Your disease doesn't change what I think of you, you still are the crazy but awesome artist and sculpter I always knew you by. If you ever need any breaks just tell us I will understand and I'm sure everyone else will too. I hope you will still be the wacky artist forever, because that is just who you are! And I love that!
@NerdEJackieVlogs8 жыл бұрын
You're super awesome! I am lucky to have such a supportive group of people like you =D I will always be wacky...I might get even wackier lol. Making you guys smile is my mission!
@crystalcroft83188 жыл бұрын
NerdEJackie love you Jackie❤you make me smile😊
@nomore96558 жыл бұрын
Unicorn Bomb Explosion
@franstains33738 жыл бұрын
Unicorn Bomb Explosion
@animalrescuer9226 жыл бұрын
Unicorn Bomb Explosion I will also stand by Jackie because I love her amen sister amen and Jackie I will pray for every single day
@jamespagous39545 жыл бұрын
When you talk about going into a coma that’s when I started to worry more, me and a million other people love watching you and we want the best for you, xxx
@ballerinaaub8 жыл бұрын
Im so sorry to hear this. I myself have endo, PCOS, IC, IBS and now fibromyalgia. It took me 3 years to figure out my pain. The doctors thought all stomach until a FEMALE doctor asked if I have seen a gynocologist and since then I had a laparoscopy to confirm my pain. You're a strong strong girl! Thank you for sharing this. It takes a lot. And I must say that I couldn't have done it without my partner and soon to be husband Marc. Without him and my family and his family I couldn't imagine where id be. On an honest note many women who suffer from this disease (not the only disease, any disease really), end up committing suicide. They get at their wits end. Here in Canada we have very little specialists in this disease and honestly I am in the same spot as a lot of these women except I have support and a loving family. Without them, id be in the same place. I'm sure you're facing the same thing with not very many specialists here in Canada. Let me know if you EVER need someone to chat with even if I'm just a subscriber 😊
@DaynaC058 жыл бұрын
I don't know where you are in Canada but I totally understand! I ahve no family doctor anymore since mine retired and in QC we have a shortage of drs (so they say) so I've been on a waiting list for 3 years to get a GP..aMy gyno has been so helpful and understanding and very honest with me. I have seen many specialists who were complete jokes. They all agree I most likely have endo but no one is willing to do surgery to find out. and I FINALLY got an appt to see a pain doctor about my possible CFS or Fibro (theyre not sure which) I'm in pain all the time, all over my body and my fatigue has started getting the better of me especially since the cold weather has hit. its so frustrating to know something is not right with your body and no one takes you seriously enough or in my case, the people who can help are just not available to me. Keep on keeping on
@NerdEJackieVlogs8 жыл бұрын
You're not just a subscriber! You guys are my extended family lol I also have PCOS
@NerdEJackieVlogs8 жыл бұрын
I know this issue all to well Dayna! Quebec is a real bummer for specialists who are extremely lazy in researching current methods. If you are having a hard time, be sure to message the ombudsman in the hospitals, they can speed things up ;)
@DaynaC058 жыл бұрын
NerdEJackie crafting really helps me :) I discovered you through the hobby store and have ever since thoroughly enjoyed your videos. :)
@DaynaC058 жыл бұрын
NerdEJackie I didn't know this, thank you!
@charlotteng70558 жыл бұрын
Thank you for sharing with us about what you're going through, Jackie. You're a really strong person!
@NerdEJackieVlogs8 жыл бұрын
HUGS! I like feeling close to you guys!
@loopyfrog8 жыл бұрын
Brilliant message to those struggling to get a diagnosis. Keep trying different doctors until you get one that properly listens to you. I was misdiagnosed with depression and I KNEW that's not what it was. It took me 5 years, but I finally got a diagnosis of Fibromyalgia.
@86karlz8 жыл бұрын
I am so glad you finally found a doctor who listened and looked harder
@kimgeorge31015 жыл бұрын
I found your channel by your craft reviews last month. I was diagnosed with Graves Disease in 2015 and had RAI in 2018. It has been a struggle with no one really understanding. It helps to hear other people's stories of their thyroid diseases. Thank you so much for sharing and splinter is adorable.
@kathiehoskins8138 жыл бұрын
You are such amazing person by opening up to your subscribers about your disease. My prayers are with you and anyone else suffering the same disease.
@dianalee847 жыл бұрын
Aw Geez so many of your fans have terrible health problems. Maybe it's because you come across as an empathic person as well as an amazing artist. I love that you spill things. I can't go Anywhere without spilling, dribbling food down me,dropping things...you get the picture. But I think people are drawn to you for more than just your art.
@dianalee847 жыл бұрын
"Drawn to you for more than your art!" Does that count as a pun?
@LoveLandforChrist8 жыл бұрын
Thank you Jackie for your bravery and openness about your condition. I have chronic pain....and suffer daily. Just like you....no one believed me until I found the right doctor. Love and hugs😽
@ashleymorris84335 жыл бұрын
I also struggle with Hosimotos. I am really glad you made this video! It's so nice to find other people who also struggle with Hosimotos and, to hear their stories it helps me feel not so alone. Loved the vlog Jackie! Stay strong! 💪❤
@Create3018 жыл бұрын
I love you Jackie!! You're always handling everything with such composure and hope. Glad I've been with you for this many years and I hope you do achieve a state where you're able to train as much as you'd like. I love your genuine spirit, been trying to become a better person day by day thanks to you and many others. I'll be with you on your journey of getting better, sending prayers!
@DogFlamingoXIII5 жыл бұрын
Thank you for explaining this. I have fibromyalgia, CFS, and several other related conditions; but the doctors are trying to figure out whether the issue with my thyroid may be Hashimoto's. It gave me a much better view on it. I'm so sorry that you have to go through this.
@pamsudsbear26125 жыл бұрын
Oh Jackie. I too suffer from a rare disease & it sucks, especially trying to get a doctor who even is slightly familiar with your condition, let alone cares. Then there’s everyone else. I have Intracranial Hypertension, which causes my body to produce too much Cerebral Spinal Fluid, crushing the brain, as well as the optic nerves. It’s symptoms mimic a brain tumor, & the pain is absolutely unbearable. (Migraines are a joke in comparison) It also causes permanent blindness. Mine went undiagnosed for 6-7 years. All of my pain & other symptoms were blamed on my other multiple chronic illnesses. (I have over 9 different major chronic conditions) I’m almost legally blind now as well. Living with any chronic illness is horrible & challenging, but especially a rare one. It can be extremely depressing & very isolating. I know from experience. I’ve always loved you & your craft channel, & just discovered this one. But after watching this video, you have my DEEPEST respect. You truly are someone to look up to. God Bless you. ❤️
@EnlightenedFlamingo8 жыл бұрын
I feel you. I just had my one year anniversary of having CRPS (Complex Regional Pain Syndrome). I'm in pain 24/7. Sometimes I can't walk without assistance. I have burning, crushing pain, among many other horrible symptoms. I also have hypothyroidism, diabetes, cervical/lumbar arthropathy, & cervical/lumbar degenerative disc disease. I' also started surgical menopause at 34. The CRPS is the worst. There is no cure. I've gained 70 pounds & may never run, skip, jump, tiptoe, etc again. A lot of doctors don't know about it, but I got lucky my pain management doctor specializes in it.They don't understand what causes it. It's depressing, but I have a wonderful support system! Thank you for sharing your story. I have a feeling you have a wonderful support system, too!
@brandilee47425 жыл бұрын
Jackie, please consider contacting the folks that helped my friend combat her hashimotos. They're here in the states so I know that presents more issues with shipping prices and what not, but if it works for you, it will be well worth it! They're the only ones that cared to treat her and they're an all natural company. I suffered from severe hives for several years. I honestly can't explain the pain. They covered my entire body and the only relief I could get were from steroids. I finally committed to figuring out what the actual problem was and I started seeing a bunch of specialists. It took going to a rheumatologist to figure out that my inflammation levels were skyhigh but never actually tested positive for anything. Of course their only solution was to put me on hard chemicals that cancer patients take and eventually those stopped working. I went through three different pills until my insurance didn't pay enough that I couldn't even afford them anymore, when my friend told me about this place (it's local to me). I took my blood work to them, they looked it over and suggested several things for me to take. Within six months I was off of all of the hard chemical drugs and strictly on their natural pills. I've been off of their stuff for a year now, and I'm still hive free. I'm telling you it is worth every bit if it can give you the relief that I found with them. I'll insert spaces in their website, as I don't know what the tube people sensor nowadays. Green wisdom health dot com. I'd love to hear if you check them out. Promise, I'm not affiliated with them in any means, though I should be a spokesperson for them. 😁
@HardDriveGuruOfficial5 жыл бұрын
Thank you for sharing what you're going through! People need to start seeing that someone who has a chronic illness is not being lazy and is not making his/her symptoms up to get attention!
@Xeradorie6 жыл бұрын
❤️❤️❤️ I too have Hashimoto’s. It sucks!!! It’s very hard to explain to people what it’s like. I was told I developed Lupus in part due to Hashimoto’s >.
@belladonna50354 жыл бұрын
I also have Hashimoto's and I have psoriasis and psoriatic arthritis and if one isn't attacking my body the others are it's a never ending story I know how you feel.
@shannonmackenroth40112 жыл бұрын
I have it too.
@sycocole22 Жыл бұрын
As do I. I have had it since 2012 and I did not know much about what you spoke of. I knew my body attacked my thyroid when sick but I guess its time to do more research for updated info. This makes so much more sense becuz i have a tumor on my adrenal gland and couldn’t fig out where it came from. Anywho u mentioned an article in video. Can you post a link?? Much love!! ❤
@HandsomeJezdaNikki5 жыл бұрын
Soft hug. Fibromyalgia and cf here. You are amazing.
@TealCheetah5 жыл бұрын
cfs here too
@Haffina8 жыл бұрын
I have Hashimoto's as well. My thyroid has no function at all, so I take thyroxine everyday, and will have to for the rest of my life. There are so many things that it affects. I luckily had a great doctor who listened the first time I said something. My Hashimoto's is as a result of pregnancy. I also have PTSD, anxiety and depression., which compounds some of the issues caused by the Hashimoto's.
@michelledelacruz98158 жыл бұрын
Stress is a kiler. I can't say it enough to my students how important it is to manage your stress and get it out of your system ASAP. It's not easy, not even for me. But that is what burns your thyroid out. PTSD, anxiety and depression. Enough reasons right there. Combine it with a pregnancy and that is a lot of stress on your system. Thyroxine or Synthroid is the first thing they give you. Doesn't work for me unfortunately. I hope you are doing well.
@Haffina8 жыл бұрын
I am doing pretty well, I have good doctors and a great therapist and a support network.
@cutecupcake75438 жыл бұрын
Haffina same me too I had it since I was 10
@factoidfirefly77988 жыл бұрын
Interesting video. Don't feel bad I went to a clinic and they didn't tell me what my problems are and kicked us out so..yah. I have never seen a cat enjoying a leesh before either. He's adorable.
@NerdEJackieVlogs8 жыл бұрын
He loves the leash! That's a crappy clinic! Find another one
@crystalcroft83188 жыл бұрын
Factoid Firefly 😠
@factoidfirefly77988 жыл бұрын
NerdEJackie hard to do when you're poor, we'll figure it out tho haha. Thanks
@AsAboveISoBelow5 жыл бұрын
Yeah, I have what I'm pretty sure is chronic pain or fibromyalgia, and the pain clinic I applied for wouldn't even take me in, and wouldn't give a direct answer as to why.
@SylvitaHandmade6 жыл бұрын
The fact that it took 7 doctors for you to find an answer is so frustrating!!! Ive dealt with a similar problem when i had to deal with ovarian cysts. My body was acting up in a way i knew was not normal and i had a doctor literally tell me that i was just getting older and thats what happens! I had to keep fighting for answers. Its so ridiculous but it seems to me that many doctors just are not properly informed on womens health.
@mariahbrooker65377 жыл бұрын
Wow, different disease but a lot of the same symptoms! I had a brain tumor on my pituitary gland, and they had to remove it and my gland, so that causes a lot of the same symptoms you have, and a lot of the same problems you have as well. So, I understand EXACTLY what you are going through. I am glad you are fighting it, you crazy, cookie, NERDY, woman you! Keep fighting and keep it up, your doing great!
@happiebucket8 жыл бұрын
Virtual hugs for you, Jackie.. From a stranger who watches every video of yours (both channels) & you.. You are a strong girl!
@ScarabD8 жыл бұрын
Conflicted Splinter is Conflicted XD Brave Jackie is Brave Cold Canada is cold
@sheeprverycool6 жыл бұрын
Hotel Trivago is Trivago
@alicebthegachaweirdo83785 жыл бұрын
IKEA is IKEA.
@danamummabear97996 жыл бұрын
I'm so sorry you have to go through all that. I have pcos, a narrow cervix and a bicornuate uterus so I know sort of how you feel with the hormones and body being all sorts of messed up. Sending you big big hugs, Jackie ♡
@Viviano1866 жыл бұрын
I'm from North Canada iv watched all ur vids I'm an open book I'm 27 I have depression.anxity.d.I.d.PTSD.fatty liver disease.scolyosies. aostyo arthritis. I'm over weight but I don't let any of my sicknesses bring me down again watching ur vids got me into doing my own clay work I did my first dragon today.ur amazing Jackie I love you so much
@KP-nx8lo5 жыл бұрын
I was 8 when I first started getting migraines, but no doctor would even call them that until I was 20 because “children can’t get migraines “ even though if you looked at a check list of the symptoms I had them all! And it took until I was 21 almost 22yrs old for them to find what was even causing the pain in the first place, and because of that I will NEVER be completely off of pain medicine because some of the damage is permanent. I went to 12 doctors in 3 states just to be told there was nothing wrong with me, 1 even told my mom(the RN of more then 40yrs) that I was faking it to get attention! So I know what it’s like to never get anyone to give you answers or even try to help get you get answers. Hopefully you’ll find someone and something to help you! Keeping my fingers crossed 🤞
@jesylouwho51146 жыл бұрын
I was on prednisone for so many years and gained at least 90 pounds over 15 years. I have Rheaumatoid Arthritis. I kept telling my docs I wanted to lose weight but could not. I could do everything and anything and still not lose. It wasn’t until my kidneys started acting up and my doc taking me off the steroids that I lost 70lbs. Without changing a thing. I hate walking in to a doctors office for help and they take one look at you and diagnose you. Good luck with your journey. I hope you’re able to find what works for you.
@Fallenfromgrace19905 жыл бұрын
Ehlers-danlos Syndrome, Chronic Fatigue Syndrome, POTS, and Mast Cell activation here. I spent most of my life in and out of doctors trying to find out why I was sick. It wasn't until I was 21 and went to genetics that they figured out why I was so sick. The disease doesn't define you, you define it. ❤
@TiffanyGrey8 жыл бұрын
fellow hashis and hypothyroid sufferer here 😊 im glad you were persistent and got diagnosed properly! ❤ i feel your pain its sooo hard to find a doc who thinks outside of the box
@NerdEJackieVlogs8 жыл бұрын
HUGS! It is tough indeed! I also have hypothyroid issues. Doctors are very old school and they don't always look for updated research for conditions.
@Rowancat114 жыл бұрын
I don't feel pity, but I do feel sympathy. Getting awareness out there is so important, and I'm pleased you've done it. I'm aware of the courage and discomfort it took to do so. Blessed be.
@kefki6 жыл бұрын
I think maybe the doctors don't know that much about it and I agree, sometimes it seems they just toss medication at you. It's exhausting...on top of exhausting... Have a wonderful 2019, may it be filled with joy, crafts, and plenty of the salt! Love your channel and sincerely wishing you the best!
@samster38w478 жыл бұрын
Splinter was so cute on his walk, especially trying to sneak through the fence repeatedly. Thanks for sharing your story Jackie, it will help other people to stay strong and keep pushing until they get answers. I have myself been diagnosed with a lot, but also ignored in a lot of other areas. Stay strong and hopefully well. Massive hugs xx
@tracywestby22318 жыл бұрын
thank you for sharing. It can be hard to open up about something you have no controll over, but the more people who open up about things, the easier it is for others to connect their symptoms if they are the same.
@NerdEJackieVlogs8 жыл бұрын
You guys make me feel comfortable
@elasticcamelaml90978 жыл бұрын
That was very courageous and helpful! Also, what an adorable kitty!
@NerdEJackieVlogs8 жыл бұрын
Can you guess why he's named Splinter? =D
@robinbowman45496 жыл бұрын
I have it as well. I wasnt diagnosed untill i was 35! I spent my whole life starving myself, anemic, iron deficient, and many other symptoms including the worst not being able to get pregnant... I went through hell for so many years without even knowing why. I wish you luck, and I hope you do better having an early diagnosis is best, as it is with anything. At 51 I am REALLY having troulble now. I walk with a cane because i can barely get up enough energy to walk across the house. And many other things i pray you dont have to deal with... Good luck to you. My best thoughts to you!
@spedzill5 жыл бұрын
We will be supporting you no matter what Jackie
@leciawillbanks12248 жыл бұрын
I have Chrons disease and am in the hospital again for an absest (not 100% I spelled that correctly). It took 7 doctors to diagnose me too..must be the magic number. 😉 It's been 13 yrs and 12 surgeries later but I'm still here. And you'll make it through yours too. So glad you have a positive attitude and take good care of yourself! With any disease you have to eat right for your body and alot of people don't have the self-discipline to do it. Please keep up the correct lifestyle for you...it gets hard but is so important! And it's good your husband is there to support and help you. And having pets helps keep down stress and lifts spirits. My cat knows when I'm having a bad day and gives me extra love...it makes a huge difference in my day! Wow I've rambled on alot..sry. So glad you decided to share and hope you continue to improve!
@scribek35497 жыл бұрын
Your strength and jolly nature is amazing. You undoubtedly may have bad days, but the fact that you smile and laugh is inspiring.
@sarahseverusriddle58134 жыл бұрын
First of all, thank you for sharing your story! I´ve also been diagnosed with Hashimoto´s a few years back. By now I have Asthma, Neurodermatitis, Hashimoto´s and Lipolymphedema and a bunch of allergies. For almost two years now I´m suffering from a number of symptoms, which keep getting worse all the time. No doctor can find a diagnosis, so they tell me, that it´s all psychosomatic and related to my depression. If I don´t receive treatment soon, I might loose my job. Not sure if and how I would cope with that. It helps me a great deal to know, that I´m not alone in this. Your videos always make me laught, so thank you, for making me feel better! You are amazing!
@chloemason69225 жыл бұрын
I haven't seen this video yet. I'm glad I did. I love you Jackie and I'm so proud of everything you've accomplished. Your disease doesn't control you.
@shelbyeccleston34125 жыл бұрын
Thank you for sharing this!! I have a chronic illness that at this point has completely changed my life, I can’t really walk or do much cause of it. My auntommic nerves system is broken, so doesn’t regulate anything right like heart rate, blood pressure, digestion, body temperature, breathing. Anything automatic. It took forever to get diagnosed, and even now that I have it been nearly impossible to find a treatment that works. I tend to get bed bound a lot, and watch your videos on my bad days cause the bring me joy. And I love this video, cause it’s just a reminder for me to keep fighting to find a better treatment plan. Thank you!!
@LunaSolaste2 жыл бұрын
Thank you. I've been presumably diagnosed with Hashimoto's but it's just come to my attention that there's *way* more that goes with it than my doctor told me. I really need to keep pushing for a referral. I needed this confidence boost.
@atreadia5 жыл бұрын
Rheumatoid arthritis and PCOS (but not with high testosterone). I have a lot of days where I have high pain and low energy. You're not alone there.
@STICKYArt5 жыл бұрын
Thanks for sharing! My sister suffers from hashimotos that makes here tired and gain weight and then sometimes lose weight. Best wishes to you! Stay healthy!
@divalea7 жыл бұрын
I feel ALL OF THIS. Thank you for telling your followers to keep looking for solutions! I went through 7 doctors and 7 years to get properly diagnosed/treated for arthritis, rheumatoid arthritis, and carpal tunnal syndrome. From November 2015 to April 2016, I went through *five* doctors. I'm not perfectly pain-free, but so much improved over 3-5 years ago. I'm pretty much pain-free when I'm not moving (as opposed to when I was sometimes hurting so bad I couldn't sleep). I'll take it. Oh yeah, hypothyroidism too. The meds make my blood tests look good, but I don't feel different. Continued good luck. I know how much it sucks to not be able to do things like you used to. I'm glad you're channeling that time into your hilarious videos.
@WhiteWave33 жыл бұрын
Thank you for sharing your story. I’ve always felt different and struggled with the simple things in life that everyone else just took for granted. So when I left uni, I took matters into my own hands, asking for testing and diagnosis, (with insight from my family). I’m so glad I did because having an answer made such a difference. I never hesitate to be open about my HF autism because I struggled so much until I understood. I still struggle sometimes but at least understanding helps me to cope and prevent it being as bad. Understanding what people may be going through helps promote compassion and understanding. To everyone out there, don’t give up, there are people out there who can help, who will understand. Thank you again and love you Jackie! All the hugs and support. 😊😊💖
@perlerangel23618 жыл бұрын
Thank you so much for sharing you disease and the struggles you face! I have retinitis pigments which is an eye disease where I am going blind. I was diagnosed when I was 14, I'm now 33 and I'm not completely blind yet but I only have about 4 degrees of vision left. I use crafting as my stress reliever! I have trouble with colors sometimes but that's the only drawback but thankfully my hubby and family are really helpful and supportive. Staying positive about my disease is sometimes really hard but I find I can do so much more then I ever thought I could when I stay positive. Hugs and hang in there Jackie! Your amazing!!
@Froggo303 Жыл бұрын
I also have Hashi Motos ! Was diagnosed when I was 9 years old despite the usual onset age in the 20s so I grew up with the frustration of not being able to play sports the way other kids did because of joint pain fatigue and extreme weight gain,it's horrible feeling so crappy and being told 'your depressed' or 'you just need to exersise' (pre diagnosis) and there's become so many misconceptions between temporary low thyroid levels and a chronic life long disease which carries so many symptoms that not many people talk about,it's so refreshing to hear someone talking about Hashi Motos on KZbin and spreading information,I've never met someone else with Hashi Motos in person so it was almost comforting ?to know someone as talented as yourself also lives with something I struggle with,it feels less lonely :)
@shdwstrm8 жыл бұрын
Very informative. I liked hearing about this. My mom was a nurse so I grew up hearing all sorts of medical terminology so I find this fascinating. I've looked at crossfit but I have a messed up knee (basically I tore my ACL years ago and it's just holding on enough that I don't need surgery,) so the amount of intense training scares me. Also I have back issues (due to another injury and just good old genetics,) so I'm always afraid of injuring myself it making any existing pain I'm dealing with worse. I tried roller derby after I got clearance from my knee but it was my back that prevented me from continuing it (would train for a week and then be in major pain for 2 weeks after.) I was also afraid of getting hurt again like I did with me knee. I was off work for over 3 months and it suuuuuuucked Anyhow that's just me griping about my situation. Big hugs to you for sharing this with us!!
@NerdEJackieVlogs8 жыл бұрын
I also tore my ACL and got knee surgery for it. It makes a huge difference in how I feel more confident training
@crystalcroft83188 жыл бұрын
NerdEJackie 😔😭
@jennam59738 жыл бұрын
I hope everything gets better Jackie and better for everyone else who has it
@charlotteg50198 жыл бұрын
This is so sad to hear! I hope that you are doing okay and that you should always remember you have so many subscribers, your friends, who care about you! We will all support you!
@naomilandry31194 жыл бұрын
Fibromyalgia is also the pits but learning to live with it . Stress also a factor . IBS big problem for some of us. Spent quite a few years with doctors not listening to me, it took some heart problem showing up again to get new doc to run tests concluding that the chronic pain triggered heart and finally heard the word from doc that I have had fibromyalgia for over 30 or more years. Just keep moving there love you attitude that is part of how we deal with having a chronic disease.
@hiyashisfx8 жыл бұрын
I know I've never commented before, but thanks for sharing this. Splinter is super adorable, I'm not a cat person at all but I loved watching him walk around~ You are right about how we know our own bodies better, it sucks that you had to give up something you love but staying healthy is more important! Good luck in the upcoming year, I hope the new treatment works out!
@NerdEJackieVlogs8 жыл бұрын
Thank you so much for taking the time to comment! I love seeing your comments and getting to know you guys
@heathermcdonough32615 жыл бұрын
My father has Hashimoto’s, so I understand what you are dealing with. I learned it is possibly genetic, so I must keep an eye on it. I salute you for your positive attitude and for educating others! In other news I am so in love with your kitty!!!
@paranoiarpincess4 жыл бұрын
I was diagnosed with Hashimoto's and I have two other, more severe (in me) autoimmune diseases as well. I didn't know half the things that you say come with Hashimoto's and it explains SO much! I'm going to do a bit more research on it now, so if you ever do read this, thank you. On top of it all, I grew up as a super skinny-minnie never going above 125lbs until I was in my 20s. I'm 5'5 and until I got pregnant, I was always 135lbs and under. I got pregnant at the age of 26. I gained the baby weight and had my son. I was able to get back down to 145lbs... then came the flare up. I have severe Juvenile Rheumatoid Arthritis, and I went into an ongoing, now 10 year, flare up. I got progressively worse until I became bedridden in 2015. Since, I have been steadily gaining weight. My diet is pretty crap, and I can barely exercise at all. Two years ago, I nearly died and was diagnosed with a rare and very deadly disease called TTP. It tried to kill me twice, but when not in an episode, it's like it's not even there... minus the fact that it makes you tired and in a brain fog. Besides almost killing me, it gave me millions of micro clots in my brain nearly giving me severe, permanent brain damage. I got SO lucky. While at the hospital, they found nodules on my thyroid. So I started seeing an endocrinologist, and she told me I have Hashimoto's. That was about it though. I didn't get any real explanation of what it entailed other than that I have to get ultrasounds on my thyroid to make sure I didn't get cancer. After the hospital, I started gaining weight even faster! I am now at 200lbs, 20lbs larger than I was even at full term, with an entire human being inside of me contributing to my weight! I had no idea that Hashimoto's was to blame and I have been cutting back my sweets intake, and making myself feel really guilty about not being able to exercise. It has been rough to say the least. I'm also on prednisone, so my face went from being a normal, oval face shape, to the literal moon. It's pretty depressing because I don't even recognize myself anymore. I don't have a problem with weight gain, my problem is that I don't look like what my image of me in my head is, I don't like what I see, and worst of all, I can't fix it. :( HOWEVER, knowing this isn't my fault, that it's the Hashimoto's, and that I'm not alone makes such an impact, and I wanted you to know just how grateful I am to you for helping me to learn this. It's a big deal to me. THANK YOU!
@danitheuerkauf70956 жыл бұрын
Thank you for letting us know and understand. Know you are loved.
@BPH-vm2ic8 жыл бұрын
It's great that you have chosen to discuss this with people. It's very easy to become isolated when you have a chronic condition because you often feel that people will say that you look fine so how bad could your condition be? It's brave of you and it does not come across like a pity party at all! It appears that you are doing as much as you can in spite of your condition. I do that too and refuse to give in to it or allow it to define me. Good on ya! :)
@Kreative_Rainbow5 жыл бұрын
Great job talking about such a challenging change in your life! You are very brave!! I hope things are going better for you!
@christineballart23345 ай бұрын
I’m so sorry that it took you 7 doctors to be able to get diagnosed properly. I live in the US and the health system here is so horrible that I can understand where you are coming from even though we don’t live in the same place
@crystalpackard41178 жыл бұрын
Thanks for sharing so honestly, Jackie and with your cat! That was the highlight of my day :) If I tried to put my cat on a leash . . . Oh, the horror!
@NerdEJackieVlogs8 жыл бұрын
hahaha he looks forward to his leash every time!
@lisah68045 жыл бұрын
I am so glad that you found a good doctor that is helping you and that you are doing your part in researching your illness and finding ways to help yourself, such as finding out about the Paleo diet. Perhaps a ketogenic diet may help as well. I wish you luck and hope you find relief soon.
@oliviahurley794 жыл бұрын
Soft hug from someone with CRPS hEDS and POTS! I am glad you spoke out.
@Lavieenrose91118 жыл бұрын
Jackie! You are always so happy and positive in every video, i would have never thought you were going through something like this. You are such a strong individual and I'm sending positive thoughts your way to finally find the treatment you need.
@NerdEJackieVlogs8 жыл бұрын
I think the best way to overcome difficulties is to stay as positive as you can and clear-minded enough to get through it. It's not always easy since depression is also one of the symptoms of Thyroid-Hashimoto, but I find joy in the small things =D And since I have you guys, I feel stronger
@lauried615 жыл бұрын
I never knew until I saw this you had this,but you always are so positive and I love watching your channel.I hope there is somewhere we can donate for you and others who have this disease.Stay well and keep being funny!
@graciecampany67165 жыл бұрын
I can connect. I don't have what you have but you said you went through 7 docters. I went through 7 subsatutes in one day. It was stressful. I feel super bad for you. But you are amazing.
@rhoffman2225 жыл бұрын
I hate so much when Dr.'s look at you like you're crazy. For 14 years they told me it's just muscle pain, do your exercises. It took an ER doctor to order an MRI and found out I have 3 herniated discs, degenerative disc disease, fractures in my vertebrae, arthritis throughout my spine and a few more things. So yeah you are right. Keep at it. You know your body best. I'm glad you were able to get a diagnosis but sadly it seems that that isn't the jump off point. I'm so sorry to hear your struggles. I hope now(2019) you have a better grasp on it and are doing better. Lots of prayers and love to you. I also gained 50+ lbs. I was stick thin and needed to gain some weight but not all the weight. So I definitely feel for you. Oh and yes, your cat is gorgous. Extremely gorgeous! I would keep him indoors too.
@annmareeofoz6 жыл бұрын
So relate to a lot of what you said, I've had numerous diagnosis over the years, just getting Doctors to investigate properly can be such a slog, especially when you are overweight like I was - it's easy to just blame that and not look at any real 'cause'. It's just so draining mentally, emotionally, physically, and financially! So many people can relate to your story, despite their diagnosis.
@womensarmycorpsveteran29045 жыл бұрын
Wow so sorry to hear that. I had full-blown Graves’ disease 40 years ago, radio active iodine, etc. Been on thyroid replacement ever since. It’s a constant struggle to keep the thyroid levels right and a lot of other issues.
@hid27095 жыл бұрын
It okay Jackie you can do anything and were always here for you❤
@amandah28665 жыл бұрын
Aww, Splinter is so cute! Escape kitty!! It sounds like a really sucky complex disease. I totally get how stress levels in your body can be so different from your brain levels. It's really hard when your body stops you from doing what you want to. Doctors aren't the most empathetic to these types of illnesses, it's really frustrating & makes you want to scream. I really hope that doctors can learn to be more understanding in these situations. I had a bad day yesterday where my fatigue levels were so bad I spent 25 hours in bed. I have Chronic Fatigue and Fibromyalgia and most doctors or people, in general, are very sympathetic or understanding to them either. But an illness doesn't define you.
@like905 жыл бұрын
My dad has Hashimoto's disease too. Thanks for all the information. Splinter looks so cute on his leash.
@cebmom4ever7 жыл бұрын
I am so glad you made this video. I was diagnosed about 9 years ago. At the time the Dr just said it was hypothyroid. But over time and research I believe it is Hashimotos. At the time of Diagnoses they told me it was auto immune but I never knew the name. I have other autoimmune diseases as well. It took me 2 years to get them to listen to my symptoms. I had gained so much weight. I was over 200lbs by the time they finally did the blood work and found it. I am only 4ft 10inches so you can understand how big that was for my frame. I have since lost some weight. But i do feel like i am "set" at a certain weight now. I can lose 15 or 20 lbs but then i go right back to where i was. and just stay there. I am happy to no longer be gaining. And i am well under the 200 i was at diagnoses so I just live with the extra weight. Have you found a good med yet that does seem to help? They have had me on levithyroxine for the last 9 years. Slowly upping the dose every few years. Best of luck with your disease. It is not an easy one. And one of those "silent" ones that people always say "you don't look sick" makes it hard when i am exhausted and they don't see why. I think besides being tired the biggest hurdle for me is the joint and muscle pain. I am in my 30's and feel like i have the body of an 80 year old. Do you struggle with this as well? One thing the meds have helped with is the bloating. my face still from time to time bloats but not like it was. I really hope you are doing well now.
@hugthebluebow8 жыл бұрын
Never would have guessed that you go through something so sucky. You always seem so genuinely cheerful in your videos and on social media. I hope to have your level of perseverance. I've had depression and anxiety since I was kid, which makes life pretty inconveniencing haha. Edit: I love you and your videos.
@Ellie333jmtqkl4 жыл бұрын
I feel so bad for you Jackie 😞 your a awesome person and always make me laugh. I never knew you had this disease before now. Stay strong 💜
@DisforDuck8 жыл бұрын
Wow. 7 doctors?! I would be going out of my mind. Thinking I'm crazy or it's all in my head. I'm so glad you were finally able to figure out what was wrong. I'm also glad to see you are trying so hard to take care of yourself properly. I don't know what we would do without our NerdEcrafter! :D
@NerdEJackieVlogs8 жыл бұрын
I really thought it was all in my head! I was starting to believe them and said "maybe I am just lazy as they claim I am". But luckily Pat kept telling me that's not normal since I train way more than he does lol. I wouldn't know what to do without you guys! NerdEcrafter is here for your crafty needs lol
@zoezo45 жыл бұрын
My sister has that. She had trouble getting a diagnosis. She gets very tired. You are brave Jackie.
@ceekay31435 жыл бұрын
KZbin recommended this video to me today - I've only been a little grain of salt for a few months or a year or so (I don't remember the first video of yours I watched, but it was before you told us you had to quit teaching). This video makes me love you even more. I didn't realise Hashimotos was that horrible, and I hope that research continues into helping people like you with incurable chronic diseases that could kill you. Full time teaching would be like a ticking stress bomb for you, if teaching for you was anywhere near as stressful as it is for me. I actually thought Annika Victoria (Australian girl who does Make Thrift Buy with sewing clothes) had it, but I was mistaken. She actually has another horrible chronic disease. She did a disability Get Ready With Me, because the damage from her chronic illness means mobility aids help her function normally: kzbin.info/www/bejne/gHico5RtmZKMm9U I was diagnosed with PCOS about 15 years ago now (when I was putting on weight for no reason), and it's been about 5 years since I was officially diagnosed with anxiety and depression. I'm now over 280lbs (over 130kg for the rest of the world) and I'm tired of fighting with my doctors. Trying to explain that it's well and good to say all these symptoms will magically fix themselves when I lose weight (including a wrist injury, recurring throat infections, some nerves going numb during exercise, and new fun sensory issues), when it's so easy to get stuck in a cycle of poor physical health -> poor life choices -> poor mental health -> poor life choices -> poor physical health. And that shaming me without listening to me is making things worse. Luckily I still have the ability to do some things to try and take care of myself. My employer offers this Fitness Passport thing, where I can basically go to a few gyms an unlimited number of times for the price of a very basic gym membership. I've found that I hate burpees (most sane people do lol) and I've suddenly got vertigo that means yoga type classes make me dizzy, but I still love Zumba and anything aquatic. There are so many healthy things I struggle to eat - some foods make me physically gag - but there are others I can eat fine. Overnight oats and chia puddings are good for my breakfasts since I never feel like actually making toast etc. Now that I've been trying to eat healthy more than not, I can really notice how awful my body feels when I do indulge in junk food. It will take me a long time to ever get to "healthy" or "normal", and fingers crossed that it means I'll actually not have to deal with symptoms that are luckily more annoying than deadly.
@NosibuKulina5 жыл бұрын
I find it super sad that you just told me about a million more things about hashimotos than my doctor ever did :( in denmark it is trrsted so much like hyperthyroid(or however it is spelled) that doctors not even tell you when they find out that you have it (or graves for that matter) Thanks for telling me more, this makes so much sense to me. I have had trouble whit food my entire life and only felt good after i went over to keto (not saying everyone should do it, just saying i have always been in pain up untill now, and since going keto i felt a million times better both in body and mind) I hope you are as good as you can be whit hashimotos :) and I am sure you know that there are a lot of us out here that understand you, and are here for you :)
@evihiho29315 жыл бұрын
I've been diagnosed with Hashimotos after 10 years of struggling with my symptoms. It took more than 15 doctors to finally get disclosure of what I have. Now, with medication and supplements, I'm slowly getting better.
@salmashnur7 жыл бұрын
WE ALL LOVE YOU SO MUCH JACKIE AND WE WILL ALWAYS BE WITH YOU NO MATTER WHAT DISEASE YOU HAVE!!!! ♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡
@shelleyurban55 жыл бұрын
Thanks for sharing. You are amazing and I love all your videos. You and your sister are amazing.
@Uniquely-You5 жыл бұрын
Love u Jackie! I admire you and have a ton of respect for you! I wish you nothing but the best! Prayers for your health! Your good peeps and I’m glad to have known you on here! ♥️
@good2beborn0075 жыл бұрын
You are so sweet and fun! I wish you the very best❤ I have endometriosis and I am always very tired because of it. It took 15 years and many doctors to know what all the pain was. I really know the mental pain of not being able to as much as your piers. Love your vids and you. 😊😘
@livingdeadgirl120905 жыл бұрын
I also have Hashimoto disease as well as a few others. I completely understand. Thank you for sharing.
@ElishaRusli3 жыл бұрын
I’m a spoonie too. This gives me hope. Hugs.
@666AMC6665 жыл бұрын
There is actually a huge issue with doctors not taking women's issues or concerns seriously.
@gailburnette8 жыл бұрын
I hope your treatment works well ❤️ I'm so glad you fight your exhaustion to make the videos you love making
@NerdEJackieVlogs8 жыл бұрын
You guys have no idea how much your smiles mean to me =D
@hellion16548 жыл бұрын
I use to watch this show (I live in USA) called Strange Diseases (I believe-sorry its been a few years.) and a lot of these people had to go through A LOT of doctors before they got the proper treatment or even figured out what was really wrong with them. But one thing I learned from that show was that YOU are your own doctor! Do RESEARCH! There is a lot of websites with search engines that can help you find diseases that you may be suffering from or check out disease wikis. It will take effort and some time but a lot of people from that show had to go that route because the doctors didn't believe them or gave them the wrong treatment. I hope everything goes well for you from now on and that such a cutie kitty you have there. :)
@jenniferneisler72197 жыл бұрын
First thank u for sharing this with us followers! Second u are an awesome crafter! Third your fur babies are adorable! I wish I could show u mine.... Ace is a chocolate Siamese!
@shannoncontrenchis7126 жыл бұрын
I'm sorry to hear about your disease. I can relate. I have Cushing's disease and it's basically the same thing.
@karahjackson8557 жыл бұрын
I never knew this about you and know i feel a bit closer to you😊 and you're a trooper and i hope you can get what you need
@releasingendorphins232 Жыл бұрын
I Love You Jackie. You absolutely release my endorphins. I am so sorry you are carrying such a heavy load where your health is concerned. You can get a different diagnosis with every doctor you got to. That has been my experience. I just try to study up on my symptoms, find the closest diagnosis and tell my Physicians Assistant what I think. She had been more help than anyone. We are all in your corner. You will be in my prayers. Loving you in Oklahoma, Barb. Oh, and I wanted to tell you you are so beautiful. You just really are. I'm married with grown kids so not I'm not flirting. Just stating a FACT!!!
@lumeonPokemongiveaways8 жыл бұрын
you are a great inspiration i love your channel i binge watch it all the time :) . you were the first you tube channel i subscribed to as well. keep it going. your so down to earth and a really cool chick very talented. i get it took 5 years for me to find one doctor to help and take care of my problems. new life for me :).
@BlackPugTeddy3 жыл бұрын
I have a medical condition called mcad and I can’t store energy and when I’m sick I go straight to hospital and on a drip so hearing about your condition is helping me know that I’m not the only one I know with a condition 😊(your awesome Jackie)
@ramarajanc31605 жыл бұрын
I wish u recover from it as soon as possible
@ramarajanc31605 жыл бұрын
U are my role model no matter what any one thinks
@coolgurz454 жыл бұрын
I personally also suffer from thyroid disease. I'm glad that I found someone I watch who knows the struggles though I'm not glad you're going through it.. I was lucky to not have hashimotos but they think I may have Cushing's disease. It's hard and I know the struggle of all thyroid disease all too well.
@coolgurz454 жыл бұрын
I think you're an amazing creator. I'm so glad that you are still pushing through. 💕
@ashley95348 жыл бұрын
Thank you for sharing this with us:) we will always support you. I haven't been to many doctors but I know I have something wrong hormone wise. Stay strong!
@NerdEJackieVlogs8 жыл бұрын
You know your body. Don't let someone tell you otherwise 💙💙
@gaarasfangirlshadow8 жыл бұрын
I've lived with a very.... irritating (for lack of a better word) disease all my life but I was diagnosed when I was two. doctors actually told my grandmother that I wouldn't live to three and now here I am 20. It was very interesting to hear about your disorder and i hope the diets really help you! ps. your cat has beautiful eyes O.O