Jonas's TMS / PDP Success Story - Pudendal Neuralgia, Prostatitis, Hard Flacid, and Back Pain

Jonas's TMS / PDP Success Story - Pudendal Neuralgia, Prostatitis, Sexual Dysfunction, Hard Flacid, and Back Pain
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[@Jonas36457]

Jonas here 🙋‍♂️ Thank you all for your kind words. I just want to clarify that I tapered off all pain meds after the symptoms had disappeared, without any issues. I have been off pain meds for 4 months now, symptom free.

[@marieleak8731]

Wow good for you! Thanks for your courage in discussing this topic. 💕

[@Gabriellekidd]

This gives me so much hope with all the pelvic/sitting/nerve issues I’ve been experiencing for the past seven months. Thank you so much for sharing your story. Healing is possible and this is proof. There’s so many questions I have, but I think the main point is that you healed from all of it. To know that there can be a normal life again is everything. Thank you.

[@afkVahn]

@Jonas36457 Hey Jonas, can I ask how you got hard flaccid specifically? What were the symptoms like for you? I have somewhat the same going on for years, complete sexual dysfunction, tissue changes (shrinkage, veins…) and hard flaccid and numbness. It’s horrible because it’s so existential and it’s so physical. Literally a body part that changed shape. I’ve had it for years. I’ve known about tms/pdp for years too but it’s not improving. I’m glad for you you healed in two months, but somehow it’s not working for me and I fear it’s something else.

[@Jonas36457]

@@afkVahn Hi. I have no idea how the hard flaccid started. I don't think whatever theory you tie to the onset of the symptom really matters (edging etc.). Even if there was a slight injury at some point, it healed fairly quickly. What remains of symptoms are neuroplastic. In my opinion, the reason why you still have your symptoms, is that you still fear that you have something else. Of course, rule out any major injury, but if your injury was not extreme (or no injury at all), it always heals. Its just how the body works. Your fear and preoccupation with the symptoms are likely what is keeping them going. A TMS procedure will heal you, but since you still fear its something else, its difficult. Just my two cents. Best of luck.

[@Kiki-sv8gl]

Hey Jonas. Happy for you that you are off the pain meds. I am on the same and I feel numbed out. And I don’t know if you experienced the same? 😢

[@Mark.mp3]

I don’t mean to disregard other pains, but pelvic pain truly is such an especially distressful pain. It’s so nice to hear these success stories. Especially since there are so many negative stories in regards to prostatitis/pelvic pain

[@thelaceygirl]

Yes it is very distressing and as such ramps up anxiety more so than other pain, in my experience. Also, the pudendal nerve, in particular, is connected to our fight flight (limbic) brain so it has that “extra” level to it :(

[@Truerealism747]

​@@thelaceygirlso true diagnosed 2002 had it since 1998 though I have fybromyalgia now but it's all TMS found out I have autism ADHD heds causation stress

[@luiscrespo9902]

Jonas, thanks so much for sharing your story. I'm know that's very difficult to share our personal and intimate issues with the world. So, I appreciate the guts it took for you to do it and also the caring person you must be to try to help all those who suffer from TMS symptoms. God Bless!

[@1STBUCKLEY]

So glad you've touched on men's symptoms. 👏 Although this nerve affects females too.

[@Inge508]

So sorry you had those disabling symptoms Jonas! So glad you found mindbody and got healing so quickly! Go live your beautiful young life young man! You for sure will inspire lots of people, men and women with your successtory ❤

[@thelaceygirl]

Brilliant conversation. And yes my nerve definitely feels inflamed. Thanks for touching on how this can still be TMS. Very helpful :)

[@johnny_roots]

Thank you so much for sharing a story containing such vulnerable symptons. I had some similar sensations for two years, general sensitivity in the pelvic region among other unpleasant things quite similar to yours. I lived in constant fear. Now I understand that it all happened after I went through a very traumatic grief in my family. It only improved after I got a new job, felt productive and recognized, and focused my attention outside of my body.

[@marieleak8731]

I love all these success stories. Always hopeful and inspiring. Thanks Jonas and Dan. ♥

[@JuliePeterson-12345]

Such a great video! I’m excited to dive in more

[@Rike-gr1jg]

Wonderful success story again! Thanks for your courage to share it with all of us Jonas! And thanks to open up the world of mind-body connections further and further Dan. ❤ It becomes more and more clear that really most ailments are of this nature.

[@CruisingWithElena]

Great vid totally enjoyed it ❤

[@wednesdayschild3627]

As we get older things slow down. That is real, scaring ourselves doesn't need to add to that.

[@OpalOnyx365]

This was very helpful and really mirrors a lot of my own experience- thank you both ❤

[@ElisabethDonati]

Great story.

[@alexandrecouture2462]

Thank you!

[@jannamezhibovsky]

Thank you for this! Dan, have you seen TMS success of pudendal nerve issue that started after surgery?

[@PainFreeYou]

Not specifically, but the body heals. Look out for tomorrows video on "The body knows what to do."

[@jannamezhibovsky]

@@PainFreeYou wow, what a coincidence (or not? 🙂) Thank you!

[@jannamezhibovsky]

Maybe there was some injure to the nerve? But it healed after few months or so?

[@sk99923]

Thank you for your story. It gives me hope. I suffer from pelvic floor dysfunction since 8 years. I lost my whole sexuality basically over night. One day it was fine the next it wasn`t. My whole genital area is cold and numb no libido erectile dysfunction just nothing. Besides that I have pain all over my body like rectum shoulder back . I have anxiety disorder and because of that I think i developed those symptoms. In my pelvis it feels like there is something terrible squeezed so I thought I have pudendal neuralgia. I`m just 32 years old and I miss dating girls having a relationship... I tried the physical route for years without improvements maybe little temporary improvements...My symptoms are always there 24/7 but they change...sometime a bit better sometime extremely worse...I don`t know much about tms and where to start but all this physical stuff doesnt work so I will research more about tms

[@Jonas36457]

Glad you finally found the solution, and your upcoming way out of pain and dysfunction. You symptoms sounds exactly like TMS to me. I also had severe numbness, that I did not mention in the video.

[@sk99923]

@@Jonas36457 Hey man I haven`t found a solution yet but I will try the tms approach. Somatic tracking is this like meditation where you feel your pain without resisting against it? To hear that you had numbness and recovered gives me so much hope. The sexual symptoms are the worst

[@Jonas36457]

​@@sk99923Yes exactly. When you stop fearing the symptoms (tightness, numbness, pain etc.) the symptoms will dissipate over time.

[@ryanburch3092]

@@Jonas36457 Hey Jonas thanks so much for doing this video. I have a question. I am also dealing with extreme numbness, so when you did Somatic Tracking, how did you focus on the sensations if there wasn't any sensation due to the numbness? Thanks.

[@Jonas36457]

@@ryanburch3092 when you stop caring about the numbness, it will eventually stop. The numbness might be because of muscle tension, but not neccesarily. Either way, when you stop being preoccupied with your symptoms, tension/numness or whatever other symptom will resolve, but it takes some time.

[@djquick]

I had this me thing in 2021. It was horrible. Pelvic pain is terrible. Completely debilitating. Ultimately, I realized it was mostly in my mind when after a few months of it I had a total mental breakdown. I slowly recovered from the mental breakdown over the course of a couple more months and when I came out the backside of it my pelvic pain disappeared. It has come back twice since but only long enough for me to notice, say ‘hey there’s that pain again.. oh well, it’ll pass. It;s just my mind is stressed’ and sure enough within a week or two it passes.

[@paulanazim2115]

Did you have bladder pain along with pelvic pain?

[@djquick]

@@paulanazim2115 yes, I had a constant feeling of needing to urinate

[@paulanazim2115]

Apart from frequency did you have also bladder pain or burning? I have diagnosis of embedded bladder infection (bacteria deeply embedded in the bladder walls). I am on long term antibiotics 2 years now and completely terrified I am in pain 24/7 😭 I don’t know if my diagnosis is correct but I have bacteria showing up on tests and high leukocytes (did you have it too)? I will appreciate your answer 🙏

[@Truerealism747]

​@@paulanazim2115sounds like candida which is with body stuck in fight or flight

[@HighIntegritySkills]

Can you elaborate on the 6 month process? Was it 5% a week, slowly increasing with symptom relief, or.... what were those 6 months like? Need more details!

[@Jonas36457]

2 months process. Gradual decrease in symtom relief, but little relief first two weeks.

[@HighIntegritySkills]

@@Jonas36457 thank you! In terms of techniques, you mentioned somatic tracking 2x a day, for how long? Post it notes, what did you write? Reading books. Anything else/ Exercise / going out /? Thanks so much!

[@Jonas36457]

@@HighIntegritySkills Somatic tracking for the entire process. I would recommend Alan Gordons A Way Out and Howard Schubiners Unlearn Your Pain. As for the exact process, you have to find your own. No correct way of doing it, but I recommend following the guidance of those books. Best of luck.

[@HighIntegritySkills]

@@Jonas36457 thanks man. I read both books. Had a call with Dr. Schubiner at some point. Your note about the little progress in 2 weeks helps a lot... thank you

[@HighIntegritySkills]

@@Jonas36457 sorry one last question - did you have or treat trigger points in abdominal / pelvic / internal pelvic floor muscles during this time? Thx. Im asking a lot of qns bc your situation is very similar.

[@HoodMan19]

Even after 100 percent belief that my hard flaccid and other dysfunctions are TMS why wont they go away?

[@1STBUCKLEY]

Fear

[@TheLilja9]

What thoughts are you thinking throughout the day? Are they focused on your symptoms? Are you waiting for healing to come?

[@HoodMan19]

@@TheLilja9 i know how to respond to other symptoms like pain, digestive issues, skin issues but sexual dysfunction I don't know how to respond to them. Like suppose if you have back pain I will talk to my mind that I know its TMS but hard flaccid it's not really pain so how to react or respond to it

[@TheLilja9]

@@HoodMan19 it doesn’t matter whether symptoms are painful or not! You go about them the same way. I feel like you are still pretty bothered by it. And understandably so. But as long as you are bothered by it, it will persist. Try to accept the situation in the moment as it is. Thinking about it won’t change the situation. It will only strengthen the neurons in your brain.

[@HoodMan19]

Thanks for the advice. It does actually bother me the most​@@TheLilja9

[@burakkaracan5401]

It takes time to don't fear this type of issue. My theory about this condition is the source of the problem is mind thats clear. The busy mind getting thighter all muscles that provides all sexual organs. And some times makes this areas inflamed. Some people use drugs like antibiotics and non-steroid pain killers to calm this inflamation and its help a bit. But you have to cut this problem from the source. Because imagine u've got a huge source of water it's coming from spring and you ve have a wall to blocking this. Your wall has tons of holes because of the power of the source. When u use drugs ure putting a mud to this holes and it flows of couse can't resist to this type of power. You have to cut this proplem from source than your body will have time to fix things. I'm sure the TMS approach is cure believe it and do not fear doing anything thats the cure for sure.