Osteoporosis Medicine: Overview by Endocrinologist Dr. Janet Rubin

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Margaret Martin, Physical Therapist

Margaret Martin, Physical Therapist

Күн бұрын

In this interview, I ask endocrinologist and osteoporosis expert Dr. Janet Rubin to discuss osteoporosis medicine and the various pharmaceutical alternatives for people at risk of a fracture.
-Chapters-
0:00 Introduction
1:18 Osteoporosis Medicine and Bone Remodelling Process
4:08 The Role of Bisphosphonates (Historical Perspective)
11:42 Are Osteoporosis Medicines Prescribes to Women in Their Fifties?
15:12 Risk of Fracture When Stopping Osteoporosis Medicine
17:44 Should a Patient Request a Specialist for Osteoporosis Medicine?
22:14 Risk of Osteoporosis Medicine Side Effects
27:33 Reduce the Risk of Osteonecrosis of the Jaw
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ABOUT DR. JANET RUBIN, MD
Dr. Janet Rubin is the Sarah Graham Kenan Distinguished Professor and Vice Chair for Research at the Department of Medicine of the University of North Carolina in Chapel Hill. She is also the Professor of Medicine in the Division of Endocrinology and Metabolism, a Joint Professor in Pediatrics and Pharmacology, and Adjunct Professor for Bioengineering.
Dr. Rubin is not only a Professor of Medicine and researcher, she has a busy clinical practice treating patients with osteoporosis.
Dr. Rubin has been investigating bone remodelling for decades. Her particular focus has been on how exercise and mechanical force affects the cell cytoskeleton.
Since 2008 Dr. Rubin has been recognized by her peers as the best Doctor in America.
Medical Disclaimer
All the information, content, and material presented in this video is for informational purposes only. It is not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.

Пікірлер: 359
@wandayonder9772
@wandayonder9772 10 ай бұрын
That was all very interesting, thank you. One thing I dislike a lot is when professional people call the stopping of potentially harmful drugs a "holiday". It is nothing like a holiday, waiting to see how much your bones deteriorate before being put back on the drug. It's condescending to have people call this time a "holiday".
@senseofwonder4734
@senseofwonder4734 Жыл бұрын
Incredible physician you have interviewed here! Thank you to you both!
@lisad.3247
@lisad.3247 Жыл бұрын
Excellent video. I now have a better understanding about taking Prolia. Thank you so much!
@ThuyTran-ci2et
@ThuyTran-ci2et Жыл бұрын
This is the best video on drugs for osteoporosis ! Just the facts vs scare stories. Please have this Doctor Rubin back for more info. She is fantastic. Thanks !
@tygywoo
@tygywoo 2 жыл бұрын
I feel like she glosses over the GI side effects of some of these drugs. I took Fosomax for several years but the heartburn that it caused made me absolutely miserable on a daily basis. That's the reason I haven't started up on another drug treatment despite my DEXA numbers getting progressively worse.
@ghostofrt2549
@ghostofrt2549 2 жыл бұрын
Fosamax is a nasty drug with equally nasty side effects. There are better, safer and more natural treatment options now available. “Fosamax creates thick, but brittle bones. In October 2010, the FDA ordered Merck to change its drug label to reflect the bone-fracture connection. Fosamax use may also make fractures more difficult to heal.”
@attop21
@attop21 2 жыл бұрын
I agree! These drugs have nasty side effects and very slim benefits if any. I am researching. HRT which has a bad rep but I think may be a better alternative. Good luck!
@dawncarrasco8320
@dawncarrasco8320 2 жыл бұрын
@@attop21 - me too. The side effects of these drugs is horrible
@nancyst.john-smith3891
@nancyst.john-smith3891 Жыл бұрын
GERD and intense nausea! I also was very shaky/jittery on Fosamax.
@sharonmitchel1377
@sharonmitchel1377 Жыл бұрын
I have had long term GERD and take 20 mg omeprazole daily. I’m nearing “middle old”. My rheumatologist wants to put me on Prolia since I have lost height but no compression fractures. What would I be able to take after Prolia? My pcp wants me to see an endocrinologist.
@54Lily
@54Lily Жыл бұрын
Dr.Rubin, thank you. I'm a 'young-old', been on Prolia for 5 years. Information from my Endocrinologist is 'sketchy' at best. Your presentation was calming and informative. It will help me formulate my questions for my next visit. I don't feel so alone when it comes to osteoporosis. If I could ask a question, does Prolia help with osteoarthritis? Perhaps another video to address that one. Many, many thanks for bringing so much information to light.
@onlyhummingalong
@onlyhummingalong 2 жыл бұрын
Thank you very much. This was an excellent presentation. Very grateful.
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
Glad it was helpful!
@majaber1
@majaber1 6 ай бұрын
Thanks for uploading this video...the bone specialist dr is so refreshingly honest and frank about drigs benefits limitations and the fact that docs dont know everything.
@KS-wn5vc
@KS-wn5vc 2 жыл бұрын
Best information to date on osteoporosis. As a pharmacist and patient, this is so timely and helpful. There are very few doctors so specialized. The aging population of baby boomers needs more practitioners like Dr. Rubin and physical therapists like Margaret. Thank you very much! I have hope that I can do something about my dire genetics and very poor bone density. Please provide updates on Evenity as more is known. Thanks again
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
Thank you. Here is my interview with Dr. Rubin on Evenity. kzbin.info/www/bejne/jGO9g3eOgbeJrpo
@lindafarris7363
@lindafarris7363 2 жыл бұрын
Margaret I appreciate so much the series of information on prescriptions for bone loss. I am learning what my questions are before I see my doctor next month. I've been trying to figure out if there are actual bone specialists. But it seems like there are doctors and physiotherapists who have specialized in osteoporosis. Thank you for helping to empower me as a patient.
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
You are welcome.
@user-jh8kf4qu1o
@user-jh8kf4qu1o Ай бұрын
My first Envinity shot at the Dr. office was a Monday. That evening my left jaw hurt so bad. And I I hurt all over. So bad that I called them because I have RA rheumatoid arthritis. I said I will never take that again no more shots. Because I felt like I was In total flare. On Wednesday I went to my Dentist appt. I told him I got some kind of a shot on Monday and my jaw was killing me. He canceled my tooth extraction that day and said we don’t know if you’ll heal because you did that shot. By Friday I was back at the Dr. office at his request. He told me my jaw could not possibly hurt. There was a 0.1% chance this could happen and that’s after many shots. And all this pain was from an RA flare. I told him. Well my RA flare started last Monday evening. I said, OK, let’s go with what you said. I’m not doing the shot again. RA is bad enough I do not need anymore pain. And 3 disks were messed up and I am waiting on back surgery. He talked me into doing the shot one more time but not for a couple months so I said OK. it took about a month and a half for all those symptoms I had to go away. It was awful stupid me did another shot. My jaw still hurt, but not as bad my left thigh was killing me. With the second shot. He reassured me that this was not from the shot and I reassured him that it was my left thigh, muscle bone, whatever still hurts and top it off my neck that I had gotten surgery on last year. It no longer hurt it was killing me. Like it never hurt before. Mostly at night. It’s been hurting so bad I made an appt with my neck dr. In two weeks I’ll get a neck x-ray. Before I see him. This Dr had fixed my neck and I had no more pain. He put screws and rods in my neck and in two weeks they fell out due to brittle bones, so I have no more screws or metal in my neck . I am afraid to lay down at night. I told him I’m not doing those shots again and he suggested proleia . . I’m not doing any shots ever again for my bones. My sister did Rosina’s for years. She’s paid thousands of dollars for her teeth because she has no bones left in her mouth.
@user-jh8kf4qu1o
@user-jh8kf4qu1o Ай бұрын
My sister did Fosomax for years she is 76 I am 66.
@RevelationArtist
@RevelationArtist 2 жыл бұрын
Just turned 75 and my pcp said my DEXA showed osteopenia and prescribed Fosamax. I read about the side effects and was shocked to realize that my mom who had been on Prolia for two years got osteonecrosis of the jaw and her teeth loosened with no bone around some of them! Fosamax warned of the same side effects! No thanks to that poison! I’m increasing my weight training, taking a bone supplement and just got a vibration platform. And praying for a reversal.
@elyasadnan8174
@elyasadnan8174 2 жыл бұрын
Please keep me posted. I just got diagnosed with Osteoporosis and I’m only 26. I’d really like to know if alternative approach is better than fosamax (I’m also put on the drug for 2 months now)
@londoncalling7895
@londoncalling7895 2 жыл бұрын
Take HRT
@attop21
@attop21 2 жыл бұрын
@@londoncalling7895 i think there is a window for starting HRT - between 5 to 10 years after menopause. But it does look like a much better option
@londoncalling7895
@londoncalling7895 2 жыл бұрын
@@attop21 the latest thinking is its beneficial from any age see a menapause specialist clinic.
@annabanna1342
@annabanna1342 Жыл бұрын
I'm 57 and stopped prolia due to side effects, pain in the jaw being one of them. I am also looking at getting a low intensity vibration machine.
@spiralflash6169
@spiralflash6169 2 жыл бұрын
Thank you, Margaret, for all your fantastic work on osteoporosis. As a "young, old" woman who had been on bisphosphonates for 9 years, then a holiday for 3 years with regression, and reluctant to go back on the drugs, I find this presentation invaluable. With a good education on all the details and nuances, we are able to come at this condition from a spirit of collaboration instead of fear! Thanks again.
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
You are welcome. Happy to help.
@andreah6379
@andreah6379 7 ай бұрын
No, I don't. In fact, many, many of us Osteo sufferers feel as I do. More info doesn't equate into what we all need to actually get better in reality. You are speaking only for yourself.
@BeaTrice10
@BeaTrice10 3 ай бұрын
@@andreah6379 What do you mean when you say "what we'll need to actually get better in reality?" I'm not trying to cause trouble, I want to understand what you are saying. Thanks.
@brendabarrows6129
@brendabarrows6129 3 жыл бұрын
Thank you, @Margaret Martin, Physical Therapist, for persisting in this conversation and asking the questions that your experience with patients leads to. The answers we get here are so much more thoughtful than the usual run of the mill -- particularly those produced by pharmaceutical companies!
@margaretmartinpt
@margaretmartinpt 3 жыл бұрын
Thank you.
@marmaz57
@marmaz57 Жыл бұрын
Thank you Margaret and Dr. Rubin. I so appreciate this important information. Bless you.
@vivian9803
@vivian9803 6 ай бұрын
None of this is reassuring. I just received a diagnosis of osteoporosis and I’m 65. As much as I’m concerned about the prognosis of that diagnosis, I’m more terrified and wary of treatment with these drugs.
@dorothytran3934
@dorothytran3934 Жыл бұрын
I took biphos and suffered severe muscle pain. It was 8 years ago. Recently, I was offered Prolia, and after 1 shot, I developed bone spur in my spine which required surgery due to nerve pain . Also bone pain to the arm presented. I stopped the Prolia regardless what benefits it promised. The benefits are in the future but the side effects are now. I don’t see any documents mentioned the side effects I have endured
@andreah6379
@andreah6379 8 ай бұрын
When you read the fine print with lots of drugs, you may come across a line that says, "...There may be other side effects not listed here." Disgusting. I would bet you if more men than women suffered from Osteoporosis/penia and couldn't get an erection, scientists & doctors would be scrambling for a cure !!
@sharonshea3261
@sharonshea3261 4 ай бұрын
These drugs actually stop normal bone breakdown and rebuilding. That's why the jawbone and femur - the most heavily used - fail to build new bone and disintegrate. Side effect? WTF? All that happens is a crust forms on the outside of bones to make some of then appear "thicker." This whole thing is a pharmaceutical myth that it helps most people (women). It might be advised for someone who has an imbalance of bone formation, but that really really rare. The rest of us are being told we should be on these actually bone-destroying drugs. We get taken off for "vacations" before it's evident how much bone destruction they do.
@newlife8318
@newlife8318 Ай бұрын
I just looked as well...maybe we need journal articles...
@suzannewhiteside704
@suzannewhiteside704 2 жыл бұрын
I'm 56 and fell and had to have a hip replacement I was diagnosed ostoprosis ,this interview was just what I needed . I now feel confident about the medication I'm taking. I have my holidays planned in 5 years . I also have started taking estrogen. You really have made a positive impact on how i feel about my condition. Thank you .(from the UK)
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
not sure what estrogen you are taking but there is bio identical estrogen made from yams and can be obtained from a compounding dr with a prescription. it is a safer estrogen it is called c estriole it is not fda approved but used in europe for 40 years FDA can not patent it bc it is plants
@perfectbalancepilates4548
@perfectbalancepilates4548 Жыл бұрын
Suzanne, thank you for sharing! I’m glad to hear you are recovering or recovered from a hip fracture. That is amazing. I hear terrible things about that which makes me so fearful. Your share gives me some comfort.
@cn6481
@cn6481 Жыл бұрын
still very reluctant ti take these dugs. haven't met or heard of a doctor in Florida willing to discuss.
@andreah6379
@andreah6379 8 ай бұрын
Not surprised at all. More often than not, many ppl say doctors never discussed both pros & cons of these drugs.
@eviestas
@eviestas 15 күн бұрын
I just turned 60 going on 61 . I have severe bone density in my left hip and femur . No fractures exercising . My doc suggested Prolia in my 50’s now I see an endocrinologist and suggesting Evenity . That is new and my insurance doesn’t cover . On top of it my husband is a dentist . I am a breast cancer survivor. Had it in my 40’s . Put me in menopause by 46.
@christinegrossi4430
@christinegrossi4430 Жыл бұрын
I so much appreciate what you have done for us - I’m 76 with osteoporosis, drug-free so far - in bringing information which goes a long way to dispel fears. My primary wants me to take Fosamax and I need to be sensible. Thank you.
@elizaramirez7570
@elizaramirez7570 Жыл бұрын
Fosamax ? What was your decision
@laurierz
@laurierz 2 жыл бұрын
I'm 57 and have been on Boniva for a couple of years. My doctor wants to put me on Prolia, but didn't really give me a reason why, so I'm doing some research about the differences. This video was very educational. Thank you!
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
Thanks for sharing!
@user-kk1bf6wj1w
@user-kk1bf6wj1w 2 ай бұрын
I really enjoyed her presentation. I would definelty want to see her. I am 72 with osteoporosis of the hips -2.8 and -2.9. I am so scared to get a fracture. My doctor here wants me on atelvia since I have thyroid disease. I was on fosamax for 6 years and then went on a holiday years ago. I was only early 50's when I did take it. I had plenty of problems with it. Acid Reflux plus swallowing problems. I wish I knew what to do.
@newlife8318
@newlife8318 Ай бұрын
Look at Margaret Martin's recommendation for best hips protector pads...a New Zealand company...motor cycle grade! And softer ones for in the evenings...most women are more at risk of fracture when rushing to the loo in the evening...! These brilliantly researched devices you pop in your knickers have a large part to play in preventing damage...I've ordered some and do not care what I look like. Except hey actually seem unobtrusive! Nothing worse than being helpless on the floor without a smart watch calling an ambulance for you or a a sat phone or eperb to get an emergency squad if you're out of phone range and have had a fall. I agree with you.
@deetin3658
@deetin3658 6 ай бұрын
My mother-in-law is a 100 years old. Never went on this kind of medicine, she was always walking. Cause she worked in the hospital for 53 years. She's a 100 so far so good. She hasn't broken anything.
@sharonshea3261
@sharonshea3261 4 ай бұрын
Your mom got that right.
@BeaTrice10
@BeaTrice10 3 ай бұрын
Did she has osteoporosis?
@angiedues8813
@angiedues8813 7 ай бұрын
I took one dose of prolia and had every side effect in the book, body pain, weakness, jaw pain, and I have a rare side effect with my thyroid. I devolved hyperthyroidism.
@anastasiafronimakis8370
@anastasiafronimakis8370 6 ай бұрын
That's scary n sad...
@33ladyRAM
@33ladyRAM 2 жыл бұрын
I just turned 50 had a DEXA scan and my right hip decreased 9.5% I have always been active (running, walking, weight training, cross-fit etc). I am baffled as to why I am loosing bone density. I will see an endocrinologist but I am researching now to get educated before I see the doctor. Thank you for your information.
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
Thank you for the update. Good luck with your research. I have free course on osteoporosis that you might find helpful: melioguide.com/free-course/
@lindacaro7773
@lindacaro7773 Жыл бұрын
My problem was a parathyroid ( we have 4) that wasn’t working right. It was pulling calcium from my bones and putting it into my blood, so my calcium level was almost 12. I had no idea, no symptoms. I had it removed but not before it drained my calcium from my bones. Good luck and find out soon!
@33ladyRAM
@33ladyRAM Жыл бұрын
@@margaretmartinpt - Sorry I am just now seeing this. Thank you
@trueamerica
@trueamerica 9 ай бұрын
me too, i'm only 45 i had a tibia and fibula fracture, i'm glad i got my dexa scan so i know, my risk is 10.3% for another fracture, i do drink soda and i heard soda can cause bone loss, i don't smoke or drink and im active so soda is the only thing i can think of
@lynnwilliams5432
@lynnwilliams5432 8 ай бұрын
I too always doing everything advised for healthy bone so shocked at finding osteoporosis out after fracture on my femur stem and hip replacement.
@giuliettawebber6772
@giuliettawebber6772 Жыл бұрын
I have bad osteoporosis and am terrified.A fried of mine's jaw bone cracked totally in half with fosomax then had to go onto morphine for the terrible pain and now is addicted to the morphine.A nightmare. I have an appointment with a specialist homeopath next who hopfully can give him strong meds in homeopathic form which is not dangerous.l know homeopathy has alot of sucess with this
@DistrustUS
@DistrustUS 9 ай бұрын
I don’t want anything with bisphosphonates or estrogen or soy. I’m thinking of looking into more holistic alternatives.
@barbh6987
@barbh6987 Жыл бұрын
Wow this interview has helped me so much, thank you! I was reading all these terrible results from Fosamax and I had really considered not getting it. I'm 67 and was diagnosed osteoporosis in 2022. So I will be probably going ahead starting it this summer. It will be an infusion so I hope my doctor can see if I'm having a bad reaction to take care of me. Don't know how that works. My doctor is at a college hospital in Chicago so I guess he sees lots of patients and will know what to do. Thank you do much for helping to relieve our anxiety.
@newlife8318
@newlife8318 Ай бұрын
Look at Margaret Martin's interview with an oral surgeon
@picksoverpeas
@picksoverpeas Жыл бұрын
I really appreciate this interview and the questions that you asked. Thank you for seeking out Dr. Rubin so she could share her knowledge with those of us with these types of questions!
@susanritchie9456
@susanritchie9456 2 жыл бұрын
Thank you!
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
You're welcome!
@dinamariea61
@dinamariea61 2 жыл бұрын
I was on fosamax previously and the side effect I got from it was I could not swallow. I did not make the connection at the time and when I told my doctor I could not swallow, she had me go through all these tests to see why I could not swallow and luckily nothing was found. One day I checked the side effects of fosamax and sure enough difficulty swallowing was one of them! I immediately stopped taking it and I was able to swallow again. Now she wants to put me on prolia and I am very reluctant. I am trying to work on building bone density through diet, supplements and exercise instead. I may go on hormone therapy if nothing works.
@attop21
@attop21 2 жыл бұрын
Good luck! I’m taking a similar route, avoiding the nasty drugs if possible as the benefits don’t seem to be there.
@dinamariea61
@dinamariea61 2 жыл бұрын
@@attop21 Thank you!
@RevelationArtist
@RevelationArtist 2 жыл бұрын
My mom was on Prolia and after 2 years her teeth started to loosen! Her dentist showed me the X-rays that showed the bone in her jaw had disintegrated! A side effect of Prolia!!!
@ccddddd
@ccddddd Жыл бұрын
@@RevelationArtist Thank you for sharing. I cannot believe we are not warned properly about the risks
@ccddddd
@ccddddd Жыл бұрын
It is astonishing that nobody warned you of this risk, then when the symptoms happen it is YOU that discovers why. I was not warned of any risks, I wasn't even told to sit upright for 30 mins etc. My gut feeling told me this wasn't right, the whole thing didn't make sense - why did my doctor not even have a brief conversation with me before prescribing it?! I have not taken this drug and the more research I do, the more I am glad I haven't touched it. I'm am taking the same route as you - exercise and diet, rebounding exercise, vit D 4000u a day and K2. NOBODY has suggested this - only from my own research. I wish you the best of luck, please take care of yourself
@foodchoicemattersandmore616
@foodchoicemattersandmore616 Ай бұрын
I am 69 and the Endocrinologist told me I have severe bone loss. He gave me a list of 6 medications to consider. I’ll meet back with him in 6 months. I have had osteoporosis for over 10 years. On two separate occasions I was prescribed Fosamax. And I took 1-2 pills each time. Both times I felt like my ankles were weak and would break. I stopped taking the Fosamax. I understand about osteoclasts and osteoblasts and the “dance” they play to create strong bones. I need to do research on all my choices of medications, but I don’t think I want to mess with my osteoclasts and osteoblasts. There are just too many horror stories out there of people who take these drugs.
@trudihelgeson319
@trudihelgeson319 Жыл бұрын
I am 79. Had L3 fracture in December and had first Prolia injection in January. I would strongly suggest you take your rx for fosomax when you have low T scores. I did not because of side effects and scared. I have walked every day and yoga 2x week for years plus hike. also calcium, mag, D-3 etc. and eat very healthy. Prevent the fractures if you can. If that means taking medication do it. Fractures and immobility are not fun!
@newlife8318
@newlife8318 Ай бұрын
What do you think of weights and vibration plates?
@bradleytheteacupchihuahua1335
@bradleytheteacupchihuahua1335 2 жыл бұрын
I was on xgeva for MBC. I took excellent care of my teeth. I of course got ONJ. It took nearly 18 months for this dead bone to come out. 2 days after the dead bone came out. I finally saw the doctor that explained what had happened. He said anything that causes a break in the mucousa of mouth has the potential to start the ONJ process. This allows germs to get in which causes bone death.
@elsagrace3893
@elsagrace3893 2 жыл бұрын
Good to know. Sorry you had to go through that.
@theresa94010
@theresa94010 Жыл бұрын
Fran - May I ask what ONJ stands for ? I am worried that I may run into similar problem with my teeth under the medication. thank you in advance.
@afrothiti234
@afrothiti234 Жыл бұрын
Isn’t it necrosis of the jaw?
@mzmxx
@mzmxx 8 ай бұрын
@@theresa94010 Osteonecrosis of the jaw.
@newlife8318
@newlife8318 Ай бұрын
Look at Margaret Martin interview with oral surgeon
@evidentialpsychicmediumandrea
@evidentialpsychicmediumandrea Жыл бұрын
I fractured in my spine L1 May of 2022. Had kyphoplasty and fractured L2 end plate. Endo wants to start me on reclast. I’m still healing from an infection I had after procedure. Should I wait until I’m clear 100 % from the infection? Apparently the infection is gone but they are still waiting to be dyre. My spine became inflamed and o had ours in the right psoas muscle. Took antibiotics for 6 weeks. Any suggestions?
@maria2400
@maria2400 2 жыл бұрын
I went to a life screening here in Robbinsville NC. The lady said I needed to see the doctor about my bone density. So my doctor sent my to have a bone density test. I have Osteoporosis in my spine and hips. I’m 62 and will be starting on a weekly dose of Fosamax. I love your videos.
@attop21
@attop21 2 жыл бұрын
Please make sure you research all the options carefully. Best of luck
@user-tk2fg2re2g
@user-tk2fg2re2g 6 ай бұрын
Why no mention of the newer osteoporosis injections Evenity or Romosozumab. This is s very expensive medicine to treat osteoporosis, and I understand that even with this expensive treatment from Amgen, after the treatment is stopped with the 12th monthly injection routine, the new bones that were built up during the treatment starts to decline quickly. SO what is the use of spending a fortune on this kind of treatment when it also does not last in terms of it's effects on building up newer bones and avoiding fractures in the future?
@Hissage
@Hissage 3 жыл бұрын
The doctor claims that the side effects are rare . Well, not according to the people that share their experience on several osteoporosis groups on Facebook. Many many had to quit the drugs because of the side effects. Maybe she is more careful on what she prescribe to her patients but the rest of us have to use other doctors/ endocrinologists that may not have her expertise .
@margaretmartinpt
@margaretmartinpt 3 жыл бұрын
Dr. Rubin quotes the incidence of side effects in aggregate against the total population of people taking the medication. She is careful to quote the facts. The reason you might see a higher incidence reported among Facebook groups is because the people who do have a side effect spend time on these Facebook groups while those who do not (the majority), do things other than spend time on Facebook (in those groups). If they are doing well with the medication, why would they frequent these groups? Another point to consider is that people often experience side effects but they might be caused by sources other than the osteoporosis pharmaceutical. The "side effect" might be from another pharmaceutical. a supplement, inactivity or general decline. I have treat many patients on Prolia and rarely see the side effects.Thank you.
@CloverHikes
@CloverHikes 2 жыл бұрын
The incidence of side effects is studied and reported. Of course, anecdotal data from a Facebook group is going to make side effects seem much more prevalent. People with side effects are often looking for other methods to treat their osteoporosis or looking for others with whom they can commiserate. Frankly, I think FB has been a detriment to treatment. I see many who refuse prescriptions because they have been scared out of proportion to actual risk. I’d bet most of them are taking a more common medication for something else, and aren’t even aware of common side effects.
@Hissage
@Hissage 2 жыл бұрын
@@CloverHikes I don’t take any prescriptions medications. My dental implant specialist warned me about OP medications because they interfere with dentistry. If you are on these medications you cannot have dental implants , and they also causes teeth loss .
@susanedghill6597
@susanedghill6597 2 жыл бұрын
@@Hissage I wish I’d never heard of it. My dr just put me on it without telling me any thing I did not have cancer and found out too late that I was just barely in the Osteoprosis side Started falling before all the other things happened I was 65. Had bad falls before and did not break anything. He should have checked more. I have celiac which is why my bones are problematic I’m sure it could have been managed with another drug. ! Drs don’t care. They don’t investigate. Now I can hardly get around even with a walker. My life has been ruined. Have to live alone , husband passed and children have no idea how difficult life is. Have been told it’s too late for hormones. Can’t swallow things so what do I do now ?? Fragility fractures now are so painful and no one seems to care ! Dentist won’t let me go on anything or he won’t pull my tooth or work on them. !!
@elsagrace3893
@elsagrace3893 2 жыл бұрын
@@CloverHikes maybe they are not scared out of our proportion to the risk. Maybe they are just extremely risk adverse and that is their choice. So suck it. You seem to be trying to control people into adopting your values.
@rocky3105
@rocky3105 2 жыл бұрын
Sir. Is it possible to increase height by activating pituitary growth hormone after the growth plate is closure and How much inches grow possible?
@dianaeriksson3153
@dianaeriksson3153 6 ай бұрын
I know someone with pagets disease, are the same medication being used for them?
@marthierossouw5094
@marthierossouw5094 Жыл бұрын
Dr I am on the boniva injection is it save to just stop using it?
@Janeway1269
@Janeway1269 2 жыл бұрын
I respect having Dr. Rubin on but to ask why doctors would prescribe something that will cause fractures, well, that has an answer that I should think most doctors can guess. Most patients today feel doctors' hands are tied by drug companies and that they get told in administrative meetings that this is what you give patients with certain problems. And that there's only so many treatments you can give and that's that; no room for their own thoughts on the matter. I don't believe in conspiracy theories, but you tell me. How much wiggle room to doctors have today to speak and think for themselves? Also in one FB group I have only been in for a few weeks, I have already heard of one person getting osteonecrosis and dying from it, due to these drugs. How "rare" can osteonecrosis be if I have already found out about someone who died of it. after just being in a group for three weeks? The medical definition of "rare" seems to be wildly inconsistent. On top of that, if you don't give people in their 50s these drugs because they don't fracture, but they do improve bone density for people in their 50s, doesn't it make sense to think that the reason fracturing happens to people in their 60s is because bone density was decreasing progressively during the 50s? And wouldn't drugs help bone density so as to keep fractures from starting in the 50s to begin with?
@attop21
@attop21 2 жыл бұрын
The benefits from these drugs are very slim, small decrease in # of fractures and who knows how these studies were done. The side effects are horrible!
@elsagrace3893
@elsagrace3893 2 жыл бұрын
Endocrinologist Janet Rubin didn’t even use the word “rare”. She said “I haven’t seen in my practice…and …..I am only in clinic once a week” yes, sir, if your head is hidden in the sand you can’t “see” anything.
@ccddddd
@ccddddd Жыл бұрын
I think you are spot on. It's all about money and big pharma having control
@andreah6379
@andreah6379 8 ай бұрын
In US, our healthcare industry is for-profit, meaning their No1 goal isn't healthy patients, but $$$$$$. No conspiracy needed. It's fact. Big drug companies send out their sales people to push their drugs on the doctors, wining & dining them, & in turn, they push it on their patients. Many patients say that their doc never discussed possible side effects with them when they handed out these prescriptions. To me, personally, with such SERIOUS side effects that these drugs have, that's downright immoral!! What ever happened to "Do no harm"???!! It's not illegal to have doctors own stock in these drug companies, & knowing that these drugs are serious poison to their patients. This is what for-profit means. Dollars over life, over health.
@trueamerica
@trueamerica 9 ай бұрын
on my 45th birthday i got diagnosed with severe osteoporosis, ive always been healthy, i am active and do not smoke or drink, my doctor prescribed me Fosamax, but she told me she doesn't really recommend it, because a dentist won't want to see me, im torn on what to do.
@andreah6379
@andreah6379 8 ай бұрын
Then ask your dentist! I have Osteopenia now at 67 but I am so interested in the horror stories of these Osteo drugs, that I want to ask my female dentist exactly what her experiences are with patients on these dangerous drugs. Before I consume a new product, I look up reviews on the item. Then I check on the 1 star comments!! Nothing tells you the truth more than those who have the worst ratings! And Google lawsuits filed on the drug! See what other people went through, 1st.
@newlife8318
@newlife8318 Ай бұрын
Look at Margaret Martin interview with oral surgeon
@attop21
@attop21 2 жыл бұрын
Prolia and bisphosphonates have nasty side effects and I am not convinced that they provide significant benefits.
@elsagrace3893
@elsagrace3893 2 жыл бұрын
Yep, there is no evidence for bone quality. The only evidence is for bone density and density does not equal strength. We can easily buy Strontium at the health food store. Strontium increases bone density and is somehow known not to build bone quality. DEXa scans only measure bone density so there is no way that the Pharma companies could have proved that their drugs increase bone quality=strength with flexibility.
@janemerves7682
@janemerves7682 Жыл бұрын
I agree
@mariamarino138
@mariamarino138 Жыл бұрын
But than, what do “we” do?!!!
@attop21
@attop21 Жыл бұрын
@@mariamarino138 try to exercise, take vitamin D3 and MK7 daily, consume foods with calcium.
@lizadivine3785
@lizadivine3785 8 ай бұрын
@@mariamarino138God wants you to pray.
@RebeccaKnight927
@RebeccaKnight927 9 ай бұрын
Margaret do many of your clients on Tymlos complain about fatigue? I have a patient that is pretty tiny I wondered if she could take it every other day and still be effective. But it's totally wiping her out. We've eliminated any other cause.
@mariamarino138
@mariamarino138 Жыл бұрын
Hello, and thank you for so much of the information!!! I’m 57, dexa scan was -4.3 spine( 2 years ago) and have had 2 spontaneous fractures ( T8-T10) I have severe stomach issues( chronic gastritis and stomach ulcers) what do I do, where do I begin? Should I weight train, can I exercise? I’m completely lost, and very scared!!!
@newlife8318
@newlife8318 Ай бұрын
I hope you found Margaret's videos and her book...she seems to be working very hard for us...she's found safer protective hip pads and a marodyne vibration plate I saw recently...and her focus on posture and balance is extremely thorough
@LoisJoos
@LoisJoos Ай бұрын
Oh thats awful. I have just found mine is -4.4 in the spine. I also have gastric issues. So scary and not sure what to do.
@christinehargrave4141
@christinehargrave4141 2 жыл бұрын
My side effects from Prolia have been different than mentioned in this video. I was prescribed Prolia and experienced 12 continuous days of severe bone aches after the first shot. When I woke in the morning I had extreme stiffness and difficulty walking and moving throughout the day. I am 64 and felt like I was “old old”. I don’t know if this is common or not, but it was uncomfortable enough for me to chose not to continue with further injections. I am now on HRT in hopes that this proves to be a more effective treatment plan. I am told I should wait 2 yrs for my next bone density test to see if HRT helps. Very discouraging to have to wait and see, but I am hoping that my results are better in time. Maybe in 2 years there will be better alternatives.
@ronhef8849
@ronhef8849 2 жыл бұрын
Diet and exercise are far safer than any osteoporosis medications. We all age so stands to reason your not going to have the same bone density as when you were younger. I have high risk of a spinal fracture according to a dexa scan 5 years ago, I chose not to take Prolia and 5 years on I’m still fracture free.
@jaadamin4125
@jaadamin4125 2 жыл бұрын
@@ronhef8849, what is your advise what type of diet & exercise you do
@elsagrace3893
@elsagrace3893 2 жыл бұрын
Diet and expertise will not help much if you are in estrogen deficiency also known as menopause. We need to make estrogen replacement standard at menopause like it used to be before the flawed 2002 Women’s Health Initiative study. It was bullshit. They blamed blood clots and breast cancer on estrogen when it was actually do to starting women over 65 on HRT. HRT is healthy when started within 10 years of menopause. The sooner the better. After that the arteries have hardened to much an their can be an increase I. Blood clots or other heart problems. There is no evidence that HRT causes breast cancer. More breast cancer happens in older women weather on HRT or not. It is a condition of getting old.
@janemerves7682
@janemerves7682 Жыл бұрын
Prolia ruined my life😡
@ploppy193
@ploppy193 Жыл бұрын
@@jaadamin4125 You have to eat what your bones need, I recommend watching Dr Berry's youtube video on reversing bone loss.
@joanaxthelm1650
@joanaxthelm1650 2 жыл бұрын
Hi! This was a very interesting video so thank you. But I am confused about the timing of the drug holiday for the bisphosonates. The talk was to take the holiday at about 4 years. Can you confirm if that meant before you start your 4th year or if it means after you finish your 4th year? Thank you.
@rocky3105
@rocky3105 2 жыл бұрын
. Is it possible to increase height by activating pituitary growth hormone after the growth plate is closure and How much inches grow possible?
@geriangiulli937
@geriangiulli937 2 жыл бұрын
The interviews with Dr. Rubin are so helpful. I'm in the class of women who are early 50's and diagnosed with osteoporosis. I've been active my whole life with both weight bearing and weight resistance exercising. Though I'm on HRT now, I am not confident this is enough, and I feel like I should seriously consider taking a pharmaceutical. From the video, it sounded like Evinity is not a 'first line' drug for someone in their early 50's. Did I misunderstand? Evinity sounds like a good option for me. One other comment, would you consider an interview with someone who can discuss the Echolight REMS testing vs the DEXA? I had the REMS done recently in NC. My lumbar spine T was -2.5 (vs 3.0 DEXA) and femur neck was -2.5/-2.9 (vs -1.5/-1/8 DEXA). DEXA was done 9 months earlier. Thanks for all your information!
@ellamcknight3966
@ellamcknight3966 Жыл бұрын
Thank you. Margaret so much for being so thoughtful.to include this concern for the well-being of your patients /clients . I am in the Old Very old category . Being 93. Yes I do have severe osteoporosis ,and follow your. Exercise program . I am very active . My doctor wants me to start Rx.but it is so very confusing for me ,because of side effects ,and when to take the Rx ,as it is my concern that no.one knows the stage the bone is . Did I make that clear .?? At the present time I am loading up on Collagen. And hope that will make a difference , which I was promised it does . However ,the only was to check is Dexa. And that is 5year gap ! I feel I am rambling on . A Appreciate your program
@newlife8318
@newlife8318 Ай бұрын
I think you are wonderful. Collagen! I've heard that os extremely good!
@lauracde4414
@lauracde4414 5 ай бұрын
I was put on fosamax when I was in my 50s because of osteopenia and was on it for five years but then when had oral surgery and needed bone graft because I was told I had lost jaw bone and jaw bone was infected from having been on that medicine. So I have been afraid to go on any meds since but now have moderate osteoporosis. But I’ve very scared now to go on Prolia or Evenity or Forteo though my endocrinologist wants me to take them. But I don’t think she is appreciating my concerns. Doesn’t seem like there are safe drug options yet for those of us with osteoporosis
@newlife8318
@newlife8318 Ай бұрын
Look at Margaret Martin interview with oral surgeon....I can't help but think on the way that interview seems to be pulled up short at the end...
@sarahg638
@sarahg638 9 ай бұрын
Just found this. Wow. In 2010 age early 50’s my PCP ordered a dexa. DX osteoporosis. PCP wanted to put me on this new drug, Prolia. I declined and found a new provider.
@mademsoisellerhapsody
@mademsoisellerhapsody 7 ай бұрын
Same. Changed providers as well.
@newlife8318
@newlife8318 Ай бұрын
My lucky bad teeth!... also avoided it, many doctors suggest I take something but my teeth keep coming up with things! The doctors hate me living in a rural area after a fall. Logically improve diet exercise do not fall hip protectors all the exercises and then some. Make sure you know more than the doctors and have moved past sever horror and dread stage before making any decision.
@eileencoulter6263
@eileencoulter6263 6 ай бұрын
Hi im 61 fell and broke my rist and found out i had ostie,i had a bone infusion a month ago put me on my arss for two days,i have no thyord 34 years, doctor said ill end up with heart problems but instead i got brittle bones,doc said i need another one in a year,please what can i do to help myself naturally
@annwright8665
@annwright8665 2 жыл бұрын
What do you know about the nasel spray called calcitonin Salmon ?
@elsagrace3893
@elsagrace3893 2 жыл бұрын
The molecule is identical to the one our body makes. You can but it online overseas pharmacies. The FDA did not approve it. The board that voted was bribed by big Pharma making all these toxic bone densifyers . I don’t know for a fact they were bribed but it is a molecule our body makes but they claimed it causes cancer. Certainly not to the degree this other crap for building bones does.
@roslynmcintosh1180
@roslynmcintosh1180 Жыл бұрын
I was on Prolia for approx 5 years and then after a leg fracture, an endocronologist took me off that and prescribed Teraperatide. I am 70 years old - had osteoporosis since age 25 (after a bone biopsy after) I have now had 16 bone breaks. Is going off the Prolia harmful to me? Can you take both together?
@newlife8318
@newlife8318 Ай бұрын
You certainly have been in the thick of it all! I hope you are finding some good ways through all if this!. Do you have any recommendations? How do you get through the bad times?
@esat189
@esat189 Жыл бұрын
My rhuematologist said I don't need vit k or check magnesium etc. Even though my pulmonologist for sarcoidosis upped my vit d3 because even with supplimentation with vit d3 and fozomax was so low. And bone density was still low. I now have dental disease and can't take fozomax any more. I'm screwed. I eat holistically . No proccesed food. Etc
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
save our bones online is a site by a nurse who has a ton of non drug tips
@michaelbeckley2223
@michaelbeckley2223 Жыл бұрын
David our bones
@ccddddd
@ccddddd Жыл бұрын
@@hollyhansen7898 Thank you for sharing. This is exactly what most of us need
@newlife8318
@newlife8318 Ай бұрын
Jordan Peterson says go carnivore to fix gum disease...I'm doing the oil pulling...keeps me quieter...the interview with oral surgeon by Margaret Martin is fairly optimistic...what's that book...love your disease it's keeping you well....!
@heatherhigson342
@heatherhigson342 3 ай бұрын
same here . i like thousands are petrified of taking bio phosphanates . …. can i ask which ones are the best ???? is risedronate sodium or a different one???
@lynnwilliams5432
@lynnwilliams5432 9 ай бұрын
Old old 81 yesterday. Just fell on hardest concrete never had broken bone in life didn’t hurt unless I moved : positional. But it was the stem behind the Greater Trochanter. Next morning hip replacement. I was buzzing along great went to post op found another fracture lower so put on no weight bearing until Aug 22nd. Says I’ll be good to go??? What does that mean? I always subbed retired teacher JH, HS this time of year. I am on Alendronate sodium. Few bouts of diarrhea. Trying to keep up protein slim not hungry but counting Ca and protein daily. I take a multivitamin/ mineral daily. Boron but no added Ca just dietary . D3 + K2 any suggestions. I do all exercises not weight bearing plus arm shoulder weights . I was a step racer 10 miles and sprint 9 minutes. Say it is jump and strike with osteoporosis like marching or jump rope. Let me know a little.
@andreah6379
@andreah6379 8 ай бұрын
Make sure your K2 is also listed as K2 MK7, not MK4. Bone needs impact so brisk walking is good but to make it better for bones, can you include taking a hill on your walk? That's my input. Maybe that helps you. Sara Meeks is an 80+yo physical therapist on YT who specializes in treating Osteo patients interested in isometric exercises for bone health. You might want to check her out. She has Osteoporosis herself & has been in the field of PT since the early 60s.
@lynnwilliams5432
@lynnwilliams5432 8 ай бұрын
@@andreah6379 My K2 is the seven not four. Since I recently started the cane go up gradually elevated. Until the last post op on hip fearful of subsiding the titanium insert down the femur. I am retired teacher but sub JH HS been getting 3 miles/ day. I am also still doing therapy one day/ week. Thinking hip recovery then osteoporosis marching dropping up and down hills. Is that clearly thinking?
@newlife8318
@newlife8318 Ай бұрын
Weights! Weights for upper body! Posture exercises! Get Margaret Martin book on Better Bones. Watch as many of the videos as you can find! Gently push to become more active again and definitely do the posture ones! You are amazing! Stay happy and eat VERY well. One of my role models who died at 90 with osteoporosis said if she had her life again she would EAT HER MONEY. That means bone broth oysters grass fed meat, fish, eggs, olive oil, nothing but the best. Enjoy your life! Oh the Balance exercises as well! Go for another ten years as a minimum goal!
@newlife8318
@newlife8318 Ай бұрын
I have a similar plate...now wishbid kept pushing it and got into the weights earlier...you definitely need to do some nurturing weights for your spine amd practice balance...even if you start developing your own ballet manoeuvres to do it. Go to library and borrow this lady's books for what to do in daily life. Essentially exactly 💯 what you were doing with some new supportive ideas.
@heatherhigson342
@heatherhigson342 3 ай бұрын
why can’t i have the medication that stimulates bones first instead of bisphosphanates
@carlahill9607
@carlahill9607 Жыл бұрын
Wish you’d use the brand name. Most of us don’t know clinical name
@eliznaomistuart
@eliznaomistuart 2 жыл бұрын
Thank you for this information! I read that once you start taking Prolia, if you stop it, you are at significantly increased risk of spine fractures. Is that true? Are there situations where it might better to go on HRT (if you've never had HRT before, also no children, and you are more than 10 years post-menopausal) vs the Bisphosphonates or Denosumab?
@suzanneecklund4478
@suzanneecklund4478 2 жыл бұрын
Yes, true re: stopping Prolia.
@MrsKDFerguson
@MrsKDFerguson 2 жыл бұрын
I also would like to know the answer to this question.
@bestimpersonations
@bestimpersonations 2 жыл бұрын
@@MrsKDFerguson It's true about Prolia. You can't just stop it without increasing your risk of having vertebral fractures. You are supposed to go on bisphosphonates after stopping Prolia. (So when your next shot is due, you would start bisphosphonates.)
@annabanna1342
@annabanna1342 Жыл бұрын
I had unpleasant side effects from prolia, researching different options both medication and more natural.
@MrsKDFerguson
@MrsKDFerguson Жыл бұрын
Sorry, my question is also about trying HRT ten/fifteen years past menopause instead of osteoporosis medications?
@evalindahl8285
@evalindahl8285 2 ай бұрын
I’m 54 and dr wants to put me in Tymlos, you are saying not to start drugs til 60s. Should I wait? I’m in very good shape, exercise and eat well, but my t score is -2.8
@helenrussell1434
@helenrussell1434 Жыл бұрын
Here in Australia I know lots of people on prolia in their 50’s. GP’s give them out easily. They don’t refer to specialists
@deannewise3320
@deannewise3320 Жыл бұрын
Also from Oz. Many of my friends are on GP prescribed Prolia. They have no idea of side effects.
@ccddddd
@ccddddd Жыл бұрын
I'm in the UK but it was all a 'secret' who had prescribed me a biphosphonate and NOBODY warned me about side effects. I'm 51. Not taking the risk thank you very much.
@dikershaw4576
@dikershaw4576 8 ай бұрын
Age 78 diagnosed osteoporosis of left hip. Prescribed BONIVA, going on 4 years. No known side effects. How long is continued medication recommended? I Exercise most days, brisk walking 1 hour about 5 kilometres. 30 minutes into walk, hip becomes very uncomfortable starting at hip radiating down to knee. Any advice please?
@andreah6379
@andreah6379 8 ай бұрын
Are you sure that's not a side effect of this drug? Make sure you read all the fine print. Many side effects aren't listed but the "side effect" instructions will say something like, "...Not all side effects are listed here." Then, you have to go online and Google the drug for more info. I do that even before going on any drug.
@DiKershaw-ss6ft
@DiKershaw-ss6ft 7 ай бұрын
@@andreah6379 I read all 64 pages of the patient information leaflet and the possible side effects did worry me. However, almost 4 years later, I do not seem to have any side effects. My question was, "how long is continued medication recommended?" I have read and been advised by other users of Boniva, that it only builds exterior bone, which starts chipping after prolonged use.
@jaadamin4125
@jaadamin4125 2 жыл бұрын
Hello all,jaad 43,have severe osteoporosis and classification but all my blood test&minerals came good,wonder if something dangerous in my bone metabolism,lost what to do
@mariamarino138
@mariamarino138 Жыл бұрын
Same here😢
@sav4593
@sav4593 11 ай бұрын
I’m 43 and I don’t know what to do with osteoporosis. I gave birth to a child 1.5 years ago
@newlife8318
@newlife8318 Ай бұрын
Think you need to pinpoint the causes of your condition and remedy them. Don't underestimate lack of sleep and stress. You are young enough to reverse and hold this back I would have thought
@seaglassjpl1467
@seaglassjpl1467 2 жыл бұрын
How much vitamin D do I need / about to turn 70 / appreciate your input
@andreah6379
@andreah6379 8 ай бұрын
From all that I've read and heard from doctors, about 2000-5000IU a day--but each person is different & needs to check with their own healthcare provider. You don't want to get too much of any fat-soluble vitamin! Most Americans are deficient in VitD. BTW: Best way to get VitD3 is sunshine! No sunscreen, bare skin and about 15-20 minutes, high noon is helpful and best. (If you have had skin cancer, than completely avoid this.)
@verily360
@verily360 Жыл бұрын
I got RA after taking aclasta.....
@helenrussell1434
@helenrussell1434 2 жыл бұрын
Dosamate is prolia ???
@sparkleinco2035
@sparkleinco2035 3 жыл бұрын
I am 80 with spinal fractures. I did not take prolia but my doctor has recommended Forteo. Sorry that she did not discuss this. perhaps later
@margaretmartinpt
@margaretmartinpt 3 жыл бұрын
Dr. Rubin is mostly concerned with patients who are frail where the risk of fracture is elevated. In this case, she recommends pharmaceutical intervention, such as Prolia.
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
I studied forteo it has a black box warning about causing bone cancer and u have to stop after 2 years bc it is so toxic I went to forteo class to learn how to inject it and watched a 70 yr old woman have a non stop back spasm she drove to the class but could not drive home due to the horrible pain you have to daily inject it and keep it cold and take it with on trips I decided against it bc i get side effects from drugs read all the fine print
@markarrivi5754
@markarrivi5754 Жыл бұрын
I LOVE YOU DOCTOR YOUR BEAUTIFUL 😘❤️
@margaretmartinpt
@margaretmartinpt Жыл бұрын
Thank you.
@thebuckstopshere2186
@thebuckstopshere2186 Жыл бұрын
Maybe I am an exception, but I found out I had osteoporosis when I was was told I had two compressed fractures at T11 and T12. At that time, I was 61 years old at the time. I wish I had a bone density test much earlier as I could have got on fosamax and maybe prevented the two fractures. Once you have a fracture from osteoporosis I have heard you are at hight risk for another one.
@mariamarino138
@mariamarino138 Жыл бұрын
Same here, 57, 2 compression fractures, T8 and T10, I’m told, fracture leads to fracture, I feel so frail and scared to do ANYTHING!!!😢
@andreah6379
@andreah6379 8 ай бұрын
Even if you aren't diagnosed with either Osteoporosis or Osteopenia, you can still have a fracture! There are also such things as "silent fractures," where you have a fracture in your spine but never felt great pain. Just like some ppl think having Osteopenia isn't as bad as Osteoporosis. There's no guarantee at all with any diagnosis what each day can bring when it comes to your bones!
@bowler8
@bowler8 2 ай бұрын
but youre also at high risk from fractures on the drug, it increases density, but not bone quality
@newlife8318
@newlife8318 Ай бұрын
Desiderata. Healing hypnotherapy on youtube using Brave search engine where there are no ads. Multiple teabags of chamomile tea. I think we are all finding our way here 🕊 🕊 🕊 💖
@newlife8318
@newlife8318 Ай бұрын
Look how Margaret Martin interviews a woman with compression fractures and how she is building up the power of her spine again, now walking 3 k a day!
@ploppy193
@ploppy193 2 жыл бұрын
I got my first fracture at 49!
@elsagrace3893
@elsagrace3893 2 жыл бұрын
Did you go to a specialist to check if you have another condition that caused osteoporosis? You need to.
@ploppy193
@ploppy193 Жыл бұрын
@@elsagrace3893 I had a DEXA scan and that showed I had osteoporosis. I had UC that can cause osteoporosis.
@gdwitch
@gdwitch 3 жыл бұрын
I need go on Aromatase inhibitors soon. I'm 67. I already have osteoporosis. They are suggesting I take either prolia or Zometa because I have CKD stage 3A and I am being treated for Ulcerative Colitis with Remicade. Should I seek a specialist or are these safe for me?
@margaretmartinpt
@margaretmartinpt 3 жыл бұрын
You should discuss this with your physician.
@gdwitch
@gdwitch 3 жыл бұрын
@@margaretmartinpt I don’t trust many oncologists are well versed on bone issues when you have other health concerns.
@theresa94010
@theresa94010 Жыл бұрын
@@gdwitch - Very true, unfortunately and sadly.
@lidiatorres3502
@lidiatorres3502 Жыл бұрын
@@margaretmartinpt is
@toddginther3769
@toddginther3769 Ай бұрын
Why do so many bone doctors, etc. say that drugs like Fosomax do build bone, but it's not good bone and it's easily breakable and prevents the osteoblasts/osteoclasts from working correctly?
@Mary20457
@Mary20457 Жыл бұрын
With all the advances in medical science I'm amazed they haven't found a solution for bone loss. You have reassured me that it is a complicated event and taking drugs may be the only solution.
@elsagrace3893
@elsagrace3893 Жыл бұрын
They do have a solution. It is to start hormone replacement therapy immediately at menopause.
@christinemigala3640
@christinemigala3640 Жыл бұрын
Weight bearing exercises first line of defense
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
oh but they have.. the solutions they offer do not fix the problem but rake in a ton of profits for big pharma so it is working perfectly for the pharmaceutical industry they have become very corrupt it is all about the profits they can charge huge sums of money with the current system I worked with a naturopath to get all my supplements good and got a physical therapy program for my hips and you tube has good physical therapies for osteo. Also lots of walking with with a weight vest or back pack with glass water bottles in it carrying lots of groceries walking etc lots of weight bearing
@2stayfree11
@2stayfree11 Жыл бұрын
Of course exercise and diet are 1st line defense and repair; but Low Intensity Vibration platform is approved therapy in Europe, Canada and Australia. Pharmaceutical companies prevent its approval in USA.
@chrischamberlain7628
@chrischamberlain7628 10 ай бұрын
@@elsagrace3893 Can’t take HRT if women have had breast cancer.
@anitalouiseprice2083
@anitalouiseprice2083 Жыл бұрын
Your comment you have to have a doctor who knows what they are doing, unfortunately in Wales our GP is responsible for this treatment they know is what they learned at med school, to keep practicing they do not have to keep up to date. Sad for their patients of which I am one.
@tiffanyb.7596
@tiffanyb.7596 2 жыл бұрын
I have to have tooth extractions. I started my Prolia injection’s December 2021. I have to stop them in order to complete my dental work. The dental work I will be having will be for several months.
@tiffanyb.7596
@tiffanyb.7596 2 жыл бұрын
Thank you for these important videos!! 😊🦋
@marciacapell1541
@marciacapell1541 Жыл бұрын
With advanced OA before BRCA treatments, my bones were affected badly. My bone density test was revealing that. Iam on Zometa, twice a year for 3 years. Iam almost half done 😊 the side affects are painful but important to help improve strength in bones as well as prevent cancer from spreading into bones. I was having so much pain in my right hip after first treatment, I was actually limping and using my walker wheelchair, and after about a month I woke up one day and my hip stopped hurting! The zometa did strengthen that hip! 😂❤ My oncologist wants me to walk as much as I can, or my weakness in general will get worse. My jaw is fine so far. Lol. My arm and hand and finger joints are very painful now, but Iam hopeful that will stop too eventually. I have 4 more treatments to complete. Horray! 🤩🥳🤩👍 Iam 67 years old. I had arthritis since childhood. Iam no stranger to bone pain. 😂
@beverlysmith9854
@beverlysmith9854 2 ай бұрын
I can't take any thing for my bone loss. Everything gives me stomach pain and diareah. Have tried them all.
@newlife8318
@newlife8318 Ай бұрын
So the food and weights and balance and live your best life!
@andreamacdonald7510
@andreamacdonald7510 Ай бұрын
I had breast cancer 25 yrs ago chemo shut my ovaries down. I have osteoporosis now I have tried everything. I even do kettlebell weight workouts for years . Broke my wrist put me on forteo for 2 years did put some areas into osteopenia but now on prolia im 69
@trochantermainsign8874
@trochantermainsign8874 Жыл бұрын
Hormones i take now are testosterone,progrsterone,nandralone, DHEA and vitamine D3 [yes d3 is a hormone but you may need 10000 iu a day]
@andreah6379
@andreah6379 8 ай бұрын
10,000IU/ day is overdoing it. You never want to overdose on any fat-soluble vitamin! They stay in your body longer than water soluble vitamins do and that means they can build up! Also, you can get a safer amount of Vit D3 by going out into bright sunny day and just soaking up some sun for about 20 minutes. (Of course, if prone to skin cancer avoid it completely.)
@traceymundy4141
@traceymundy4141 7 ай бұрын
Notice none of the many side effects of Prolia were discussed I'm 55 osteoporosis T -2.7 with kyphosis & osteoarthritis I'm so unsure about committing 5 years to a drug
@susanritchie9456
@susanritchie9456 2 жыл бұрын
Is it best to see a rheumatologist or endocrinologist for this?
@margaretmartinpt
@margaretmartinpt 2 жыл бұрын
Hi Susan. Either will do. What matters is whether the physician has a record of treating patients with osteoporosis.
@joyces2222
@joyces2222 2 жыл бұрын
Had severe , very severe , cramping with fosamax... then to find out it may, may not help. And you can't take for many years. ... Then the medicinal ca+ will not always go into the bones, but into vessels and other tissues. Think i will go back to my Grandmother's teachings. Eat a little of everything, back on meat, my skin is clearing, my energy is back . Can't find cod liver oil. Can powder egg shells for my ca+. Can't eat my eggs raw though, and I may look into buttermilk, though i hear greek yogurt is a good exchange. My general health really needed fixing, and slowly re- incorporating the meals of yesteryear has made improvements.
@theresa94010
@theresa94010 Жыл бұрын
Our grandmothers were the wise ones. Doctors? not so much. They do what the FDA tells them, and FDA does what the big pharmaceuticals dictate. Nothing but drug pushers.
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
a great cod liver oil is CARLSONS kroger stores have it and you can get it online it does not taste bad either they took the most of the fishy taste out save our bones is a nurse who has great diet tips to help the condition
@andreah6379
@andreah6379 8 ай бұрын
There are different kinds of Cslcium supplements. Eggshells are the worst. Not easily digested and absorbed. If interested in Calcium supplements, take Calcium citrate. It's digested betterand more absorbable. The best is hydroxyapatite. It's a form of Calcium that also has other essential minerals attached in a crystal form (from what I read) and it's all good for the bones. Stay away from too much salt and soda pop, if you liked those things. Calcium doesn't do well with those things.
@joannesmith7744
@joannesmith7744 2 жыл бұрын
Interested in oxytocin.
@sarahgordon2597
@sarahgordon2597 2 жыл бұрын
people under 50s do fracture. 43 osteporosis, fractured myfoot, not healing. i am not healing and scared. I have low estrogen, history of amenorhha. i need medicine, as my aunt had 5 hip fractures,my doctors are not doing anything forme. i cannot work, i am losing friends because i am stuck at home. please advocate to health care that we cannot leave this alone....execricse is not enough. i exercise mywhole life. exercise and diet not enough. without estrogen, bones will not build...I am sick of people only treating women over 60, this is killing people all over the world:) lets get real please,thank you for listening, as i am scared and have had 4 fractures in feet overyear
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
possibly try c estriole and progesterone bio identical hormones they are made by a compounding pharmacy and are made from plants, yams
@rbl0303
@rbl0303 2 жыл бұрын
I have tried to find the reason WHY I have bone loss.
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
fluoridated water is a cause smoking race coca cola consumption all these contribute to it
@jillmartin5734
@jillmartin5734 Жыл бұрын
Estrogen and progesterone loss, mostly estrogen loss.
@andreah6379
@andreah6379 8 ай бұрын
Genetics, what kind of life style did you have growing up and into adulthood? Did you drink alcohol, or lots of soda? Are you big into keeping active and into weight bearing exercise, even walking up a hill is great for bones. Your bones start to decrease in density in your 40s. Fractures of the spine can happen to even normal bone! Two things to know are not just bone density which is measured with DEXA but also the quality of bone--how well mineralized are your bones and there's tests for that that rarely are done automatically by your doctor & often you need to request them. There's so much to know!
@newlife8318
@newlife8318 Ай бұрын
Very good points
@alisenielsen640
@alisenielsen640 Жыл бұрын
Somehow I feel like this doctor is not answering straight
@NewSkiwi
@NewSkiwi Жыл бұрын
I am 57, and just after my 3rd fracture about 3 years I decided to go with the aclasta infusion. It's supposed to work for 24months. Frustratingly, 6months on, and I have just had another fracture (shoulder) (whilst on the job). I desperately want to pursue trail running. Any suggestions?
@nancyst.john-smith3891
@nancyst.john-smith3891 Жыл бұрын
My suggestion is to get off the trail running obsession. Trail speedwalk with hiking poles.
@NewSkiwi
@NewSkiwi Жыл бұрын
@@nancyst.john-smith3891 thanks for the feedback - funny thing the same thought crossed my mind today. Xxxx
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
@@nancyst.john-smith3891 walking is great and bone building and great for the brain and mood
@andreah6379
@andreah6379 8 ай бұрын
​@@hollyhansen7898It's funny that so many of us here are so desperate to maintain bone health if not make it better and the 1st thing most everyone vows to do is take up running. Walking up a hill, any incline can be beneficial to bone health--no running needed. It's been my lifeline!
@newlife8318
@newlife8318 Ай бұрын
Suggest consider landscape photography and pausing a while camping 🏕 and using outdoor excursions for peace and beauty
@newlife8318
@newlife8318 Ай бұрын
Interesting that HRT helps bones in other ways...
@mariamarino138
@mariamarino138 Жыл бұрын
I’m 57, was diagnosed at the age of 47 with a -2.5 DXA, now at 57, one fractured my T-8 and T-10 what should I do?!!! I’m OVERWHELMED!!!
@annwright8665
@annwright8665 2 жыл бұрын
Thyroid is good. I exercise swimming, weight baring , walking and exercises. I never took medicine before till now being young old age. What do you think of doctor telling you to chew Antacid 500 chew Have no reflux ever but doctor wants take Antacid 500 3 x daily. Can’t take 3 x daily extreme sinus head aches. I’m drinking 1 to 1.5 gallons water daily. Extremely dehydration. This is from my family doctor should I see a specialist.
@annmariemurray2975
@annmariemurray2975 Жыл бұрын
Sounds like you are drinking a lot of water which may be washing out the minerals and vitimins you should be getting from your food before your body has a chance to absorb them. Look up what Dr. Berg says about drinking too much water.
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
see a naturopath they have a whole different tool kit than big pharma
@bh189
@bh189 Жыл бұрын
For me the doctor wanted me to take an Antacid for the Calcium it contains.
@diannrivera2173
@diannrivera2173 3 жыл бұрын
I'm only 54 and my endocrinologist want me to take Prolia. Should I get a second opinion? What should people do if they're under 60 years old and already have osteoporosis?
@yoongtan5163
@yoongtan5163 3 жыл бұрын
Great question I am also 54 & was diagnosed with osteoporosis. My GP suggested Prolia but I didn't take it. I would like to know what I should do apart from diet with high calcium & weight training exercise.
@margaretmartinpt
@margaretmartinpt 3 жыл бұрын
A second opinion would be worthwhile.
@brendachristine5881
@brendachristine5881 3 жыл бұрын
@@margaretmartinpt is she saying aldonerate is okay but Prolia is not for such a person, such as Diann above?
@brendachristine5881
@brendachristine5881 3 жыл бұрын
@@margaretmartinpt and is she in favor or forteo or like drug for person such as Diann and others similar; at what age does one consider forteo? Could she get into when it is appropriate?
@brendawoodward1579
@brendawoodward1579 3 жыл бұрын
@@barbs1298 Thank you so much for taking the time to reply. I’ll need to watch the video and absorb this information, but it is helpful. I may have more questions later. Thank you so much!!
@dianerogers3420
@dianerogers3420 Жыл бұрын
I take no pharmictical products.
@mariamarino138
@mariamarino138 Жыл бұрын
Fractured at 57!
@andreah6379
@andreah6379 8 ай бұрын
Fractures can happen to any one of us, even those with normal bones!
@gloriagolemboski4515
@gloriagolemboski4515 Жыл бұрын
I was on Prolia around 75. Had osteoporosis for many years before that. Tried foxanax without help first. Well because I needed high calcium with Prolia my test showed hip got worse and with further testing the calcium w3 t into arteries and not bones. Caused auerism in aorta so I am not on anything. Took D3, k2/m7, magnesia. Stood ok two years. But now I’m 83 and going bad again. I don’t know what to do. Plus I’m on S/s and the drug is my cost 1200. Every six months. I can’t afford it. No help. What now. Please advis3.
@hollyhansen7898
@hollyhansen7898 Жыл бұрын
see a naturopath they have a whole different toolkit and often have cheaper and more holistic less toxic supplements they are a great tool for aging well
@andreah6379
@andreah6379 8 ай бұрын
Can you exercise at all? If you can do isometric exercises, you may find help with checking out very experienced physical therapist on YT, her name is Sara Meeks. She's in her 80s, has Osteoporosis, too and can give help with proper exercises to hopefully maintain bone for yourself. There is so much work involved but it could help you. And it's free.
@user-dt3wm8rn4j
@user-dt3wm8rn4j 5 ай бұрын
Tori & fosamax? 😮marbles at bottom of mouth. Hypothyroidism. I'm a mess. Bones & extra bone in jaw. Locks??? Just both & Doctors aren't dentist doctors. Hip fracture father who didn't get up after replacement. My hip thinning & worried about jaw. Thyroid goiter. 135 lbs & thin frame.😮
@cn6481
@cn6481 Жыл бұрын
been on Evista foe 19 years and dr won't take me off. hate being handcuffed to a medicine.
@andreah6379
@andreah6379 8 ай бұрын
OMG😮 19 years? I'm soaking in so much research of what others with these 2 bone diseases entails & so far, I've never read or heard of anyone on 1 drug for that long period of time. Have you thought of getting a 2nd opinion?
@anastasiafronimakis8370
@anastasiafronimakis8370 6 ай бұрын
What happens if bisphosphanates gives you gastric problems, reflux/gerd, etc? Dr will then prescribe nexium or a generic to help with your gastric issue but which weaken your bones, so then what!? No thanks.
@sweetbriarcottage
@sweetbriarcottage 17 күн бұрын
Thry would want you to have the shot or infusion every six months
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