 күн бұрын
You look ok man. Thank you for taking the time to educate us, we appreciate it!
@paulaworkman302
@paulaworkman302 19 күн бұрын
People seem to always fear what they don't know rather than embrace differences as normal and fascinating. Nature is a marvel and so are you❣
@donnarie101291
@donnarie101291 22 күн бұрын
I was diagnosed with Turner Syndrome Mosaic which is the female version of XXY. I found out when i went thru primary ovarian failure at 35. Other than shorter than average height (5') and the POF at 35 you may not know anything is different with me. I was pregnant once and miscarried. There is a lot of misunderstanding out there when it comes to these conditions.....
@dawnharrington8721
@dawnharrington8721 14 күн бұрын
You are so brave to share your information. Thank you for the education and I wish you success.
@LivingwithXXY
@LivingwithXXY 12 күн бұрын
Thank you so much!
@donzucca264
@donzucca264 Ай бұрын
You are a brave, considerate, and handsome man
@kimberlykrupke5715
@kimberlykrupke5715 18 күн бұрын
My husband is 62 and has klienfelters. He has lived a normal life. For the better part of his life, he had testosterone injections. Now he uses a rub on gel.
@anneangel3297
@anneangel3297 21 күн бұрын
You are just fine ~ Blessings to you!
@bitemyram2729
@bitemyram2729 26 күн бұрын
Wow, I just read up on this and it describes me almost perfectly. 😱 I had no idea but always knew I was different. I’m very proud of you coming forward to educate as many people as possible. I will do further research and follow you. Kudos to you for your bravery and fortitude coming forward to help others. ⭐️⭐️🏆⭐️⭐️
@Siriuslyyy
@Siriuslyyy 22 күн бұрын
I hope you find a medical team that better informes you and helps you through it
@jennifergaston
@jennifergaston 20 күн бұрын
Hi Ryan, your video just popped up on my feed. I used to work in medicine but had to retire due to a physical disability. I watch a lot of videos about all things medical. You are very brave to post videos about your XXY diagnosis and I’m really proud of you. It’s very important to get correct information out to the public. Like your diagnosis, many disorders are on a spectrum and most people don’t understand that. Sometimes google is awesome and sometimes it’s got a lot of information that is not updated. Sites like the Mayo Clinic should be more diligent about the information they publish. I look forward to watching your other videos and future posts. Keep up the good work. 😊
@charlesebyjr2925
@charlesebyjr2925 13 күн бұрын
Never heard of it, thanks for the info appreciate the education 😊
@LivingwithXXY
@LivingwithXXY 12 күн бұрын
Our pleasure!
@pfedericaduncanguity1120
@pfedericaduncanguity1120 15 күн бұрын
You look perfectly fine. You are handsome Everybody doesn’t look the same. I’ve seen guys with bellies and bald. They are handsome too. Love yourself. Nobody is perfect.
@jennarubis
@jennarubis 9 ай бұрын
Great video, Ryan! My brother has Klinefelter syndrome and I just love your positivity in this video and being comfortable in your skin. You are awesome! Thank you.
@LivingwithXXY
@LivingwithXXY 9 ай бұрын
Awesome! Thank you!
@stevehogan8829
@stevehogan8829 14 күн бұрын
You look normal to me. Good work you aredoing. Thank ypu and bless you
@LivingwithXXY
@LivingwithXXY 14 күн бұрын
Thanks, you too!
@hwhytee1
@hwhytee1 21 күн бұрын
Even after you point out your differences, I don’t see it and I think you look good.
@bixbycanyonbridge
@bixbycanyonbridge 3 жыл бұрын
I am a mother of 3 and I've commented a couple times before. My third child was my first son. The son I always wanted, who is xxy. He has just turned one, and dare I say just as handsome as you. Healthy as can be at this age as well. We are so proud to have a son so special and so healthy. God bless this channel, because most information online outside of it, is generalized, vague, and honestly not very informative. Thank you again, from a young mother, and God bless.
@LivingwithXXY
@LivingwithXXY 3 жыл бұрын
Thank you. Make sure you check out our website and podcast series.
@ivorycopenhaver5877
@ivorycopenhaver5877 4 жыл бұрын
My son who's still in utero was just diagnosed with XXY and I'm so glad I found this video, it made me feel so much better. Thank you for talking about this.
@LivingwithXXY
@LivingwithXXY 4 жыл бұрын
www.livingwithxxy.org Thank you for sharing.
@SCJS84
@SCJS84 4 жыл бұрын
We just got the same call from our doctor. We are 14 weeks pregnant with our son.
@ioaniceioana3738
@ioaniceioana3738 4 жыл бұрын
My son has this syndrome , hé is 10 months ! He is just perfect normal !
@darlenecastro4593
@darlenecastro4593 4 жыл бұрын
Thank you Ryan for your AWESOME video and for educating the public about Klinefelters Syndrome! I am so proud of you! ⭐️ My amazing XXY son just turned 18 years old and I can't wait to share this video with him along with the 2 resources you mentioned in your comments above of www.livingwithxxy.org and discord.com/channels/597210138813661197/598992851040206869 For Ivory and Siobhan, the Moms- to- be, congratulations. I just want to share that my son was diagnosed prenatally via amnio testing. Sadly, the ignorant geneticist during the beginning of our pregnancy recommended termination. Luckily we went for a 2nd opinion and realized that Klinefelters Syndrome is manageable and it is not the gloom and doom outlined by the 1st terrible geneticist. With the prenatal diagnosis we were able to get Early Intervention at 10 months of age to help with the low muscle tone. He started school with an IEP and then changed to a 504 Plan. Knowledge is power and knowing the KS diagnosis ahead of time is a blessing since you can read up on KS and be the best advocate for your child. We are blessed to have our wonderful son! KS is the most common chromosome disorder in males and occurs in 1 in 500 males but only 10% of cases are indentified in childhood. Best of luck and congratulations with your Xtra special baby!💖
@chrissysux08
@chrissysux08 3 жыл бұрын
I just got the call today. I am 11 weeks pregnant, and my doctor told me that we will talk about termination at my appointment with the geneticist. Holy crap that was hard to hear. I am incredibly grateful to have found this video, because Google is a nightmare.
@suzannedivett3398
@suzannedivett3398 19 күн бұрын
I have worked and befriended a woman with Klinefelters and she was born a male but chose to transition. Not many people we worked with could understand , but at lease l tried to. She educated me on the condition and I cared for an elderly couple who's son had it too. They were happy l was understanding to their son's condition. 😊 . Not everyone has the same outcome as you but I truly respect you for informing people through your channel . Keep up the good work you are doing . God bless your cotton socks.
@neil-er6tw
@neil-er6tw 27 күн бұрын
Cute guy with a bit of what is called a “dad” bod. You definitely don’t have any obvious gynecomastia. Go to the beach and look at all the overweight guys. You’re in better shape than most. Good luck to you! You deserve love and acceptance.
@moniquelemaire5333
@moniquelemaire5333 12 күн бұрын
As far as I am concerned, you are a handsome young man!!! (,if I were younger....i wouldn't mind a date!!!) God has made you exactly the way you are....despite the syndrome that you have...you seem very healthy, well spoken, and are doing a great job advocating for you and others with Klinefelter's. May God bless you and your family....and the doggie, too!! Miss Monique 🙂🙏🌷💗
@jpmartinez7
@jpmartinez7 Жыл бұрын
You are super handsome, don’t let uneducated people put you down, I would have never guessed you are XXY you look more masculine that a lot of folks I know
@shannonhudson3363
@shannonhudson3363 21 күн бұрын
You look and sound better than 99% of the population. Thanks for the information. I don’t even see the gynecomastia at all. You look healthy, in fact this is a thirst trap, lol!💗
@marianafernandez1789
@marianafernandez1789 4 жыл бұрын
I’m a medical student just learning about syndromes and treatments and genetics in general and I think is pretty great to see this type of videos to really learn more about the people going through them. I believe there is so much information out there, but people focus less in actually seeing patients with syndromes and realizing that people can have normal lives. Anyways, I wanted to thank you for sharing your experience and help decreasing the misconceptions about KS out there. My best regards from Mexico :))
@LivingwithXXY
@LivingwithXXY 4 жыл бұрын
Thank you for taking the time to do some research outside of the textbooks and classrooms! We love the support we get from all over the world!
@sameeraaththanayake1998
@sameeraaththanayake1998 4 жыл бұрын
So u may help these people with experiments ur help is appreciated
@galileanigenda6391
@galileanigenda6391 3 жыл бұрын
X2 I’m from México, and i’m a medical student too, in spanish, there's even less information, and that's ‘cause your video is so important for my presentation at the U
@Indialover120
@Indialover120 3 жыл бұрын
@@galileanigenda6391 true
@bethelhemsolomon4230
@bethelhemsolomon4230 2 жыл бұрын
I'm a highschool student. Came here for the same reason you did.
@MichelLarabie-v2m
@MichelLarabie-v2m Ай бұрын
you look perfectly normal to me - congrats on your honesty with this information that you share for others to better understand the syndrome.
@LivingwithXXY
@LivingwithXXY 26 күн бұрын
Thank you so much!
@edwardsparanormal
@edwardsparanormal 10 ай бұрын
I am now 67. My mom was a school teacher also a registered nurse. She stopped nursing when I and my sisters started elementary school, and became a teacher. She tried everything she could to help me not knowing I was XXY. All through elementary, middle and high school I struggled. On my high school graduation document was written "Not recommended for college". I was diagnosed at the Mayo Clinic in Rochester, MN in 1987 during a physical prior to hip surgery. When I hit 30 I was laid off. My company provided education funds. I used it to go to college. From the junior college entrance exam, they required remedial courses of math and English - along with a "How to Study" course. The How To Study course was freaking amazing! Had I this course in high school, I would have shined. Knowing I had great difficulty with Math, I saved those classes form last. When I started my first math class I was at a 4.0 GPA. While in college during a biology course, I was the only male in this class. The rest were female nursing students. I sat in the front row. In one class my teacher described what an XXY male was like. "They have pear shaped bodies, have female breasts and are mentally retarded". Wow! On the day of my final exam, I waited until all students walked out, and when I handed my test to the teacher, I said "do you remember when you described XXY males to our class? I want you to know not all XXY males have pear shaped bodies with female breasts and are mentally retarded". I told her that I am XXY!" She was shocked! I graduated with a 3.5 GPA with honors. I retired from IBM in 2016.
@flewawayandaway4763
@flewawayandaway4763 9 ай бұрын
Very sweet story . You had a wonderful mother
@upendomamuya7238
@upendomamuya7238 3 ай бұрын
You made it through, you are unstoppable
@c.t.murray3632
@c.t.murray3632 19 күн бұрын
Very interesting. you look fine and I love your positive attitude.😊
@quintonmoore4769
@quintonmoore4769 2 жыл бұрын
I was just diagnosed 40 mins ago I’m 36 years old and it’s so nice to be able to finally understand all the difficulties I had as a child and things I still struggle with as an adult. It’s awesome that are creating content like this , I myself wouldn’t have the confidence to do it . So kudos to you brother. I’m looking forward to more content. Keep up the good work.
@JR2012now
@JR2012now 2 жыл бұрын
Im glad that you found out and are processing it. I found out at the worst time or I think it was the worst time at 17 it wrecked me for years and instead of me conquering it. It or my mentality beat me down for years. This is not a end all its just a condition. An tomorrow is another day
@maadp81
@maadp81 17 күн бұрын
You are a human being. The importan thing is that you are a kind person.❤
@stefanlazarevic8737
@stefanlazarevic8737 Жыл бұрын
I have it. I had a hard time to accept myself when I was a teenager. I was different. But then I decided to overcome how I look naked and accepted myself. After that, since I was 17 y o., I had a lot of girlfriends, all were ok with my gynecomastia. I am in my second marriage now. It's all with your attitude toward our syndrome. Just be sure in yourself, have self esteem, be curageous, embrace your life with postive thoughts, be happy.
@markray5604
@markray5604 28 күн бұрын
Thank you very much for explaining your situation. I very much appreciated your honesty and sharing your experience. RESPECT to you.
@cheryleaston6820
@cheryleaston6820 17 күн бұрын
You look normal to me. Never heard of this syndrome before. TFS
@torabloom116
@torabloom116 5 жыл бұрын
I have XXY chromosomes as well. I'm 24, and I look and sound extremely feminine. My parents were going to put me on testosterone when I was a teenager, but I didn't feel comfortable going on it and luckily I prefer looking feminine. I don't consider myself transgender though, I'm just a male who looks and sounds completely female. Most people call me she though, lol, which is fine. I don't care if someone calls me he or she
@crystalv.6604
@crystalv.6604 5 жыл бұрын
If you dont mind me asking...what's is your sexual preference ?
@checkcheck2125
@checkcheck2125 5 жыл бұрын
What is your sexuality
@risktaker7996
@risktaker7996 5 жыл бұрын
Is this you who in that photo?
@dasist3321
@dasist3321 3 жыл бұрын
Used to get that as a boy and it really bothered me when with my father as he was a male chauvanist. By my teens I embraced anarchy, proto goth culture, the arts and paganism and have never been happier. I have had kids, so I guess the KS is mild. Im a pacifist, learning when I was young was a problem due to hearing a deficiency that was never catered for in school, it was eighties London after all. I have never been very muscular, hairy or matho thank fk. At the age of 54, weight around the midriff is a slight problem of sorts possibly because I can't exercise due to liver related problems and a lack of enthusiasm. So I have reawakened the goth as my kids are now adults and have a long black mohican. I sometimes wear big fk off army boots with a long pencil skirt, or biker leathers and mohsir jumpers, it all depends on how I feel. I guess I am trying to say that I have learned to embrace the burning inside and am relatively at peace with myself. Once the chronic depression, weight and liver problem has totally improved, I will be fine. Be yourselves and ignore the criticisms of others who are usually insecure themselves. Dark light love to all.
@christiancellamare9441
@christiancellamare9441 3 жыл бұрын
You are gender apatethic
@mikeifyouplease
@mikeifyouplease 9 ай бұрын
I know NOTHING about this medical condition, at all. But what I DO know is that it is wonderful that there are videos and sites like this that are available today, to help people understand and deal with Klinefelter Syndrome. I can't help but also believe that you are improving people's lives, and are increasing the medical profession's knowledge to help people today and for generations yet to come. Carry on! You're a beacon of love, care, and encouragement!
@fionapaterson-wiebe3108
@fionapaterson-wiebe3108 17 күн бұрын
Going on those Dr’s reasons for un-aliving an unborn person, I should have been a candidate. I’m neurodivergent, and haven’t really thrived according to society’s expectations. I’m here, I’m loved, and I contribute and find ways to contribute in my own way. Clearly, you do too. Bless you and your mission to spread awareness and understanding.
@ashleyadams6803
@ashleyadams6803 16 күн бұрын
Ryan you look very normal to me and sound normally intelligent! Enjoy your life don’t let this define you!
@UncleDavesKitchen
@UncleDavesKitchen Ай бұрын
I've been an RN for 44 years, not once in my career has anyone said anything derogatory of Klienfelter's. I've never heard a physician ever say one negative thing to any patient that has the extra chromosome. I worked Labor and Delivery, high Risk OB and newborn nursery, NICU. Never has anything derogatory ever been said nor any pregnancy been considered for termination due to this.
@carollynt
@carollynt 20 күн бұрын
Because your experience means everyone will be treated the same. The sheer arrogance.
@UncleDavesKitchen
@UncleDavesKitchen 20 күн бұрын
@@carollynt delusional.
@bboots9826
@bboots9826 6 жыл бұрын
My husband has the same as you! It’s so beautiful to see this together! Keep going!! Greets from the netherlands
@LivingwithXXY
@LivingwithXXY 6 жыл бұрын
Thank you! I’ll be in Europe in September hopefully
@vinithvinuh7877
@vinithvinuh7877 6 жыл бұрын
B Bonza sry for asking tis ,whether u have child??
@hakatapawa7115
@hakatapawa7115 6 жыл бұрын
@@vinithvinuh7877 it's impossible for them to have children
@ibrahimdms5718
@ibrahimdms5718 4 жыл бұрын
Do you have kids ?
@rakshitsinha8218
@rakshitsinha8218 4 жыл бұрын
Can klinfilter men get married
@ManHeIsAwesome
@ManHeIsAwesome 5 жыл бұрын
Yes. Im a medical student and my books tell me differently about people with klinefelter. I really had imagined a different image. Imagine what older generation doctors without internet had to work with. Thank you for doing this and hope the medicos would gey updated too.
@BeckBrittany
@BeckBrittany 5 жыл бұрын
Same, I'm a medical student studying this for an exam next week. Its always helpful to find real people with the syndrome or diagnosis online and what they have to say about it.
@sarahep5702
@sarahep5702 4 жыл бұрын
Same! Med school too! Very interesting video thank you ❤️
@KoalaBeer.
@KoalaBeer. 2 ай бұрын
How do you know genetic test ? Or evident at birth .
@peterrodby2786
@peterrodby2786 3 жыл бұрын
I was diagnosed with KS in 1995 at the age of 30. I knew I was different yet I couldn't put s finger on it until I met with an endocrinologist interviewed me at great length. Fortunately I was four years sober and clean at time and escaping through chemicals was no longer an option. Twenty six years later I'm still here embarking on a fitness journey that is opening doors for me. I believe in FEAR. Face Everything And Recover. Happily married to a wife who loves me unconditionally keeps my determination strong. 3 years a pescatarian and I'm feeling amazing.
@LivingwithXXY
@LivingwithXXY 3 жыл бұрын
Thank you for sharing. Shoot me an email. Livingwithxxy@livingwithxxy.org
@joemarlett8590
@joemarlett8590 14 күн бұрын
Keep living your life and use all available help you can. Remember You are Loved ❤
@LivingwithXXY
@LivingwithXXY 12 күн бұрын
Love that!
@lauracurran6192
@lauracurran6192 14 күн бұрын
You look and sound completely normal to me!
@KindCountsDeb3773
@KindCountsDeb3773 22 күн бұрын
You are educating us ALL and it helps. Good for you my friend ! Be well and keep yourself strong and healthier. Well done !!✌✌💓💓⭐⭐😊😊😊😊
@jsschnc
@jsschnc Ай бұрын
There is not a thing wrong with you. You're a handsome dude, masculine looking and acting. No one needs to know about your genome. No one's business but your own. I think you're great just as you are.
@rajatsharma1418
@rajatsharma1418 4 жыл бұрын
I am a medical student and I assure you I will never have a negative perception about klinefelter in the future after watching the video.The point i like the most is 'its on a spectrum'. Great. Kudos for a cheerful life dear.
@wheatstonebridge
@wheatstonebridge 3 жыл бұрын
Nice comment, Rajat
@manicmandownup
@manicmandownup 3 жыл бұрын
You needed this video to not have a negative view on people? Pretty lame
@DaveTexas
@DaveTexas Жыл бұрын
Man, you’re beautiful. So incredibly handsome! Spreading your message is so important, and you’re doing a fantastic job!
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you so much Dave. Positive comments are nice to come by on here.
@jerryeasler440
@jerryeasler440 18 күн бұрын
You look normal ,don't worry about what others think , live your life , I deal with Major Depression Disorder we all have our issues ,one day at a time
@csignorelli1
@csignorelli1 Жыл бұрын
I know this video is 5 years old, and others have already said the same thing... but when I look at you all I see is a normal, healthy, beautiful man.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you. I still look about the same, Ill do an update video soon.
@a6a34007
@a6a34007 19 күн бұрын
Thank you Ryan, for enlightening me and so many others! 💖
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
You're so welcome!
@almostthere3733
@almostthere3733 Жыл бұрын
Hey Ryan .. you're an incredibly handsome man inside and out. Every man is susceptible to the same 'symptoms' as we age. Why do people feel the need to judge? 'Normal' is a spectrum, and also a myth. Enjoy life and celebrate who you are!
@barbaramahan1589
@barbaramahan1589 16 күн бұрын
You look great to me. I have congenital adrenal hyperplasia, as a woman it never showed up significantly till I was 63. My endocrinologist asked me if my voice had changed yet and I thought he was making a joke, I just don’t think or worry about it. Life is too short. Thanks for sharing.
@jttigera2
@jttigera2 Жыл бұрын
You're a beautiful man. Thank you for spreading awareness of this condition.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
I appreciate that
@billmarshall5040
@billmarshall5040 Ай бұрын
I see a very handsome man. 😊😊 Great voice. Thanks informing and educating us.
@LivingwithXXY
@LivingwithXXY 26 күн бұрын
Thank you kindly
@dr.anaB777
@dr.anaB777 4 жыл бұрын
Hey I'm in med school rn, soon to be a doctor (in a year). I really appreciate that you made this video to educate people, and destigmatize Klinefelter's. I was shocked to know that there are doctors out there who promote misinformation about the syndrome.
@LivingwithXXY
@LivingwithXXY 4 жыл бұрын
Yep thats why we have started this channel to help change the missinformation.
@roxta_552
@roxta_552 3 жыл бұрын
Congratulations from India ♥️♥️
@ourhome505
@ourhome505 20 күн бұрын
You are an inspiring spokesperson and both you and Rocco are wonderful. Thank you!
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
Thank you too!
@abby6713
@abby6713 3 жыл бұрын
I'm a medical student in America learning about chromosomal variations and researching Klinefelter Syndrome. Thank you for educating and sharing your story with us!!
@coyotech55
@coyotech55 16 күн бұрын
One of my brothers was born with that. He didn't find out until he was in the service. He kept getting into trouble, and they tested him. I think somebody who was familiar with it must have suspected he had that. I believe he got an honorable medical discharge, and has gone on to live his life in the usual sort of way.
@mapleext
@mapleext 12 күн бұрын
Great idea to have a support group! Although I cannot tell you have any kind of syndrome by your appearance, the fact is that the diagnosis affects you and your loved ones. I applaud your efforts to educate all of us and especially to reach out to others who may be experiencing this. This is one way we all learn about things. Remember people - we all want to be accepted for who we are and we all can extend kindness to others. Live and let live -it’s really that simple.
@jryland6
@jryland6 19 күн бұрын
Personally, you look healthy. Seems to me, people should live & let live. Don’t matter to me what your dna says. If you’re a good person. That’s good enough for me. ❤
@janetyount8585
@janetyount8585 18 күн бұрын
No one would ever know unless you tell them.
@prototropo
@prototropo Жыл бұрын
Ryan, I am so damn proud of you. To fight misconceptions is a virtue of character and courage. And your body looks like an average, healthy guy's physique! God forbid we should all look like gym bunnies. I hate that expectation anyway. I love you and have total respect for you. Keep going--don't stop.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you so much!!!
@NoctisAquila
@NoctisAquila Жыл бұрын
I would never in a million years tell that there is anything different about you (I really don’t want to say ‘wrong’ since I don’t think that there Is anything wrong with you). I do think that education is the key to everything so what you are doing is awesome!
@andrewwiggall5066
@andrewwiggall5066 6 жыл бұрын
I was diagnosed with klimefelters syndrom when I was born. They told me when I was 9 about what it is.im 18 years old now I started taking testosterone shots every month and for the rest of my life. I have so much trouble with highschool and the stress catches up to you. I thought I was the only one with this condition and I get emotional about it. But hearing other people in these comments makes me feel better about it. If I can loose 126 lbs I know I'm capable of doing anything. Thank you for everything.
@nhrunner
@nhrunner 3 жыл бұрын
Hat off to you good sir. You are one handsome, kind, and awe-inspiring gentleman! Keep going!
@LivingwithXXY
@LivingwithXXY 3 жыл бұрын
Thank you kindly!
@jasonms...1313.Conscious...
@jasonms...1313.Conscious... 14 күн бұрын
I have some questions have you always felt different like you're more than just male I say this because I have felt like that for most of my life.but I also thought I was a chimera because my mother had a miscarriage when she was pregnant with me and my twin and I kind of thought that it was a female and i absorbed some of her DNA. I say this because although my identical twin was a lot like me. There's a lot of difference between us. I was passing for 16 up to the age 44... did this happen to you?
@cherylmurphy7700
@cherylmurphy7700 Жыл бұрын
I think you look great and I’m so glad you are speaking up to help educate everybody! Thank you
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you so much!
@saphronp4201
@saphronp4201 5 жыл бұрын
Hi! I'm studying about this in psychology and your videos have helped me understand this topic better. Thanks for teaching me and the public. I'll continue to watch. From UK
@Ace-mo6gl
@Ace-mo6gl Жыл бұрын
You are a smoking good looking guy!! God bless your mom for keeping you. No doubt your mom is one very happy mother. Thank you for your videos.
@henrikhaas6980
@henrikhaas6980 Ай бұрын
Thanks a lot for this vid - you look gorgeous! Never let anyone tell you that you are wrong or anyhow off - you're not!
@astron1000
@astron1000 Ай бұрын
I'll just tell you - as a gay man - there's nothing "wrong" with you. You are very attractive and you shouldn't feel in any way abnormal. If you are a great guy, then that's it. You are a great guy. And thus you are a catch.
@thekatt...
@thekatt... 23 күн бұрын
💯 agreed
@maureenfitzgerald1895
@maureenfitzgerald1895 20 күн бұрын
@@astron1000 Agreed!
@empresshiva
@empresshiva 4 жыл бұрын
Great video!. My husband has KS he's thoughtful, kind, artistic, clever, a quick learner, great in social surroundings, fantastic photography, maintained a career all his life, he can put his hands at anything, great car and bike fanatic, not much into physical exercise other than mountain biking, not into sports other than motor racing, he's great with children, funny, forgiving, patient, sometimes emotional outbursts but over as quick as it comes, always remembers birthdays/anniversary, can chat for England yet has his time of reservedness. We give each space, which is a good thing.He would have been a great father but that is KS's downfall (infertility) he's a great uncle to his nieces, a great dad to my son, our son now, and a great grandad to his grandson. I wouldn't change him for the world, I love him, flaws and all, for he loves me flaws and all. Nobody in life is perfect, there is no perfection in life, whether a male has xxy xx or xy. Dealing with and understanding KS is important. However it should not be a hindrances in ones life, you can be anything you want to be in life, the power of the mind is a powerful component that were gifted with, having good support, emotional understanding and most of love and acceptance life can be very rewarding.
@gregrussell2530
@gregrussell2530 3 жыл бұрын
So he’s really your wife
@empresshiva
@empresshiva 3 жыл бұрын
@@gregrussell2530 was that a dig Greg? Shame on you. He’s a very good husband sweetie. We all should be in touch with our masculine and feminine sides. Have a blessed day! 🙏🏽
@empresshiva
@empresshiva 3 жыл бұрын
@@predator82dpilot56 you just got to stay on track with your emotions, but do not let it consume you. No we don’t have children together we met late in life. On the whole David is a very positive individual which is admirable in this society. Have a blessed day appreciate everyday! Give thanks 🙏🏽
@empresshiva
@empresshiva 3 жыл бұрын
@@gregrussell2530 did you actually listen and watch the video Greg? Would you say he sound or looks like a woman! You need to enlighten yourself and not make judgments.
@glokkjhit4749
@glokkjhit4749 2 жыл бұрын
@@gregrussell2530 dude shut up like tf??
@JulieMaynard-b1l
@JulieMaynard-b1l Ай бұрын
I understand what you mean about a spectrum. When I tell others I’m autistic they expect me to sit on the floor spinning plates or rocking myself, not someone who’s had a successful nursing career and held leadership roles. I googled Klinefelter’s and clicked on Mayo Clinic and one of the first things it says is how there is a very wide variation in how people are affected and some people never know that they have it.
@JustJay-y7d
@JustJay-y7d 15 күн бұрын
Glad to see you are doing well ❤
@nikolinavorkapic936
@nikolinavorkapic936 4 жыл бұрын
Ryan, you look great! Thank you for making this video.. My son has KS, he is beautiful, special and I love him just the way he is.
@LivingwithXXY
@LivingwithXXY 4 жыл бұрын
Thank you so much!
@danshep69
@danshep69 Жыл бұрын
You look great, thank you for bringing education to us!
@LivingwithXXY
@LivingwithXXY Жыл бұрын
My pleasure!
@FeltonButler
@FeltonButler 17 күн бұрын
You’re a very handsome young man, with an impressive physique. Thank you for your message and information. Keep living your best life - aiming, always, for happiness and personal fulfillment. God bless you!!
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
I appreciate that!
@John.Paulis
@John.Paulis Жыл бұрын
You look great man! Live your life with no care of others negative opinions.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you Jake. Ive always lived my life the way I want to live it, and so I created a nonprofit to give the voiceless a voice and its working. :)
@vincentkruse7814
@vincentkruse7814 Жыл бұрын
You look terrific, a very masculine guy in good shape. People need to be educated about XXY and know that you and others are capable of being more than three letters of the alphabet. Be yourself! Glad you have this KZbin channel.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Wow, thank you
@RockWV1
@RockWV1 Ай бұрын
Agreed, you are normal. You look normal. Don't hide. Go shirtless, etc.
@herlandercarvalho
@herlandercarvalho 23 күн бұрын
What it even means "look normal"??? It doesn't matter how someone looks, "normal" or otherwise. He's a person, a human being, and that's all that matters.
@jvhobson
@jvhobson 5 жыл бұрын
My late partner and best friend had Klinefelter Syndrome. He identified as a gay man, and was diagnosed in his early teens. With testosterone replacement, he, like you, to all outside appearances was a normal, handsome man. Excuse me if I'm being too graphic, but except for small testes and some dyslexia (which may or may not have had anything to do with having an extra X chromosome) there was nothing particularly unusual about him. Then again, he was exceptionally lanky with large hands, and was a notable and fun risk taker (among other things, he loved hang gliding and sky diving), which were all qualities that were different from his parents and siblings and may have been associated with Klinefelters. Thanks for posting your video.
@hildadionne8184
@hildadionne8184 15 күн бұрын
Sweetie you look just fine , we are born perfect in God’s eyes 😊
@Solitude11-11
@Solitude11-11 Жыл бұрын
I lived with a guy with this, he was undiagnosed at 24 years old. He was functional but did have issues with anxiety, emotions etc, he got into horses with me and I think that helped. His body shape was very similar to yours. I once told him to talk to his GP as I felt there was something with him not quite right, and he was told to go away and stop making things up, basically 😢. We parted ways, but remained friends, amd he was eventually diagnosed, about 15 years after I told him to seek help. He’s been on testosterone ever since. This was years back, he’s almost 70 now.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you for sharing!
@africazanella6963
@africazanella6963 Жыл бұрын
who doesnt have traumas anxieties etc in life
@philipalexander1507
@philipalexander1507 Жыл бұрын
Thanks for this honest and open video. The dog just shows that we all deserve love and can be loved!
@LivingwithXXY
@LivingwithXXY Жыл бұрын
You are so kind
@yasminekamarmrd8070
@yasminekamarmrd8070 6 жыл бұрын
i am a medical students and i was like studying about klinefelter and for me there is no shame to have it you are a men like all the man out there so keep fighting the hate of the hater all love from algeria
@davidsoto1090
@davidsoto1090 Жыл бұрын
Thankyou for your channel, i have klinefelter syndrome found out last yr when i was 14, my mother sent me this to show me your channel because she loved it because they make kilnefelter look bad on google compared to what its actually like so thankyou
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you for watching and commenting David!
@GoodnightJLH
@GoodnightJLH Жыл бұрын
Wow. Good on you to put yourself out there! Klinefelter’s Syndrome boys, men and their parents need a role model like you.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you!
@davechristensen8299
@davechristensen8299 Жыл бұрын
You look great bro! Healthier and more masculine than the majority of American men. I'm always happy to see people demolish the stigmas that are thrust upon them.
@LivingwithXXY
@LivingwithXXY Жыл бұрын
I appreciate that
@barbarosasmth2104
@barbarosasmth2104 17 күн бұрын
Every life has value. Every single one
@tonybove2468
@tonybove2468 Жыл бұрын
You’re a ROCKSTAR!!! I applaud your honesty, transparency, and courage. #beyou
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you!
@davidfryer9359
@davidfryer9359 Жыл бұрын
I researched chromosomal anomalies in college. I think you are a beautiful human being. I feel so fortunate that I educated myself. Because what you are saying is so right. More should be done for those with chromosome variations in the realm of normalization and acceptance. I love that you are educating the masses. It is more normal than one might think. Even for those with extra “Y” chromosomes. I hope you feel special and blessed and not made to feel otherwise by ignorant people. Just know you are loved by so many of us. I hate when others say you look normal. I say you are normal. Everyone should see it that way. ❤❤❤
@LivingwithXXY
@LivingwithXXY Жыл бұрын
Thank you so much for this comment! It is the most understudied and underfunded!
@cindywilson2739
@cindywilson2739 17 күн бұрын
You are absolutely perfect just the way you are!
@LivingwithXXY
@LivingwithXXY 16 күн бұрын
Wow, thank you!
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