Hi Bianca, Whoever is supporting or engaging with the boys uses a second iPad mini with the Proloquo2go app on it. They use that one to model and talk to the boys, rather than using the boys Prolo. This is to reinforce that their Prolo is ‘their voice’ I talk a bit more about this in the video ‘4 ways to make Proloquo2go more accessible’.

Thanks!

Thanks Bev, you are definately not alone in being exhausted and overwhelmed! I am about to have both boys SSG (student support group) meetings at school next week and they can be quite frustrating. I’m afraid their school places the bar pretty low in expectations. Thats why i work so hard with them outside of school! How do you go with your daughters school?

She goes to a Japanese special school. In her primary school their main goal seems to be to keep the children happy. I think junior high school (from this April) is a bit more ‘serious’ with more life skills goals, we’ll see. We tried mainstream with a team and IEP meetings years ago but she was too severe for mainstream. You’re great working with your boys, we have to do more at home, we used to do therapy but sort of gave up 😢 We should try with iPads as you do. I look forward to watching more of your videos, wishing you all the best at the SSG meetings 🍀

Do you mean on the Prolo? If so, Yes, sometimes the child can one overwhelmed by sensory input around them and can’t always hear/process what you are verbalising, so having the pictures and words displayed on the screen gives them more time to process what you are trying to say. Does this answer your question?

Yes and no. I’m going to have to do a video about that, so much to say! Have you had trouble with children and eating?

@@thetread9212 yes a lot it is so frustrating right now he just want to eat pizza and that’s it (he is 5) and before that just ham and eggs 🥹

@@mabelmeza3622 Have you tried making your own pizzas? There’s a lot you can hide in the ingredients. You can put a few different herbs and garlic in the sauce, you could even cook some red pepper and then purée that and put some in the sauce. Add these things slowly and increase over time. What toppings does he like?

They just turned 16!!

Thanks Ben!

I made an error there, and kept meaning to make a note about that. It’s not by Richard Simmons the exercise guy but Rich Simmonds who is an author and influencer.

@@thetread9212 Thanks! I’ll have to check him out!

They go to an Autism Specific School

I think we all do to some degree, but I imagine its worse for autistic people?! You can’t just turn it off or always push through?

@@thetread9212 i can’t always function with sudden change

@@haannguyen4402 same here. I have learned to anticipate the unexpected.

You are right but technically ive learnt it's not the unexpected but the expected I'm okay with what's in my mind and what I have planned to do but expectation from anyone for any reason is stressful this is why phonecalls and conversations that aren't initiated by us are difficult because we are expected to talk at the same time that it's unexpected to our thought process or plan but the expectation from the other person to talk is the issue🤣🤣 it can come across as being controlling to some in my experience but it's due to extreme high levels of anxiety I've learned so we can only deal with what we expect from ourselves what we have laid out in our brains not expectation from others or life demands. That was so hard to explain and probably sounds like gibberish 🤣🤦🏼‍♀️😬

Thanks! God bless you and your family this Christmas!

thanks 😊

Yes we do use verbal language with Ash. He has fairly good receptive language skills most of the time. Most people will speak verbally to him. We use the Prolo some of the time to communicate to model language and also expose him to new words or words that he doesn’t use much. We find when we are out that there is so much sensory input and that speaking to him on the Prolo helps him to focus on what we are trying to say to him much better.

Thanks so much, you are welcome! How is your son going? What are services and support like in your country for people with autism?

Occupational therapy, special education, language training five days a week but These are paid. The state offers two lessons a week for free. There are special classes in schools for school-age children, where they receive one-on-one education. ❤ in turkey.

Hi Anthony, if you go to the description box of the video there will be ways that you can contact me and I would be happy to chat to you!

@@thetread9212 thank you for responding but i look and i don't see anything to be able to reach out to you.

@@anthonywitt767 Let’s Connect : Facebook - facebook.com/thetreadasd Email - [email protected]

Thanks, I find it so important to keep exposing them to new experiences!

I think time of diagnosis is different for everyone. I had triplets so they were monitored closely and so autism was picked up early-on (2 1/2 years old). having good therapists to support you is great!!

Proloquo2go is the actual name of the app

Hi Becky, That’s great! I’m glad it was helpful. I’m very passionate about promoting Proloquo2go! Our other son Jet is verbal but has difficulty communicating, so we are trying to encourage him to use it. It’s so important that they are still able to express themselves even if they can say a few words!

Thank you so much!!

Thanks Lisa! We are definitely not alone in the Neurodiversity community ! I imagine that across what ever country each of us lives in there are many parents going through similar struggles each morning. We should be proud that each morning we get up and do it all again. Some mornings go ok and some feel like disasters but we through it!!

Hi Courtney, that’s awesome! I’ve made a few other videos on Prolo that could be helpful. Let me know how you go and if you have any questions feel free to reach out to me via email!

Both boys wear everyday underwear. They are 95%toilet trained. They just still need to be prompted to wipe, flush and wash hands from time to time.

Hi Itzcrowns, sorry for the late reply, I didnt see your comment. Do you mean the communication app? You can download that from the Apple iTunes App Store

@@thetread9212 Ok, thank you very much!

Thanks, its a process but has definitely been worth it!

@@thetread9212 How many children do you have

@@karenveal4581 I have 3 children - they are triplets. Ash and Jet have a sister that is neurotypical.

It really depends on what your child needs are. When the boys were younger they were doing speech, OT and Aquatic OT once a week, or sometimes once a fortnight. It also depends on how they are engaging with the therapist and coping with going to sessions on top of school. It’s a balancing act between between early intervention and how much are they actually getting out of the sessions. Thats why its great to get support workers or therapy assistants involved so it can be incorporated with their home routines. Hope that answers your question!

Thanks! Jumping into the world of therapies for your autistic child can be very overwhelming, so I want to help others find it a little less daunting!

I’m sorry you’ve had such a frustrating time with them!