Meet The Incredible Children Born With Disabilities | Born To Be Different | Part 4 | Origin

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Origin

Origin

2 жыл бұрын

Follow the lives of 6 extraordinary children...
Three years in the making 'Born to be Different' is an extraordinary frank and intimate portrait of the pressure and difficulty of life with a disabled child.
In this episode the children turn four and their families face tough choices about the future.
Shelbie is dangerously ill with a chromosome condition that affects her breathing. She has frequent convulsions and is in and out of hospital. Now doctors have started to question her quality of life and her mum has to decide whether it’s worth giving her further medical treatment.
William has the genetic disease tuberose sclerosis, and has had major brain surgery to remove tumours on his brain. Now his parents about his social development and are concerned he is showing signs of autism.
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Пікірлер: 249
@tessaadie659
@tessaadie659 2 жыл бұрын
These children were all born in 2000 as was my grandson. He died aged 9 in 2010 but out of his cohort of 6 at the hospice pre school 2 girls are still alive, thank God. I love being part of their lives and seeing what Joe would be up to now. It was a real privilege to have Joe in my life and to care for him and made me a far better person, especially in my work.
@NYShepherdGirl
@NYShepherdGirl 2 жыл бұрын
A friend of mine has a dauther with a very similar condition, she is now in her late teens and with a brilliant mother who has been her caregiver and advocate, she continues to live and increases in knowledge and strength. This family has a total of five daughters the four others have always helped with her care and loved her more than themselves! Over the years I have been able to watch her grow, especially as they bring her to Church in her travel bed when possible, so she can be in the presence of Jesus in the Eucharist, hear the singing, be greeting by church family members, and celebrate with us! I believe when she is there, the entire church is brighter and more serene!!!
@Tanja060100
@Tanja060100 2 жыл бұрын
I am so sorry for the loss of your beautyful grandchild!
@glitterbomb6700
@glitterbomb6700 2 жыл бұрын
@@NYShepherdGirl daughter*
@glitterbomb6700
@glitterbomb6700 2 жыл бұрын
@@Tanja060100 beautiful*
@glitterbomb6700
@glitterbomb6700 2 жыл бұрын
You all need to go back to school tbh
@maryseflore7028
@maryseflore7028 2 жыл бұрын
I cheered for Zoe when she walked! What a brave girl!
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
Her and Emily are in university now well they was in 2020 and Emily was working in a hospital in 2020 so I presume she is still in university
@maidahaltrecht6577
@maidahaltrecht6577 Жыл бұрын
She's amazing! At least she can pretty much live a normal life.
@ourcreativebeehive
@ourcreativebeehive 7 ай бұрын
Zoe is strong, thanks to her mother. She made her do the therapy, and that takes incredible strength.
@melamorales
@melamorales 4 ай бұрын
I can't find any updates on Nathan. Does anyone know how he's doing now?
@craftylady9912
@craftylady9912 2 жыл бұрын
How brave and amazing are these parents? I can’t imagine how challenging it would be to walk even one day in their shoes. Much love & respect ❤️
@Jacoe413
@Jacoe413 2 жыл бұрын
God bless you Nick. Many people wouldn't take on the challenge you did by joining Nikkis family.
@babyblueeyes7177
@babyblueeyes7177 5 ай бұрын
20 years ago I used to sit and watch each episode with my Mam. 7 years ago she suddenly died. I can’t believe this was over 20 years ago. Beautiful Shelby has also joined the angels. Can’t believe Shelbie’s Dad has gone to be with her!! And William also passed last year. 😭😭💔
@BJM1134
@BJM1134 4 ай бұрын
Shelby dad or stepdad?? Her bio dad was never in the picture correct?
@ahypocriticalorange
@ahypocriticalorange 3 ай бұрын
@@BJM1134 shelbys biological dad left after shelby was born
@MyNameHere101
@MyNameHere101 2 жыл бұрын
Emily's mother is very good with her. She knows she doesn't want to catheter but she won't bend under the pressure for Emily's sake. She's also really patient with Emily's frustration about her situation. I'm really proud of her. (Also the teddy bear practice was adorable. "That was VERY BRAVE!!")
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
Emily is now working in a hospital in the same ward dealing with bladder and bowels
@MyNameHere101
@MyNameHere101 2 жыл бұрын
@@pearlkelly6337 thats great! How did you find that out?
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@MyNameHere101 I watched the show like the other year when they did a follow up
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@MyNameHere101 they only did 2 episodes due to shelby passing away
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@MyNameHere101 I'm gonna have to watch the last 2 episodes they did from 2020 again now
@beyedoc
@beyedoc Жыл бұрын
All these children and parents have developed amazing spirits. As a developmental vision specialist I have seen children with tuberose sclerosis and many people of all ages with brain injury and can see that William struggles with specific frontal lobe issues and isn't an "ill behaved" or "ill disciplined" child. I feel for him and his family how exhausting it must be. I was glad to see the update on him being helped with medication.
@gypsy3446
@gypsy3446 Жыл бұрын
Zoe is absolutely gorgeous seeing her walk melted me ❤😊 she will do very well in i the future. Hamish is a brilliant little boy and seems to be very happy and he has super parents he is
@dawnyofthelight
@dawnyofthelight 2 жыл бұрын
I worked as a student aid in high school in a special ed class with Down syndrome children and they were an absolute joy to work with
@ourcreativebeehive
@ourcreativebeehive 7 ай бұрын
That is a stereotype. Not all individuals with Down syndrome are joy.
@micellaragua
@micellaragua 6 ай бұрын
⁠​⁠@@ourcreativebeehivethey meant that they enjoyed working with them. Not that they were always happy
@ourcreativebeehive
@ourcreativebeehive 5 ай бұрын
@@micellaragua I have a degree in Special Education, I understand. They aren't always a joy yo work with either.
@singlewhitefemale1707
@singlewhitefemale1707 6 ай бұрын
Zoe is such a little cutie! So proud of herself! Seems like she has the best chance at a decently normal life. Bless them all.
@Monis188
@Monis188 2 жыл бұрын
I wanted to thank you for uploading the videos. I have been waiting for this for so long because I do not live in an English-speaking country, so this series has been unobtainable to me for so long. Thank you for giving me the chance to see it from the very beginning 🙂 I love these children and their families. They all are different but they all try to do their best🤗
@NYShepherdGirl
@NYShepherdGirl 2 жыл бұрын
A friend of mine has a dauther with a very similar condition to Shelby, she is now in her late teens and with a brilliant mother who has been her caregiver and advocate, she continues to live and increases in knowledge and strength. This family has a total of five daughters the four others have always helped with her care and loved her more than themselves! Over the years I have been able to watch her grow, especially as they bring her to Church in her travel bed when possible, so she can be in the presence of Jesus in the Eucharist, hear the singing, be greeting by church family members, and celebrate with us! I believe when she is there, the entire church is brighter and more serene!!!
@Jacoe413
@Jacoe413 2 жыл бұрын
Poor Zoe, she is hurting from her dad being absent.
@Bettinasisrg
@Bettinasisrg 9 ай бұрын
It's interesting that Vickie talks about "letting nature take its course" and that's why she keeps having kids even though there's a 50/50 chance they'll be like Shelbie or worse yet she does all the medical interventions available? Ok
@Paranormalinvestigations
@Paranormalinvestigations 4 ай бұрын
🤬
@rosievasquez4378
@rosievasquez4378 2 жыл бұрын
she's so beautiful and she tries to walk she's a walking really good God bless her
@gypsy3446
@gypsy3446 Жыл бұрын
William is the biggest handful out of all these kids,but it's very sad for him and his parents.😢😊
@pearlkelly6337
@pearlkelly6337 5 ай бұрын
May he rest in peace and Shelby 😢
@monstercontent5497
@monstercontent5497 2 жыл бұрын
Zoe is adorable an is going to have a great life
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
She was in university like 2 years ago so she will probably still be in university now
@theunforgiven2885
@theunforgiven2885 10 ай бұрын
God Bless all these parents and all the other parents who have disabled children .❤
@sherri-jean198
@sherri-jean198 2 жыл бұрын
I thank God for just loving mummy's ❤
@mrtempleton5302
@mrtempleton5302 2 жыл бұрын
Poor siblings...ignored as per usual with an ill family member. I remember that pain. Like you are not even a second thought
@Nick_papagiorgio_
@Nick_papagiorgio_ Жыл бұрын
Sook
@lisajeter9511
@lisajeter9511 3 ай бұрын
Zoey is such a happy little girl! That’s was so precious when Zoey was peeking around the stroller.
@heatherbowlan1961
@heatherbowlan1961 2 жыл бұрын
Thank you for this wonderful show with these awesome people in it , May God Bless each one of them .
@melissalove2463
@melissalove2463 2 жыл бұрын
All these little angels are so gorgeous but little Zoe is to damn ADORABLE ! It’s sad her parents aren’t together cause Micheal does look at his ex like he does still love her !
@JacqulineKingston
@JacqulineKingston 7 ай бұрын
LOVED HAMISH playing Cricket ..........
@bobbiejoe2920
@bobbiejoe2920 2 жыл бұрын
I might not know what it's like to raise children with disabilities but I can say I'd definitely try to be there for these beautiful children if he at one time thought he couldn't take care of these beautiful children he should've wrapped it up
@turahope8791
@turahope8791 2 жыл бұрын
You all don't know what it's like to raise children with special needs. It's so difficult on your stress level. It's understandable that she would lose it. There so much care that each child needs. Every couple who have a special needs child I say you have my thumb up. I have special needs and so do some of my family it's hard on every relationship. Please don't judge another just because you have children doesn't mean you know what it's like to raise a special needs child
@ellenrideauxe3407
@ellenrideauxe3407 2 жыл бұрын
Amen. I have grandson special needs. I know the stress you dealing with. It takes a lot of patience. I'm praying for your family 🙏🏼🌹. God bless you all 🙏🏼🙏🏼♥️
@TheAccidentalViking
@TheAccidentalViking 2 жыл бұрын
I have a hard time understanding the mindset of knowing you have a 50-50 chance of passing a horrific genetic disorder on to your child, but you keep having children anyway and refuse to genetic test. And YES, I know what it is like to raise special needs kids. Infantile autism with my step son and his mother was unwilling to parent him, so it was left to me. I had my own son who we quickly realised something was up with and he ended up with a diagnosis, but early intervention pretty much saved his life. He'll be able to work, live on his own and probably go to university, but his half brother will never be able to live on his own. My marriage fell apart, mostly because he didn't want to be a father to difficult children and he couldn't behave responsibly. We should be able to wipe out certain genetic disorders that we can identify beforehand, like Cystic Fibrosis. I hope her children are more responsible. There comes a point where the suffering of the child far outweighs the ego of the parent. When you know how horrifically bad the quality of life is going to be, and yet you continue, it looks like Munchausen by proxy. I'm not referring exactly to this case (Shelby). Cousins of Pakistani decent, for example, that carry known genetic disorders, still marrying and have children that are deaf, blind and with little or no brain function. The problem isn't that they are first cousins, but it is because they both carry certain genetic disorders that when both parents are carriers, they will manifest in the offspring.
@turahope8791
@turahope8791 2 жыл бұрын
I have done genetic testing will never do it agian the people who did the test treated me like shi..... and it made me feel like a animal I am a human person with feelings like every body else. I don't have children I want kids but I wish to adopt
@deenice5444
@deenice5444 2 жыл бұрын
I also have a son with special needs, he’s 27 now and doing well, he graduated high school and college. Thank the Lord for these special kids.
@TheAccidentalViking
@TheAccidentalViking 2 жыл бұрын
@@deenice5444 That's YOUR son... don't judge everyone else by your experience. I'm sure you know well enough that every experience is different. Shame on you for judging. And what about the folks who KNOW full well there is no fucking 'lord' to thank. Really...learn some empathy.
@mariannelovesbabies8559
@mariannelovesbabies8559 2 жыл бұрын
Shame that doctors just see the disability-never the child. I'm 46 and in wheelchair and seen this all my life from docs nurses and cere professionals
@gypsy3446
@gypsy3446 Жыл бұрын
Nathan will always be a happy chappy.😊❤
@naturegirl8248
@naturegirl8248 2 жыл бұрын
Hamish's father looks just like Robin Williams
@karlenenew7391
@karlenenew7391 2 жыл бұрын
So happy she is walking so wonderful
@river8760
@river8760 2 жыл бұрын
Zoe is so adorable and strong.
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
She is in university now so is Emily!
@river8760
@river8760 2 жыл бұрын
@@pearlkelly6337 awesome!
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@river8760 yep Emily was working in a hospital like 2019
@gypsy3446
@gypsy3446 Жыл бұрын
Zoe is absolutely gorgeous seeing her walk melted me ❤😊 she will do very well in i the . Hamish is a brilliant little boy and seems to be very happy and he has super parents.😊
@aistrajzsa6876
@aistrajzsa6876 9 ай бұрын
So sad to hear shelbie died aged 19 😢
@sngray11
@sngray11 2 жыл бұрын
Zoe is so precious! 😍
@deenice5444
@deenice5444 2 жыл бұрын
All of these children are pure 👼🏾 😇. So very special I love them all. Please don’t get me wrong All kids are beautiful and 😇, special needs ones just tug at my heart, children are so strong, I think they are stronger than us adults 😆. I have a special needs adult son now I’m so proud of him. And my daughter that doesn’t have any disabilities. I pray that the world loves on all of these wonderful little people.
@brendaseager7371
@brendaseager7371 Жыл бұрын
The all around attitudes of these mothers has been great, some of the fathers have been good dealing, other than a few. Thank heavens mothers can handle illness more than men it seems, which is sad because all mothers need help in these situations.
@skyeblue5669
@skyeblue5669 2 жыл бұрын
CONGRATULATIONS ZOEY YOUR AMAZING ❤🙋‍♀️🇺🇸
@hannah8377
@hannah8377 Жыл бұрын
These parents are so strong to deal with theire specal needs children.😊
@cw4608
@cw4608 Жыл бұрын
Regardless of the comments made about these kids and their families or the health care providers there will be some whose experience was different, some who are offended, and others who really have no first hand knowledge of what they are commenting on. Regardless of the reason you are watching this try to be kind and remember we are all different. We have different experiences and we process experiences differently. Peace to all.
@user-ng3qn8zv4p
@user-ng3qn8zv4p 4 ай бұрын
Hi 👋 everyone it's Maryanne from the UK well done to little Zoey for walking with your special boots for the first time well done God bless you and your children to ❤❤🧸🧸👣👣🍼🍼🫶🫶🧮🎈🦋
@kelligray1848
@kelligray1848 2 ай бұрын
These children are adorable.
@peakyblinder2847
@peakyblinder2847 2 жыл бұрын
Bless super mum...!!!
@emilybaumeister4980
@emilybaumeister4980 3 ай бұрын
All children are such a blessing ❤❤❤
@lawaunagrimes2555
@lawaunagrimes2555 Жыл бұрын
William keep it up you’ll get there
@AutismawarenessGeorgia20
@AutismawarenessGeorgia20 5 ай бұрын
7:19 yea I love having socks on I only wear them winter time because it’s to warm lol.
@eilidhstrachan3522
@eilidhstrachan3522 8 ай бұрын
i think that vicky is a loving mother who is worried about shelby because she loves her
@lawaunagrimes2555
@lawaunagrimes2555 Жыл бұрын
Zoey I’m so proud for you
@lynnscotland826
@lynnscotland826 2 жыл бұрын
I saw this years ago x
@gypsy3446
@gypsy3446 Жыл бұрын
Zoe is absolutely gorgeous seeing her walk melted me ❤😊 she will do very well in i the . Hamish is a brilliant little boy and seems to be very happy and he has super parents he i s
@angalajohnson4024
@angalajohnson4024 2 жыл бұрын
Whyyyy do parents use their older kids as slaves to go get stuff do stuff they don't want to do and then yell at them
@MyNameHere101
@MyNameHere101 2 жыл бұрын
I know that the mother is under extreme pressure. But the way Shelby's mom treats her other children is pretty awful. With the camera around she was shouting at her children and ignoring their needs, what does she do when the camera isn't around?
@rebeccabarnett2907
@rebeccabarnett2907 2 жыл бұрын
I agree 100% and now she is pregnant again. I feel sorry for the 3 “normal” children.
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
She lived to a good age I know 19 isn't a good age but for shelby she lived longer than expected
@annetterainer2446
@annetterainer2446 2 жыл бұрын
Is shelby okay and is she alive
@annetterainer2446
@annetterainer2446 2 жыл бұрын
@Ye Ye what did you say yes to
@thedarkpassenger2054
@thedarkpassenger2054 2 жыл бұрын
The thing is if you’re doing something important (such as saving your child’s life) and you’ve asked and asked the children to stay out of the room and bear with you but they keep coming over and touching equipment etc you just have to be sharp and short with them. I think unless you’ve kept your child alive by medical equipment and intervention daily you will never understand (and that’s fine)
@lawaunagrimes2555
@lawaunagrimes2555 Жыл бұрын
I love all the kids
@lawaunagrimes2555
@lawaunagrimes2555 Жыл бұрын
Shelby mom is awesome
@eilidhstrachan3522
@eilidhstrachan3522 Жыл бұрын
i think this is a good dockumentry
@legaretanya1707
@legaretanya1707 2 жыл бұрын
Cool Family. You are 😎 Good Kids spécial
@legaretanya1707
@legaretanya1707 2 жыл бұрын
Good Family you are. Cool
@Cathryn-sc4im
@Cathryn-sc4im 6 ай бұрын
I worked with special needs kids and the hardest to deal with were the behavioral kids.
@ThirstyBacon
@ThirstyBacon 5 ай бұрын
Wow zoe wears the same braces my daughtwr wears. Nuggs wakes with nightmares too. 3x Achilles surgeries. Its a nightmare for parents and child. Absolutely a nightmare.
@Vickymumof4
@Vickymumof4 2 жыл бұрын
Omg Nathan is beautiful
@pinacoloda226
@pinacoloda226 8 ай бұрын
Ofcourse you should consider the severity of the disability but It seems to me “ fighting “ to keep these poor unfortunate children alive would only prolong their suffering, why not just keep them comfortable for however long they have on this earth. Heaven is Shelbys eternal home,and she would no longer be in pain. After all don’t loving caring parents want whats best for their child?!
@Kathlene-wm8ll
@Kathlene-wm8ll 6 ай бұрын
Looks like u all had an amazing time Kyle u r a great Dad but l will have to say l cry at some point every time,but tears of joy l loved when you're beautiful Daughter was walking up the hall and grabbed her Brothers hand, love it 👍😘💖😢
@gypsy3446
@gypsy3446 Жыл бұрын
Emily is beautiful little girl it's just sad doing that bloody catheter all the time great parenting tho 😊❤ keep up the good work mum,dad. ,from Australia 🇦🇺 😊❤
@cherylmadeira5134
@cherylmadeira5134 5 ай бұрын
I'm sorry , but let her go! That poor precious little girl has NO quality of life & her siblings suffer because of it! That Mother speaks horribly to her other children! Their being NEGLECTED on MANY levels! There's a time you need to think of your other children !! Maybe this mother likes the attention she gets from having a critically ill child ! Whatever the case may be someone needs to step in & help those other children, who probably feel like they don't count for anything & EVERYTHING is about their Sister.
@jennynott3841
@jennynott3841 4 ай бұрын
I bet the other children don’t speak to her anymore because they were always ignored or made to get stuff for Shelby
@maidahaltrecht6577
@maidahaltrecht6577 Жыл бұрын
I read in the comments below that Shelbie sadly passed away but how about the other kids? How are they doing?
@pearlkelly6337
@pearlkelly6337 5 ай бұрын
William has passed away as well
@Temptation666
@Temptation666 Жыл бұрын
38:20 he is so right. She should have let her go before Shelby was even born. What she did was irresponsible and cruel in my eyes. Shelby does not deserve to suffer because her mom did not want an abortion. Neither does her siblings Edit: OMG a new baby and still no screening.
@teijaflink2226
@teijaflink2226 Жыл бұрын
Incredibly difficult decision though, I have no idea how I would have delt with it, I don't either know if she even knew about the condition when she was pregnant so impossible to abort then. But he was totally right that her other children deserves as much attention as Shelby as her focus really seemed to be just Shelby and her needs.
@alexandrahall1886
@alexandrahall1886 2 жыл бұрын
Sad that shelby passed away
@rosievasquez4378
@rosievasquez4378 2 жыл бұрын
Just like her father said she is beautiful
@stepht7508
@stepht7508 Жыл бұрын
What is wrong with the woman who let the creep knock her up again after he left her and her sick daughter to go back to his ex and his kids. Pathetic.
@emmaedelmann3027
@emmaedelmann3027 6 ай бұрын
And some other conditions
@kailainman2921
@kailainman2921 3 ай бұрын
Y'all Time Stamp 26:47 The Way His Dad Grabs Williams Arm you can see the Facial expressions i Do understand Maybe camera's around Makes You Tense in wanting this perfect Idk It just Struck a nerve with me. I wonder how old he is now
@Misssssysparkles
@Misssssysparkles 2 жыл бұрын
Hamish's mum is a nz she is hone and nz is beautiful
@Vickymumof4
@Vickymumof4 2 жыл бұрын
I have 4 kids. All have autism. It’s very hard. But they are getting older and doing well
@alphabetmafia_0116
@alphabetmafia_0116 2 жыл бұрын
i’m glad they are doing well! As an autistic teenager I’m very glad my parents listen to me and at least try to understand how I feel so I hope you will do that too for your children :]
@Vickymumof4
@Vickymumof4 2 жыл бұрын
@@alphabetmafia_0116 I also have autism. So I totally get it with everyone and my kids
@MsDogMom
@MsDogMom Жыл бұрын
Ugh. Shelby has such a poor quality of life and it’s the kids that are suffering the most.
@icturner23
@icturner23 2 жыл бұрын
‘X was born with Y’ is such a strange way to describe a permanent condition that began at conception. The moment of birth has nothing to do with it.
@jesuisleslie8509
@jesuisleslie8509 10 ай бұрын
Pardon my ignorance...Not sure if this is in Uk or NZ, but the government gives financial assistance to the parents in this video? To the point to afford having another child? It seems some are full time moms 🤷🏻‍♀️
@thomasplouffe1363
@thomasplouffe1363 2 жыл бұрын
will def is on the spectrum of autism but also hes getting bored of the tests, fyi autism is not only now known as a social issue
@robbiebullock5255
@robbiebullock5255 7 ай бұрын
Vicky shld hve spent quailty time w her other kids but no she spent time on HERSELF
@BernadetteSwemmer-jz7yl
@BernadetteSwemmer-jz7yl 7 ай бұрын
Hard by yourself...birth control is really easy!😮
@ellsworth8328
@ellsworth8328 Жыл бұрын
That's so sad to watch her go through that but she's ok she's god's child bless 🙏💯 them
@hannah8377
@hannah8377 Жыл бұрын
I also used to take occupational therapy cause i am developmentally delayed . I also used to take speech therapy.
@tattgal600
@tattgal600 2 жыл бұрын
Love Zoe's smile ! I cheered when she walked ! How about you leave Hamish's legs alone until he's a pre-teen/teen and he can make the choice for himself.
@chad4685
@chad4685 2 жыл бұрын
He’s an adult now, these videos are from the early 2000s
@AuthenticMage
@AuthenticMage 2 жыл бұрын
Because it has to be done while they’re still growing. Once the growth plates close they can’t do anything
@laurenturner3578
@laurenturner3578 6 ай бұрын
Because as with braces for teeth, sometimes parents have to make choices when their children are too young or the opportunity passes.
@katniss1968
@katniss1968 2 жыл бұрын
The Doctor is being honest and blunt. What quality of life does Shelby have? Her Mother refuses to accept a DNR for selfish reasons, not for what is best for her daughter.
@illumindonnaughty
@illumindonnaughty 2 жыл бұрын
Shelby lived till 19 way longer than expected, it's easy for you to judge when you've never been in that situation.
@AnoraJohnson
@AnoraJohnson 2 жыл бұрын
She knows her daughter's needs better than you do. It's selfish to think we know better than she does. What's best for families in this situation is *support.* Not judgement.
@katniss1968
@katniss1968 2 жыл бұрын
@@AnoraJohnson why? Because she is a mother? That unfortunately does not automatically give her psychic powers. It does however make her very vulnerable and makes it extremely difficult to accept that there is nothing more that she or anyone else can do for her child. It’s takes a physician or a complete stranger to see things objectively and speak the truth even though it hurts.
@AnoraJohnson
@AnoraJohnson 2 жыл бұрын
@@katniss1968 You aren't seeing things objectively. To do that, you would need a lot more knowledge of the situation and the people involved. You claim the mother made her decision for "selfish" reasons. Do you know her reasons? You have an _opinion._
@carmenanne9385
@carmenanne9385 3 ай бұрын
I don’t understand the sedation!
@yifath5162
@yifath5162 2 жыл бұрын
It’s extremely selfish and irresponsible on Shelby’s parents’ part to continue having children knowing they might either suffer this horrible illness or being healthy and barely get their mom’s attention and time as it all goes to the sick child! She is gambling on children’s life like it was a game!! Very wrong and shame on her!!
@ThereIsNoGod.
@ThereIsNoGod. 2 жыл бұрын
Anyone noticed that in the dwarfism boys class you can look straight up to the toilets, the kids have to pee all visible to anyone that goes by. Is that normal there??
@sherri-jean198
@sherri-jean198 2 жыл бұрын
Any man or don't care should be jailed the lot 💯
@peggybuetow1026
@peggybuetow1026 4 ай бұрын
Let Shelby go. 🙏
@linda9115
@linda9115 Жыл бұрын
I find the leg length op is cruel. Poor sweet Shelby little angel.💖
@tracyfinch918
@tracyfinch918 2 жыл бұрын
I know about Arthrogryposis. I follow a 6 year old girl with it, AMC Princess Ana.
@Chris-eo5be
@Chris-eo5be 5 ай бұрын
My cousin was born with this condition. He's 32 now.
@amandahunter9186
@amandahunter9186 2 жыл бұрын
I have schizophrenia depression and anxiety disorder bur the pain I dealt with is from an allergic reaction to medicine
@tiffanye9403
@tiffanye9403 2 жыл бұрын
for fsakes dont do the leg surgery ru mad. i would never put my kid through that so what his short
@familyiseverything1617
@familyiseverything1617 Жыл бұрын
They're Human too not different just more special
@pinacoloda226
@pinacoloda226 6 ай бұрын
I think Shelby‘s mother was cold and cruel for keeping that child alive when she had no quality of life!😡
@moontoad6412
@moontoad6412 2 жыл бұрын
If Nathan is using Makaton, then he's not being taught a signed language. Makaton isn't a language in any way. It uses gestural signs in English word order, which doesn't meet the criteria of a language.
@AnoraJohnson
@AnoraJohnson 2 жыл бұрын
If he has a means to communicate, isn't that the important thing?
@moontoad6412
@moontoad6412 2 жыл бұрын
@@AnoraJohnson I'm just saying it shouldn't be presented to the public as a signed language, because it isn't.
@tiffanyr8990
@tiffanyr8990 Жыл бұрын
I feel like they painted a bad picture of Vicky and Nick here. Showing them not supervising the kids on the trampoline and showing how she gets snippy with the kids... Also could someone tell me where that needle went that they cocked Shelbies leg up like that? I felt Awful for Marie, dealing with that no good. He left her to go backwards, cheated with her and that shows you that the first baby mama is gross.
@myoldvhstapes
@myoldvhstapes 5 ай бұрын
I thought the syringe was attached to a long tube for either an insertion into her feeding tube or a suppository.
@kimiisland9802
@kimiisland9802 6 ай бұрын
Shelby´s mother is extremely selfish. I dont see where Shelby and also her siblings have a good life. They are just alive.
@emmaedelmann3027
@emmaedelmann3027 6 ай бұрын
I was born with autism and I m 22
@KittinPyro
@KittinPyro 2 жыл бұрын
You know, I understand Vicky’s viewpoint, but at the same time, It’s not just her life, It’s tge baby’s life too. Shelby didn’t get a choice of wether or not she wanted to be born with the risk of her condition. Shelby now has to suffer the complications of the condition because her mother chose to have her away despite knowing the risks. I don’t agree with abortion in almost all situations (I feel it should be reserved for victims of rape and forced incest and a few other special circumstances) I don’t know if IVF and such was available at the time this show was made, But today, if you have the choice and the money people like Vicky who are carriers for conditions that can be tested for are able choose to do a form of IVF where they can actually collect her eggs to find and select and a healthy one. They can guarantee a child a that Doesn’t have the illness and that also isn’t a carrier. That way you avoid making the child suffer being born with a genetic illness, and you still get to have children. As a bonus, Your child wouldn’t be a carrier through this method so they would not have to go through the same process in order to have children, because they don’t have the gene and can’t pass it on to their kids. It’s a Win-Win-Win. I will note that they do actually fertilize the eggs (with your partners sperm so don’t worry) and grow them very slight in test tubes, HOWEVER, they only grow them enough to allow the egg to grow a couple of cells and that’s it, It’s not an embryo at this point because the baby hasn’t started to form. There is no heartbeat, and there is no life. There is only a couple cells in a tube. No baby (or life for that matter) would form in the tubes anyways because they need to be returned to the mothers uterus and then successfully attach what will become the umbilical cord before the egg can progress into an embryo. Tons of eggs are actually fertilized all the time. We just don’t know about it, because only the ones that successfully attach become a pregnancy. As for why they grow the fertile eggs: They do this because they need to actually take a sample of the dna inside one of the cells to test for the faulty Gene(s) responsible for the condition they’re looking to avoid. They can’t do this to the main egg probably because it would damage it, also they’re insanely tiney. A few of the eggs that are found to be healthy will be transplanted back into the lady in the hopes that at least one is successful. The rest of the healthy eggs will be specially frozen and saved just in case the first batch of healthy eggs fails to attach or if successful in case you end up wanting another baby on the future they’ll have those ready to use.
@KittinPyro
@KittinPyro 2 жыл бұрын
Second note: This kind of IVF only works for conditions that can be identified during pregnancy or with DNA. If you are like me, and your conditions do not have a known gene(s) associated with them, then this can’t help you unfortunately. I have made the decision to not have children, But Our choices are our own and you are free to choose based on your own opinion but do please try to consider the kind of condition(s) you have (or are a carrier for), research and think about what life could be like for a child born with that condition. It’s fine if you still want children, but some people are better off adopting. Again the choice is yours but I hope my words will at least make you consider things from a child’s point of view.
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
Shelby lived much longer than expected may she RIP
@KittinPyro
@KittinPyro 2 жыл бұрын
@@pearlkelly6337 I know, Bless her heart. I looked it up just yesterday when I was looking to see if I could watch the show on netflix or some other streaming service and saw the article that said she’d passed away at age 19 so the whole time i was watching this clip with this doctor I was just thinking, Who the hell is he to look at a child who is giggling and full of life and then tell her parents in the other room that they should let her die. Imagine if she had given in to the doctors pressuring, i mean for gods sake she was only 4 and we now know that she had 15 more years ahead of her. That’s terrible to think about. Vicky is so strong, cuz if i where her I would’ve probably punched that doctor in the nuts!
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@KittinPyro I watched the 2 episodes in 2019 when they did a follow up actually where they show Emily working in a hospital and the 2nd episode they mentioned shelby passed away. I watched both episodes when they first came out an it showed Zoe and Emily going to uni and William living quite independently too!
@pearlkelly6337
@pearlkelly6337 2 жыл бұрын
@@KittinPyro I'm gonna watch the most recent 2 episodes now from 2020
@lawaunagrimes2555
@lawaunagrimes2555 Жыл бұрын
The mixed little boy is during grea
@shawnafsworld7431
@shawnafsworld7431 8 ай бұрын
These Parents ARE TAKING Care of their CHILDREN Those of us With Disabilities , We Are Like everyone else ( Disabilities/ Being Different ISNT A Bad thing. ) WE Need to Start Teaching Kids About Disability ( Look this Kid wears Braces on their legs to Help them walk and Stand See they can Stand and walk , Just like you they can walk. ) , or They Need A Little Help doing : ( Fill in the blank. ) Glasses help them see , or their Wheelchair Helps this person to get around. We don’t Need : People saying to parents and Families: ( oh I Couldn’t Ever Do what this parent-s does. To care for their Child- ren ) We don’t need to hear that From people passing by People Need to be More understanding of The Person you are Speaking infront of , no matter Their Difficulty, 😢
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