beach trip vlog w chronic illness & my service dog; pt 1

For today's video, join me, my fiancé, mom, and service dog on a beach trip vlog with #chronicillness gone wrong... This is part 1 where we can enjoy the beach & time with family before everything that went down which will be included in part 2; including going into status epilepticus, requiring intubation. #epilepsyawareness #spoonie
CW: absence & complex partial seizure, early stages of cyanosis, full body chills, paramedics/ambulance, mention of intubation
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FAQ:
How old am I: 24
Where did I go to college: Towson University Alumni 2021
What I used to film- Nikon D5500 / Vlog- Sony a5000 / iPhone 13
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Voiceovers- Ice Blue Snowball Microphone

[@cathytestagrossa6198]

Not knowing what's going on with your body sounds n looked scary. It's good you had Simon there with you. For you to show this video shows how compassionate you are wanting to educate others with your illnesses. I hope you're doing better at this time. Take care❤

[@goombakisses7398]

Oh sweetie, there are no words. Please know how much you posting the reality of this awful illness, it helps so many of us and you’re brave to do it. Take care and wishing you well!

[@Chronicallyillcarolina]

I have pots syndrome and dysautonomia and is not easy but I do deal with trigeminal neuralgia,ibsd,chronic migraines and I do gotta watch myself a lot but lately I try to enjoy more normally since I got some good days and bad days thank you for sharing your live with us and for sharing awareness ❤

[@Awilson42]

I also have pots and possible GP and seeing you and your journey is so encouraging. Thank you!

[@ChronicallyLindsay]

Thank you so much!! I really appreciate that 🥹🫶 Sending you all the love and spoons! 🥄 you aren’t alone! 💙

[@dominikbenz8349]

amazing vidoe i enjoy cheer up rock this looking forward part2 pretty stunning queen

[@Chronically_Marcy]

This is very inspiring. As someone who was recently diagnosed with POTS and hEDS it is so helpful to see other people’s journey. I know this had to have been really hard to post so thank you.

[@Life_with_iih]

First or, your service dog seems so lovely. I dont have seizures but have dealt with all kinds of seizures as a nurse in emergency care. I really think we should invest more in science related to seizures and neurological disorders. I myself have a rare neurological disorder and some days are tougher and some are better. I wish you the best❤

[@asecretcourtofcrowsandcloc4084]

thank you for sharing story and being vulnerable and your journey. This is a bit off topic but is there a particular type of harness that you find works the best on the beach in terms of one that is easy to clean after getting wet/sandy? I have been looking for one for my SD. Also, you mentioned changing the way you and Simon work together and that it has helped you both made A lot of progress. As a fellow Service Dog Handler i am always interested in other handlers training experiences so if you’re open to sharing I would love to hear more.

[@inyourdaydreams7576]

So scary but thank you for sharing your journey with us. I’ve learned a lot from your channel after my diagnosis. BTW you look amazing in pink in the last clip 💕

[@karly_ongrowth]

I've experienced shaking very similar while i was in hospital in late 2019. Fortunately the issue did not esculate further for me (although i did end up with an infection) like it did for you. 💔 I'm SO happy that you have Simon and that he helps alert your family when needed (like he did at the end here). 🥲 I'm sending you, Autumn and your Mum so much love. ❤❤❤ Thank you for continuing to share your journey Lindsay. I hope you are doing as OK as us spoonies possibly can!

[@katc4786]

Sending love and virtual hugs

[@caseyslifewithcp3727]

I'm so glad you're doing better. I know how scary not being able to know what's going on with your body can be we love you editing this comment to ask how are you how you are doing with feeding tube feeds?

[@user-mu4tz2vb9j]

you guys were at the beach on my birthday

[@ChronicallyLindsay]

Omg happy belated birthday!! 🎉🎈

[@MsLoma1212]

You're so beautiful inside and out❤

[@DiariesofaDisabledmom]

I have the same zebra squishmellow lol

[@PawsWithAPurpose.]

Any tips for going to the beach with POTS? I’m going the 16th of this month and I got no idea what essentials I should bring.

[@angellyw-mv4yn]

🥄🥄🥄🥄

[@Shagyym]

Again bob cut vlog

[@Shagyym]

when will there be a new haircut video