🏥 LUNG FUNCTION NERVES & UNEXPECTED BLOOD NUMBERS 🏥 (8.13.18)

[@thefreylife]

Could I possibly be going home?!?! Eeee! What does the end of summer hold for you guys?

[@FroggyGirl90210]

The Frey Life I'm really praying you will get to go home. I know fir me, I would finish healing better at home. My honest opinion is because you never really get to rest (sleep) which is what helps heal you. 🤔 I have chronic asthma and have to do PFT quarterly. I was wondering Mary, do you ever get light headed after each time you have to "blow blow blow"? It makes me cough and get lightheaded, needless to say I hate them. I'll take a smidge better then nothing, so yeah Mary!!!!

[@FroggyGirl90210]

Deborah L Ours started last week

[@GamingNinja1998]

what infection did you get, i got Pseudomonas back in February and im still on nebulized ab's :/

[@XravensunsetX]

End of summer always means it's my birthday!

[@carriebowlen1574]

Hopefully a new job. I am praying that will be in GOD time not mine!

[@WoundedViking]

hang in there kid. I survived cancer twice and lost half my face to amputation.. a tumor destroyed my jaw and changed everything I once knew.. I was labeled a freak. I decided to start over, move to Barcelona and start a youtube channel to inspire others who feel ugly and not good enough for this world.. I want to show others that it's all about positivity and energy.. and that with the right mindset, you can overcome any mental or physical hurdle if you just learn to love yourself! positive energy from within overpowers any physical shell! go check me out and subscribe if you want to help me reach my goal of helping others who lack self-love.. together we can change the world!

[@pinkyblessed2218]

I’m so thankful that your PFT’s were a smidge up in the right direction! Victory! Especially 1 week post-surgery!👍

[@pumpkinlady889]

Hiya Frey Life, I am from England and I am deaf... I have a lung problems had it since I was 7 year of ages had a massive surgery took half of my lung remove I have one and half lung but ... was told by the doctor when I turn to 21 year of ages I will not able to walk because my lung wouldn't cope and would be in wheelchair. Well im now 40 and still walking not even in wheelchair I have prove the doctor wrong, keeping your lung healthy by plenty of excise... Mary I am sure you will turn out to be strong healthy person just like me be positive and we all are here with you all the way... by the way your dog is so cute and peter is such a wonderful husband to you... you have everyone around you who love ya so be positive we all love ya xxxx

[@radiareghis7877]

WHAT a beautiful comment.💚💜💛

[@salces9301]

Thank you Lord for being with Mary and Peter and I'm so happy Peter can stay with Mary though out this hospital stay he is such a sweet strong loving patient hubby! I know Mary sure appreciates all of Peters Love! Keep strong! I'm so glad your getting good levels yay

[@robynramsey6553]

You both handle things with such grace and courage hope you can go home God bless

[@moxiecrawford2520]

I just placed an order for a sweatshirt (and I live in Houston, LOL) and a beautiful cardinal print. I found you through the “recommended” videos and I’m so incredibly grateful that I did. I don’t have CF, nor does anyone I know but I am a caretaker of my husband who has Parkinson’s. You’re uplifting messages, every single day, bring me a bit of peace and hope - and reminds me of God’s love and grace. Thank you, both, from the bottom of my soul for your light, love, and messages of faith and gratitude.

[@sheilas1283]

I’m in the same position, Shannon. I’m my husband’s carer. He’s had Parkinson’s for 12 years now and it’s incredibly hard to deal with. He also has associated dementia.

[@francesd2913]

Shannon, God bless you and your family. Beautiful pup by the way.

[@TassieM12]

You would love watching Peter’s sermons. He has a separate channel with them! God bless! Praying for you and your husband ☺️

[@moxiecrawford2520]

Sheila S I am so sorry, Sheila. For every day that passes, my anxiety is heightened simply anticipating what is to come in the Parkinson’s journey. Prayers to you and you family.

[@moxiecrawford2520]

frances D Thank you so much. And Moxie, a Maltese, is my best friend and confidant.

[@fevertree1957]

Must be such a comfort for your extended family to get all this daily information by vlog when your in hospital...save a lot of repetitive phone calls & relaying of details.

[@juliesaul4002]

I love that Mary’s cup is half full with the 2 weeks done in the hospital, you are both amazing sweet people

[@moxiecrawford2520]

I just found Peter’s sermons ❤️❤️😭 I’m so happy ! Peter, you do such a wonderful job conveying the message. Thank you. ❤️🙏

[@LiamBiddleLB3]

I would love to be able to hear him preach! Could you post the info please!

[@moxiecrawford2520]

Laura Bernard He’s on KZbin as Peter Frey (that’s all I searched.) I’ve only had the opportunity to watch one sermon, but can only assume they are all wonderful. 😊❤️

[@iceman22st]

I'm not very religious but I do enjoy Peter's sermons.

[@kimpossible7505]

Praying you are nice and cozy at home right now. I just have to say, Mary, I love your facial expressions. You are so animated and full of life, it’s inspiring.

[@momzillainnova]

You remain so so positive. My last hospitalization (Lupus complications) I binged some of your videos because I was just soooooo beaten down and disheartened. It helps to see someone so relatable just infuse some positivity back into your life when you are going through so much. Im home now, dealing with lots of spinal injections and seeing my daughter through some surgery as well...but feeling more positive about things. Thanks for another daily dose of positivity. As hard as it is to be in the hospital, at the very least at least you are getting some relief from those horrible headaches. XO from Virginia!

[@jacquicoder7160]

Hoping for the best, Mary! It would be so exciting to see you going home tomorrow.

[@Kb1901kb_kris]

Power of prayer ❤️

[@grayndrob]

Praise The good Lord!! All this news is certainly something to Rejoice over! God Bless ya'll and everyone!!

[@robingillespie4513]

Mary When you talk about daily headaches- I totally understand. I have had daily headaches for the last 18 years. I hope this works to make them go away for you.

[@naseerahvj]

Robin Gillespie my mum has chronic migraine she has headaches daily, and multiple migraines weekly for about the past 30 some years. I've stared getting them about 10 years ago but not nearly as bad or often

[@robingillespie4513]

I get 2-5 migraines a week plus the daily headaches- I am so sorry you and your mom get them- I would not wish them on my worst enemy.

[@FunsizedStyle]

I'm so glad all the numbers are stable!

[@francesd2913]

Holy cow Mary. I tried doing the breath test with you and could just barely make it. Wow, I think you are amazing. I hope all is well and you go home soon. Take care.

[@dawnwilson4286]

Prayers!! You’re doing great 💜💜

[@teenckie1]

I'm a new subscriber.. I've been watching your site for a few weeks now.. I have to say I am so inspired by you guys.. I love how you are so gentle with each other.. xoxo Mary even when you are down you can manage a smile.. I see God's love in your eyes.. John you are just a joy to watch as you interact with her , your caring and your love just soar..... May your strong faith keep you strong.,. Much love to you... God Bless.... Oh..Ollie... You are loved too.. :) Our Father Is GREAT!!!!

[@lauraschirado8350]

Your guys vlogs make my day! The amount of joy and gratitude towards everything is very inspiring🙂

[@kittymervine6115]

also WHO ELSE WAS NERVOUS DURING HER PFTs??? SHE IS SO FOCUSED LIKE A CHAMPION!

[@tamberjune]

I love the start of this! I wish my hospital bathroom Had a tub!

[@PurdueAlum01]

Tamber Grable I think it's interesting that Mary thinks hospital floors are so nasty but is okay with using the hospital tub. Idk what gets cleaned and how clean it gets but wouldn't washing your dirty feet in the tub be a turn off for taking a bath? And if those before you walked on the same floors and used same tub? I really don't know, just find it intriguing what germs and what dirt we want to avoid and where they might come from and if they can be cleaned with a mop or a brush. I am better off not focusing on it but sometimes you just can't help it!

[@tamberjune]

Patti Volkman Mary loves her foot baths so I think she would use a bucket if she had to! But yeah I can see what's yours coming from but they keep the isolation rooms super duper duper clean and they use amazing cleaners in hospitals because of that. And if shed rather have a foot bath and not have to wear socks I totally agree! I have socks but only wear them when I NEED to and I hate hospital socks so I GET it personally. But if I have a cut or I feel better about it the I will wear socks but usually I am barefoot unless I have sandals or slippers on! They are easier than socks at the hospital for me.

[@tamberjune]

And whatever makes her cofortable while she is in there and I am sure her room gets cleaned because they clean these rooms so much specially when you have a patient with a compromised immune system coming in! That way the patients and their families and docs don't have to worry so much about that aspect. (= she wouldn't walk on the floor if it was too dirty I am sure. But I don't like having dirty feet. My grandma always said, "Cold hands, warm heart. Dirty feet, no sweetheart!" Haha an old saying I always wash my feet before bed and I will wear socks if they get dry but I don't like wearing them very much and they slide off when I am in bed anyway. Especially the hospital socks.

[@LadyTracyAnne]

I suffer from Sinus infections my self due to allergic Rhinitus,the headaches can be very painfull,I find a dark room and soft music can help It's been raing pretty heavy here too Peter Fingers crossed you can go home in a few days Mary 💖💖💖 xxxx

[@leannegray8649]

Craftylady Tracy Anne have you tried essential oils?

[@mcrchickenluvr]

Leanne Gray I've found that ginger and oregano help a lot.

[@gabbyseikel7002]

Hopefully you can go home tomorrow!! And I noticed during the video, it must be nice to have your iv line in your port, because it can free up your hands! Love you guys, and keep on going Mary!!❤️❤️

[@librarianminx]

My mum has bronchiectisis, and her hospital consultant called her in urgently last week to say she has pneumonia in what is left of her right lung (,the top was removed due to cancer). She is on two lots of oral antibiotics, and last night it all got too much for her. She was in tears because she felt so ill. I comforted her, prayed with her, and praise be she did manage to settle and get some sleep, which I was so grateful for. She has had a much better day today xx

[@sarahunt9331]

May God bring comfort to your family 🧡

[@librarianminx]

Thank you xx

[@heathersmith4774]

Wishing you a better day today than you had yesterday!

[@cagedtigersteve]

Praying for you Mary! Keep thinking positively!

[@sukijohnson5398]

Mary, how did your liver and spleen ultrasound turn out?

[@fralinsandfriends]

Glad things are looking better today. Yes, take it one day at a time but stay hopeful. ❤

[@PilarMGuapa]

Can't wait to see tomorrow's vlog 🤗 hopefully you can go home today 🙏

[@kathleenfannin1375]

I get nervous about PFT's now, too. You'd think I'd know how to breathe and do it after over 40 years of doing them, but I psych myself out. I also think that your numbers will improve more as time goes on after surgery. The other thing I want to know is why do you have blood drawn out of the back of your hand? It is more painful for me to get it done there. I also hope that they use a butterfly needle when drawing your blood. It makes a difference!!!! Hope you are able to go home soon!

[@jimmyjohnstone7258]

Sea kayaking on the NW coast of Scotland next week. We have had a great summer here but it is a bit more normal now in temperature and in having some rain. As long as the wind is not too strong we can get kayaking/camping. I hope your headaches are less severe following your clear out surgery. Keep doing your work out routine. I am sure it will benefit you to have some muscle tone recovered after so much bed time in hospital.

[@rivkahmiri513]

You are both amazing! Mary, hope you can have your Bday out of hospital.

[@rdidri]

You are looking really healthy, for whatever that's worth! Best wishes!

[@533134]

Do you guys have issues having insurance cover these long stays?

[@iceman22st]

Needles in the hands hurt a ton. For my last CT scan for my cancer, they had to draw blood from right above the nuckle by my index finger. Only ones I hate more, BLOOD GAS! The under side of the wrist. Hope you get home soon.

[@michellewilloby8448]

There is no place like home, and with Gods blessings I hope you are there soon.

[@mischabarrett8510]

Glad you're doing good today!

[@deborahhartman7548]

Thank you for being such an encourager. Now I know why I had all those tests when I was on Vancomyocin.

[@SuperSpeedyToo]

Maybe blood #'s are being affected by a change in her hydration levels. For example if she was more dehydrated today than yesterday then her blood counts made her look better. I have had that experience.

[@karynahern970]

God is good and he is in control. Hoping you can go home. Love and prayers to you both🙏🙏

[@mishellweiss3606]

stay strong guys!! praying for you god bless

[@bethbupp8023]

Thank you both for the updates and such a positive attitude

[@oneseeker2]

Looks like to me, you have handled everything w/great strength.

[@victormclat456]

praying for you Mary! love you guys!!

[@VelveteenBippy]

Glad you are doing pretty good considering everything. My last vital capacity was 26% but I do pretty well for a NMD person. I hope y'all can go home soon! 🌞🌷

[@hannahmariellewellynllewel7128]

Am cleaning while watching y'all hope for best for y'all both

[@dianedarienzo2555]

Believe and Receive!🙏💕

[@trishab2147]

I hope you were able to go home today!!!! I hear you about the possibility of going home! I was told I was going home and then I got back to my hospital room and someone knocked on the door 30 seconds later asking for my menu requests for the next day. It's like... I thought I was going home? It was SO sad. I did end up getting to go home, but that was quite the disappointment right after I was told I was going home.

[@StefanieRoyMusic]

I just love the twinkly lights everywhere

[@chronicallyjenn5363]

This made me smile huge!

[@vickierhard1441]

Still cause for celebration. No terrible decline. Those tacos looked awesome. Sending love.

[@2listening1]

Who besides me really love Ollie's cute nose? (..)

[@blairmarie9872]

I'm in as well having the same issues with my pfts right now. I'm hoping your going home!!

[@tchrgurl03]

Peter's comment about having to plug up the IV to owning a Tesla cracked me up. 😂😂😂

[@hilda1170]

Praying for you both.

[@lovintexas2730]

You need a local radar app for your phone. I use mine anytime there is a question about when/where the rain might be. It can zero in on your location.

[@eej1983able]

2 weeks wow that flew. I remember when u were getting ready to go in

[@TheDebbiekitty]

Mary, I was wondering how you feel overall. Just wondering because before you went into the hospital, you couldn't take very many steps without having a coughing fit and I've noticed that doesn't seem to be happening as much. I know you don't show us everything but I do, for instance, notice you walking around the room quite often without coughing. I just think it really seems like the Iv's and everything else seems to really be helping and that maybe you CAN go home early like your hoping. God Bless you! Love you both!

[@thirtyflirtythriving]

i think mary and peter might be some of the strongest people in the world.

[@lynnrose7562]

Love that Mary is throwing Hershey's Kisses at people. LOL For me, PFT's are a challenge but they are necessary. I'm glad you are done with IV's. Medicine is a wonderful thing. Oh Mary, I'm so glad you are doing better! You are so adorable Mary! Peter, your amazing for all that you do! Ollie xoxoxoxoxoxo

[@ZekeLanzer]

I'm just now finishing up on week 3 of IV antibiotics, which I was told we will be stopping. Now we just wait for my blood results on my potassium levels to normalize which have been up and down since my admission started. Curse this renal diet! I miss potatoes..

[@alexbravo5666]

Great job Mary! Hey do you guys plan on visiting Chicago in the future? Please announce if you do I’d love to meet you! ☺️

[@traceyg3754]

Yeah Mary! Heat helps my sore iv sites... ice hurts more... maybe try if it happens again,

[@chelseyannepiper9789]

Hi guys I'm so excited for you, you need more summer boat time with your trustee seaworthy companion 🐕❤

[@JKCJFM]

Great job Mary!

[@madisenbarre-hemingway8582]

A hospital room with a bathtub?? Goalllssss

[@kittymervine6115]

blood draws. I had one where my first blew out and the second she couldn't get, and then she tried a third time and I was CRYING. Later, I was, almost shaking whenever I saw this poor sweet nurse. It was, of EVERYTHING, the worst part, all the surgery all the other things....and that blood draw was the worst thing!! (I think because I was off pain meds by then.). Yes, NOT FUN!

[@carriebowlen1574]

Hello Mary and Peter and Ollie!

[@yasminthomas6102]

I love your pjs!😍😍😍 I have a question being another cfer, do you prefer looking at lung function in a percentage or the actual fv1 number :) x

[@Darienlover999]

Fingers crossed!! 🙏💚

[@christytubbs3266]

Do you ever do the Nettie pot?

[@MC-kz9fx]

Peter's comment about the Tesla made me burst out laughing.

[@mariahfrancis7809]

Why do you guys have to change the port needle every week? It seems like since needles are metal it would be able to last longer?

[@cynthiaraper5849]

You two are amazing 💕🙏🏻

[@NNichols10]

Mary looks great!

[@daniellemiller1122]

Good luck !! Hope you guys get to go home tom. 😀you are way over due for a boat ride and Ollie swimming 😀🐕

[@sonias9722]

Mary’s voice sounds so much better

[@crystalcroft8318]

Praying you get 2 go home!

[@ElphabaWeaslely]

Mary, why did they draw the blood from your hands and not in the typical spot opposite the elbow? I didn't see any IVs in there

[@jennifernunn779]

I cant wait for Full weather

[@DanaCook60]

I am encouraged by you,r test results. Wouldn’t it be a blast if you got to go home today? ❤️❤️❤️❤️❤️❤️

[@superkitten7560]

It made me ridiculously nervous seeing her sit there with her phone in her hand and a tub full of water at her feet xD

[@sheilas1283]

Super Kitten And me!

[@kimpossible7505]

Lol! Me too

[@PurdueAlum01]

Most phones can take a quick dip and survive these days. And certainly no danger to her! Just power it off and leave it off until it's very dry. Speaking as an electrical engineer! We actually wash circuit boards in water it's only the battery and power that becomes an issue. Am wondering, have you killed a phone lately and how?

[@angelas1975]

Me too

[@greenpeacesign420]

Patti Volkman my son has killed 3 phones by putting them in the dogs water bowl.

[@kaitlinkisner5700]

Love you guys😊stay strong Mary😄

[@LupusPositiveLife]

Wow 3 years ago it seems like 1 wk ago so weird how time flies by so fast lately

[@tracyellencarsonwebb19]

We're having lots of smokey air here because if the surrounding fires. It made me wonder about how you keep the air quality good in your house? And do you ever stay home just because the air index is bad?

[@laurenallison9391]

TracyEllen Carson Webb our air index doesn’t really get bad here in MA! Only in very humid weather if the conditions are right. BUT- we do have pollution lol.

[@nakaiyahtucker1423]

Yes, you could finally leave the hospital.

[@jenniferluke6587]

I know how you feel about getting your Hope's up I have a son who is 3 and he has health issues and we try to always to not get all excited when things go good cause every time we do he takes a turn for the worse

[@alannahchanelle6057]

Anybody else saw their livestream?? ❤️

[@2listening1]

Wasn't that great??! :D "Peace out, girl Scout!"

[@MAashChick]

It's nice that they let you pelt the staff with chocolates from your door

[@FkD814]

I do a deep exhale in solidarity during mary's pft. :)

[@LiamBiddleLB3]

Mary do you actually blow out for that whole time that it appears your blowing out? And quick question?? I did PFT's and i could barely blow anything out after the big breath in but every time i would stop the tech would say okay that was a bad test we need to do it again. Well you of all people know you can only do PFT's for so long, they are very difficult and exhausting. So..... here's what I did. I took a deep breath in blew out and then left my mouth on the mouthpiece even though I was not blowing anything out! And surprise the tech would say that was a great one and we would move on. So my question is, is the machine able to tell when you stop blowing out etc.... OR is that per the tech? I was way to scared to ask for fear of exposing myself and having to repeat the tests. I was just plain exhausted. I am hoping your expertise knows the answer to this question so I will know for next time. Thanks, and you looked AMAZING today! I know that doesn't mean you feel that way but you had more pep in your voice and color in your cheeks and I am so happy things are positive for the moment and I pray you get to go home tomorrow!! God Bless :-)

[@2listening1]

13:48 I vote for "....amazing job...." Mary! ;)

[@laurafalbey6500]

Okay Frey Life family, I need some help. I have a terminal diagnosis and live in the reality that I will probably not be alive in a few years. In this moment I just want to be treated as much like a normal person as possible, and most of my friends understand and respect this. A few of them always want to talk about my health stuff. They always talk about how scared they are that I am going to die, and how much they don’t want that to happen. While I appreciate that they care, it just weighs me down and wears me out to always have that pressure to help them feel better. I have tried to explain to them why I don’t talk about it often and that I just don’t have the capacity to explain everything. I really care about them, I just can’t deal with feeling like I have to take care of them when I am struggling to care for myself. Have any of you dealt with this? I would love some suggestions and ideas on what to do. Thanks Frey Life family!

[@phyllisaleshire4460]

Can your spleen be removed?

[@andie361]

Fully understand about the going home thing.. I will actually tell the docs not to mention a going home date until , basically, that day for exactly that reason. I tend to turn into not the most cheerful patient to deal with if I’ve told a home day and it doesn’t happen, lol

[@wishupondreams]

Do you ever wondet what your life would be like when and if you ever have a lung transplant and your lives aren't centered around cf? I guessed I missed it, but why havent you got ona transplant list and get new lungs like your sister?

[@jessnapier4149]

I am crossing my fingers all day I hope you get of hosptail tomrrow i am cherring for you stay positive hang in there ♥️💙💛❤️💕💞♥️

[@ericthomas2028]

Have you ever been to China or Canada or Cincinnati