CRPS Diagnosis & Management - RSDSA

[@murielcotter5107]

I took my daughter to Boston Children's hospital for CRPS. They were so cruel to her. When her pain became worse they told her it was in her head. I took her to see Dr. Chopra on the recommendation of a friend. I am so glad I did.. Dr. Chopra is very compassionate. We were with him for 4 hours. My daughter trusts him and no other doctor to help her. She now walks without a crutches and will be graduating next year. He is such a kind doctor.

[@catelewis7223]

Sorry to hear that. It is the hardest thing I find dealing with how we are treated. Really adds to the hopelessness.

[@kellil2811]

I live in UK. I cannot find a doctor who even knows about CRPS. I saw Dr. Chopra and he spent 3 hours with me. His treatment has been so helpful. I cannot find someone here to help me with some of the recommendations that Dr. Chopra made but I am better than where I was. He is so kind, he gave me a lift to the hotel when the taxi did not come .

[@donmayer6906]

I never thought I would be able to walk again. Dr. Chopra has made me understand more about my condition than any doctor I have met ( I have met a lot). I have been treating with him for the last 1 year. I can now walk without any crutches. I have more good days.

[@janebyer1424]

The video is so informative. I have CRPS for 6 years. I have been to the Cleveland Clinic and all they wanted to do was to put a simulator in my spine. I saw Dr. Chopra 2 years ago and I am doing so much better. Thank you RSDSA for bringing us Dr. Chopra

[@vladziobriski4845]

I showed this video to doctor here in Russia. He has following Dr. Chopra treatment and is started to help me. I wish it translated to Russian for everybody here to understand.

[@johnmontgomery6663]

I have been researching CRPS for many years. My daughter has CRPS. This is the best and most comprehensive information I have ever seen. Thank you, Dr. Pradeep Chopra

[@aireenblake9743]

Watching Dr. Chopra's video brought back wonderful memories when I used to see him 5 years ago. He has helped me get my life back. He worked very hard at helping me and thanks to his help I live a much more comfortable life. Thank you, thank you thank you, thank you, Dr. Chopra

[@staceyharris2771]

I saw Dr. Chopra's speech when he accepted the Schwartz Award for Compassionate care. It brought tears to my eyes. His advise to me (even though) I am not his patient has helped me tremendously. My family and I thank this kind doctor with all our heart.

[@peterrosenfeld5644]

I took my son to CHOP for his CRPS in the leg. They were horrible. He come out worse than he went in. My son was terrified of seeing another doctor. I took him to see Dr. Chopra. 2 years ago. He was so compassionate and funny with my son that he felt right at ease with him. My son is back in school now. He still has his days but he is a deals with it much better. I cannot thank Dr. Chopra and RSDSA.

[@jamesl3224]

I have CRPS for 5 years. I lost my job, my wife left me. I was about to kill myself when I decided to give it one last try. I came across this video. I showed it to my doctor who was kind enough to follow some of the treatments. I am now 60% better. I exercise everyday. I am now looking for a job. Thank you RSDSA and Dr. Chopra for saving my life.

[@TheDimachaerus]

How are you 60% better?

[@tammydennis3660]

I have had CRPS seems 1997 then has move over to the right leg I have done it all injections they wants put in a Stimulator and I was trying to get a pain pump and they wouldn’t give it to me and I’m in the state of Washington they don’t recognize chronic regional pain syndrome

[@monicatomas9786]

He is so compassionate and caring. I had called him once to ask for his help. He spent over an hour talking to me. I am going to see him at the conference wherevere that is.

[@dinaking3825]

Finally, a doctor that gets it. They should use this video to teach other doctors.

[@julied8408]

Dr. Chopra's presentation is brilliant. I have learnt more about my condition than in all my visits to doctors. Thank you RSDSA for posting it.

[@clairbradshaw419]

He is brilliant. I have never met anyone who so passionate about caring for his patients.

[@ecoroco321go]

I have CRPS for 6 years .I am japanese women.Thank you RSDSA and Dr. Chopra.

[@pamelakilt6243]

What an amazing talk. He is so clear and lucid. This is the first time in all these years that I have really understood my RSD. I am going to discuss these options with my doctor. I am going to go for his next talk in Dallas.

[@catelewis7223]

I'm in Australia, I took part in a trial in November. They gave 4hr Ketamine infusions (3 times every 2 weeks) low dose in the stomach, very fine needle. 4hr infusion, then stay in hospital for 2hrs, nurses checking everything frequently. I didn't notice much difference with the pain during the first 2 treatments but really relaxed my brain. It definitely reduced the burning by the 3rd time. Starting to have some more pain after 1 month so shall be discussing w pain Dr a higher dose. It definitely reduced my sense of hopelessness, feel more positive.

[@johnnguyen7766]

Thank you RSDSA and Dr. Chopra

[@firecatgreg]

Really enjoyed watching the video. I feel sorry for those of you who have RSD and wish you all the best. This had good information. My mom has something that is not perhaps as bad as severe RSD, but is kind of like CRPS. She has a bad, rare hot burning condition that is localized in the feet called burning foot syndrome. The symptoms and spreading of problems through her body are no where near as bad compared to RSD, but she has debilitating 10 level pain, and has had it for 14 years, unable to walk and exercise much. Walks 25 to 30 feet per day with great pain. Has a hot version, compared to some with colder neuropathy with less burning flares. Fights burning all the time, cold environment helps some, the chilling of the foot. Her pain is constant. Some of the CRPS criteria, perhaps as many as ten out of fifteen symptoms may be present in her symptoms, so she has rare neuropathic damage. Primary EM is even more rare. We can relate to mental health misdiagnosis others see.

[@AmethystWoman]

Sounds like CRPS to me. Aboit 10% of us are helped by cold. I can be relieved now and then with cold booties I keep in the freezer. I consider myself fortunate. I'm not sure of the difference between burning foot syndrome and CRPS/RSD/causalgia (which those 3 are all symptomatically from the same list.)

[@AmethystWoman]

I have lived with CRPS for 44 years. I woke up from back surgery with it when I was 24. There was no treatment back then but I was doagnosed on day 2 which I didn't know was an amazing thing at the time. My surgeon, head of neurosurgery at then Peter Bent hospital in Boston knew what it was right away. Its only since covid caused a huge spread from the hips down, my colon, my ribcage, and my larynx, that I'm trying to adjust to a wheelchair outside my home. I hurt my back as a young nurse and have lived on disability my whole life. That was 1979, now I'm 68. Sadly, there is nothing that can be done to help me after all these years. I like that's its no longer just "untreatable" like it was for me then. Sometimes, the mental health effects are the worst part.

[@TheDimachaerus]

Dr. Chopra is very, very smart. I saw him in October of 2014, and he said I didn't have CRPS. Thorough diagnosis. He thought I might have small fiber neuropathy, and he was right. However, after the initial visit, the service and caring fell into the abyss. It was truly pathetic. I felt abandoned, and abandoned I was.

[@paulabillanes5084]

So sorry to hear this.

[@TheDimachaerus]

@@paulabillanes5084 I see you're friends with Traci Patterson? Colleagues or a patient?

[@paulabillanes5084]

@@TheDimachaerus I was her patient.

[@TheDimachaerus]

@@paulabillanes5084 I sent you a friend invite.

[@laurenhaas1933]

Thank you, thank you, thank you, Dr. Chopra. You are amazing.

[@susanwright4150]

Where is RSDSA's next patient conference? I really want to see Dr. Chopra's talk. My daughter has CRPS and I am trying to find a doctor to help her. I took her to Boston Children's hospital and they were cruel. She became worse after going through their program. I know in my heart Dr. Chopra will be to right person to help my daughter. His compassion shows in his talk.

[@RSDSA]

Our next conference will be in Dallas on Sep 7, Dr. Chopra is speaking again events.r20.constantcontact.com/register/event?oeidk=a07e99ut2fx2c1a67a4&llr=dhaazxbab

[@erinpal-born6276]

I've got crps and I'm a child. What I did was go to great Normandy street hospital and did 3 week rehab and I'm almost better.

[@GregHarlow1]

RSDSAofAmerica is there a link to the video of that and more recent conferences on this topic? A follow up to this? Thanks

[@jiffjiffernson7292]

Yeah - Good for you. Keep at it.

[@georgenelson987]

I watched this video again and again. Its so full of great information.

[@terew9145]

Excellent. .gratitude ever,..

[@RSDSA]

He is heaven sent!

[@clintonharold6235]

Thank you, Dr. Chopra

[@trevorthomas5711]

What treatment works to cure or help ease the pain ?? So many people say i'm better after seeing Dr. Chopra but no one says what worked for them . My wife has crps and has tried lots of meds but none seem to really work . She's currently on Gabapentin and some other new one , sorry can't remember the name. If i'm understanding what crps is correctly , is it your nervous system miss firing ?

[@colerxxx]

Caution: I have had RSD for 17 years. I can tell you this. The focus on "functionality is what insurance companies and Corporations WANT. What you will want is relief from suffering. Of course you want to function but if you word your reports of progress incorrectly, as they will lead you too, you will be taken off of insurance or SSI support. YOU MUST be careful of these doctors. If you report a pain reduction of less than 5 you will not qualify for disability insurance. They have several tricks to deal with you. One is to offer you intolerable amounts of physical therapy - you quit and you are in " non-compliance and disqualified. They may try you on greater and greater pain drugs until you say you are less then four. You loose there too. Be careful of how you say you are getting better. You pain can come back and you may have to spend 3 months to see a doctor again. Believe me, Your pain is what you say it is.They will try to tell you it is in your head In one way or another. They don't want to treat it. It is very expensive to deal with.

[@jannamwatson]

Thanks for sharing that. I guess that I usually have an adjusted pain index due to CRPS. I guess that I will adjust to the .25 increments... Like 8.75, and such. Good thoughts.

[@lillithbrooks4855]

Thank you for this lecture. I feel very informed now!!

[@karenmarcon2654]

Dr Chopra is so informative!!! I would like a copy of the handouts he referred to that go with this presentation. I've had CRPS for 2 and 1/2 years. I wish I had a Dr like Chopra in my area. I'm going to build a team!!

[@donnaklein7941]

Awesome video. Thank you

[@tomcullins5099]

Excellent !!

[@jimjones8268]

LDN getting my D3 level above 60 ng/nl has changed our lives

[@laurentverpeaux2281]

great video thank you, even if 6 years old

[@jannamwatson]

Minute 30. Low dose naltrexone discussed

[@BKRameshMishra]

Hello Dr. Chopra. I am a CRPS sufferer... living in Delhi India..Could you kindly let me know if you do visit india. I want to visit you but can't afford to go to USA... Kindly tell me how can I contact you..

[@Somuchfalsehistory]

I wish he was in Iowa Dr. Chopra call your people contact me ?

[@jasjud]

they want to put a pain pump in me im scared to death this is a condition that is an was preventible what they did to me was unreal they put a contaminated graftjacket in my ankle wouldnt take it out four 8 months oya n of course im the first person to have this happen to they killed me my life n now want to put this pump in what should i do n who do i turn to i have 3 young boys n a wife for now im 36 its had it for almost five years now an at stage 3 any feed back would b more than appreciated thanks for the video an keep up the fight dont loose hope rsders

[@shiarafigoni1464]

The medical field misdiagnosed me and I developed this. I had nuro lyme disease.i had to figure that out myself. I almost died.

[@donaldflaherty8278]

I wish my doctor would watch this. He could learn something from this. He is interested in putting a spinal cord stimulator in me and giving me narcotics.

[@TheDimachaerus]

"Improved function" = existence. You can't do anything for this disease...not really. Do you want to exist, or live?

[@Llynnyia]

Thank you so much, RSDSA and Dr. Chopra! I was lucky enough after 4 years to find a wonderful lady Dr. who knew of RSD but is not well versed in it, so I just sent her this link!