Polymyositis: Understanding the Rare Autoimmune Disease

[@christopherfothergil]

I had this illness here in the UK and my wife was warned i may not survive the disease. It was a Greek doctor in my hospital who found out the cause which was a allergic reaction to Citalopram anti depressive drug. I went from hill walking and driving to only being able to crawl on all fours and finally in a wheelchair almost death within two weeks. My wife was told to prepare for the worst. I was treated by high doses of prednisone steroid drugs and the change of anti depressant drugs. I was told 60% of my muscle mass was destroyed. yes as soon as i changed the Citalopram and placed on steroids with three days I left the hospital very weak but feeling a lot better.

[@MedicalCentric]

I'm deeply relieved to hear about your recovery and commend the astute medical attention you received. Wishing you continued strength and health.

[@Continental123-i2n]

How are you now?

[@christopherfothergil]

@@Continental123-i2n it took four years to get back the muscle mass i lost. But i am now fully fit, thanks you

[@Continental123-i2n]

@@christopherfothergil What worked- as far as regaining the muscle mass?

[@christopherfothergil]

@@Continental123-i2n i was put onto a very high dose of Prednisalone. I had a very high dose. My specialist said it was going to be a long process to get back to full fitness.

[@MuhamadYasin-ry5wf]

Thnak you so much I had an presentation you helped me so much❤❤

[@MedicalCentric]

@MuhamadYasin-ry5wf You are so welcome!

[@outofround]

I was diagnosed with poly after being on Atorvastatin for over a year. The rheum doc has me on prednisone now and I'm doing a lot better. I feel I've hit my low point and coming back up. Going for a biopsy...kinda scared.

[@MedicalCentric]

@outofround It’s great to hear that you’re feeling better with prednisone and starting to recover from the tough times. Feeling scared about the biopsy is completely normal, but remember it’s a step toward clearer answers and better treatment. Stay strong and keep focusing on your progress-you’ve got this, and brighter days are ahead! 💪✨

[@toolfoolmostrom6254]

My rheumatologist diagnosed me with this last month, she found it in my bloodwork

[@MedicalCentric]

@toolfoolmostrom6254 It sounds like your rheumatologist identified something important through your bloodwork. Autoimmune conditions or inflammatory markers are often detected this way, and it's great that your doctor caught it. Make sure to follow up on the treatment plan and ask any questions you might have about managing your condition. You're on the right track to understanding your health better-stay strong! 😊

[@toolfoolmostrom6254]

@@MedicalCentric it took me 10 years to get a diagnosis, but they were kinda stuck on my spine and neck being the culprit because of some injuries and degenerative disc disease. But that shouldn’t make my joints hurt like they do so I’m glad I finally found a doctor that actually listened to my symptoms and found an answer.

[@Shortzfire]

I am just 20 years old , i used to go gym just do some light body workouts after 3 weeks of joining gym , one day i felt a little bit of stiffness in my legs while doing squats , initially i thought it must be some niggle or tiredness even though i continued gym for another month with some light pain in my both thighs and then i discountined gym because of my tight schedules, so even after a month of leaving gym i had pain in both of my legs then i felt something unsual about it , after few days the pain extended to my shoulders and arms and soon after few days i was unable to sit down or even raise my both hands up , so later I got diagnosed and found out that CK(Creatine Kinase) levels are high in muscles and doctor advised to get admitted and later found these are symptoms of polymyositis and as of now i am treated with steroids, after 3 days doctor said i'll go through muscle biopsy........ Though i am a bit scared but i know that i will fight it and overcome ☺️

[@MedicalCentric]

@Shortzfire I'm really sorry to hear about the challenges you're facing with polymyositis, but it's inspiring to see your strength and determination. The diagnosis and treatment plan, including steroids and a muscle biopsy, are steps in the right direction. While it can be scary, the biopsy will help your doctors better understand the condition and guide your treatment to manage the symptoms effectively. Keep focusing on the positive mindset you've got-you are strong, and this battle is one you can overcome with the right care. Stay brave, and know that you're not alone in this journey. You've got this! 💪😊

[@elfrancoterador1961]

Present 👋

[@waelfadlallah8939]

U always are

[@elfrancoterador1961]

@@waelfadlallah8939 شكرا وائل فضل الله shukraan and i always will be😊👋

[@waelfadlallah8939]

@@elfrancoterador1961 good spelling 👍and you're welcome :)

[@elfrancoterador1961]

@@waelfadlallah8939 thanks alot.. actually im arab... from arab country what about you?

[@waelfadlallah8939]

@@elfrancoterador1961 same, from lebanon.

[@E-commerce-galaxy]

Does it effect life expectancy?

[@MedicalCentric]

Polymyositis can affect life expectancy, particularly if complications like respiratory or cardiac issues arise, but with early diagnosis and proper treatment, many patients manage well ❤️.

[@christopherfothergil]

your life is fine

[@litondas1656]

❤

[@MedicalCentric]

@litondas1656 Thank you! ❤️ If you need anything else or just want to chat, I’m here for you!

[@neetashukla5092]

Muje darmeto mayosytis h upay bataye please

[@LadyKestrel23]

Is this easy to test for? I read that blood tests can two if you have inflammation and muscle enzymes?

[@MedicalCentric]

@LadyKestrel23 Yes, blood tests can help in diagnosing conditions related to inflammation and muscle health. Tests can measure various markers, including: - **Inflammatory Markers**: Such as C-reactive protein (CRP) or erythrocyte sedimentation rate (ESR), which can indicate inflammation in the body. - **Muscle Enzymes**: Elevated levels of enzymes like creatine kinase (CK) can signal muscle damage or inflammation. These tests can provide valuable information to help diagnose underlying conditions. However, a comprehensive evaluation by a healthcare provider, including a review of symptoms and medical history, is essential for accurate diagnosis and treatment.

[@LadyKestrel23]

@@MedicalCentric thank you so much! I really appreciate your help! 🧡🧡

[@christopherfothergil]

they did a muscle biopsy to see how much my muscle had deteriorated.

[@TheMerdy1]

My mother has polymyositis for about year and a half. Shes 59, it all started almost 2 years after she lost her brother, could it be the starter? she also started smoking from that time... She had prednisone prescribed, and after a year she finally feels better. Is it possible to get rid of Polymyositis? To be fully cured?

[@MedicalCentric]

Here are some general insights. Polymyositis is a complex autoimmune condition, and its exact cause is not well understood. It's unlikely that the loss of her brother directly triggered the condition, but stress and lifestyle changes could contribute to its development or exacerbation. Smoking is generally not recommended for individuals with autoimmune conditions, as it can worsen symptoms. Prednisone and other medications are typically used to manage symptoms and control inflammation, but achieving a full cure for polymyositis is challenging. Consult with a healthcare provider for the most accurate assessment of her condition and prognosis.

[@TheMerdy1]

Thank you very much for the answer. So I understand it like this - your own T lymphocytes start to attack your own cells especially muscle tissues. Thats basically polymyositis? And the question is that now, after 2 years, although she feels better, if that T lymphocytes still do the same, or her immunity is basically back to normal, and the disease just vanished like covid or flu and it might comeback at anytime (age, smoking, stress etc.)@@MedicalCentric

[@ApostolosKatsioulas]

I must be infected with polymyositis, both my legs ache badly; it's hard to walk, it's hard to perform lunges, it's hard to lay down. It's been at least one month that this has been happening. I am scared to death and I have no idea how long the treatment is going to last.

[@MedicalCentric]

Polymyositis is a rare inflammatory disease that affects the muscles, causing muscle weakness, pain, and fatigue. If you're experiencing persistent muscle pain and difficulty walking, it's essential to consult a healthcare professional as soon as possible. They can perform a thorough evaluation to determine the cause of your symptoms and develop an appropriate treatment plan. While I can't offer a specific timeline for treatment, early diagnosis and treatment can lead to better outcomes. Remember, it's natural to be concerned, but medical intervention is crucial for addressing your symptoms and providing you with the best possible care. Please reach out to a healthcare provider to discuss your condition and receive the appropriate guidance and treatment.

[@bluewave7120]

Don't panic although possible your symptoms are more likely a less severe diagnosis The human body has very few ways to react to a wide variety of illnesses