Myocardial Bridge- Paul's Story

[@dontfeedthepirates]

I used to smoke for 25 years, I attributed all my symptoms to that. Just found out about my bridge after heart attack symptoms brought me to the ER. They did EKG and Cath and found it. Thankfully no plaque. Thanks for posting this. I hope you know Jesus, praise His name.

[@kabooboo54]

So thankful you have posted this. Took me over 30 years to get a diagnosis. The symptoms are and were so much the same as yours. Brilliant that you figured this out on your own and got the surgery.

[@LOVELIVELAKIYA]

Wow! Hi Paul! I am a 29 year old mom of two whom has been hospitalized for 2 months with at first was a fib and tachycardia in which I received an ablation for. Directly after the ablation I started having severe pressure in my head and my neck, also my ear, and shoulder in which the doctors would say my symptoms are “too far and wide” and they would be really frank and say they simply did not know what was wrong with me. I was exhausted and out of breath all of the time from doing the slightest things. It’s really hindering my life. Finally at a dr appointment I had to beg for again the cardiologist told me it was nothing more she could do as I had already had an extremely lengthy work up. 4 hours later she calls me back and states she’s see’s a myocardial bridge on my scan very vaguely, as I ask what is this she states she didn’t have a ton of information for me. I feel so stranded in this. However today I met with another type of cardiologist who stated open heart surgery seemed best for me and I shut down. I am trying to stay positive in all of this. This is hard! Very hard, aggravating and I was just so relieved to hear ur story. Another young person whom I can relate. Thank you for sharing. The hope is amazing

[@berkan7161]

i am 18 years old and i have myocardial bridge

[@kimberlytippen4436]

Have u made a surgery ? because i have too myocardial bridge and i am ready for surgery !!!

[@kunalasrani4612]

Did you done surgery??

[@Taybay80]

I also experienced the symptoms and ablation you mentioned. There are very severe symptoms now

[@Kclark0828]

Thanks for posting this, I've been on oxygen for almost 3 years and have been diagnosed with heart failure and pulmonary hypertension. They just did my 5th heart cath and found a myocardial bridge and am just waiting to hear from Stanford about a referral. Nice to know I'm not alone and what to expect.

[@sweetsweet3753]

thanks for sharing the experience - much appreciated.. My MC (didnt have a name back then) got discovered about 10yrs ago in Singapore (i was 42 then) via a angiogram and they really werent sure what it was / how to treat etc other than a complicated artery swap out and there wasnt enough evidence to determine if that was the cause of my 'out of breath' while running only 400metres (i do a lot of running). i was in a really stressful job back then so i fortunately was able to step out of work and retired and the stress went away and everything went back to normal after a few months... over the last 18 months i have been getting very minimal dull chest pain now and then. 3 months ago at the 15km mark on a trail run i got a real sharp thud pain from my heart/chest and i recall a few sudden spasms while in bed over the past few months too. I had all the tests done (ECG/xray/blood etc) and everything normal so just took some muscle relaxants for a few weeks. Its not really improved much (and the dull chest pain seems more frequent) over that time and had the basic re-tests done etc. Today i met with a really good cardiologist (i now live in Thailand) who finally gave me that name of Myocardial Bridge so i can start doing more online research. Today i start on some medicine for a month and see if that helps manage it - hopefully yes - but it is nice to be able to zoom in with more knowledge on what the issue is likely and seems if some form of surgery is needed that hopefully it is 'unroofing' as opposed to a full artery swap out.. I am still running and cycling and playing tennis a lot - so i probably need to tone some of that down while i sort this stuff out... interested to hear if anyone else has very similar symptoms and actions they are taking.. much appreciated... cheers

[@eddiebueno951]

Thank you for yur post.. I'm 57 years old and for the past five years I've been fighting with all type of symptoms. my diagnostic was Myocardial bridge and two year ago I had open heart surgery, the surgery didn't work and now same days I feel worst. I went to USC and UCLA for second opinions, in both places they treat me like I'm a liar because they say that my heart its OK. Thank you again for your post. I would look into Stanford.

[@thedistrictofcolumbiaistre5384]

Thanks for your story it’s been real helpful. I was just diagnosed today with a myocardial bridge. Peace love and prosperity.

[@shanefernandes846]

And today I just got diagnosed

[@dulcineolivieira3685]

Hi paul, thank you for sharing this with us. i am 54 yrs old and i knew that since i was 12 that something wrong with me. I always felt anxious but in my early late 30's had the "anxiety" attacks. went multiple times to the ER. finally when to ER on when i turned 50 was hospitilized for 2 days and bc i am an RN they brought in a cardiologist did an angiogram on me but still did not find anything. I was released and had a cardiac catherization and that is how they discovered. i had all the symptoms you had , shortnes of breath, dizziness, neck spasms which my cardiologist said i just had to live with and they were so painful. but thank God for you sharing bc most of the cardiologist in NY or cardiologist period don't know much about how to treat this. which dr did you send your record to at stanford and which Paul giordano are you bc there are two on face book

[@stephaniefenelon]

@Dulcine Olivieria you should join our support group, we have all the up to date information on cardiologists cardiac surgeons etc

[@ls1chevy2]

Man that's the same story as mine and now 46and I've been dealing with this since probably my senior year I've always been able to exercise really hard but sometimes I would get really pale and it's like I just could not get my heart to start going it was always my limiting factorone of the weird thing is is I feel like the more in shape I got the worst my heart got I felt like it was strong but it was doing this weird thing and finally today they found out I had a bridging in my LAD

[@nancynorton320]

@@stephaniefenelon what is the support group called?

[@stephaniefenelon]

@@nancynorton320 Hi Nancy I think I just approved your request to join us

[@robbquinnimaging4321]

Just saw this and I was diagnosed with a bridge last week. I am 54 y/o and mine was caught in a cardiac angiogram after having chest pain. Put me on a beta blocker but I am still having chest pain and pvcs. Please, I would love to get into this group because I don’t know wth is going on and I am scared to death.

[@keithflewelling3576]

Thank you so much for this!!! I have been on 5 different medications for my bridge with no luck:( my cardiologist here is referring me to Stanford for the unroofing! A year ago when they mentioned this might be a possibility I was terrified! But now having the feeling like I have a knife between my shoulder blades and inability to get deep breaths all day I am ready!! So glad I clicked on your video, I go to Stanford in April and now can’t wait!! Thanks

[@troyjackson8648]

How did it all go??

[@robbquinnimaging4321]

These are my symptoms exactly! Getting ready to go to a chiropractor the pain can be so bad but now I have pause!

[@suer3818]

I wish I would seen this video before April 13th. I hope you’re doing well, and you’re healthy. Praying for everyone fighting with their doctors for more testing! Especially, for those whose doctors didn’t believe your loved one until after they’re dead.

[@stephaniefenelon]

It's great to hear that there is surgery for this debilitating heart anomaly, which is life changing. Thank you so much for making this video.

[@isvandi2]

Thank you so much for great video! I have had same symptoms for years and finally today I was diagnosed with myocardial bridge.

[@ayoubtarkane]

How are things going on ?

[@mollymcmillan7415]

Hi paul i am a 65 year old female and i have been told i have a complete LAD bridge already had a cabg done before it became a complet bridge they want to treat it with meds thanks for sharing yoir story

[@khayyamali8413]

Hey Paul. Hope you’re doing great. I have same symptoms as your stated. I tried a lot to get the right Doctor here in Qatar and found 2 best cardiologists in the town. After all basic tests One of them told me at my last visit that I have some heart bridging issue which I heard first time. I am not sure that I have the same issue that you had l but now I should take it more seriously because my symptoms are the same as you had. Thank for video and stay blessed

[@smacrafts]

Thank you for this video as it explains a whole lot of what is going on with me!!! I grew up with in-explainable migraines, anxiety, short of breath just walking, etc.

[@rebeccaherbertbjj]

This is real. My dad has it and no one knew. Years he said something was wrong and they kept sending him home saying panic attack. They found it last week finally.

[@paulfasse8032]

Paul we not only share the same first name, but heart condition as well. I will be receiving open heart surgery at Cleveland Clinic on the 2nd of October of 2019. My myocardial bridge has been as you perfectly described pretty much bed ridden with horrible chest pain and discomfort. Your video helped ease my fears on many levels.

[@kimberlytippen4436]

How do you feel now ? After surgery

[@paulfasse8032]

@@kimberlytippen4436 thank God 100 times better. Quality of life has improved dramatically. My endothelial dysfunction/spasms have improved but slowly. It will be 3 years coming up in October since surgery. While not perfect by any means much better. BTW, I was also born and suffered with HCM/ Hypertrophic Cardiomyopathy. Had major open heart surgery in 2015 for that. So in short 2 full on open heart extensive surgeries @ Cleveland Clinic. 2015 for HCM & unroofing w/LiMA bypass in 2019. 🙏🏻❤️

[@jennywest658]

Thank you so much for posting this video Paul. I live in NZ so am on the hunt for someone in my country who can help. Just waiting for my full CT report for details on the length and depth of the MB. Good luck Paul...I am glad you found some awesome doctors who had faith in you and believed in you.

[@sweetsweet3753]

kia ora - did you get this sorted? in NZ? or elsewhere... i have MB and live in Thailand (am a kiwi) so if unroofing is needed and they dont do it here i guess returning to NZ may be an option. hope all is well now!!

[@cspjkd]

God Bless you dude...I was diagnosed with that (a very light version) last month and my cardiologist said we will monitor it! It took like 3-4 Cardiologists for them to figure out my issue.

[@cspjkd]

But one good thing is they said there is zero blockage anywhere in my heart...Thank God for bacon!

[@informativeakash5949]

@@cspjkd its a dangerous disease than a blockage

[@binodyadav5050]

Thats good, u r living a normal life, I also had the same issue and recently 2 days ago I was diagnosed the same problem, it's 3 cm long, I am taking medicine

[@kunalasrani4612]

Hi, how you doing now

[@slimshady5510]

How are you know?

[@Ghoulishrum]

Thank you for sharing this with us!!! Definitely gives me hope that I too can get my surgery done at Stanford soon. Bless you and may you have a wonderful and speedy recovery!

[@tinadyson2890]

I was just diagnosed this week with Myocardial Bridge. I am experiencing extreme shortness of breath after the angiogram & before too. I was experiencing spams back to back out of the blue & sharp pains.. It has affected my tastebuds or my pallet. I do not have an appetite to eat at all What can you share helpful with me about this Good for you that you got your life back!

[@user-zb5bm1bp3k]

I. Have this problem too. I wish you the best

[@MrStevensalt]

Thanks for sharing this video Paul. I have seen a couple of cardiologists for my two bridges and I will reach out to Stanford for help

[@CherylBattista]

Goin thru it...they are trying meds,hope it helps. Not having a life or being able to just function is depressing. So glad you are better!

[@ayoubtarkane]

How did it work?

[@pateyerly5158]

IT IS REAL BROTHER - I HAVE THE SAME THING BUT HAVE DONE NOTHING WITH MINE // GOD BLESS. YOUR POST AND RESPONSES HAVE SHOWN ME I AM NOT ALONE. I WAS THINKING I WAS ONE OF FEW AND WOW// SO MANY OF US OUT THERE.

[@crystalweible1576]

Hi I have been dealing with this on top of Coronary Artery Disease. My LAD was blocked 80% and needed to be stented. After the stent was placed I was still having the chest pain and in the same place and was recathed 2 days after my initial heart cath. That's when they found out that I had the MB.They told me we would have to try to medically manage it first and then if it couldn't be managed this way then the only other option would be surgey. Well I am ready for surgery. I have 2 stents in that area and it is very tight and have been trying different medications which haven't helped now for almost 2 years. I get my chest pain and shortness of breath , palpitations, i get pre-syncopal episodes so often now. All of which have increased significantly over the last couple of months. I was just admitted the other day into the hospital because of severe chest pain etc. I am hoping that I can be seen at Cleveland Clinic and have the surgery done and that it will bring relief. I have done some research and they recommended the surgery over stenting in people that have blockage because it would cause more issues. Thank you for sharing your story with us.

[@sandyradesky9171]

Thank you for sharing, I’m on my way to Stanford too. I’m hoping for the same results as you!

[@singermomma4029]

Just got diagnosed. Having all these symptoms, but doctor also denies that this is the problem.

[@stephaniefenelon]

Try to find a cardiologist who is educated in myocardial bridge. You need a cath with dobutamine challenge IVUS diastolic FFR or IFR

[@illduitmyself]

I hav the same exact symptoms. Im 36. Healthy. They found it. Doing surgery soon. Felt literally about to die a month ago

[@RJone89]

Thanks man, your story is so appreciated

[@jasemuzz]

Its a shame the specialists and cardiologists here in Australia do not take MB seriously.

[@lts5075]

Thank you so much for this vid!!

[@margiejones2697]

I am recently diagnosed with a MB...LAD 70 blockage during systole compression..what meds did they prescribe for you prior to your open heart surgery

[@theresalwaysone8535]

Thanks for this video 👍🏼 good luck & it help me understand some symptoms

[@ls1chevy2]

I just found out that's what's been plaguing me for 20 years I'm 46 years old and have been exercising my whole life I even did the ultimate beast Spartan race but occasionally I get ischemia that won't go away I think it's more stress related but after a soccer game this Saturday I didn't EKG done at work which showed ischemia the called the cardiologists sent me to Cath Lab and that's when they discovered my LAD was being squeezed because it was running under my muscle tissue. For years I always thought there was something mechanically wrong with my heart sometimes when I was doing things I felt like I just could not get it to get going

[@Taybay80]

Mb %?

[@ls1chevy2]

@@Taybay80 yes I have a myocardial bridge I think it's about 25 mm I haven't gotten the cardiac CT yet but it's significant enough

[@Taybay80]

My coronary angiogram has 70% compression. Did you have angiography?

[@sweetsweet3753]

very similar experience it seems - - i just posted my experience above... when 1st discovered about 10 years ago it was suggested to keep my heart rate

[@strider1237]

Paul, I had the same exact surgery you had at Stanford. I flew to California in 2018 and had my unroofing procedure done. Unfortunately I’m still having symptoms to this day and I’m just curious have you had any symptoms whatsoever or are you completely healed? Any detailed info you can give me would be great. I can say that I was told I had multiple bridges but the main larger one was deemed the issue. They explained I had endothelial dysfunction from that artery loosing its elasticity over the years and could be the cause of my current pain. I’m glad you felt better after the procedure. Again, any updates would be appreciated. Are you still doing well, completely pain free or do you have issues from time to time?

[@stephaniefenelon]

Strider I've put up a comment under my video. A lot of people are doing really well after unroofing surgery. Sorry to hear you are still struggling 😞

[@stephaniefenelon]

@strider I'm so sorry to hear this. I recommend that you join our Myocardial Bridge Support Group on Facebook where you can communicate with people who have had unroofing surgery

[@stephaniefenelon]

@strider thinking about your situation, I feel that the bridges which have not been unroofed could be causing you problems. We are seeing measurements are being underestimated and I wonder if this could be the case for you. Did you ever think about attending University of Chicago. Dr Balkhy is an amazing robotic surgeon and so skilled at unroofing.

[@strider1237]

@@stephaniefenelon I actually did the unroofing procedure at Stanford as a matter of fact, I did not have the other de-bridging surgery other areas/hospitals perform. I believe de-bridging is the correct term for the other type of surgery. My unroofing was called a success and although I can say I'm not as bad as I used to be, I still have issues and do deal with chest pain/anxiety/shortness of breath. My cardiologist in St. Louis, Missouri, who was the one who actually diagnosed my myocardial bridging through a heart cath procedure, told me at the time that the myocardial bridging was the cause of my pain/symptoms back in 2014. As of 2022, (after the unroofing procedure I had at Stanford back in 2018) My cardiologist did a few scans of my heart and now he says that he believes the pain is in my head or is simply anxiety related. This of course makes me extremely angry and leaves me feeling defeated. It's like someone telling me I'm having anxiety and am not actually feeling the pain in a toe I just stubbed. I know exactly what heart pain feels like as I've had it for many years. Honestly, I just think the guy is out of options and doesn't know what to do to treat me at this point. Sorry for the late reply, I somehow went back to this video and just saw your comment.

[@stephaniefenelon]

@Strider are you on our support group? I highly recommend you join. I know people have problems with endothelial dysfunction after unroofing. It doesn't go away overnight and can take some time. I agree with you about the pain. You know your own body. I'm sorry you are still having issues. There are people on the support group who may be able to advise you.

[@rudranilbindia]

Hi there, this is Rudranil from India.Thank you Paul for your detail story. I am also a patient of MID LAD BRIDGING and others to follow with it. I am waiting to share my story with you in facebook.

[@kashmirtourpackage349]

Hey bro

[@rudranilbindia]

@@kashmirtourpackage349 yah

[@kashmirtourpackage349]

Are u ok What hapen to your bridge

[@informativeakash5949]

Hii! Rudranil tumi ki heavy exercise krte ba sedentary life style lead krte

[@souravde8235]

@@informativeakash5949 hii Akash...I have also been diagnosed with MB...akhon tumi kamon acho...?

[@ParlementMavisi]

I found a lot of P. Giordano. Which one is you? Can you put a link who found him please?

[@nancynorton320]

Hi Paul, thank you for sharing your story. I couldn't find you on Facebook. Could you tell me the name of the doctor you sent your records to? Thank you! Nancy

[@terrilangan1480]

I tried to find Paul on Facebook but could not, my 19-year-old son was just diagnosed with a myocardial bridge, would like to talk to Paul….??…..

[@stephaniefenelon]

I invite you to join our wonderful support group for myocardial bridge

[@mertboz7934]

How can i join ur group

[@ls1chevy2]

what type of procedure do you do you have I listened to your whole video but I did not hear you talk about it I was looking at the myotome as a treatment.. also now that it's three years later how do you feel about it how does your sternum feel and can you exercise freely without anyting

[@jonmayhewanderson3907]

Tried to find you on Facebook, do you have a link?

[@alfredomarcia4580]

Hi Paul! I had a cath done yesterday only to confirm i have a myocardial bridge. Surgery scares me. What helped with your decision to opt for it

[@mattgreen5720]

Post mortems suggest that up to 40% of people have a myocardial bridge.

[@brendaandrandyking4126]

Stanford where???

[@venkatarajeshramisetti5411]

How can we differentiate normal lad and myocardial bridge in lad

[@jonmayhewanderson3907]

Do you have contact information for the doctors at Stanford? I am active-duty Air Force just found out about by myocardio bridge and looking for more information

[@Kclark0828]

If you haven't figured it out yet just Google myocardial bridge and stanford, it will show up as the adult congenital heart defect program at Stanford and their number is on that page.

[@anie2707]

Hi Paul... I m from India.. suffering from same in LAD artery.. .wants to know total cost of surgery at Stanford ..pls tell when ever u gt tym

[@KULDEEPSINGH-uh6jj]

I also same

[@KULDEEPSINGH-uh6jj]

If you have done send details on wtsap 8699455508

[@mohitdubey9345]

I am also

[@mohitdubey9345]

Muze bhi batana sergery krvao to

[@nataliechagolla6544]

Has anyone found this Paul I want to message he about some info!!

[@stephaniefenelon]

I invite you to join our support group for myocardial bridge

[@shanvictorsvs6599]

For my treatment

[@informativeakash5949]

Do heavy weight lifting cause myocardial bridge or it is a born disease?

[@informativeakash5949]

@@mcpp6692 but it cause myocardial infarction and bcz of that myocardial bridge uses to create problem other wise it will cure or couldn't occur at this little stage 24 year.

[@stephaniefenelon]

You were born with it. It is a congenital heart defect

[@cindyz141]

I have a myocardial bridge too currently being treated at Stanford.

[@KULDEEPSINGH-uh6jj]

Have you done surgery?

[@kumarkarthik7576]

Hii....Paul Kindly share Facebook details with ur Facebook Dp I am unable to search you in Facebook

[@informativeakash5949]

Exercise cause myocardial bridge.

[@salahrached8442]

How ? Can you tell me more please ??

[@informativeakash5949]

@@salahrached8442 by putting pressure in myocardium