The Story of 2 Disabled Brothers

Luke and Matty are disabled brothers who will both always need full-time care. Their parents are learning to balance the responsibility of parenting with the reality of caregiving now that both their children are entering adulthood. This family knows they are unique, but they hope others will take the time to understand their story.
Support SBSK at / sbsk
You can follow this family at / courageoushumans

[@lovingmayberry307]

I feel a sadness in the dad. I think he wants to give his sons the world, and worries about how they'll be after he's gone. That's a heavy burden, and I wish them all the very best. ❤️

[@shadowcat6832]

I can tell that Luke really has a great understanding of the works around him, you could see him nodding and verbally acknowledging things he agreed with when his parents said them. A great reminder that nonspeaking doesn’t equal not understanding!

[@fruit032]

Yes! ❤️

[@skypie5374]

Very smart kid that’s for sure

[@Lroselovely88]

His verbalizations are quite clear as well as his great use of ASL!

[@fruit032]

@@Lroselovely88 absolutely! My littlest one is 3, non verbal autism. I can only dream and pray that she'll be able to cognitively understand and use ASL as well as Luke! ❤️

[@CATNAPREAL1188]

Well Said ! Kinda like when anyone is in a coma , you should NEVER SAY ANYTHING THAT MIGHT UPSET THEM BECAUSE JUST BECAUSE THEY CAN NOT RESPOND DOESN'T MEAN THAT THEY CAN'T HEAR "" EVERYTHING "" !!! ❤ 2 ALL!

[@deborahfranklin9370]

This channel should be part of college special education programs. I am a former special education teacher and this channel is top notch. Thank you for showing the world what empathy and compassion really is. ❤️

[@cwoo4819]

And high school requirement for graduation

[@roxannemoser]

It's my very favorite channel. I have a sister who lives with me, who has trisomy 21.

[@malisau3566]

Agree

[@kaylastyll9251]

I used this channel as a source in a presentation about communication disorders in my special education class. Everyone loved it and my teacher said he will be using SBSK in his future classes❤

[@waverlyglenn9964]

@theashwoodfaerie Has Chris said that in the past?

[@elsiebee2888]

These parents must be exhausted. They seem like beautiful people, I hope they have a support system so they get to have a bit of a break.

[@Velgaxxx]

however, the support system got their sick sons. If not for the modern treatment, these sons would have left sooner and made their parents free of the anguish they have to go through daily. And that would be natural and normal.

[@rebeccac.1758]

"we knew right away that we loved him" as the mother of 2 disabled adult children, I feel this deep in my bones.

[@bcaye]

I'm not a mother at all and it strikes me hard. This is the epitome of loving parents and I can't say how touching it is.

[@walbaum1813]

Bubu

[@cheerubebayonettaholopaine2638]

im no mum myself, but i work with people with disabilities. its my mainjob. i cant tell, how much more natural i feel at work, with them. every single characteristic and special need makes every person unique. i know, people dont want to hear, but every person with a special need seems to be a gift to the world. they tell the truth, they show us, how true living works. in so many ways. sorry, for my bad explanation quality in english. but i hope the positivity was transported.i mean, look at luke, id right away know what to work with him! hes such a bag full of joy!and matty is for sure deeper than he seems on first sight. those eyes were active 😊 im sure, your 2 children are just the same gift to the world 😃🎉 all the best to you!

[@gmagain]

Same

[@tokkirot]

​@@cheerubebayonettaholopaine2638 your english is perfect, better than some native speakers, so don't worry at all! your point got across perfectly you do great work, I hope you're still taking time for yourself

[@SherryAnnOfTheWest]

I really like these parents --- they aren't the "isn't everything rosy" kind of people who have to put on a good front for others. They express their frustrations and heartbreak - realistically - as well as the things they love about their sons. These people have a lot to deal with ---- but they don't fall into that trap that everything has to be perfect and "a learning experience" for Matty and Luke. I really hope there is some kind of support for the family so the whole responsibility of the sons takes over. I know they are the main focus of the parents' lives, but they need to have some respite.

[@chaoticmamaof2]

Sherry…You totally get us! ❤❤❤

[@HonestlyHolistic]

Agreed!!!

[@5thdimension625]

The parents grief is palpable. But so is their love for their sons. I pray they meet each day with all of the resilience they display here. Such nice people.

[@darleenmccauley8220]

Who will care for the brothers when parents gone. Imagine difficulty adjusting from home to institution

[@missjo2036]

You can see the worry in there dad's eyes. He's wondering what is going to happen to his kids when him and his wife pass away. I loved this episode they were very honest and didn't sugar coat anything.

[@alicemarthedooh3031]

Que Dieu les aide et les assiste

[@smollilbean]

I wish they had at least one able bodied child so that they wouldn't be faced with the sad uncertainty regarding their future when they're gone or just outright physically incapable. And I know it will be expecting too much of the able bodied kid and it will be hard on hypothetical him/her but better have a sibling take care of you after your parents than someone else, like the mother said who'd more likely do a terrible job and not have any emotional attachment and ever "truly" care for them. I'm the eldest of three siblings, all of us are without special needs. and my youngest Sibling is 15 years younger and he's just 4. I would do anything for my siblings tbh. Bless this family and I hope they have it good. Luke's affection to his mother like every 5 minutes is heartwarming to see and he's so cute.

[@lisaellis2593]

​@@alicemarthedooh3031Amen .

[@TheAxeaman]

Is there no care for special needs people in the USA? My aunt is special needs and she’s been able to live in a home for people with special needs her whole life.

[@JenAmazed42]

​@@TheAxeamanyes there is care available. Most of our institutions have closed, the hospital type settings. Now we have what are called "community homes" in my state (Tennessee) It can be anywhere from one person to 4 roommates, some times more if the house is big enough. Ive worked in those homes and I have a family member who lived with me for 2 years after his mother died. Hes my little cousin. He turned 21 with me and i wanted him to stay with me. His mother wanted him with family. But he didnt have a conservator so he was able to make his own choices as a legal adult. He chose to go into a community home. He lives with a couple other males his age. They have "support people" around the clock. He has a job in public and has a "job coach" with him when needed. So youve got the support staff and there's also a care coordinator, who in his case works his state medical insurance provider, that acts as a case manager. Then theres the hierarchy within the agency that employees the support staff and runs the home. Some people have one on one supprt staff, some homes have one support person to 4 people, depending on the needs of the people. They help them with all things daily living. Whether it be dressing, eatinf, shopping,paying bills, getting to the doctor, going out to eat or other places want to go. But most people would have their person with a family member if theres a choice because family is seen as safer, more likely to actually care about the individual, rather than just going for a paycheck.

[@dreamflight6000]

What great people. Those boys lucked out with beautiful, kind, compassionate parents.

[@luvhorcez2162]

And at the same time those parents have obviously been blessed with two wonderful boys. It's so cool how they bring out the best in each other 😊

[@ThattechniciangirlB]

Absolutely ❤️ I just wish they would’ve been able to have at least one able bodied child so that they would know these two would be well taken care of after they’re gone. I’m sure that’s very heartbreaking for them, but also at the same time, they are rocking this. They’re so amazing and positive about it all. I would LOVE to meet so many of these families. And just give these kids or adults a hug, or just be a friend to them❤️

[@clauescorpio0825]

​@@luvhorcez2162Y al mismo tiempo se nota,lo dicen,que están Muy preocupados por el futuro de sus hijos,miedo de quedarse sin fuerzas,de no poder cuidarlos...de faltarles el día de mañana...quién los cuidaría?😢😢

[@franceslovato9842]

They are truly blessed.

[@grammichal6759]

@@ThattechniciangirlB Look around your area. I’m confident you’ll be able to find someone to support. God bless you❣️✌🏽

[@classicalroach]

This was one of the most powerful episodes. These are raw, uncomfortably honest conversations. These are painfully open-ended and unresolved issues. Thank you for opening up the space for voicing difficult situations. I wish you didn’t cut the video so abruptly. It’s okay to say these hard things. It’s okay to feel like this. These parents have very impressively analyzed the astonishing complexity of their sons’ needs and their challenges. Thank you for magnifying the intrinsic but often ignored value of silence.

[@kavitadeva]

Greatest comment. The entire comment, so poignant So incredible. Thanks.

[@H4CK41D]

the abrupt ending during that convo was a little jarring but it definitely made it hit harder and I'm grateful they included it. all the best to this lovely family for sure

[@WorldOfNicky]

I wish I could express how much your comment spoke to my soul, in the beautiful way you articulated your thoughts. I could read every comment you leave around KZbin and never get bored. This was a breathe of fresh air. Thank you @classicalroach

[@SusanMorrin]

I totally agree that the video should not have been cut like that. It's almost like saying 'we can't go there or discuss that thought'. But we can and should. It's about being honest and recognising the reality. Beautiful family and may god bless them.

[@willow_jayde]

He tends to cut a lot of his videos like that. Sometimes they run out of space sometimes when some families it's hard to figure out how to close the video. They don't do it every time but they aren't all perfectly mastered finishes. Usually the ones that cut off like that get ppl thinking about the real people he's interviewing in the video and not their editing skills. It drove me crazy at first too, til he explained it in one of them

[@lisawhereisthecultjam]

How do you say happy? “Momma!” I literally cried. How beautiful.

[@LynnAgain83]

I love them so much! Oh, the mom & dad are absolute angels! 🤗

[@kayleemariee239]

@@LynnAgain83a whole bunch of incredibly beautiful beings. we could learn so so much from this family!! i feel lucky to have been exposed to them.

[@MypronounIsKing]

You are delusional. he said that because he can’t say anything else

[@lisawhereisthecultjam]

@@MypronounIsKingmaybe. I couldn’t do what these parents are doing though.

[@girlcalledheaven]

"We feel trapped when we feel like we don't have a choice...but we do have a choice." Such impactful words from this mother. I hope that the parents are able to get respite care from time to time so they can recharge and rest.

[@brainwithani5693]

It seems like Luke actually has a lot to say and he's trying. It's interesting to imagine what must be going on in their minds. This is such a warm family. I wish them all the best.

[@FrantzVissarionovitch]

His dad can understand him and hes like nodding and being positive like wow

[@wmd40]

When he brought in his Woody toy to show the camera!! That was so cute! They were talking about connecting with Luke and he went and grabbed his favorite toy. He's so cute and understands what's going on

[@cwoo4819]

He knows what the parents are saying. You can tell.

[@carleehooley6338]

Does Luke have Angelmans? Does anyone know?

[@WOLF-hi7ow]

idk if you've seen the Whittakers but it's kinda like the guy who barks to communicate. I'd be so interesting to know what they're thinking.

[@HeisenbergFam]

That ending where they talk about how they have to die together is brutal, nice parents taking care of disabled people

[@mash3014]

im confused did they acc mean that they would like to pass away all together like they plan to?

[@jessdrewthis]

@@mash3014I think they were joking, a bit of dark humor to lighten a difficult situation. But it’s true that some parents of adults with profound disability hope they outlive their children. It’s hard for parents to bury their kids but for some it’s unimaginable to think of who will take care of their kids when they’re gone. Too many care facilities are poorly operated and they don’t want their kids being abused.

[@jrahn66]

Very true and well spoken. @@jessdrewthis

[@aurorarockman9389]

Luke fascinates me. If you look at his facial expressions when other people are talking you can see his intelligence. I really hope the family finds some sort of technology or method of communication that fits his needs and enables him to communicate better.

[@bigboredthing]

That struck me as well. There's absolutely nothing wrong with his intellect, he just can't communicate.

[@DavidArriola]

I was thinking exactly the same. His eyes!

[@chaoticmamaof2]

Hi! Luke’s mom here. He actually has an iPad and uses a communication app. He has over 50 signs. It’s the auditory processing that makes him frustrated. We were trying to keep him from getting frustrated. When people talk a lot to him he gets overwhelmed. I really should have showcased his communication abilities but wanted him to have a calm interview. 🥲

[@adamw7340]

​@@chaoticmamaof2 you and your husband are doing a great job. I can just feel the love pouring out of the screen. Thank you for sharing your story and family with us.

[@daveweaver3886]

Agreed! I especially noticed this at 15:15. You can tell he's comprehending and I feel I'd get along with him just fine.

[@SharonHF]

I wish we could see or hear the rest of what the father was saying at the very end. Obviously these are two very loving parents, but spending every waking moment as caregivers instead of having a life outside your family.. you can feel their burnout.

[@christinak2487]

I have 2 special needs kiddos & felt a huge connection with this Mom. She has a wonderful way with words & the ability to verbalize much of what many of us feel. I really enjoyed seeing her bond with Luke & how she validates him daily.

[@courtney9212]

Yes! It is so validating & comforting to hear my thoughts and emotions and even fears comming out of someone else❤

[@sherryab3964]

Much respect and love too you ❤❤❤❤

[@JessieInTheSky09]

I loved that she was honest about the burnout and it seems like everyone in the room understood and didn’t demonize it.

[@courtney9212]

@@JessieInTheSky09 yes😊

[@Kibaheart]

My brother has kabuki syndrome and the mother's words brought tears to my eyes, I know exactly how you and her feel. Some days it's overwhelming and honestly I don't know if I can keep it up

[@uteswanepoel5602]

I love how Chris always so carefully follows the caretakers directives on how best to communicate with the other-abled people in the interviews. For Matty: “the sound of silence” is the way to go ❤

[@lulumoon6942]

Indeed. He is a special vessel of love. 🙏

[@bodang158]

Other-abled. I like that.

[@ryan-anarchist-2535]

@@bodang158 disabled people almost always prefer the term disabled. We dont need to tiptoe around it, or pretend that disabled people don't have barriers in life by saying "other" or "differently" instead of "dis-"

[@smollilbean]

​​@@ryan-anarchist-2535so agree with you. Why do some people treat "disabled" like a slur? They have special needs and they're unable to perform certain daily functioning tasks on their own.

[@childofcascadia]

@uteswanepoel5602 Please use the term "disabled". Dont use cutesy term. I am physically disabled. I am partially paralyzed. I am not "other abled" "differently abled" or any of those odd terms ables come up with because they seem to think "disabled" is insulting to us. Its not. Disability just is part of the variation of human experience. Dont pretend like disability doesnt exist by trying to erase it from language. Acknowledge it. We dont find it insulting.

[@oliviae2176]

“When you love someone so much, it’s excruciating walking through their struggles with them.” - That hit me so hard because it is so true. I pray the very best for this family. God bless them

[@DudeWhoSaysDeez]

It must be tough to know your kids will need forever care, yet not know where they might get that care.

[@newgrandma979]

I know what happens to these adult boys when the parents pass?

[@LindaKayHolevas]

@@newgrandma979My oldest son has a son who is autistic. At this time he works two jobs to ensure that when he’s gone, there’s money in a trust account to take care of Riley, if needed. It’s a facing reality moment for sure, but it’s necessary. You not only need to give them the best life possible while you’re here raising them, but you need to give them the best life possible when you’re not, and that requires a lot of time, money & planning. I am thankful my grandson (he’s 8) is no longer non-verbal & is high functioning. We are hopeful that he has a bright future & will be able to take care of himself. Hope for the best and plan for the worst. ❤

[@cwoo4819]

It's more than tough. It consumes your soul. It's all you think about all day and keeps you up at night.

[@Fretube]

​@@LindaKayHolevaswow its good to hear that your grandson is no longer non verbal. May I ask at what age he started speaking?

[@LindaKayHolevas]

@@Fretube I apologize for my delay in replying to you. I just saw your comment. My grandson was almost 6 years old when he started talking. A lot of what he says is Echolalia- he repeats what he hears other say, but he’s slowly learning how to use words to communicate properly.

[@anaishealy5073]

I'd love to see a longer more in depth interview of the mum and dad. Together as mum and dad and then individually. I feel they have so much more to say, vent, express. I found what they said very interesting. I absolutely love the honesty in these videos, it's nice to be able to listen and ask questions and discuss in the comments section about topics that are sensitive, difficult or just not talked about. I hope you're all well and as healthy as you can be.😊 ❤

[@sternzeichenlowe7958]

Мне тоже кажется , что тема недосказана и нераскрыта до конца .особенно _ Sexualität von Jungen Männern .у парня есть потребности , это очень заметно в поведении и общении , думаю , ему хочется нежности и любви .но как быть в таких случаях ? по рассказу многих людей, которые в теме , таким людям нужен секс , и они начинают проявлять свои эмоции к родственникам _ матери , отцу , сестрам , братьям .эта тема неудобная и возможно неприятная и часто тема замалчивается , но она присутствует .и это проблема для семьи , которая имеет взрослых аутистов мужчин .

[@neva.2764]

​@@sternzeichenlowe7958I know that there are sexworkers/call girls specifically for disabled people. Maybe that would be an option?

[@lotusmantis9152]

​@@sternzeichenlowe7958​ That's a strange thing to bring up. Some people with autism act and think a lot younger than they are so I don't think this kind of thing is healthy to think about. My young daughter hugs and sniffs me similar to Luke, it's sensory based, nothing to do with what you're suggesting.

[@PurpleNoir]

@@neva.2764 Consent is a big issue here. Also….pr*stitution is not exactly a great thing.

[@heatherelizabeth9008]

Agreed and I think it's important. I also think parents of special needs kids need a reliable source of support and get breaks.

[@JayJay32186]

Luke is extremely communicative! When Chris asked, “What would you like the world to know about Luke?” to the father, Luke got up and retrieved his Woody doll. The world should know I love Toy Story and Woody, in particular, Luke’s actions say. I think Luke is extremely intelligent, but his communication just looks different. I think if we could read his mind, his thoughts would be just as complex and articulate as ours. I also think he was playing a game with his mom when she was telling him to quiet down, and he intentionally got louder! 😃 I love how she laughed at that instead of being mad. What magnificent parents. The raw honestly being articulated is so liberating and validating to all parents feeling the same things. And Luke’s affectionate nature is incredibly endearing.

[@utoobdork]

There was over a minute between when Chris asked that question and when Luke wandered off, came back and showed his toy for 2 seconds, wandered off again, and came back again bouncing around on the couch. Luke had no comprehension of the question. He just has a toddler's hyperactivity. "Extremely intelligent"... I'm all for some positive vibes but the unbelievable level of delusion on this channel is too much for me.

[@Raven-pr6vd]

He is not extremely intelligent. He literally has a developmental disability...

[@smollilbean]

​​​@@utoobdorkthe thing is we really do not know what's going on in their minds, his coginitive and receptive ability might as well be very functional but obviously the expressive side gets lost and he's not able to communicate very well. So we don't know if he REALLY has a toddler's hyperactivity, the better out of two is just think of the best. Because he really does seem to be listening and nodding. He also answered Chri's questions of whether he liked to be hugged or given a hand shake. And his mother in the comment section told that he has a communication app he uses on his iPad to communicate. And he has over 50 signs on It that he uses and it's only the auditory processing that makes him frustrated. I honestly think he's able to understand and does not have the ability of a toddler.

[@rymacreeks2k07]

exactly, i like this channel but it's just delusional to believe that luke has a mental capacity anywhere above that of a 4-5 year old@@utoobdork

[@raato8235]

Extremely intelligent😂 yeah, right

[@segafox]

It was jarring to end on that note, but so important, I think, to see the reality of being 24/7 caretakers to two adults (or near) with significant needs. So much love and hope and amazing progress (Luke has fantastic communication, and it's clear that it's getting better all the time!), but also exhaustion, fear of the future, and the guilty feeling of feeling trapped and forced to live a certain way forever. I'm glad the parents were open and honest at the end there, and I hope that they have an outlet (therapy, perhaps?) and respite options, even if just for a few days of the year. They clearly love their sons fiercely, and it's reflected in the obvious bond both boys show in return when interacted with. What an amazing beautiful family.

[@OpalLeigh]

I actually appreciate that SBSK isn’t censoring those hard topics 😢 I’m a person with a disability myself, and it is NOT sunshine and roses and inspiration a lot of the time. The world is still not very accommodating for people with disabilities and it could be so much more ❤ the only way to change that is to talk about it. These are authentic issues that people with disability’s have to consider.

[@girlcalledheaven]

@@OpalLeigh I have always loved that about SBSK. I cannot deal with "inspiration porn" and presenting disabled people in a way that does not show their full truth. Chris and Alyssa have mastered the ability to give us an empathetic and compassionate, but realistic and honest insight into the lives of hundreds (if not thousands at this point!) of people who otherwise wouldn't have a voice.

[@H4CK41D]

well said guys

[@taintunicorn]

Same. Glad it wasn't cut out. Love the honest conversations.

[@teiraholmes2596]

Luke is a real good looking guy! U can tell that he has so much heart! And, Matty- it seems like he just likes being around people who want to be around him! Such sweet boys!❤️

[@chaoticmamaof2]

Hi! Luke and Matty’s mom here. You are spot on!

[@5ofakind623]

He is a good looking guy...so loving ❤️ 😍 💖 his mama is great

[@cookiepartyyy]

You can tell how much Matty loves his dad by the way he responds to him or how he seems to be looking for Him when he’s not there

[@stepha2642]

Luke knows whats going on around him and understands whats being said. You can see that he is trying really trying to communicate and has found ways to let his parents know what he is saying and getting them to articulate it.

[@smollilbean]

His mother in the comments said that luke uses a communication app on his iPad and has over 50 signs that he uses. So that's nice.

[@MissEAG]

I feel very connected to Luke, like I really wanted to understand what he was trying to communicate. I understand he is non-verbal, but felt he really had SO much he wanted to say... I hope one day he is able to do that. When I was younger I worked at a community center where we had a very special child with autism who was non-verbal and a few years later he was taught how to use a computer and type somehow, and he finally was able to express that he was trapped in his body and was able to write the most beautiful poetry about his life.. It was so incredible.

[@LynnAgain83]

I can write much better than I speak! 😊 ppl sometimes get annoyed at my lengthy emails, texts, etc but they don't understand that I can't express that in person especially with those I do not know very well but if I am told to email them or text we'll, be prepared for a story!! Ha! 😁

[@s.ummali9664]

What a beautiful mother and father ❤️💪🏽 you guys are an inspiration to me.

[@openminds8765]

Amen - AMAZING Mom and Dad. Such a challenging situation but they have keep it together and thrived. Know all of our good positive energy is with y'all in the rough times.💫 and so happy for you in the good times.

[@Suki-Tawdry]

Same here. They are such precious kids and parents. I strive to be a good mom to my kids. Hearing about how we need to have more patience is a wonderful reminder. Even when things are hard, we just need to take the good with the bad. Enjoy those happy moments.

[@Showmaann]

To all of us

[@AbbyKuusisto-wp7bc]

Agree!❤❤❤❤❤

[@RobVespa]

Thank you for mentioning the father. So many comments on this wonderful story and comparable videos (and many videos on parenting in general) often focus solely on the mother or female caregiver.

[@berry42069]

I love how Luke and Matty each have their own ways of responding and connecting with others.

[@DonnaMotta-xt9ix]

I feel for all of them. I had a mentally & physically disabled daughter who died at 30. She had a twin sister who died at birth. Jessica was very sweet but could not walk. She talked a little. I know how hard it is to deal with one child like that but two I can't imagine. God bless you all. It was very touching.

[@wildmist93]

Luke’s connection with his mom is insanely sweet ♥️♥️♥️

[@TVHouseHistorian]

I don't know which one I feel more love and compassion for - mom or dad. Mom's a complete angel, and you can tell dad is ALL IN for his family... I love all four of these people. May the Lord bless them and keep them ❤

[@Bretagnething]

It's so, so important and brave of them to have opened up about the realities of parenting adult children with extreme disabilities. There are no days off or even hours off (unless you can afford to pay someone of an appropriate caliber to give you that time). It is unrelenting, truly, and the burnout is so real, it's omnipresent. I pray for better,more sustainable caregiver options for the future: as it is, professional caregivers are paid so bleakly, their own burnout causes constant scarcity in the field. One day we will all see each other's humanity and realize where we most need to support our communities.

[@Kaxxonxbox]

Agreed! They’re amazing not only for their sacrifices but also for sharing this with all of us! It’s so important to give a voice to someone who can’t physically speak for themselves, or at the very least help spread awareness for people who live with special life challenges. I hope this family can find fulfillment and get everything out of life that it has to offer them ❤

[@Sunsetsnail99]

I know I wish there was a gofundme set up so these parents can get a break

[@irock101402]

Luke is so much more aware and present than a lot of people probably give him credit for. When he was atiing with his dad and dad was asked to tell us about Luke, he was quiet and looked to dad and almost prompted dad to answer. He seemed to try to encourage dad to talk about him. When he got up to get the Woody, it almost seemed like he was trying to tell us about himself. He brought the Woody almost to encourage dad to tell us about Woody being his favorite and then put it back and came back and sat back down. I think he is much more present, aware, and capable of communicating for himself then it even seems.

[@ge_mail]

With all the distractions of this world ... this channel forces you to be human and feel again. Thank you 🙏

[@ari0623]

Well said.

[@teriteri4971]

The mom's tidal wave analogy is such a beautiful and accurate way to describe parenting a child woth special needs. These videos have benefited me imensely because i often feel alone in my situation and feelings. I totally understand the feelings of being trapped in your situation. It feels like life made the decision for you. Its hard when you cant spontaneously make a doctor appointments or have coffee with a friend because there are limited people that can care for your child while you do so. I'm adding that I'm so glad Chris has the means to continue these interviews. These interviews make me feel less alone and I always learn from how others are making things work despite obstacles. I could totally see this mom being a good friend and being of similar age.

[@aliciasepulveda8493]

You can tell Luke is mommy’s boy!❤ It’s so funny and cute how he is so calm with his dad but with his mama it’s all kisses and hugs😂

[@johnsobs9579]

This dad is the most drained, exhausted, defeated looking man I’ve ever seen. The saddest eyes I’ve ever seen. Poor man.

[@tsukigant4070]

Although Luke is not able to verbally communicate, there is so much emotion in his eyes. Matty and Luke seem like amazing humans along with their parents. 💕

[@michaelbyrne5507]

I've followed SBSK for a long time. These are the most caring parents I've seen. Great video.

[@roseteax]

It’s beautiful how much the boys love their parents

[@TheCohesiveGarage]

I appreciate the open honesty with this family.

[@jeenafurlong5424]

Every time I've clicked on one of your videos I've been so grateful. I've grown up with an autistic brother and I feel guilty that I've not as accepting that he just has different needs. You've helped me remember to lead with love and compassion every day, for others as well as myself. You have an amazing impact on this world!

[@lavernevictoriacarol4531]

Luke giving Chris a hug was absolutely priceless. The love of these parents is so prevalent. I appreciate their honesty. Praying for them to be strengthened as their daily and future choices present themselves.

[@jacobnicodemus1051]

I’d like to give both parents a big hug. Thank you for your honesty and willingness to be vulnerable on camera. Your boys are beautiful and I’m rooting for all four of you. ❤

[@mariedoring8080]

God Bless this Beautiful Family I have a 40 year old Cerebral Palsy Daughter- I am 73, the terror i have that my time on this earth is coming to an end . All I hear are horror stories of these care homes. People think your awful when you say, I wish we can go together. Someone please find us Safe Homes for our innocent children when we pass on

[@jazmineK90]

My heart reeeeeally goes out to mom I understand exactly what she means at the end of the video when she talks about her limitations because we can only control things for so long until our own bodies and minds start to give out on us… and she has had her hands full for so long. God bless you and your family from mine to yours! ❤❤❤❤

[@createconsiderconnect3356]

Seen. Heard. May sound gruesome, but the feelings are completely understandable. No one will care for our loved ones as well as we can & will. Precious family ❤

[@donovang6911]

I hope that this family qualifies for subsidized respite care. Identifying burnout is a great step. Next step is finding respite care. Having a few hours to yourself or alone as a couple is essential to surviving an intense home environment. Even if it is out of love, it still hurts when you get burnt out. Much love to your family.

[@kcandyou5263]

There is so much love for these boys. You see the love which brings with it heartbreak too.

[@jacks910]

Why the cut at the end? This was a really interesting interview, and I’d love for a follow up with the parents so they could have a platform to vent and reflect. These honest, raw, and different perspective videos like the Mark Elhert one are very thought provoking. Also, Luke looks so much like Joaquin Phoenix.

[@LynnAgain83]

Omg he does!! ! 😮

[@TedBear1954]

If anyone is ever having a bad day - and feeling a bit sorry for themselves - just watch one of these episodes - and feel better - knowing perhaps today wasnt as bad as we thought. Thanks Chris - you are a genuine really good guy - educating us all about life.

[@ari0623]

I couldn’t have said it better myself.

[@iveybullard8988]

I didnt expect to come home and cry my eyes out. This family is just so sweet.

[@aricatluvr]

Luke is so sweet, he loves his Momma so much, she's a lovely woman... these boys have amazing parents

[@rexana]

9:20 when Chris asked "What do you want the world to know about Luke?" Luke's expressions, gestures and and tone of his vocalisations seemed to me like he was answering the question himself. Maybe to him, he was saying a full sentence everyone should be able to understand. And when his dad said "I don't know" it felt like Luke said "But I just told you!"

[@terciopelo]

I appreciate the candid way the parents talked in the end and I love how the mom said that it's her choice to take care of her children day by day. There's a lot of love in this family!

[@scrapin4mhe]

My grandson has multiple disabilities including cp. It is heartbreaking when he is in pain and we don’t understand him. He is a joy in our lives and we love him so much. Thank you for sharing.

[@jikook7457]

I have a son with Down's syndrome and autism so I can understand some of the feelings these parents have of extreme love for their children mixed with a sadness that things can't be different. God bless this family ❤

[@terrydola2586]

The parents are to be highly commended for how well they are doing with 2 special needs boys, i know times it can be hard but after doing it for so many years you find the strength within to keep going. God gives you the strength to keep going.

[@reesecup6915]

I’m so glad she was honest. Caregiver burnout is real. You both are doing an amazing job. From a mom of an adult autistic mom. 💗

[@dk237]

This one made me cry. These parents are angels on earth. Luke is so loving and affectionate and has the most beautiful blue eyes. ❤Both boys are so handsome. So nice the church community is so supportive.

[@motleymama6587]

Wow, Luke has more charisma than most movie stars. And he loves his mom! Amazing family and the best parents❤️

[@TheBeatSmash]

Anytime I think I'm jealous of people with money and a family these videos help me realize that we are fortunate to just have properly working bodies and brains. I used to work taking care of adults with special needs, I miss it, but unfortunately the system doesn't pay the workers well.

[@BethRazz]

That is very true. I have been dirt poor my entire life and have to remind myself the things I am fortunate enough to have etc. Currently live in a 1950's new moon trailer it's pretty old but at least I'm not homeless lol. I've been sober from drugs and alcohol for 9 yrs which is also a blessing. Things like that you have to think about some ppl have it much worse be thankful you were even able to wake up today the people that have died don't get the chance to wake up today. :(

[@ASH_ketchum_99]

@@mayanthebearthey get paid great here, a lot are lazy unfortunately where I live

[@mariamwalters8326]

Yeh I got one sibling that has atrx syndrome and he has like 5 different doctors. Doctors said he wouldn’t make it but he’s turning 21 this year 😆

[@sliverbox271991]

You'd still be better off with more money, though

[@mariamwalters8326]

@@sliverbox271991 it’s nice to have money my brother is fortunate my family has the funds for his care however you can’t control what your child comes out with and not everyone has money to be able to give them the medical care they need.

[@tamaravukcevic2236]

The last words are very painful,very brutal yet,very truthful.That is the right way of going for this situation,as harsh as it might sounds...No need to justify it or feel guilty,it is what it is...There is no love like good parent's love,blessed and cursed at the same time...

[@kumaran-et8gc]

Massive Massive respect ro the mom and dad ! Lots of love to both luke and matty .

[@MusicAddictMAD]

I love this families honesty. They ALL know what they are in, and are dealing with it as best as possible.

[@claudiamcghin3419]

It made me emotional seeing how affectionate they are and how much Luke loves his mom. ❤

[@glennsriyousefbaun-cueto9287]

As an autistic person/folx/gentleman/etc, this hits close to home for me. And I commend these parents for being caring, truly unconditionally loving & supportive of their 2 kids for who they are ❤

[@blueturtle3623]

I went to a school that was mostly autistic. Like truly there were maybe 5-10 students without autism including myself. This was a high school, and the mom's point about how people view an autistic adult vs. an autistic child is so true. An autistic adult having a meltdown is very VERY different to a child, but it requires the same approach to diffusing the situation. Honestly I learned more as a student who turned teacher due to the teacher's lack of doing their jobs than I did in school to become a teacher.

[@kt493]

Not everyone can keep a marriage together in the best circumstances. I hope you both realize what an amazing job you are doing. Not only with your kids, but with each other, and as a family.

[@benmart28]

I want to cry for this father... such a good father that looks worn down... very easy going

[@CheerupButtercup]

I have an audio processing disorder and struggle in school when I was child but grew out of it luckily by getting A’s and B grades. I got honor role in college three times a row.I was judged that I was lazy or I couldn’t read ext. that judgement made me stronger and to prove to my self i can do it. That my little story. This family is compassionate and strong. The patience incredible too. ❤️ Luke is funny and precious.

[@melissasurbaugh1282]

Mom and Dad, you are such wonderful and strong people. Your boys are beautiful!

[@ArtsyCupcake]

What a beautiful family. The love they have for each other is so visible and heart touching. Thank you for sharing their story with us.

[@donnadixon289]

The challenges this family goes through every moment of every day leaves me speechless. It’s unfortunate this interview was just abruptly cut off without giving the parents a chance to complete their thoughts.

[@JulieRandolph]

To me, These were literally the most authentic conversations I think I’ve ever seen on your channel. Can we all give this family a 👏🏾👏🏾big 👏🏾👏🏾ol👏🏾hand clap ?!? 🥺🥰

[@younkm1]

I actually felt a palpable deepening of connection with Matty during that silent period. It was beautiful.

[@anastasiae.5338]

This always rips my heart out not because of what they have to deal with, but what will happen if their parents die. These kids usually have older parents, which makes that reality come for them so much faster.

[@alorientreblig1133]

We all want to be understood. Mom and dad have done such a wonderful job of providing their children with communication and respect.

[@SlasherSaw]

You can sens how fragile these parents are. And what great parents they are. I wish nothing but good things to this lovely family!

[@michiganabigail]

What the mom said about how she has a choice was really insightful!!

[@debbie313131]

That last sentence is something I have always said myself. Until someone walks in our shoes they may not understand. That sentence comes from unconditional love and 100% devotion. God bless you both and your incredible boys ❤

[@pattin4015]

The parents are so strong to handle this for so long, into the sons' teens. In a very different way, I took care of my mother in her dementia years for over a decade, when I was getting older myself which had physical/mental obstacles toward the end. The mom is so articulate speaking of tidal waves. It is much more difficult when the caregiving is for the kids who may ultimately out-live the parents, which makes future decisions daunting. Bless this wonderful family.

[@koentalks2888]

I wish that I could communicate my emotions so well as this momma. She has such an amazing understanding of her own feelings and others. She's the kind of person that you can meet once at the store, library, park and have a small interaction that can shape how you think and interact with yourself and people the rest of your life.

[@magicmonkeyy]

I absolutely love how Luke gave both Chris and Alyssa a hug❤ ❤

[@jeremiahallyn4603]

Wow, this family is simply great. I feel sorry for the mom and dad, but at the same time they obviously don't let it get them down. I can't imagine having to go through what they have. All the best to all 4 of these beautiful souls 🫶🙂

[@michaelhernandez5384]

1:30 he sounded so heartbroken 😢

[@MandoMTL]

Cases like these highlight the weaknesses of today's individualistic society. We need to rebuild community, and take care of our own. I wish they had access to more support. Much, much more.

[@CarolynAM54]

These parents are just awesome people who love and accept their kids as they are. They reach in and touch your heart ❤️. Just look at how loving Luke is. That speaks volumes about the parents.

[@H4CK41D]

Luke always looks like he has something interesting to say, it's just expressed differently then with words. Just because he doesn't use words we understand in a "typical" way, doesn't mean he doesn't understand and you can see he acknowledges the things his parents are saying and joins in on the conversation in his own way. And Matthew, what a lovely soul who teaches us to slow down and take a breath. He teaches us that we can sit and be silent and that's ok, it's not wrong. Matthew is living life at his own pace, living in the moment, which is very special nowadays. We are all rushing about, stressed out and anxious. We could certainly all benefit from being a bit more like Matthew. Thank you for these educational videos teaching us to better connect with our fellow humans, despite our percieved differences. Understanding goes such a long way. and thank you to the family for being open, vulnerable and sharing your story and your truth with us. All the best to these parents and in finding care for the boys in the future. It's so tough but I'm sure it will all work out in the end, because there are people who care and videos like this will help to continue steering our world toward a better future for differently-abled people. ❤🧡💛💚💙💜

[@PaulOfThebesMC]

Such a beautiful family, so heart-warming to witness their bond. Please God they will be together forever.

[@kasikayrias666]

There is something about parents just loving on their kids. Gives me so much satisfaction to see. No matter how old they are.

[@kitandsons173]

These parents are heroes. You can feel the love in this family. It amazes me that all these kids, verbal or non-verbal warm up to Chris. It is no coincidence. Very touching video.

[@TieraOwens]

They are so sweet! Mom and Dad love them beyond the stars!

[@gmagain]

I started watching this channel way before having kids. Now I am the mom of two special needs kids. This channel has helped so much to cope and accept and know that I’m not alone.

[@juliezinchuk8164]

Wow! Such grace and strength from these parents!

[@mervenur8471]

When Matty grabbed the thumb of his dad? That hit me hard. Nothing but love for this family ♥️ 2:00

[@BeautyMonster1000]

Luke and Matty seem like really sweet people! Their family is lovely and is doing a great job taking care of them and each other. 🙂

[@ShewbieDoobieDoo]

I also love the mom's honesty with her struggles with having two disabled children. Parents of children/adults with disabilities are constantly wrapped up in the daily care of others that they hardly have time for themselves. This should be addressed more to end the stigma that comes with voicing them. This is never talked about enough aloud and it should be addressed more. Chris, I'm glad you include these honest moments with the parents to not only end that stigma, but to give the parents a voice in communicating their own struggles to let other parents or caretakers watching know that they're not alone as well.

[@HilaryIsOkayssss]

That’s so brave and honest of the mom and dad for sharing their feelings about how difficult caregiving is. It is so hard. Caregivers need care too. Hugs to this family.💜💜

[@TheCouch_Akio]

Hi Chris, hi everyone. I've been following this channel for well over 6 years at this point. Thanks to this amazing project I'm becoming more and more aquainted with illnesses and medical issues. This video, though, has been the hardest to watch for me. Maybe it's because I'm growing up and I'm getting close to that specific age in which is "socially ok" to have kids. This is an amazing wake-up call for life. I envy these parents for the strength and love they give to their children each and every day, and I truly wish them the best.

[@jessthegardener]

This video was hard for me to watch too - the anguish that the parents project about their situation really hits home for me. I was 9 when my Mom had my little sister and due to Moms health issues and my Dads work schedule, I know first hand of the daily grind of caring for and raising a child. It just terrifies me to think of having my own child, the responsibilities that come along with that and then feeling "trapped" (then assuming feeling ashamed that I feel that way). Its just a weird cycle.