Son's Extremely Rare Condition Changes Family Forever

[@MrJking065]

Bless his little heart. I know the family does not want pity. But I do want to send my sympathy. The whole family is really awesome!

[@terryanngreen8814]

I am a mon of a 15 years old cerebral palsy and global developmenta delay son from Jamaica.....you guys are so awesome and i am applauding this entire family....I am a single parent and it is hard.....God bless you all

[@smugandsmarmy]

15:22 - Jess’s face is priceless!! You can see how much those kids care for each other. Well done mom & dad! ♥️

[@gottabesometime6632]

Nash's mum and dad...YOU BOTH ARE SO FRIGGEN AWESOME.!!! You have a challenging boy on your hands, who's hard to deal with at times, who's broken the strongest person's patience and spirit at the best of times I am sure. He's YOUR NASH, your SPECIAL BOY! What is seriously outstanding and super rare, is not only the services that are available for both NASH, but your other kids, as they are beyond beautiful, mega mature, empathetic and incredibly outstanding young kiwi siblings.

[@Bummer1980]

Y’all are amazing. All of your kiddos look so happy and loved. Y’all are doing a fantastic job raising your family.

[@holliewickens1318]

I'm a disability aid worker in Canada. Nash is such a Special boy and High five to his family. You are doing a awesome job with him! Plus his worker is amazing 😊.

[@LivingLorisLife]

Can u come to America and spread some positivity about our children with special needs! 🙏 Please 🥺

[@Kaz741]

​@LivingLorisLife it's pretty poor in UK to. Send some positive help over here to. Almost feel cast adrift ❤❤

[@angelblue7779]

I love to see when the whole family gets involved with the special needs child. It is so important for siblings to take part and learn about their brother or sisters disabilities. Helping take care of them helps them bond and lets them know they too are important in their siblings needs.

[@kortneykennedy7303]

Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body down that Al the way for me to see your body down that Al the way

[@kortneykennedy7303]

Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so if I ask you too play with your body down that

[@rachelstouwer244]

Love that the go-cart company has one where a child can ride with their guardian or another friend.

[@KaylaPearlCPNinja]

I wish this family all the best. As someone who has cerebral palsy with hypertonia which is also known as spasticity, I deal with the opposite problem of what hypotonia is. Hypotonia and dystonia tend to be more common in genetic conditions than they do with typical childhood disabilities like cerebral palsy.

[@dianajohn9701]

What an incredible family! So glad they have a carer for him so he can have some independence and the parents can get some time to recoup.

[@forgottenpixel]

I agree and it's SO important. It's amazing what just a couple of hours a week of help can do to totally rejuvenate oneself and then tackle the rest of the week.

[@violetmartha916]

What a beautiful family! Those kids are gorgeous. 💙🩷💙

[@gailhoffmann9498]

What an inspiring family. You are all awesome in your care for Nash. 😊❤

[@lornamoore242]

Beautiful boy with a beautiful family x

[@meganharrell1021]

Awe Nash what a handsome little Boy!!!!!!! I do know what it's like to have special needs, I have Down Syndrome and I'm 31. Someday I want to study all kinds of special needs and Syndromes' too as well to Inspire and to show Kindness to all Children and Adults with special needs, we can be so Inspiring to the world!!!!🥰🥰😍😍😍💖💖💖💖💖💖💖

[@SusieCairns-z7b]

What a dear little boy and a loving family

[@elizabethlode9822]

It takes a community and boy do they have a great one!!!!

[@kimberlieverschoor3814]

What a beautiful boy!! His brother and sister are amazing, too! Just one “criticism”, please put a life jacket on him, and everyone, really, while on the boat! Accidents happen and what a tragedy it would be to lose any of you! My husband’s grandparents died in a boating accident when his Mom was just 8 years old. The kids had life jackets, but the adults did not.

[@arla7247]

Such a beautiful family. Your kids are amazing

[@demongirl8338]

My brother and I are disabled too. We both have special needs. It's amazing how the family is with their special needs son. Beautiful family. ❤😊

[@traceyhellsten649]

Prayers of healing comfort 🙏

[@carolinegreen7043]

Great family. Im amazed what they have achieved

[@chanyphilly8266]

What a gorgeous family ❤

[@liandijonker6012]

He reminds me so much of the special needs boy wich I am a carer for. He is also on cbd wich is great for emotions

[@marcushokkanen9211]

I dont see any self injure, it looks good he can control it

[@abbieprice3430]

I like the youngest son’s mullet!

[@shauntayecooper9489]

I have mild cerebral palsy and I live in Texas I have other health issues

[@kathybrem880]

I wonder where he’ll end up when his parents are gone?

[@trailrider7046]

Video said he has a reduced life expectacy. Parents will outlive him.

[@Sinneration]

i do like the exercises. The one with the silver thing that the lady was walking him towards mom, well at midway I was wondering the belly peg was pushed uncomfortably.

[@trailrider7046]

What is the condition? I couldn't understand what they were saying.

[@annlewis302]

I wonder what this looks like for him once he is too big to be lifted onto activities, worth thinking about a portable hoist etc

[@Mandy87Marie]

Can this condition be tested with newborn screening, and is there any way to prevent it with diet or medication?

[@kathybrem880]

It’s a shame that they can’t do something

[@emersongarcia7128]

Brain damage before and after birth cannot be fixed

[@Mandy87Marie]

@ sure, any damage that has already been done can’t be fixed, but is there a way to stop progression, or stop it happening in the 1st place?

[@BShotz]

@@Mandy87Mariethere are genetic therapies in the works. It’s a problem of funding at this point I think. I was reading a lot about lesch nyhan recently and came across the youtube channel called Life of Davey who also has this condition. His mom has talked about the development of treatments and such.

[@melanytodd2929]

❤❤❤🙏🇿🇦💔

[@elainedavies1654]

❤❤❤

[@shepherdewan]

Cute 🐑🐑🐑🐑

[@R.Oates7902]

It's not rare if it happens to you!

[@NJSMKMMS]

True and unfortunately when a condition is rare there is often less medical knowledge, less research being carried out, less treatment options, less funding, less services set up specifically for people with that condition. So it's very much harder to deal with than some of the more well known conditions.........

[@lisajoseph5377]

❤🥰🙏🏽

[@steviethompson2065]

I have to wonder how the other children get on while all of this is going on with Nash? These parents are amazing to Nash and are handling the situation with such grace, but it doesn’t seem like the other children get any attention? There are 3/4 other kids present and they seem to be negatively affected by this.

[@cathykrueger4899]

Think of the effect on them of seeing their parents rising to this challenge and managing a cheerfulness that is infective. The kids sleep happy and they love Nash. This program was about Nash. Perhaps that is what you’re really seeing. Many parents of disabled children end up divorcing. These parents are still together and both seem to participate enthusiastically. I’m impressed. As disabilities in children go, this is one of the most challenging. He’s got good equipment, good intervention, and a supportive grandmother.

[@Bummer1980]

We are seeing a 20 min insight into a documentary on a child with a disability. The show is focused on the child with the special needs. I don’t understand how you can gather that the other 2 kids are neglected from a 20 min insight of a documentary that focuses on one child in the family. LOL!

[@steviethompson2065]

@@Bummer1980 i never said that they were neglected. They are probably treated quite well. But I don’t think they get all the attention necessary for children growing up as their parents are taken up by the situation with Nash. Obviously everyone is doing their best here and the parents are only people, I just wonder as to how the other kids are doing emotionally and developmentally.

[@IZaubermausI]

I have seen a family that does things together - with all children! I‘m sure the parents do all that is needed to care for all of them. And children who grow up with a handicapped sibling mostly become wonderful, caring people!!!

[@river8760]

It’s a doc focused on Nash, and it’s obvious all of their kids get loads of attention. They’re a great family.

LOL

[@familylove5412]

WTF WTH

[@LectronCircuits]

Nash can't play with a lot of normal toys. Per chance some abnormal toys are in order. Problem solved. Cheers!

[@melindalemmon2149]

The carbs in that formulae are extremely destructive. There are alternatives to the sugars, industrial oils, and high processing of this awful formulae.

[@mikeross7990]

Diapers boy

[@Norannebluwitch]

How do they know he understands?

LOL

[@mikeross7990]

Diapers boy