Robert's Story | Pudendal Neuralgia

[@lukemarshall118]

I have this condition and I'm suicidal because of it. I just don't think this is something that I can accept as part of my life forever. It's been on entire year with this and I will try to get this cured but if it isn't then it's just not going to work. This is way more shit than I'm willing to put up with every day.

[@SMS.Productions]

Same here man, going to my first PT session tomorrow and hoping it can at least relieve this somewhat... this condition is a nightmare and sucks every last bit of happiness out of my life.

[@henrydenry9508]

Same

[@SMS.Productions]

@Jéssica Ferrari I have had phases of it getting better and then flaring up again. It is very difficult to get rid of it completely but I am hopeful because I got rid of a less extreme version of it once for a a number of years like 3-4 years ago. The moments when it gets better come after long periods of no sitting + smooth bowel movements thanks to osmotic laxatives. However, it still gets irritated for no reason sometimes but I guess you have to have persistence... Some PT exercises aggravate the symptoms but some are ok.

[@unorthodox7945]

Hey!! I'm suffering with this as well those suicidal thoughts do come but hang in there we will beat this in the name of JESUS just believe please.....

[@PinkFreud1987]

Hi Luke, I am so sorry to read this. I am in the same boat as you. Can you give me an update please?

[@1Daisycrazy]

Hi Robert or Dr. Ellkwood. What is the name of the actual procedure called?

[@nicolehayward7151]

Hi Robert, thank you for your bravery. I had 5 children and vaginal hysterectomy. I have now suffered with Pudendal Neuralgia for just over 7 years, only diagnosed for 4 of those years. I live in the UK and I have been unable to find any consultant to help me regarding treatments aside from blocks, which I have now had 3. One was diagnostic, injected into the Alcocks Canal. This took all the pain away for 48 hours. The other two were steroid injections around the lumbar region and both caused me dreadful flares and no relief. I am desperate for help, my pain score is high and I know that you understand what that means. I wish more was known about this condition and that treatments were at least explored as a daily medication schedule is far from ideal.

[@advancedreconstruction]

Hi Nicole- We treat patients from all around the world! For more information on our practice and our program please visit our website- www.advancedreconstruction.com/nerve-surgery/pudendal-neuralgia/ You will be able to fill out a request more info form and someone will be in touch with you. You could also give us a call 1.855.980.6981.

[@nicolehayward7151]

@@advancedreconstruction Thank you very much, I live in the UK is this something that you can help me with? Thank you

[@advancedreconstruction]

@@nicolehayward7151 please fill out a contact form online and we will get In touch with you and discuss options.

[@Truerealism747]

Hi ime UK had pudendal neuralgia 25 years I have lot of information been to hell and back also have fybro 5 years from the stress no need pelvic muscle stretch internal or do it yourself.diagram on Google also take lots of vitamins now starting gluten diet then check out TMS Dr Sarno ime here because if my family stretch the pelvis legs apart knees to chest the pelvic muscles are grabbing the nerve where in UK are you

[@Truerealism747]

@@nicolehayward7151 before you operate please try what I advice check out Dan pain free you

[@barneywaggles]

Robert, like you I have prostate cancer my only treatment are the Lupron shots. However, I have horrible pain diagnosed with PN. Can you please explain his procedure that freed your pain? Thank you!

[@pedroandrespalaciopalacio2028]

Hi, I am looking for some help. I have been suffering from pelvic pain or pudendal neuralgia for over 7 months, I got many symptoms : burning, aching paing and many others. If I am located in Colombia can you help me ? or I should fly in to your city ? Thank you so much in advanced.

[@advancedreconstruction]

We treat patients from all over the world and are able to connect with you via Zoom for your first initial visit. Please feel free to contact us! www.advancedreconstruction.com/

[@Truerealism747]

Mostly it's not the nerve it's tight pelvic muscles

[@Truerealism747]

@sessamy seasoning yeah terrible everything in this life is exploits for money

[@Truerealism747]

@sessamy seasoning yeah they all say diffarant to.mri found it did it are you ok now no pain effects

[@Truerealism747]

@sessamy seasoning yes they say mine is central sensitisation but all doctors say diffarant I've worked out I've got TMS

[@pratyakhiborah463]

Can workd PNE surgery of this problem sir?

[@advancedreconstruction]

Hello! Thank you for your comment. Please call our patient care team at 833-598-2419 who are happy to provide you with further information about the conditions we treat and whether we can assist you. Alternatively, you can fill out our contact form here: www.advancedreconstruction.com/about/contact-us. We look forward to hearing from you and discussing how we can be of help.

[@roblees6554]

Going to ask my MD for diazepam suppositorys. Lidocaine on q tip up rectum shows some benefit. Pudendal nerve is like a itch you can scratch, but feels like a tooth ache between your legs. Gabapentin and Oxycontin has side effects I hate. Just got MD to order MRI, then to urologist that for the most part was as helpful of a first year nursing student. He only suggested advil. Hopefully after MRI, to get surgeon that can help.

[@advancedreconstruction]

We are so sorry to hear, please call our patient care team at 833-598-2419 who are happy to provide you with further information.

[@jharrisusmc]

Hey Robert, did you lose any bowel or bladder function with the nerve ablation or nerve release surgery? I’m 39 and have severe pudendal neuralgia. I’m desperate for help. No doctors have been able to help me.

[@trickyhealth1993]

Enjoy PN is nothing try..

[@trickyhealth1993]

One day.Because that's psychosomatic problem.seek psychetric help. I recomended psychetric drug but doc. guidence important. 1.Nortipan-M(pregabalin75mg,nortryptiline10mg,mecobalamin vit.b-12 1500mcg) 2.mirtazapine 15mg 3.duloxitine 30mg-30mg(60mg) gastroresitant sustain release 4.stalopram(esitalopram10mg+clonazapine5mg) After pain go away reduce the dose. Meditation+excercise eliminated that problem(Mentally not physically remember)

[@trickyhealth1993]

@James Carroll i also suffering that problem at and i'm finally entirely heal.eliminated own

[@trickyhealth1993]

@James Carroll sorry to hear you but surgery not good choose.this problem is mentally not related to physically so may be surgery not right direction to heal.divert you mind another thing like study,teaching, you interested game,cycling,exercise meditation with pychiatric drugs(given comment section by me).real helpful for you and i hope as soon as your healing journey complete.

[@dr.reviewsfrompersonalexpe7603]

@James Carroll I have had left pudendal entrapment at the dorsal branch of the nerve from scar tissue , after yrs of dr to dr I finally got my old mri re reads and it led to getting a MRI neurography or MRN with contrast to finally diagnose the entrapment ant it’s location, I found a plastic surgeon to perform the release. 3T MRN is the best way to visualize the pudedendal nerve Most mri Machines are 1.5t, you need a 3t or 3 Tesla power. I had mine done In Houston

[@udaylove7158]

please tell me, does this cause scrotal sagging and penis swelling?

[@PinkFreud1987]

No it shouldn't cause swelling

[@SouravMax-dt8xn]

hey brother how you now