“Wanting to be alone but feeling lonely,” is the best summary of my 53 years I’ve ever come across. Also, 19. Bingo.
@billk9856 Жыл бұрын
Ahmen
@robotjack2193 Жыл бұрын
No joke. All the time I'm thinking about how I badly need some friends and how badly I don't want them to call me. I'm a traffic light that's perpetually stuck on yield.
@heatherrhodes1703 Жыл бұрын
I have a quote on my refrigerator that I read every day: "Loneliness is the poverty of self; solitude is the richness of self." -May Sarton I live like a hermit and I love it, but there are times when I'm sitting and feeling restless, like I want to text someone because I'm feeling a bit lonely. But I don't text anyone because I really don't want to. LOL
@brianmeen2158 Жыл бұрын
I generally prefer solitude as socializing is quite draining and most often gives me little reward. Most conversations are small talk and can almost be painful
@Stunbunny Жыл бұрын
@@brianmeen2158 I can relate to that. Few people want to have meaningful discussions about serious and/or specific topics. Plus, my desire to talk is completely binary-either I want to talk a lot or not at all.
@GhostIntoTheFog Жыл бұрын
If I could give a word of advice to any of my fellow autistics who worry about identifying as autistic, it would be not to worry. While there are a lot of hateful martyr parents out there who will tell you you don’t deserve the label “autistic” unless you have a co-occurring intellectual disability or very intensive support needs, they’re full of it and have no understanding of what the autistic spectrum even is. If you fall anywhere on that spectrum, whether you’re formally diagnosed or self-diagnosed, you’re entitled to use the label “autistic,” period.
@ICantEvenImagine Жыл бұрын
Thank you for the validation much appreciated
@NeuroVentureFam Жыл бұрын
Exactly ! It's called a spectrum for a reason! Thanks for these words! I needed to hear them again (and again and again!) ❤
@LightsandVessels Жыл бұрын
Thank you... The imposter syndrome is such a trap... Thanks for this validation
@photovincent Жыл бұрын
thank you so much
@SecondChances06 Жыл бұрын
Thank you so much.
@messnet670611 ай бұрын
"I can't hear you, the lights are too bright" hit home hard for me. There's so many times where I just freeze doing whatever I'm doing because there's too much going on around me and all I can manage to blurt out is "There's too much going on... I can't think"
@ApacheMagic10 ай бұрын
Yes!!
@Izlude718910 ай бұрын
Hahaha. You ever be in the car and have to turn down the radio so you can see better? 😂
@messnet670610 ай бұрын
Every day of my life, my dude@@Izlude7189
@low873910 ай бұрын
This is so me. My employer had to buy fabric covers to put over the overhead lights because I was paralyzed under the fluorescent lights. I couldn’t even talk because it was so bright. Now I have a fabric cover that looks like the night sky with stars. I have ADHD.
@Mary_Thompson10 ай бұрын
Although some are more sensitive to light than others, everyone gets distracted and overwhelmed by too much stimuli. That's not a disability.
@aricurtis13659 ай бұрын
I literally gasped when you said "wishing other people asked good questions, too!" I feel like physical discomfort when people ask bad (imo) questions! It's agonizing lol!
@FruityHachi6 ай бұрын
from my experience, people mostly don't ask any questions, let alone bad ones they just like to talk about themselves and want you to ask *them* questions about themselves when they hint at something I've only had my parents ask bad questions
@earthlingYT6 ай бұрын
I say that I ask hard questions. They usually have to do with being frank or "direct". That's why they are hard for people.
@BPLdenver5 ай бұрын
That hit hard for me. What is even worse is when those questions are actually entertained and answered. It makes me think less of the boss/whoever answers them. Like, Can't you see how obvious it is? Tell that person to read what we were given and STFU!
@braininjurydiy4 ай бұрын
yes or more interesting questions about the world and how it works or about history or philosophy everything.
@adamlarge61873 ай бұрын
Oh man, I'm constantly asking people questions. I get annoyed when others don't but instead just bask in what I'm asking, talking about themselves.
@annagizziatlas627 ай бұрын
Instead of difficulty getting into bed, it’s difficulty getting into the shower for me.
@moonyfruit6 ай бұрын
Both here!
@alexish40426 ай бұрын
But then also, difficulty getting out of the shower once I do actually get in it 😭
@gennstaa13126 ай бұрын
Getting into the shower, back out of the shower and getting OUT of bed all suck for me, but getting into bed is the easiest part of my day 😅
@SylviaRustyFae5 ай бұрын
Yeah, i also use my bed for watchin stuff bcuz im just physically less able than many other folk; so i just need to rest more I stillve a hard time switchin to actually goin to slp tho; even tho i can fall aslp rly fast
@SylviaRustyFae5 ай бұрын
@fleuracle Same, i was even gonna take a bath today and just now realised i spaced on it
@CatwomanMeowz Жыл бұрын
The one that hits me the hardest is the inability to focus around injustice- and the fact that you immediately acknowledge “This isn’t like the way everyone is upset by injustice “. YES! It makes me absolutely bonkers, and then to try to explain it to NTs, I just get “Well life’s not fair”. AAAAAAAAAGGGGGGGHHHHHHHH
@karowolkenschaufler7659 Жыл бұрын
oh yea... sure, life isn't fair. but the moment we don't even notice the unfairness any more... can't be good. even if we can't fix it, at the very least we have to clearly state what is. don't we? otherwise.... how do we have the same reality? and a solid ground of reality to act on? otherwise reality just falls apart... and nothing feels real...
@hazelnuiit Жыл бұрын
Sadly, this was the reason I kept switching majors in college. I get everything has its dark side, but it's so hard to keep working towards something that makes you feel icky about being a part of. I always felt super bad about changing it cause it'd always felt like I should have just sucked it up like everyone else in that major ("oh you're being too sensitive about it, what can you do about it that's life!"). But my anxiety around it was so bad I had to literally change my major just to focus on mental health.
@KidarWolf Жыл бұрын
"Well life isn't fair." My answer from now on will be: it shouldn't be revolutionary to think that it should be, you should not be comfortable with being treated unfairly, you deserve better, and should demand better.
@karowolkenschaufler7659 Жыл бұрын
@@KidarWolf you composed a beautiful mini-speach. the kind of thing that can be put on a toombstone. what pops into my mind immediatly is the "answer": "why not? life is largly impacted by the sociaty we live in. we make the sociaty we live in... so you... grown ups, old people... made it. why didn't you make it fair? and why are you trying to make me belive that it can not be made fair? what's wrong with you?"
@aynDRAWS Жыл бұрын
So true!! At work, I got berated for not taking my lunch on time even though I took it as early as I could. I was working with someone I never had before, so we didn't know each other's schedules and it got messy. I didn't understand what I could have done differently, because the way I saw it, either I took my lunch late or my coworker did, and either way one of us would get in trouble. After getting talked to about it, I wasn't able to focus on my job until I further spoke with the manager about forty minutes later
@cheesebread3 Жыл бұрын
I got all of them! Hesitating to use the word “autistic” really got me. Not only do I do that, but I’m worried that if fully unmask people might think I’m pretending to be autistic 😞
@natalialeisi Жыл бұрын
Omg I currently going through this too. Especially that now summer is approaching, I pass for someone who’s complaining too much about the heat, the light, sweating. I always got the response it’s summer get over it. Now I know why I’m so exhausted on summer days. I really wish I could say : it’s because I’m autistic that I can’t bare all those little things like everyone else, be indulgent and stop judging. But guess what I don’t have enough strength to say it out loud even to my parents. Being paint as overdramatic it’s what is keeping me of using the term.
@beebopbug Жыл бұрын
@@natalialeisi im so sorry to hear you're being treated like this and i unfortunately relate a LOT. ive found that finding neurodivergent friends, or even just friends period who are willing to listen even if you were "complaining" can be very validating in that regard, although i know it's a LOT easier said than done. wishing you the best
@glenrisk5234 Жыл бұрын
Only got 19. I embraced it, the label of Autism being that it made everything make sense. But I kept feeling questioned, as if I didn't truly deserve the consideration?... Having watched this I feel somewhat vindicated.
@katarzynasoyka8538 Жыл бұрын
Oh my gosh, so so true! I feel like not only people will totally shun me for saying that I'm autistic ("but you don't look it"), but if and when I try to unmask they'll think I'm pretending or acting ( "you've been fine until now, so why can't you cope all of a sudden?")
@natalialeisi Жыл бұрын
@@katarzynasoyka8538 that’s why I’m really glad I found the community. It brings comfort to be understood and validated. I thrive to hope it will change for the best around us and that we found some people that can be understanding too. 🫶🏽🍀
@susanhunter9196 Жыл бұрын
I have so much empathy that, I can feel bad about a spoon being alone in the drawer. I'm undiagnosed, but I got 17 on the bingo card. I'm 61 years old and got diagnosed with adhd at 59. It's tough right now being empathic. I have to take mental health breaks because I follow a lot of news and activists. I cannot understand the hate these days. I just subscribed, thank you for talking about, what can be, overwhelming empathy.
@MomontheSpectrum Жыл бұрын
of course. I have a couple more videos on empathy if you're interested. Here's one over empathy and burnout that might be helpful: kzbin.info/www/bejne/iouze5V6n7psqJI
@howcanikeepfromsinging Жыл бұрын
I have also felt sadfor inanimate objects being alone.
@susanhunter9196 Жыл бұрын
@@howcanikeepfromsinging I used to feel ridiculous because of it. Seeing all the hate these days made me grateful for my empathy and sense of justice. I wouldn't want to be any other way.
@alejandro-314 Жыл бұрын
I can feel this type of empathy too! I always thought that I was the only one. Every time I've expressed these feelings, I've been made fun of or people think that I'm joking.
@karens8633 Жыл бұрын
I feel bad moving on to a newer car! My cars feel like R2-D2 to me! How can I send R2-D2 to the junk yard? 😢 😝
@jacobchristensen713 Жыл бұрын
23 for me. Routines aren't sacred for me, I'm actually terrible at keeping them, BUT I get really frustrated at surprise changes to my day. That sounds like I have a routine but the thing is my days aren't the same, but when I have an idea of how my day is going to go and then something changes that at the last minute I don't have a good time. I explained this to my wife and now she is great at making lunch plans with me a couple days in advance instead of calling me and asking if I want to get lunch in a couple hours. The other one I don't have is the caffeine/alcohol/meds one. Caffeine might have a reduced effect on me though.
@samsmusichub9 ай бұрын
Same on the routine part and the coffee part.
@captainadequate39518 ай бұрын
Same on the routines, but I'm pretty sure I'm AuDHD so routines just aren't a thing for me, as much as I desperately wish I could have *some* structure in my life. The other one is sticking to safe foods, I absolutely love food and there's very little I won't eat.
@jacobchristensen7138 ай бұрын
@captainadequate3951 oh now I'm pretty sure I'm AuDHD as well. The ADHD traits don't seem as prominent in my life but going down the diagnostic criteria I think every one of them is present.
@TyWorth7 ай бұрын
Same, down to the coffee part. Though medications historically make me nauseous even when they really shouldn't so I counted it anyway.
@PantsYourPoop6 ай бұрын
Another same, the caffeine, alcohol and medications almost seem to have a reduced effect
@ID-1079 ай бұрын
I was always more of a "I can't think, you're too loud" kind of person 16/25
@AlyVee339 ай бұрын
100%!!!! I can’t talk if it’s too loud in a car and I have to put the volume low just to have a conversation lol
@ID-1078 ай бұрын
@@AlyVee33 Talking? I can't not listen to talking. I was able to sleep when they were literally building a house around me, but whisper in my vicinity and I'm widely awake in an instant
@mandywaynick87258 ай бұрын
Yea me too, light doesn't bother me too much unless in trying to sleep then there has to be absolutely zero light
@notNajimi7 ай бұрын
Meanwhile I’m the loud one lol. It’s hard to control my voice volume okay! 😛
@ashmac47324 ай бұрын
Too loud and/ or too bright. Fluorescent lights often make me dizzy and can give me headaches.. I can also somehow hear them.
@MargauxNeedler Жыл бұрын
People wanna get mad at the socially inept, but they don't wanna pause & ask them what they're thinking or feeling in the bad moments then help them go through each thought & question that keeps getting in the way of functioning peacefully & efficiently.
@malcolmdarke5299 Жыл бұрын
Speaking from personal experience, "research mode" is surprisingly useful for preparing good-quality presentations/articles. The desire to *exhaustively* understand a topic tends to lead down rabbit holes and consume time, but you can then pull out all kinds of cross-links and parallels that can potentially help others understand the topic too. Recently late-diagnosed at 30.
@ApacheMagic10 ай бұрын
You become a pattern recogniser. EG I’m a horsemanship coach, and I can draw parallels to explain why people should do XYZ with their horses from anywhere- defensive driving, dating, dieting, and a bunch of anything that doesn’t start with ‘D’ too 😅
@carolann81110 ай бұрын
I have to do some research in my work but I fall down 🐇 holes all the time. I'm also under fairly strict time restrictions for project completion. I struggle to find a happy medium. Timers are becoming my new best friends ❤
@carolann81110 ай бұрын
In regards to pattern recognition, a coworker calls me the metaphor queen.
@ingerfaber34118 ай бұрын
LOL - my last research meant that my husband had to get a library card as I was only allowed to take out 20 books at a time :D
@b.bailey82447 ай бұрын
i love the research piece - and how it feels ok to love research so much. about anything. Countless rabbit holes gone down, whole days/weeks gone.
@DakshaiRanger Жыл бұрын
It's more "How many did i *not* check off?" I will listen to a song over and over again, but due to being AuDHD, that song on repeat changes to another one after a few days. Even at 39, I look for new music to listen to more than anyone else I know.
@ingerfaber34118 ай бұрын
I listen to a song for a while and then it becomes a part of me and I don't have to listen to it again - Autistic + ADD
@jimmz67 ай бұрын
i change the songs i listen to a lot o
@ajxuknownx70082 ай бұрын
Same. The next time I'll listen that song is in a store, club, someone else's playlist in the car or elevator. And then maybe, just maybe, it'll be like listening to it fir the first time...
@416London9 ай бұрын
Thank you so much for this. In my 55th year things are finally starting to make sense. I thought everyone needed to sit alone in a dark, quiet, cold room for at least one hour during a party.
@adriana271008 ай бұрын
Omg I just did the exact same thing at. Party lol 416 are you from Toronto? I’m originally from there 😋😋
@b.bailey82447 ай бұрын
oh, I get you! Unless people are dancing in a darkened room, I can't cope with most parties.
@adamlarge61873 ай бұрын
Parties are a no no, but if I did go I'd want the dark room.
@excystium11 ай бұрын
My sister works with autistic kids and she has been telling me I must be autistic because I share so many personality traits with them. I'm 39 years old and have never been diagnosed but I check all of those. Thank you for this. It's nice to think I may come by my quirks honestly.
@ariellecabrera842 Жыл бұрын
The: "firm deep pressure (as far as touch)", really stuck out, same with the "I can't hear you, the lights are too bright", is the story of my life.
@tomascalvo8 Жыл бұрын
This is so helpful. I had never heard anyone articulate the feeling of wishing that neurotypical people knew how to ask good questions 😂
@MomontheSpectrum Жыл бұрын
Glad I’m not alone on this 🤪
@JaapZeldenrust Жыл бұрын
I think this is because to most autistic people, questions are a tool to structure and transfer information, while to most allistic people, a big part of asking questions is about the social interaction. They ask questions not because they want to know something, but because they want to show interest, show that they're participating in the process. I've also found that allistic people seem much more willing to accept answers that aren't really answers at all. For allistic people, asking and answering questions seems not to be about exchanging information, but about affirming the relationship between the speakers, often while leaving potential conflict points implicit. Many allistic people are deeply insecure about disagreeing with other people.
@oooosala Жыл бұрын
I always think that. Plus the questions often lack depth.
@karowolkenschaufler7659 Жыл бұрын
I never wondered about questions.. but.. especially as a kid in comparison to other kids... I often felt as if they didn't see. so many brilliant details in this world and they walk past them without noticing. I frequently asked myself "do they not see? how do they not see?" I'm not diagnosed. just seemed to me that this is related.
@piiinkDeluxe Жыл бұрын
@@JaapZeldenrust HOW DID YOU JUST DESCRIBE MY ENTIRE SCHOOL CAREER OMG
@ronnielanser1994 Жыл бұрын
This is me. As I sit in my car in the Walmart parking lot watching this and crying. My fiancee hates that I ask so many questions. I feel that they are totally necessary to move on with whatever is going on. I still don't know why this wasn't seen when I was younger.
@tarajh9 ай бұрын
Unsolicited Advice: If your fiance isn't willing to watch videos like this & do some research to try and understand how your brain works, then they're not good enough for you.
@sinkandrelax9 ай бұрын
Sounds like your fiancee needs to invest some time in research to understand you - hopefully well before the wedding..
@samsmusichub9 ай бұрын
Random example I was always the person asking questions to the teachers and professors about specific details in lectures but always hated it because the fact that no one else was asking any questions made me feel like they already knew the answers and that made me fell dumb. I was always wondering why I was the only one (or one of the few people) asking questions, even if they were simple clarification questions. It's comforting knowing I'm not the one one here.
@a.78114 ай бұрын
@@tarajh flip side i wanted to ask is, if your fiancee 'hates' that you ask so many questions, why would you want to be with that person??
@clearmenser4 ай бұрын
* People pleasing tendencies * Routines are sacred * Trouble getting into bed * Knowing more about others than yourself * Not wanting to be alone but feeling lonely (repeated 5 times) * Listening to the same song over and over * Stomach issues * Sticking to safe foods * Triggered by light touch * Needing extra time to process what someone just said * "I can't hear you" * Making a list then immediately hating it * Research mode * Sitting in your car for longer than you intended to * Headphones make things better * Sensitive to caffeine/alcohol/meds * Feeling what others are feeling * Wanting to be alone but feeling lonely * Needing to know "WHY?" * Not wanting to be called autistic * Wishing other people asked good questions, too * Comfy clothes always * Easily upset by injustice * "Why isn't everyone as blunt as me?" * Planning things perfectly and being unable to execute
@dianehodge72527 ай бұрын
Hi! I was diagnosed about two years ago with being a high masking Autistic w\SAD (Social Anxiety Disorder). I have all of those and then some. I have a problem telling people that I am Autistic because I usually ge the reaction, "Well you don't look Autistic." That sentence really makes me want to find a corner and hide. There are so many things wrong with that sentence for me and I have a hard time processing a rebuttal that I find myself just standing there with a blank look on my face. I also hit about 99 % of everything on your card. But one I would add, is that rhetorical questions confuse the heck out of me. I am not sure whether they really want me to answer the question or not. Thank you for your channel and it's content. It has been very helpful on my journey through understanding myself.
@davidhepworthmusic Жыл бұрын
I scored 22. I got diagnosed autistic at age 29. I suspected for a few years before that. I was hesitant to refer to myself as autistic for fear of being wrong and misrepresenting myself at the expense of "truly" autistic people. Glad I know better now. Research mode brought me to this video lol. Thanks for sharing
@stratfender89 Жыл бұрын
Hello, what did you do to get diagnosed as an adult?
@knrdvmmlbkkn Жыл бұрын
@@stratfender89"what did you do to get diagnosed as an adult?" Essentially nothing, in my case.
@nuynobi9 ай бұрын
@@knrdvmmlbkkn You mean you went to a doctor for some unrelated thing and they were like, "whoa, you're autistic AF. Let's do something about that." ???
@TheCatsMeow7719 ай бұрын
@@stratfender89speak to a psychologist/psychiatrist about it! 😊
@ingerfaber34118 ай бұрын
@@stratfender89In Australia you get diagnosed by a psychologist or a psychiatrist, but it can be a long process and expensive too - sometimes you can get help from Medicare
@O-Demi Жыл бұрын
I remember that I saw a 'bingo card' on Insta on autism and it finally clicked that I don't just have ADHD, I'm autistic+ADHD, and the phrase of the card that made me realize this was something along the lines of "at school being kinda bullied but also being friends with everyone"
@AlexisTwoLastNames10 ай бұрын
man this comment made me realize maybe i was covertly bullied by some people and just never noticed cuz i was such a happy kid and teen. kind of oblivious to negative things, if i am remembering correctly.
@toastyskyshroom7 ай бұрын
I’m autistic and I work in architecture. If you’d like to know about what’s behind walls and how houses are built I’d love to talk about it for way too long lol
@madeforyoufresh6 ай бұрын
I work in the home inspection field and I thought about offering to explain it, too. Haha!
@mansquatch22606 ай бұрын
My mom was an architect, it's a good career to build. Very structured.
@toastyskyshroom5 ай бұрын
@@mansquatch2260 in some ways 😅
@metalfenix2 ай бұрын
It's a beautiful career, I even considered it, but I went for software engineering. Now I understand more my absolute urge that no one should modify or touch any line of code I write. Even if the most inefficient way, unless it's bad coded and it's giving crashes, I'm NOT changing it. My weird way of programming now starts to make sense. 20 years later.
@ajxuknownx70082 ай бұрын
Oh my days!!! I'm looking into it too!! I've been wanting to do it forever but things have been changing and it's stressing me out. I don't know if I'll ever be able to study it anymore...In fact I dont even know what my future looks like anymore.
@ingerfaber34118 ай бұрын
When my boys were little I used to say (I didn't know I was autistic) "If you ask me now I will say no". That gave me time to actually listen when I was in a better mental space I also say to my support workers "I don't read body language well, so if I ask for something you are not comfortable doing just say no - that will make my life so much easier when I don't have to second guess myself"
@madeforyoufresh6 ай бұрын
I told my kids the same thing. "I need to think about it" means exactly that. If they pushed for an answer, the answer was no.
@andrejmjansen267110 ай бұрын
I often am the only person in the room to stick my fingers in my ears with loud music, trains, ambulances, etc.
@sonoftorin Жыл бұрын
Sometimes I take weeks or even months to process things that are said to me. I’ve always said that’s what made me good at de-escalating angry patients in the ER and the psych unit. Angry people will try to insult staff and I just don’t get when it’s happening lol.
@Laura-gb1jv Жыл бұрын
I think this is why I get along with my narcissist coworker the best of all our staff -- when she's being passive-agressively insulting, I usually don't notice, much less react. 😹
@joob40 Жыл бұрын
A logical person won't get angry because they know the person is unwell and it's not a personal offense. And ASD people should be highly logical. But that's one reason why I often think this is being overdiagnosed. It seems to me (not a professional) that someone reacting emotionally to a offended insult like that is probably traumatized/attachment disordered, not ASD. And the overlap between the two is huge.
@bonnecherie Жыл бұрын
Oh gosh, this is me with customers at work! I've always just stood there and let them vent over whatever is bugging them while I'm doing whatever I need to (I'm a pharmacy tech now, but the many times over the years I've had people just chew me out is ridiculous!). Either that, or I have NO CLUE that they're even insulting me and someone will have to come and tell me "Hey, you don't have to take that." One of my old bosses absolutely refused to let people treat me like that, and couldn't understand why I just didn't seem to care. Then again, back then, *I* had no clue that I was even doing that and just assumed it was a skill I'd developed.
@jimb9063 Жыл бұрын
@@Laura-gb1jv This made me laugh. I usually agree with the sentiment with a slow sage nod when somebody is deliberatley insulting to me.
@jameshay12856 ай бұрын
I'm the opposite sadly, I recognise passive aggression and then get angry at the person and blow things out of proportion. I'm sensitive in general and have gotten fired/walked out of jobs because of this.
@lwaggoner7293 Жыл бұрын
The way I use IMDB while watching a movie because I need to know the actors and extras about said movie. It drives my husband nuts. I am not diagnosed but I am either autistic with adhd or adhd with autistic tendencies but not actually autistic. Even without the diagnosis, knowing this about myself has been extremely helpful for me to accept myself.
@MorganBondelid Жыл бұрын
because absolutely everything is connected ! How can someone not want to know about the connections?
@wisecoconut5 Жыл бұрын
I do this too! I just spent Rocky 1-4 researching every actor that interested me. Did you know Sylvester Stalones second son, Seargeoh, was diagnosed with Autisim at the age of 3? Stalone and his wife established a research fund for Autisim administered by the National Society for Children and Adults with Autisim. 😊
@rrrrrfffff Жыл бұрын
I do this! I focus really hard on an actor in a movie/show when I know I recognize them until I remember what else I've seen them in. Kind of a game I play with myself. But once I remember, I'll tell my partner who usually doesn't believe it's so & so from that movie 15 years ago, then I'll look it up, and I'm almost always right. It's so silly but gives me immeasurable satisfaction
@Mary_Thompson Жыл бұрын
@@rrrrrfffff Yes, that is normal. Looking up actors on IMDB doesn't indicate autism.
@Mary_Thompson Жыл бұрын
@@wisecoconut5 It is perfectly normal to research actors in movies on the IMDB. That's not an indication of autism. You may have a different personality type than your friends, who don't do that. Maybe something is wrong with them.
@tayto5956 Жыл бұрын
I can't afford to pursue a diagnosis right now so I've been on a research journey for a couple of years now, and this is the first I've ever heard someone mention the transition thing and I really relate. I always thought it was just being unmotivated due to depression and anxiety but maybe there is more to it.
@MomontheSpectrum Жыл бұрын
Yes, learning about difficulty with transitions has really made a big difference for me!
@tayto5956 Жыл бұрын
@Mom on the Spectrum I'm so thankful for channels like yours because it has helped me so much with better understanding neurodivergence and therefore myself. So much of what I have learned from seeing others actually talk about their experiences is not mentioned in self tests or I guess what you would call "clinical" information that is provided. Or a lot of it actually contradicts the "symptoms" listed. Thank you for videos like this, it's so helpful. :)
@emmae3690 Жыл бұрын
@@tayto5956 also look up the term "autistic inertia"! I just found out about it and it makes a lot of sense
@marthamurphy7940 Жыл бұрын
I have the transition thing a lot. One of the times when I tend to snack on things I shouldn't is when it's time to change activities -- when I've finished my household chores and have a chance to work on a hobby, for example. I used to do it when I got home from work in the afternoon. And I love dozing off in my chair instead of going to bed at a proper bedtime.
@joanquillian7479 Жыл бұрын
This resonated with me. Just getting up and going to bed. Such a simple thing that can make the next day so miserable. So, wondering how I can fix this.
@spotterofgold11 ай бұрын
All 25. The good news? I won! I won! I've won by finding a great community to feel a part of. Thanks, Taylor!
@zerometh43975 ай бұрын
24 wow. I was diagnosed last year, and it has been a mind-blowing experience. Knowing i am not broken, just different
@TrineDaely Жыл бұрын
"I can't hear you the lights are too bright." IYKYK. And damn I feel called out.
@MomontheSpectrum Жыл бұрын
haha glad i'm not alone in this
@elenamayson-davis9993 Жыл бұрын
You are not alone in the ability to feel others feelings and intensely. I am relieved that this recurrent ability has another source other than being "codependent." I have been beating myself up for this one for decades.
@MomontheSpectrum Жыл бұрын
here's to learning how to give ourselves more grace as we learn to navigate whatever the name for it is 🥂
@elenamayson-davis9993 Жыл бұрын
@@MomontheSpectrum Absolutely
@glenrisk5234 Жыл бұрын
There have been times that I have watched on in a detached way as I was being cheated. Knowing full well what was going on but being so overwhelmed by the anguish, desperation and pain that I could sense from my abuser that I couldn't bring myself to object. Obviously I know that's dangerous and it's one aspect of myself that I desperately try to moderate. I am usually successful enough that I can live with it without feeling as though I am betraying myself in either direction. I have to be a little harder than I like but my life is a little humbler than I'm comfortable with so it balances roughly.
@SharonMick Жыл бұрын
Wow. I'm diagnosed ADHD, and suspect ASD. Checked everything but the bluntness box, although I used to be blunt. While I appreciate directness, I can be overly sensitive to what feels like criticism. My keen sense of justice and high empathy 😄 has caused me to dial back my bluntness over the years. On the plus side, when someone genuinely wants clear, direct feedback I'm good at providing it without being harsh. And boy, the song thing (and movies, in my case)--I'm having a really hard time not listing every fixation from the time I was 10. 😁
@kiwicatnip Жыл бұрын
That’s excellent. That is a skill, direct feedback without harshness. Seems like you are managing things well.😁
@heedmydemands Жыл бұрын
Aw u can indulge. All ears
@laurenalexis930 Жыл бұрын
Also diagnosed ADHD and suspect ASD. I got 21/25 of these. I try and think of myself as direct rather than blunt. I've learned to say things a bit more tactfully, but a lot of people don't get my honesty or assume I mean something I don't.
@dragonscross76808 ай бұрын
I'm literally crying at work while listening. I am starting to learn about autism. I started for my sister (nonbio) but then realized I might be too. And this is all the things I can't explain to people. Thank you!😊
@DanieWilliamsRivera7 ай бұрын
I turn the music down when I need to look both ways while driving. Some songs (that are my current repeat song) drive me to tears because I feel the music so intensely. When I was a teen, my obsession song was American Pie. I used to call radio stations and BEG them to play the long version (it's 14 minutes long) and my dad eventually just bought me the CD. I remember sitting in the kitchen for an entire day listening to the same song on loop. But the one that really got me was the empathy one. I have had full-on panic attacks in theaters because I was feeling what the people in the movies were feeling so intensely I couldn't control myself. I now have a list of rules for the type of movies I can and cannot watch and how the people I'm with need to react when I have to step out or cover my face/head during the movie.
@kunibob2 Жыл бұрын
24/25 😂 Diagnosed AuDHD 8 days ago in my 40s. I didn't mark off safe foods because I flip constantly between craving novelty and craving the familiar (AuDHD tug-of-war.) Otherwise, the rest is bang-on!
@MomontheSpectrum Жыл бұрын
yes good point about the AuDHD tug of war with food! I can switch into this mode, too.
@jinxcrafter Жыл бұрын
Same! (20 or 21/25) Last time I was traveling by plane and wanted to get something to eat at the airport before figuring out the light rail system to my hotel, and struggled SO much figuring out which restaurant to order from. I literally wandered back & forth between 2 areas for... 45 minutes? An hour and a half? Maybe longer? I kept rejecting the Subways and other familiar places on the grounds that I had access to those all the time in my hometown, wanting to experience something new as the lack of variety in my 56k population city has always bummed me out. But at the same time I was extremely stressed out over the trip getting there itself (also how I almost missed my taxi to the airport b/c I couldn't find my proof of vaccination for the event I was going to, and didn't even find it until the day AFTER arriving/the day of event a few hours before it started) so I was craving a safe food SO bad, and my inability to just make a decision only made things worse. (I eventually settled on a local chain specializing in fish&chips, so familiar comfort food but still new experience)
@taraking6472 Жыл бұрын
Still not officially diagnosed but I got 23/25. I did choose safe foods because I get stuck in food ruts and eat the same things. I’m not like my son who has eaten chicken nuggets every day for months now, but I got really upset when I’m found out they stopped selling wraps in the school cafeteria where I worked last year. That really messed up my lunch routine. Sounds silly but I hate not having what I want. It was my safe food. Now it’s salads. If I cannot get a salad I just don’t eat out and wait til I can get home. I will eat other foods, but I only eat salads at restaurants. I was at a restaurant recently with my husband and son and thought about getting fish tacos but when the server came to take the order, guess what I ordered. Yes. I’ll have the house salad please.
@ebossnz6838 Жыл бұрын
22 / 25 here and I'm not autistic at all. Figures the list isn't correct representation
@brennaweaver3974 Жыл бұрын
Safe foods for me rotate on an erratic and unpredictable calendar.
@ashleykinder8877 Жыл бұрын
I'm a woman who just turned 37 and have also just discovered that I'm autistic. It's been...a rollercoaster ride for sure. Unbelievably validating and traumatic at the same time. It's like I'm reading/watching my autobiography. And of course I've been devouring all the info I can on it, lol, that's my jam!
@swimcalgal9 ай бұрын
I’m 58 and you’re so not alone
@wisico6409 ай бұрын
I'm 27 and had straight A until higher education. I was looking into ADHD diagnostic with how much I struggled all my life but no one put the finger on it since I was good in school & good at masking until then. I had issue with communication but avoided it as much as a I could yet still ended up burned out from working and dealing with clients... I don't have an official diagnosis & I haven't even asked my parents for paterns or other things of my yought I don't remember, but research mode is just connecting dots from my past + when I talked about it to my partner of 5+ years and at least one close friend who just found out they were autistic at the same age & both said it wasn't even a question to them 😅 / they tought I knew I don't know where this will lead me, but it sure does feel like a bit of weight off my shoulder. Geting a diagnostic might get be back in school to learn other thing the "normal way" 😊
@Voadica Жыл бұрын
I sighed. I'm 46 and I've been reading and following many people for over a year now. I got 100. The ADHD is in the bag. I was late diagnosed there... It wasn't until a friend was diagnosed that I even wondered what it might look like. And here I am. 😂. 🙏
@julierosie62 Жыл бұрын
I’m the other way round, I never thought I might be ADD as I’m not ‘hyper’ but I’m learning that maybe I am 😬
@Dancestar1981 Жыл бұрын
I have both ASD and ADHD late diagnosed for both 23 for ASD and 40 for ADHD because I am a woman
@countessk Жыл бұрын
@@julierosie62 Absolute truth! It wasn't until after I was diagnosed with both types of ADHD and learned up that I realized I had all the behaviors. I had no idea all that was ADHD. I was like "that's not normal? Not everyone does this?" and it was rather eye-opening.
@Sookieball11 ай бұрын
This just made me cry and just about checked everything off. I'll be talking a little more about it to my therapist.
@joshswenson83909 ай бұрын
"Research Mode" needs to be a t-shirt. What about making a music playlist and not being able to stop? I'm stuck on my phone for hours once I start (self-diagnosed ASD/ADHD).
@MomontheSpectrum9 ай бұрын
ooooh yes I totally relate to this!
@kingseyes3717 Жыл бұрын
Taylor,THANK YOU! I’m 65 discovered I was on the spectrum a couple years ago. I relate to so very many of these. Particularly paradoxical reactions to meds. Benadryl makes me hyper and it will NEVER help me sleep! RESEARCH- my favorite thing to do. Why don’t others want to know “why”? 😉. Comfort over style always. Rarely will join a last minute offer .. have to think about it for a day or so. Was just thinking about the honesty/bluntness thing.. my therapist says I’m “unusually honest”. So I guess most of the world lies all the time making excuses for not doing things..🤷🏻♀️I’m empathetically attached to my daughter who lives across the country. She went through some challenging months and I was a mess the whole time. And yes, I’ll make plans to do something and cancel at the last moment.. thanks for posting this video. Nice to find a group I belong with! and high fives to all the rest in this group trying to navigate this strange world! ❤
@6801881 Жыл бұрын
I got 20/25 on the bingo card, so many things that resonate with me. I've been diagnosed about 5 years ago. These past 5 years were NOT easy, but now that I understand and accept my needs, I'm a lot happier in life. I'm so grateful for KZbinrs like you for sharing the autistic experience, it made me feel less alone, and I got a lot of helpful tips, tricks, and insights in how to deal with my autism.
@aumgillett8475 Жыл бұрын
I think I relate to all of this (a couple of these weren't all of the time, but most of them were). & I am also super empathetic. I hadn't realized that getting stuck in the car, or trying to leave places, was a transition issue until you said it, & I was just like "OhMyGod That's why I do that!" (My new doctor just said they'd give me a referral for ASD testing)
@heedmydemands Жыл бұрын
Wow that's awesome, good for u
@sourcehealing82 Жыл бұрын
I’m literally crying watching this. Im almost certain that this is me. I’ve been researching it for a few weeks now and it all makes sense.
@annagizziatlas627 ай бұрын
Even since my nephew was born I’m even more motivated to get myself diagnosed bc I’m sure he’s also autistic and I know it will be easier for him to find an accurate diagnosis if his family are also accurately diagnosed.
@davidb6477 Жыл бұрын
I'm officially diagnosed but I've told almost no one. The two friends that I've told have pushed back saying that the diagnosis must be wrong because I'm empathic and have learned to make reasonable eye contact. I hate feeling defensive and second- guessing my own experience. Thank you for shedding a little light on aspects of different parts of our experiences. My current listen-on-repeat song is Sara Bareilles' cover of Goodbye Yellow Brick Road.
@jenniferjenkins1979 Жыл бұрын
I just asked Alexa to play that song. It makes me want to cry. It’s very pretty. I never knew Sara did a cover of it. I love Elton John’s version so I knew I’d like this no matter what. Wanted you to know
@davidb6477 Жыл бұрын
@@jenniferjenkins1979 Thanks for listening! I’m glad you enjoyed it, too.
@jdredman10 ай бұрын
Using "research mode" to find that song... 😅
@Reality.juiced10 ай бұрын
❤ me some Sara
@swimcalgal9 ай бұрын
I listen to the same song hundreds of times; I also watch the same shows over and over. It’s extremely comforting to me. Sometimes when I workout I will listen to the same song the entire time
@sueannevangalen5186 Жыл бұрын
What song do I listen to over and over and over? Hm... That depends on the day. I have a distinct bias towards songs that were popular when I was a kid, in the fabulous 1980's. My kids and I were just listening to "99 Luftballoons" by Nena repeatedly the other day. Singing in German is one freaking awesome stim!
@MomontheSpectrum Жыл бұрын
99 Luftballoons is a great one! 🎈
@BinkyTheElf15 ай бұрын
Love that one. Plus Take On Me, by a-ha.
@swedishmirage1728 Жыл бұрын
You're not alone! My affective empathy his too high. I get so overwhelmed by other people's affect all the time. It's a big part of my needing so much alone time to process it all 😭 Love the Bingo game idea ❤
@MarieWittmann-d7x Жыл бұрын
Yes! Same! And when I tell people I'm exhausted by others' energy, all my friends think I'm coocoo!
@becci8099 Жыл бұрын
I finally realised big groups are not good for me. More than 4 people (including myself is overwhelming). If I can’t avoid the larger group, I try to find a spot I can take in everyone’s reaction. Since following this, I’ve had way fewer instances of being overwhelmed in social situations (funnily I am pretty out going though it’s draining). Sometimes I just go to the restroom or get drinks for everyone to allow my system a few quite minutes.
@philpott198011 ай бұрын
I'm neurodivergent. I have been through the process in the UK and according to the phycologist I am a point off being autistic and a point off being ADHD. I am very much both, but have spent so many years masking I don't know where I end and the masking starts. I scored quite high on your bingo card lol
@ES1177722 күн бұрын
Sounds like a bad psychologist issue. Find another
@YishEyeYo6 ай бұрын
I listen to the same song for weeks... sometimes months ..but it changes depending on what I am going through or what I need...p.s.I checked off everything except light touch...I ...I need to know you for a while before I even feel comfortable shaking hands...but I was cracking up during most of your video because I get it...I love being Autistic...I was diagnosed at age 49 changed my life...Having the tools and services really helps to navigate this world that is often cruel and unjust... being diagnosed helped me to finally understand why I have had so much difficulty living a "normal" life...Thanks for sharing this bingo
@antonia4722 Жыл бұрын
I checked off all of them! I'm just discovering (8 months) that I am AuADHD and I'm 63! I'm actually pleased to be neurodivergent. It explains so much of my life and the issues that I have had throughout. I just wish I had discovered this many many years ago. I'm now so very proud to be AuADHD. Its my super power and my nemesis! Who want to be the same as everyone else?
@carolann81110 ай бұрын
23. This is the post I would have written so I'll just say ditto.
@The1Inquisitive-Owl10 ай бұрын
Absolutely same as you, but I'm 50, and i checked 25 too! I'm chuffed to finally be getting to know the real 'me' and thrilled I'm not alone!💚
@Mary_Thompson10 ай бұрын
Having a mental disability is not a super power. It means that something is wrong with you. You can be a unique individual without pretending to have a disability.
@Mary_Thompson10 ай бұрын
@@carolann811 Don't follow foolish people. She's trying to be unique by claiming to have a disability. You can be unique without that.
@swimcalgal9 ай бұрын
Oh my gosh, I’m a 58 year old woman who was recently diagnosed with ADHD. I have long wondered if I am on the spectrum and after all of my deep dives and listening to others, I believe I am autistic. For so long autism was a critical, bad word- it was that one kid in class who was “special” who spent a lot of time in the nurses office. Such stigma. I still get told on occasion, by other adults, that I’m weird, have weird interests, don’t understand certain people’s sense of humor, etc. it’s refreshing to find this KZbin channel. Thank you
@KirinaBlue Жыл бұрын
There is never NOT a song running in my head- its like some song takes the place of an inner monologue for me 🎵🎶 I wonder if this qualifies as a kind of mental stim? 🤔 Research mode: activated!
@CrystallineSoll Жыл бұрын
Yeah, got it as well and my son too :D ... he is diagnosed, I am not yet, but for 95% autistic as well :) ... For this reason, that we have always some song/track/sounds in our heads, we hate when someone puts on radio on the car for example :D ... Ouch... I think it is a type of stimming as well yeah :) ❤
@howcanikeepfromsinging Жыл бұрын
Me too. Sometimes I go to sleep with a song, and wake up to pee with a different song, and wake up in the morning with a 3rd song. Sometimes it's just the same one. Mental stimming makes sense, especially for us late diagnosed bc it's more socially acceptable than singing or having musick on all the time...although I have always done those a lot too.
@arkalonalan6 ай бұрын
Always a song, or a rhythm. Nonstop. Usually rhythm.
@AngeGunn Жыл бұрын
That last box hit so hard. I planned a big surprise for my mom’s 70th, wasn’t able to rely on anyone else to help. And while everyone thought it went well, it cause me a full on meltdown for basically the whole weekend and ruined my experience because I got so stuck on the plan that I couldn’t cope when things went wrong or we had to pivot. 😢 very helpful Bingo! I feel very seen. Thank you!
@maryjanelook4795 Жыл бұрын
I totally understand the part about being seen. And I understand about planning a party like you mentioned. I have twin boys and planned a great party for their 18th birthday. I had a lot of great ideas, but invitations were not well done. I know that sounds stupid, but I really didn’t know who to invite. Probably my people pleasing issue was part of that. In the end, it was the most dismal get together ever. We laugh about it, but it still stings inside my heart.
@almostideal13069 ай бұрын
To be honest Research Mode is a lot of "Am I Autistic? Signs of autism? Difference between Autism and ADHD? etc."
@HM-hf7lw7 ай бұрын
Literally September. I used to hate the song because it’s was remixed. But in a very profound day in my life, it came back in childhood. Are you me? I relate to your points immensely.
@DrJennyPhD Жыл бұрын
22. 😮 I actually cried lol. Feeling not so lonely, thank you for this ❤
@MomontheSpectrum Жыл бұрын
you're so welcome! and you're definitely not alone. there is an incredible community here who will listen to you and validate your experiences. I hope you find yourself at home here!
@caseyrobinson0323 Жыл бұрын
As usual: full bingo card for me. Though one square was a "Yes, but for me it's like..." This made me think of a few other traits that I wonder if others relate to...or maybe they're just me. -my handwriting can change vastly even in the same sentence. -I often downplay my struggles assuming that it's something everyone experiences but they're better at dealing with it (and I just don't know that it's a ND trait/struggle because I can only be inside my own brain). -in verbal communication I often find myself saying the parenthetical information/details before I even say the subject/ real meat of the sentence. Example "I know this isn't really relevant until next year and we already have several of them, although my mom wanted to borrow some and I'd like to replace the worn ones before fall, but..." So no one knows I'm talking about lawn chairs until all the background info is laid out.
@marilynminer677 Жыл бұрын
Over the years I've trained myself to "announce" the subject first - ei "Lawn chairs" - then proceed. This can be expanded, later, into something like "I've been thinking about the lawn chairs." Especially helpful when it happens in a work setting.
@biancam.3828 Жыл бұрын
Keeping track: People pleasing. 1. Yes, always really nice and trying to keep good flow in conversations, and then when the conversations end I realize my entire body is tense and I’m panicking. Like im tired from doing a performance. 2. Routines are sacred. Yes, I like to make sure everything is clean, every Friday I do a pre weekend reset and make sure everything is clean before the weekend so nothing gets in my way or overwhelms me on the weekends. In the mornings before I go anywhere I have to do my morning routine and wear similar clothes each day to stay calm and comfortable, if my clothes aren’t right I won’t go. There is a lot of small parts in my routine that I feel compelled to do before I leave the door. But I also get very distracted trying to fully complete my routine at the same time. 3. Trouble getting into bed. YES YES. I used to think I was a night owl but I realize my brain just doesn’t turn off unless I genuinely allow it to. My partner can fall asleep anywhere but I toss and turn and can’t get comfortable and can’t stop thinking. I also need to do a big clean up as a wind down- to tire myself out before bed. Most the time I can’t sleep and end up playing Pokémon go on my phone until I get more mentally tired. I also worry about the time I have left to sleep, when I’m trying to fall asleep my inner monologue is like “okay, 6 hours of sleep, focus go to bed, you need ti be up early” and so on until I stop talking to myself and fall asleep. 4. Secret stems: Nail biting, nail skin chewing, hair pulling, scratching, rubbing my hands on my pants, spinning coins in tables, going on my phone to Pokémon go when I’m anxious. 5. Knowing more about others than ourselves. Yes I find myself obsessively wondering about others personalities and issues. When I walk into a room full of people I feel like I can see who people really are deep down, beneath their clothes and aesthetics. And I’m always talking about others like “they’re really nice, did you know they…” and so on, trying to get other people’s opinions to try and clarify my thoughts about them. I had emotionally abusive parents and I think I always try to understand people really well to see if I can trust them. But most the time I ignore everyone until they talk to me, I just listen to what their saying all the time. Listening to the same song over and over: YES YES, I always get obsessed with one song at a time, and anytime I go into my car or put my headphones on I start with the same song over and over until I get into a new song. Right now is my love is mine all mine by mitsiki. Tummy problems. Yes but I have bad diet, and I drink alcohol and eat a lot of dairy so it kind of makes sense, Safe foods: Yes, I always order the same things at restaurants and eat the same things at home and the same drinks. If something isn’t made the way I like it, I won’t try it or eat it. There was a lot of nights my parents tried to force me to eat things I hated and made me sit at the table until I did with things like burgers with onions in them and I would pick all the onions out of the burger and barely touch the meat and sit there for hours until they let me go. I’m still the type of person to always get chicken fingers and fries or Mac and cheese or grilled cheese. A lot of times if my favourite foods aren’t cooked the way I like I get very upset, especially if I mess it up some how. Triggered by light touch: Yes, I hate it Delayed touch: Omg yessss, I need to leave to process and then respond. My boyfriend will apologize to me and I’ll just slowly walk away with a thinking look in my face. He always try’s to rush me out of this state and ask things like “do you forgive me? Are we good, hello???” And I become irritated because I’m like “yesssss yessss I’m just thinking” and then it upsets him more because it’s taking me so long or something, or he wants better instant gratification. Making a list and hating it: Kind of, I only make lists when I know I need to remember stuff at the grocery store. The only feeling I hate about it is that I like to organize lists in order of how I’d walk in the store and if I don’t make it that way then I get anxious about it. Research mode: Yes, ima Keats looking stuff up and researching and googling when I wanna know something randomly. Sitting in your car for longer: Yes and no, depending on how late I am because I’m always late. I’ll actually sit in my car for longer when I’m late and when I’m not late I get out right away, it’s weird. Headphones: Yes, I recently just lost one of my AirPods and I’ve been having a really hard time at school. I feel overwhelmed and having Lofi music or music from my favourite games makes me feel very calm and lately I’ve been not happy at school. Sensitive to alcohol and caffeine and drugs: No not really Feeling what others are feeling: Very much so, I feel like I communicate telepathically, I cry and feel very deeply when given the right story. Needing to know why: Yes, I’m always asking why. Wishing others ask good questions: Yes, I like the energy I give people and I feel excited about certain things and I feel excited to know their opinions on things and when they never ask me interesting stuff about myself I feel like they don’t think of me or they don’t care about me. Comfy clothes always: YES, I genuinely cannot fucking stand uncomfortable clothes. I will not go to important things if I don’t wear something that is comfortable and looks good. Easily upset by injustice: Yes, when watching tv or watching a video or whatever, if someone or an animal is getting treated unfairly I put a lot of energy and emotion into the topic, the other day I went on for twenty minutes about how Ronnie from on undercover boss was wrongfully fired and why and how upset that makes me. No one is blunt: Yes I feel weird for my bluntness and like other people will find me rude Planning things perfectly: Yes, I like to vocalize my plans and make sure I know what’s going on before I go
@MomontheSpectrum Жыл бұрын
Thanks for sharing your experiences here! I'm sure this will be helpful to others in the community who see what you've written up here. :)
@savannah-bellelakewoood92617 ай бұрын
I’ve only just been diagnosed and this video made me cry. I have never felt so seen, and I have a sense of relief now knowing why my brain works a little bit differently.
@quirkyt_T10 ай бұрын
I'm just discovering that I may be Autistic at age 48 and the flashbacks of my childhood and school counselors and things people said to me that I didn't get at the time is flooding me right now. I hit all but maybe 2 of your bingo points. The research mode especially. I'm always down the rabbit hole researching. This was video was very helpful.
@jrm78 Жыл бұрын
There were several items on the bingo card that made me laugh because it describes my feelings perfectly. Easily upset by injustice did get an audible guffaw out of me because I feel it so much and your point about how it makes the world much more stressful at this point in history is spot on. Light touch is definitely a trigger for me, but not in an upsetting way, but in a "just got struck by lightning" kind of way. I jump when touched unexpectedly. Finally to answer your question about what song I've put on repeat for long periods: Dr. Worm by They Might Be Giants. It's such a great bop; I highly recommend it.
@briannareganlewis Жыл бұрын
I bingo-ed too many times lol. The gastro issues are soooo real. I got diagnosed with Crohn's right before autism. Also, the "being clear is being kind" idea is something that I feel strongly. I'd rather be blunt and have everyone on the same page than have someone confused because I made something too floral-y.
@MomontheSpectrum Жыл бұрын
Absolutely! 💯
@juliarose18 Жыл бұрын
Halfway through, and have checked off every single one so far. I am 33 years old and have not yet received a formal diagnosis (I am diagnosed ADHD), but am one million percent sure I am HFA. You're videos have validated so much of my life and current everyday experience. Thank you
@Talk2JenniferToday3 ай бұрын
Was just diagnosed last week. I'm 38yrs old. Legit 95% of the things you said are 100% me. Wow. Thank you for this
@hayleigh73547 ай бұрын
about routines for AuDHD people: I’m autistic and pretty sure I have ADHD, the way I combat the whole routine thing is by devising weekly routines, so I have that routine but also have some variety each week. This just helps keep it a little less boring for me!
@liai2375 Жыл бұрын
Long suspected I'm on the spectrum, I strongly relate to so many of these and some of them I didn't realise were common in people on the spectrum e.g the light touch, the absorbing feelings and especially needing time to process speech. I get so frustrated when people ask me questions and then assume I don't know/am just not answering because it takes me a while to comprehend what's been said and formulate a coherent response.
@lynxlynx6685 Жыл бұрын
Suspecting here also. Have you ever had a tendency to say no to every question. Just to say something in the "acceptable" time window given when a question is put directly to you? No being the pre programmed answer, not the right answer in retro aspect.
@zinzimashibini2949 Жыл бұрын
18/25. I often have songs repeating in my head, even if I'm not listening to a device. I take on other people's emotions a lot too.
@billk9856 Жыл бұрын
I always have a song going in my head, always ...every waking moment, no headphones just in the background of my life.
@Mattshuckphoto11 ай бұрын
I just recently started to suspect I'm an undiagnosed adult and keep coming back to learn more about autism after I go to weddings. I've always had trouble with crowded, loud environments, but for the most part it's never been too hard to avoid those situations. But weddings are a much larger social obligation than something like friends wanting you to meet them at a bar. And every time I'm at a wedding I'm just entirely overwhelmed. For me it's the noise, I just can't process it all. It's like I can't hear, because I'm hearing everything. I think it's also hard for me to isolate the voices of people who are talking to me with so much background noise, and even when I do I can't quite comprehend what is being said. I just get bits and pieces but can't always put it all together. For me it's one of the most isolating environments. Even though I'm surrounded by people I can't communicated with anyone.
@samsmusichub9 ай бұрын
Relatable.
@TigerParker5 ай бұрын
I did not tick on 2 boxes, which are “sensitive to caffeine” and “triggered by light touch”. My go-to song when I’m in a good mood is Hotel California. I could play it again, again, and again.
@aershipinteractive70255 ай бұрын
That’s wild. Also autistic and my go-to is Hotel California.
@trisharnott78469 ай бұрын
Loved the video especially the bit about the ear buds. I'm undiagnosed but recently discovered how much calmer ear plugs make me feel, like in noisy shopping malls. I took my ear plugs to a social function recently and stuck them in after about 40 minutes. It was a noisy room but with ear plugs I could have a conversation without shouting or being shouted at. I enoucouraged others to put their fingers in their ears so they understood the benefits. Might have converted a couple at least. Keep up the good work.
@TheDivergentDrummer Жыл бұрын
Current song that tops the list multiple times a day is Save Me by Danielle Nicole band. I am super musical, so for me it isn't so much a song, but more a person. I apparently have a preference for female voices. I'll spend weeks, months, years stuck on certain artists. Thanks for the A+ content Tay!
@eleesab4883 Жыл бұрын
I love this, thank you for the time and energy you put into this. I’m AuDHD and appreciate you took time to recognize routines can maddening! I didn’t know so many other people are not thrilled with light touch. I got all of these other than the sensitive to caffeine/alcohol/medication, because I don’t even know what my normal response to those is anymore. Thank you for caring, too, about littles needing to know “why”, little me just felt so seen!
@chinatosinthiti3076 Жыл бұрын
Hi Taylor, thank you for the hard work and for putting yourself out here for autistic people and those close to them. I'm from Thailand, 35 and informally diagnosed about a year ago. From few months ago I've watched a bunch of youtube autism-related videos and life has been intensely unpacking, I have so much to say but don't want to dump it all on here so I'll just start with the bingo topic. I scored a lot less that I thought, 12 points but the most intense were delayed processing, following through my own plans, and very confused about emotions. sometimes I just feel things really intense that I froze or just not sure whether I'm feeling something or not. Anyway keep up the good work, will stop by on other videos.
@debvandusen362318 күн бұрын
The song that gets repeated in my head all day or evening is a favorite from way back but recently heard on radio.
@pfmgf7 ай бұрын
I got literally teared up with many of these, some from relief, many from laughter. Being a recently late diagnosed autistic, it was a solace to come across your content. Thank you! Love from Brazil.
@LaJarnigouenne Жыл бұрын
The song I listen to over and over: Baba Yetu by Christopher Tin. It gives me goosebumps every time, even after a thousand times.
@le_th_ Жыл бұрын
I've now listened to it 5 times in a row. lol Beautiful, and it does make most of the mammalian hair on my body stand on end a few different times, each time I've listened to it. kzbin.info/www/bejne/qGHOnK1-fMZgnbs Thank you for posting this beautiful song~
@DeRien811 ай бұрын
Many of these were emphatic yeses for me, and a few of the more stereotypical ones were firm nos. But the thing about empathy always bothered me. I've been told several times by loves ones that I'm cold, unavailable, or don't really get the emotional stuff. Meanwhile, I'm very aware of the emotional states of people around me, I'm just not comfortable with intense negative emotion because I resonate so strongly. That, and I may not feel like I know how to respond to someone's emotional needs despite feeling them. My own emotions aren't well regulated, what makes you think I know what to do to help regulate yours?
@MomontheSpectrum11 ай бұрын
Wow this is so well said! You put so many autistic experiences into a great perspective. Thank you.
@whispersinthedark8810 ай бұрын
Im not on the spectrum that I know of, but my mother never took me to Dr's so who knows...I sure checked off the majority of those. I really struggled with the empath part during all the divisive political insanity, followed by covid. I was living in a city and the negativity ppl were washing around with was so intense that I couldn't get away from it even hiding in my own bedroom. It was awful and at times I didn't know who's emotions I was experiencing, I just felt like I was drowning. It got so bad that I ended up selling my home of 13 years and moving to the woods. I don't really know anyone around where I live besides a nice older guy who owns a horse farm where I ride, besides that my friends are mostly online because we live far apart...which is weird for me since I'm GenX and I'm used to irl friends. I have found that many of my new friends are on the spectrum (most are genZ), but something I noticed is how much more prevalent it seems to be in their generation while I only knew a couple of ppl with aspburgers in my generation...I find myself questioning if it really is becoming more widespread or did they just not pay attention to many of us older ppl. I've had quite a few friends with autism, bi polar, and a few other conditions suggest that I had the same thing as them...but it's happened with several different conditions which is odd. It makes me wonder if I do have something going on that I'm unaware of, or if it's the empath part of me sort of meeting them where they are and reflecting the same energy. I do have ptsd so some things can overlap. I have pondered over wether aspburgers/autism in it's more mild forms is a response to the chaos around us, being packed into cities devoid of nature, ones own space, quiet. I think that some of us just aren't made for certain environments, they can be very overwhelming in many ways. The way we live has changed so much in so few generations and many of these changes have had negative effects. We are giving kids stuff like Ritalin so they sit still in a classroom for 8hrs a day, when most of them just need time to run around in nature and learn in a more hands on experience sort of way...make learning fun, because it definitely can be if presented right. Not everyone is made to fit into neat little boxes who's really "normal" and is normal or average really something to strive for...I think "normal" can be pretty boring and rather superficial at times.
@ApacheMagic10 ай бұрын
Same. I feel everyone- it’s my superpower (with animals too- I’ve been called a Disney princess and all animals just latch on to me because they know I know) but I’m also told I’m ‘dispassionate’ and ‘pragmatic’ around things like grief because I’m not a great hugger (I do it for them never me) and I speak truth about what people are experiencing in order to let them know I’m with them. I don’t ever lie and say donrine has been great when they haven’t, but I say things like ‘grief is the price we pay for love.’ I don’t mean ‘suck it up’ I mean it hurts desperately but it was always worth it. The being blunt one is very me. I am a people pleaser on a surface marking level but when it matters I am a truth teller even if it’s not a popular opinion.
@madametaylor6259 ай бұрын
@@ApacheMagic the first thing that made me go "am i maybe on the spectrum?" was reading a book about the autistic experience of grief.
@bethanythatsme Жыл бұрын
Because it is true that I can't stand injustice, my song on repeat it's usually something by Rage Against the Machine 🙃
@ShannonChambers-v8e3 ай бұрын
I resonated with the highly intuitive/empathetic, the bluntness, finger picking and toe popping, planning perfectly but not being able to execute, list and hating it, research mode, ear bud /headphone safety zone, delayed processing, (sometimes,) medication/alcohol sensitivity.
@golbat28366 ай бұрын
This made me cry. On the point. Thx ❤
@LightsandVessels Жыл бұрын
Hey Taylor, what a beautifully executed video. I ticked off 22... I just had a funny conversation with my partner who couldn't understand why I don't want to try a new type of muesli (my go to safe food since I was 17), while I couldn't understand why would I want to try a new type if I'm happy with mine....
@MySkillfulmeans Жыл бұрын
"I need firm, deep pressure. Or else." 🤣 Look out! 🤣
@RodeoDogLover Жыл бұрын
Laughed out loud at the last one...just had a highly-planned road trip from hell. Still decompressing after being back home for three days. 😂 Resonate with so much of this! Thank you for the support. ❤
@MomontheSpectrum Жыл бұрын
You’re so welcome! Thanks for your comment.
@AstroSandee2 ай бұрын
Definitely 21, up to 24 depending how you interpret. The Wanting to be alone but feeling lonely hit hard, but the Research Mode and Why was so eye opening I can't even begin to say how grateful I am that you talked about it. This could describe 90% of my life.
@reensabeans25 күн бұрын
This video is everything and more. I feel you 100% on the empathic thing. I do that ALL the time and it seems like no one understands. I checked off all of them!
@amydelong7972 Жыл бұрын
I relate to almost all of that. Especially the Audhd aspects. I was diagnosed with ADHD at 52 (a couple of years ago), but I'm 95% sure I'm also autistic.
@glyngreen53810 ай бұрын
I scored 2 out of 25. I recently worked out I have ADHD in my early fourties and I’ve been looking into autism too but I’m increasingly sure I’m not on the spectrum myself. Thanks for the video though - good to understand and clarify.
@loverrlee Жыл бұрын
I got 18. Although I’m not diagnosed I could relate to over half of these. 🙃
@yuli22204 ай бұрын
This is so validating. 20/25. And reading comments below from people in their 40s & 50s just discovering that they're autistic makes me feel that I'm not alone. I'm 50 and having watched a bunch of videos on the topic I'm starting to think I might be on the spectrum
@philllupton59127 ай бұрын
I thought I would not score any at the beginning but I scored 17. I also have Alexithymia which is common in autistic people but means I do not feel things in the same way as other autistic people. Some of yours made me laugh out loud. Like "why isn't everyone as blunt as me" and "needing to know why". Being easily upset by injustice is probably my strongest one though.
@A-Pinecone Жыл бұрын
The one about being afraid to use the word autism actually made me cry it hit me so hard. It made me feel so much better about pursuing a professional diagnosis. That it isn't stupid to think I'm autistic. And I got all of them but "understanding other people better than myself" because I don't understand people at all lol. But I'm also simultaneously very empathetic. I'm like a dog, feeling other's feelings but not understanding anything happening.
@chinmeysway9 ай бұрын
there’s no way these behaviors would be part of actual autism or it’s diagnosis. can it be okay just to be quirky? we all are i promise. we all need belonging too but really these symptoms are traits are that bad? what does a professional administering of labels help with even. other than fitting into a group who are obsessed seeming w how their quirks make them sooo different. just look at the DSM. it’s all horseshit non scientific anyways.
@A-Pinecone9 ай бұрын
@@chinmeysway I was giving you the benefit of the doubt until the end... Also, I don't have the energy to argue, but I'll still explain my experience.. I AM actually autistic too, so keep that in mind. A professional diagnosis gave me empowerment. You say "we're all quirky" well that's a bad thing in society. Being "different" with no understanding as to why is hell. I felt like an actual alien outsider my entire life. But I found out I was autistic and everything made sense. I suddenly wasn't alone for the 1st time. Thousands of people experience what I experience. I do finally belong.
@mayanightstar Жыл бұрын
I somehow managed to cross off 16 squares without actually getting a Bingo x'D
@le_th_ Жыл бұрын
love that you played FOR REAL lol
@towzone Жыл бұрын
I loop the song I need. Music is one of my main emotional regulation tools. If I need to burn off bad emotions I loop some specific sad or angry song. But most of the time I keep the demons dancing with upbeat songs.
@MomontheSpectrum Жыл бұрын
Music is one of my main emotional regulation tools too.
@giselerobichaud602411 ай бұрын
I love how every item is expressed. Feels more accurate to me. Thank you
@TPDMM2 ай бұрын
I don’t even know how many, I found it easier to count the ones I didn’t have. It’s all a bit of a shock to be honest, I only figured it out for myself yesterday. All a bit overwhelming right now. Trying to frame it as a positive but…..this year has been so tough on me for so many other reasons. This is piling something on top. ❤ love and compassion to anyone else going through something similar
@arisily Жыл бұрын
Currently going through the assessment process for ASD (and potentially ADHD). I got all 25 lol. The always wanting to know why thing...my mom was always saying how overly analytical I was over everything from idioms to commercials lol. Your videos are so validating, thank you.
@matthollywood8060 Жыл бұрын
This is a big one for me as well. I can't really learn how to do something unless I understand the reasons for it and how it fits contextually with everything else.
@jackoberto01 Жыл бұрын
What I find funny about always knowing why? Is that I used to be like that more but now as an adult I find it annoying in other people. For example whenever I try to explain something to my dad he always needs to know why and it drives me crazy sometimes. I guess I know how he felt my whole life. He's also diagnosed with Autism btw.
@jessicapaddock6222 Жыл бұрын
I love this video I’ve said the same exact thing before i wish everyone would be blunt and say it straightforward what they want to say , it’s confusing to me when they don’t , also I am always researching and looking things up constantly ! I ask the best questions too ❤
@MomontheSpectrum Жыл бұрын
YES, EVERYONE PLEASE BE BLUNT!! :)
@wolfdreams2000 Жыл бұрын
I got most of these as an undiagnosed 62yr old💜 😊 My therapist found a clinic that does assessments/dx but I have no idea if they're up to date on research(especially adult women)and have a referral for them for possibly Aug(assessment before dx tests). I've been writing down reasons why I may be autistic for them since I tend to somehow put important things in the back of my mind when asked questions. I was gonna try to save money for the evaluation with Embrace Autism, but thought since my insurance covers this local place(VT), I'll try it first since saving anything on disability is next to impossible 😮 What's the criteria and cost to book a conversation with you? 😊 Thanks for all that you share with us, Tay. I hope to one day join once I get some of my spine sx bills paid off.
@MrsE04 Жыл бұрын
I cancelled a trip to Europe two weeks before the trip because I panicked. I really appreciated this video; thank you.
@whalium88910 ай бұрын
I don’t listen to music on the regular cuz it’s hard to choose the right music for the moment but when I do I just listen to the same song over and over