How does your Fibromyalgia affect you?

[@fibrowarriors]

*What is your experience of telling people you have Fibromyalgia?*

[@gillianmcmurchy]

Hi CJ, I’m also finding a greater general awareness of fibro. I have, however, strongly ingrained habits to hide signs and symptoms which contributes to people either forgetting I have chronic illness or thinking it’s not so bad for me. Some habits are hard to break. I would never want to be viewed as a whiner so I rarely ask for help. I’m so glad you are, I think we probably all should. Much love to you and puppy. Hope he feels better soon and that you take care of yourself, especially while under so much stress. 💕

[@fibrowarriors]

Hi all I'm sorry for such a lame video. I'm under quite a lot of stress and as you all know, stress usually makes our symptoms increase. I'm feeling very unwell at the moment. Sending you all much love. CJ ♥️ xx

[@janeaustenfan1979]

Thankfully I have a great support network who are sympathetic even if they don't understand fibromyalgia. Although sometimes it's hard because I'm the type that can be having a bad day and not let it show so people don't always realize how bad I feel

[@Marcia_Toms]

Hi CJ, I’ve had dreadful experience of not being believed ( I also have ataxia ) and so now I don’t tell anyone. Even the few who i have told don’t understand what I am going through. It’s so lonely. I’m very paranoid about what others think . I’d find it so hard to ask for help I rarely leave home without panic attacks. I do hope little dog is better soon bless his heart xx.

[@cackleberrycottage2340]

Hi CJ! Yes, I do find people are more understanding now. At first I kept it a secret. I didn't want to be seen as sickly, but eventually you have to explain why you can't do things or go places. I just missed my grandson's 5th birthday at Disneyland because I knew I couldn't handle that. It takes well over 2 hours driving each way to get there and then to be on my feet all day walking around and waiting in lines, sitting on hard benches,I just knew I couldn't do it. I felt badly, but what can I do? Anyway, I was talking to someone a few weeks ago and I forget how we got on the subject but I ended up telling her I have fibro and she said Wow, that is really rough having that. Usually people just look at me and say oh sorry or something like that, but this lady really made me feel validated with her response. I also got a new NP at my local drs office and when I told her I had IBS as well, she didn't blow me off. She took down some details of my symptoms and made me feel like she was really hearing me. So let's hope things will continue on this path! Glad puppy is better. My little Evie has had 3 anal gland ruptures over the past couple of years so she is always getting her glands squeezed. Never had a dog with this problem before, but I guess it can be pretty common. Hope he is all better soon.

[@english3542]

hi where you been