WHAT ARE THESE DRUGS DOING?

[@bek1720]

I have the same problem with steroids too. They make me feel so strange. Hang in there. Honestly seeing you get up and do what you do everyday makes me keep going so thank you!

[@sarahmilner8483]

I loved Emily with Josh. They were pure bliss she was never happier than with him. ❤️ Re Watch you every year Emily and I always will I think xx

[@indiabliss]

You’re so brilliant for making these videos. When I had cancer 7 years ago , I desperately wanted to learn about fellow cancer sufferers’ experiences to find out what to expect and generally not to feel so isolated through my cancer journey. Thank you for making these daily videos - you truly are wonderful xxx

[@rollingthunder6945]

Steroids can be a blessing and a curse. When I'm on them, I can't sleep and get grouchy. They also make me crave salty foods like crazy! I know you are on way stronger dosages than I take. Stay strong sweet girl! Remember, you are a miracle and a blessing to us all!

[@TomRipley7350]

The Hayward-Hasans are the only videos I get instant notifications for and I stop whatever I'm doing to watch. Watched this parked up at a Happy Chef on the way from Brum to Nottingham. Probably looked like I was waiting on a drug deal. Think I need help with my obsession...

[@liljodibrown]

Tom Ripley same Tom! I see your comments on here all the time

[@TomRipley7350]

Jodi Brown I think Emily is superhuman. I'm staggered at the strength and positivity she has shown through all of this. It's inspiring to watch, Jodi.

[@liljodibrown]

Tom Ripley agreed! I think her absolutely amazing strength and her positivity/love for life has made the cancer effects stay at bay. I send her daily "positive vibes" and I hope she receives them.

[@applejellypucci]

Tom, you're still running up that hill!

[@TomRipley7350]

April It's great that even their subscribers are becoming a community that notice each other.

[@lillsjul]

I have the tingling, numbness, cramping, and unsteadiness, but it is permanent for me, all over my body, not just in the hands, and slowly progressive. Hate the feeling. Nothing works for it, but putting my attention on something, like engrossing into a movie, or something I am doing, will distract me and I can forget for a bit. It's hardest when in bed, like trying to fall asleep - is hard to ignore it then...

[@AmericaWomannn]

Heres some cancer humor for you all. One day I was on my way to my Oncologist, it was time for my 2nd round of chemo medication. It was actually a LOT worse than the first 4 but either way I had no hair and I couldn’t stand for people to feel sorry for me so I always wore a cranial prosthesis🤣😂🤣 aka a wig so I’m headed to the highway and I get pulled over by a police officer and he tells me that I’m going 3, yes 3 miles over the speed limit. I said no sir I did not. I’m sorry. That’s when I reached up to the top of my head and pulled my wig off in one big swoop. I thought he would die. Right there on the other side of my door. On the highway. I said i have breast cancer and I’m headed to a chemo treatment so I guess I wasn’t paying attention. He says, you have a good day man.😬

[@SuperKlur22]

Angie Cates That made me laugh out loud 😂 My poor mum kept getting mistaken for a man at the hospital during her last few months. She was too weak to laugh or care but she'd give my brother and I 'that look' and we'd be creased with laughter. Not sure how wiping your eyes from laughter, while standing next to your terminally ill mum in the hospital, looks to other people 😱🙄 but am sure others can relate 😅!

[@bronk8630]

Angie Cates i

[@AmericaWomannn]

Well who pulls you over for going 3 miles faster than your suppose to?!?!?! Lolol It was all reaction. Lololol

[@larissa_8237]

Lol...good for you! That's funny and awesome at the same time.

[@ritabryant1516]

If ANYONE deserves a break from a CRAZY ticket, it would be you. Way to go!

[@paula8544]

Good evening Girl's, had to pop in to see how you both are and to say hello. Isn't it glorious when the sun comes out ( yes sunscreen always, always no excuses,) it makes us all feel a little brighter, it was a very long Winter. Fantastic to see you chilling in the garden, its vital for us all to learn to switch off, unplugging from the mainstream madness, that constant pressure of meeting targets, goals, finishing jobs, collecting the children, getting the house tidy, remembering everything, crossing all the T's and dotting the I's can be exhausting. It is essential for our well being to relax with loved one, friends and family.sending you vibes of peace and light. Xx

[@Dennym240]

You are one bad ass inspiration. Keep it up. Stay strong. I'm behind you all the way. Lots of love from Hershey, Pennsylvania USA.

[@debbiewillis9836]

Steroids can be the worst nightmare. I cannot take them. I was ready to be institutionalized . I am amazed at how well you are tolerating them. Let your Doc know and maybe they can work it out to a better level. You are a hero Emily, truly.

[@nancimedina]

Yes....STEROIDS cause all kinds of funny things like numbness, tingling, I get hot, and get bloated. It is all temporary though. Love seeing all your gifts. Lots of love 💕

[@bobandjudehulse800]

You are MY Rock. You are so Solid in everything. Your attitude is like that of someone who knows the secret to life. I hang on your every word and you have changed the way I look at life. From Oregon USA. Peace

[@ames6416]

Watching your videos everyday IS my mood stabilizer! Thank you for allowing the world a window into your life and the life of people with cancer. You have given many patients a voice, and loved ones a way to understand cancers impact. I'm an oncology social worker in the US, and the lessons I learn from you I bring into my interactions with patients here. Thank you Emily.

[@terisumpton4199]

You really cram in a lot in one day! Workouts, socializing with great friends, fooooood. I feel so lazy! You literally live life to the fullest Emily! ❤ ❤ ❤

[@anonanon5144]

Because unlike other drones of this earth, she truly understood the value of life.

[@Clarissas.Corner]

my mum is losing her hair as well and decided to do as you are cutting it off its making her feel sick.. keep on smiling girls xx

[@forgetmenot957]

Hi both, I haven’t commented before but have been following for a week or so. My god. You girls are amazing. Everything that is current and positive. You have the most incredible attitude and I’m blown away. I’m a granny and cannot imagine where you find your strength. I will follow you forever and, I know it sounds ridiculous, love you both so much. I look forward to your posts and wish I really knew you. I have a stupid, pointless sales job which provides zero emotional sustenance and every day day I hate it. You are inspirational and always make me realise how pointless my lifestyle is. I WILL change this. All love to you xx

[@M8kmecry]

I just adore the two of you. You inspire me in so many ways. I've shared your videos with my 9year old son, and some friends, to share your optimism and positivity and strength with others. I too stop WHATEVER I'm doing to watch your videos. Thank you for taking time every day to share your life with us. I mean it. I am learning from you daily, I enjoy watching you both, keeping up with your journey. I am praying for you to have peace in your heart and mind, strength in your body, and praying for painless, symptom-free days full of happiness and love for you both. Sending love and good vibes from Peoria, Arizona (USA)

[@JessieToots]

When I had cancer and chemo I was on steroids. I felt all speedy, it was yuk. Hard to sleep, jittery. Then the crash was the worst part by a mile. I hope you’re ok. I am always excited to wake up to a new vlog from you. Love from NZ.

[@akalt7007]

Yes, I was on a massive dose after transplant and it was like every single nerve ending was humming... like magnetic... I felt like even the slightest movement I could feel as if I were sitting next to a concussive explosion. The mood settlers.... they take a while to normalize which is why you CANNOT abruptly stop them. Your brain will begin to use the meds in the proper way about two weeks after starting them. There are LOADS of different types and if this particular one isn’t cutting it, there are others. I went from seroquel to celexa and found that the celexa is my happy place, so to speak. It could be too high a dose, but wait out to the two week mark then bring it to your GP if it’s still off. I understand the hair part... I lost mine so many times and it’s nothing like it was before leukemia and the allogeneic hematopoietic stem cell transplant. I’m a true medical chimera!

[@donnagiles2964]

You are my hero. I love your courage and realism. You give us hope

[@lylasurvivor9719]

I found the worst part of steroids was the way it took away my sleep at night. And that causes the days to feel very off. I think I was a weirdo when my hair was falling out-I pulled it out myself one afternoon because it felt sooo horrible, like a pony tail gone too tight and twisted the wrong way. It felt better out! All the best tomorrow, Emily, with your hair. Your positivity will take you a long way. Hugs from Canada.

[@sashaanimator774]

I am watching your vlogs and I am very invested. I am lurking but I am going to make myself known now because I am actually astounded by how you're dealing with this. I know it's only a few minutes out of your days and we will never really know the extent of the effects behind closed doors, but your positivity and your get-up-and-go attitude is helping me through a particularly vicious bout of depression. You're a truly inspirational person in so many ways and watching your vlogs are a pleasure. I've laughed and cried in equal measures and you making me feel something is helping me. Thank you so much for sharing your journey and I love your positivity, your vulnerability and your openess. Sending lots of love.

[@TomRipley7350]

Sasha Animator This, this and this!

[@cartydory]

Yes steroids do have lots of side effects and can make you feel a bit strange......your tenacity is amazing xxxx

[@lestki]

Emily you are such an inspiration. You're young enough to be my granddaughter but you inspire me. I have poor health and lot's of pain and was feeling a bit sorry for myself when I discovered your vids a couple of months ago. You have inspired me to get out and walk regardless of the pain. I just keep telling myself if you can do it so can I. So you see, your daily vids do inspire even us oldies. Much love from Australia.

[@jenniferreding9382]

All I can say tonight is I love you guys! I have a rare soft-tissue cancer, myoepithilioma which is one of at least 50 subtypes of Sarcoma. Thanks as always for sharing. 🌻💛🙏🏼💛🌻

[@louised7829]

What a bloody inspiration you both are.....so much so I cannot articulate it. Emily you're smashing through and showing such positivity and strength. Ben with horrible side effects you're pushing through. Please share I'd you can go you keep such a positive mindset. As for your wifey what an absolute gem.....you're both so amazing together and I can only hope to have something as special as you both share. Congratulations on your marriage and being a pair of bad boi babes. Love one x

[@jademassey2976]

Ur doing so well Emily ur braver than me and My grandad had the same problem dizzy numbness ect after radiotherapy and steroids it eventually wore of give it time he panicked as he couldn’t feel his hand ect but it’s all come back think it’s still working it’s magic on u hope it get better ❤️🙌

[@karenogrady2003]

Morning Beautiful ladies, So sad to hear about the side effects of your meds Em...with regards to knowledge of these, I can’t advise as I don’t know? Any close family member of mine with the same struggle as yours never really talked about it...I’m guessing it was because they didn’t want to talk about it like yourself and also because didn’t want to upset/worry us more than we were 😢 I shaved my mother in laws hair off during her treatment..I was a mess as usual (proper wimp ) and she was consoling me lol...her once straight/fine hair grew back thicker and curly 😳 Your hair will grow back beautiful! I’ll be thinking of you today Em more than usual lol...😍 Lots of Love, Kisses & Cuddles to you and Aisha and your families too 😘😘😘😘 Karen xxxxxxxxxxxxxxxxxx💖

[@cossie4]

my late father inlaw had brain tumour and was on high dose of steroids for a year solid pretty much, they made him not sleep at night and slurred his speech quite a bit and quite forgetful but made a good difference, he was 80 and so had your attitude and never stopped and worked his farm like a 20 year old, you are amazing just like him!!❤️

[@supergran62]

Yes. Steroids make me jittery. Wired. I have difficulty forming sentences and keeping on task. I frequently skip between tasks. I get sleep issues, as in I wake up randomly in the middle of then night and can’t get back to sleep. I get neuropathy but that is part of my auto immune disease so it’s hard to say if it is steroid related for me.

[@virginiamicek15]

Emily. I had bad side effects from steroids also. Very jittery inside. Nightmares. Just felt like my mind and body were racing. It will get better but it is awful. It’s always great to see you two beautiful girls. (Married women). Lots of hugs and prayers coming your way!❤️

[@N4T3YBOY23]

25/01/20 and I still watch whenever you pop up in my recommendations. Always a nice surprise stumbling across ones I haven't seen

[@mickdaberson192]

I had melanoma a couple of years ago and now I’m afraid it’s back. I’ve noticed it about three months ago. Health care is quite different here in America. Medications are extremely expensive. One of my medications is $1,500.00 for a months supply. It’s disgusting really. That’s just too much. The drug companies and health insurance companies are beasts. If you can’t afford it, then you do without. I really enjoy watching your blog. Your positivity is contagious. Thank you.

[@sherrys.96]

Seriously Emily, if there was an Award for ‘Most Amazing Woman’, you would definitely get it! Lots of love to you & Aisha from USA!

[@traceysimkins3504]

Couldn’t agree more about the sun cream Emily! So sad people are still putting the suntan before the protection. You’re doing great bab, speak gobbledygook we get you anyway! There are going too be bad days there’s going to be side effects but bab, you got this!

[@hidingid]

chilling and eating are the best kind of days!

[@MOJORAPSCALLION]

Part of my journey with HPV cancer & untreated Chronic Neurological Lyme Disease I now have severe Neuropathy in my hands, arms, feet and legs some days I can’t stand walk or use my hands not given any help or treatment just never ending surgeries.. I’m waiting for my 34th one.. just exhausted I’m just upset for myself that I can’t function as well as you but happy for you, life is bitter sweet at times! you’re a star and other equally brilliant you tubers! Gotta Grab Life While It’s There & You Still Got Function.. much love to You Mrs & Mrs aka Emily & Aisha 😘😘💜💙💜😍😍 xxxx

[@Graanvlok]

There was a comment on one of your previous videos that I loved. It said something to the effect that: The moment you shave off your hair, is the moment you go full-on warrior bad-ass. I LOVE THAT. Behind you all the way. The weird symptoms are because of the steroids. The tingly hand/arm is probably the radiotherapy, because someone else mentioned they got the same from chemo. And your tumour didn't grow. So it's all good. You've got this. x

[@003shanna]

Hi Emily! You and Ayesha are looking gorgeous as usual. Yes, those are side effects of the medication. Your body is reacting to the new drug in your body. Are you drinking lots of water? Make sure you're also staying hydrated. Love you both! ❤

[@carolinefosbury4420]

Bless you Emily .. I'm sorry you're feeling weird but hope things sort themselves out soonest... much love to you both...xxx

[@lindamonnett4450]

Steroids are rough. Really take a toll on you. It’s not permanent so don’t let them deter you. You’re strong , determined and brave. That’s why we all love you and Aisha. Bless you both. 💖

[@Chopchop752]

So glad today is a great day. Maybe you should ask the doc about your hands. Keep the positive attitude. As always luv from Texas ❤️

[@emilybarrett464]

Yeahhh steroids are crazy, my last lot was for vertigo (which was apparently un MS related as no new lesions on the brain were found), but they gave me soo much energy i was on a mad one. Couldnt sleep, would get up at 6 in the morning, eat EVERYTHING and then go gym haha the energy was great but they make everything so intense and i was very shakey. Glad to see you feeling better, keep going girl x

[@luxste]

Steroids usually make me feel more hopeless and depressed than anything, and it's really hard to remember what the actual problem is when you're in the thick of it. Once I remember exactly what's making me feel so much worse than normal, I can manage, but for some reason I ALWAYS forget, in the very beginning.

[@traceyg3754]

Steroids are awsome and horrible at the same time, often a double edged sword, they can fix some things but you often have the side effects. The moods swings, angry, the emotions, up and down, crying because you cried....the Jitters, can't sleep, super hungry, but nothing taste good, then other things never tasted better, swelling, mind racing, but confused, can't find your words, energy... yeah! heart racing, can't sleep or tired but can't stop your mind from running away....to mention a few side effects, on top of a battle for ur life. It makes things interesting... don't let it make u sour, let it make u stronger! Cheering u on. And Isha, she's amazing, happy for u both.

[@85sevenheaven]

My wife and I love you guys and we are praying, praying, praying for miracles.

[@kellym7555]

I'm glad as always to see you two on the go living life and getting stuff done. I'm going to be sad to see your hair go but hey.. it's just hair and you know what? After all this it'll grow back! You'll rock the new look with all your sweet hats you have. Even with no hat, still beautiful. Xx Kelly from Glace Bay nova Scotia Canada

[@georginacat7667]

I have said it before emily is not my kind of person - as in i don't think either of us would choose each other as friends... but you are incredible in how you and aisha deal with this every day. I wish you everything in the world and keep it up!

[@traceysimkins3504]

Please don’t ever say your hair falling out is disgusting Emily, you could never be disgusting you beautiful brave lady! I do get where your coming from though from experience as shallow as it sounded I was mortified at the prospect of loosing my hair but got that to survive it was something that needed to potentially happen. You’ll always be the most brave beautiful lady an inspiration too everyone everywhere. Your family your WIFE ( bet you love hearing that) and your friends must be immensely proud of you bab. I’m truly in awe of your spirit and determination!!! On a lighter note I’m loving how Aisha picks up the cards and says “ I love a card” whilst in the middle of the parcel opening! I absolutely love cards with meaning ( yes I’m soppy)! Keep strong, the side effects are bound to wipe you out somewhat, everyone differs but I was exhausted body aches pins and needles them numb then tingles. If you’re taking your oramorph too ( which nearly 6 years post cancer I am due to horrific painful side effects) that’s bound too wipe you out. The fact you’re doing so much keeping active is testimony to your beautiful determined spirit. Keep going bab

[@cloudbusting88]

Emily, I had steroids during chemo and I was wired for hours at a time! I couldn’t sleep and I felt like I had a buzz running through my body, very jittery, tingly, face red, flushed etc...so yep hah, they mess with you but they do good as well...I felt rotten without them! Love you and your channel...xx from Australia

[@14sheilab]

Hi Emily, I just wanted to tell you that I admire the fight you are fighting. I have a brain tumor and they can't remove it. They found it in 2004, and I have had a headache every since! I've had shunts placed in my spine to drain the spinal fluid build up. They removed it 6 months later because it started draining to much! I then had Gamma Knife Radiation therapy and I was blessed that I only had to do it once. It killed the cells around the outside but not in the center. I still have headaches and get the tingling in my arms and my face. It's pressing on my left optical nerve, and broke my skull, and is pressing on my brain, holding the spinal fluid in. There's nothing they can do. We are waiting on it to start growing again! I love you and Aisha. I hope I spelled her name right! I will be praying for you!

[@scrumps101]

My son was in extremely high doses of steroids, prednisone specifically. He had a high risk and rare form of childhood leukemia. The steroid affected him in major ways. His HEM/ONC team explained that he would change dramatically while the steroids were in his system and they were right. He had the lip tingling, his ears hurt, he was wired and jittery all the time. His appetite increased 10 fold, was very moody and emotional, then angry and sad. . He became ‘moon faced’ - his face was swollen so much that it became as big and round as a dinner plate. There were many side effects and I think he had them all. Hope this helps. I adore you both. Much love ❤️

[@antonettediamantis5716]

Emily and Aisha,thanks so much for sharing your story with the rest of the world.I love your frankness,it’s so refreshing in this world of so much fakeness.Ive found in my life that I get get shit for being up front and honest,,however the real people like it.So pleased the sun is shinning in London,it does make life a little better.I visited London for the first time in September 2017,and was stunned by the amazing architecture,it’s so old.I come from New Zealand ,which is such a young country in comparison.Its such a buzz watching you go out and about,it reminds me of my trip there.Looking forward to my Emily/Aisha dose tomorrow.Peace and harmony to you both,and to all of your helpers and families,especially Tom and his cool editing and cool music.😇

[@timothysherreyehler5095]

Hang in there until your therapy hits its peak. It's bound to make you feel strange; your brain was radiated, and you are likely to experience associated neurological symptoms. Additively, you are also feeling symptoms related to the high steroid load. Think of it as the manifestation of the assault on those pesky tumours! Great to see you enjoying yourself with family, and good friends! All the best from Southern Ontario, Sherrey💗🍓💗

[@applejellypucci]

Emily, thank you for talking about the importance SPF. As an esthetician, I take it very seriously! It only takes 2 sunburns in a lifetime to get skin cancer! You're beautiful and I'm sorry your hand is not doing any better.

[@gabrielsnotdead6912]

April absolutely I had a scare because I'm literally a vampire, pale white , eyes that go blind in the sun . Mine was also on my calf. Women in general need to check thier calves and back of neck as that's where they usually begin (am I correct here?) x

[@rubyjean5102]

Lara Hayes you should do regular mole maps. There should be a clinic in your area that does them. They map out every mole on your body, check them all.

[@MadeleineHenderson]

her brain tumour started with skin cancer guys!!

[@applejellypucci]

Even very dark skin is only equal to an SPF of 5, so yes if you're on the very low end of the Fitzpatrick scale (fair complexion, light eyes) it's best to wear SPF even on cloudy days. Best thing is to get a dermatologist to do a full body examination and keep an eye on any moles that grow or change in size or scabs that aren't healing/crusting for longer than normal. It can happen anywhere, on the nose, shoulders, back. We can all learn from Emily's story.

[@applejellypucci]

And mole maps are so helpful!

[@sarahkendall3882]

Emily you brave brave lady Your strength of character, positivity and true British Grit continues to amaze me. Losing your hair will showcase your beautiful eyes 💖😘🙏🏻 keep fighting 💪🏻 x

[@gladysfoster7305]

Lovely to see you two beautiful souls enjoying every single day. You inspire us all so very much Emily. Hope tomorrow brings you less trouble with the numbness issue sweetheart. Love you both millions xx❣️❤️❣️xx

[@laurenclarke5679]

I took high dose steroids for 2 weeks and it was horrible. I was so jittery, fidgeting, couldn't sleep, consistently hungry and just was a total nightmare, my face went bright red (I had numbness in my right hand from swelling so put on them for a long time)... Keep up with the vlogs!

[@jacqcampbell2855]

peace to you too. you inspirational, glorious human being. love you guys x

[@lisakehoe2444]

Em don’t worry bout ur hair. You’re such a beautiful lady and so pretty you’re hair or lack of it won’t make any difference. Keep up the positivity and keep doing what you’re doing cause we all love you

[@CindiLeeCusimano]

I work for an Oncology Practice and the high dose of steroids are exactly what you are saying. Neuropathy can stay with you forever. You’re doing an amazing fight and everyday you inspire me and I love you for that. Hugs to you and Aisha! ✌🏻🤟🏻✌🏻

[@Kimmm1984]

Em, you are a true inspiration 💞 I've been binge watching your videos and I love your energy, way of living and love for life. Can't believe you are gone now, such a big loss for all of us. I wish all your loved ones and especially Aisha all the love and strength in the world. You are amazing 😘💞

[@malyndalee1700]

Yes...when I had them it was the same..I also wouldn't sleep too good...best wishes! You rock!!

[@heatherh264]

Keep battling Emily, you are an inspiration to us all ... Much love ❤️ xx

[@carolehanrahan]

I was also watching some of your older entries and was wondering, if Aisha could have a day of choosing everything to do that day, what would that look like. She is such a treasure that she deserves a treat day I think. Not that every day with you isn't a treat. lol

[@Narlee2226]

What a lose to the world without a beautiful Emily, you gave so much and left a legacy of massive magnitude Blessings to heaven Emily and Thankyou for being you Much Love from your Australian friend Lee ❤️💛💜💙💚♥️

[@susanrobson8797]

I look out for your videos everyday,I put the telly in my living on hold so I can give it my full attention which the rest of the family go mad. Love you both xxx

[@peacenwellness9614]

Steroids are rough! Those are typical side effects! You are doing great, girl! Keep pushing! Much love to you both!

[@samanthahayward862]

The warmest hello from Canada!Been praying for A & E - and am grateful you are sharing your journey of life with us!Inspiration, would be only one, of so many words to describe your attitude towards life. It feels a bit odd to care so much for for two amazing strangers - I'm hooked and I pray we will be watching for years to come !

[@drobo7]

Hi Emily, really hope you see this, I've been on similar meds to you over the years. Steroids do that and SO much more. I've been on huge doses and now cannot come off as my adrenal gland no longer works. Anyways the side effects I've gotten is shaky, trembly, sweaty, massive increase in appetite, unable to sleep, breathlessness, racing heart, massive mood swings/hysteria! unable to sleep for long periods or at all!! But the one that I wanted you to know about is that I get numbness in my hands etc and also bad pins and needles in my arms hands legs and feet. I can't remember when your numbness started, before or after the steroids but it might be worth mentioning? Love you both so much xxx

[@nickew117]

Hey Emily....I take Depakote as a mood stabiliser as I have bipolar disorder, and I found that for the first couple of months of taking it, I would have weird sensations in my mouth and jaw, especially the lips, and my jaw would judder when I would speak...this happened if I was a little bit late taking the meds, but didnt last that long. I know its a different situation to you and I dont know what mood stabilisers you take....but I thought Id share because possibly your's are contributing to the weird sensations youre having too. Keep tearing the arse out of life kiddo 💕

[@lagoskids8011]

Yay you got the box! Hope you like the protein porridge x

[@danielleantony9971]

just a lentil where can I send her something please ? And thank u x

[@byronmurphy1977]

just a lentil do you have her box number, I would like to send a nice card.

[@semayim8487]

Yes, could you share it with me too please :) Thanks

[@lagoskids8011]

(Hi guys not sure if this is the best address as it’s a work place but I don’t think they’ll mind having some bits sent there) Emily & Aisha The Kings School Rec Centre 1 St Stephens Road Canterbury Kent CT2 7HU

[@donthaveachannelbcofwork4697]

You will ROCK the bald or shorter hair cut or whatever you decide to do! I have had the same experiences on steroids - I get wired (which was awesome for workouts!), but then I can't sleep and don't feel like myself. I've had numbness in my legs and feet before...and mood stabilizers are not easy medications to manage (correct dose, vs. side effects). I've worked with many people on mood stabilizers and its always a balance between benefits vs. side effects. I have often been told that while their moods are better, they just don't quite feel like themselves mentally and personality wise. In my experience you need to have a really good doctor who deals primarily with psych medications in order to get the right medication and the right dose. Hope this helps. Love to you and Aisha!

[@susanpetersen8877]

I'm sending good vibes across the big pond. Your positive energy is going to work in your favor. I'm glad you have a good woman by your side because s×@t gets real with scary diagnoses. Keep moving, stay busy. I was diagnosed with Hodgkins Lymphoma 34 years ago and I'm still here. About the hair....I know that hair falling out is no fun but when you walk away with your life, hair means nothing. Best of wishes to you guys.

[@donorfanc1219]

Keep on pushing on Emily. Glad you are sharing your challenges and your successes. It's important to your subscribers but it's even more important to you. You are both physically and psychologically fit. Keeping it real. You rock girl!!!

[@GabiAppinelli]

Speech and mind issues can be from meds and radiotherapy -- It lingers for me too and I dint have it on my head as you have. Sending love to you and Aisha!

[@LuisaD93]

We love you both too ! Hopefully the side affects will go away soon enough! Hang in there guys! Luv ya 🌹🙏❤️

[@loridunn5873]

I live is summer Washington. Pacific coast, little rainy. Lol. I have to say that I love seeing all the different foods you have there. The way it’s presented and prepared just looks so healthy. We are so unhealthy in America. At least I am but I’m changing it eating better to kill the cancer. You inspire! You are awesome wife Aisha . Stay strong.

[@Laura......]

Lori Dunn she died . It's was so sudden but she was strong right until the end and she fought until her body couldn't do it any more x

[@joanneanthony5931]

total admiration for you guys, can't believe the weights you were lifting Emily, your determination is unbelievable, you put me to shame. Sorry you are getting such shitty side effects hopefully they will pass soon. The love you have for each other (and food lol ) makes me smile, enjoy every minute xx love to you both

[@sxynatty1989]

Hi babe I’m on steroids for asthma. I ended up having one of my steroids changed because I felt shaky and jittery and horrible. I felt like my senses had become more intense. And I’d feel very disoriented. So yes that is completely normal. I do completely get where your coming from about this being the physical part of your cancer. All I can say is that I’m thinking of you both. The fact that you must be battling yourself and your own feelings but you put a smile on, you be that good wife and you get on with your life the best you can. Your an inspiration xx

[@Sgt.Meowenstein]

I liked the video for Emily and made this bc Aisha said she likes to read the comments lol 😅 Hair Poem: Hair is just hair if you know what I mean It doesn’t define you or make you a queen It’s just dead cells on top of ones head In reality it’s keratin and that stuff is dead It won’t make a difference to any of us And if someone says something may they get hit by a bus You’re so strong and give a ton of love You and Aisha are like baseball and glove It warms my heart to watch you do your thing Especially when wearing your ring pop rings So please know that we’re a supportive lot Hair or no hair we know what you’ve got 💞 Lots of love 💖hope you feel better soon!!

[@loiscassels8966]

Occifer Green Wonderful poem! Thanks.

[@Sgt.Meowenstein]

Lois Cassels thank you 💞

[@chrishebener6952]

Awww this is really lovely!!

[@gilliansgoggleaccount7657]

Em...my son had epilepsy as a baby and had high doses of steroids and it still traumatises me thinking about it as he went crazy on them. I don't know what he was feeling as he was only 7 months old but he has like a Duracell bunny, would cry and scream a LOT and then crash. My neighbours son is currently going through chemo for lukemia (he s 5) and they say the tantrums and personality changes are tough. You are not alone ...hope it calms down soon for you❤

[@karensimon876]

Your videos are so inspiring and I love and respect you both. Thank you for sharing your journey, the good, bad and the ugly. You two ladies are rockstars!

[@alexandramapp5332]

In 2010 i was diagnosed with melanoma, resulting from sunburn. Until now ive been operated 4 times. Mutch love from PORTUGALl!!

[@whatcolorjunebug]

Doctors tend to overprescribe mood stabilizers, and they could be causing a lot of the symptoms you're feeling (some are from the steroids, of course, too). Mood stabilizers are unnecessary to take preventatively in this situation unless you have a history of mood disorder. They'll just cause more harm than good. Steroids will make you feel super weird and manic and agitated and mood stabilizers will add a bunch of other weird things (like some of the symptoms you mention at the end: dizziness, wooziness, lack of mental clarity). Don't be ashamed to tell your doctor you want to get off the mood stabilizers! You can always go back on them if you need them, but the longer you stay on them, the worse the withdrawal will be when you stop them. This is coming from someone who has taken both steroids and mood stabilizers long term.

[@dianarivera2124]

Was just about to do some lesson planning for my class for tomorrow and I got the notification. Of course, I put the teacher schoolwork on hold for you!!! Isn’t it amazing how people you have never met love you and Aisha so much? I, too, feel a connection to you guys. Is this your new house? I can never tell. Anyway, see you tomorrow!! Love to you both from Brooklyn, New York!!

[@bonnierasmussen2837]

Steroids made me so jittery after chemo. It also can make it hard to focus. So glad to see you out enjoying summer!

[@shinynickl3859]

Prayers for you. I think you deserve all the best the world has to offer; stay strong and thank you for being you! You don’t need hair for people to see the beautiful and amazing person you are ❤️❤️❤️

[@TheBirthNerdInc]

When Aisha asked if you were going to get food, I was like "YES, SHE'S GOING TO EAT ON THE VLOG AGAIN!! 😂" and then we didn't get to actually see her eat 😢 lol

[@kayelabenseman9875]

Aisha is AMAZING love she goes deep in to explaning things about how things must be from ur vrew emily and it shows she fully gets u and understands u

[@triciafriesen3693]

STEROIDS - I assumed you had been on them before! Yes! All of what you said - the jittery stuff especially. Inside. Like all the cells in your body are highly caffeinated. I hated that part but it did make me feel like I had a ton of energy. I'm trying to remember what else... it was 6 years go for me that I did my course of steroids to help with the side effects of my bio-chemo-immunotherapy. Meanwhile, enjoy the sunshine! I say cut the hair. And I don't say it without realizing that it's a big thing. But you've kind of proven over and over that you aren't a "take things lying down" kind of girl. You face your challenges head on with practicality and vivaciousness, and that not only gives you strength, it inspires us to do the same. Rooting for you.

[@theresaostrander1175]

Steroids for Crohn's disease made me very antsy and an insomniac. I cleaned out our 2 car garage!! I was on high dose then tapered down each week. My face puffed up, too.

[@miaombak655]

Emily I've been on the high dose steroids twice in the past. Each time I was shakey, jittery, dizzy..just feeling off, not myself. And both times I gained weight. Please talk to your medical team even if just for reassurance. Can see you are stressed sweetheart. Love that the weather has changed, everything so green and bright blue skies. Love to you amd Aisha. xx

[@helensmith7596]

I get a numb hand and mine is stress related so try not to stress too much you look really well ! Perhaps you need to try some relaxation time a bit while yr meds settle down? Health spa shizzle! Yoga, etc, much love Xx

[@goodvibrations2751]

Awesome bravery from Emily and Aisha. My friend was on high steroids for stage 4 GBM tumour in the frontal lobe. She developed tinnitus which she thought was caused by steroids but other factors could have been the reason.

[@bethhardaker5011]

Steroids make me crazy and crazy hungry! You are such an inspiration to so many people!

[@ranstxx]

Youre such a lovely, inspirational girl Emily. Youre a fighter and you dont let things get you down. You should be very proud of yourself, I am very proud of you and I havent even met you! Keep fighting xxxxx

[@isabelhills9110]

When I subscribed to your channel it was around 15 thousand subscribers to see it now over 30 thousand is amazing your my favourite KZbinr as you show people to never give up stay strong 🤘

[@cherylcampbell7495]

ITS just hair. Good with crappy,but your so very strong. Your my hero. Love you both , beauties. Great to have your own built in cheer leader/leaders. Aisha is great. Congratulations again, beautiful wedding.

[@nikkishaw-taylor7728]

Thank you Emily and aisha so much for sharing your lives with us.... I love you both xx