They MISSED My RARE CANCER for Over a Year! - Mariana | Adrenocortical Carcinoma | The Patient Story

[@anaferguson5135]

I hope that you went to the doctor that told you that you were eating too much and showed her your results. She needs to listen and not jump into conclusions. You are a very brave and strong woman! GBY!

[@ScottsdaleSushi]

I promise you - the doctor might read it - but most likely all he/she would do is hand back the report & walk away. Being in the medical field, I have seen that happen several times. Their mantra is "CYA"..... Cover Your Arse.

[@user-zq4fv8sj6v]

This channel needs a video of BOTH: 1) States where patients are denied care most 2) States where patients receive better care I’m chronic to terminal and exhausted by NYS!!! I’ve decided no more medical care, have DNR paperwork and to die naturally, in PEACE. I’m a man.

[@LizzyMoon]

Adult acne, weight gain, puffy face, stretch marks, thin skin .It reminded me of Cushing's Syndrome. It was obvious there was something wrong and they dismissed her. So heartbreaking

[@anglophils645]

(Cushing's syndrome, not Cushions. Cushions are on your sofa.)

[@LizzyMoon]

@@anglophils645 Thanks for catching that. I was writing in a hurry on the bus on my way to work .

[@bradmyers7109]

Unbelievable some doctors do not know how to google. Pituitary tumors that produce adrenocorticotropic hormone (ACTH) can cause both acne and weight gain: Weight gain: ACTH tumors cause the adrenal glands to produce too much cortisol, which can lead to weight gain and fatty tissue deposits around the midsection and upper back. Acne: ACTH tumors can cause acne

[@anniesimone]

Right. Unbelievable. All those rashes and the swollen face and they dismissed to "eating too much"..Heartbreaking indeed!

[@stirlingrae2465]

Almost 4 years ago in January this is exactly what happened to me with extreme lower back and bone pain. 27 kg within 12 weeks and 2 years later another 6 kg. In 21 i had 4 weeks of pain in my spleen/colon. Threw up and then a pop and I passed alot if blood. Then it stopped and would show up a little here and there. Extreme bloating all the way up to summer of 23. In between that time covid compounded my already existing problems. Then came menstruation problems which led to a hysterectomy. That led to a second bout of COVID-19 and now I've had it 6 times.. Then repeated infections like uti, pneumonia, yeast, eyes, toes, swollen everything fingers, feet, face, liver, high cholesterol, low vit d, bone pain, itching, open sores. All the while these doctors are ignoring the results that are not adding up in my blood and scans. My scans have shown a 1.6 cm mass in my liver and half fatty liver, a nodule in my left lung, pet scan activity in my bone marrow, and ileocecal valve, 2 masses in right my adexnal area, and in my breast which is dense and a bump in my bladder near the entry of the exit. Endoscopy found a bunch of raised bumps that weren't biopsied and damage from h pylori and acid reflux. My colonoscopy from 6 years ago looked very scarred up with alot of white places that didn't look right. My alternative pathway was 109% reference was 39% a year ago after my repeated bouts with covid. No doctor could explain this not even my internist. I went from 48kg to 75kg in a 12 week span. I was active, a runner, a spartan runner, eating healthy, and no reason to gain. Then it reached to 80 kg. Then at my heaviest my weight started dropping coupled with gallbladder induced pancreatitis 3 times along the way. Now I've lost 22 kg in a year in a half.I live in the Netherlands and I'm being dismissed left and right. I've had 5 hospitals now reject me for a second opinion. I'm feeling discriminated against at this point. Until now no doctor has looked further into the findings that were found. No biopsies nothing. I am desperate to find a doctor on here that might recognize these symptoms. No doctor has been willing to actually help me here in this country I live in as an expat. 😢

[@rosebojorquez1237]

A good doctor is hard to find. Sometimes you have to be your own advocate and insist. Insurance is also very important to have. They try to keep costs down if you don't have it. God bless you! Don't worry about what other people think. There are people out there who care. ❤🙏 prayers for you are comming from me.

[@user-zq4fv8sj6v]

This channel needs a video of BOTH: 1) States where patients are denied care most 2) States where patients receive better care I’m chronic to terminal and exhausted by NYS!!! I’ve decided no more medical care, have DNR paperwork and to die naturally, in PEACE.

[@BUBBAGRUMPSMOM]

That’s sad your doctor said that you were eating too much. 😠 Prayers for you sweetie 🙏🏼

[@muscleNPmama]

As a primary care provider honestly we see so many women that sit and tell us how much weight they have gained and its shocking to them, etc. I sometimes try to refer them to endocrinology and now specialists dont even want to see patients unless their primary provider has done a cortisol suppression test which many of us are not experienced with.

[@girlinterrupted9145]

I had put on more weight than I ever had in my life when I was under a lot of anxiety -so I understand how something like this can be missed. I had inflammation and aches and pains too. Once some of the anxiety decreased , my weight started to come off. I’m a thin gal so 25 pounds was a lot for me. My cortisol levels were most likely the culprit . I also had low vitamin d after spending too much time indoors trying to complete my degree but also living with a controlling immature man who thought daylight was for losers🤷‍♀️. Of course, that was simply an excuse for his own poor behavior . As you can imagine, his health is now suffering as a result.

[@anglophils645]

Doctor, thank you for mentioning the cortisol-suppression test. I have many of the same symptoms described herein by Mariana, so I'm going to request the test that you are recommending, from my physician.

[@ezsand0077]

My doc recommended cortisol suppression test and was told my insurance didn’t cover it

[@user-zq4fv8sj6v]

This channel needs a video of BOTH: 1) States where patients are denied care most 2) States where patients receive better care I’m chronic to terminal and exhausted by NYS!!! I’ve decided no more medical care, have DNR paperwork and to die naturally, in PEACE. I’m a man.

[@cathytauscher6760]

I'm sorry you had to suffer for so long! Best wishes for you and your beautiful family. Stay strong!

[@sineriafrankenstein7316]

Wow what a nightmare!!! Thank goodness you have persevered and found doctors to listen to you and help you!! I sincerely wish the best for you!!!❤

[@robinfisher6250]

I am a survivor of Adrenal Cortical Carcinoma from 2002. I also had so many symptoms and underwent countless tests. I had surgery for removal of the tumor and adrenal gland as well. At the time, there weren't any other treatments like chemo or radiation, just surgery. By God's grace, I survived one of the rarest cancers but I still have some symptoms that never went away completely. I will pray for you and your beautiful family. Stay strong! ❤️

[@juliemullen365]

God bless this beautiful women and her beautiful family ❤

[@JosephSalinas-r4r]

What nice things to say😊

[@odonovan4725]

Thank you for sharing your story. Prayers to you and your beautiful family. Lots of love healing. Keep fighting your worth it!!!

[@jimhenderson387]

What a terrible and traumatic story! I'm sorry anyone has to go through something like this. I hope you are getting better and wish you only the best in your future.

[@onwardsandupwards7397]

“Keep looking” is important advice. Thank you for sharing your story.❤️

[@kayeszymanski6945]

Mariana, thank you for sharing your story! I’m sorry that the doctor gaslighted you. This is such a terrible situation where the doctors grabbed the quickest diagnosis. You’re overweight so you must be eating too much 😡 God Bless you and your family!! ❤❤❤

[@Bookreviewer-n5e]

SHocking. I am speechless with shock. All the best little kid Luna. I hope her mother recovers. I lost my mother in 2020 due to Covid and I am middle aged. It is so difficult. So traumatic it does not matter whether it is Luna or I. Losing parents is horrible. Ask me.

[@brooks6348]

My friend was diagnosed even after she developed cardiomyopathy. Her blood pressure was off the chart. She was finally diagnosed after developing a severe intestinal infection and finally had a ct scan.

[@ColleenC-n5v]

Stay strong, beautiful mother. I’m so sorry for all the pain and suffering you are experiencing. I hope and pray that you will be healed in Gods mysterious time. Love is truly the best medicine. Your husband and children clearly adore you and that radiant smile. ✝💜☮💜✝💜☮💜✝💜☮💜✝💜☮💜✝💜☮💜✝

[@MadDog31542]

God Bless you Mariana. I will keep you in my Prayers. May they find a cure for you. ❤

[@drinabooboo]

I had a Pituitary transphenoidal surgery Jan of 22, and I have a 2 cm lesion there now, giving me Cushing symptoms again. For the last 10 years I just been constantly suffering, I hope for rest soon and I hold on for my daughter too.

[@LifeBetweenTheDash]

I'm sorry ❤🙏🏾 All the best to you.

[@SilkeFauve]

God bless you and your beautiful family. I agree that it is necessary to find a doctor who is a healer and who recognizes the spiritual component of healing.

[@violet04nunya98]

This is a very long, complicated and confusing disease. You are doing well in searching for the right doctor and treatment. I’m inspired by you and I want you to know that you’re strong, you’re capable, you’re an amazing mother and woman, and you’ve got this!! Keep strong and smile when you’re feeling helpless, or depressed. You can do this!! I’m dealing with my own health issues and I understand and empathize with your struggles. Just know that you’re not alone and you’re loved. God bless.

[@Silenceisgolden-o9o]

You are a Warrior mother! I respect you and admire your tenacity! You are in my prayers now. Sending love and asking Our Lord to bless you with health 🙏

[@RisingPhoenixBeautyByLena]

Thank you for sharing your cancer journey. I think im going to look into this more because i have similar symptoms. Prayers sent your way.

[@Dublin1008]

What a journey 😢 I wish you the very best❤

[@Ceerads]

Thank you for this video. I’m glad your perseverance resulted in your finding the clinic trial that’s keeping your cancer at bay. Best wishes for you and your lovely family.

[@LouisePicard-e2p]

You are very courageous and I believe miracles can happen. Sending you high vibes and hope you will stay that way for a long time 🙏🌺

[@janwillard6708]

I’m not making excuses. But rare cancers like this are difficult to diagnose. Sometimes we need a Dr House!!

[@reillybab1]

Wow you are a warrior 💕💪such a beautiful person please know I will keep you in my prayers ❤

[@colleenlaviolette7925]

You are a wonderful person and I’m sorry you have had to fight so hard.

[@girlinterrupted9145]

Prayers for you and for healing. Make sure all your vitamins are up and decrease stress as much as possible. Eat lots of fruits and everything natural . I know I don’t have all the answers but one thing I do know, God can heal, and I pray he finds the right doctor for you too.🙏🏻❤️

[@TheRealdal]

I’m surprised after all those kidney stones they never did an U/S or CT sooner. Especially with your other symptoms. Or did a Cortisol level. It had to do with the insurance which is really sad in this country.

[@breezeh1127]

Oh the doctor gaslighting over the weight gain triggered me bad.😢 I was eating 900 calories a day, keeping a food journal on my phone (for over a year) and had seen a nutrition center and found out I burn 1900 calories a day just sitting still and was walking 4 miles a day and gaining weight. Turns out my thyroid is a mess(among other things). They sure made me feel terrible and like a liar tho. Like I was some weird closet eater. I was so thankful for my husband who knew I barely ate and my son who is in the medical field, speaking up for me when they pulled this with me. I'm so sorry they didn't take your symptoms seriously.

[@zye....]

How did you find out what the problem is?

[@breezeh1127]

@zye.... I went to my PCM and asked for them to do an ultrasound of my neck. I was having issues swallowing, and my neck and face looked swollen and big(along with my hair falling out, cystic acne and weight gain). She agreed even tho she had previously insulted me and made it seem like i must be going home and eating a mountain of food. But she only agreed once she felt around on my neck herself and realized something wasn't right(blood work was normal). The ultrasound showed a goiter, and when they went inside, 3 of my parathyroids had to be removed as well. ..even tho the labs were normal. Ppl don't follow text books exactly with how they present and doctors need to remember that.

[@NickUncommon]

​@@breezeh1127Parathyroids are so finicky. I had one removed which was hyperplastic. PTH still high, but calcium never above high normal. Symptoms are there, losing hair is being put off as male pattern baldness, bone pains, bladder and normal body sensations are being dulled by the bone pain. I hope, there will be a specialist who will look for what is wrong. MEN1 was genetically excluded, but the Geneticist told me, there are many blind spots, the usual panels don't look at, and with PHPT, NET in my pancreas and other things going on, they suspect this multi tumor disease. Watchful waiting and scans once a year are what is done so far. Not feeling the greatest, still having to daily deal with unpleasant symptoms is hard. I sure am glad to have a sort of community here.

[@beverlyhoward3512]

God is with you🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽

[@آزیتاشادکام]

U are so amazing, beautiful and strong woman, I pray for u from the bottom of my heart ❤

[@HLJlovejoy]

God bless you, Beautiful Mariana & your family ❤. Your testimony is so touching and inspiring. You all are in my prayers in Jesus name 🙏🏾.

[@CountyLeaks]

Why, why, why can't everyone in this country have access to the best healthcare? When you're battling for your life with a young family, the last thing you should worry about is paying for it all. I have the very best health care available and at this time can pay for it, and yet my doctors and nurses always tell me that they must clear a procedure or medication or therapy with insurance first. So frustrating.

[@henrythegreatamerican8136]

That's what happens when you financialize healthcare and mega investment firms have a huge stake in the system. I'd say a lot more but youtube censorship is absurd.

[@Ceerads]

This country is sick in so many ways. And now, after November 5, it’ll get sicker.

[@ertiebassy3612]

Thank you for sharing your Story! Your children are beautiful and look happy. A blessing.

[@anglophils645]

Mariana, thank you for sharing your story. I have many of the symptoms that you are describing. A doctor who has responded to your story in your Comments, says that I should request a cortisol-suppression test, so I'm going to do that right away. I hope that you continue to feel better and stronger, every day.

[@yveeriksson7437]

Sad that you had to meet so many incompetent doctors. If a patient has an unusual dx doctors should refer to another doctor with that actual speciality. Good thing you trusted yourself!

[@vdeniceeckert3494]

I live in Michigan, i have bladder cancer, my situation was the opposite they found my cancer by accident, looking to see why i kept vomiting and diarrhea till i dehydrated, my urologist in Grand Rapids is great, very lucky no stage superficial bladder cancer, i go tomy 3rd surgery in a week and chemo is being put in my bladder, to hopefully stop the surgeries..... The CANCER centerin Grand Rapids is top knotch too

[@susansmith8974]

God bless you.

[@chelciewentzel8191]

praying for you ❤❤

[@st3942]

May God gives you strength 🙏

[@bettyperkins7379]

May God continue to bless you, I loss my Mom, and my sista 5 months ago to Cancer. Both of them.

[@SuperHope58]

Cuídese mucho tenga mucha fe!!!!milagros suceden

[@MH-hw4uh]

My prayers are with you 🙏🏾💕

[@sabine8419]

Prejudiced healthcare providers need to be re-educated or even disciplined. It is terrible what this woman had to endure, and then got blame and no compassion.

[@carlalane699]

I'm so sorry. I will pray for you. Your story sounds like me ,except my symptoms are a lot less severe. I'm going to have my doctor to scan m me. God bless

[@bradmyers7109]

Pituitary tumors that produce adrenocorticotropic hormone (ACTH) can cause both acne and weight gain: Weight gain: ACTH tumors cause the adrenal glands to produce too much cortisol, which can lead to weight gain and fatty tissue deposits around the midsection and upper back. Acne: ACTH tumors can cause acne

[@jenfrisk996]

My cousin and best friend has this cancer she is fighting. Year 5 lots of surgeries. Lots of failed treatments. Can you tell me the immuno therapy you did? I’m wanting to check if it’s one she has tried already or not. She also has three kids and loving husband. I have never met someone so strong, cancer is hard enough but when you add RARE it’s an entirely different experience; same with chronic illness. I am so very sorry you and your family have gone through this! Sending prayers for all of you ❤ keep fighting

[@lourdesirizarry552]

Sometimes we talk about the denials in a patient but doctors sometimes are in denials too and because of that they jeopardize the life of the patient with misdiagnosis. That’s not fair. I think they should suspect the worst case scenario.first.

[@nettie4408]

Same. Mine Carcinoid Syndrome 😢😢 missed now 6 tumours too advanced to treat just palliative for me. 3 kids too 😢😢😢😢

[@mariavillela8065]

Stay strong ❤

[@ronmann2755]

Instead of doctors saying, they don't know they'll try proving their intelligence at the life/ health of the patient.

[@ronmann2755]

God is!

[@BerniceTaylor-q7s]

Honestly, its such a sad story and heartbreaking that your doctors dismissed you. Unfortunately its common, and a person need to diagnose their disease or hound their Doctors to listen to them. Healthcare is a joke. Happy that you finally got a treatment that work. What a horrific experience. I believe you and will pray for your full recovery.

[@2lightfoundation721]

I’m noticing a theme in a lot of these videos which implies some sort of negligence on behalf of our doctors. Glands are like the directors of an orchestra as they tell the target organ(s) how to behave. If the maestro is “firing on all cylinders”, then the pathology should also show up in the behavior of the target organ(s). In this case, the gland is sitting right on top of one of the target organs. To a well trained eye, this would probably raise a red flag in basic bloodwork. I’m starting to wonder if we are reaching a point to where things like blood screenings, X-rays, CT scans etc. will be double checked by well trained A.I. in the future. Too many finite details are being missed or neglected by doctors these days. It’s patient in $$$, patient out $$$ nowadays and if they can’t determine a diagnosis, it’s either your making things up, trying to get pills or psychosomatic. There are some physicians out here not willing to invest the time to “connect the dots” between seemingly disparate data to give us patients more reliable, accurate diagnoses. This is why I feel A.I. will play a significant role in medicine in the future. God Bless this poor woman and her family.

[@RustyShakleford1]

All GPs should be replaced by ai. We need to have only surgeons and specialists General practitioners are failing and most are init for the money

[@RustyShakleford1]

I agree ai should replace GPs and that way we're left with specialists or surgeons to actualt diagnose you and repair you instead of like a GP gaslight and delay referrals

[@deanawells4395]

No one tells you how radiation affects can be so bad. I had so many problems during my radiation that no one told me would or could happen.

[@gingin1050]

Sweet soil❤

[@vdeniceeckert3494]

Im sorry you didnt have insurance , but i wonder if thats why the doctors didnt do more scans. I think that they failed you

[@Gigi-kr6ek]

When someone has something wrong with the adrenal glands, high or low cortisol or even a person with bad hypothyroidism ... a doctor should be able to look at the person and see something is really wrong. I lived 20 yrs of hell because my pituitary & hypothalamus didn't function right and caused me to have secondary adrenal deficiency, I desperately needed steroids, thyroid meds, growth hormones, sex hormones, etc ... I was on death's door. I told them for yrs something is wrong with me, especially my thyroid & hormones ... they didn't care at all! I was a young wife and mother ... i lost most of my life because of neglect from doctor's!

[@lasoriathomas3336]

Classic signs of Cushings! How did they miss that? 🤔

[@candyvigil550]

I'm so sorry that so many doctors let you down. You really should have been sent to an endocrinologist with all the endocrin symptoms you were having. You must have been so miserable.

[@user-zq4fv8sj6v]

This channel needs a video of BOTH: 1) States where patients are denied care most 2) States where patients receive better care I’m chronic to terminal and exhausted by NYS!!! I’ve decided no more medical care, have DNR paperwork and to die naturally, in PEACE. I’m a man.

[@seans2876]

Nowadays, it takes months to get an appointment to see a doc in 10 mins. Among these precious 10 mins, they spend 8 mins typing. The treatment is like a mass production line. Unless patients exhibit unusual obvious symptoms. Doctors usually will not dig into a rabbit hole to find out what is exactly going on. They diagnose by statistical experience for efficiency which is understandable. However patient is the first line and will be final responsible to their own healthy. Lots of time patients know their body lot better than the PCP see you once a year. Find a good, patient and careful doctor is extreme important. Sometimes could be a life saver. Like in any industries, a good professional is relatively rare. Keep looking while you are healthy.

[@NoodlesEaton]

Your story makes me furious. I hope you are doing better now.

[@friendlhi]

❤🙏👍best wishes

[@henrythegreatamerican8136]

"I had to wait longer until I got insurance" Welcome to America. Where financial middlemen between you and your doctor decide whether or not you get healthcare.

[@anglophils645]

Obamacare has made insurance affordable for everyone, it's very inexpensive. Anyone who chooses to walk around with no health insurance, is making a stupid, irresponsible choice.

[@nicolacrickmar8829]

The problem with cancer is that it is sneaky as well as dangerous! It hides between other symptoms for other illnesses. Doctors miss cancer because it is not expected, and there are so many tests for different cancers that they couldn't possibly go through for every patient they see, if there was a simple once a year test we could all have it would save so many people that could have survived if their cancer was caught earlier. Also a cure for all cancers would be the best result EVER! You have a lovely family support system, and such a beautiful smile that is infectious! I wish you all the best in your future.

[@RustyShakleford1]

Bullsht and symptoms of fatigue fever or sweats or lumps recurring should be scanned with a ct contrast minimum should be and mri and ct

[@Dmcsw-xg9cq]

❤

[@suzysmith4254]

It could also be part of multiple endocrine neoplaysia men MEN1 its genetic

[@dawnanngallagher8495]

Shocking that a doctor laughs at you when he is your 5th opinion. You are a young mom fighting for your life and that’s nothing to laugh at. What is really horrible is that you are battling for medical insurance and when you are uninsured and get emergency medical insurance one may not be hooked up to the best hospitals and doctors. I’m glad you qualified for good medical trials. Your face now looks like it is half the size and we can see you neck now. The photo of the acne looked like acne/ rash and coming out of nowhere can be a sign of cancer. Shocked that it took 1 year to diagnose you but that seems like that’s how it goes these days. I think when a woman says she’s gained weight but is exercising and eating right they aren’t believed. Most folks lose weight with cancer. It looked like under your chin was getting darker which should have been a clue about a hormone imbalance. You looked like moon face which is a term used when having a reaction to steroids. (I’m not trying to insult you , just an observation). Best wishes to you and your family.

[@PH-tv2sw]

That’s so sad America has come to this, no insurance no help until you have insurance

[@BraceYourselfforBeauty-zu1ty]

get a job that has insurance.

[@anglophils645]

Obamacare has made insurance affordable for everyone. Having no insurance is the individual's choice, and it's a stupid one.

[@hyperjen1]

​@anglophils645 "affordable" is different for everyone, what bills do you choose to pay, do you choose fresh fruits and vegetables or health Insurance. People who say stuff like this have never been poor, you have never had to chose between basic survival priorities.

[@ManzelaManz-pk8zy]

Jabbed!?????!

[@Ceerads]

I so wish that this site would refuse to post comments by anyone blaming the COVID vaccines for cancer. And ban comments from anyone promoting alternative “treatments” that haven’t been tested and approved by oncologists.

[@odette1215]

❤Prayers for you in Jesus' name. Surrender all to Jesus 🙏🙏

[@johnjarvis2168]

1 gram of cannabis oil a day for 60 days is the answer to cancer. Only the lucky ones listen to me,please be one of the lucky ones. Best wishes to everyone who is fighting for their lives!

[@drinabooboo]

Did it get rid of your cancer?

[@johnjarvis2168]

@drinabooboo It has cured 52 people that my team has treated personally. I swear on everything that is holy

[@drinabooboo]

@johnjarvis2168 Wow! Do you know by which mechanism it is successful?

[@cpg8000]

Is cannabis oil the the same thing as CBD oil? Thank you!

[@johnjarvis2168]

@@drinabooboo we make the oil ourselves. It is taken in a double zero capsule. Please try it, you won't be sorry. Research " Rick Simpson oil"

[@RedWolf17]

The Jab 💉😞

[@jovanimorales3411]

Vaccines do NOT cause cancer 🙄 Some vaccines prevent certain cancers. Cancer patients are immunocompromised and therefore recommended to update their vaccines to reduce the risk of dying from certain infectious diseases (including Covid).

[@Ceerads]

OMG. Do you people ever actually THINK? Or listen? Firstly, the “jab” doesn’t cause cancer. Secondly, she got this cancer BEFORE Covid. 🤮 Stop listening to anti-science nonsense.