Never ending appetite: What is Prader-Willi syndrome? | Sunday Night Archive

It’s the most baffling and bizarre medical syndrome known to science. Around 20 Australian babies are born with it every year, half a million live with it around the world. There is no test for it, and scientists do not know why it strikes. There is no cure and currently no answers - sufferers simply have a constant, total uncontrollable urge to eat. Imagine always being hungry and never feeling full? It’s called Prader Willi Syndrome - a random brain abnormality which causes many victims to literally eat themselves to death.
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[@Chooge]

This is a cruel disease. The first time I heard of it was in the 80s. A friend babysat a young teen who would fight you to get to food. All food was locked up. Imagine being hungry all the time. Sad.

[@raydabbieri2769]

My new baby boy has been diagnosed with this and it's devastating. The hunger aspect is terrible enough, but there are so many more terrible symptoms as well. I just want him to have a happy fulfilling life and I don't know if that will be possible 😢

[@user-nn4bu6ip9m]

I'm so sorry, I wish your baby boy a long healthy life , My heart with you, life isn't fear, wish you all the best

[@esc1074]

So sorry to hear this❤

[@Lunchladydoyle]

They have experimental drug therapies now that can help toddlers with the muscle weakness that accompanies PWS.

[@rubyjones7595]

Sending love and blessings to you and your baby boy ❤

[@paulettepedersen8304]

Never give up and fill his heart with love❣️

[@katykircher7413]

I can't imagine what a nightmare this condition would be - both for the person suffering from it, and for their parents.

[@deepthoughts8393]

There’s a worse one that you can’t sleep

[@sunnystormy4973]

-i have crazy chronic insomnia ...-

[@00zarzu00]

that’s not it. try fatal familial insomnia. ps, it’s not a competition for who has the worse disorder. although i will say the mental challenges associated with prader-willi can perhaps lessen the impact of suffering in a way that is disturbed more in ffi due to the lack of sleep literally driving you insane and demented prior to actually killing you, which prader-willi does not necessarily do. but honestly. not a competition and all life-changing, life-limiting, and life-threatening conditions are hard to deal with. don’t negate or invalidate someone else’s experience or challenge. someone can always have it better than you and someone always can have it worse.

[@c.swinford8283]

Leticia feels so happy when she makes her sister proud. That’s so sweet. The mom shouldn’t feel guilty. She just wanted her son to be at peace.

[@heathergreenakers]

Stories like this make you appreciate your children that were born perfectly healthy, even more. My heart breaks for children born with these rare disorders….or any disorder.

[@major_thomasina]

Isn’t that the truth! You worry so much about the little things with your healthy kids but there are parents dealing with this type of illness. So easy to take it for granted.

[@annenelson5656]

Mayim Bailik has a foundation to study Praeder-Willi Syndrome. I would so much like to see more attention to this condition.

[@awesome_comment]

This is so sad, Katie seems so sweet. My mum worked as a teachers aide at a special needs school, one of the kids had PWS and ate a goldfish out of a fishbowl in the school office. Really sad.

[@earlineprice9374]

Please dont pick on people that are handicapped they are so precious and also they deserve to be loved ❤

[@ravenbaa7989]

It’s not a handicap

[@colorbugoriginals4457]

​@@ravenbaa7989 It's a disability. It drastically limits how a person can live their life and makes them completely dependent on help to not die from it.

[@raydabbieri2769]

@@ravenbaa7989 how is it not a handicap?

[@cynthiaweygandt948]

You are so right. Thank you for your kind and compassionate comment

[@Tammissa]

I haven’t read any negative comments about this girl. Anyone that would or has is an insensitive *+$!*-%! . Until a person is touched emotionally by an individual with a handicap or devastating disability, you just don’t know how precious these people are. But I haven’t read any hurtful comments here, unless I’m mistaken.

[@Karen79954]

My nephew was born with this syndrome. His condition was worse, but he had professional help. He could not talk due to his tongue.

[@00zarzu00]

probably due to hypotonia

[@wonderingsoul8021]

So sad. I learnt something new today. Very sorry for her, other people suffering, and their families

[@amyg8761]

Seriously imagine what it would be like to feel hungry all the time!! Maddening. It must be horrible. And so worrisome for the parents.

[@lucymaty4545]

With so many medical advances these days I’m shocked there is nothing to help with this issue

[@Arete37]

I'd want to try hypnosis.

[@ivebel3966]

unfortunately genetic diseases are much harder to treat, it’s a bit like down syndrome in this case, because it’s about chromosomes, and set of those is completely damaged… it’s tough

[@Bella-gj6wc]

My parents adopted a child with this disorder. If she hadn’t been raised in a normal family, this disorder would have taken her life over. She didn’t have the issues Katie had, but she had significant health issues just the same. It’s a very sad disorder, and very hard for families. These individuals, will do anything for food, break into other people’s houses, and never stop eating. ☹️☹️☹️

[@Loumains]

That was amazing for your patties to adopt someone with this disorder it can’t have been easy but your amazing parents gave a child a chance of a normal life whatever that may bring no one’s life is perfect by any means,I believe God sends these angels to earth to teach us life lessons count your blessings not moaning over what you don’t have material things don’t matter it’s your health that matters ❤❤

[@Bella-gj6wc]

@@Loumains Thank you for your kind comments. They were tough, no nonsense people, whom when they said something you listened. They were foster parents, who had 50 newborns come through our house in 6 years. In the early 70’s children weren’t “adoptable”, unless they were deemed “perfect”. My parents adopted two babies in 6 years, the second baby who came to them, and the last one, neither of them was ever going to be “perfect enough” to adopt. The first baby they adopted had significant heart issues, and was never going to be “perfect” enough to adopt. The last child had Prader Willy, and at first was so lethargic that picking her up was like picking up a tea cloth, no muscle tone whatsoever. She never cried, and the doctors did not expect her to live past 6 months. Well, by that time, they knew she was going to live longer, they had already bonded with her, as had us kids. She gradually got more muscle strength, and although she had many health and cognitive issues, one of the behaviours she did not display was the constant need to eat. Maybe it was being raised as part of a large Catholic family, or what, but she never displayed that need. She did lose weight very slowly, and was somewhat overweight; but not huge, she did better with it than most. My mother was a formidable woman, and when the kitchen was closed, the kitchen was closed to all of us. lol I’m not even sure if in the early 70’s there was a name for it, but as life went along, they did tell us “what was wrong”. She lived into her early 30’s but what took her life, was the curvature in her spine, that despite multiple medical interventions, they never could successfully correct. Sadly. ❤️❤️❤️

[@melanytodd2929]

​@@Bella-gj6wc❤❤❤

[@Bella-gj6wc]

@@melanytodd2929 thank you Melanie. My parents had 5 kids of their own, when I was born, my older siblings were 9, 10, & 11 years old. My mum had 3 nearly full term miscarriages between my brother 9 years older and me. She had my little brother 18 months after I was born. I’m sure, my mum, being a good Catholic, would have welcomed more kids, but her doctor, said “NO!” to that idea, after my brother was born. So, when I was about 08 years old my parents started fostering. Babies would come sometimes in multiples, sometimes they’d be with us awhile, sometimes, just a few days. My adopted sister was second, she came and stayed, so we often had her, and two others. I certainly knew how to look after babies lol. In addition, my dad worked at the largest institution for individuals with developmental disabilities. In fact, at one point or another all of my family (except my little brother) worked there. When I started it was at the very end of “forced sterilizations,” and the drive had begun to stop taking new admissions, and look to communities to have these individuals live in group homes, in the community. I outlasted every member of my family combined, and worked there x 27 years. I left to pursue my Masters degree in the USA, where I then began working with the mentally ill, homeless individuals using drug/alcohol to relieve their symptoms. So I’ve seen all kinds of individuals with all kinds of disabilities. lol even in retirement I’ve had job offers to come back to work. Have a blessed day. ❤️

[@melanytodd2929]

​@@Bella-gj6wcyou're SO special ❣ loads of love from South Africa 🇿🇦 ❤

[@Emily-the_funny_guys]

It's a shame that with the NDIS in place, there are no facilities to support these people. Surely something could be done here in Australia

[@colorbugoriginals4457]

Germany has a great model too, the group facilities. They even managed to keep a healthy weight. Of course you'd have to ask PW folks themselves how they feel about it, but what I've seen the residents seemed pretty happy. I think if more people were aware of this we would have no trouble getting resources in place. Few people learn of this condition and don't feel compassion for those affected. ❤️

[@cynthiaweygandt948]

Ozempic med may help ! New info !

[@desertatable]

Aus does have live in homes who care for Prader- Willi clients under the NDIS. 24/7 shifts and respite care is well funded. Funding depends on how your doctor has organised your paperwork in conjunction with NFP health networks and large care companies. I've cared for clients with this syndrome, it's extremely challenging especially as it doesn't appear alone, there are other disorders that seem to run combinant with this chromosomal anomaly. Really feel for these people and their carers, they need to have access to the support and carer respite that are available.

[@beccag13]

Oh my god I love Katie, she’s in a documentary from years ago. So happy to see her

[@patienceboafo1998]

As a social worker I gained some knowledge of PWS but this condition is very rare and most professionals lack knowledge of it. Its about time that we get more education and insight to help us support clients and their families

[@irmam8339]

I feel bad that she can’t have kids, but being obsessed with food wouldn’t allow her to have much time for anything else like taking care of the infant 😢so sad

[@ECVanPuz]

I've already seen this family in another English documentary. Katie was younger at the time. So v v sad. Her parents are really good. Must be terrible to cope and help her.

[@esc1074]

This is so heartbreaking😥

[@Brwneydgrl69]

I live in Oklahoma, USA. Years ago back in 1998-2000 I lived next door to a house that had 4 people with PWS living there. 2 caregivers were always there and locks on all food pantries and refrigerator. The people were really nice but it was sad that all they thought about was eating. 😢😭

[@Loumains]

This breaks my heart just seeing these beautiful humans who battle with this disorder,and I see comments on Katie prices sons social media and the comments people make some are disgusting,these wonderful people can’t help It 😢❤❤❤❤❤

[@janegallagher6162]

I worked with two students with this condition, not easy at all. At the residence locks had to be put on the fridge. It is a constant urge to eat. One dayI was teaching the students how to make scones and the PWS students had eaten the raw dough in seconds. So sad.

[@moseschrute]

I work in a group home and I am shocked that Katie is getting her own food at the cafeteria and grocery shopping. This is an absolute no-no! All food is prepared and plated by staff and we avoid going into grocery stores the stress and temptation is too much. We have to lock up garbage, even raw meat and used coffee grinds left in the coffee maker have been eaten if left accessible. To save Katie’s life she needs to be in a controlled environment with a 900 a day calorie plan

[@nukaghoula]

The australian health care system has so little funding for disabled people. Its absolutely shameful.

[@billmartins5545]

There's just way too many people who need care. Maybe we should deal with the source.

[@coyotelong4349]

@@billmartins5545 Deal with the source of Prader-Willi Syndrome?

[@TheBabe61]

NDIS, better than USA. That’s a bold statement

[@Bcshe1]

Good on the UK government for covering that care. Now our government needs to step up.

[@Starfish2145]

So sad. This is why it’s critical to get genetic tests

[@jooyoonchung3593]

“It’s like asking someone to stop breathing.” My heart aches.

[@mlady6564]

I heard about Katie several years ago. She's so well-meaning, has hopes and dreams, but is at the mercy of this horrible disease. I pray she gets the help she needs and is able to live some of her dreams. 💕

[@susanm1109]

Very interesting. Back in the 1970s I had a roommate with a child (maybe 4 years old?) who was constantly ravenous. She would get up in the middle of the night foraging for food, and would even eat uncooked rice if that was all she could find. At the time I thought it was psychological, but looking back I suspect it was Prader Willi. I don’t know if the syndrome was well known then.

[@ninaappelt9001]

It was identified in the 1950's.

[@kathleendowner6503]

So hard because people just think greedy but imagine your brain pretending it is so thirsty drink and needing to drink even though you have drank a pool full so sad

[@nanaof6babies]

This broke my heart for their parents. ❤

[@raydabbieri2769]

Yes, I still can't believe this is actually happening to me. My precious baby boy turns 3 months old today and he has been diagnosed with this disease.

[@nanaof6babies]

@@raydabbieri2769 I am praying for you both. It must be so hard. ❤

[@MissClemintine]

Precious lady, I hope she’s okay these days ❤

[@tamedshrew235]

Too heartbreaking. I can only imagine her parent's anxiety. 🙏

[@noelwatson2237]

I’m a stay at home wife and I’m so grateful my husband was able to do that for our family. ❤

[@janetjoiner9204]

BLESS YOU ALL!

[@QueenofMarine]

This must be a devastating diagnosis for parents to get. It's got to be one of the worst of the non-terminal diagnoses. Heartbreaking.

[@frankiefranklin9761]

I saw an older doc she was in from years ago. Hope she's doing ok The worst bit of the disease is they need less cals per day than the average person. So it must feel like a losing battle

[@THERTOGAL]

That sister is so lovely! I know she’s always known she easily could have been the one with the genetic defect instead of her sister. Can’t imagine what torture. The son who wanted to die is in peace I pray.

[@Orangeshebert]

I had no idea of this syndrome. My heart and prayers to these families.

[@C0FFEE_AND_DR4GONS]

The first woman seemed so sweet...she cleans for handy caped schools, and she's helping to find a cure..the second boy was....scary almost..

[@persimmons5390]

She is so lovely... she is in another prada wili syndrome doc a few years back. I'm glad to see she is still well.

[@unhiddenhistory]

The first time I ever heard of a disorder almost like this was in the story of Terrare (not certain of the spelling). He lived during the 18th century, and could never stop eating.

[@sarahrussell3219]

I was on such a high dose of prednisone for a while that I understand how horrible this must be. I could not stop eating. Dear God please help her and anyone with this disorder.❤

[@becca3146]

I’m not a medical professional so this comment should be taken with a grain of salt. The Tirzepatide GLP-1s, Mounjaro and Zepbound (I’ve taken both overtime, never at the same time to be clear) end the “food noise” and binge eating for me. They literally turn the obsessive thoughts about food off like a light switch. I don’t have the disorder that is the topic of this video (again for clarity) but I wondered if doctors who are experts on this disorder have considered that.

[@elliebellie7816]

Definitely something worth investigating.

[@kayleet8370]

Aww, no way Katie. I rem watching her in another dicumentary. Im so happy shes still with us 💓

[@megandolimpio6579]

What a sweet girl, so innocent

[@purplehearts3287]

This is beyond heartbreaking. My prayers go out to all the families. 💔🙏💜

[@kerriecu2]

Not Prader Willi, but many people taking some of the antipsychotic medications tell me they are constantly hungry and never feel full enough. They feel it as a constant battle as well.

[@diannejones3548]

I was thinking the same thing. I put on 50kg from them. I went from being too thin to obese. They made me constantly hungry. So hungry.

[@androgynylunacy]

Yup and if you pay attention to the thin or average sized criminals who end up on antipsychotics in jail, they all get husky or large.. I really feel like Depakote caused me to develop type 2 diabetes when I was a kid. Antipsychotics can cause diabetes and you can google it... :/

[@BadgerDevil]

I can't imagine how this must be for the people and the ones who care for them, with this disorder. To never feel full, just hunger all the time, that must be terrible. I'm just the opposite, I never feel hunger or thirst I have to set reminders to drink every hour or so, and reminders to eat.

[@michellesimpson6639]

I have the same problem and it is hard...people call me anorexic and constantly ask me why I don't just eat more...

[@BadgerDevil]

You don't feel hunger or thirst either? This may sound strange, but it is nice to know someone else has this. I agree it is very hard.

[@michellesimpson6639]

@@BadgerDevil It was a shock to read your comment because you are only the second person I have ever come in contact with that has this condition

[@BadgerDevil]

I was also shocked, I have never heard of anyone else with this. We are rare, that's for sure. 🙂

[@cameorose1431]

Wouldn't Ozempic suppress their appetite..worth a try...

[@MS-dg7vv]

Im so so sadfor this lovely girl xxxxxxxx

[@nutrirebyanaluarrivillaga2646]

Omg the interviewer has beautiful eyes 👀

[@buildTheWALLNOW]

So true

[@kathleendowner6503]

So gorgous❤

[@jokehokke283]

This is so sad. So difficult to deal with as a person and for parents. Beyond believe!

[@nicolebenson4517]

That’s so sad 😢

[@billmartins5545]

Letitia looks amazing, really well done.

[@katiedid1851]

God bless and heal this lady, and her family.

[@lyandrewmoraes5808]

There is a full documentry on this.

[@georgiamillis4218]

I can't imagine how hard this must be for kids and their parents. Oh my gosh, how terrible it must be to have to refuse your child food. It goes against your parental instinct.

[@adristrydom5154]

What an amazing wonderful facility. This is what people need who suffer from this disorder. This gives them a chance

[@zero_bs_tolerance8646]

Poor lady. That's a painful life.

[@marsilyalittlebird1504]

I have seen Katie and her wonderful parents in another documentary about this terrible disorder. There was mention of a possible treatment / cure using growth hormones but I think these had to be administered when the person is still very young in order to be effective. So sorry for Zoe dealing with the sad loss of her son, James. Thanks to those appearing in this program and sharing their stories with us.

[@juliefrayer7495]

Who is the reporter for this story? I can’t find the credits.

[@ninaappelt9001]

My parents' neighbor's son was diagnosed with this. They had to lock up everything that could possibly be consumed after he drank rubbing alcohol.

[@lovescatsforever]

My sister used to work in a group home for these patients. Everything in the kitchen had to be kept under lock & key. And she said sometimes when going for a walk she really had to watch them. They’d pick up gum or food scraps off the ground & eat it, or try to go through garbage looking for food 😞

[@moseschrute]

I work in this field. You feel like a prison warden and the tantrums are unreal

[@moseschrute]

I work in this field. You feel like a prison warden and the tantrums are unreal

[@2012BeyondtheWorld]

Antipsychotics make similar appetite problems.

[@floridagators4life]

Katie should have stayed in that gretton home instead of cry like a 2 year old

[@M-hc9xm]

Agreed. I can't imagine how hard it was for parents, but they needed to convince her to stay.

[@moseschrute]

I work with residents with PWS and tantrums and AWOLing are very common. You have to stay firm and set limits there is no reasoning with a client in that state. The key is a small snack of (non-starch) veggies every 2-3 hours to get them through to the next meal, and no “rewards” - a single piece of sugar free gum- if there are tantrums or non compliance between meals

[@lesliekloer8544]

I knew someone with PWS that would order alot of Pizza to be delivered, when they arrived with the pizza, she would assault the delivery person, steal the pizza and gorge.

[@anjayvonne1990]

Oh my gosh. That's so sad.

[@j.artiste8596]

That's not sad, that's scary. Being handicapped or hungry doesn't justify assault. Most homeless people are way hungrier than these people, but don't assault anyone.

[@anjayvonne1990]

@@j.artiste8596 It doesn't justify it, but it IS still sad. It's sad to be so out of control of your hunger that you attack others just to get it. That doesn't mean they don't deserve jail. Something can be sad and terrible at the same time. I stand by what I say. You may have your own opinion.

[@coffeeandcream4704]

That’s kinda disgusting

[@irmam8339]

That’s horrible

[@mariaferreras4369]

Sending love to you.

[@user-dl1yc8cb4l]

Is Semaglutide (ozempic, wegovy, trulicity, ect.) a possiblity to feel full for these patients ? Maybe this could be a group of people those drugs could legitimately help.

[@Sileaine]

Probably not if it's the brain rather than stomach but some of those meds change appetite

[@87nknight]

It helps your mind too I was thinking it would help

[@hallodida127]

Is there no treatment for this syndrome?

[@MrSzero13]

im just like wow.. there's alot of different types of "eyes" in this interview

[@user-og1nu5pb8c]

Amazing how she even manages to walk... Just the fact to imagine how much her parents had to spend on food because of such a kid...

[@rabbitholegirl1]

40kg in 10 days? Good lord

[@Mary1337]

No for real, I once gained 20 kg in 1,5 months. Thanks to medication. It was insane

[@rabbitholegirl1]

@@Mary1337 ouch

[@Tammissa]

I thought her name was FrancIe? I saw a documentary about her in the past and she was called FrancIe.

[@camc6864]

That was a different girl from NZ called Francie

[@Tammissa]

@@camc6864 oooohhh, thank you. They look similar.

[@jennywu73]

I don’t have this disease but I totally going thru something like this. I am constantly hungry. so I eat, but I don’t gained weight, which is weird. I eat at least 7-8 times a day. I’m 50 years old, and fairly healthy. I don’t know if. Should see a doctor.

[@Thyybunny]

from personal experience with things doctors cant see physically..Try going to a psychiatrist first, maybe you are stress eating? Have you been bothered by things lately? Its always worth to check on things that concern you.

[@kenwang9672]

It’s normal to have an appetite. The problem is over eating. Try different foods also maybe you are missing some nutrients. For the longest time i didn’t eat vegetables and later i realized i needed them to control my hunger. Probably i was lacking those nutrients.

[@georgiamillis4218]

If you're not gaining weight, this could have a medical cause for sure. You should see a doctor for tests, especially thyroid function tests as this could be hyperthyroidism.

[@mikafairystar]

How many calorie a day? Active lifestyle? 7-8 isn’t that crazy many people are snackers

[@ivebel3966]

check your thyroid

[@scottbakanumba1heathen313]

Saw something similar on tabloid cover in late 80s. I thought it was a joke.

[@lucila5466]

Earth is Hell

[@deepthoughts8393]

I’m convinced of this fact

[@karlabritfeld7104]

I notice she eats a lot of carbohydrates which stimulate hunger.

[@andrewattenboroughtwothumb4697]

one of my friends had it died at 27 years old because of problems related to prader willi syndrome

[@sarielle85]

Most Labrador Retrievers have a similar genetic mutation

[@justineelyseda]

Would something like ozempic help with this?

[@gottabesometime6632]

James didn't want this worldly life, as this world was way beyond James's dreams. He is where he needed to be from the day he was born, and NOW HE's the internal torment!!! He has LOVE beyond comprehension for his mum and dad....BUT HE'S SO MUCH happier and enveloped with LOVE that this earthly world couldn't give him. THANK YOU JAMES for allowing us your trust, and belief to speak on your behalf.

[@lindasimons691]

I wonder if ECT would be a possible “reboot.”

[@tantiaglae1043]

Had no idea this disease existed…so horrible 🥹

[@androgynylunacy]

Once a month to see a loved one seems kinda cruel. It seems like every two weeks could be helpful to her self-esteem. She might feel isolated and rejected by her family sometimes.

[@AyyRalphy]

Would a med that would alter ghrelin levels help? I feel maybe stomach hormones may be the answer to this condition.

[@ivebel3966]

it’s all in the brain, unfortunately

[@AyyRalphy]

@@ivebel3966 😢 horrible. Never feel pain and endless hunger eff that

[@ivebel3966]

@@AyyRalphy yes… it’s heartbreaking

[@stjohnbaby]

I had no idea,so sad.

[@visceratrocar]

There's less support in the US than in Australia.

[@elliebellie7816]

I think about eating all the time, too. As I'm leaving McDonald's, I'm already wondering where I can eat next.

[@carriecree1789]

I wonder if it's possible to introduce a different signal in that part of the brain that alters the satisfaction of the person. An electronic pulse or something. Em waves in the brain make the body function one way or another. Music therapy helps anxiety and anger, so the brain can be influenced. Keeping one's hands busy is a good option to help.

[@sarah-jaynemcdonald2594]

Say what you like about the UK government. They dl care for disabled people.

[@tb22k]

❤❤❤

[@motleymama6587]

Some of these comments are downright ridiculous 😂 do people not listen to the video?God won’t help them. Past life regression won’t either Or appreciate suppressants. It’s a cruel disease and the only way to survive is to live hungry your entire life.

[@cynthiaweygandt948]

Ozempic helps!!!! New info!!!!!people in research really care and help through medications. God helps them through people !!!! Don’t give up

[@peggypasson8794]

Strange really I've worked in psych for many years an this wasn't a issue back then ? Actually we had so much of the opposite refusing to eat purging they're food water toxicity but this must be or have been very rare ? 🧐 Idk

[@kaclama]

@@peggypasson8794 Yes, this is a rare genetic disorder, not a mental health condition.

[@megan8832]

I’ve heard from a mother who has a child this this that a lower carb diet has helped. I wonder if a carnivore diet would be even better. It’s zero carb unless you have eggs/dairy then it’s low carb depending on your amount. Maybe zero carb would be really helpful

[@buzzcutbiene2211]

But doesn`t the stomach hurt after a while?

[@ivebel3966]

they lack the feeling of fullness so no, it doesn’t. even if their stomach burst open they wouldn’t notice

[@coyotelong4349]

@@ivebel3966 I don’t necessarily know if they lack the feeling of fullness. I think the stomach could still hurt, but the brain would continue to say “you’re hungry, keep eating”

[@shelleyphilcox4743]

People who have Prader Willi syndrome have extremely high pain thresholds, but it is not understood what the underlying mechanisms are that suppress pain response or recognition by the body. Someone with Prader Willi syndrome might not even register severe pain like appendicitis.

[@raumsogg]

I read something about an appetite control supplement based on Indian cactus succulent Caralluma fimbriata extract... It seems to work, although there's only anecdotal evidence. But is it actively studied?

[@raydabbieri2769]

They need specific studies and drugs just for them. So far, nothing that I know of has worked. There might be some ongoing studies, but the appetite controlling drugs don't work on these people because that part of the brain doesn't function therefore there is no reaction with the drugs.

[@mikafairystar]

Even medical appetite suppressants like ozempic won’t work. They all target a receptor in the brain that controls fullness, these people don’t have that receptors to target.

[@Mel.H_]

❤❤❤❤

[@annakrishtal5292]

1 kilo is little over of 2 pounds

[@evelynlivingston6761]

I hope she doesn't eat her dog 😮

[@abeolivares7875]

Who’s the interviewer??

[@wowzatrishiebunz]

Her parents have done so much to help her and she keeps sneaking foods behind everyone’s back. It’s like being a hardcore drug addict that quits cold turkey. the eating. I saw the documentary on Katie where she went to a facility for a weekend and freaked out at the portion control of the guests. It’s so hard for everyone involved. I think she needs to be in a Prader Willie home in full time residential care. Katie doesn’t want to do the because she wants to eat what she chooses. I get that.

[@char7945]

Trigger warning for the needle scenes please