What it's Like to Live with Meniere's Disease (and Why There's Hope)

My book Mind Over Meniere's: How I conquered Meniere's Disease and Learned to Thrive is available at: bit.ly/1KkMbzY
It's really difficult to explain what it's like to live with Meniere's disease to someone who has never experienced it. There is nuance that gets lost in translation. But if the people closest to us can't understand, then how can we ever expect everyone else to get it? I made this video to help raise awareness and explain what it's really like to be diagnosed, and live with Meniere's disease.

[@marbleous]

"You look fine but you are not." 😭 This is so true, and people around you think you're just being dramatic

[@gracemikecacho4420]

Exactly

[@shinningstar-gv7dw]

This disease is exhausting, it wears me out! It's comforting to know that there are others out there who suffer the way that I do. It sucks having this disease and I'm so sorry that we all suffer.

[@SuzanneVoelker]

Star Gazer2019 I Agee! I just found out that is what I have. I was I was going crazy. I have a great job, but kept messing up. I thought I was going to fired.

[@DoubleDHomestead]

Stay strong and stagger on. We’re going to make it. Stay positive, as hard as that is, stay positive.

[@doitsol2896]

I am so glad i found someone who has fully understand a Meniere's disease. No family truly understands what i have been through. Thanks!

[@rahulrj1993]

Jin we r ur family we can understand you

[@luciledferd8193]

Hi, this was the most accurate video of meniere's that I have watched from a patient perspective. I've had my first major episode about a year ago. it was a 24 hour attack. I was hospitalized and not able to keep anything down. I couldn't walk, could barely crawl. my 5 year old at tht time was panicked and screaming. I was whisked away to the hospital ER and strapped down to the gurney as my body kept trying to spin me around. it was a nightmare! thank you for making this video for all to understand that the struggle is real for us!

[@MindOverMenieres]

Thanks for your kind words Luci!

[@kathryninhawaii7115]

You said your body kept trying to spin you around. Can you explain what you mean - that you were strapped down. I've only had spinning a few times. But for years I have had episodes where it feels like I am being thrown to the ground from a sitting position - but am not moving at all. It is only the sensation. I have only had spinning a few times and it was bearable for the most part - and did not last long. When sick - it may have lasted several hours. Also there have been times where lying on one side made me spin while the other side took it away... For me I have 24/7 clogged feeling in ears, dizziness and tinnitus and brain fog. Often feel soreness in ears (not sure if that is related but it's probably stress related) I walk funny to keep my balance and this causes muscle pain in various parts of my body. Often my equilibrium is off and I bump into walls in my house.

[@Rolex45863]

Luci Ledferd same here my life gone no more hope because it can be cure I was hospitalized 100 time I’m still on bed no job nothing in life .

[@leoaquino1418]

I’m sitting here in my car balling, listening to this video. I’ve had the symptoms show up a year ago. And just recently got diagnosed. Thanks for putting out this content. I am a very hands on, active father and husband. It’s been an extremely hard journey understanding how to live with this hellish disease.

[@jameslewis2348]

I have controlled my Ménière’s symptoms for almost 6 years now by taking a regimen of supplements. They are lysine, lemon bioflavonoid, vinpocetine, msm, timed release vitamin c, ginkgo biloba and vitamin e.

[@TimSmith-db1iu]

How are yo doing now? Have you ever taken Betahistine?

[@monicaguti1]

I HAD THIS CONDITION FOR 43 YEARS. UNTIL INTERNET I MEET PEOPLE LIKE YOU

[@n8barnhart]

everyday is a struggle. I deal and have these exact same feelings.

[@feefeegirl]

This is the most accurate I've ever heard

[@MindOverMenieres]

Thanks Felicia. I'm glad you liked my video!

[@jmpp7644]

Just got diagnosed with meniere's last month and my last Vertigo attack was the worst I basically spent Christmas day throwing up. Keep up the good work my friend now I know I'm not alone fighting this terrible disease.

[@joshpeterson7216]

Every time I watch this I cry, I went through exactly this exactly, 4 years of not knowing and then job loss with in 1 week of diagnoses I worked mining and core drilling, I have hope every day, I used to have a bad outlook now it's part of me and I part of it.

[@nakiaaugust834]

Are you better ? I’m like this now, is there hope?

[@joshpeterson7216]

@@nakiaaugust834 I've accepted that it's not going away, as long as I stay away from things that set it off, it's just who I am now, my kids have fully adjusted to it also

[@kickers89748]

@@joshpeterson7216 hi are u working now? I worried I can’t work, I just have this symptoms this year

[@joshpeterson7216]

@@kickers89748 I applied to ssdi on the recommendations of my doctors, it took 5 years to get my appeal, and I just do what I can now.

[@kickers89748]

@@joshpeterson7216 i hope u able to drive and work. Because u have family to raise. Managing symptoms to the best level.

[@flowergirl3235]

Thank god I found this !!! I recently got diagnosed with Ménière’s disease I’m only 25 and have been through countless doctors visit, urgent care, hospitals, obgyn and finally psychiatrist because my care provider thought I was having panic attacks ! Overall waste a time until I went to a cardiologist and he broke the news to me . I am finally going to see an ent specialist. It’s been a rough road mentally and physically and emotionally drained . I hope to get help . I want to feel better.

[@MindOverMenieres]

Hi Sarahi, I'm sorry to hear that you've been struggling so much. I know how difficult and frustrating it all can be. If I could make a recommendation, it would be to read this post and all the posts it links to - mindovermenieres.com/newly-diagnosed - It's everything I wish I knew early on.

[@nikzentertainmentnetwork5640]

Sarahi V I have been suffering with my Ears for 1 year now and I have still not been diagnosed with Meniere’s Disease I am getting shit scarred as I’m sure I’ve got it and I’m getting scarred of hearing loss!!

[@MindOverMenieres]

My advice would be to find a better specialist. The type of doctor you want to see is called a Neurotologist. They are ENT doctors that subspecialized in treating hearing and balance disorders and tend to have way more experience treating and diagnosing Meniere's and other vestibular disorders. And you can find a highly rated one near you on healthgrades.com

[@doreenlorenzo2501]

My ENT didn't help me at all.

[@mandamarie2783]

100% how i feel. I have had meneires for 8 years now. i have experience my longest episodes recently. Thank you for making me feel not so alone.

[@mandamarie2783]

umm not for this..how about u??

[@mandamarie2783]

yes i have menieres. i was doagnosed 8 years ago. For the most part my life was normal..i had attacks maybe 5 times a years. However, i have had vertigo every day since february this year. At first, my attacks were very bad..lasting hours and I would become very ill and not able to walk. Now, the past month or so, I am off balance and get attacks every day but I do not spin as hard. I live in Cali

[@mandamarie2783]

what is attiva ? i am taking a diuretic right now..but i am not satisfied with taking medicine for the rest of my life..how long did u take prednisone? and how often do u get symptoms? i am also taking allegra.

[@mandamarie2783]

attivan**

[@mandamarie2783]

how long have you been dealing with this? do you have an email?

[@liyahmccalla]

I've never found anyone explain so perfectly the daily struggle I go through. Hard to explain feeling sick when you physically look fine. Thank you. I had to share with my co workers.

[@MindOverMenieres]

Thankd liyah! Glad I could help in some small way.

[@juniorjunior4087]

March 22 3 months after covid i woke up with vertigo..whole day. The next day..the most brutal..T and H. Worst people to tlaked to are damn doctors

[@AngelDjay]

Spot on with everything you said .I don't suffer much with vertigo or dizzy spells , I seem to get hit with mental disorientation , head aches , hives , cold sweat , hearing fluctuation , pressure in the ears on a daily basis .Oh numbness in the hands and legs .About every six months it hits me with extreme pressure in the ears and my hearing is very bad at that point , that lasts for a few weeks .No one knows we have it but we carry on and never lose the spirit of hope .

[@AaAa-pp9ev]

Angel Djay are you feeling better

[@xXBuckOFiveXx]

klojo pendejo I’ve had numbness in my hands and feet during a vertigo episode.

[@aylalacroix428]

This sounds so similar to what I deal with, I get vertigo sometimes but not as bad as the headaches

[@AngelDjay]

@@AaAa-pp9ev Sorry only just seen your reply, since my hearing dropped even further the symptoms have backed off, they still hit me but a lot less frequently and with a lot less power.

[@doreenlorenzo2501]

I have it too.I have all your symptoms plus severe Imbalance problems.l have her it for 40 yrs.It used happen once in a while.Now it happens often.Plus I have severe hearing loss.My ENT did nothing to help me.

[@tonyalandon3275]

Holy cow! You hit this spot on. I have bilateral MD. Mine, combined with other severe ear issues since age 4 has caused my world to be turned upside down. I am quickly loosing my hearing, I can’t find the pitch to speak to people- too soft or too loud. My balance sucks, my attacks are often and debilitating. I have had to go on disability and I hate it. I miss nursing and feeling like I am helping others. I have pulled away from social activities almost 💯. 36 surgeries, nystagmus during attacks, brain feels like scrambled eggs, exhausted, falling down, throwing up, confusion of my surroundings and direction. The list goes on. I wouldn’t wish this on anyone.

[@janeforrest6838]

I have all the same symptoms as you and find that lack of sleep and stress definitely makes it worse. It robs me of things I want to do and have missed countless events but on the good days I make sure I really make the most of getting out,walking my dog and enjoying everything.

[@angeleancale26]

This is by far the best video I've seen on Menieres yet. My friends, family, and coworkers never understood. It was lonely and terrifying journey. Now, I'm eight years in and know my triggers and have adjusted to my lifestyle change. I just can't thank you enough for putting our reality into words others can understand. Explaining this disease to others is so tough but you did a awesome job! God Bless You!

[@Rolex45863]

Angele Marie do u able to work now?

[@Rolex45863]

Angele Marie life gone no can work anymore

[@TheCynYagi]

My doctor has said he thinks I have Meniere’s and I have had one test done so far 1 more this week and hopefully the last 2 soon. Thank you for your video. It makes me feel less alone and it makes it easier knowing I’m not the only one who went/is going through the same motions.

[@undercoverangel1410]

OMG...thank you so so so much! 😭😭😭💔💔😭😭 I have been bounced from doctor to doctor for 9 months! Lost my job because i fell in front of a car and threw up. I finally got diagnosed today and i am just in a world of confusion trying to figure out what next! I had a full time job and i was a full time student with a social life. I feel like someone flipped my life upside down with a spatula! It has been the most frustrating year ever! It feels so good hearing some one out there saying this is not in my head! !

[@doreenlorenzo2501]

So sorry, you are not alone.

[@thegooseshow8358]

I was diagnosed with Menieres Disease four years ago. It took several trips to the emergency room and doctors to figure out what it was. I thought I was going crazy! I was absolutely miserable! Finally I was sent to an ENT doctor and they diagnosed me with this disease. I was put on Dyazide and some things for nausea. It did work but I ran out of my medicine and had my mother back and forth in the hospital and I just stopped going for follow-up appointments to the ENT doctor. I was fine for about a year and wham!!!! It's back! I am going through it right now. It's absolutely the most miserable feeling you can have. People do not understand! I am in the process of getting back in with the ENT doctor. Praying they can get me back on track. Thank you for this video. It describes everything perfectly! I really do pray that they can just put me back on the Dyazide and that will help again! Thank you again for the video. It helps others to understand. I am 40 years old and have a great husband and an 8 year old child. I have to get this fixed or at least to where I can manage better with coping with it. I can't do anything! Just a very troublesome time right now!

[@veronicamorua485]

Gleen, Thank you for all you do for others suffering with Menieres.

[@patiencealice4193]

Just can across your video on Meniere’s. Great job; it is spot on. I think I need time off from work to get a serious handle on this disease. It’s no fun living in a body you don’t trust.

[@internalcombustioN3d]

Thank you Glenn for the important work you are doing. My sister sent me one of your videos and I’m really grateful she did. I had my first attack a couple of weeks ago. It was really frightening! My wife and I thought I was having a stroke and we called 911. The emergency doctor took it seriously and as a precaution sent me for a CT scan. Thankfully no sign of a stroke. As a further precaution, I was put on blood thinners and given an appointment with a neurologist in case of a possible TIA or mini stroke issue. On the day of my appointment 9 days later, I was awakened at 3:30 in the morning by a second episode of vertigo that felt a hundred times more intense than the first one! The tinnitus was unbelievably loud! I went back to the hospital and spent the next few hours under observation. The doctor on call that night suggested for the first time I could be dealing with something called Ménière’s disease. I had never heard of it. Once things settled down again a few hours later, I was discharged and went on to my appointment with the neurologist. After going through a thorough exam and going over my blood work and CT scan, the doctor felt confident I wasn’t dealing with a vascular issue. He’s leaning towards Ménière’s disease or possibly an acoustic neuroma. I have an MRI coming up this week and I will be meeting with the hospital’s dizziness clinic in the coming weeks. Three days after my second attack, I had a third episode of vertigo and tinnitus. It was less intense than the first two but lasted considerably longer and I also experienced full body chills. I think the scariest thing right now for me is living with the uncertainty of why this is happening and wondering when it will happen again. I’m really hoping the MRI and dizziness clinic can shed some light on my situation. Hearing you describe the symptoms of Meniere’s and what an attack feels like gives me a strange sense of hope that someone else understands what I am going through; that it has a name and that I am not alone.

[@mammaz1016]

I just got diagnosed today :,( your so right everything you just said is like your saying a story of my LIFE RIGHT!

[@scarletm1110]

So many people don't understand. Thank you so much for explaining.

[@SusynStecchi]

Thanks for doing this video. I have had such a difficult time explaining what Meniere's disease does to me. Having someone else explain it and explain it well like you did, is much more powerful for me to share with my boss, colleagues and friends than when I try to do it.

[@MindOverMenieres]

You're welcome! It's something I struggled to explain for a long time. So I thought it made it sense to figure out a good way to explain it and make it easy for everyone else to share too. Thanks Susyn!

[@sandyallday6469]

I was diagnosed 6 yrs ago with Menieres Disease/vertigo. Your video explains everything exactly like it happens clear down to the non-believers. Glad I found you on KZbin. For about a week now I've been studying about CBD OIL. Not only are they saying it helps with Menieres Disease, study's are showing that it helps to shrink brain tumors. I'm still learning about the oil but, I will probably try it soon!

[@NoLefTurnUnStoned.]

Hi Do you have any updates on the CBD?

[@rollinstoned5472]

This video is very accurate, I was diagnosed with Ménière's disease when I was 12, I am 26 and you will get better. Not fixed but better I found stress to be a major trigger to my verdigo attacks now that I am older I have learned to deal with stress and that helps a lot. I tried many motion sickness medicines and found relief when I started using cannabis. While that might not be the answer for some people it has helped me a lot. I have been a commercial fisherman for 6 years now don't let this disease control your life try and live as stress free and do what you want and you'll find your self forgetting you ever had menieres in the first place

[@chadmiller5216]

just had an episode last night and im still going through it and been having these random episodes for over two years and dont know how to enjoy life anymore and i still havent come across anyone who understand these symptoms and now my friends dont talk to me and everyone tells me its stress and i over react and really just want to talk to people who go through what i have gone through. I live in fear and losing hope that i cant live a normal life daily because this problem effects my job my social life outside.

[@greggsmith7688]

Spot on , thank you. I had an episode yesterday morning. I am still in bed. I feel exhausted and very confused. I wish someone would answer the phone ringing in my head. I live in South Africa and the doctors here are pretty clueless on my condition, without a lot of money to get the right help i am left on my own to beat this. The hardest thing is nobody understands my condition. I would love to wake up tomorrow morning and it was gone. I have had five episodes in the last two years and each time it takes about two weeks to full subside. My tinnitus never abates, it is constant. Just the severity of the sounds in my ear change. Thanks for the great explanation. Guess what the family will be watching tonight. Thank you

[@greggsmith7688]

Sorry i forgot to add this and maybe someone can look into it, from what i can remember about yesterdays episode. And i can recall it from a previous episode, it started with me sneezing a couple of times and then i went down. i dont know if when i sneezed something happened in my head.

[@92Jaeger]

Glenn, I have read your book. I thought it was excellent. I have had Meniere's syndrome for 19 years. I am still learning about it. I looked at the sheet you have about Meniere's syndrome triggers. You didn't put down off balance. I feel off balance. One thing that helps me relax is reflexology. I would definitely recommend reflexology. Sincerely, Harriet Lefkowitz

[@MindOverMenieres]

Hi Harriet, you are right about not including balance on the sheet, although I would argue that dizziness is very closely related and you can use that section of the sheet instead. And thanks for the recommendation!

[@tahi518]

its glad to know that one can live so lobg with meniers...

[@realcecewilson]

That was the perfect way to explain this disease. It’s heartbreaking trying to help someone you love with this a challenging diagnosis. Thanks 🙏💜🕊

[@tdub4291]

Was basically diagnosed yesterday from the ENT! 😢 Going for more hearing tests and MRI on my brain Monday! I’ve been so upset since yesterday and now started looking for hope and information to try to help myself! Thanks so much for all your information!

[@praisedalord58]

You totally express everything I've tried to say in detail concerning my Ménière's disease! I was first diagnosed in 1993. I'm 58 & have lost my hearing in left ear. Thank you for sharing your video!

[@stephworley8253]

I no longer have to try to explain to everyone around me why I look ok but so debilitated with all of the bouts of complete bed ridden time frames, I simply send your video to the person that does not understand! You explained this horrible disorder to the exact. Thank you so much for what you do!

[@zhardoum]

Thank you! Whenever I get a strong attack or an attack is oncoming I always get a very acidic stomach & feel sick. You are the first person to give me a reason for it.

[@cybiegirl1970]

Absolutely spot on this is exactly what living with this is like well done 😀

[@journeyofthesongbird2017]

I was finally just diagnosed after suffering for 6 years.

[@pippa9749]

this is the best and most informative video I have ever watched. it explained more than my Dr did. Thank you

[@AlaskanKasten]

It took medical professionals 13 years to realize I had Ménière's Disease. What started as mild vertigo and hearing loss in one ear has turned into daily vertigo and significant hearing loss as an adult. I must admit, I watched this video and cried. Through my teens and early twenties, I saw many audiologists who concluded I had significant hearing loss in one ear, and mild hearing loss in the other. I was referred to a cardiologist for the vertigo (I would stand up, get dizzy and fall, or I'd lie in bed feeling like the world was spinning) and the cardiologists could find nothing wrong with my heart. My hearing loss was blamed on frequent ear aches as a child (with tubes put in my ears around age 4) to which they also attributed my tinnitus. My insurance would not cover hearing aids, but would cover a cochlear implant. I finally saw a specialist who diagnosed me with Ménière's, though they never mentioned my vertigo was part of it. I continued seeing specialists for the vertigo, and it wasn't until I met someone else with Ménière's who explained that the vertigo (and falling over) was a large part of dealing with Ménière's. I watched this video and it explained so much, I couldn't help but cry in relief. I have no hearing (100% loss) in my right ear, and about 30%-50% loss in my left ear, depending on which audiologist you ask. I have felt so isolated as an adult, with no resources to learn ASL and no resources for alternative information for treatment or living with Ménière's outside of the peer pressure to get a cochlear implant. Thank you so much for making this video. I feel like I finally understand myself and my situation far better than any specialist has ever been able (or willing) to explain to me. For years, my feeble support system has accused me of being melodramatic when I feel dizzy or when I fall to the floor, and having limited abilities to communicate and understand others when speaking. I wish ASL was an offered resource to those of us who have lost a significant amount of hearing as adults. Thank you again for making this video.

[@michaelhamilton5418]

Hi Your description of this is so very well expressed. I have menieres also. I suffered with it for about 10 years with bouts of vertigo periodically until march of 2018 at which time the vertigo spells became so severe and often that i was for a better word incapacitated. I was no longer able to work ,or dare to drive as the spells were now almost every day. I went thru a minimally invasive procedure called an Emdolymphatic Sac Decomprestion ,which failed to help. Then March of 2019, 5 months later, I had a surgical procedure call a Right Sigmoid Vestibular Nerve Section where the Vestibular nerve was cut.It has been 9 months now since the surgery and I feel fantastic. No vertigo spells, very little ringing in my right ear. I feel 100% better than before the procedure. Not 100% back to normal . It has been life changing and i am very happy i have the surgery. It may not be for all sufferers , but it has helped me and has given me a new lease on life.

[@tuineilson356]

Thank you so much for your video. I was made aware of the strong possibility that I am living with this disease. I've got an appointment with ENT next month. Your video made so much sense and has put me more at ease about my possible diagnosis xx keep being you

[@nutkja]

I’m crying watching this. Finally someone who truly understands the pain and sheer terror I experience. I had my first episode at 18. I was 2 months into my freshman year of college, hundreds of miles away from home. I was diagnosed with labyrinthitis which, while incorrect, at least was close so I didn’t have the experience of going to doctors who had no idea what was wrong with me. Then I had an episode in April that landed me in the hospital. So far my vertigo episodes seem to happen every 2 years so I am so thankful for that. But my hearing has gotten much worse. I remember getting my diagnosis when I was 22 it was exactly as you described. The ent said “No alcohol, no caffeine, low sodium diet, and reduce your stress” then she handed me a pamphlet and left. I already struggle with anxiety so I had a panic attack right there. I had another round of vertigo episodes right when the pandemic hit. I haven’t had an episode in a month now but unlike before when my hearing would come back after the vertigo episodes stopped. It hasn’t gotten better. It’s the worst it’s ever been. I’m about to start my third round of steroids to try and bring some of the hearing back. If that doesn’t work they’re going to try injections. I’m constantly terrified of another vertigo episode and I’m afraid that this time my hearing won’t come back. Singing is one of my greatest passions. And I’m afraid of not being able to sing in choirs anymore. I’m going to share this video with friends and family so they can get a real sense of what it’s like to live with meniere’s disease.

[@angel29can]

Thanks for this video now when my friends ask me what Meniere's Disease is, i just show them this video :-)

[@blossomsofmylife5698]

Thank you!!! I was diagnosed last year and you describe it perfectly. So difficult.

[@staceythedrift]

Thank you for your video. I'm sorry you have to go through this. I was diagnosed about 2 years ago and have really been struggling. At least I know I'm not alone.

[@Bob-th7vi]

The US Air Force retired me with a disability in 1980. I was diagnosed with Meniers Desease after an event that. Damaged my ears. Over the years the condition would vary and even would go for an extended period of time with no symptoms. Then the symptoms would come almost in clusters then taper off. Like you I’ve learned to cope with the condition and yet now as a senior citizen and as a disabled Vietnam vet, the frequency and severity of symptoms is rather constant with attacks weekly. Thank you for bringing attention to Meniers and the effects it can have on life issues

[@Ash_P_]

Thank you for offering assistance to patients and their families struck down by this hideous disease. I suffered badly, nearly to the point of giving up. I had the gentamicin injections to completely destroy my left ear. Lost 100% hearing, lost balance for about 9 months, suffered debilitating depression, have terrible tinnitus and constant nausea. Thankfully I haven't had a spinning episode for 9 years, but it is always in the back of your mind.

[@MindOverMenieres]

I appreciate your kind words. And I'm glad to hear that the gentamicin shot ended up being so successful at treating your vertigo! The tinnitus thing is though, but there are things you can do for that as well. Be sure to check out my other website, Rewiring Tinnitus: rewiringtinnitus.com

[@sabrinastraub4086]

Thank you so much for this. I’m in tears. I went to the Mayo Clinic, nothing. After almost 2 years, and almost cancelling the appointment with an ENT this week luckily I didn’t and she believes I might have this. I have given up all hope. I go for testing next week. I have 3-4 “episodes” per day and I also have Lupus. My dr. ran blood work and said just call back if they keep happening. This 👆🏻👆🏻 is my life every day!

[@monicaguti1]

Menier dosent cure, never, but you will have the treatment that suits you. I have this for 43 YEARS. If you want to ask me write to me [e-mail]. Regards Mónica from Costa Rica

[@jasonrobinson8741]

very good explanation. I suffered for 10 years before I was diagnosed. I had not even heard of of it at the time.

[@mikotosuoh6013]

my god thank you i've been able to use this video for my parents, because i got diagnosed a few days ago after about 3 years suspicion [ yeah i guess i wasnt lucky haha ] but thannk you! i wanna buy that book

[@bubbleyumlivenlove704]

Lord God bless u for this man. On point so thankful I ran across this.. I have been going thru this for years and still waiting for a main diagnosis!

[@georgebrown9081]

Thank you so much for this video. You really nailed it.

[@graysoncarlyle6212]

Thanks for the decent video Glenn. Now to get so many others to understand what else I now have to deal with, on top of all those other Conditions, most can be dealt with, as you have some certainty of when your starting to feel unwell, unlike Meniere's that can pummel us out of the blue, with all that uncertainty of just when, or how long the next attack will last. Good Job.

[@isaac.anthony]

I had a TBI when i was a toddler, it perforated my eardrum and gave me a concussion, when i was 3 years old. I have had tinnitus since the 4th or 5th surgery on my ear when i was 14. There have been few times in my life where i get dizzy and fall down and/or pass out. This happened when i was DRIVING UBER with only myself in the car, i was able to jam it in "park" before i passed out, but it lasted at least 15 seconds tunnel vision, felt like i was going to vomit and HORRIBLE vertigo. I had to stop driving then. I filed for disability, i am waiting for it now, because i still have a hole in my ear drum, and my brain ain't never been right, and it's not getting better almost 50 now, sucks i can see my own cognitive decline and i try to do my best to exorcise and keep my body healthy, because my brain is broken. Thank you for describing what has been happening to me my whole life, no doctor ever put the pieces together!

[@aiswaryar4298]

Most accurately you have put up your words,it's so true and I'm suffering from this meniere's from my age 12..now I'm 25yrs old..I've been advised for strictly " no salt" diet,even after following which I've giddiness(vertigo) and tinnitus problem..I've always wondered whether this meniere's disease has a permanent cure?! and always thought of making some blog or video to initiate the awareness on this..I'm glad that you've made a video on this..Now at least there's a person on earth who knows and feels the same problem as I do..kudos to you man for making this video..! :)

[@MindOverMenieres]

Aiswarya, no cure unfortunately, but many people are able to manage their symptoms to varying degrees. Be sure to check out my blog too! mindovermenieres.com

[@jeffwolfe4058]

hey, I got some relief from high quality Ginkgo extract, pycnogenol and healthier eating habits. Give it a try if youre still having problems.

[@rahulrj1993]

I am frm blore all my frnds are happily enjoying ,we wll be alri8 outside but from inside we wll be dying ,i was diagonized at 17 nd i am nw 22 ,i feel the most loneliest person in the world

[@swatimishra668]

Hi Aishwarya. I'm from Bangalore and have been diagnosed with Meniere's disease a few months back. Are you feeling any better now? I had to quit my job recently because I was continuously disorientated and imbalanced, so much so that I wasn't able to even talk a walk by myself. If you happen to know a good doctor, could you please suggest me too. Thanks!

[@glennzac63]

Finally someone who puts into words exactly how I feel!

[@rhea7599]

i have not been diagnosed yet but it seems like the only probable cause at the moment and it’s horrible. i thought being dizzy all the time and seeing stars and being Nauseous was normal until i found out it wasn’t. the ringing has been getting worse and i am to the point that i can barely hear what is being said in a group. this video really helped me understand that i’m not alone

[@captpeady2176]

My symptoms: 1. Something sets it off, stress, conversation, moving your head quickly, bending over. 2. Fullness of the ears 3. Sweating profusely 4. Left ear stops working, right ear ringing 5. Loss of balance and coordination appearing to be drunk 6. Vertigo lasting 30 minutes to hours with nausea and seasickness 7. Headache from hell 8. Ringing increases in both ears to extreme levels Tinnitus 9. HIgh pitch sounds are amplified with lower frequencies sounding like a broken speaker. 10. Out of it for the rest of the day and night. No cure but things that help: the Epley Maneuver, Meditation and medication, no salt.

[@quentindescotte6037]

Thank you so much for this video !

[@mauricejohnsoniii]

You hit the nail on the head with loud noises and the feeling of being scared to go on trips or vacation for that matter. You REALLY NEVER know when it's going to hit. Thank you!

[@coldconfession13]

2nd year of having this. it sucks so much just shared this video. best description I have seen

[@MindOverMenieres]

Thank you for the kind words. It does suck, but there is also always hope! Have you had a chance to check out any of the articles on my blog? If not, here is a good starting point: www.mindovermenieres.com/erase-menieres-symptoms-with-a-temporary-lifestyle-cleanse/

[@jsvlegaspino]

thanks for this video. this is so accurate. this is what i am experiencing, what i am feeling, and what my doctor had advised.

[@MindOverMenieres]

You're welcome! I'm glad you found it helpful. If you're newly diagnosed, I highly recommend this post as well. It's everything I wish I knew when I was starting out: mindovermenieres.com/newly-diagnosed

[@rare6499]

I’ve had it for about two years now, I’m 32. It’s very hard work. I’m trying to keep working and keep going. It’s tough. If I’m not throwing up I manage to keep going. I wish I could make the tinnitus go away. It’s so extreme all the time, for years on end. It’s exhausting.

[@Northenstar13]

Hi, I have just found your channel, thank goodness I have. I'm not feeling so alone now.

[@MindOverMenieres]

You are not alone! I encourage you to join my Facebook support group too. There are over 4000 members, and we are all there to help and support one another: httpfacebook.com/groups/MenieresDiseaseSupportGroup/

[@sambyrd1110]

After returning home from a road trip, I began to experience a fullness or pressure in my right ear. About two days later the fullness continued, while comfortably watching tv I began to experience vertigo. I sat there waiting for it to pass, but it only got worse. I began salivating and knew I going to throw up. I unsteadily moved to a nearby trash can and began to vomit, and sweat excessively, this episode lasted for about 40 min before I could even make it to the bed. I woke up 7 hours later feeling a bit drained but overall fine. My first Ménière attack

[@alexpage7292]

Thank god someone else understands this condition that I’m going through

[@josephallison6986]

Just talking about this helps! I live alone, and it feels like im on a cliff! I can't climb up, and there is unknown below! But i jeep try to find a answer! Be strong my friends! I will get off this cliff!

[@333JDana]

*Thank You* Your video will be my introduction to my family now that I'm newly diagnosed (on my birthday, October 3rd). I really think that many of us were "healthy" before, but now it's sodium we are battling. I always watched carbs, calories, etc. What now? What do we eat? What do we tell our friends at events? "I can't have sodium"? I am a teacher and just realized for the first time, I'm a teacher with special needs.

[@MindOverMenieres]

Hi Dana, I hope it helps your family understand! And I know how overwhelming it all is , but there really is so much hope. I think you'll find this post really helpful: mindovermenieres.com/newly-diagnosed - it's everything I wish I knew when I was first diagnosed. Just make sure you take the time to read the posts it links to as well.

[@ilmob4life]

I had what I now believe to be my second Meniere attack two nights ago, I luckily have ringing in both ears and an appointment with my PCP tomorrow at 8am to disclose my experience and seek "treatment" if he takes to what I say and doesnt make me run around to do too many tests. ✌💜

[@malisawade4783]

I was diagnosed with Ménière's disease 13 years ago over the past three years my left ear has been ringing and hasn't stopped since sometimes it drives me crazy for the most part I've learned to deal with it they put me on different medications which none helped so I do not take anything thanks for the video

[@adpentinc]

That is nothing but truth. Thank you

[@andreaberezowski998]

This is exactly what happened to me, every word you spoke were like they were my own

[@Brynja24]

It took two years to be diagnosed and then it took me about 4 years to rebuild my life so that I can live a 'normal' life with job and family. Yes there are bad days, but there are also good ones. The biggest problem I will never be able to solve is that society doesn't see me as sick when clearly I am. Because you can't see my Tinnitus, the constant pressure in my ear, the problems with balance when in a crowded, loud place or when the floor is not even. When I plan a fun day with my family I also have to plan the following day I may be sick, because after days filled with a lot of activities I experience worse symptoms. And when I have to tell someone about Meniere's, often all they say is something like "you just have to drink / sleep / exercise more" and "oh, everybody gets dizzy sometimes!" 😑

[@bruceadonnelly69]

Wow.. great post!

[@elizabethwhitby6405]

I suffered from vertigo like 2 years ago....I went to the er and they did a maneuver on me ....and it worked... BUT then 6 months ago I had a vertigo spell....and now everyday I have anxiety thinking that im going to get dizzy again!!! it scares me to death!!!! I've asked my doctor about this disease... BUT she said it's very rare!!! she keeps saying my ear drum is thin and that could cause my vertigo....but now I've been getting over bronchitis and a sinus infection for like 2 weeks....and my right ear feels full....I can't hear out of it at all...I get severe pain in it and it rings all of the time.....and my doctor also said that with my anxiety and we worrying about being dizzy could also cause me to feel dizzy too.....I really do feel that it is causes from this disease....I've Googled it.....and everything your saying is my life!!!

[@pamalamartin4059]

Thank you so much ! My Mother had Meneres when she was in her 40s and completely lost her hearing. I had my first attack when I was also in my 40s . I'm now 65 and now have it in both ears which is very rare but can happen. I have lost some of my hearing and that is the most frustrating part. I get a break from the other symptoms but the hearing problem is daily. Look forward to your other videos

[@doreenlorenzo2501]

I got it in my in my 40s also.I now have severe hearing loss.My episodes are getting worse.This video is better than all the Specialists I've seen.I'm76 now.

[@jpbass5913]

Thanks for sharing your experience. I've been after a diagnosis for years -- I still am not sure it is what I have but my vertigo was initially linked to rocky mountain spotted fever but I've been dealing with ear fullness, pain and vertigo for about 5 years. I am finally reaching the point where I cannot live in my current state anymore, I requested a referral to an ENT today to have my ears and nose thoroughly examined. Even if I don't have meniere's disease I can relate to the pain and confusion you speak of in this video. Stay strong bro, I hope you are doing well.

[@Flashtone08]

I have rmsf also. How aggressive did you treat with antibiotics? Ototoxcity can occur.

[@jpbass5913]

@@Flashtone08 I went on 2x 10 day treatments with doxycycline, found out about the time I wrote this comment that my old apartment (where I was living then, just moved) had a black mold issue. So, I'm honestly not sure, my Dr put me on an antifungal and antibiotic when he found out about the mold but I'm still not 100% better, beginning to wonder if I'll ever recover or just slowly waste away

[@michiko233]

The most relatable way I've been able to describe the sensation and severity to someone was to imagine having sudden and unexpected concussions while having the flu.

[@jameslewis2348]

I have been diagnosed with Ménière’s disease and had all the symptoms. I went online and found the John of Ohio supplement regimen. Since taking the supplements now for 3 years I have been symptom free with greatly reduced tinnitus. John of Ohio has literally saved my life.

[@kidzbopkaren2965]

I have this, and I got it when I was 9. When I have the attacks, it usually lasts for 2 hours. It also comes in clusters.

[@TeraKloc]

Thank you so much!

[@palapalak.8907]

Thank u for sharing.

[@melaniejefferson5701]

thanks for this video. im home now recovering from an over night stay in the hospital. i have had tubes in my ear since a very young child and as an adult. Actually have a set in now but the right one has falling behind the eardrum again for the third time. went to ent last week and he told me it may be autoimmune. i also have lupus and fibromyalgia. for the last couple of months the vertigo has been horrible my ear and neck is killing me and i have been vomiting. and the ringing in my ear goes from low to too damn high. lol. also had a hearing test that shows increase in hearing lost. Have u ever actually felt fluid move in your ear when you turn upside down?? your video was very helpful. hopefully i will have some answers soon or diagnosis. thanks

[@kathryninhawaii7115]

The dizziness began daily in 1982 but only had spinning a few times beginning this year. Did have spinning 2 other times during a head cold. For me it's tinnitus, clogged feeling in ears since 1968, heavy feeling in head, soreness in ears, brain fog, dizzy, equilibrium off, I often bump into walls in my house not realizing I am heading for them until I hit them. This is 24/7. I don't understand when people speak of "attacks".

[@x1v160]

Thanks for the video, it makes me feel less alone. my dizzy spells started 13 years ago, accompanied by ringing that would last a day here and a day there. 10 years ago the ringing in my right ear started and never stopped, impairing my hearing. around that time I got diagnosed with menieres and had a measurable 30% reduction in hearing in my right ear. over time I could tell that ear got worse and worse but I got used to the ringing and didn't notice it was there after a while. the dizzy spells got less severe and frequent. my left ear started ringing for a hour here and there a few years ago. 3 days ago the ringing started in that ear and hasn't stopped. during this attack there are times itS almost impossible for me to understand what people are saying. I am scared I will be parially deaf forever 😭 I am scared hearing aids won't work well. I am scared I will get fired from my job. I often feel like others don't understand what is wrong with me cause they can look at me and I seem fine. the dizziness is very subtle and it is the deafening ringing I can't handle. it scares me to not know what everyone is saying.

[@eagyinjection]

thank you for this video- hope they find a cure for Meniere's Disease

[@robertpewsey8931]

Diagnosed about 4 years ago and still holding down a 10 nightshift in a very pressured supermarket job. Mostly ok, apart from being deaf and the tinnitus, but when the vertigo attacks start. It's a whole new ball game. Hours of vomiting tge inability to move for fear of more vomiting. And yet still not considered a disability in the UK. Just get on with it, and consider yourself lucky you've git a job.

[@colincoakes3131]

was diagnosed about 27 years ago. Have had numerous attacks over the years. On a daily diuretic, and try and keep a low sodium diet and exercise. My Specialist actually said alcohol was ok, as it tends to open the blood vessels. I do not drink to any sort of excess. The most frustrating thing is when you tell people "no salt please" and they simply ignore or forget. But been fairly stable lately......knock on wood.

[@doreenlorenzo2501]

I've had it for over 40 years.Was diagnosed 12 years ago.Since I have moved to Florida my episodes are worse.I believe the barometric pressure had a lot to do with it.

[@lisabullock7461]

I saw the diet on theMayo clinic diet... Nice video.

[@Gutierrez2929]

I was diagnosed with Ménière’s syndrome I don’t like the word disease. Since then I have had constant Tinnitus, Fullness in the ear, dizzy spell out of nowhere. My migraines are coming full on with vertigo being nauseous. Driving to work but not remembering the drive. I’ve had some pretty bad episodes Of Ménière’s. Loss of memory within the conversation forget what I was saying. If you have any suggestions To help please feel kind and let me know what talk to you I thank you’re much for this post now I feel not alone with this Ménière’s

[@JulStar13]

Abelardo Gutierrez it’s a disease, not a syndrome. There is a difference.

[@rahulrj1993]

Y god y bad things happens to good people we never did anything bad to others but evn tough we suffer like dis, dis video gives some hope may god bless you and pray fr u , plzz make more video like dis

[@donovanweaver2436]

Your story is my story plus I have great anxiety when the dizziness comes upon me, and I'm a delivery driver and it's just yuck

[@yelpyelptruedat.8521]

Thank you

[@DM-fc4ul]

I got this vertigo and tinnitus and poor balance.Also have had gout and arthritis I have drop attacks too associated with vestibular problems.I used to work in a noisy factory environment which damaged my hearing.It saddens me to know young people are suffering too.I have had this condition over 25 years.

[@marymaratty9117]

I have had it for many years and learned to deal with it. I have deafness now and it does disappear somewhat after deafness. I told myself it will pass each time the attack started. it is horrible but not life threatening. There are certain movements now I try to avoid.

[@chadmiller5216]

thanks for the video probably be making me one soon because i had some moments that made me feel embarrassed and judged because people thought i was drunk or on drugs.

[@doreenlorenzo2501]

Me too!

[@lisabullock7461]

First attack was after a Thanksgiving meal. Second attack for three weeks I couldn't get out of bed. I also have diabetes the last few years. So I tell my husband what can I eat? I have ringing in my hear constantly. Yes perfectly said its like having that one drink too many....

[@JJustineBBeanSS]

I had very bad vertigo from the age of about 4 (that i remember) and it happened so frequently that i couldnt stand up and I would panic. when i went through puberty the visual aspect dissipated but the feeling that my brain was swirling around in my skul lingered. i had numerous scans as a child and they said they didnt know what it was. finally at age 26 someone mentioned this disease to me. The man conducting my hearing test was baffled that my lower hearing was disappearing and that i had NO idea that not everyone heard the ringing in a silent room. I wasnt diagnosed because children rarely get diagnosed with this disease and i don't think thats fair. It should be considered. because now at 26 I'm having to worry about how fast my hearing will go instead of taking the precautions years ago to prevent the causes of the loss. :(

[@Peterb5833]

Thank you🙏🏻